Daring Dialogues: Embracing Disability Intimacy & Healthcare Transparency!

Why is it that we find ourselves paving the way for our own health education? This thought-provoking video sheds light on the reality faced by many individuals with disabilities, who are left to seek answers and understanding on their own. While healthcare providers grapple with whether to open the door to discussions on disability intimacy, these individuals share their personal stories of discovery, resilience, and the importance of having open conversations.
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[@tyreesetjjoyner1995]

It’s good to see you again

[@Chelsie2003]

Anna, when I was your age I had the same mobility level........actually probably a little more independent as I never used a walker. When I was 18, I could walk a mile unassisted, no mobility devices, nothing. I used to ride my bike 10 miles PER DAY. However, then I move away from home and I discovered that if I wanted to be included in things, I had to use my wheelchair. My friends, as much as they loved me , weren't going to wait around for me to walk. I realized I had a decision to make. I could continue to walk and be left out of things or I could give up walking and be included.
I gave up walking and it was the BEST decision I've ever made. I was able to do so many more things. I had energy to go out. I didn't have to worry about falling. I didn't have to worry about being out out of breath (I hold my breath when I walk) I didn't have to worry about weather there would be a chair once I got where I was going. Also, I found out I got made fun of a lot less. And I didn't have the problem on not knowing where I fit in
I think the medical community does such harm to people with disabilities when they stress walking. Sometimes walking isn't the right answer. Sometimes people are better off not walking. A PT told me this story once, there was this girl with CP in college, and every day she walked to class no matter what., No matter how long it took her. She eventually failed out of college because she wasn't getting her homework done. She was tired from walking. Had she just used a wheelchair........maybe she would have been successful
I think you live with your parents. That's great! But I think your going to find it's a lot harder to maintain your abilities when there's no one around to help you. Even in some of your videos, you have your mom help you. When you live on your own...........you have to figure out how to do it yourself. I'm not saying it can't be done...........hell, I lived 15 years on my own and 3 years in Chicago with absolutely no help, no parents, no PCAs, nothing. But you have to give up your ideals
I like your channel. You remind me so much of myself when I was your age. Your channel is what spurred me on to start me own channel. I started about a year ago. I have a speech impairment too and I thought, if she can do it, I can do it. I'm still trying to figure out how to edit videos. I think I do a lot more editing than you. I've always been into the editing side of things. TH-cam hasn't gone the way I hoped it would go but I keep telling people at least I'm having fun and I gives me something to do

[@the_cp_life]

Hello thank you for much for being open and honest about your experience. However I am a very strong believer that each situation is very different and should be evaluated based off resources available and lifestyle of individuals. Also don’t give up on TH-cam it definitely takes time and is a learning curve.

[@Chelsie2003]

@@the_cp_life Your right, everyone's saituation is different. I just know I always find it helpful to hear other people's experiences.
I grew up in a small town in the Midwest and I was the only student with only a physical disability. I was also REALLY REALLY smart. As a result, I was seen as "the expert" on disabilities. Then when I got to college, with 100s of other, REALLY REALLY smart people with a physical disability, I realized that my experience wasn't the only experience out there. I realized I needed to listen to other people's experiences and take into account what I say.
Your comment about only wanting to date other people with the same ability level COULD be seen as offensive. I know you said "you're not discriminating" but you are. What if an able-bodied person said "well, I can't date Anna because she uses a walker and I want to maintain my ability level." I bet you would feel discriminated against. Anyway...........just trying to help. At the end of the day, I'm just some random person on the internet and what I say doesn't matter much. But I do try to help the younger generation of activists when I can. I'll be watch your videos

[@the_cp_life]

@Chelsie2003 hello thank you so much for your thoughtful response and I couldn’t agree more with you on being able to hear other people’s opinions! Just so we are clear and honest in this comment section I was simply talking from a practical perspective I would never ever choose abilities for any other reason other than what would complement the both of us to live a happy productive and healthy life together! And I realize that other people may feel completely differently and that each relationship has its amazing potential and that’s incredible!

[@kennethfletcher1157]

And yes, that is a good point as in the UK. If you get married to someone who needs support needs then you have to be their carer as they don’t get money for their own carer as they government expect that they should get us supported by their partner when they’re married, so you get less moneywhen you’re married to each other and you get less support need for caregivers when you are married to each other as they expect your partner to take over that role, but sometimes that can put a lot of pressure on the relationship

[@the_cp_life]

Yes that is absolutely crazy as I think that the government shouldn’t assume that people have enough money to pay for their own support needs! That’s also affected by your employment situation here in the United States!!

[@hamburger-sz8wv]

You went to my school :D

[@bencaldecott6583]

Goodmorning