Fair play Bev. Wonderfully insightful interview with the fantastic Lucy. Not easy to spill our hearts out in public but I’ve no doubt this will be a great support to others and give them hope in times of desperation. Inspiring and very engaging interview. Congrats to you both. John G in Dublin x
Hi Bev! I had the same diagnosis as yourself the day after my first birthday. I'm so sorry to hear that you couldn't remember certain things like even remembering your own children. I'm pleased to hear that you eventually got all the right medical support. I also have speech problems like word finding, getting anxious, I get very anxious especially during conversations because I find them very overwhelming and we do share some after effects so that's interesting information. Yes I totally agree with staying positive and living in the present. I have suffered various emotions (but different ones). My advice is to be patient with yourself, take time out and give yourself extra time for things you struggle with. Never give up hope!
😭 hello I have just been watching your video I have had encephalitis 4 times I had encephalitis twice and also nmda encephalitis twice I have not long had it again I was in hospital last year for a month I come home just before Christmas all my symptoms have been different not many people know about encephalitis I have epilepsy short term memory lost get very tired all the time 6 years ago when I had it I had a plasma exchange and reximab .it would be nice to talk to someone to share my experience with having encephalitis and to see how they were like when having it and what there life was like after
Fair play Bev. Wonderfully insightful interview with the fantastic Lucy. Not easy to spill our hearts out in public but I’ve no doubt this will be a great support to others and give them hope in times of desperation. Inspiring and very engaging interview. Congrats to you both. John G in Dublin x
Hi Bev! I had the same diagnosis as yourself the day after my first birthday. I'm so sorry to hear that you couldn't remember certain things like even remembering your own children. I'm pleased to hear that you eventually got all the right medical support. I also have speech problems like word finding, getting anxious, I get very anxious especially during conversations because I find them very overwhelming and we do share some after effects so that's interesting information. Yes I totally agree with staying positive and living in the present. I have suffered various emotions (but different ones). My advice is to be patient with yourself, take time out and give yourself extra time for things you struggle with. Never give up hope!
Just in case you still need us - we are here for support - support@encephalitis.info
😭 hello I have just been watching your video I have had encephalitis 4 times I had encephalitis twice and also nmda encephalitis twice I have not long had it again I was in hospital last year for a month I come home just before Christmas all my symptoms have been different not many people know about encephalitis I have epilepsy short term memory lost get very tired all the time 6 years ago when I had it I had a plasma exchange and reximab .it would be nice to talk to someone to share my experience with having encephalitis and to see how they were like when having it and what there life was like after
I’m here to talk. I’m just recovering from encephalitis