Ep. 34 - Lilith

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
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Today we chatted with Lilith (insta: @adamslilith.msart) who shares her story with multiple Sclerosis (MS).
Notes:
Introduction to MS Diagnosis - Lilith describes the large flare up in summer 2022 that prompted her to see a doctor, with extreme fatigue, vision problems, and balance issues. Her primary care doctor did not take her seriously at first.
Characteristics and Symptoms of MS
Lilly explains what MS is, who it affects most commonly, and her day-to-day and flare up symptoms.
Most challenging symptom is cognitive fog, affecting her concentration and overstimulation.
Lilly describes a typical day for her, with fatigue affecting her daily schedule and nightmares worsening her sleep.
Words of encouragement for those newly diagnosed or in a flare up, saying goals are still achievable through new approaches. She reflects on feeling her life was over when diagnosed but says MS did not stop her and new ways can be found.
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