A side comment. Your hair looks beautiful today. 👍. I don’t have any “advice” or comments otherwise. I am not dealing with your situation. I’m here to support you!
What a beautiful family! The love you all share for each other just shines so brightly and I can feel it's warmth. Freya is moving around so very well. You will be chasing her around in no time. 😀 ❤️❤️❤️
my name Is Zach Curtis I'm 27 years old and have Autism and I used to be the same exact way as Freya I used to be gluten-free from the time I was 4 til I was 15 years old sophomore year of High School gluten-free has come a long way since I was little back in the 1990s
I think Freyas development is very good. Also the eating. Cdls kids have normally problems with feeding/eating/gaining weight. Freya seems to handle it very well. Does she has a feeding tube? I love to see how well Freya is doing and how she plays with her siblings. She has a normal life and is loved. And I love her "happy arm". That is so cute. 🩷
Her smile is beautiful. God bless her. My God, why are necessary things so expensive? It’s like some of my meds. Terrible. Hello from a rainy cold day in New Jersey.
Can you get the orthotic's printed on a 3D printer?. There was a men in England that printed out artificial arms from elbow to hands and he did it for free and customised them. He did it free of everything except postage.
These ones were specifically molded to Freya’s feet so I do t think you could do that on a 3 d printer but I honestly don’t know that much about 3 d printing
I love your channel. I found you through Stephene George and Sébastien's channel. I personally don't have kids I had never heard of CDLS. Thank you for sharing your videos. I do have a question. Freya's eyes at times looks like she has been crying or is it just part of the CDLS.? Once again thank you for sharing your family and Freya'S journey.
@@Freyasluckyarm I would still check with them . My son has cerebral palsy and they help with a lot of different things. We has special shoes, braces, therapy, and they helped with all of it. A few hundred dollars here and there add up quick.
Danielle from the Landing Crew has EOE. She's a teenager and she went thru clinical trials that helped when nothing else did. I'm not suggesting that for Freya or anything, I'm just sharing because she's the second person I've heard of with EoE!💕
![ลองสุ่มไอโฟน 990 โกงมั้ย? [ โกงมั้ยครับ ep.101 ] | DOM](http://i.ytimg.com/vi/bfsWe0j492k/mqdefault.jpg)
I love to see Freya use her lucky arm 💖
Her big sister is a real sweetheart and you're an amazing mom!
She is so good with her lucky arm!
A side comment. Your hair looks beautiful today. 👍. I don’t have any “advice” or comments otherwise. I am not dealing with your situation. I’m here to support you!
Thank you so much!
I just saw this today and this little girl is absolutely beautiful. I could watch that gorgeous smile all day.
She’s a little cutie… You are such a wonderful mother.
Freya is just adorable. What a lille sweet heart.❤️❤️
Thank you
What a beautiful family! The love you all share for each other just shines so brightly and I can feel it's warmth. Freya is moving around so very well. You will be chasing her around in no time. 😀 ❤️❤️❤️
Oh we already are. She is quick when crawling
Freya is so adorable: she's so precious. I love the looks of your home made Granola bars too 🙂
Thank you. They are so good
Such a loving family.
Freya is such a sweetheart❤ I have fallen in love with her!
Your children are precious! Thanks for sharing!
Thank you so much!
My local Aldi's has quite a few gluten food items. Love that Freya.
We don’t have Aldi here I wish we did!
You’re a great Mum Marcy and i love watching your videos.
Thanks so much
She is one sweet baby, adorable
Thank you
She's so beautiful, God bless you all.
my name Is Zach Curtis I'm 27 years old and have Autism and I used to be the same exact way as Freya I used to be gluten-free from the time I was 4 til I was 15 years old sophomore year of High School gluten-free has come a long way since I was little back in the 1990s
Yes it has! I started in 2010 and it is much improved since then
I have spina bifida and. I bumm it around the house as well as use a wheelchair
I think Freyas development is very good. Also the eating. Cdls kids have normally problems with feeding/eating/gaining weight. Freya seems to handle it very well. Does she has a feeding tube?
I love to see how well Freya is doing and how she plays with her siblings. She has a normal life and is loved. And I love her "happy arm". That is so cute. 🩷
She does not have a feeding tube yet. We have worked so hard on her eating. One day she may need one but not yet.
Bless her
Her smile is beautiful. God bless her. My God, why are necessary things so expensive? It’s like some of my meds. Terrible. Hello from a rainy cold day in New Jersey.
So true!
Can you get the orthotic's printed on a 3D printer?.
There was a men in England that printed out artificial arms from elbow to hands and he did it for free and customised them.
He did it free of everything except postage.
These ones were specifically molded to Freya’s feet so I do t think you could do that on a 3 d printer but I honestly don’t know that much about 3 d printing
She is so beautiful ❤❤❤❤❤
She is doing well 😊
You are a super mom in my opinion!
Thank you. I try really hard
What beautiful children 😎😊
You are so kind
I love your channel. I found you through Stephene George and Sébastien's channel. I personally don't have kids I had never heard of CDLS. Thank you for sharing your videos. I do have a question. Freya's eyes at times looks like she has been crying or is it just part of the CDLS.? Once again thank you for sharing your family and Freya'S journey.
Welcome!! She has small tear ducts and they get clogged often. She has a
Surgery to help it but it didn’t help much.
There is one thing I have noticed is that Freya seems to everything in her mouth. Why is this ? Is it part of her condition?
It is sensory input. Her body needs more sensory input than average so she does constantly have something in her mouth
Is Freya left handed? The little boy that I follow with the same condition is also left handed.
Yes she is. But now that she is figuring out her right hand is more functional she is using it a lot more
How old is she
She is 3 1/2
Have you checked with march of dimes for the braces
No our insurance covers most of them and we pay a couple hundred dollars
@@Freyasluckyarm I would still check with them . My son has cerebral palsy and they help with a lot of different things. We has special shoes, braces, therapy, and they helped with all of it. A few hundred dollars here and there add up quick.
How are you
I have autism me I am 19 now
Hi Jessie!! You are a great helper!!
Thank you! 😊
Hi
Hello
Danielle from the Landing Crew has EOE. She's a teenager and she went thru clinical trials that helped when nothing else did. I'm not suggesting that for Freya or anything, I'm just sharing because she's the second person I've heard of with EoE!💕
Thank tou