I think I have PPPD. I had a severe attack of vertigo 14 weeks ago that actually started with a pressure feeling under my left ear then I had earache. for a short time. My Doctor would not treat me with the Epley manoeuvre until I had had a MRI brain scan, in case I had had a stroke. I am 76 years of age. I was rushed up to a stoke unit in the early hours of the morning for an MRI, after having a CT scan at my local hospital. After an overnight stay, they then decided that my local hospital should do the MRI scan. However, it took 4 weeks to get that MRI, and two weeks to get the result, informing me "GOOD NEWS" you have not had a stroke. By which time to my belief I have ended up with PPPD. I am convinced that if the Epely manoeuvre had been done at the very beginning, I'm sure I would have been ok. Medication made no difference to my symptoms so much so I refuse to take any more. I now have to wait a further 3 weeks to see an ENT specialist. Which, will, by that time be 4 months from the vertigo attack. I try to manage as best as I can and go about my daily routine as best I can. The only time I feel normal is when I'm sitting, or laid in bed. Other than that, I have a strong feeling, this is how life will be until from now on. 😵💫
Oh bless you. Well good news it not being a stroke. Can you get Epley done now? No, you will get back to where you were, you just need the right treatment.
Hi Matt, (sorry for my english), i have been diagnosed with pppd recently. I suffer from this condition 1 Year now. It developed from a previous condition I had, bppv. I agree with your annalysis that to get 3pd you must have had a previous vestibular disorder. Anxiety plays a big role in this condition, I realized with benzodiazepines (bromazapam) that it makes the symptoms fade away next morning after taking one pill the night before. But those benzos work not indefinitely and I had to increase the dose. I stopped because Tomany side effects. I’ve started a sertraline (Zoloft) treatment now, about 4 days, to soon to see any effects (ssri’s take a while to kick in). For all those who suffer from 3pd, I wish you the best, we will get better.
Thanks Dave. Your English is brilliant so no need to apologise. Ah I am sorry you have PPPD. Sertraline really helped me - so I hope it will help you too, my friend.
My vestibular migraine is slightly better!! Been bad since last November. I'm finding that vitamin B2 and magnesium has really helped. This was recommended by a vestibular physio. Hope it helps. Thanks for your support.
I have Pppd, it’s a horrible thing to have to live with, it’s taken away my ability to feel safe in myself and even taken away my freedom of driving and going to shops and out with friends, worst of all my 3 children don’t have me doing what I use to do with them as much due to this condition. It’s been baby steps for me with improvement, I’m 3 yrs in I would say I’m about 50% better but still a lot more to go… VRT has helped, exposure therapy, and accupunture but knowing that this is just a neural circuit dizziness condition and that it’s nothing linear gets me thru (just!) hoping all with the condition is some what coping
I am very sorry to read this, Charissa. Thank you for sharing your story with everybody. I hope that your progress to 50% is a big sign of recovery and that % will keep going up as the months go by. It is an awful condition. x
Funnily enough, the specialist I saw in London just the other week thinks my VM (which started in February) has been and gone and left me with PPPD - lingering background dizziness and the feeling like I'm on a boat or trampoline when I walk. So this video feels timely. Thanks for the shout out to us PPPD sufferers - I think there are probably quite a few people who think their VM is going on for months and months but actually fall into this category. As you say though, VRT and meds are used for both. I'm also having a neck scan next week because I feel like ongoing neck issues are hindering my recovery.
It sounds like mal de debarquement or MDDS possibly too…look it up. I have vestibular migraines then went on a boat and unfortunately never got my sea legs so I now have both. It also has similar symptoms as vestibular migraines…anyway hope you get better soon
I had a one off vertigo attack 3 years ago and I've just been diagnosed with vestibular migraine and pppd I've been feeling like I'm on a boat among many other symptoms and I'm only 26😢
Has anyone had to use a wheelchair or walking aid due to sysmptoms. I'm using both, can't balance at all at risk of falling. GP sent me to Aand E so was in hospital for nearly a week. Still no diagnoses is so scary
@@thebluntyorkshireman5161 hi thanks for replying. No, no diagnosis yet apart from virtigo I've got a minimum of a two month wait for a hospital appointment for more balance tests.
Hi my name's Justin, how did you get relief Matt, been suffering for years, Dr. after Dr., was proscribed duloxitine, but doesn't seem to help, what helped you get relief
Hello Justin. I am sorry you have suffered for years. Have a look at all my videos -it's a combo of the right diagnosis, right meds and slight changes to lifestyle.
How long did it take you to get a handle on all that, where you able to work, its becoming harder and harder to do day to day tasks, iam currently getting scans done, MRI, and going to neurologist, hopefully i get answers soon
@@justinlee9531 I was able to work after about four months off sick. You will get a diagnosis at some point I am sure. Then you can get the right treatment.
Hi Matt, i was taking propranolol but it made the chronic dizziness even worse! 15 mg twice a day. It has dizziness as a side effect, so I don’t understand how medicians can prescribe to treat dizziness.
I was diagnosed with PPPD and given Lexapro (Escitalopram) but I’m so scared to take it for the side effects. It’s an antidepressant but used for PPPD. Anyone here taken it? I do have anxiety as well which might be what caused the pppd so the Lexapro makes sense. Even if you don’t have anxiety it is supposed to help with the dizziness itself. There were studies by a Dr. Staab on ssri antidepressants for pppd.
I just started this 2 weeks ago. The first 5 nights I felt dizziness but side effects have lifted and I feel really good. I'm not questioning my every move anymore and feel about 100%. I have not been diagnosed with PPPD but did have lingering symptoms from a VM episodes for 3 weeks. I was constantly on edge and terrified from that episode but it all got better with time and meds.
@@jillschiller4932 wow that sounds very promising. Thank you for replying😊I’m mostly scared of the sexual side effects lol but my pppd has not gotten better over the years so I don’t have any other choice and will have to start on the Lexapro...I’m just worried I won’t work down there anymore🙁
I think 3PD is what I have. Not getting much help on the physiotherapy. Seems to make it worse some days. Have you ever had gaps in your memory with your VM?
Ah Anna, sorry you have PPPD. My memory was a bit slow at first (once I returned to work after recovering) but I never had gaps as in I couldnt remember a few hours or an evening.
@@alexmurphy5289 I’ve had my first session can’t say it’s done anything drastic as of yet. But I’ll give it the 6 goes before I rule it out. My theory is if it’s the migraine that’s causing me to be dizzy then stopping the migraine by all means necessary should be the first port of call right ? I’m already on preventives that aren’t seem to be doing anything.
![30 ชั่วโมงคนเดียว บนรถไฟชั้น 3 โซเวียต [Around The World Ep. 2]](http://i.ytimg.com/vi/MlE9boAVqDA/mqdefault.jpg)
I think I have PPPD. I had a severe attack of vertigo 14 weeks ago that actually started with a pressure feeling under my left ear then I had earache. for a short time. My Doctor would not treat me with the Epley manoeuvre until I had had a MRI brain scan, in case I had had a stroke. I am 76 years of age. I was rushed up to a stoke unit in the early hours of the morning for an MRI, after having a CT scan at my local hospital. After an overnight stay, they then decided that my local hospital should do the MRI scan. However, it took 4 weeks to get that MRI, and two weeks to get the result, informing me "GOOD NEWS" you have not had a stroke. By which time to my belief I have ended up with PPPD. I am convinced that if the Epely manoeuvre had been done at the very beginning, I'm sure I would have been ok. Medication made no difference to my symptoms so much so I refuse to take any more. I now have to wait a further 3 weeks to see an ENT specialist. Which, will, by that time be 4 months from the vertigo attack. I try to manage as best as I can and go about my daily routine as best I can. The only time I feel normal is when I'm sitting, or laid in bed. Other than that, I have a strong feeling, this is how life will be until from now on. 😵💫
Oh bless you. Well good news it not being a stroke. Can you get Epley done now? No, you will get back to where you were, you just need the right treatment.
Hi Matt, (sorry for my english), i have been diagnosed with pppd recently. I suffer from this condition 1 Year now. It developed from a previous condition I had, bppv. I agree with your annalysis that to get 3pd you must have had a previous vestibular disorder. Anxiety plays a big role in this condition, I realized with benzodiazepines (bromazapam) that it makes the symptoms fade away next morning after taking one pill the night before. But those benzos work not indefinitely and I had to increase the dose. I stopped because Tomany side effects. I’ve started a sertraline (Zoloft) treatment now, about 4 days, to soon to see any effects (ssri’s take a while to kick in). For all those who suffer from 3pd, I wish you the best, we will get better.
Thanks Dave. Your English is brilliant so no need to apologise. Ah I am sorry you have PPPD. Sertraline really helped me - so I hope it will help you too, my friend.
Hi! How are you ?
This is what I have. And it doesn’t go away at all 😢😢😢😢
It sounds an absolute nightmare. :o(
My vestibular migraine is slightly better!! Been bad since last November. I'm finding that vitamin B2 and magnesium has really helped. This was recommended by a vestibular physio. Hope it helps. Thanks for your support.
Brill Maria, really pleased to hear that. :)
I have Pppd, it’s a horrible thing to have to live with, it’s taken away my ability to feel safe in myself and even taken away my freedom of driving and going to shops and out with friends, worst of all my 3 children don’t have me doing what I use to do with them as much due to this condition. It’s been baby steps for me with improvement, I’m 3 yrs in I would say I’m about 50% better but still a lot more to go… VRT has helped, exposure therapy, and accupunture but knowing that this is just a neural circuit dizziness condition and that it’s nothing linear gets me thru (just!) hoping all with the condition is some what coping
I am very sorry to read this, Charissa. Thank you for sharing your story with everybody. I hope that your progress to 50% is a big sign of recovery and that % will keep going up as the months go by. It is an awful condition. x
Funnily enough, the specialist I saw in London just the other week thinks my VM (which started in February) has been and gone and left me with PPPD - lingering background dizziness and the feeling like I'm on a boat or trampoline when I walk. So this video feels timely. Thanks for the shout out to us PPPD sufferers - I think there are probably quite a few people who think their VM is going on for months and months but actually fall into this category. As you say though, VRT and meds are used for both. I'm also having a neck scan next week because I feel like ongoing neck issues are hindering my recovery.
Absolutely - it's no longer the same illness. Ha ha I wish I was getting paid what the specialists were! Oh well...!
@@thebluntyorkshireman5161 You deserve TRIPLE what they get ;)
It sounds like mal de debarquement or MDDS possibly too…look it up. I have vestibular migraines then went on a boat and unfortunately never got my sea legs so I now have both. It also has similar symptoms as vestibular migraines…anyway hope you get better soon
@@xxsid1979xx Hahaha bless ya!
@@alexmurphy5289 Ah thanks. I hope you do too!
Great video!!! Bring to light an invisible disease.
Ah thanks James!
I had a one off vertigo attack 3 years ago and I've just been diagnosed with vestibular migraine and pppd I've been feeling like I'm on a boat among many other symptoms and I'm only 26😢
Ah sorry to hear that but if you have been diagnosed you can begin some proper treatment? x
How are you feeling now?
Has anyone had to use a wheelchair or walking aid due to sysmptoms. I'm using both, can't balance at all at risk of falling. GP sent me to Aand E so was in hospital for nearly a week. Still no diagnoses is so scary
That is awful, I am sorry to hear it has messed with your mobility so much. Any diagnosis yet?
@@thebluntyorkshireman5161 hi thanks for replying. No, no diagnosis yet apart from virtigo I've got a minimum of a two month wait for a hospital appointment for more balance tests.
@@hypashanshanene The wait sucks but I think those balances tests will really help.
@@hypashanshanene bro what is your problem exactly?Room-spinning or non-room spinning vertigo with loss of balance like feeling
Hi my name's Justin, how did you get relief Matt, been suffering for years, Dr. after Dr., was proscribed duloxitine, but doesn't seem to help, what helped you get relief
Hello Justin. I am sorry you have suffered for years. Have a look at all my videos -it's a combo of the right diagnosis, right meds and slight changes to lifestyle.
How long did it take you to get a handle on all that, where you able to work, its becoming harder and harder to do day to day tasks, iam currently getting scans done, MRI, and going to neurologist, hopefully i get answers soon
@@justinlee9531 I was able to work after about four months off sick. You will get a diagnosis at some point I am sure. Then you can get the right treatment.
Non spinning vertigo is a symptom of PPPD. I've had three this year.
Sucks...
Hi Matt. What dose of propanolol did you start with? I’m taking 20mg twice a day.
Hello. I was on quite a high dose to begin with - 160MG per day, but that came back down to 80MG eventually.
Hi Matt, i was taking propranolol but it made the chronic dizziness even worse! 15 mg twice a day. It has dizziness as a side effect, so I don’t understand how medicians can prescribe to treat dizziness.
I was diagnosed with PPPD and given Lexapro (Escitalopram) but I’m so scared to take it for the side effects. It’s an antidepressant but used for PPPD. Anyone here taken it? I do have anxiety as well which might be what caused the pppd so the Lexapro makes sense. Even if you don’t have anxiety it is supposed to help with the dizziness itself. There were studies by a Dr. Staab on ssri antidepressants for pppd.
I havent taken that med but hopefully omebody will have and reply to you shortly!
I just started this 2 weeks ago. The first 5 nights I felt dizziness but side effects have lifted and I feel really good. I'm not questioning my every move anymore and feel about 100%. I have not been diagnosed with PPPD but did have lingering symptoms from a VM episodes for 3 weeks. I was constantly on edge and terrified from that episode but it all got better with time and meds.
@@jillschiller4932 wow that sounds very promising. Thank you for replying😊I’m mostly scared of the sexual side effects lol but my pppd has not gotten better over the years so I don’t have any other choice and will have to start on the Lexapro...I’m just worried I won’t work down there anymore🙁
@@jillschiller4932 Excellent news, Jill. I am really glad the treatment has worked.
@@AJ88874 did it work?
Hi Mat.. Did u had tup tup sound in both ears...
Popping earsa.. That i mean
Ears
Hi Sinu. No, I didnt really have popping ears. I never had too many symptoms around my ears.
What syptoms did you had around in your ears
Ringing in my ears for me, mostly one side ( right side)
I think 3PD is what I have. Not getting much help on the physiotherapy. Seems to make it worse some days.
Have you ever had gaps in your memory with your VM?
Ah Anna, sorry you have PPPD. My memory was a bit slow at first (once I returned to work after recovering) but I never had gaps as in I couldnt remember a few hours or an evening.
Has anyone had any success with acupuncture?
Hmm - not tried that one - have you?
@@thebluntyorkshireman5161 I'm going to have 6 sessions. Evaluate it from that point onwards
It’s helped me with stress and anxiety, which helped my mood but overall no it didn’t help me out with vestibular migraines
@@alexmurphy5289 I’ve had my first session can’t say it’s done anything drastic as of yet. But I’ll give it the 6 goes before I rule it out. My theory is if it’s the migraine that’s causing me to be dizzy then stopping the migraine by all means necessary should be the first port of call right ? I’m already on preventives that aren’t seem to be doing anything.
@@MrRavsta88 did it help?