Congrats, You are doing so well. 😊🎉 I found Your video, because I watched epilepsy details when "new bothering symptomes arive", having it, too. I always try focuse on passing out stage, because I didn't wanna sound crazy or antisocial, like at night extreme fear, sleep paralysis, waking up with nusea,more drained than when You went sleeping, electroshocks feelings going through limbs, double, or swimming vision especially by evenings, halos around glowing objects at night, having "intense night fear", while laying in bed, always same scenario, feeling as if cover went up my head, when unable to move, once even thought, like someone was sitting next to me. I knew, things were not real and after not normal, seeing horror-heavy things under lids as kid, at some nights but I just learned to control it, when could. No telling adults, as it happened mostly at night. Then there was this "zoning out" feeling when I was teen and ending falling in love with psychopathology, trying to get, what it can be, that is with me, age 16. And at time, closest I seen were clinical books about psychopaths. Lack of emotions, constantly trying to keep myself excited, reckless as unable control impulses and with some not too noble behaviours. But then, I still was unable to focuse at times, kept zoning out, even if trying to "stay", woke with tongue bitten, head bumps, or splits, or sudden rush of feelings, that made me even further feel like evil being. Plus migrenes, from which first failed diagnosis started. When I was 10 it started gradually with those "weird feelings", migrenes, so long before diagnosed at age 27, I was ammened to keep silent, so nobody thought, I am crazy. 😶 I fully get You. I told people at work, I may zone out, or forget what's going, even if gladly for me MAJORITY of above happens mostly morning and at night. But now I am having heartache each night and morning last 2 weeks, coincidently exactly, after series of infections, last passing out and (try to)sleep(4am)paralysis. And as my brother died of epilepsy age 31, through he was having generalized tonic-clonic seizures, I am scared of one thing and that is SUDEP. 😅 Even if most likely, as mine are only complex at most, I should not fear it, I know genetic risk is there(which is irony, because aside us two, nobody in both families had them, too), which not helps, even with all my logic thinking. But I agree with You, about focusing on positives. ❤ You talked, how You lost driving licence, when diagnosed. I almost lost job, ironically working at hospital, because neurologist(well three I try to talk to, even ones I know in sum) refused to sign me "work at height" ability for periodic examinations, because we have LADDER at reception. So now, after two weeks of sending me to forced health care leave, when they innitially tried to change my position, now they moved me, as my boss insisted on having me back... With one detail. My years OLDER colegues now have to get me files above my reach. We started preparing fields for a day, but emergency cases, or phone data settings, I need to ask others to get it for me, which always feel ridiculous...and humiliating, being like not really self dependant. 😅 BUT I can work. I live pretty normally(thanks for app setting clue! Life changer for ditzy like me). Only problem is my hypergraphia, most likely. But it's probably more others problem, than mine. I am angry at myself, I felt too forgetful to go with my dream of studing psychopathology, but I got job, no generalized seizures and aside evening sucking, I know, there is so many people, who can't even leave home... Lets enjoy our (lets hope) controled epilepsy lives. ❤️✌️
Hello!! It's good to see your video about Epilespy. I've seen previous ones you've done and gosh, I just totally relate to every bit of what you go through. I'm glad you're thinking of making more videos. What else to talk about? Firstly, it's good to hear about what your episodes are like. I also find it SO hard to describe what a focal seizure feels like. It's good to hear what other folks do to help these pass by. Do you try to follow any sort of diet? Avoid any foods? Any certain triggers you notice? Thanks for what you're doing! Take care!! ♥
Thank you for posting this. Epilepsy affects less than 2% of the population so it can be difficult to find someone to discuss our episodes with. I've only had 1 grand mal and have been fairly well controlled with medication, but still have focal aware seizures once or twice a week and have focal impaired seizures a couple of times a year. I recently caught a seizure on my dash cam as I was trying to pull into a parking spot in a panic as my deja vu was escalating rapidly. I safely parked and after a few minutes was able to drive home. It was weird to see myself during an episode and the obvious confusion directly afterwards. But I, like you, refuse to slow down or let my episodes define how I live my life. Best wishes from the USA.
hey love thank you for putting this out there. I have struggled to find anyone with our type of epilepsy. I am extremely sick with nausea and vomiting after mine. Medication resistant and looking at surgery soon. any videos would be welcome. Best wishes from Australia xx
Great video Annie. I think people always assume that a seizure is always a grand mall (name changing really helped the situation 😕). Your seizures seem like mine to an extent, deja vu, a second maybe two to get to safety if possible, I always collapse, even if seated I will usually wake on the floor. I think explaining that the types of seizure, even if categorised together, can have so many and various manifestations. I didn't understand, I still don't...my seizures have changed over time...I just think that it would be great for people just to understand that seizures are SO varied from person to person and not assuming someone is crazy or drunk if "acting weirdly" would help us folk so, so much. Just a suggestion. It's not as if I know all the manifestations either...but epilepsy is more than an episode of some TV medical drama! Any exposure would be great. Think you are fabulous. Keep going Annie!
Thank you for sharing ❤️🙏🏻 I found books like Brainsaver by Anthony William so helpful and read so many healing stories online. Scientists now confirms aluminum in braintissue rising and especially high in epilepsy etc. After six months with heavy metal detox smoothie and great tools and i have had my first seizurefree month in over a year 🙏🏻🌟
Hi Joanna, this is so lovely and inspiring to hear, I'm so happy for you❤! My daughter has just been diagnosed with simple focal seizures so I'm buying the book you mention. Looking at reviews it seems an excellent source of information. Hope you don't mind me asking what other tools have you used to help your condition? BTW my daughter is in her mid 20's so we can look at any information you give together, I just want to help her in any way I can! Thank you. x
@@iamenough6562 I hope you find relief and something to make it easier. Stopping caffeine, aspartame, MSG glutamate like artificial/"natural" flavouring and maltodextrin etc. Using supplements from vimergy are very helpful to me (high quality brand without additives) like B12 (with methylcobalamin plus Adenosylcobalamin) and Lemon Balm is very calming to the nervoussystem. Body tends to use up alot of b12 after seizure or stress according to A.W. Dr Bradley Nelson's book The Body Code and his method is also amazing (as emotion code) but body code goes deeper into aluminum, toxins too. I found out 50% of my seizures are due to mold etc 🤯 its a great combination with conventional medicine 🙏🏻❤️
@ 🙏 thank you so much for your kind reply, will pass this information on to my daughter and will buy that other book. Supplement B12 depletion after a seizure totally makes sense, will get this also. When you mention mold, where does that come from, from within, something we eat or external such as walls etc?
@ When you mention conventional medicine, what have you been prescribed and has this helped you? My daughter has been prescribed Lamotrigine, this was only Wednesday but we wanted to do some more research before she started taking them.
Same as my dog , he knows something is up and he will be right by my side and or sitting on my lap and that’s when I know he knows something is up so it gives me time to get my emergency med etc or phone someone . My seizures are hormonal
I’ve had epilepsy for over 20yrs and I’m very lucky that I’ve not had any full blown seizures since being diagnosed with it I only have focal epilepsy what is Also known as absences what are the other two forms of epilepsy that you have and one reason I don’t really like to go out myself is just incase I injured myself which thankfully I haven’t
Sm 49 yrs now, i hv been dealing with night epillepsy now abot 28 yrs, sometimes i dont hv it for yrs sometines 2 times in a year, my hubby is always present, i dint sleep outside, sm in ivf injection and throid tablet, i think it triger it 2weeks intervals
Your content quality is very good. But you are not getting enough views. It is because of the lacking of the SEO of your video. Your video SEO score is very low. You should do the SEO of your videos to get more views. If you do the SEO of your videos, I hope you will get more views and subscriber.
do you know about 🟢 toxic mold & micotoxins? ppl with temporal lobe epilepsy⚡️ have to be careful not to inhale mold/micotoxins. you can check many videos of 🟢toxic mold 🟢CIRS＝chronic inflammatory response syndrome 🟢mold/micotoxins chronic bodily inflammation is making huge issues😭
Congrats, You are doing so well. 😊🎉
I found Your video, because I watched epilepsy details when "new bothering symptomes arive", having it, too. I always try focuse on passing out stage, because I didn't wanna sound crazy or antisocial, like at night extreme fear, sleep paralysis, waking up with nusea,more drained than when You went sleeping, electroshocks feelings going through limbs, double, or swimming vision especially by evenings, halos around glowing objects at night,
having "intense night fear", while laying in bed, always same scenario, feeling as if cover went up my head, when unable to move, once even thought, like someone was sitting next to me. I knew, things were not real and after not normal, seeing horror-heavy things under lids as kid, at some nights but I just learned to control it, when could. No telling adults, as it happened mostly at night. Then there was this "zoning out" feeling when I was teen and ending falling in love with psychopathology, trying to get, what it can be, that is with me, age 16. And at time, closest I seen were clinical books about psychopaths. Lack of emotions, constantly trying to keep myself excited, reckless as unable control impulses and with some not too noble behaviours. But then, I still was unable to focuse at times, kept zoning out, even if trying to "stay", woke with tongue bitten, head bumps, or splits, or sudden rush of feelings, that made me even further feel like evil being. Plus migrenes, from which first failed diagnosis started.
When I was 10 it started gradually with those "weird feelings", migrenes, so long before diagnosed at age 27, I was ammened to keep silent, so nobody thought, I am crazy. 😶
I fully get You. I told people at work, I may zone out, or forget what's going, even if gladly for me MAJORITY of above happens mostly morning and at night. But now I am having heartache each night and morning last 2 weeks, coincidently exactly, after series of infections, last passing out and (try to)sleep(4am)paralysis.
And as my brother died of epilepsy age 31, through he was having generalized tonic-clonic seizures, I am scared of one thing and that is SUDEP. 😅
Even if most likely, as mine are only complex at most, I should not fear it, I know genetic risk is there(which is irony, because aside us two, nobody in both families had them, too), which not helps, even with all my logic thinking.
But I agree with You, about focusing on positives. ❤
You talked, how You lost driving licence, when diagnosed. I almost lost job, ironically working at hospital, because neurologist(well three I try to talk to, even ones I know in sum) refused to sign me "work at height" ability for periodic examinations, because we have LADDER at reception. So now, after two weeks of sending me to forced health care leave, when they innitially tried to change my position, now they moved me, as my boss insisted on having me back... With one detail. My years OLDER colegues now have to get me files above my reach. We started preparing fields for a day, but emergency cases, or phone data settings, I need to ask others to get it for me, which always feel ridiculous...and humiliating, being like not really self dependant. 😅
BUT I can work. I live pretty normally(thanks for app setting clue! Life changer for ditzy like me).
Only problem is my hypergraphia, most likely. But it's probably more others problem, than mine.
I am angry at myself, I felt too forgetful to go with my dream of studing psychopathology, but I got job, no generalized seizures and aside evening sucking, I know, there is so many people, who can't even leave home...
Lets enjoy our (lets hope) controled epilepsy lives. ❤️✌️
Hello!! It's good to see your video about Epilespy. I've seen previous ones you've done and gosh, I just totally relate to every bit of what you go through. I'm glad you're thinking of making more videos. What else to talk about? Firstly, it's good to hear about what your episodes are like. I also find it SO hard to describe what a focal seizure feels like. It's good to hear what other folks do to help these pass by. Do you try to follow any sort of diet? Avoid any foods? Any certain triggers you notice?
Thanks for what you're doing! Take care!! ♥
Great ideas...totally agree!
Thank you for posting this. Epilepsy affects less than 2% of the population so it can be difficult to find someone to discuss our episodes with. I've only had 1 grand mal and have been fairly well controlled with medication, but still have focal aware seizures once or twice a week and have focal impaired seizures a couple of times a year. I recently caught a seizure on my dash cam as I was trying to pull into a parking spot in a panic as my deja vu was escalating rapidly. I safely parked and after a few minutes was able to drive home. It was weird to see myself during an episode and the obvious confusion directly afterwards. But I, like you, refuse to slow down or let my episodes define how I live my life. Best wishes from the USA.
I feel emotional thank you for your post , you just discrbe exsacly what happen had serval many today ❤
hey love thank you for putting this out there. I have struggled to find anyone with our type of epilepsy. I am extremely sick with nausea and vomiting after mine. Medication resistant and looking at surgery soon. any videos would be welcome. Best wishes from Australia xx
Welcome back Annie .When I watched a previous video of you having a focal seizure I thought " that's me " .
Great video Annie. I think people always assume that a seizure is always a grand mall (name changing really helped the situation 😕). Your seizures seem like mine to an extent, deja vu, a second maybe two to get to safety if possible, I always collapse, even if seated I will usually wake on the floor. I think explaining that the types of seizure, even if categorised together, can have so many and various manifestations. I didn't understand, I still don't...my seizures have changed over time...I just think that it would be great for people just to understand that seizures are SO varied from person to person and not assuming someone is crazy or drunk if "acting weirdly" would help us folk so, so much. Just a suggestion. It's not as if I know all the manifestations either...but epilepsy is more than an episode of some TV medical drama! Any exposure would be great. Think you are fabulous. Keep going Annie!
Thank you for sharing ❤️🙏🏻
I found books like Brainsaver by Anthony William so helpful and read so many healing stories online. Scientists now confirms aluminum in braintissue rising and especially high in epilepsy etc. After six months with heavy metal detox smoothie and great tools and i have had my first seizurefree month in over a year 🙏🏻🌟
Hi Joanna, this is so lovely and inspiring to hear, I'm so happy for you❤! My daughter has just been diagnosed with simple focal seizures so I'm buying the book you mention. Looking at reviews it seems an excellent source of information. Hope you don't mind me asking what other tools have you used to help your condition? BTW my daughter is in her mid 20's so we can look at any information you give together, I just want to help her in any way I can! Thank you. x
@@iamenough6562 I hope you find relief and something to make it easier. Stopping caffeine, aspartame, MSG glutamate like artificial/"natural" flavouring and maltodextrin etc.
Using supplements from vimergy are very helpful to me (high quality brand without additives) like B12 (with methylcobalamin plus Adenosylcobalamin) and Lemon Balm is very calming to the nervoussystem. Body tends to use up alot of b12 after seizure or stress according to A.W.
Dr Bradley Nelson's book The Body Code and his method is also amazing (as emotion code) but body code goes deeper into aluminum, toxins too. I found out 50% of my seizures are due to mold etc 🤯 its a great combination with conventional medicine 🙏🏻❤️
@ 🙏 thank you so much for your kind reply, will pass this information on to my daughter and will buy that other book. Supplement B12 depletion after a seizure totally makes sense, will get this also. When you mention mold, where does that come from, from within, something we eat or external such as walls etc?
@ When you mention conventional medicine, what have you been prescribed and has this helped you? My daughter has been prescribed Lamotrigine, this was only Wednesday but we wanted to do some more research before she started taking them.
Same as my dog , he knows something is up and he will be right by my side and or sitting on my lap and that’s when I know he knows something is up so it gives me time to get my emergency med etc or phone someone . My seizures are hormonal
You have wow eyes and a well cuddly dog
I've been experience in the same thing same symptoms scary
I’ve had epilepsy for over 20yrs and I’m very lucky that I’ve not had any full blown seizures since being diagnosed with it I only have focal epilepsy what is Also known as absences what are the other two forms of epilepsy that you have and one reason I don’t really like to go out myself is just incase I injured myself which thankfully I haven’t
I am very scares to tell my coworkers because I don’t want to be pushed away how should I tell them
Im in the us but there are dogs that can be trained for your form
Mine is maining during my sleep rarely duribg the day but always unconcious
Sm 49 yrs now, i hv been dealing with night epillepsy now abot 28 yrs, sometimes i dont hv it for yrs sometines 2 times in a year, my hubby is always present, i dint sleep outside, sm in ivf injection and throid tablet, i think it triger it 2weeks intervals
With what u are explaining, u are aware somtimes
I hv done brain check they say not much
I am From Bangladesh
Your content quality is very good. But you are not getting enough views. It is because of the lacking of the SEO of your video. Your video SEO score is very low. You should do the SEO of your videos to get more views. If you do the SEO of your videos, I hope you will get more views and subscriber.
do you know about
🟢 toxic mold
&
micotoxins?
ppl with temporal lobe epilepsy⚡️ have to be careful not to inhale mold/micotoxins.
you can check many videos of
🟢toxic mold
🟢CIRS＝chronic inflammatory response syndrome
🟢mold/micotoxins
chronic bodily inflammation is making huge issues😭