I grew up with a girl who has this. We are in our 50's now and she is doing great! Keep the faith. Despite the idiots commenting, you're a good mom and a great advocate for your son.
A precious video. And special thanks to the commenters who have MSUD and are sending encouragement to these parents. Having a child with a rare disorder is so scary; reassurance is so sweet.
Jany B - don’t listen or pay attention to negative comments. Babies do not come with manuals or the ability to communicate. Plus, it was obvious you were very touchy with your beautiful baby boy and were caressing him with love and hope and worry. You’re an amazing mommy to Baby Oli and he’s yours because of all the Mommy’s in the world God chose YOU to provide and protect and love him! He’s an absolutely Beautiful gift and it’s very obvious you will always be here for him! You have a very thoughtful and grateful and loving heart that showed through the entire video but especially at the end where you thanked so many people who have been on this painful journey with you and Oli. It was extremely thoughtful on your part to acknowledge so many people. God Bless You & that Gorgeous baby boy! I’m praying that your family will be fine from here on out!
Merri Bayarena thank you so much... that comment did hurt but I know not everyone has good intentions and a good heart and not everyone knows about the love of a mother ❤️ thank you very much
When I was a little kid just discovering the original Star Trek, the blue uniforms which Dr. "Bones" McCoy and Mr. Spock wore confused me. I used to think "Dr. Spock's Baby Book" was written on the Enterprise.... ...just saying.
Merri Bayarena do you know I struggle with my son’s on a daily basis but when I visit these videos, and see some of the comments I can’t believe how many negative ppl actually exsist and function xx
What a huge reliefs is doing so well. Here is me in New Zealand blubbing away and my husband asking why I am crying! Thank goodness for hospitals with great doctors and staff and your baby's will to live! All the best for the future and hope you will post some more videos when he grows older! Love and lots of hugs xxxxxxxx
Thank a God he’s okay now. It breaks my heart to see baby’s lives start out this way, but fortunately he has r covered. I’m sure he has a lifetime of eating a certain diet to keep from getting sick again. 💕
Jany B Oh how nice that you still get the notations on this video . You don't have to say thanks to me sweetie, I owe you & your son. I was in a bad mood, just down. I started flipping thru videos trying to find one that would interest me. You know how it is when you are just unhappy and nothing seems interesting? I am stuck at home and getting frustrated and cabin fever. I generally don't watch baby videos because I'm a granny and these things don't always end well and it gets to me more now then it did when I was younger. Your son's thumbnail came up and I know I was probably sitting here by myself with that dumb smile that you get when you see something adorable, lol. When I saw Oliver in the hospital with all of the tubes and IVs I just lost it. I haven't cried in a while at least not like that! But then get got better and better as well as cuter and cuter! I had never heard of MSUD and I looked it up and learned more about it. There was not much about the long term diet and how this effects adults but I'm not done reading about it.. I wish the best for your little family and I have this feeling Oliver is a very special little boy.. He has a very intelligent look in his eyes, just more than you would expect to see in a baby and he is the cutest little guy ever to have me stop and watch his video when I have made such a point of NOT watching videos with kids in them. Thanks for the good cry as well as making me think about someone besides myself. Take care sweetie & give Oliver a big cuddle from me please.
bellesmom2012 you are so sweet!!! I wish I could give you a big hug!!! About the long term, it doesnt shorten the life expectancy and thankfully for Oliver his brained wasn’t too damaged and he is now a completely functional toddler! But in many cases the damage is severe and not from the MSUD but from the damages to the brain it causes, they can pass away sooner. But as far as the diet goes, it remains pretty restricted even as an adult. But we have so many food options it is incredible what we can acquire in this amazing country!! Anyway many hugs to you and I hope you find more things to smile about. Kiss from me and Oliver
Now that I have stopped crying. You were such an intune momma when you brought him home you knew something wasn’t right. So sorry Oli was so sick but also glad they caught it soon. Keeping your family in my prayers
He is just beautiful! So happy for all of you. We have three grown children and have been so blessed that none of them have ever had any health issues. I don’t know if I’d have the strength to go through what you have as parents. God bless you and your precious baby boy.
Little Oli is too cute for words! What a fighter he is and so blessed to have you both for parents. The Lord hand picked you to be his Momma and Oli for you. Your sweet boy has a special purpose here on earth. God bless Oli and your family. ❤️✝️
Katie Sago thank you very much!! Yes, God picked me for the battle and I have fought with my all every day and will continue to do so til the end of my days... everything for my baby
He is beautiful ..those big eyes and long lashes..im so glad you caught it in time ..no thanks to the people who didn't tell you he needed more testing..us mothers have instincts..we know when something's wrong..thank god...i hope he stays well and strong
I am 30 and have MSUD - you may know me from the MSUD Family Support Group facebook group, or the UK equivalent. My 28 year old sister - my only sibling - also has it and has just come out of hospital after battling norovirus. We are both untransplanted - I mean, our livers are healthy, and are working just fine with the tools they have. It makes no sense in our cases to rip out perfectly healthy organs when we ourselves are, for the most part, perfectly healthy on our low protein diets, and drinking our formulas as we should. We can travel, with a few extra arrangements and considerations. We can usually attend social functions, with a few extra arrangements and considerations. We went to mainstream school, with quite a lot of extra arrangements and considerations(!!!) I am also on the less outwardly obvious end of the autistic spectrum, with marked attention deficit, executive and anxiety issues that are still being investigated. I used to have a lot of behavioural issues involving social oddities, as well as anger and physical violence, but not so much now. Neither of us are learning impaired or physically disabled. We have the measurable enzyme activity of highly severe classic MSUD, but the clinical daily protein tolerance of variant MSUD, which helps as when we were born, where we lived, there was very limited access to formula, and no access at all to dietetic support or specialist low protein products. Somehow I survived 14 months undiagnosed (despite Mum's best efforts to get taken seriously by local medical staff), but began to show severe and unremitting symptoms from the age of 2 days old. By the time I was diagnosed I was hallucinating, convulsing, unable to sit, walk, talk, use my hands or learn at all. In the seven months following my diagnosis and correct treatment I went from that to crude walking. I was declared age appropriate at three years old, and above average at five years old. My parents went with the 75% chance of a second baby being ok, but by sister was also diagnosed with MSUD in utero via amniocentesis. This created the heartwrenching decision as to whether to continue the pregnancy - something that temporarily divided the family at the time, but which nobody has regretted or contested for a second since. She went straight onto the diet at birth. But she had to be tube fed for her first year as she refused the formula, and also had and generally still has more problems with staving off projectile vomiting, than I do. Her levels have historically been less stable. She's been in hospital more than me growing up as a result, though I have been in hospital more times as an adult, but not nearly as frequently as I was in growing up. No two cases are the same, even in the same family! Our lives have been crazy but remarkably normal.
I was watching a video about maple syrup disease and I saw your video . after watching the video .. I cried . All the symptoms and the defects I learned caused so much pain to the young baby who is just born . Thank you for being so brave and fighting the disease.
My son has MSUD, Type 2 intermittent form. He is 18. Just graduated from high school. Strong and healthy. Headed to college in the fall. HANG IN THERE! It can be exhausting at times, but there is hope and there is support. Prayers for you and your Oli.
june barathy I had Peter in 55 I fed him for 11 months, then he had a special food, we lived near a beach so he got plenty of fresh air. I had a little girl and we moved, Peter wasn't keeping up in size with our friends two boys. A doctor I took him to found he had a Murmur in his heart,I often wonder why it wasn't picked up when he was born. We saw other doctors and it was arranged he would have a heart operation. His scar was huge, by three days after the operation he was playing in the ladies ward. We had to go back to the hospital for check for a few years.Anyone that saw him undressed was told by him that ;was where the shark bit him' He is now 62, 6ft tall and has 4 children. So Mums, be alert, if it doesn't seem right, it probably isn't.
WHAT A BEAUTIFUL BABY 💖Children are a gift but ones with conditions: they’re mommy is the blessing and sent from above to take care of you 😘💕😘all negative comments: I truly feel for you and for any offspring that you bare because, life isn’t perfect.
Hi little man! So sorry u have to go thru this, u are just beginning Your little precious life....god is with u and your family!! So sorry little guy😗you are precious don't give up the fight. Best wishes and prayers coming from th U.K.🙏
Made me cry! I can’t have babies so any subjects of babies/ kids I’m especially sensitive over! Beautiful baby you have! Thank you for sharing your story!
HI OLÍ I KNOW YOU ARE GOING TO BE WELL. TO YOU THE PARENT IS NOT GOING TO BE EASY BUT I KNOW YOU ARE GOING TO BE OKAY. MY GRANDAUTHER HAVE MSUD. SHE IS 19 YEARS OLD RIGHT NOW. SHE FINISHED HER HIGH SCHOOL AND IS GOING TO COLLEGE. YOU WILL HAVE UP AND DOWN BUT DO NOT GIVE UP. WITH A GOOD GENETIC DOCTOR, DIETICIAN AND YOUR LOVE AND GOOD LOVING CARE OLI IS GOING TO BE WELL. BEST WISHES TO YOU GUYS AND OLI.
thank you for the sweet comments!! very glad your granddaughter is doing so well!! thankfully Oli is doing amazing as well!!! best wishes to you and your family!!
My 10 month old daughter also has msud. I feel your pain. Looking at her you couldn’t tell anything is wrong, she’s always just so happy. It’s just scary to know it’s always looming there ya know. Plus it sucks because the four genetic mutations that cause it are all normal so children’s have no idea what caused it so it’s even more rare :/ but she responds well to the diet and has been developing fine. Hope your son is doing well and good luck from my fiancé n me :)
I’m late but I have MSUD as well when he gets older you have a specialist to help you and it’s not bad at all when you get older you live a normal life just with extra care-my story
I’m sure that other sufferers and families would love to hear your story,your fight against MSUD,I would definitely like to hear how you’ve coped,your positive attitude thru out your journey. Wish you well from Scotland
My little brother was diagnosed with MSUD and i’ve been searching to see how the other babies that have MSUD are dealing with it . And i had much hope that he will be better when I’m talking to him he used to smile at me and his age was only 43 days but he smiled at me .today he passed away in this morning it was 5:00 he is now in heaven . 🦋 my little angel he was so beautiful he sufferd alot and now he is in peace with allah with GOD . At the end i wish the best for your child and may god give him the healthy and wealthy life 🦋 .
So sad to know your baby was so sick because the hospital that did the delivery dropped the ball with the followthrough with the elevated numbers on his testing at birth. The entire hospitalization was caused by incompetence. Yay for recovery!
Jany B i hope you sued, thats the nurses job to follow up with the doctor, us nurses check the lab work and then report it to the doctor if there are any abnormalities, we assess pt and document and inform the doctor, thats the thing that upsets me about the health care now, people work for the money not because they truly care, when care you make sure you pay attention to your duties and the patients, but thank you lord your son is better and my god continue to bless him
Thanks to things pioneered on me and my case of M.S.U.D, screening got better over the years and thankfully children are diagnosed much sooner than they used to be over 20 years ago. My case made it so other children born with M.S.U.D. might not suffer the ways I did.
OH Oli, You went thru a horrible terrible time..IM so happy you are now happy, whole and healthy..I knew the minute I saw you the first week of life you were very ill and not comfortable at all..You were miserable and made me cry..You made it..I sure would like to hold you and kiss you..Thank GOD 4 this wonderful ending..wow, Babies are amazing..YOU are amazing Oliver..Bye now..
Natalie Staheli yeah! The amino acids you don’t break down, go into your bloodstream in the form of toxins and those toxins go to your brain and cause swelling which u can guess what brain swelling can do :)
@@janyb8272 Thank you for explaining that for me! That is just horrible! I hope that one day that someone will find a cure! He's such a handsome little guy!
I grew up with a girl who has this. We are in our 50's now and she is doing great! Keep the faith. Despite the idiots commenting, you're a good mom and a great advocate for your son.
Amy Peden thank you ❤️
A precious video. And special thanks to the commenters who have MSUD and are sending encouragement to these parents. Having a child with a rare disorder is so scary; reassurance is so sweet.
Handsome little guy. He is so precious! It broke my heart to see him cry.
Jany B - don’t listen or pay attention to negative comments. Babies do not come with manuals or the ability to communicate. Plus, it was obvious you were very touchy with your beautiful baby boy and were caressing him with love and hope and worry. You’re an amazing mommy to Baby Oli and he’s yours because of all the Mommy’s in the world God chose YOU to provide and protect and love him! He’s an absolutely Beautiful gift and it’s very obvious you will always be here for him! You have a very thoughtful and grateful and loving heart that showed through the entire video but especially at the end where you thanked so many people who have been on this painful journey with you and Oli. It was extremely thoughtful on your part to acknowledge so many people. God Bless You & that Gorgeous baby boy! I’m praying that your family will be fine from here on out!
Merri Bayarena thank you so much... that comment did hurt but I know not everyone has good intentions and a good heart and not everyone knows about the love of a mother ❤️ thank you very much
When I was a little kid just discovering the original Star Trek, the blue uniforms which Dr. "Bones" McCoy and Mr. Spock wore confused me.
I used to think "Dr. Spock's Baby Book" was written on the Enterprise....
...just saying.
Beautiful words, you had me in tears 😢
Merri Bayarena do you know I struggle with my son’s on a daily basis but when I visit these videos, and see some of the comments I can’t believe how many negative ppl actually exsist and function xx
What a huge reliefs is doing so well. Here is me in New Zealand blubbing away and my husband asking why I am crying! Thank goodness for hospitals with great doctors and staff and your baby's will to live! All the best for the future and hope you will post some more videos when he grows older! Love and lots of hugs xxxxxxxx
Tineke Williams haha too sweet! Thank you for your sweet comment! Please don’t cry too much, he is doing fantastic now :)
Thank a God he’s okay now. It breaks my heart to see baby’s lives start out this way, but fortunately he has r covered. I’m sure he has a lifetime of eating a certain diet to keep from getting sick again. 💕
He is absolutely ADORABLE! What a perfect little guy! My favorite picture is the one where he is sitting up as is just way too cute.💗💗💗
bellesmom2012 thank you so much
Jany B
Oh how nice that you still get the notations on this video . You don't have to say thanks to me sweetie, I owe you & your son. I was in a bad mood, just down. I started flipping thru videos trying to find one that would interest me. You know how it is when you are just unhappy and nothing seems interesting? I am stuck at home and getting frustrated and cabin fever. I generally don't watch baby videos because I'm a granny and these things don't always end well and it gets to me more now then it did when I was younger. Your son's thumbnail came up and I know I was probably sitting here by myself with that dumb smile that you get when you see something adorable, lol. When I saw Oliver in the hospital with all of the tubes and IVs I just lost it. I haven't cried in a while at least not like that! But then get got better and better as well as cuter and cuter!
I had never heard of MSUD and I looked it up and learned more about it. There was not much about the long term diet and how this effects adults but I'm not done reading about it.. I wish the best for your little family and I have this feeling Oliver is a very special little boy.. He has a very intelligent look in his eyes, just more than you would expect to see in a baby and he is the cutest little guy ever to have me stop and watch his video when I have made such a point of NOT watching videos with kids in them.
Thanks for the good cry as well as making me think about someone besides myself. Take care sweetie & give Oliver a big cuddle from me please.
bellesmom2012 you are so sweet!!! I wish I could give you a big hug!!! About the long term, it doesnt shorten the life expectancy and thankfully for Oliver his brained wasn’t too damaged and he is now a completely functional toddler! But in many cases the damage is severe and not from the MSUD but from the damages to the brain it causes, they can pass away sooner. But as far as the diet goes, it remains pretty restricted even as an adult. But we have so many food options it is incredible what we can acquire in this amazing country!! Anyway many hugs to you and I hope you find more things to smile about. Kiss from me and Oliver
💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗
I loved that 1 too. Hes the cutest little nugget I have ever seen. He melts my 💙
He is absolutely such a beautiful little man. Those eyes just grab your heart. Praying he keeps healing and growing.
NC redbird thank you so much
Now that I have stopped crying. You were such an intune momma when you brought him home you knew something wasn’t right. So sorry Oli was so sick but also glad they caught it soon.
Keeping your family in my prayers
Diana Jenkins thank you so much for ur sweet words ❤️
He is just beautiful! So happy for all of you.
We have three grown children and have been so blessed that none of them have
ever had any health issues.
I don’t know if I’d have the strength to go through what you have as parents.
God bless you and your precious baby boy.
Lori Ihler i pray no one has to endure what ive had to. God bless you too!
Oli is such a great little guy. So glad he has a loving praying mother. So happy for you all.
Little Oli is too cute for words! What a fighter he is and so blessed to have you both for parents. The Lord hand picked you to be his Momma and Oli for you. Your sweet boy has a special purpose here on earth. God bless Oli and your family. ❤️✝️
Katie Sago thank you very much!! Yes, God picked me for the battle and I have fought with my all every day and will continue to do so til the end of my days... everything for my baby
What a beautiful baby! I hope he’s continuing to do well. Those eyes were worth the long wait.
sara richards he is doing fantastic! Thank you!!
What a sweet precious baby. Thankfully he was diagnosed treated and cured.
OMGNESS...OLIVER IS SUCH A GORGEOUS PRECIOUS BABY BOY!! HIS EYE'S LITERALLY SPARKLED WHEN HE SMILED, MY HEART❤ MELTED LIKE A POPSICLE 🍦
Tammy Shuttleworth haha my heart melts every day with that smile! Can u imagine !? Im in love
What a marvelous montage of this beautiful child. GOD BLESS🙏💜
He is beautiful ..those big eyes and long lashes..im so glad you caught it in time ..no thanks to the people who didn't tell you he needed more testing..us mothers have instincts..we know when something's wrong..thank god...i hope he stays well and strong
He’s adorable! So brave and strong. I’m glad you have a happy ending to the struggle.
I am 30 and have MSUD - you may know me from the MSUD Family Support Group facebook group, or the UK equivalent. My 28 year old sister - my only sibling - also has it and has just come out of hospital after battling norovirus. We are both untransplanted - I mean, our livers are healthy, and are working just fine with the tools they have. It makes no sense in our cases to rip out perfectly healthy organs when we ourselves are, for the most part, perfectly healthy on our low protein diets, and drinking our formulas as we should. We can travel, with a few extra arrangements and considerations. We can usually attend social functions, with a few extra arrangements and considerations. We went to mainstream school, with quite a lot of extra arrangements and considerations(!!!) I am also on the less outwardly obvious end of the autistic spectrum, with marked attention deficit, executive and anxiety issues that are still being investigated. I used to have a lot of behavioural issues involving social oddities, as well as anger and physical violence, but not so much now. Neither of us are learning impaired or physically disabled. We have the measurable enzyme activity of highly severe classic MSUD, but the clinical daily protein tolerance of variant MSUD, which helps as when we were born, where we lived, there was very limited access to formula, and no access at all to dietetic support or specialist low protein products. Somehow I survived 14 months undiagnosed (despite Mum's best efforts to get taken seriously by local medical staff), but began to show severe and unremitting symptoms from the age of 2 days old. By the time I was diagnosed I was hallucinating, convulsing, unable to sit, walk, talk, use my hands or learn at all. In the seven months following my diagnosis and correct treatment I went from that to crude walking. I was declared age appropriate at three years old, and above average at five years old. My parents went with the 75% chance of a second baby being ok, but by sister was also diagnosed with MSUD in utero via amniocentesis. This created the heartwrenching decision as to whether to continue the pregnancy - something that temporarily divided the family at the time, but which nobody has regretted or contested for a second since. She went straight onto the diet at birth. But she had to be tube fed for her first year as she refused the formula, and also had and generally still has more problems with staving off projectile vomiting, than I do. Her levels have historically been less stable. She's been in hospital more than me growing up as a result, though I have been in hospital more times as an adult, but not nearly as frequently as I was in growing up. No two cases are the same, even in the same family! Our lives have been crazy but remarkably normal.
What an angel!! Your son is a fighter!! Prayers you are all doing better and adjusted to his condition day by day
I am bawling my head off !!!!!! Prayers and much Love to you guys and kisses for that precious little baby!!!!
I cannot begin to imagine what you went through. Oli is a beautiful baby. Thankyou for sharing this with us.
Gillian Brookwell thank you for watching my video ❤️
He is adorable and looks very happy .God bless you and your family
s j thank you so much
I was watching a video about maple syrup disease and I saw your video . after watching the video .. I cried . All the symptoms and the defects I learned caused so much pain to the young baby who is just born . Thank you for being so brave and fighting the disease.
Thank you for being so sweet! It's been a heck of a journey but God is good!! and my baby is braver and stronger than I couldve ever imagined!
He’s so beautiful and you are strong you will be able to help and encourage other parents facing difficulties whatever they may be God bless
He is too precious. Thank you for sharing his story.
This was a great video to watch. Congrats to you and your beautiful family.
My son has MSUD, Type 2 intermittent form. He is 18. Just graduated from high school. Strong and healthy. Headed to college in the fall. HANG IN THERE! It can be exhausting at times, but there is hope and there is support. Prayers for you and your Oli.
june barathy I had Peter in 55 I fed him for 11 months, then he had a special food, we lived near a beach so he got plenty of fresh air. I had a little girl and we moved, Peter wasn't keeping up in size with our friends two boys. A doctor I took him to found he had a Murmur in his heart,I often wonder why it wasn't picked up when he was born. We saw other doctors and it was arranged he would have a heart operation. His scar was huge, by three days after the operation he was playing in the ladies ward. We had to go back to the hospital for check for a few years.Anyone that saw him undressed was told by him that ;was where the shark bit him'
He is now 62, 6ft tall and has 4 children. So Mums, be alert, if it doesn't seem right, it probably isn't.
june barathy you are right! We have this extra sense when it comes to our babies
WHAT A BEAUTIFUL BABY 💖Children are a gift but ones with conditions: they’re mommy is the blessing and sent from above to take care of you 😘💕😘all negative comments: I truly feel for you and for any offspring that you bare because, life isn’t perfect.
I must say, that sweet little nugget is the cutest baby i have ever seen 💙
Ju ju thank you! I think the same haha he is the cutest
One of the cutest babies I have seen...so happy he got thru this.. pls share another video would love to see how things are now....
Andrea Sams i did share another video recently!! Check it out please! I want him to read all these nice comments one day
Jany B I absolutely will....😊
What a sweet precious baby boy! GOD bless you and your family!
Jenny Ruth thank you!!!
Good job mom and dad, he is so cute, I hope your future brings all happy memories now💕
What a precious little boy. He's such a sweetheart. Blessings to you.
Kim Meyer thank you!! Same to you 💕
Hi little man! So sorry u have to go thru this, u are just beginning Your little precious life....god is with u and your family!! So sorry little guy😗you are precious don't give up the fight. Best wishes and prayers coming from th U.K.🙏
I’m so, so glad he is doing so much better! What a beautiful, precious little one you have.
Denai Mullet thank you 😊
Thank you for sharing your precious video what a beautiful lil man
So very handsome, God continue to bless Oli & his family!
Marcia Lynn thank you!!!
Por, poor tiny bsby. Bless his sweet heart. The Lord will bless you. Amen
Carey Pettigrew Amen!
With the newborn screening you should have been notified right away. Thanks for sharing your story it pays to be vigilant. Beautiful strong baby.
Omg he is so cute I cried for you even know I don’t know you !! You are a very strong mommy and did everything you were suppose too!!
I’d love to see another video of your beautiful son.
Denai Mullet thanks for the kind comments! Maybe i’ll make an update video soon :)
Annnnnd ive uploaded a new video:)
I’m crying. All my prayers for this beautiful baby boy
Oli is so handsome and strong!! His smile captivated my heart! God's grace is in his smile and gorgeous eyes! 💖
U r so strong..more strength to you! Prayers for Oli!
Upasana Ghosh thank you!!! God bless you alwayys
Beautiful baby, happy results!
YOU HAVE A BEAUTIFUL BOY AND MAY GOD BLESS HIM AND KEEP HIM WELL ALWAYS.
tbyrandfan1 thank you 😊
Made me cry! I can’t have babies so any subjects of babies/ kids I’m especially sensitive over! Beautiful baby you have! Thank you for sharing your story!
Madonna Jeannotte thank you for watching it ❤️ God bless you
He's a beautiful baby. God Bless him
He is beautiful!
He's so precious, god bless him and his parents
Sending healing prayers and much love to y’all 🙏🏼💜
HI OLÍ
I KNOW YOU ARE GOING TO BE WELL.
TO YOU THE PARENT IS NOT GOING TO BE EASY BUT I KNOW YOU ARE GOING TO BE OKAY.
MY GRANDAUTHER HAVE MSUD. SHE IS 19 YEARS OLD RIGHT NOW. SHE FINISHED HER HIGH SCHOOL AND
IS GOING TO COLLEGE. YOU WILL HAVE UP AND DOWN BUT DO NOT GIVE UP. WITH A GOOD GENETIC DOCTOR,
DIETICIAN AND YOUR LOVE AND GOOD LOVING CARE OLI IS GOING TO BE WELL.
BEST WISHES TO YOU GUYS AND OLI.
thank you for the sweet comments!! very glad your granddaughter is doing so well!! thankfully Oli is doing amazing as well!!! best wishes to you and your family!!
GOD BLESS THIS PRECIOUS BOY AND HIS FAMILY...♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡
LACA and may he bless you too
My 10 month old daughter also has msud. I feel your pain. Looking at her you couldn’t tell anything is wrong, she’s always just so happy. It’s just scary to know it’s always looming there ya know. Plus it sucks because the four genetic mutations that cause it are all normal so children’s have no idea what caused it so it’s even more rare :/ but she responds well to the diet and has been developing fine. Hope your son is doing well and good luck from my fiancé n me :)
Josh Christianson im glad your baby girl is doing wel!!! Many blessing to you all ❤️
He is so adorable! 😊❤️💛💚💙💜
Fairyfreak57 thank you 😊
I’m late but I have MSUD as well when he gets older you have a specialist to help you and it’s not bad at all when you get older you live a normal life just with extra care-my story
Lyrical Miracle thank you for sharing sweetheart ❤️ he is doing great now!!
I’m sure that other sufferers and families would love to hear your story,your fight against MSUD,I would definitely like to hear how you’ve coped,your positive attitude thru out your journey. Wish you well from Scotland
My little brother was diagnosed with MSUD and i’ve been searching to see how the other babies that have MSUD are dealing with it . And i had much hope that he will be better when I’m talking to him he used to smile at me and his age was only 43 days but he smiled at me .today he passed away in this morning it was 5:00 he is now in heaven . 🦋 my little angel he was so beautiful he sufferd alot and now he is in peace with allah with GOD .
At the end i wish the best for your child and may god give him the healthy and wealthy life 🦋 .
i’m crying. he’s the cutest 💗
What a beautiful baby.x
My daughter have a MAPLE SYRUP URINE DISEASE also...she is two months old already...how hard is it to appreciate this kind of illness,so hard!😇😇😇
What a beautiful baby!
What an absolute beautiful baby.
K Butler thank you ❤️❤️
Thank you for sharing Oli’s story 😍
Awww you've got yourself a cute lil pancake!!
So sad to know your baby was so sick because the hospital that did the delivery dropped the ball with the followthrough with the elevated numbers on his testing at birth. The entire hospitalization was caused by incompetence. Yay for recovery!
Linda Deneher sadly you are right, i shouldve been notified way sooner
Jany B i hope you sued, thats the nurses job to follow up with the doctor, us nurses check the lab work and then report it to the doctor if there are any abnormalities, we assess pt and document and inform the doctor, thats the thing that upsets me about the health care now, people work for the money not because they truly care, when care you make sure you pay attention to your duties and the patients, but thank you lord your son is better and my god continue to bless him
He is beautiful.
he's beautiful.
Thanks to things pioneered on me and my case of M.S.U.D, screening got better over the years and thankfully children are diagnosed much sooner than they used to be over 20 years ago. My case made it so other children born with M.S.U.D. might not suffer the ways I did.
I cnt control my tears....my Allah always with u my dear, lots of doa & lots of love 😘😘
Syeda Sheyamoon thank you so much
Such a beautiful child ...♥️💙💛🧡💜
He is so adorable
He's beautiful .
Oil is so precious
4:03....who the HELL is chopping onions in my bedroom? This will not stand!
Troy Evitt ❤️❤️❤️
It made me cry too. I hope he is doing well now!
He is perfect
🤗❤️🙏. You made it. Blessings.
I love you little pancake!
Thank you for sharing your story.
OH Oli, You went thru a horrible terrible time..IM so happy you are now happy, whole and healthy..I knew the minute I saw you the first week of life you were very ill and not comfortable at all..You were miserable and made me cry..You made it..I sure would like to hold you and kiss you..Thank GOD 4 this wonderful ending..wow, Babies are amazing..YOU are amazing Oliver..Bye now..
Baby thank you!
God bless him such a cute bundle
Sending love to Oli and fam💚!
Dios lo siga bendiciendo yderrame mucha fuerza ysalud
He is so sweet
He's such a strong little guy! Could you please explain the ways that MSUD affects the body? Thank you!
Natalie Staheli yeah! The amino acids you don’t break down, go into your bloodstream in the form of toxins and those toxins go to your brain and cause swelling which u can guess what brain swelling can do :)
@@janyb8272 Thank you for explaining that for me! That is just horrible! I hope that one day that someone will find a cure! He's such a handsome little guy!
What a cute little guy
Beautiful child
Im soooo happy he is ok god bless😘💕💕💕
bless you From the bottle of my heart.
Rosa Maria Juarez thank you
wow....what a strong mom and boy....
what a handsome little dude
mary furnier thanks!!!
Ever seen a doctor who believes the parents and gets a diagnosis right the first time?
Christine Still not one single time!!! How frustrating 😩
@@janyb8272 llkllļ.
Your son is so adorable
Joan Wommack thank you!
Hi Oliver. I have classic MSUD and I have 25 years old
Pulling out his tubes means he's feisty; a fighter!
Marie Katherine that he is!
Ahh he s beautifull 💚💙💖
Bless you all
Awwwww,cute baby boy 😊😊❤️
He's adorable
LaShawna Blanton thank you!