My mom 97 sometimes thinks she can't write sometimes, but she can. But first I might write something & she might copy it or mom just moves ahead & accomplishes the skill. She writes, Love , Mom
Thank you so much Teepa. In the UK we are as incensed about the advert as you are. What makes it worst is the Alzheimer’s Society is just doubling down in justifying it. I loved your skills training day on July 1st Devonshire Care Home.
It is what it is. And I'm taking your advice and changing with my care partner. But I'm also mourning the slow loss of my partner. There has to be a middle ground where we can acknowledge that we're losing something and celebrating what the person still has.
Yes this . As a partner of someone living with FTD I am mourning who we used to be , the loss of our old age plans as he was young when diagnosed. Those feelings are valid . Yes he’s still doing things but it’s not the same .
So disappointed you didn’t see what this Ad meant . Maybe you just focused on losing memory. Having ftd I feel like I’m slowly dying bit by bit because I am I’m losing everything I valued in life from cooking to being a mother I can still smile & laugh . So sick of the living well rhetoric there’s no balance we are just ignored if we don’t fit that narrative
I agree. Being positive all the time is exhausting. Balancing _both_ the grief and having gratitude for what still remains is necessary and important. That is what the advertisement should have done, but an advert has to make an impact within a very short space of time. The grief is real and depending on the family's circumstances, the grief can overwhelm loved ones so much that they can't see how to move forward at all. A large part of grief is shame, which makes it so difficult to deal with and keeps the subject secret and isolates the mourner. That isolation is pretty horrible. I think this advert is saying "We know the grief and we will be there for you". That's really important! I think that's just as important as having gratitude for what is left. As a younger person whose mother has dementia, I have observed that all types of mental change and suffering has a huge stigma in Britain and British settler populations. I know my own mother's ablism is making her experience of dementia far more difficult that it might have otherwise been. Due to the stigma of mental illness and the hierarchy of ablism, most people think a quick and unexpected death is preferable to a long and lingering one, but I don't. That's because they've never experienced the shock of the unexpected death of a loved one. It doesn't matter how old the person is, you're never prepared for their sudden loss. With dementia, you have many opportunities to get your good-byes right. That's something that no one gets with a swift death, and it matters.
Hi @janetmagee5300, we would love to talk to you more about this topic. You can reach out to us at teepasnow.com/services/consulting/phone-consultations/. Take Care
My mom 97 sometimes thinks she can't write sometimes, but she can. But first I might write something & she might copy it or mom just moves ahead & accomplishes the skill. She writes, Love , Mom
Thank you very much ! This is such an interesting reaction. I saw that video and had strong responses too. ❤
Thank you so much Teepa. In the UK we are as incensed about the advert as you are. What makes it worst is the Alzheimer’s Society is just doubling down in justifying it. I loved your skills training day on July 1st Devonshire Care Home.
!
Darn yes! we can and are making a difference in peoples' lives & it's the best & most important job in the world.! Gracias
It is what it is. And I'm taking your advice and changing with my care partner. But I'm also mourning the slow loss of my partner. There has to be a middle ground where we can acknowledge that we're losing something and celebrating what the person still has.
Yes this . As a partner of someone living with FTD I am mourning who we used to be , the loss of our old age plans as he was young when diagnosed. Those feelings are valid . Yes he’s still doing things but it’s not the same .
So disappointed you didn’t see what this Ad meant .
Maybe you just focused on losing memory.
Having ftd I feel like I’m slowly dying bit by bit because I am I’m losing everything I valued in life from cooking to being a mother I can still smile & laugh . So sick of the living well rhetoric there’s no balance we are just ignored if we don’t fit that narrative
I agree. Being positive all the time is exhausting. Balancing _both_ the grief and having gratitude for what still remains is necessary and important. That is what the advertisement should have done, but an advert has to make an impact within a very short space of time. The grief is real and depending on the family's circumstances, the grief can overwhelm loved ones so much that they can't see how to move forward at all. A large part of grief is shame, which makes it so difficult to deal with and keeps the subject secret and isolates the mourner. That isolation is pretty horrible. I think this advert is saying "We know the grief and we will be there for you". That's really important! I think that's just as important as having gratitude for what is left. As a younger person whose mother has dementia, I have observed that all types of mental change and suffering has a huge stigma in Britain and British settler populations. I know my own mother's ablism is making her experience of dementia far more difficult that it might have otherwise been. Due to the stigma of mental illness and the hierarchy of ablism, most people think a quick and unexpected death is preferable to a long and lingering one, but I don't. That's because they've never experienced the shock of the unexpected death of a loved one. It doesn't matter how old the person is, you're never prepared for their sudden loss. With dementia, you have many opportunities to get your good-byes right. That's something that no one gets with a swift death, and it matters.
Hi @janetmagee5300, we would love to talk to you more about this topic. You can reach out to us at teepasnow.com/services/consulting/phone-consultations/. Take Care
Hi Teepa I have YOD bvFTD
How do I talk to you about this