Thanks again Emily for posting this video. I always knew that some people were suffering more from their condition than me. But listening to your experience, puts my issues into perspective. it has given me reassurance that I have a lot to be grateful for. take care and thanks again
What a kind message, thanks Robin! It means a lot if the videos could help in some way, that was exactly my hope in starting this channel. I think you're wise to focus on things you can feel gratitude for, even during difficult periods, and try to do the same myself. Learning to deal with inflammatory conditions like this, the uncertainty of it all - not to mention the medications - is quite a process however it affects you and for me at least, it took a while. Things are hugely better now than they were during the period this video was talking about - and hopefully the adalimumab will have the same effect for you. Wishing you all the very best!
Rosa From Iceland here, I am still in the finding about what kind of Arthritis I have. I feel I have at least two RA and PsA as my fingers are deforming so much from early June this year. My RA doctor put me on prednisolone EQL, then she said it was Osteoarthritis and gave me Methotrexate. After one month using that I got the same symptoms like I had when I got my very long DVT in my whole leg and up into my lungs. So I quit. I have no idea what is next for me. I have sent her emails to her explaining what is going on in my body. These days my hands are hurting not just the fingers. I eat clean, walk a lot and try my very best to stay healthy but my pain is sometimes difficult to ignore.
Hi Rosa, thank you for messaging though I'm sorry to hear how difficult things are with your symptoms and the effects of the methotrexate. Does the prednisolone help with the inflammation at all? I really hope your RA doctor responds quickly to your email and can clarify your diagnosis so that you can get started on more helpful treatments. It sounds like you're doing everything you possibly could to improve things, but constant pain can be truly exhausting. Could your doctor offer anything to ease your discomfort while your symptoms are further investigated? I'm hoping some answers come soon for you Rosa, sending you all good wishes from the UK ♡
@@aslightlyatypicalpresentation Glad to hear, hope all is going well for you. I'm due to start shortly for AS so fingers crossed! Great I will look out for it. Thank you
Thanks again Emily for posting this video. I always knew that some people were suffering more from their condition than me. But listening to your experience, puts my issues into perspective. it has given me reassurance that I have a lot to be grateful for. take care and thanks again
What a kind message, thanks Robin! It means a lot if the videos could help in some way, that was exactly my hope in starting this channel. I think you're wise to focus on things you can feel gratitude for, even during difficult periods, and try to do the same myself. Learning to deal with inflammatory conditions like this, the uncertainty of it all - not to mention the medications - is quite a process however it affects you and for me at least, it took a while. Things are hugely better now than they were during the period this video was talking about - and hopefully the adalimumab will have the same effect for you. Wishing you all the very best!
Rosa From Iceland here, I am still in the finding about what kind of Arthritis I have. I feel I have at least two RA and PsA as my fingers are deforming so much from early June this year. My RA doctor put me on prednisolone EQL, then she said it was Osteoarthritis and gave me Methotrexate. After one month using that I got the same symptoms like I had when I got my very long DVT in my whole leg and up into my lungs. So I quit.
I have no idea what is next for me. I have sent her emails to her explaining what is going on in my body. These days my hands are hurting not just the fingers.
I eat clean, walk a lot and try my very best to stay healthy but my pain is sometimes difficult to ignore.
Hi Rosa, thank you for messaging though I'm sorry to hear how difficult things are with your symptoms and the effects of the methotrexate. Does the prednisolone help with the inflammation at all? I really hope your RA doctor responds quickly to your email and can clarify your diagnosis so that you can get started on more helpful treatments. It sounds like you're doing everything you possibly could to improve things, but constant pain can be truly exhausting. Could your doctor offer anything to ease your discomfort while your symptoms are further investigated? I'm hoping some answers come soon for you Rosa, sending you all good wishes from the UK ♡
Thank u for update ❤I have the same as u and live in Sweden.
Thanks so much for your message, it's great to hear from you! I hope you're doing ok with this condition we share, sending love to Sweden ♡
Thanks for the update, it was very useful. Are you still taking adalimumab? How are you finding it?
Thanks for your message! Yes I am still taking it at the moment and no problems, but... 6-month update coming soon!
@@aslightlyatypicalpresentation Glad to hear, hope all is going well for you. I'm due to start shortly for AS so fingers crossed! Great I will look out for it. Thank you
Yes fingers crossed for you, really hope you get a good result