I believe that my husband now has this. His entire personality changed so completely that I do not recognize him any longer. He does things that are not right and then denies it. He has been very argumentative and violent. This is a horrible disease to have to deal with - between the Aphasia, motor issues, and behavioral issues etc. it's a total nightmare. I don't know if there is a history in my husband's family.
My 74 yr old brother was recently diagnosed with FTD. Since it also makes you into sex he's gotten involved with r romance scammers. He's given them at leastt $5,000. And there's no way to stop him except to get POA over his finances.
My dad flew fighters and served as a JAG attorney in the Air Force, then went into private practice after retiring and taught school for 20 years. a brilliant man. he was diagnosed with svPPA 2 days ago. we've noticed his inability to form complete sentences for a while, now. we just thought he'd become a befuddled old man. when the neurologist said dementia, i almost lost it. i am terrified.
The worst thing about any kind of brain 'injury' is the lack of saying goodbye, lack of formal grieving. The person you knew is gone and there is no defined grieving process.
I faced the exact situation.In the year before her death she thought I was her brother. However I could think about all the love she raised me with,and I was able to mourn that loss.
I feel so bad for this man. I have many medical challenges but noticed I was having a problem verbalizing my thoughts. Words are my thing! Im a reader, voracious even. My dad said my tongue was my strongest muscle. I now have aphasia. Its progressing but slowly. My daughter and I are now experts at charades. You have a family that loves you. Embrace them while you can. 💖
I work in a health care facility in housekeeping, but I interact with these types of residents daily. It's devastating. I feel for anyone who has to deal with this and caregiving is a huge job with a resident with Dementia of any kind. Thank you Jamie for sharing your story with us. Hopefully it will give others a sense of peace. Dementia like this is devastating because the one who has it doesn't have any recollection when it comes to short term memory. So they don't remember what they did, how they did it or even the fact that they actually did it. It's a very sad, disease.
What Jamie did in deciding to be tested is brave and Heroic! Because of him they now have someone that is young and a symptomatic. Now they have some sort of a base line to begin a study which will assist pharmaceutical companies create a drug to slow down progression. Thank you Jamie for taking this risk because you now live with a sleeping monster never knowing when or if it will ever wake up. I pray you never develop this horrible disease. That was a very tough decision sacrificing your peace of mind.
Your father looked like a very loving man. I’m sorry he ended with FTD. I hope he does not get worse. He’s lucky he has a close-knit and loving family.
i believe with all of my heart my mother has this terrifying and humiliating disease. She literally lost her mind, and I didn't know what the fuck was going on and i refused to allow her around my kids anymore. So she tried kidnapping my eldest daughter and sued me in court. I can't believe this happened to me and my kids. My Mother doesn't see anything unusual about her behavior. It's wild.
I think my Mom had at 90 had 10 yrs ago. she turned on me as I was her caregiver. accused me of stealing her $. I was investigated. she left everyrhing to my brother. pretty sure he has gambled away by now. still love and miss her.
I believe my mother has FTD, and because I know my mother very well I know she does not want to! I know my risk is high I also do not want to know if I have the chance I guess I will follow in mother footsteps however I have no wife or children I stand to be alone with this thank you for sharing what you do know! RIP to his dad if it happen 7 years is a long time!
Picks disease killed my father in law and his mother. I suspect my husband is developing it due to personality changes. He refuses to get the genetic testing done.
Hey Jamie: You mentioned you had a test to see if you had the Gene for FTD, what gene blood testing is that? What is the exact name for the test? I am confused as to how they really get precise DX for FTD? SInce it sometimes does not show up on MRI etc. and so many Dr's are not understanding FTD. I want to know if there is a blood test that can DX it? Thanks and blessings.
I must add that we do not live in your State, and wonder if the testing is only for those who are in clinical trials or if it is available in other States, or do you know? Thanks again in advance
Is M.A.I.D. available as an option if I were to ever get FTD ? I am single and have no family. I would not want to live with something that would only get much much worse and has no possible cure . 💔😢
No. He is searching carefully the right words. A person with dementia doesn't sound like he does. The thing I noticed the most in my loved one was that he didn't end his sentences. 🥺
I knew he was going to say he had the gene. He seems to be searching for the right words instead of articulating a continuous sentence. Sorry you're having to deal with this hideous disease.
I don't think he is searching for the right words. I think he is just very precise with his choice of words. It's very different from the way people with dementia forget words.
I watched it again to understand your point and again, he speaks better and more articulate than most people I know …he’s just precise in finding the right words.
What a wonderful speaker! May God Bless you and your beautiful family as you face this experience with courage and Grace!!
I believe that my husband now has this. His entire personality changed so completely that I do not recognize him any longer. He does things that are not right and then denies it. He has been very argumentative and violent. This is a horrible disease to have to deal with - between the Aphasia, motor issues, and behavioral issues etc. it's a total nightmare. I don't know if there is a history in my husband's family.
My 74 yr old brother was recently diagnosed with FTD. Since it also makes you into sex he's gotten involved with r romance
scammers. He's given them at leastt $5,000. And there's no way to stop him except to get POA over his finances.
My dad flew fighters and served as a JAG attorney in the Air Force, then went into private practice after retiring and taught school for 20 years. a brilliant man. he was diagnosed with svPPA 2 days ago. we've noticed his inability to form complete sentences for a while, now. we just thought he'd become a befuddled old man. when the neurologist said dementia, i almost lost it. i am terrified.
The worst thing about any kind of brain 'injury' is the lack of saying goodbye, lack of formal grieving. The person you knew is gone and there is no defined grieving process.
Pura verdade! 😢
I faced the exact situation.In the year before her death she thought I was her brother. However I could think about all the love she raised me with,and I was able to mourn that loss.
Ftd is not a brain injury. It's a disea
Thank you so much for sharing and educating people. I’m sure this was difficult to do
I feel so bad for this man. I have many medical challenges but noticed I was having a problem verbalizing my thoughts. Words are my thing! Im a reader, voracious even. My dad said my tongue was my strongest muscle. I now have aphasia. Its progressing but slowly. My daughter and I are now experts at charades. You have a family that loves you. Embrace them while you can. 💖
God be with you, Queen Bee. ❤️❤️❤️
I just Googled “Jamie Arking’s father” and he passed away Sept 2018. How sad. This disease is terrible.
God bless and keep you, Sir...
This is a horrible unknown disease. It needs alot more awareness. My Brother passed away of this at 29 years old. It's devastating
29? Oh, I’m so sorry to hear this. May he Rest In Peace.
I work in a health care facility in housekeeping, but I interact with these types of residents daily. It's devastating. I feel for anyone who has to deal with this and caregiving is a huge job with a resident with Dementia of any kind. Thank you Jamie for sharing your story with us. Hopefully it will give others a sense of peace. Dementia like this is devastating because the one who has it doesn't have any recollection when it comes to short term memory. So they don't remember what they did, how they did it or even the fact that they actually did it. It's a very sad, disease.
Wow. Thank you so very much for sharing your story. Obviously you want to help others and you do much have. God bless you tremendously.
What Jamie did in deciding to be tested is brave and Heroic! Because of him they now have someone that is young and a symptomatic. Now they have some sort of a base line to begin a study which will assist pharmaceutical companies create a drug to slow down progression. Thank you Jamie for taking this risk because you now live with a sleeping monster never knowing when or if it will ever wake up. I pray you never develop this horrible disease. That was a very tough decision sacrificing your peace of mind.
Thankyou for sharing your families experience, and knowledge with this disease.
Your father looked like a very loving man. I’m sorry he ended with FTD. I hope he does not get worse. He’s lucky he has a close-knit and loving family.
It's FTD. It will get worse. It's a terminal illness. Go read up about it.
I am so sorry for your family to lose such loving kind man. I had a cranky sour father. It makes your loss so much more difficult.
Thank you for this video and for sharing such vital information for us families starting the Dementia journey.
Yes, no person would speak disparagingly about his father.
I think i have this. Pray for me
Hope you’re doing okay, Leonard. ❤️
🙏🏻
i believe with all of my heart my mother has this terrifying and humiliating disease. She literally lost her mind, and I didn't know what the fuck was going on and i refused to allow her around my kids anymore. So she tried kidnapping my eldest daughter and sued me in court. I can't believe this happened to me and my kids. My Mother doesn't see anything unusual about her behavior. It's wild.
I think my Mom had at 90 had 10 yrs ago. she turned on me as I was her caregiver. accused me of stealing her $. I was investigated. she left everyrhing to my brother. pretty sure he has gambled away by now.
still love and miss her.
I terrifies me to think this , but if I ever got diagnosed with some incurable type of dementia, I would not want to be around anymore . 💔😢
I believe my mother has FTD, and because I know my mother very well I know she does not want to! I know my risk is high I also do not want to know if I have the chance I guess I will follow in mother footsteps however I have no wife or children I stand to be alone with this thank you for sharing what you do know! RIP to his dad if it happen 7 years is a long time!
Picks disease killed my father in law and his mother. I suspect my husband is developing it due to personality changes. He refuses to get the genetic testing done.
Hey Jamie: You mentioned you had a test to see if you had the Gene for FTD, what gene blood testing is that? What is the exact name for the test? I am confused as to how they really get precise DX for FTD? SInce it sometimes does not show up on MRI etc. and so many Dr's are not understanding FTD. I want to know if there is a blood test that can DX it? Thanks and blessings.
I must add that we do not live in your State, and wonder if the testing is only for those who are in clinical trials or if it is available in other States, or do you know? Thanks again in advance
It's not a test for dx, only one for risk gene. Having a risk gene does not necessarily lead to disease FYI
i have dementia and i only have 34 years old.
Prayers for you.
Thanks for sharing this video❤️
Is M.A.I.D. available as an option if I were to ever get FTD ? I am single and have no family. I would not want to live with something that would only get much much worse and has no possible cure . 💔😢
💜💜💜💜💜💜
He seems very slow in explaining...is that the FTD?
No. He is searching carefully the right words. A person with dementia doesn't sound like he does. The thing I noticed the most in my loved one was that he didn't end his sentences. 🥺
7.756.935 - dementia presents differently in everyone, depending type, stage, and other health problems.
I agree, and also the cuts to the recording. You can see he is trying very hard also.
I noticed that also!🤔🤯
I knew he was going to say he had the gene. He seems to be searching for the right words instead of articulating a continuous sentence. Sorry you're having to deal with this hideous disease.
I don't think he is searching for the right words. I think he is just very precise with his choice of words. It's very different from the way people with dementia forget words.
He definitely does not have any dementia. My dad had it and this in no way resembles demensia.
@@rogerwhalan62 FTD has it's own symptoms of dementia, they are not all the same.
Yes, very sad, completely agree.
He sounds like a completely normal person who is not reading from a script.
That was really hard to watch. The disjointed sentences, searching for words, cuts to the recording, repeating himself. I hope he is doing ok.
Wow did we watch the same video? He’s extremely articulate and descriptive.
@@MBT372 Yes we did watch the same extremely edited video and yes it seems he is unwell.
@@chockpea , what do you expect? How unkind to criticize a young man who was open and honest.
What a load of crap.
I watched it again to understand your point and again, he speaks better and more articulate than most people I know …he’s just precise in finding the right words.
Thompson Thomas Lee Donald Thompson Anthony
Who's Pen? ls Pen imaginary or real? ls Pen like Merlin? Dr. Fauci? A ball-point pen?
It’s Penn for Pennsylvania.