Day by Day | My Cancer Treatment Begins | Acute Myeloid Leukemia

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ความคิดเห็น • 114

  • @Anti-leftist7777
    @Anti-leftist7777 10 หลายเดือนก่อน +2

    Excellent, thanks for sharing! I am two weeks out from my stem cell transplant, scheduled for 3/07/2024. I was diagnosed with AML, same as your diagnosis.
    Good for you for winning the battle.

  • @erinbiggerstaff4533
    @erinbiggerstaff4533 5 ปีที่แล้ว +17

    Your vacation looks amazing and beautiful! I'm so glad you were able to take in all the beauty and appreciate these moments! It took me 2 years after my last treatment to be able to walk up a mountain again, and when I did, I cried. (Try choking on your tears while trying to breathe at altitue :D ) I didn't think I would ever be able to do that again! Health is truly a gift, and a responsibility for us to maintain it. I love the juxtaposition from where you were, to where you are. Congratulations! I wish you many many years of increased health!

    • @samsammyu1351
      @samsammyu1351 5 ปีที่แล้ว +1

      You are a right health is truely a gift you remind me that again ☺☺☺ and babe you are inspirational too ♥♥♥

    • @firdouskt2974
      @firdouskt2974 2 ปีที่แล้ว

      Did u had AML or Apl.

  • @KatALina808
    @KatALina808 ปีที่แล้ว +7

    I am in my 2nd cycle for aml and it’s been so hard emotionally thank you for sharing your story 2 more cycles and I’m done and hopefully I’ll stay in remission. God bless you all on your journey

  • @irenevalente6055
    @irenevalente6055 5 ปีที่แล้ว +5

    Thanks for sharing this Beth. It’s a beautiful reminder about practicing gratitude for what you have. There is always something we all have to be thankful for no matter how dark some days may be.

  • @jessicastewart7756
    @jessicastewart7756 2 ปีที่แล้ว +14

    I was diagnosed with AML Nov 5 2021. I just finished my 4th consolidation and have a favorable prognosis. Thank you for sharing 20 years then and now of living with gratitude. That's my plan too!

    • @trifectapilates
      @trifectapilates  2 ปีที่แล้ว +1

      It sure is a journey! I wish you well.

    • @lutoninanay4305
      @lutoninanay4305 2 ปีที่แล้ว

      is it ok to know your symptoms prior the diagnosis?

    • @darlingjeandbalagot2715
      @darlingjeandbalagot2715 2 ปีที่แล้ว +2

      I was diagnosed 3 days ago and I hope I can help this let's just hope 😭

    • @Amnigaggh
      @Amnigaggh ปีที่แล้ว

      Are you still alive what risk is your AML

    • @jessicastewart5383
      @jessicastewart5383 ปีที่แล้ว

      I'm in recovery and back to work full time! Anniversary of 2 years from diagnosis in 3 weeks, thank God! I had inversion 16 and deletion on chromosome 7. Low risk+ high risk. They treated as low risk, induction and 4 consolidations. Good prognosis but if I relapse will need induction again and stem cell transplant. @@Amnigaggh

  • @sabasiddiqui429
    @sabasiddiqui429 2 ปีที่แล้ว +11

    Seeing this video has given me hope that I can also live 20 years. I have been diagnosed with high risk AML and I hope it gets cured and I can live long. I hope you always remain in the best of health and remain happy.

    • @trifectapilates
      @trifectapilates  2 ปีที่แล้ว +2

      My thoughts are with you during this challenging time.

    • @sabasiddiqui429
      @sabasiddiqui429 ปีที่แล้ว

      ​@@trifectapilates Thankyou so much for your kind words. ❤

    • @mdrahamatullahmd4574
      @mdrahamatullahmd4574 2 หลายเดือนก่อน

      How are you now. I am a cll patient. Please share diet in cancer.

  • @kuchisakekitsune4052
    @kuchisakekitsune4052 4 ปีที่แล้ว +12

    I'm so happy to watch this video, my doctor send me the exams to discard leukemia but if it looks like a duck, walks like a duck and sounds like a duck... I'm very scared but your testimony gives me hope

    • @trifectapilates
      @trifectapilates  4 ปีที่แล้ว +1

      This can be a very scary time. My thoughts are with you.

  • @UrSammich
    @UrSammich ปีที่แล้ว +3

    Seeing this video is given me hope. I was recently diagnosed with AML and on day 7. Treatments have been well and I'm trying to remain positive. I believe I can fight this and continue doing what I love. I'm only 30 years old, so I know I still have some life in me.

    • @onkareleven6218
      @onkareleven6218 ปีที่แล้ว

      My Father Also Dignosed with AML what kind of treatment Is said to you by Doctors to you…….please answer

    • @UrSammich
      @UrSammich ปีที่แล้ว

      @@onkareleven6218 My doctors gave me chemo injections. I can't recall the exact name, but I was given chemo for 5 days along with an oral med to target my flint 3. I'm currently out of the hospital and visiting the clinic for follow ups, which your father will have to do. Basically checking on if needs blood or anything like that. I was also given another round of chemo out patient. At this time for me I'm awaiting a donor for a stem transplant as that's what my doctors want me to do, but everyone is different. I saw a few patients get radiation during my hospital stay, but I don't know what cancer they had. Your father will most likely follow a similar treatment to mine, but it all depends on his doctors and his case. Hopefully he recovers quickly.

    • @mdrahamatullahmd4574
      @mdrahamatullahmd4574 2 หลายเดือนก่อน

      I am a cll patient. Please share diet to consume.

  • @janettecallorina5980
    @janettecallorina5980 10 หลายเดือนก่อน +1

    Im diagnos AML Nov 2022 I had i 9:37 nduction 4 times chemo..I had BMA the result Remission..im forever grateful to God 2nd life i have..all my pains, tears, God answered prayers.. I think Positive in life, there always "sunshine after the Rain" ❤

  • @rumipatrucci
    @rumipatrucci 5 ปีที่แล้ว +4

    It’s so valuable to hear it from your point of view, and can only imagine how deeply it must have affected you. I am curious, did you have the same determination and positivity that you have now or rather how did you uplift and motivate yourself back then, when going through something so life changing? What was your self talk like?
    Also, it’s always difficult to know what to say or do when you visit with someone to show your support. Are there any hard NO NOs that we should be aware of? What would have been helpful besides letting you rest when you needed to rest?
    Thank you for taking the time to do this and sharing your journey. I am looking forward to hearing about how you regained your health in the future vlogs.

    • @rumipatrucci
      @rumipatrucci 5 ปีที่แล้ว

      Trifecta Pilates i look forward to your answers and strategies you employ(ed) to keep you on the positive note and how you overcame the illness.

  • @Timber81
    @Timber81 2 ปีที่แล้ว +1

    I began treatment for the same at this time (November) in 2019. Thank you for sharing your journey.

    • @trifectapilates
      @trifectapilates  2 ปีที่แล้ว

      I hope you're doing great and feeling well.

  • @samsammyu1351
    @samsammyu1351 5 ปีที่แล้ว +4

    Strong and beautiful ❤❤❤ you are inspiring 💪🏻💪🏻💪🏻

  • @dewnytrujillo8189
    @dewnytrujillo8189 ปีที่แล้ว +2

    My son is 12 and he has Aml it has been one month every day I’m so scared my heart is broken I don’t like to see how he suffer when he was getting chemo but this video is giving me more hope thank you for sharing your story and prayers for my my son his name is Alex 🙏

    • @trifectapilates
      @trifectapilates  ปีที่แล้ว

      When a loved one is ill, especially a child it is heartbreaking to experience. I'll keep you and Alex in my thoughts.

    • @KatALina808
      @KatALina808 ปีที่แล้ว

      God bless your baby I’m 39 a mother of 8 and my mother is just like you I am praying for your baby boy

  • @arseniobaleros6639
    @arseniobaleros6639 2 ปีที่แล้ว

    I was glad you recovered and I don’t remember doing a ct scan on my wife during the chemo sad to say my pass away Dec 22, 2022 for multiple organ failure and the last straw is the bleeding on the brain. I wish they did a scan because after the chemo my wife is getting weaker and weaker and during Christmas eve she had to be taken to emergency and end in ICU and few days succumb to the illness since she has no way to fight any inspection.

  • @jodyguilbeaux8225
    @jodyguilbeaux8225 2 ปีที่แล้ว +1

    a fantastic outcome, finally some good news in this old world.

  • @mariopuzo4509
    @mariopuzo4509 3 ปีที่แล้ว +3

    Stay strong girl. I know what u mean about it happening suddenly. I had a sinus scan , found a brain tumor on it, talked to a doc then the next day saw a neurologist to schedule emergency brain surgery for ...4 days from then? It was like wtf.....youd think there would be obvious signs. Sometimes I guess there is. Hope your well get to mayo. Consider yourself virtually hugged. Be well. - a fellow survivor

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      It does happen so quickly! I wish you the best.

    • @emperorpogi9858
      @emperorpogi9858 3 ปีที่แล้ว

      i hope your son will be okay in jesus name 🙏

  • @ViolentMLG
    @ViolentMLG 3 ปีที่แล้ว +3

    My partner was told she may have Leukemia, there is allot of abnormalities within her blood.
    She had a viral infection which was a stomach bug, it led her to throwing up ALLOT, etc, a week later she got better, but was very fatigued, I assumed it was just some post-viral fatigue and gave her vitamins and helped her rest, then 2-3 weeks later her eye sight declined, among other things, so I decided to take her to the doctor again.
    In 3 weeks her vitals declined exponentially, from completely normal to really bad.
    They ran her blood and said her Hemoglobin was at 5, among some other things that were concerning, apparently her sugar was 4X the amount it was supposed to be, she's not diabetic, but they had to give her insulin.
    Her heart rate was basically sitting at 110-120BPM.
    Apparently a doctor showed up on her off day just to look at the blood because it was so concerning, then she came to tell us that she's looking like she may have Leukemia, and said she wouldn't have brought it up unless she was fairly certain essentially.
    The doctor asked 'Do you have kids', which to me was the nail in the coffin.
    She was transferred to a place downtown about an hour/hour half ago and they should be able to confirm it + actually look into treatment.
    They plan to give her blood, among other things, to hopefully get her more stable.
    Obviously there is still a chance its something else, but its very doubtful and its scary for both of us.
    I know that remission early is likely, but it continues to come back, so the chances of living longer than months, years, etc, becomes progressively harder.
    She's young (26) relatively health, no underlying conditions, so I hope that she can make it through this, and I'm watching these videos to know what to expect.
    Thank you for detailing your journey.

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      This is such a challenging time. My thoughts are with you and your partner.

    • @StarContract
      @StarContract 2 ปีที่แล้ว

      Hi, can we get an update? I hope everything is fine

    • @supersaiyan-goku-san
      @supersaiyan-goku-san ปีที่แล้ว

      Hello, can you please share an update about what happened to your partner? I hope she's fighting through it and doing okay now 🙏

  • @carolevillines1947
    @carolevillines1947 2 หลายเดือนก่อน

    My older sister who I never gotten to know was diagnosed with AML in 1956 at 6yrs old and only lived 11 weeks ..she had the adult form....she passed on nov.1.1956 her name was Angela Jean villines.

  • @nasirjones7666
    @nasirjones7666 ปีที่แล้ว +1

    Youre wonderful, love the positivity thanks for sharing your story.

  • @alion6783
    @alion6783 5 หลายเดือนก่อน

    I have been diagnosed with AML leucumie in February and last week the doctor said this chemo is your last..so now am home after 5 Circle chemo.. still couldn’t believe it…i don’t know what to say God protect all cancers ❤

  • @davidkellymitchell4747
    @davidkellymitchell4747 4 ปีที่แล้ว +4

    I had AML and a BMT in 2009. What scared me was when they sent the preacher in to talk to me.
    I thought I must be critical if I need a minister. Lol!

    • @trifectapilates
      @trifectapilates  4 ปีที่แล้ว +1

      That is scary. I remember crying as a pastor came in and lead a prayer.

    • @davidkellymitchell4747
      @davidkellymitchell4747 4 ปีที่แล้ว +1

      @@trifectapilates Praise the Lord you made it through it all. Congratulations!

  • @ShaunaV
    @ShaunaV 5 ปีที่แล้ว +14

    So happy for you I’m 32 got diagnosed with aml 9 months ago been in remission ever since 🤞I just like you said can’t imagine being alive in 20 years but you do give me hope and also I have 4 kids good luck for the future

    • @hAtAkEkAkAsHi-qj8ux
      @hAtAkEkAkAsHi-qj8ux 3 ปีที่แล้ว

      Kn si stage m kya 4th stage m possible h

    • @majinvegeta3284
      @majinvegeta3284 3 ปีที่แล้ว

      @@hAtAkEkAkAsHi-qj8ux blood cancer mai stage nhi hoti hah bhai

    • @zainasammour8344
      @zainasammour8344 2 ปีที่แล้ว

      How are you

    • @mdrahamatullahmd4574
      @mdrahamatullahmd4574 2 หลายเดือนก่อน

      I am a cll patient. Please share diet to consume to live longer.

  • @jellen3045
    @jellen3045 5 ปีที่แล้ว +1

    Thinking of you!

  • @adelinoblack4895
    @adelinoblack4895 3 ปีที่แล้ว +1

    Thank you for sharing, my 13yr old son was recently diagnosed with AML. You have given me hope.

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว +1

      I'm so sorry to hear that. It is a really challenging time for you and your family right now. My thoughts are with you.

    • @vinays4757
      @vinays4757 3 ปีที่แล้ว

      How is your son my 28 year only son died four months ago due to aml

    • @lutoninanay4305
      @lutoninanay4305 2 ปีที่แล้ว

      hello, is it ok to know your symptoms? thank you

  • @MadhuMadhu-fz7di
    @MadhuMadhu-fz7di ปีที่แล้ว +1

    Which type of AML leukemia diagnosed you mam ...my mother was diagnosed 3rd type APML ...3 round of chemo done ...now she has taken maintenance medicine...

    • @trifectapilates
      @trifectapilates  ปีที่แล้ว +2

      That's so wonderful that she is complete with her 3rd round!

  • @VedRajak-ef8gm
    @VedRajak-ef8gm 2 หลายเดือนก่อน

    How are you now dear sister thanks for sharing your experience

  • @Ang_jaaf
    @Ang_jaaf 3 ปีที่แล้ว +3

    We just found out that my partner has leukemia and 2 days ago he went for his first chemo . Came back and told me he is not going to continue treatment because he literally died of pain 😭 im searching for a way to understand him more and stand with him 💔💔

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว +1

      Treatment can be very painful. This is not an easy time for him or you.

    • @vinays4757
      @vinays4757 3 ปีที่แล้ว

      Howisyour partner my 28 years old only son diedfour months ago due to aml When we go for 2 nd chemo we lost our son

  • @KhadaJhin04
    @KhadaJhin04 ปีที่แล้ว

    If it's okay to ask, can you please tell us how old you were when first diagnosed, because I hear the odds of survival are much lower past the age of 20 with AML, thank you.

    • @trifectapilates
      @trifectapilates  ปีที่แล้ว +1

      I was 20. And interestingly enough I happened to be diagnosed the same week and went to the same hospital as a family friend who was over 40. We both went into remission.

  • @nuullasnag2580
    @nuullasnag2580 ปีที่แล้ว

    Hii my frd have AML..he is just 23 years old how long he servival..and he completed 1St cycle treatment of cymo

  • @loloybrown
    @loloybrown 4 ปีที่แล้ว +1

    Hi where is this city of hope? My grandson has AML he turned 2 yrs old last 23 of Dec.2020 but it started jan 2020...he had chemotherapy, he is scheduled for a bone marrow transplant but we lack funds, now he has a relapse

    • @trifectapilates
      @trifectapilates  4 ปีที่แล้ว

      I'm so sorry to hear that and my thoughts are with you and your family. This is so challenging to go through. City of Hope is located in Southern California.

    • @lutoninanay4305
      @lutoninanay4305 2 ปีที่แล้ว

      do you get fever?

  • @hAtAkEkAkAsHi-qj8ux
    @hAtAkEkAkAsHi-qj8ux 3 ปีที่แล้ว +3

    Which stage during treatment

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว +1

      My type of cancer really didn't have a stage.

  • @darlingjeandbalagot2715
    @darlingjeandbalagot2715 2 ปีที่แล้ว

    I just want to ask how or what did you do to WIN on this couse I don't know what to do I'm so scared it was just 2 days ago when I was diagnosed but it's feels like I'm dying 😢

    • @trifectapilates
      @trifectapilates  2 ปีที่แล้ว

      I'm so sorry to hear that. Diagnose is scary and there are a lot of downs and ups on the journey. I just took it day by day, and sometimes minute by minute.

  • @majinvegeta3284
    @majinvegeta3284 3 ปีที่แล้ว +2

    What were your symptoms plz share???

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      For me the symptoms included headaches, exhaustion and a lot of bruising.

    • @majinvegeta3284
      @majinvegeta3284 3 ปีที่แล้ว +1

      @@trifectapilates you had aml?nd what treatment did you had?

    • @bornbleu
      @bornbleu 3 ปีที่แล้ว

      @@trifectapilates I'm scared, I think I have it

  • @nien3545
    @nien3545 3 ปีที่แล้ว +2

    U have a brave soul

  • @aubreyaubrey509
    @aubreyaubrey509 3 ปีที่แล้ว

    My brother was diagnosed AML just now , i want to ask how many percent of AML do you have then , sorry for my english . I want to ask if that time did you encounter high fever?

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      It was so long ago there are some specifics that I don't remember. I wish him well.

  • @klutzycutie
    @klutzycutie 2 ปีที่แล้ว

    Had to go to a hematologist yesterday and I’m freaking out. My monocytes are high and basophils and esonophils. The doc mentioned possibly leukemia but I’m worried…

    • @trifectapilates
      @trifectapilates  2 ปีที่แล้ว +1

      My thoughts are with you. The unknown can be scary.

  • @gozdecakirsaglik9746
    @gozdecakirsaglik9746 3 ปีที่แล้ว +1

    Hi, Can I ask that what's your subtype and did you get bone marrow transplant? My mom diagnosed Aml-M4 three months ago that's why I asked these questions to you.

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      I'm so sorry to hear that. With the type of leukemia I had I did not need a bone marrow transplant. Promyelocytic

  • @pohoiki922
    @pohoiki922 5 หลายเดือนก่อน

    Did you receive a transplant?

    • @trifectapilates
      @trifectapilates  5 หลายเดือนก่อน +1

      It was not needed for my treatment.

  • @OO7.
    @OO7. 3 ปีที่แล้ว

    can you pls tell me how long it takes to be cancer free. Thank you so much

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว +1

      It really depends on the type of cancer, treatment and the body. I would always recommend speaking to your doctor about this.

    • @OO7.
      @OO7. 3 ปีที่แล้ว

      @@trifectapilates what about leukemia? , i just want to know how long you have been till you become cancer free. Im sorry for my english, its not my native language.

    • @OO7.
      @OO7. 3 ปีที่แล้ว +1

      Hey, my love of my life just passed away yesterday, and no words cant explain what i feel rn, i cant focus. I cant sleep properly coz i always thinking about her. It feels unreal. I cant let her go. Im not ready :( .

    • @livewell8262
      @livewell8262 3 ปีที่แล้ว

      @@OO7. so sorry for your loss. I can't imagine how hard it must be for you.Praying for God's Grace for comfort.💚

    • @vinays4757
      @vinays4757 3 ปีที่แล้ว

      @@OO7. sorry for your loss my only son died. Four months ago aml bllod cancer god funished good people only till today without my son we parents are suffering

  • @sabasiddiqui429
    @sabasiddiqui429 ปีที่แล้ว

    I've just come to know that Stem Cell Transplant can cause permanent infertility. And my doctors did not inform me about it. I'm so heartbroken. They hardly spoke about any complications in detail and now I will be going in for the transplant in few weeks.

    • @trifectapilates
      @trifectapilates  ปีที่แล้ว

      What a disappointment. I know there is a lot to cover with complications but it's important to know them.

    • @jessicastewart5383
      @jessicastewart5383 ปีที่แล้ว

      I am so sorry for your loss. I am in recovery for AML and looking back, it was so urgent to get treatment that we didn't fully understand/get told all the possible side effects either. I believe they were literally counting the hours to starting treatment to prevent my death.

  • @yadavking3245
    @yadavking3245 4 ปีที่แล้ว +1

    In which days admitted by hospital you are

    • @trifectapilates
      @trifectapilates  4 ปีที่แล้ว

      I was in the hospital about 90 days in total between the three rounds of treatment I did.

  • @OnAirSince93
    @OnAirSince93 ปีที่แล้ว

    How are you doing today?

    • @trifectapilates
      @trifectapilates  ปีที่แล้ว +1

      Really great.

    • @OnAirSince93
      @OnAirSince93 ปีที่แล้ว

      @@trifectapilates what did you do? Any tips? Does it comeback? My son diagnosed with AML and we’re really broken. He’s just 7 😢

  • @judithmillard291
    @judithmillard291 2 ปีที่แล้ว

    Hi thank U for your story I wish I could talk to you

  • @jchatnine0875
    @jchatnine0875 3 ปีที่แล้ว

    My wife has this now

    • @trifectapilates
      @trifectapilates  3 ปีที่แล้ว

      I'm so sorry to hear that. My thoughts are with you.

  • @kapadiyapruthvi1814
    @kapadiyapruthvi1814 3 ปีที่แล้ว

    You are fully cure for AML