My Cystic Fibrosis Story: 1970's Diagnosis to 2024 Trikafta Results

Join me and my mum as we take you on our journey through my cystic fibrosis diagnosis in the 1970s to my recent 2024 sweat test results after starting Trikafta medication. 🌟 If you would like more installments covering 1980 - 2024 then let us know in the comments. We will also try to answer all questions.
I recommend these online resources which I myself have used
@CysticFibrosisFoundation has a very helpful video about ‘Why Mucus Builds Up in the Lungs of People with Cystic Fibrosis’ on their TH-cam Channel.
The Cystic Fibrosis Trust has some great fact sheets on their website including one on the sweat test. You can find them at cysticfibrosis.org.uk
To learn more about Trikafta I recommend going straight to the manufacturers website (Vertex) and also doing a google search for blog posts, but please keep in mind that you may not yet have access to the drug, depending on where you live and other factors - speak to your local cystic fibrosis association and medical professionals.
For contact details in South Africa start with sacfa online (South African Cystic Fibrosis Association)
To sign the petition for worldwide universal access to Trikafta copy & paste this link actionnetwork....
If you enjoyed this video and would like more then please give it a thumbs up, leave a comment/question, and subscribe. Let's build a supportive community together! 💖
#cysticfibrosis #Trikafta #HealthJourney #FamilyStory"#1970s #MedicalAdvancements #Resilience #Hope #CFCommunity #Breathamania #spoonielife #chronicillness #rarediseases

[@r66ncz]

Well done Mom n megan

[@Breathamania]

@r66ncz thanks soooo much !

[@breathtakingfundraisingnpc]

What a true miracle!!!! Such an amazing testimony. Thank you for sharing Megan and mom

[@Breathamania]

@breathtakingfundraisingnpc thank you for all the support