Day by Day | My Cancer Treatment Begins | Acute Myeloid Leukemia
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- เผยแพร่เมื่อ 27 ก.ค. 2019
- The day after my diagnosis of leukemia I was taken to another hospital to start chemotherapy as soon as possible. The week my cancer treatment began was a blur with so many people trying to help and support me, from my medical team to family and friends.
We all just had to take it day by day.
20 years later I just had the best family camping trip and I am so grateful to be here. I would have never guessed 20 years ago that I would be this connected into my life, this happy and healthy.
It is my hope that my cancer vlog with acute myeloid leukemia connects to the people who need inspiration and hope.
There were days I wanted to give up and my leukemia story vlog is a peak into 20 years ago when I was diagnosed with acute myeloid leukemia. My treatment including the good days, bad days, worse days and the humor we infused throughout.
Then fast forward to today. My ordinary life that is extraordinary. This doesn't mean all of my days are happy and sunny, it doesn't even mean that I appreciate every day though I should. It means that I'm at a point where my cancer journey is a part of me rather than it defined me.
With Love,
Beth - แนวปฏิบัติและการใช้ชีวิต
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Thanks for sharing this Beth. It’s a beautiful reminder about practicing gratitude for what you have. There is always something we all have to be thankful for no matter how dark some days may be.
Excellent, thanks for sharing! I am two weeks out from my stem cell transplant, scheduled for 3/07/2024. I was diagnosed with AML, same as your diagnosis.
Good for you for winning the battle.
I am in my 2nd cycle for aml and it’s been so hard emotionally thank you for sharing your story 2 more cycles and I’m done and hopefully I’ll stay in remission. God bless you all on your journey
Your vacation looks amazing and beautiful! I'm so glad you were able to take in all the beauty and appreciate these moments! It took me 2 years after my last treatment to be able to walk up a mountain again, and when I did, I cried. (Try choking on your tears while trying to breathe at altitue :D ) I didn't think I would ever be able to do that again! Health is truly a gift, and a responsibility for us to maintain it. I love the juxtaposition from where you were, to where you are. Congratulations! I wish you many many years of increased health!
You are a right health is truely a gift you remind me that again ☺☺☺ and babe you are inspirational too ♥♥♥
Did u had AML or Apl.
I was diagnosed with AML Nov 5 2021. I just finished my 4th consolidation and have a favorable prognosis. Thank you for sharing 20 years then and now of living with gratitude. That's my plan too!
It sure is a journey! I wish you well.
is it ok to know your symptoms prior the diagnosis?
I was diagnosed 3 days ago and I hope I can help this let's just hope 😭
Are you still alive what risk is your AML
I'm in recovery and back to work full time! Anniversary of 2 years from diagnosis in 3 weeks, thank God! I had inversion 16 and deletion on chromosome 7. Low risk+ high risk. They treated as low risk, induction and 4 consolidations. Good prognosis but if I relapse will need induction again and stem cell transplant. @@Amnigaggh
I'm so happy to watch this video, my doctor send me the exams to discard leukemia but if it looks like a duck, walks like a duck and sounds like a duck... I'm very scared but your testimony gives me hope
This can be a very scary time. My thoughts are with you.
Strong and beautiful ❤❤❤ you are inspiring 💪🏻💪🏻💪🏻
Thinking of you!
I have been diagnosed with AML leucumie in February and last week the doctor said this chemo is your last..so now am home after 5 Circle chemo.. still couldn’t believe it…i don’t know what to say God protect all cancers ❤
Seeing this video has given me hope that I can also live 20 years. I have been diagnosed with high risk AML and I hope it gets cured and I can live long. I hope you always remain in the best of health and remain happy.
My thoughts are with you during this challenging time.
@@trifectapilates Thankyou so much for your kind words. ❤
I began treatment for the same at this time (November) in 2019. Thank you for sharing your journey.
I hope you're doing great and feeling well.
It’s so valuable to hear it from your point of view, and can only imagine how deeply it must have affected you. I am curious, did you have the same determination and positivity that you have now or rather how did you uplift and motivate yourself back then, when going through something so life changing? What was your self talk like?
Also, it’s always difficult to know what to say or do when you visit with someone to show your support. Are there any hard NO NOs that we should be aware of? What would have been helpful besides letting you rest when you needed to rest?
Thank you for taking the time to do this and sharing your journey. I am looking forward to hearing about how you regained your health in the future vlogs.
Trifecta Pilates i look forward to your answers and strategies you employ(ed) to keep you on the positive note and how you overcame the illness.
Seeing this video is given me hope. I was recently diagnosed with AML and on day 7. Treatments have been well and I'm trying to remain positive. I believe I can fight this and continue doing what I love. I'm only 30 years old, so I know I still have some life in me.
My Father Also Dignosed with AML what kind of treatment Is said to you by Doctors to you…….please answer
@@onkareleven6218 My doctors gave me chemo injections. I can't recall the exact name, but I was given chemo for 5 days along with an oral med to target my flint 3. I'm currently out of the hospital and visiting the clinic for follow ups, which your father will have to do. Basically checking on if needs blood or anything like that. I was also given another round of chemo out patient. At this time for me I'm awaiting a donor for a stem transplant as that's what my doctors want me to do, but everyone is different. I saw a few patients get radiation during my hospital stay, but I don't know what cancer they had. Your father will most likely follow a similar treatment to mine, but it all depends on his doctors and his case. Hopefully he recovers quickly.
I was glad you recovered and I don’t remember doing a ct scan on my wife during the chemo sad to say my pass away Dec 22, 2022 for multiple organ failure and the last straw is the bleeding on the brain. I wish they did a scan because after the chemo my wife is getting weaker and weaker and during Christmas eve she had to be taken to emergency and end in ICU and few days succumb to the illness since she has no way to fight any inspection.
a fantastic outcome, finally some good news in this old world.
Thanks!
Stay strong girl. I know what u mean about it happening suddenly. I had a sinus scan , found a brain tumor on it, talked to a doc then the next day saw a neurologist to schedule emergency brain surgery for ...4 days from then? It was like wtf.....youd think there would be obvious signs. Sometimes I guess there is. Hope your well get to mayo. Consider yourself virtually hugged. Be well. - a fellow survivor
It does happen so quickly! I wish you the best.
i hope your son will be okay in jesus name 🙏
Youre wonderful, love the positivity thanks for sharing your story.
Thank you so much!
Im diagnos AML Nov 2022 I had i 9:37 nduction 4 times chemo..I had BMA the result Remission..im forever grateful to God 2nd life i have..all my pains, tears, God answered prayers.. I think Positive in life, there always "sunshine after the Rain" ❤
So happy for you I’m 32 got diagnosed with aml 9 months ago been in remission ever since 🤞I just like you said can’t imagine being alive in 20 years but you do give me hope and also I have 4 kids good luck for the future
Kn si stage m kya 4th stage m possible h
@@hAtAkEkAkAsHi-qj8ux blood cancer mai stage nhi hoti hah bhai
How are you
My son is 12 and he has Aml it has been one month every day I’m so scared my heart is broken I don’t like to see how he suffer when he was getting chemo but this video is giving me more hope thank you for sharing your story and prayers for my my son his name is Alex 🙏
When a loved one is ill, especially a child it is heartbreaking to experience. I'll keep you and Alex in my thoughts.
God bless your baby I’m 39 a mother of 8 and my mother is just like you I am praying for your baby boy
Hii my frd have AML..he is just 23 years old how long he servival..and he completed 1St cycle treatment of cymo
U have a brave soul
Thank you very much.
Thank you for sharing, my 13yr old son was recently diagnosed with AML. You have given me hope.
I'm so sorry to hear that. It is a really challenging time for you and your family right now. My thoughts are with you.
How is your son my 28 year only son died four months ago due to aml
hello, is it ok to know your symptoms? thank you
I had AML and a BMT in 2009. What scared me was when they sent the preacher in to talk to me.
I thought I must be critical if I need a minister. Lol!
That is scary. I remember crying as a pastor came in and lead a prayer.
@@trifectapilates Praise the Lord you made it through it all. Congratulations!
My brother was diagnosed AML just now , i want to ask how many percent of AML do you have then , sorry for my english . I want to ask if that time did you encounter high fever?
It was so long ago there are some specifics that I don't remember. I wish him well.
I just want to ask how or what did you do to WIN on this couse I don't know what to do I'm so scared it was just 2 days ago when I was diagnosed but it's feels like I'm dying 😢
I'm so sorry to hear that. Diagnose is scary and there are a lot of downs and ups on the journey. I just took it day by day, and sometimes minute by minute.
My partner was told she may have Leukemia, there is allot of abnormalities within her blood.
She had a viral infection which was a stomach bug, it led her to throwing up ALLOT, etc, a week later she got better, but was very fatigued, I assumed it was just some post-viral fatigue and gave her vitamins and helped her rest, then 2-3 weeks later her eye sight declined, among other things, so I decided to take her to the doctor again.
In 3 weeks her vitals declined exponentially, from completely normal to really bad.
They ran her blood and said her Hemoglobin was at 5, among some other things that were concerning, apparently her sugar was 4X the amount it was supposed to be, she's not diabetic, but they had to give her insulin.
Her heart rate was basically sitting at 110-120BPM.
Apparently a doctor showed up on her off day just to look at the blood because it was so concerning, then she came to tell us that she's looking like she may have Leukemia, and said she wouldn't have brought it up unless she was fairly certain essentially.
The doctor asked 'Do you have kids', which to me was the nail in the coffin.
She was transferred to a place downtown about an hour/hour half ago and they should be able to confirm it + actually look into treatment.
They plan to give her blood, among other things, to hopefully get her more stable.
Obviously there is still a chance its something else, but its very doubtful and its scary for both of us.
I know that remission early is likely, but it continues to come back, so the chances of living longer than months, years, etc, becomes progressively harder.
She's young (26) relatively health, no underlying conditions, so I hope that she can make it through this, and I'm watching these videos to know what to expect.
Thank you for detailing your journey.
This is such a challenging time. My thoughts are with you and your partner.
Hi, can we get an update? I hope everything is fine
Hello, can you please share an update about what happened to your partner? I hope she's fighting through it and doing okay now 🙏
Hi where is this city of hope? My grandson has AML he turned 2 yrs old last 23 of Dec.2020 but it started jan 2020...he had chemotherapy, he is scheduled for a bone marrow transplant but we lack funds, now he has a relapse
I'm so sorry to hear that and my thoughts are with you and your family. This is so challenging to go through. City of Hope is located in Southern California.
do you get fever?
Had to go to a hematologist yesterday and I’m freaking out. My monocytes are high and basophils and esonophils. The doc mentioned possibly leukemia but I’m worried…
My thoughts are with you. The unknown can be scary.
If it's okay to ask, can you please tell us how old you were when first diagnosed, because I hear the odds of survival are much lower past the age of 20 with AML, thank you.
I was 20. And interestingly enough I happened to be diagnosed the same week and went to the same hospital as a family friend who was over 40. We both went into remission.
We just found out that my partner has leukemia and 2 days ago he went for his first chemo . Came back and told me he is not going to continue treatment because he literally died of pain 😭 im searching for a way to understand him more and stand with him 💔💔
Treatment can be very painful. This is not an easy time for him or you.
Howisyour partner my 28 years old only son diedfour months ago due to aml When we go for 2 nd chemo we lost our son
Which type of AML leukemia diagnosed you mam ...my mother was diagnosed 3rd type APML ...3 round of chemo done ...now she has taken maintenance medicine...
That's so wonderful that she is complete with her 3rd round!
Hi, Can I ask that what's your subtype and did you get bone marrow transplant? My mom diagnosed Aml-M4 three months ago that's why I asked these questions to you.
I'm so sorry to hear that. With the type of leukemia I had I did not need a bone marrow transplant. Promyelocytic
Which stage during treatment
My type of cancer really didn't have a stage.
can you pls tell me how long it takes to be cancer free. Thank you so much
It really depends on the type of cancer, treatment and the body. I would always recommend speaking to your doctor about this.
@@trifectapilates what about leukemia? , i just want to know how long you have been till you become cancer free. Im sorry for my english, its not my native language.
Hey, my love of my life just passed away yesterday, and no words cant explain what i feel rn, i cant focus. I cant sleep properly coz i always thinking about her. It feels unreal. I cant let her go. Im not ready :( .
@@OO7. so sorry for your loss. I can't imagine how hard it must be for you.Praying for God's Grace for comfort.💚
@@OO7. sorry for your loss my only son died. Four months ago aml bllod cancer god funished good people only till today without my son we parents are suffering
What were your symptoms plz share???
For me the symptoms included headaches, exhaustion and a lot of bruising.
@@trifectapilates you had aml?nd what treatment did you had?
@@trifectapilates I'm scared, I think I have it
In which days admitted by hospital you are
I was in the hospital about 90 days in total between the three rounds of treatment I did.
Did you receive a transplant?
It was not needed for my treatment.
I've just come to know that Stem Cell Transplant can cause permanent infertility. And my doctors did not inform me about it. I'm so heartbroken. They hardly spoke about any complications in detail and now I will be going in for the transplant in few weeks.
What a disappointment. I know there is a lot to cover with complications but it's important to know them.
I am so sorry for your loss. I am in recovery for AML and looking back, it was so urgent to get treatment that we didn't fully understand/get told all the possible side effects either. I believe they were literally counting the hours to starting treatment to prevent my death.
Hi thank U for your story I wish I could talk to you
I listen to you every day. God bless you
Thank you.
You are fully cure for AML
What is your treatment type medicine OR radiation type theropy
I did chemo.
You are full cure for AML🙏🙏
How are you doing today?
Really great.
@@trifectapilates what did you do? Any tips? Does it comeback? My son diagnosed with AML and we’re really broken. He’s just 7 😢
My wife has this now
I'm so sorry to hear that. My thoughts are with you.