What is FSH Muscular Dystrophy? My disability explained

My disability, Facioscapulohumeral Muscular Dystrophy (FSHD), is pretty rare! Let's talk about it and learn the basics from symptoms, to progression, to if there are any treatments available.
Intro - 00:00
What is FSHD and symptoms 00:55
How does FSHD progress? 04:55
Is there a cure? 08:53
"Less Pity, More Ramps" shirt with the Make Waves Collective: makewavescollective.com/produ...
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#disability #FSH #FSHD #MuscularDystrophy #wheelchair #wheelchairuser #diagnosis #WorldFSHDday

[@enterstageright3276]

Yes! To the nerding out on more genetics! Just warn people at the top and go for it

[@AllieQueenofNarnia]

This was interesting, and really well explained.

[@debbieeggleston3420]

Really nice explanation and a good resource for those who want to pass on an explanation to friends and family.

[@TheDaisyVarela]

I also have FSHD muscular dystrophy and found this to be a very good well rounded explanation 😊 I always have a hard time trying to put to words what the disability encompasses, this will help me educate people better when someone asks about my disability, other than my usual response of my muscles just weaken over time 😅 It would be interesting to get a deeper understanding for myself about the genetics of the disability 😊

[@DisabledInNature]

I'm so glad that this can be a helpful resource for you!! Pass it around to whoever you'd like. I'll definitely do one digging into the genetics, it's just definitely going to take some research!

[@natasiadasilva9141]

that's interesting. my mom actually tested and is positive and asymptomatic at 60. if i carry it, id also be asymptomatic at 30. my grandad was moderate, my moms cousin was moderate and two other aunts are asymptomatic. One great aunt died in her 60s or 70s with a dropped shoulder and my other aunt has extremely minimal symptoms if any in her late 40s.