From Neck and Head Swelling To CANCER - Jim | Non-Hodgkin Lymphoma (DLBCL) | The Patient Story
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- เผยแพร่เมื่อ 9 ก.พ. 2025
- Jim Zervanos shares his story that began with a shocking and sudden symptom-his neck and head swelling dramatically without warning. Despite multiple doctors being baffled and unable to pinpoint the cause, Jim's determination and an incredible team of surgeons led to a groundbreaking surgery that saved his life. Diagnosed with diffuse large B-cell lymphoma, Jim overcame a near-fatal condition that had never been seen before in living patients.
In this cancer vlog, Jim opens up about his experiences with chemotherapy, his life-threatening surgery to replace his superior vena cava, and how hope, faith, and self-advocacy played crucial roles in his survival.
Thank you, Jim, for sharing your story to help others.
#rarecancer #cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms
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"It is hard to convey how intimate this memoir is, how revealing, and how moving. With unflinching candor and rare introspection, Zervanos takes us on a tour of life's scariest moments, and also of its most redemptive-and we are all improved by this journey he so generously shares. This is a brilliant, important book." -Robin Black, author of the novel Life Drawing
Link to Jim's Book: That Time I Got Cancer
www.amazon.com...
Jim's website: www.jimzervanos.com
What you experienced, with the head and facial swelling, is called Superior Vena Cava Syndrome. It is USUALLY caused by a cancer pressing against the Superior Vena Cava from the outside (in which case urgent radiation to the area is applied, with subsequent definitive treatment for the canner/tumor. Your experience is so valuable in that it teaches that SVC syndrome can result from INNER obstruction in the vessel! As a medical professional, I find this video of great value, as it teaches another way to think outside the box to arrive stone the correct diagnosis. Thank you so much for sharing your story.
Exactly what I was thinking. So important to share, like this man did, and show these films and spreading the information. This hospital will now have the knowledge, but a lot of others, worldwide won't, until, hopefully they get across this, or his book about it.
Thanks for your message. You might find it interesting that indeed there was much discussion about how if the lesion were outside the SVC, lymphoma or other cancers might be considered-not to mention it would be accessible to do a biopsy-but since it was not just inside the vein, but literally inside the vein wall, so many theories were disqualified, including fibrosing mediastinitis, which had been a working diagnosis briefly but for similar reasons was disqualified. In any case, the interventional radiologist was facing a catch-22, since a biopsy seemed impossible--there was just no way to get a needle into the vein wall and pull out a piece of tissue without damaging the vein and risking spread; the alternative was to refuse to do the biopsy, despite immense pressure, since there were no other options. He saved my life by showing such restraint and not trying to do a biopsy when he knew it might likely kill me. Months later my oncologist told me that had they known it was lymphoma, as you say, radiation would have had devastating effects on the vein. So as radical as the surgery was, it spared me the radiation, and, in this way, it was among the many things that saved my life.
This is amazing and I'm sure your case will go down in medical history. Wishing you and your family and your medical team, a Merry Christmas and a super Happy New Year.
You are one lucky man!!
I have marfan syndrome. I've had a lot of time to kill in hospitals, so I always allow the students to come and diagnose me. I don't present as a usual marfans patient, but I've had 2 aortic replacements and a dissection. I now have an ICA aneurysm, doctors don't seem to concerned with it. I reckon it's what's going to take me out.
I'm diagnose with cancer, i have just 2 years to live, i've never been this scared to die, i'm just 35, i cry everyday wishing for a miracle to happen. i don't know why im saying this here. put me in your prayers.
im really sorry. i've was in such situation 15 months ago. i had just 2 months to live till a friend told me about a healer who helped me. She cured me, I don't know how she did it. but i owe her my life. she's the reason i'm alive today.
That's wonderful, how do i get in touch with the healer?
Her name is Prophetess Regina Kuma,and she is a great healer who can heal you.
Thank you for this valuable information, i just looked her up now online. impressive
Virginia, I pray in the awesome name of Jesus Christ that you are healed and saved! There is nothing like the peace that He brings, the hope, the power and strength. He is my Savior ❤
Don’t ever give up hope!
Lymphoma is a very sneaky cancer. I had an experience similar. Went to several doctors with various issues not knowing they were symptoms. One doctor wanted to send me to a pain management doctor. Went to an orthopedic doctor and he decided to run tests. Finally he sent me for a MRI. I had a mass inside the bone marrow of my femur which was deteriorating so he did surgery to put a rod in it and did a biopsy at the same time. Surprise, diffused large B cell lymphoma very aggressive. Lots of chemo to get me ready for a stem cell transplant which worked for a year and than a second transplant with a donor. 20 years later I am great. Thanks to Stanford for all my care.
Wow! So glad you got through all of that 😮
😮 dang, very very glad you got the right answers! And proper treatment!
Stay strong and happy holidays 👍👍
Stay strong and happy holidays 👍👍
So happy for you
God blessed you
Live a happy and thankful life ❤️🙏
My husband had cloudy vision in his eye and severe headaches and listing to the side and eventually throwing up… I rushed him to the ER here in California in 2017. The ER doctor told me it was a thyroid storm to take him home. I said No! I demanded a CT scan and stayed until they ordered a test he couldn’t pass 2 hours later .. I told the Doctor I thought it could be a Brain Tumor.. He said “impossible I just can’t goggle symptoms” Long story it was a large Tumor and 5 Docs were in our room.. unbelievable! He had stage 4 melanoma and would die.. But there was treatment to try. Immune therapy a long process but it worked 🙏He is alive and well drives and back at work. In remission for 6 years 🎉Don’t give up , keep the faith and hope and get second opinions 🙏🕊️
My😅
amazing story. Thanks for sharing. I'm so glad your husband is going well, and good for you for persisting... Immunotherapy saved a friend of mine with lunger cancer; they were going to remove a lung and blast him with radiation--but immunotherapy spared him all of that and now he is doing great, a decade later... (You and your husband might enjoy my book "That Time I Got Cancer: A Love Story"--all the medical drama, but also the personal story behind the clinical story.) Happy new year :)
Hallelujah! Amen - never give up and put our faith in Jesus Christ.
I will find your book 📖 Happy New Year! 🎊
This story is a huge teaching opportunity for all health care professionals
YES!!!
I’m glad he had doctors that actually listened to him and tried to figure it out. As opposed to all the patient stories of women who were blown off and dismissed by doctors for literally years. Until their cancers were at stage 4!
Thank u Jim for sharing. As a.medical professional I also learned a lot from your storie.
Its not just women!!! Good grief!!! Its our failed Healthcare system to both sexes! The reason you and others think its just women is because women are more likely to share their experiences more so than men!
One of the most compelling stories on this channel, which is chock-full of such stories. My own father was diagnosed with NHL (same type diffuse large B cell ), but with a different much less dramatic presentation (above the diaphram) 30 years ago at 62, and I am happy to report that he is still here at 92. He has many other health issues now, but after 6 rounds of chemo and a month of radiation treatments, he's never had a recurrence of NHL. I am going to buy your book! Best wishes to you for continued good health and TFS! 💜 💜 💜
That's amazing. It's an incredible blessing to have a 92 year old dad, much less one who is a cancer survivor! Please give him a hug from all the people who will read your comment
Thanks for the good word…and for picking up the book😊. Best to you and your family…and continued good health to your father.
@@cynthiaholland13 Thank you! ❤️
@@jimzervanos 💜
Wow, my dad had it twice & died at age 87, 5 years ago.
I say it almost every week in veterinary medicine... I hate lymphoma and it can present in so many different ways.
What a great amazing story.
This man's story gives me hope. My Heart Cat was diagnosed with T-Cell lymphoma with no tumors or lesions present even after open biopsy surgery. Only a positive PARR test. They all say it is almost always fatal. I am leaning and praying for the "almost" part. She's going strong and is going to be an outlier, to everyone's amazement.
my oncologist says they call lymphoma "the great masquerader"--I'm sure for the reasons you hate it :)
I wish my late best friend had had this team with him.
His PCP told him he was getting older, and he has degenerative disc disease, go see a chiropractor.
Tom wasted 6 months believing this.
Non-Hodgkins Lymphoma non-small cell. (?)
Tumors above & below his diaphragm & a mass on his liver.
5 months to the day
He would have been 65 tomorrow.
RIP Tom. You are so missed
I'm so sorry.
I'm so sorry, this happened to my husband too. Colon cancer. He was gone a year and a half later 😢
I am very sorry. Lost my best friend at 39 to lung cancer.
Im so sorry for your loss. Did he have previous colonoscopies?
Devastating, being misdiagnosed/or not being referred to a Dr. who's more aggressive in his testing.
I am so sorry that this happened.
People, please be diligent with your Dr. visits, these days the Hospital Group they work under, only allows the patient visits 15-25 minutes, unless your Dr. has is own private practice. God Bless to all who are battling illness's, Have Faith
✝️🙏🏼🙌🏼🛐🕊️🥰
Oh man. I am rooting for you. May you live a very long and happy life. 😊
thank you for the kind words :)
My nephew had the same, but it was diagnosed on the day he got to ER. He's ok now. They got most of the tumor and he's in remission.
This video popped up for me. I have been dealing with a year plus of higher white blood cell count. The lymphoma question sent me to a hematologist. This seems OK. Then, severe neck pain entered the arena. An MRI for the neck showed an issue for my thyroid.
Next was a scan precisely for the thyroid. There is an enlargement. Next is a biopsy. All of this through the maze of appointments and the "what if cancer" scare is done.
It's hard to advocate for yourself if you don't know what it is. After watching this video, I think I will be more diligent pursuing my health matters.
Thanks for sharing. I really needed to hear this now.
sounds like it's still a "work in progress"--I'm glad my story helped--hoping for the best for you.
Your a miracle and thank you for telling your story. Other doctors need to practice the words that you held on too. THERE IS ALWAYS HOPE!
yes he is!
You were in the right places at the right time. More doctors need to care like your doctors.
yes he was!
My husband had no symptoms until he started vomiting every time he laid down. It was stage four DLBCL.
He had been to a Dr. the year before for a routine check-up they never found anything.
I’m so glad you were diagnosed in time to save your life!! Praise God! ❤
I'm so sorry. Thank you for your kind words.
“There is always hope” we’re VERY important words for him to hear. Getting back to “normal” was the most important thing for me after cancer.
Your father saved your life. Wishing you and family a long,healthy life.Merry Christmas.
supportive parents can make all the difference!
I'd call that a miracle of circumstances. Thank God, there is always hope!
we would too!
So glad you are OK. I was sitting in a taxi on my way to a corporate training gig, when without warning I felt a sharp stabbing pain under my arm. So sharp that I shouted out in the taxi. I felt a lump the size of an egg against my ribs and the area was hot. Turns out I had melanoma UNDER the skin that had been growing for some time. It had already spread to my lymph nodes and both lungs. Stage 4, just like that. I honestly cannot think of any warning signs in retrospect.
That's amazing--how it can be so sudden and alarming...and yet obviously had been growing gradually... I hope you're doing well.
Thank you. They found that I have a recently mutated V600BRAF gene, which usually regulates cell growth. So, with the mutation, cells grow uncontrollably, which leads to cancer. I'm overweight, which could have hidden the tumor, but I honestly felt nothing... pain, size... nothing. I had the tumor and surrounding lymph nodes removed and there is cutting edge medication, called targeted inhibitors, that can control the mutation and the existing cancer. A worry is that the targeted inhibitor for this specific mutation has been on the market for only 18 months, so there is no long-term prognosis as yet, and 50% of the patients on it have already died. I'm hoping that I will be one of those who lives long enough to develop a clinical history for the meds.
Wow that's quite a rapid 'onset' of symptoms. I hope you have a specialized medical team as there are many very effective treatments and trials for melanoma. Wishing you all the best❤️
@janetbuder6066 The funny thing is that I am fair-skinned and freckled, so every time I visited my home country (South Africa), I'd have my GP give my skin a once over because I have had skin cancer removed before.
The diagnosing doctor (China) said that the cancer had been growing for some time. There was no lesion on my skin at all. And the tumor was about the size of an egg. It was next to lymph nodes in my underarm and a second operation to clear the area showed only 1 lymph node of the 26 removed to be cancerous. Scans of my lungs showed nodules and the doctors said that they could be from the corona virus/vaccination because there has been a marked increase in nodules in the lungs since the virus, but is was cancer and rapidly growing. I declined rapidly. Targeted inhibitors gave helped a lot! And I still feel ok. Fortunately, if the inhibitors fail, I still have a shot at immuno therapy.
AMAZING LIFE STORY❣️🙏🏼🙏🏼
Miracle Thank God our Lord for everything.
Amazing testimony... You are the son of a doctor, and also a Son of God. I praise God for your miraculous life...
UPenn have the most stellar MDs. My family has so many experiences with the medical professionals of university of Pennsylvania both in Philadelphia, and Hershey. They saved my now 5 year old when he was just 6 months old. I cannot ever repay them, nor show my actual level gratitude. I’m so pleased when I hear others having a similar harrowing experience and positive outcome with them. They truly are miracle workers.
I'm happy to hear about your now 5 year old...
My dad had diffuse large B-cell non-hodgkins lymphoma twice. He had a 7 year remission between the 2 episodes & I was his 24 hour per day caretaker his last 10 months. His 1st lump was in his groin, and then 7 years later we knew it was back when a big lump appeared in his neck.
I'm sorry for your loss. Thank you for the reminder to keep getting checked.
“There’s always hope” ❤
This shows that doctors don’t know what they don’t know. I had an intense medical situation several years ago, and had several doctors tell me that it wasn’t c diff, although I knew that it was. I ended up in isolation at the hospital for 6 days while they treated a horrible infection, and yes, I had c diff. They can’t know everything, all the time 🤷♀️.
Congratulations on your incredible survival 👏 🙌 🙏 They don't call it "Practicing medicine" for nothing.
I am so happy for you & your family. May you live a long healthy life 🙏 ✨️ ❤️
What an absolutely incredible and terrifying story. I’m so glad you were able to get answers and get the treatment you needed. I hope the cancer is gone for good.
So far so good. Thank you :)
I’m so glad you overcame this mystery illness, to be there with your beautiful family , I’ve been in your shoes with a mystery illness , but , never received a diagnosis, but I over came ! Thank you lord!
God bless you and your family. ☮️☮️☮️💗💜💙🙏🏼🙏🏼🙏🏼
What an amazing story. Thank you for sharing this and instilling hope in others.
THANK YOU for listening
I think this is the most amazing story I have seen on this channel so far! Jim, you are a heck of a lucky man!
That's an amazing claim. I've watched about a dozen by now, and they all blow my mind. I am a lucky man, indeed. Thanks for the good word.
wow- thank you for subscribing!
Bless you buddy. Live a beautiful long life enjoying everything. Thank you buddy
♥♥♥
Lymphoma is a strong cancer. The patients with this cancer only have the type Hodking well studied. The worst prognosis is when you ear: “ it’s a non honking lymphoma “ cause it means it can be any type of all the ones that exists. It’s great and comfort to ear you’re story. It gave me hope. Thank you so much.
Thank you for telling your story in such a real and yet humble down to earth way.
Wishing you good health and happiness 🎉 for the rest of your life!most
Wishing you all the best and many happy years ahead with your lovely family.
I am very happy to know that you beat cancer, despite the corrupt healthcare systems of today. Congratulations. I wish you and your family good health and happiness from now on. 😊
God is good. Congratulations on your recovery 🙏🏽❤️
God Bless you.🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
This is an awesome story Jim; thank you for sharing and God bless and protect you. Continue to improve and get better! And like you said “keep the faith”.
Thank God for men and women of integrity and compassion in the medical fields!
Thank you for sharing your incredible story with the world. There's something special that God still has for you to do. Im so thankful that you survived! God Bless you all.
I had cancer so I truly understand. Thank you for sharing your cancer journey! May God bless you with many more years of good health! 🙏
Had to fight back tears throughout this entire story … beautiful family, fabulous man, wonderful outcome. God bless and thank you.
Me too
thank you
What a beautiful story of hope, despair and most of all the power of never giving up. Like one of his Doctors said “there’s always HOPE”. Also the power of not giving up and the power of medicine and family LOVE. GOD BLESS you, your family and your great medical team. May you continue to be healthy and happy. 💜💛💜🙏🏻🙏🏻🙏🏻
Wow, amazing story. Im glad you made it through.
University of PA is an incredible hospital. They also performed intricate surgery on me after my cancer diagnosis 12 years ago.
God Bless you and your family. I wish you continued good health.
Merry Christmas 🌲
WOW..WHAT AN INTERESTING SEGMENT, HE WAS VERY LUCKY TO HAVE GREAT DOCTOR ACCESS AND A FATHER WHO WAS ONE, AND WHAT A GORGEOUS FAMILY AND PARENTS❤
Wow so amazing. May God continue 🙏 to heal u. Many hugs 🫂 🤗 and prayers.❤❤❤❤❤❤❤❤
The most powerful words from a doctor….There’s always hope!” ❤
Thank you for sharing your story! Compelling & a beautiful story of togetherness, family, determination, & overcoming the odds!
God bless you 🙏
Your gut was right. Blessings your way ✨️
You were blessed.
Praise be to God for your capable doctors and your loving family.
Thank you for sharing your story so glad you came through it God Bless you and your family
Incredible story. My brother-in-law had this and is doing well 30 years later. I wish you the same positive outcome! You seem wonderful and are lucky to have such a loving, supportive family. Happy holidays and thanks so much for sharing so we can all learn and be on the look-out!
Happy to hear about your brother-in-law. Thanks for the good word :) Happy new year.
Thank you for sharing. You have helped many others.
Wow 🤯 this was amazing. I am so happy it turned out great.
Prayers to all that have a hard battle going on. Prayers to those who lost. Prayers to the loved ones, family and friends even pets. Prayers to the amazing healthcare workers. God bless you all.
Thank you for sharing your story with us.
I can't even imagine the shock you experienced. Sorry you had to go through that experience.
Thank you for educating the world. Hope you have the best holidays ever and you continue to have good health.
I’m so glad he’s doing well! ❤️❤️
Unbelievable God Bless🙏🏻🤗🙏🏻
Got bless you & thank you for sharing your miraculous & inspiring story with us all here!
May you continue to thrive & stay h althy for many years to come.🙏🙏❤️
Incredible journey - surviving this health crisis. It shows how things can be so very different to other patients and how good overall health, strength, love and support of family, friends, and the medical team that keeps hope and positive outlooks in themselves and their patients. I hope you continue to thrive.
Thank you for sharing your experience. Such a powerful message to keep hope alive. What a beautiful family🇬🇷
Thank you for sharing your story
Amazing story, wow
Very rough. Glad it worked out
Thank you for sharing your experience, God bless and keep you well.
This was an absolutely amazing story. God Blessed You by making you a tuff warrior. Thank you for sharing your story.
Jeeeese….. amazing story. Glad to hear it all had a positive outcome
Great story of hope and Faith. U and your family are stong people.God Bless you and your family and continuted good health.
Wonderful God Bless you young man. Happy new year 🙏🩷🙏🩷🙏🩷🙏🩷🙏🩷🙏🩷🙏🩷🙏
thank you!
I saw your "short", and Lymphoma popped into my mind! Thank you for sharing your story!! also, thank you for being a fellow teacher!
SVC syndrome. Likely a mass (? Lymphoma) pressing and obstruction the superior vena cava (SVC) and obstructing blood flow which causes congestion. That’s why he had those symptoms, all the blood had built up and was congested in his head, neck.
What a crazy presentation of DLBCL...I wonder why none of the doctors thought to do a PET CT? Obviously something was causing the narrowing for of the vena cava.
You're absolutely right. The problem was that even a positive result from a scan would require a biopsy to determine a diagnosis and treatment, and the interventional radiologist was facing a catch-22 from the very beginning, since a biopsy seemed impossible--there was just no way to get a needle into the vein wall and pull out a piece of tissue without damaging the vein and risking spread; the alternative was to refuse to do the biopsy, which he did, despite immense pressure, since there were no other options. He saved my life by showing such restraint and not trying to do a biopsy when he knew it might likely kill me. Theoretically, had they somehow known it was lymphoma, I would have been treated with radiation that would likely have severely damaged or destroyed the vein (said my oncologist months later). So as radical as the surgery was, it spared me the radiation, and, in this way, it was among the many things that saved my life.
There is always hope...
Amazing story. Glad you’re ok!
Thankyou for sharing your story Jim.
Amazing story. It's through sharing such experiences that everyone on the spectrum learns about the unknowns. Thank you again for sharing your heroic story. Wishing you and your lovely family great health 🙏
I’m going to buy your book Jim, God Bless you and your family
God Blees you!!
Thank you for sharing!
God bless you, sir.
Your composure is very strong and enlightening. I haven't seen the whole clip, but I have a feeling that you will be okay.
I hope I am assuming this and you will be okay. My heart goes out to you and your family.
Stay strong. I think God has better plans for your life.
thank you!
I've been through the chemo for DLBCL. It was an enlarged tonsil that got my attention. The first signs for me we unusual weight loss and a swelling on the right side of my neck. Fortunately the lymphoma had not gotten outside of the lymph system. I still haven't processed that I had lymphoma. It got harder and harder after each chemo. Lost hair after the first round. Having good insurance was something I should really be thankful for. It's been more than a year and hoping it stays gone.
Thank you for your story and happy holidays.👍👍👍❤❤
Wow!! Well... as a writer... here's your story. A story of hope, science and strength of body, character and family. ✍️📝📑📕
Hope you have a Merry Christmas and a much better 2025!
My dad had the same thing. He lived about a month. This was 12 years ago. Very Sad 😢. Now my neck is STIFF. Like knots. In my neck. I’m in excruciating pain constantly stiffness anxiety panic attacks depression. I live in a NIGHTMARE
Please get it checked. x
I'm so sorry.
PRAYERS!! Bless you sweetie.
I had these symptoms and it turned out to be Meniere's Disease. It's an inner ear disease. My ENT diagnosed it. Thank God no cancer. I would definitely get it checked out asap.
Eyes closed while in the MRI tube lol
I fall asleep sometimes.
@miss_thevelRaibies I be dosing and forget where I am and accidentally open my eyes. Terrible for my imagination. I be picturing I’m on a beach and they are doing construction near by.
But it makes such a loud noise! Not even the headphones help, not even them talking to you helps 🙈🙈🙈🤷♂️😂 I hate it!!
It helps! A lot!
@@allisonB123The first MRI that I had the technician recommended that I put on an eye mask so that I can’t see anything nor open my eyes accidentally. I’ve done that every time since then.
Nothing was typical about his case.
Pretty amazing!
Having a doctor as your father would certainly be an advantage to getting medical professionals take you seriously. Oh yeah, and money!
I was fortunate to have my doctor dad, no doubt. Also fortunate to have excellent health insurance as a public high-school teacher.
Took 2 years to figure out I had stage 2 Hodgkin’s lymphoma, was sent home 3 times. Still here after 30 years :)
i wish drs treated women with the same care n concern they treat men
Have you seen Mary Claire Haver speak on this subject???
Check her out on Diary of a CEO 👍
God Bless You 🙏🕊️❤️ and your family!! I'm so happy that you were in the hands of amazing doctors! I have Multiple Myeloma and it's not yet curable but treatable. In remission with daily oral chemo and I have a good quality of life thanks to my incredible oncology team. My oncologist is one of the top in his field and he saved my life. A cure is coming!! I have absolute faith! Your story is amazing and I'm so glad you shared it with the whole world 🌎!! Who knows how many people you will help in so many ways!! Peace be with you 🕊️🙏
I am wondering if you received the COVID-19 shot that has caused so many unusual cancers and obstructions in veins
Yep
My lymphoma presented in 2011, so no relation to covid or the vaccine, which (a decade later) I was encouraged by my oncologist to get and I have received, with no complications.
"There is always hope"❤❤❤
I wish i can get my health back too.
wishing you the best
At least you have a pretty head!❤