Hello I could cry this was so very informative! I was diagnosed last June with MGUS and sediment rate high first time now. Things off but m protein not present. I have peripheral neuropathy. Lessons in my brain. The answers are finally coming!!
MGUS asymptomatic? I was diagnosed with MGUS last year and have had excruciating bone pain for the past 4 years. I will be going for a 2nd opinion at another hospital as I keep hearing that I shouldn't be having this much pain, weight loss, nausea, etc.
I have mgus ankylosing spondylitis, bone pain,nerve pain. I also suffer primary lymphedema. I think they are all connected. Isn't lymph fluid plasma really??
Hello, thank you for reaching out to us! Depending on your precursor condition (MGUS or SMM) we need to check for different thresholds. For SMM a Serum M-protein ≥3 g/dL, or urine M-protein ≥ 500 mg/dl or clonal bone marrow plasma cells 10-60% WITH absence of myeloma-defining events (SLiM CRAB) means you are still under that condition and have not developed myeloma. For MGUS, Serum M-protein < 3 g/dL,
Would have been nice if, instead of just saying it's important to understand your labs, he gave the parameters to be able to do this example. Hemoglobin
Hello I could cry this was so very informative! I was diagnosed last June with MGUS and sediment rate high first time now. Things off but m protein not present. I have peripheral neuropathy. Lessons in my brain. The answers are finally coming!!
Glad you found it helpful! We are here to support you as much as we can with this information.
MGUS asymptomatic? I was diagnosed with MGUS last year and have had excruciating bone pain for the past 4 years. I will be going for a 2nd opinion at another hospital as I keep hearing that I shouldn't be having this much pain, weight loss, nausea, etc.
Yes, it's asymptomatic by definition.
Thanks
My ratio says 1.98....how does that relate to the ratio of 100 that you mentioned
If MGUS has no symptoms, what is sudden significant weight loss classified as?
I have mgus ankylosing spondylitis, bone pain,nerve pain. I also suffer primary lymphedema. I think they are all connected. Isn't lymph fluid plasma really??
Excellent ❤
We are glad you found this helpful!
i have rising kappa light chains and K/L ratio. what number is consider " too high take action " for these? can't find info
You can call/text our Patient Experience Team at +1 800 709 1113 or email support@healthtree.org to get an answer to your important question :)
Hello, thank you for reaching out to us!
Depending on your precursor condition (MGUS or SMM) we need to check for different thresholds. For SMM a Serum M-protein ≥3 g/dL, or urine M-protein ≥ 500 mg/dl or clonal bone marrow plasma cells 10-60% WITH absence of myeloma-defining events (SLiM CRAB) means you are still under that condition and have not developed myeloma. For MGUS, Serum M-protein < 3 g/dL,
I need to find a myeloma specialist???
Would have been nice if, instead of just saying it's important to understand your labs, he gave the parameters to be able to do this example. Hemoglobin
Excellent! Thank you
We're glad you found this helpful!
What damage do the kids have from a Vietnam vet from area 69 and 70
Agent Orange has been linked to Multiple Myeloma. Talk to a myeloma specialist in your area to learn more if you feel like you have the symptoms.
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