The Human Mold August 6, 2013 video Still relevant today in 2024. Be healthy! Sincerely, Aleth Jimenez Sponsor of the Neighborhood All-Stars In honor and in memory of Wayne Newton's late music teacher nicknamed Kimo.❤ P.S. I love you Marisol! You are a very strong and wonderful woman! God bless you.
💚 I understand at least 75% of what you described.. ive had late stage /chronic Lyme disease for likely 20 years .. diagnosed in 2017 after years of trying to find out what was wrong with my body... sick exhausted, dizzy and tired ... God bless you Marisol for sharing your experience with us!!!
Marisol and her husband Rob are amazing how they have worked through this disease. I will pray for Marisol and their family and wellbeing. peace and love
I recently learned about Lyme. Sadly, I was not educated about ticks and lyme, because I live in San Diego California and it's not something we are worried about. I was bitten by what I thought was a black small "spider" before I turned 20. I had a bullseye rash on my leg and that evening, I was so sick. It felt like the worse flu ever. It's now been 24 years and until a month ago, I read about the red bulls eye rash meaning lyme. I put two and two together and my health, or lack of it finally made sense. The headaches, joint pain, the weakness in my legs and arms, vision problems, depression, bipolar and the absolute fatigue all started after that bite. I was diagnosed with fibro before I turned 30. I had to stop working and it has been a rollercoaster ride with drs and meds. Thank you marisol for letting people know about this. Thank you for sharing your experience. Thank you for being so open and trying to help with this horrible disease. I have yet to do anything specific for its because I am getting different opinions and I am honestly scared. I wonder if it's too late for antibiotics. I wonder if I could take the side effects of them. We shall see what happens and what I decide. I will keep spreading awareness of this disease and hopefully, one day there will be a cure! Lots of love and I hope you find a balance and are able to keep yourself on highs and when there is lows, you remember that your suffering isn't in vain. You are a voice for a cure! Love to your caretakers. We know it's hard on them also. Never doubt their love and marisol, you are worth it.
I am so sorry to hear your story. I have fibromyalgia and can relate to many of your symptoms, especially abot " the air attacking ". When the nerves become sensitized to the environment; air, light, touch, and temperature become painful. I have found some things to help are: lotions/creams with lidocaine (a topical analgesic) and a portable TENS unit are very helpful and both can be found at Walmart. Please keep us posted on your progress.
Always been a fan of Matchbox20. I was listening to Unwell one of my favorite songs yesterday. I started crying and remembered saying that this was dedicated to robs wife. I decided look her up. Very brave lady as I struggle with my own health issues. I wish her the Best 🤟🤟
I am sorry you are having to deal with this awful disease. But, you are so lucky to have a supportive family. You are a fighter. Hang in there girl...❤
I'm battling Chronic Lyme Disease and Co Infections and I a relate to most everything you have just said. Thank you for bringing awareness for so many to understand what we all are going through in our battles. Sending love and prayers for you!! 💪💚💖🙏💚
I know EXACTLY what you feel. Pain 24/7 No one can imagine, BUT just know that when you have decent days, the good you do is going so far. We all have a purpose and Angel's is yours. As ASPCA is mine. GOD bless
I am so sorry for what you are going through. I can't even imagine how you cope. And, not being able to read a book, magazine, etc? Reading is my escape. Be strong brave woman. 🥰
So beautiful for t trying to help others as a person with fibromyalgia which people don't put too much emphasis on I totally understand and you know I mean I don't know exactly I mean I don't know exactly what you've gone through but I can tell you what fibromyalgia is real and it does affect so much of yourself thank you for putting that out there
I just had the pleasure of watching Robs "Live at the Bud Light Dive Bar tour" a few days back, it took me back so many years to when I saw Match Box 20 in Saskatoon, always a big fan! I knew a few years ago that you were battling the monster known as Lyme disease, a similar fight myself with MS. Now I hesitate to bring it up as I know what it's like to have unsolicited suggestions for help its just when I first found out of your illness was the same time I found out and tried something and the story of the drug itself would take hours to explain. I tried it myself, it was amazing but short-lived after a month nothing but it works for many others, it is known as LDN (low-dose naltrexone) and has gained attention pretty much exclusively through the internet. I will end it there, like I say I know what it's like to have others playing layman Dr. To you and Rob both thank you, you both inspire! Much love, Jeff
I'm so sorry you have had to go through all that you have. You are so courageous and an inspiration. I truly hope you can find greater healing and peace.❤❤❤
🥀This is something I've never heard about but I'm so sorry that you have to suffer from this. You care enough to share this condition with us your a wonderful person. Sometimes I feel some of these symptoms and it's so involved with certain spells I have similar. I promise to you that I Pray for all my TH-cam people every night and day and I'll keep you & Rob in my Prayers always. God Bless you and keep safe, please keep your Faith and everything you can do to stay happy and comfortable. I love you Guy's so much 🥀☝️🥀
"Can't sit outside... because it feels like the air itself is attacking" This is the classic description from Lyme patients who are being exposed to toxic mold in their environment. Yes, it can be outdoors. Either blowing from a sick building or a moldy sewer system.
Marisol, I pray that some how, some way and some time soon a cure can be found to aleve you of, if not all, then at least most of your health issues. You are a beautiful woman (easy to see why Rob would fall in love with you). God bless you mija. Don't give up. You've got a good man who loves you very much.
You so beautiful and so strong. I hope and pray for more better days ahead. God bless you for all you have shown us. I send my love, my strength, and most of all my support. I wish there was a way I could take all your pain away, even if that meant that I would to take it all. For you and your husband i would do it with great honor.
I have lost most of my sight over 30 years. We think it is from a root canal. We waited 873 days to get married and 6 weeks before we got married after I lost my left eye and had it removed same year . I also have no depth perception. They also thought it was lime disease, MS and after 20t years still no decisive answer even went to the NIH in Washington. I am light sensitive also some people don’t understand why the sunglasses (snob) Fell into a deep depression for 10 years and became addicted to oxy and sleeping pills given to me by doctors . I know the pain you’re feeling, the anxiety you feel 😢because I feel it every day too. I was able to make it through 2 rehabs the 2nd successfully and put my self in a facility where I could get better 🎉 You are an amazing and an 🎉 inspirational and your loving husband is by your side like mine. in /97 I came down with a different infection in the other eye and have lost most of my sight 😢 I was also trying to raise my children with my husband. Your husbands music has absolutely ❤saved me! Along with Bryan Adams and Bon Jovi I don’t think I would still be here. I have seen Bryan Adams 4 times now from Hamilton to Toronto, but never have seen MB20. He’s very motivated in keeping spirits up when we just need listen to someone to keep your head above water 😊 That’s what his music does for people like me 😂❤. 😮 Thanks to both of you ❤for helping us cope every day. I am coming to see the ❤❤CONCERT ❤❤in Toronto in August. Hope to see you there lol Thinking seriously of bringing my seeing eye dog a golden lab named Whitney,😊😊😊 my third ❤❤ I’ll be the one for sure singing out of tune 😂 but don’t care ! ❤❤❤ love Kerry and my rescue cat Sending ❤❤ hoping you can find some peace and heal!
You are an amazing lady Marisol and I sincerely hope that someone, somewhere, someday can really cure you. I had a frozen shoulder and know how debilitating it can be...but you have that and so much more to deal with. Wishing you only good things.xx
God bless Mari and Rob Thomas. So sad. I am thankful to hear Rob Thomas so supportive. You can tell Rob is compassion through his song . Thank you for educated about this disease
I have a lot of the same issues as you. I have seen dr Padula a few times. He prescribed me prism glasses that has helped me somewhat. Although as the years go by my vision is getting worse as is my anxiety and panic attacks. I can barely drive anymore because I feel like things are overwhelming and blurry.
I understand what you're going through I mean it's not exactly the same thing but I can tell you I've been going through a lot of stuff and thank you for putting this out there
Yes a cure or effective treatment. You know something to help. As my 19 yo son won't leave the house. You know cause he got the imaginary let diseaeaer. Or wnnt get a job disease. But marisolr gots it real bad...chicken pot chicken pot pie.
Go to the Genesis center, look them up on Google. They have a new treatment called SOT. I promise you this is the answer God bless you and please take me serious when I tell you to go with them
Thank you for your story, I am Also dealing with Chronic lyme and many other co infections, don’t see any end to my problems. So hard to find the doctors to help or even believe or support. I’m sorry for all going through this but so thankful for the voice, the voice of truth about this devastating illness. Maybe the future will provide proper testing to allow quick treatment. I don’t see myself seeing that.
Thank you Mari. I’ve always been a fan of matchbox 20 and Rob but having Lyme disease and Morgellons disease also from the same tick bite. I’ve become an even bigger fan of Mari. Having celebrity’s to share in awareness is helpful. The CDC has blood on their hands and have denied Lyme diagnosis for many. Many of us like myself have been denied treatments through insurance companies even with positive Igenex lab results forced to self treat. When folks who can afford treatments and good doctors share with those who can’t it’s a great blessing. I was told by an LLMD once that I had convergence eye issues I will have to revisit what to try to do with that.
Ms. Thomas, you are so lovely and so articulate it was a pleasure to here you speak about your challenges. I am a TBI survivor and know first hand how difficult it can be to try to explain why I am the way I am. When you look so normal and healthy on the outside people think you make things up. When I found the right support and Nurological Doctors knowledge became my lifeboat and life is amazing for me now. I Pray you find the right energy and support so that you feel whole again. Peace to you and those you love.
It's hard to put into words how much Mari is loved by Rob's fans. She's such a sweet woman and when she's been at her lowest we've felt a small portion of the pain that her and Rob felt. I hope she's able to overcome this with the best doctors and the love of her husband, family, friends and fans.
@@matthewsmith8310 you have no clue how horrible this is ... obviously not even you deserve this ..honestly before today I have not heard a person speak with such bravery to a crowd of people who swear OUR condition doesn't exist... its a prison
I haven't been able to read either and I am just so sorry and I'm so sorry that you're going through this and I'm going through a similar things but thank you so much for putting this out there
Marisol, no tengo Lyme, tengo otra cosa muy muy muy menor que aun así afecta mi vida neurológicamente cuando a parece. Afecta mi oido y ojo derecho y con eso mi movilidad y mi humor y todo mi mundo. El nivel de fortaleza que deben tener los pacientes de Lyme para lidiar con lo que lidian debe ser infinito porque si a mi lo mío chiquito me afecta, qué será con una situación tan compleja como el Lyme. Abrazos, afecto, toda la energía para encontrar más y más opciones de calidad de vida para ustedes
A friend has has Lyme’s disease with all sorts of other thing’s.She had chelation therapy. It helps her tremendously. She also receives all sorts of other therapy. I will tell you as a person with chronic migraines I experience many thing’s you do. Not everything however NAD+ really helps. Please look into it! Blessing’s of love & healing light!
Thank you so much for telling us about this and I have fibromyalgia and it it also is a neurological problem and I'm so happy that somebody like you or anybody would talk about this stuff because it's really hard to talk about 5 mi to also is a really is a very neurological thing I've been around you is also a very hard problem fibromyalgia people don't give it much Credence they think it's like something somebody is made up in their mind or something and it's not it's just something that is in a neurological problem and you know as somebody that works as an RN for 25 years and worked in hospitals for 25 years but then it just got worse and worse recently and I appreciate the fact that you're talking about this because it's just a really really anything that is neurological and then you know we love our animals so much and our family I mean you know I've been married for 34 years and I love my husband very much and it's caused extreme on our relationship and you know he has his other reasons for that too I mean he has his problems that problems that have really also put a strain on our relationship but I'm just trying to say like thank you for talking about this and I'm I just want to keep going back to watching your video and I appreciate so much for what you've done thank you
To Marisol n to all that going through this, all prayers n love, the ONLY answer is JESUS.... And JESUS went about all the cities and the villages, teaching in their synagogues, and preaching the gospel of the kingdom, and HEALING ALL MANNER of DISEASE and ALL MANNER of SICKNESS. (Mathew 9:35) And behold, two blind men sitting by the way side, when they HEARD that JESUS was passing by, CRIED OUT, saying, LORD, have MERCY on us, thou SON of DAVID. And the multitude rebuked them, that they should hold their peace: BUT they CRIED OUT the MORE, saying, LORD, have MERCY on us, thou son of David. And Jesus stood still, and called them, and said, What will ye that I should do unto you? They say unto him, Lord, that our eyes may be opened. And JESUS, being MOVED with COMPASSION, touched their eyes; and STRAIGHTWAY they RECEIVED their sight, and FOLLOWED him. (Mathew 20:29-34) And all the multitude sought to TOUCH him; for POWER came forth FROM HIM, and HEALED them ALL (Luke 6:19) JESUS CHRIST is the SAME YESTERDAY and TODAY, and FOREVER. (Hebrews13:8)
And also yes I was introduced to a doctor who actually just didn't discount it he told me yes it is a real problem and yes it is real and that's something that's so important
Hello everybody, ive been living with lyme for over 20 years now. For the last 3 weeks ive been on a ketogenic diet and im taking MMS everyday. All my symptoms have been rapidly improving. MMS is very cheap and worth trying in my oppinion, it is however a harsh substance to take and you relly have to stay consistent. There are people who got rid of there infection in sometimes several months after suffering for years so i hope i can join the club soon. All the info you need on this controversial medicine is on the web. Dont give up and good luck on your journy.
Doctors have run blood tests so many times on me and still can't find out what's wrong.. My parents are both nurses and they said they need to test for Lyme disease.. honestly I don't care if it is I just want to know what is causing this extreme pain. I can't keep living like this
I was misdiagnosed in 2008 when Lyme carditis set in, not until 2021 was I properly treated for two long years. What’s left is a damaged body and a worse mind. Most people have no idea what it’s like to be diseased until the end of life, we’re apparently special.
Thank you❣️💚 I have the same symptoms.. due to that fricking sh*t. You described it very well.. I live in Sweden and it doesnt exist here..🙄. Thank you❣️💚 #Life stolen
You are so darn cute & well spoken 👏 I was sick all my life but didn't know it until I spoke to a Russian scientist who worked the chernobyle incident she believes i got bit in pa i was always in the woods, camping etc I was a gym rat, vegetarian, non smoker Water drinker now I've been home/bedbound for 12 yrs I was Bit 2005 diagnosed 2009 when my body hit a wall I had to sell my successful dog 🐕 grooming business I describe it as having the worst hangover w/ excruciating bone, joint & muscle pain a barely walking toxic waste dump I've seen over 40 doctors both conventional and naturopathic in fl and pa Mostly dismissed or the ones who tried to help told me I was too complex I now have around 25 mainly debilitating, chronic, rare, no treatment illnesses I am in need of palliative care but am having a hard time getting The rare diagnoses Of the 2 types of cysts growing in & into my spine / rare cancer & autoimmune can't eat Can't sleep when I do there is 0 REM sleep I'm not a hypochondriac My drive to get well is over but the damage done I see the doctors notes Hypochondriac, tangent Again doing this alone I'm just existing in excruciating pain my cognitive issues are getting worse I'm at a 10-20 pct quality of life but I look "fine " my drive now is to find just a little bit of relief The Medical field As well as the insurance/big pharma have let the lyme community down And the CDC well they're our nemesis Thank God for support groups and for the celebrities that have used their platform to educate how devastating this illness is I've been hiding / embarrassed that I can no longer walk short distances without being out of breath I'm held captive in my body No rhyme or reason I never know how bad its gonna be when I open my eyes I don't have "good" days I have ok or not as bad days And I never know when the window will close so I try to do as much as I can once that window is shut I can barely move and its back to bed Ok that's just a snippet of how lyme took my life away from me
Sorry to hear of all you going through. Dr. Shiva on YT recommends Moringa. His grandma was a healer in India. I pray to Jesus for you. Be blessed and well.
Have you tried looking into long term water only fasting? Just an idea. I too suffer from long term chronic illness. May God lead you to Him and help you offer up your pain for the good of others:+) God bless~
Add gluten free to your diet, no gluten, oats, barley, or rye. And be very strict with it. Also no soy or cow milk try coconut milk. I had dxd celiac disease in 2010 then Lyme in 2015. Etc etc. It is hard.
I can't Stand it that when I talk and move around, i get very out of breath and my head to shoulders get seriously fatigued and i can't think straight. I'm mostly couchbound still and it's been about a decade. I just don't have nuerological Lyme, I have candidas, mold and some ebv and my immune system is weak. I can stand but not for long because my heart tachycardia palpation gers worse and my upper body gets in a hypertension mode and does not go away.
I'm so sorry that you're going through this I am so sorry nobody deserves this nobody deserves this kind of stuff and sometimes this stuff happens and I'm so sorry for you I'm so sorry for you again I suffer with some things I have some discs in my neck and my back I have her back but also I have fibromyalgia and again people don't you don't understand what 5 miles is but it's actually a neurological problems just sorry I didn't mean to sometimes when I talk and text it doesn't come out right but I'm saying fibromyalgia is a real thing you know and it's a real thing and I've been suffering with it for many years I was an RN for 25 years in hospitals and I pushed and pulled patients many many times and I had some disc problems but The farmhouse is something differentnot our mouths I didn't mean to say that I didn't mean to say farm farmhouse or any of that I meant to say fibromyalgia is a real real thing and it has to do also with neurological stuff you know and it's like I'm so sorry that you're going through this that's all I'm trying to say and Rob Thomas and you have always been somebody that I really just loved and admired and I'm so sorry that you're going through that I just want to say I hope that you get this message I'm very very sorry that you're going through this I don't know if you'll get this type of message or anything like that but I'm just trying to tell you I'm so sorry that you're going through that you seem like such a beautiful lovely compassionate person like I've always been very very compassionate you seem like such a sweet sweet woman and I'm so sorry that you're going through thisand I'm sure many many other people feel the same way and I'm so sorry I mean like I'm so sorry that you're going through this is the way you described it and the way you describe it is like it's exactly you know not exactly not exactly not what I'm going through exactly but I'm saying when we're going through something hard it's really really tough and I just wish you all the best and I love you and I just God bless you Jesus loves you and you are amazing and just keep trying to go and just enjoy your dogs and because animals my cats have saved my life I mean I've always loved dogs my whole life but now I can't have been easier but believe it or not cats also they're so amazing they're so you know they're much like dogs they're very very very very very very I didn't mean to get off on a different subject I'm saying is I'm so sorry that you're going through this with the way you described it I just feel so bad for you and it'll get better I'm a woman woman who has a 31-year-old daughter and you know she goes through her own pain and things will get better sweetheart
I'm sorry if my I was talking and texting it doesn't come out right sometimes but I'm just trying to say thank you for telling us about your struggles and thank you very much
My cats have literally I've always been a cat and dog lover and all animals and all anything a little tiny things will never hurt anything like even in the end I don't like to even just a minute I will never want to even step I don't know I'm just saying like you know it's like you showed a lot of people that need that and I appreciate that
@@sarah29880 Actually even if you catch it early. 10-15% go on to have disseminated lyme aka neuro / post treatment chronic lyme. (Especially if you are undertreated, which seems to be the current protocol.)
I have something similar to this but I don't think it's as bad as yours. It gets real bad and really messed my life up, but I believe it has something to do with a jaw injury from wrestling like 20 years ago, and it seems to be very irritated by caffeine and some other diuretics. I have been extensively studying it and based on your symptoms I can give you 3 pieces of advice. 1) quit caffeine. completely. No coffee, tea, or even chocolate if necessary. Not only caffeine irritates chronic illnesses like this, but other things the big companies don't want you knowing about such as theobromine and theophylline so best to just quit all this stuff. Also you look like you're on some sort of diet, but if not, you should really do an elimination diet. My pain flares based on what I eat. I haven't cracked the code completely but I know certain stuff really bothers me. Blood sugar can also play into all this, so exercise is a must. Even when in a lot of pain you must exercise 3-4 times per week (i'm sure you already do but js). You seem to have nerve damage and most likely the only way to repair this is either insanely intense exercise like 4+ times per week, or stem cells. IDK if you have looked into stem cells yet but I know they can repair "permanent" damage. Unfortunately I cannot afford this option but being a celebrity of sorts you most likely can.
My spacial awareness and all this shit is effecting me ..et me put on some make up and sir in my million dollar condo and say my pudtulure awareness us th at I won't take it it up the aas anymore and my shoulders hurt and I I get the electortruding pain in my temples to my taint....how bout t?
God bless you, lots and lots of prayers for you my friend.
My son was misdiagnosed at a young age. A doctor finally did a Lyme test and it was positive. Thank God he's ok. My prayers are with you.
The Human Mold August 6, 2013 video
Still relevant today in 2024.
Be healthy!
Sincerely, Aleth Jimenez
Sponsor of the Neighborhood All-Stars
In honor and in memory of Wayne Newton's late music teacher nicknamed Kimo.❤
P.S. I love you Marisol!
You are a very strong and wonderful woman!
God bless you.
💚 I understand at least 75% of what you described.. ive had late stage /chronic Lyme disease for likely 20 years .. diagnosed in 2017 after years of trying to find out what was wrong with my body... sick exhausted, dizzy and tired ... God bless you Marisol for sharing your experience with us!!!
Marisol and her husband Rob are amazing how they have worked through this disease. I will pray for Marisol and their family and wellbeing. peace and love
👍🙏💝Bless you. Thank you.
I recently learned about Lyme. Sadly, I was not educated about ticks and lyme, because I live in San Diego California and it's not something we are worried about. I was bitten by what I thought was a black small "spider" before I turned 20. I had a bullseye rash on my leg and that evening, I was so sick. It felt like the worse flu ever. It's now been 24 years and until a month ago, I read about the red bulls eye rash meaning lyme. I put two and two together and my health, or lack of it finally made sense. The headaches, joint pain, the weakness in my legs and arms, vision problems, depression, bipolar and the absolute fatigue all started after that bite. I was diagnosed with fibro before I turned 30. I had to stop working and it has been a rollercoaster ride with drs and meds. Thank you marisol for letting people know about this. Thank you for sharing your experience. Thank you for being so open and trying to help with this horrible disease. I have yet to do anything specific for its because I am getting different opinions and I am honestly scared. I wonder if it's too late for antibiotics. I wonder if I could take the side effects of them. We shall see what happens and what I decide. I will keep spreading awareness of this disease and hopefully, one day there will be a cure! Lots of love and I hope you find a balance and are able to keep yourself on highs and when there is lows, you remember that your suffering isn't in vain. You are a voice for a cure! Love to your caretakers. We know it's hard on them also. Never doubt their love and marisol, you are worth it.
I am so sorry to hear your story. I have fibromyalgia and can relate to many of your symptoms, especially abot " the air attacking ". When the nerves become sensitized to the environment; air, light, touch, and temperature become painful.
I have found some things to help are: lotions/creams with lidocaine (a topical analgesic) and a portable TENS unit are very helpful and both can be found at Walmart. Please keep us posted on your progress.
You’re a very brave lady. Sending good thoughts and prayers your way.
God bless you! You and Rob will be in my prayers!
Always been a fan of Matchbox20. I was listening to Unwell one of my favorite songs yesterday. I started crying and remembered saying that this was dedicated to robs wife. I decided look her up. Very brave lady as I struggle with my own health issues. I wish her the Best 🤟🤟
I am with you girl? 💖💖Never heard of this disease but I'm still be with you!😊
That’s sucks this happened to you. Thank you for sharing your experience for others. Please get well.
Thank you for speaking up and wanting to help others. We need change! It's a devastating disease to live with.
I am sorry you are having to deal with this awful disease. But, you are so lucky to have a supportive family. You are a fighter. Hang in there girl...❤
I'm battling Chronic Lyme Disease and Co Infections and I a relate to most everything you have just said. Thank you for bringing awareness for so many to understand what we all are going through in our battles. Sending love and prayers for you!! 💪💚💖🙏💚
Thank you for raising awareness! I suffered for 20 yrs with neuro-lyme before being diagnosed.
I know EXACTLY what you feel. Pain 24/7
No one can imagine, BUT just know that when you have decent days, the good you do is going so far. We all have a purpose and Angel's is yours. As ASPCA is mine. GOD bless
I am so sorry for what you are going through. I can't even imagine how you cope. And, not being able to read a book, magazine, etc? Reading is my escape. Be strong brave woman. 🥰
So beautiful for t trying to help others as a person with fibromyalgia which people don't put too much emphasis on I totally understand and you know I mean I don't know exactly I mean I don't know exactly what you've gone through but I can tell you what fibromyalgia is real and it does affect so much of yourself thank you for putting that out there
I just had the pleasure of watching Robs "Live at the Bud Light Dive Bar tour" a few days back, it took me back so many years to when I saw Match Box 20 in Saskatoon, always a big fan! I knew a few years ago that you were battling the monster known as Lyme disease, a similar fight myself with MS. Now I hesitate to bring it up as I know what it's like to have unsolicited suggestions for help its just when I first found out of your illness was the same time I found out and tried something and the story of the drug itself would take hours to explain. I tried it myself, it was amazing but short-lived after a month nothing but it works for many others, it is known as LDN (low-dose naltrexone) and has gained attention pretty much exclusively through the internet. I will end it there, like I say I know what it's like to have others playing layman Dr. To you and Rob both thank you, you both inspire! Much love, Jeff
God Bless You young lady ,thank our loving father and the support of your family and husband !
I'm so sorry you have had to go through all that you have. You are so courageous and an inspiration. I truly hope you can find greater healing and peace.❤❤❤
🥀This is something I've never heard about but I'm so sorry that you have to suffer from this. You care enough to share this condition with us your a wonderful person. Sometimes I feel some of these symptoms and it's so involved with certain spells I have similar. I promise to you that I Pray for all my TH-cam people every night and day and I'll keep you & Rob in my Prayers always. God Bless you and keep safe, please keep your Faith and everything you can do to stay happy and comfortable. I love you Guy's so much 🥀☝️🥀
I have a very similar story. Thank you for sharing. It is my mission now to help others with Lyme, Mold and Autoimmune issues.
Sorry you have to go through this. Prayers are with you.🙏🙏
"Can't sit outside... because it feels like the air itself is attacking"
This is the classic description from Lyme patients who are being exposed to toxic mold in their environment.
Yes, it can be outdoors. Either blowing from a sick building or a moldy sewer system.
My daughter has struggled with Lymes disease. toxic mold and had Covid-19 . It breaks my heart to see her so ill..
Such courage just living everyday. ❤
Marisol, I pray that some how, some way and some time soon a cure can be found to aleve you of, if not all, then at least most of your health issues. You are a beautiful woman (easy to see why Rob would fall in love with you). God bless you mija. Don't give up. You've got a good man who loves you very much.
Mari you are so brave to talk like this about your conditions , stay strong , stay safe Lots OF LOVE FROM THE UK xxxx
You so beautiful and so strong. I hope and pray for more better days ahead. God bless you for all you have shown us. I send my love, my strength, and most of all my support. I wish there was a way I could take all your pain away, even if that meant that I would to take it all. For you and your husband i would do it with great honor.
I have lost most of my sight over 30 years. We think it is from a root canal. We waited 873 days to get married and 6 weeks before we got married after I lost my left eye and had it removed same year . I also have no depth perception. They also thought it was lime disease, MS and after 20t years still no decisive answer even went to the NIH in Washington. I am light sensitive also some people don’t understand why the sunglasses (snob) Fell into a deep depression for 10 years and became addicted to oxy and sleeping pills given to me by doctors . I know the pain you’re feeling, the anxiety you feel 😢because I feel it every day too.
I was able to make it through 2 rehabs the 2nd successfully and put my self in a facility where I could get better 🎉
You are an amazing and an 🎉 inspirational and your loving husband is by your side like mine.
in /97 I came down with a different infection in the other eye and have lost most of my sight 😢 I was also trying to raise my children with my husband. Your husbands music has absolutely ❤saved me! Along with Bryan Adams and Bon Jovi I don’t think I would still be here.
I have seen Bryan Adams 4 times now from Hamilton to Toronto, but never have seen MB20. He’s very motivated in keeping spirits up when we just need listen to someone to keep your head above water 😊 That’s what his music does for people like me 😂❤. 😮
Thanks to both of you ❤for helping us cope every day.
I am coming to see the ❤❤CONCERT ❤❤in Toronto in August. Hope to see you there lol
Thinking seriously of bringing my seeing eye dog a golden lab named Whitney,😊😊😊 my third ❤❤
I’ll be the one for sure singing out of tune 😂 but don’t care ! ❤❤❤ love Kerry and my rescue cat
Sending ❤❤ hoping you can find some peace and heal!
You are an amazing lady Marisol and I sincerely hope that someone, somewhere, someday can really cure you. I had a frozen shoulder and know how debilitating it can be...but you have that and so much more to deal with. Wishing you only good things.xx
God bless Mari and Rob Thomas. So sad. I am thankful to hear Rob Thomas so supportive. You can tell Rob is compassion through his song . Thank you for educated about this disease
I wish you the best. Your Husband is a legend almost like a god.
lol really dude
I have a lot of the same issues as you. I have seen dr Padula a few times. He prescribed me prism glasses that has helped me somewhat. Although as the years go by my vision is getting worse as is my anxiety and panic attacks. I can barely drive anymore because I feel like things are overwhelming and blurry.
I understand what you're going through I mean it's not exactly the same thing but I can tell you I've been going through a lot of stuff and thank you for putting this out there
this Lady has a beautiful soul I wish the best for her
apply permethrin to your pants and socks. it will last for a whole month (even after you wash the clothes) and will protect you from ticks.
have you read much about Visual Snow Syndrome?
Hi. Do you have Visual Snow?
I pray for you, my 19 yr old son and the very many Lyme warriors, that a cure, or even an effective treatment will be created soon.
Yes a cure or effective treatment. You know something to help. As my 19 yo son won't leave the house. You know cause he got the imaginary let diseaeaer. Or wnnt get a job disease. But marisolr gots it real bad...chicken pot chicken pot pie.
Go to the Genesis center, look them up on Google. They have a new treatment called SOT. I promise you this is the answer God bless you and please take me serious when I tell you to go with them
Your such a strong woman! Praying for you! You have such an awesome support system, Rob ❤️
hopefully she get better..i got stroke...so sad
Thank you for your story, I am Also dealing with Chronic lyme and many other co infections, don’t see any end to my problems. So hard to find the doctors to help or even believe or support. I’m sorry for all going through this but so thankful for the voice, the voice of truth about this devastating illness. Maybe the future will provide proper testing to allow quick treatment. I don’t see myself seeing that.
Bless you dear Marisol. You are a warrior like no other. 💝
Love you Mari! Mwah!
Love your tick bire
Thank you Mari. I’ve always been a fan of matchbox 20 and Rob but having Lyme disease and Morgellons disease also from the same tick bite. I’ve become an even bigger fan of Mari.
Having celebrity’s to share in awareness is helpful. The CDC has blood on their hands and have denied Lyme diagnosis for many. Many of us like myself have been denied treatments through insurance companies even with positive Igenex lab results forced to self treat. When folks who can afford treatments and good doctors share with those who can’t it’s a great blessing. I was told by an LLMD once that I had convergence eye issues I will have to revisit what to try to do with that.
Ginger Phoenix you got it right 👍
I got me acelebrity tick bite too! I am incapacitated except when I put on
My blue oxford
@@sarah29880 suckit
@@matthewsmith8310 STFU
@@matthewsmith8310 Why don't you strap on a ball gag.Your insults are weak.Shut up.
WoW, I'm so sorry to hear this. She is such a sweet woman. Maybe she needs a limpiesa. (
You got this. I know it’s hard. But you are an amazing woman who can come across this ocean and walk onto a sandbar. Lots of love 💗
Ms. Thomas, you are so lovely and so articulate it was a pleasure to here you speak about your challenges. I am a TBI survivor and know first hand how difficult it can be to try to explain why I am the way I am. When you look so normal and healthy on the outside people think you make things up. When I found the right support and Nurological Doctors knowledge became my lifeboat and life is amazing for me now.
I Pray you find the right energy and support so that you feel whole again. Peace to you and those you love.
So articulate. But if you are so fucked up how are yo so articulate. I gotta the earplugs. Soooooo funnt
Thqnk you so much for sharing your story. You are truly an inspiration, so strong.
It's hard to put into words how much Mari is loved by Rob's fans. She's such a sweet woman and when she's been at her lowest we've felt a small portion of the pain that her and Rob felt. I hope she's able to overcome this with the best doctors and the love of her husband, family, friends and fans.
You are an idiot
@@matthewsmith8310 The fuck is your problem? Your comments are rude.
@@matthewsmith8310 you have no clue how horrible this is ... obviously
not even you deserve this ..honestly
before today I have not heard a person speak with such bravery to a crowd of people who swear OUR condition doesn't exist... its a prison
Thank you Marisol for sharing your story. I wish the best for you and your family.
Bless you and your tick bite!!!
Love you so much I understand the exasperated neuro and lesions
I haven't been able to read either and I am just so sorry and I'm so sorry that you're going through this and I'm going through a similar things but thank you so much for putting this out there
Marisol, no tengo Lyme, tengo otra cosa muy muy muy menor que aun así afecta mi vida neurológicamente cuando a parece. Afecta mi oido y ojo derecho y con eso mi movilidad y mi humor y todo mi mundo. El nivel de fortaleza que deben tener los pacientes de Lyme para lidiar con lo que lidian debe ser infinito porque si a mi lo mío chiquito me afecta, qué será con una situación tan compleja como el Lyme. Abrazos, afecto, toda la energía para encontrar más y más opciones de calidad de vida para ustedes
Sending prayers
A friend has has Lyme’s disease with all sorts of other thing’s.She had chelation therapy. It helps her tremendously. She also receives all sorts of other therapy. I will tell you as a person with chronic migraines I experience many thing’s you do. Not everything however NAD+ really helps. Please look into it! Blessing’s of love & healing light!
Thank you so much for telling us about this and I have fibromyalgia and it it also is a neurological problem and I'm so happy that somebody like you or anybody would talk about this stuff because it's really hard to talk about 5 mi to also is a really is a very neurological thing I've been around you is also a very hard problem fibromyalgia people don't give it much Credence they think it's like something somebody is made up in their mind or something and it's not it's just something that is in a neurological problem and you know as somebody that works as an RN for 25 years and worked in hospitals for 25 years but then it just got worse and worse recently and I appreciate the fact that you're talking about this because it's just a really really anything that is neurological and then you know we love our animals so much and our family I mean you know I've been married for 34 years and I love my husband very much and it's caused extreme on our relationship and you know he has his other reasons for that too I mean he has his problems that problems that have really also put a strain on our relationship but I'm just trying to say like thank you for talking about this and I'm I just want to keep going back to watching your video and I appreciate so much for what you've done thank you
To Marisol n to all that going through this, all prayers n love, the ONLY answer is JESUS....
And JESUS went about all the cities and the villages, teaching in their synagogues, and preaching the gospel of the kingdom, and HEALING ALL MANNER of DISEASE and ALL MANNER of SICKNESS.
(Mathew 9:35)
And behold, two blind men sitting by the way side, when they HEARD that JESUS was passing by, CRIED OUT, saying, LORD, have MERCY on us, thou SON of DAVID. And the multitude rebuked them, that they should hold their peace: BUT they CRIED OUT the MORE, saying, LORD, have MERCY on us, thou son of David. And Jesus stood still, and called them, and said, What will ye that I should do unto you? They say unto him, Lord, that our eyes may be opened. And JESUS, being MOVED with COMPASSION, touched their eyes; and STRAIGHTWAY they RECEIVED their sight, and FOLLOWED him.
(Mathew 20:29-34)
And all the multitude sought to TOUCH him; for POWER came forth FROM HIM, and HEALED them ALL (Luke 6:19)
JESUS CHRIST is the SAME YESTERDAY and TODAY, and FOREVER. (Hebrews13:8)
I agree with you in prayer for Marisol and all these ppl disease to be healed in Jesus Name. Shalom.
very good post :)
And also yes I was introduced to a doctor who actually just didn't discount it he told me yes it is a real problem and yes it is real and that's something that's so important
Hello everybody, ive been living with lyme for over 20 years now. For the last 3 weeks ive been on a ketogenic diet and im taking MMS everyday. All my symptoms have been rapidly improving. MMS is very cheap and worth trying in my oppinion, it is however a harsh substance to take and you relly have to stay consistent. There are people who got rid of there infection in sometimes several months after suffering for years so i hope i can join the club soon. All the info you need on this controversial medicine is on the web. Dont give up and good luck on your journy.
Doctors have run blood tests so many times on me and still can't find out what's wrong.. My parents are both nurses and they said they need to test for Lyme disease.. honestly I don't care if it is I just want to know what is causing this extreme pain. I can't keep living like this
I was misdiagnosed in 2008 when Lyme carditis set in, not until 2021 was I properly treated for two long years. What’s left is a damaged body and a worse mind.
Most people have no idea what it’s like to be diseased until the end of life, we’re apparently special.
I’m having pain behind my eye and I have Lyme disease but optometrist says my eye seems ok but my vision is blurry always
Not just something that's in your head but is real
Thank you❣️💚 I have the same symptoms.. due to that fricking sh*t. You described it very well.. I live in Sweden and it doesnt exist here..🙄. Thank you❣️💚
#Life stolen
I too javealltjose symptoms. But I have a therapist who says don't get all bent out of shape
I’m so sorry 😢 you’re symptoms sound like mine 😢😢
So sorry you have to suffer. Don't give up.
Dang. I'm so so sorry. How awful. 😭
You are so darn cute & well spoken 👏
I was sick all my life but didn't know it until I spoke to a Russian scientist who worked the chernobyle incident she believes i got bit in pa i was always in the woods, camping etc
I was a gym rat, vegetarian, non smoker
Water drinker
now I've been home/bedbound for 12 yrs
I was Bit 2005 diagnosed 2009 when my body hit a wall I had to sell my successful dog 🐕 grooming business
I describe it as having the worst hangover w/ excruciating bone, joint & muscle pain a barely walking toxic waste dump
I've seen over 40 doctors both conventional and naturopathic in fl and pa
Mostly dismissed
or the ones who tried to help told me I was too complex
I now have around 25 mainly debilitating, chronic, rare, no treatment illnesses
I am in need of palliative care but am having a hard time getting
The rare diagnoses
Of the 2 types of cysts growing in & into my spine / rare cancer & autoimmune can't eat
Can't sleep when I do there is 0 REM sleep
I'm not a hypochondriac
My drive to get well is over but the damage done
I see the doctors notes
Hypochondriac, tangent
Again doing this alone
I'm just existing in excruciating pain my cognitive issues are getting worse
I'm at a 10-20 pct quality of life but I look "fine "
my drive now is to find just a little bit of relief
The Medical field
As well as the insurance/big pharma have let the lyme community down
And the CDC well they're our nemesis
Thank God for support groups and for the celebrities that have used their platform to educate how devastating this illness is
I've been hiding / embarrassed that I can no longer walk short distances without being out of breath
I'm held captive in my body
No rhyme or reason I never know how bad its gonna be when I open my eyes I don't have "good" days
I have ok or not as bad days
And I never know when the window will close
so I try to do as much as I can once that window is shut I can barely move and its back to bed
Ok that's just a snippet of how lyme took my life away from me
Sorry to hear of all you going through. Dr. Shiva on YT recommends Moringa. His grandma was a healer in India. I pray to Jesus for you. Be blessed and well.
I'm so sorry you are going through this. Don't give up, you're not alone. Sending love and prayers❤
Ain't neurological condition which I have had and I'm going to some other things but I thank you for putting this out there😅
Have you tried looking into long term water only fasting? Just an idea. I too suffer from long term chronic illness. May God lead you to Him and help you offer up your pain for the good of others:+) God bless~
She has the same symptoms as me it’s horrible my ears have dozen of crazy painful ear symptoms vision everything!!!
Pray a novena to St Joseph. He can fix anything.
Sometimes I got this and I got that bc a tick bit me. I know better u got the tick bite real bad
Add gluten free to your diet, no gluten, oats, barley, or rye. And be very strict with it. Also no soy or cow milk try coconut milk. I had dxd celiac disease in 2010 then Lyme in 2015. Etc etc. It is hard.
That sounds like lupus, an autoinmune disease too
She's beautiful ❤
I can't Stand it that when I talk and move around, i get very out of breath and my head to shoulders get seriously fatigued and i can't think straight. I'm mostly couchbound still and it's been about a decade. I just don't have nuerological Lyme, I have candidas, mold and some ebv and my immune system is weak. I can stand but not for long because my heart tachycardia palpation gers worse and my upper body gets in a hypertension mode and does not go away.
Oh Marisol I am very sorry that you have a very awful disease for all the years. I wish that I can do something to help you out here.
Please, please, PLEASE! Check your skin when you return indoors. Get help to remove any ticks and read how to do it correctly. Thanx.
If it’s neurological- would a neurologist be able to help ?
I'm so sorry that you're going through this I am so sorry nobody deserves this nobody deserves this kind of stuff and sometimes this stuff happens and I'm so sorry for you I'm so sorry for you again I suffer with some things I have some discs in my neck and my back I have her back but also I have fibromyalgia and again people don't you don't understand what 5 miles is but it's actually a neurological problems just sorry I didn't mean to sometimes when I talk and text it doesn't come out right but I'm saying fibromyalgia is a real thing you know and it's a real thing and I've been suffering with it for many years I was an RN for 25 years in hospitals and I pushed and pulled patients many many times and I had some disc problems but The farmhouse is something differentnot our mouths I didn't mean to say that I didn't mean to say farm farmhouse or any of that I meant to say fibromyalgia is a real real thing and it has to do also with neurological stuff you know and it's like I'm so sorry that you're going through this that's all I'm trying to say and Rob Thomas and you have always been somebody that I really just loved and admired and I'm so sorry that you're going through that I just want to say I hope that you get this message I'm very very sorry that you're going through this I don't know if you'll get this type of message or anything like that but I'm just trying to tell you I'm so sorry that you're going through that you seem like such a beautiful lovely compassionate person like I've always been very very compassionate you seem like such a sweet sweet woman and I'm so sorry that you're going through thisand I'm sure many many other people feel the same way and I'm so sorry I mean like I'm so sorry that you're going through this is the way you described it and the way you describe it is like it's exactly you know not exactly not exactly not what I'm going through exactly but I'm saying when we're going through something hard it's really really tough and I just wish you all the best and I love you and I just God bless you Jesus loves you and you are amazing and just keep trying to go and just enjoy your dogs and because animals my cats have saved my life I mean I've always loved dogs my whole life but now I can't have been easier but believe it or not cats also they're so amazing they're so you know they're much like dogs they're very very very very very very I didn't mean to get off on a different subject I'm saying is I'm so sorry that you're going through this with the way you described it I just feel so bad for you and it'll get better I'm a woman woman who has a 31-year-old daughter and you know she goes through her own pain and things will get better sweetheart
I'm sorry if my I was talking and texting it doesn't come out right sometimes but I'm just trying to say thank you for telling us about your struggles and thank you very much
My cats have literally I've always been a cat and dog lover and all animals and all anything a little tiny things will never hurt anything like even in the end I don't like to even just a minute I will never want to even step I don't know I'm just saying like you know it's like you showed a lot of people that need that and I appreciate that
Have you tried an anti stimulation tank?
I just asked for alums test and was denied. All your symptoms sound like me
Holy shit this is Horrifying
I am so sorry you have to suffer so much
video is real quiet
❤
Sad
I thought Lyme's was curable
Ryan Stauss if you catch it extremely early yes
@@sarah29880 Actually even if you catch it early. 10-15% go on to have disseminated lyme aka neuro / post treatment chronic lyme. (Especially if you are undertreated, which seems to be the current protocol.)
Steve Watson yep. I have severe neurological Lyme.
How the fuck did you get bit by a rick?
Walk in the woods
I have something similar to this but I don't think it's as bad as yours. It gets real bad and really messed my life up, but I believe it has something to do with a jaw injury from wrestling like 20 years ago, and it seems to be very irritated by caffeine and some other diuretics. I have been extensively studying it and based on your symptoms I can give you 3 pieces of advice. 1) quit caffeine. completely. No coffee, tea, or even chocolate if necessary. Not only caffeine irritates chronic illnesses like this, but other things the big companies don't want you knowing about such as theobromine and theophylline so best to just quit all this stuff. Also you look like you're on some sort of diet, but if not, you should really do an elimination diet. My pain flares based on what I eat. I haven't cracked the code completely but I know certain stuff really bothers me. Blood sugar can also play into all this, so exercise is a must. Even when in a lot of pain you must exercise 3-4 times per week (i'm sure you already do but js). You seem to have nerve damage and most likely the only way to repair this is either insanely intense exercise like 4+ times per week, or stem cells. IDK if you have looked into stem cells yet but I know they can repair "permanent" damage. Unfortunately I cannot afford this option but being a celebrity of sorts you most likely can.
yeah if anyone can help me get into contact with her I think I can probably fix a lot of this...sounds a lot like my problems (but worse)
I could tell that your husband Rob Thomas would've hated that because it is awful
She has nothing to do here, get away.
My spacial awareness and all this shit is effecting me ..et me put on some make up and sir in my million dollar condo and say my pudtulure awareness us th at I won't take it it up the aas anymore and my shoulders hurt and I I get the electortruding pain in my temples to my taint....how bout t?
You know you're going to hell, right?
I want everyone to know I gots cramps real bad
Moron
I don't want my gringo husband to touch me got the the tick thing real bad not just right now. Give me money
Y
Your spacial visual shit does not seem to keep you from reading the que cards you are reading