I have epilepsy too and the type of seizures I have are tonic-clonic mainly and absence too. I got diagnosed 2019 and I was 15 and now I’m 17, going to be 18 in April. Epilepsy is so challenging for those who have it as it makes us feel limited on what we can do. It’s such an awful medical condition to have and my heart goes out to every single person who has it. We ALL need to support each other as people who don’t have it, do not understand what it’s like and they are quick to judge and assume what it’s like to have epilepsy.
I burst into tears whenever I listen to someone else’s experience of epilepsy and I rarely usually cry. I’ve never spoken to anyone with epilepsy about what it was like being diagnosed etc. There’s something therapeutic about hearing someone else’s story so thank you for sharing, I hope you’re doing well
Recently diagnosed. Late 2021. Seeing other brave people speak of their experiences is always soothing. This genuinely does not define us. We got this, right!?
Yess!! i literally got diagnosed a few days ago at 18. For some reason i always thought i'm "too old" and it would never happen to me so it's very hard to accept but it's great to see other ppl with epilepsy supporting and understanding each other!
Iv had it since I was 16 and I’m 31 now and still get panic attacks when going into an aura. It’s just horrible, no words on what it’s like for someone who doesn’t suffer from it. It does effect your life no doubt, we all have to live with it and at times it’s extremely hard.
Mine makes me very depressed....I'm 71 years old and was in the military in a war time situation and your bravery with epilepsy rates at the very top.....I'm so proud of you.....your story lifted my life....thank you
I have a pretty similar story, biggest trigger was fatigue/sleep deprivation. I even had seizures after working out sometimes. After 3 years of no working medication I started the same as you and am better now, but sometimes I still feel weak and scared that I can die out of the blue because of my epilepsy. Everytime I have had a grand maul seizure I just feel awful and my brain feels depleted trying to remember what happens before it. I genuinely fear that in the 13 years I’ve had it since being a teen is that the seizures have rotted my brain somewhat and am now dumber as a result. Like could I have been a better person without them? Could I have been smarter and achieved more without the 3 years of constant seizures, it’s kinda depressing honestly.
Aw man, this was hard to read! I feel for you. It's such an awful feeling after a grand mal. It's perfectly natural to think of "what if." However, you know it's hard to say what we would have been like without it. I always try to think of myself as a person with epilepsy, but sometimes the two are closely intertwined. If you have the means or desire, really encourage you to find a support group or get in contact with a healthline. I know it might sound corny or useless but I feel like it has its place:)
Love this video! I have seizures too and I’m awaiting a diagnosis of epilepsy. I’ve had an EEG last Saturday, anxiously waiting the results. I’m 30 so this is out of the blue.
I think the most frustrating thing when I was diagnosed is that in a way, I had to start over. I've only had it for a year and a half now. I was saving up for my own place for a few years and had to use all my savings for doctors and tests and medicine. The place I currently live is getting more dangerous and the stores now are staffed with security guards. I was going to move to a town 45 minutes away, but they have no transportation system so i wouldn't be able to get around on my own. I was going to move next to a place that is the local concert and theatre center of the area so I could volunteer there. The places next to where I live now doesn't reimburse you for the parking garages so you have to work at least 2 hours before you break even just for going in for your shift and I didn't like that. I can no longer be involved in music or theatre since music is one of my triggers. Now, I can't move from a place I no longer like simply because I need access to services and need to be able to get around on my own to appointments and work. I'm definitely starting over and trying to get the next chapter of my life set up.
I appreciated you comments. I am 57 years old, my epilepsy started when I was 13 years old. I understand how you feel. Many of the same things you spoke about, the feelings, the sights, etc. I have dealt with over the course of my life. I have learned what my triggers are, and it takes time to live with this problem, but we are still a class of people who love, life and care for others. I have a favorite scripture from the bible I like to read. It is from " The new world translation of the Holy Scriptures", it helps me calm my self in my time of need. Isaiah 41:13. There is Hope......All take care and be safe.
Hi I suffering from seizure too for 8 years since 2016. I was about graduate from school too bad at home I had it then I used medications after it didn't work so I accept this and try to live normal but others told me it happen to me some times. I couldn't remember much but I always ask what happen because I felt different. I hope others with this seizure out there don't give up now.
I have nocturnal epilepsy which means all my seizures occur in my sleep. I have grand mal seizures and I live alone and I get scared sometimes. I om on lamictal 100mg twice a day. I had my first seizure at 4. & Didn't have anymore until I turned 18. I woke up to the ambulance in the middle of the night where my mom had called them. & That's when I got the EEG and MRI. They said it was mild. I have been having more frequent at 25 and have to go back to the doctor because of it. I had one last night and bit my lip too. I always feel exhausted and dizzy after my seizures
My dream I like for like years I wanted to be a TH-cam like just really do I plan to start my TH-cam channel in about few years from now I all ready have a name for my channel life with lauryn just know even if you have sizure you can still do what you want
I have sizure too since I was nine years old I'm 16 my birthday in like four months my sizure are Gramma sizure um my sizure are kinda random there no sign I'm going to have one it just happens I usually black out and when I wake up my mom usually put me on her bed and I usually forget like the last ten minutes before my sizure but after about a hour or so I'm back to normal I take med but there not really working I usually have a sizure about ever two or four months but yeah hopefully one day I won't have them
Hi there, really encourage you to make contact with any health services to try and get some sort of review of your medication. It can feel like there's no services out there, but I hope there are some you can tap into wherever you are in the world.
I have it I do not get any idea that one is coming they do not know what sets it off or anything I have Damage to my Brain so they think that is it but can not be sure had it from 17 I am now 39.
I have epilepsy I’m always checking the time I remember times of the day I’ve had them in the past 5 pm I’ve had and 8pm but I keep reminding myself one can happen anytime I’m going for more tests at the hospital and upped my tablets hopefully it will make me feel better I’m still learning about mine what triggers them ive had it since I was 30 now I’m 41
I have epilepsy too and the type of seizures I have are tonic-clonic mainly and absence too. I got diagnosed 2019 and I was 15 and now I’m 17, going to be 18 in April. Epilepsy is so challenging for those who have it as it makes us feel limited on what we can do. It’s such an awful medical condition to have and my heart goes out to every single person who has it. We ALL need to support each other as people who don’t have it, do not understand what it’s like and they are quick to judge and assume what it’s like to have epilepsy.
So true. Definitely agree. My heart is with you too 💕
I burst into tears whenever I listen to someone else’s experience of epilepsy and I rarely usually cry. I’ve never spoken to anyone with epilepsy about what it was like being diagnosed etc. There’s something therapeutic about hearing someone else’s story so thank you for sharing, I hope you’re doing well
Recently diagnosed. Late 2021. Seeing other brave people speak of their experiences is always soothing. This genuinely does not define us.
We got this, right!?
Yess!! i literally got diagnosed a few days ago at 18. For some reason i always thought i'm "too old" and it would never happen to me so it's very hard to accept but it's great to see other ppl with epilepsy supporting and understanding each other!
Literally we do. Thoughts go out to you. It's a tricky time xx
Hoping the world is always supportive and accepting x
Iv had it since I was 16 and I’m 31 now and still get panic attacks when going into an aura. It’s just horrible, no words on what it’s like for someone who doesn’t suffer from it. It does effect your life no doubt, we all have to live with it and at times it’s extremely hard.
Aw 💕💕💕I feel you. It can be hard. We are in it together! I hope people see this video and feel encouraged if they have Epilepsy too x
Mine makes me very depressed....I'm 71 years old and was in the military in a war time situation and your bravery with epilepsy rates at the very top.....I'm so proud of you.....your story lifted my life....thank you
Thank you very much. Such an honour receiving this comment. Thoughts go out to you!
I have a pretty similar story, biggest trigger was fatigue/sleep deprivation. I even had seizures after working out sometimes. After 3 years of no working medication I started the same as you and am better now, but sometimes I still feel weak and scared that I can die out of the blue because of my epilepsy. Everytime I have had a grand maul seizure I just feel awful and my brain feels depleted trying to remember what happens before it. I genuinely fear that in the 13 years I’ve had it since being a teen is that the seizures have rotted my brain somewhat and am now dumber as a result. Like could I have been a better person without them? Could I have been smarter and achieved more without the 3 years of constant seizures, it’s kinda depressing honestly.
Aw man, this was hard to read! I feel for you. It's such an awful feeling after a grand mal. It's perfectly natural to think of "what if." However, you know it's hard to say what we would have been like without it. I always try to think of myself as a person with epilepsy, but sometimes the two are closely intertwined.
If you have the means or desire, really encourage you to find a support group or get in contact with a healthline. I know it might sound corny or useless but I feel like it has its place:)
Love this video! I have seizures too and I’m awaiting a diagnosis of epilepsy. I’ve had an EEG last Saturday, anxiously waiting the results. I’m 30 so this is out of the blue.
So proud of you for sharing this
Thank you so much my friend. As you can imagine, I was very nervous posting this one. I appreciate the love, and am sending love your way always.
I think the most frustrating thing when I was diagnosed is that in a way, I had to start over. I've only had it for a year and a half now. I was saving up for my own place for a few years and had to use all my savings for doctors and tests and medicine. The place I currently live is getting more dangerous and the stores now are staffed with security guards. I was going to move to a town 45 minutes away, but they have no transportation system so i wouldn't be able to get around on my own. I was going to move next to a place that is the local concert and theatre center of the area so I could volunteer there. The places next to where I live now doesn't reimburse you for the parking garages so you have to work at least 2 hours before you break even just for going in for your shift and I didn't like that. I can no longer be involved in music or theatre since music is one of my triggers. Now, I can't move from a place I no longer like simply because I need access to services and need to be able to get around on my own to appointments and work. I'm definitely starting over and trying to get the next chapter of my life set up.
I appreciated you comments. I am 57 years old, my epilepsy started when I was 13 years old. I understand how you feel. Many of the same things you spoke about, the feelings, the sights, etc. I have dealt with over the course of my life. I have learned what my triggers are, and it takes time to live with this problem, but we are still a class of people who love, life and care for others. I have a favorite scripture from the bible I like to read. It is from " The new world translation of the Holy Scriptures", it helps me calm my self in my time of need. Isaiah 41:13. There is Hope......All take care and be safe.
Hi I suffering from seizure too for 8 years since 2016. I was about graduate from school too bad at home I had it then I used medications after it didn't work so I accept this and try to live normal but others told me it happen to me some times. I couldn't remember much but I always ask what happen because I felt different. I hope others with this seizure out there don't give up now.
Thank you for sharing this. I also suffer from occasional absence seizures and my trigger is fatigue as well. This was brave and encouraging.
Thank you so much for watching. Sending my best wishes to you X
You’re strong 🤎
Trying:)
I have Epilepsy too… just when I think I’ve got it under control, it takes me by surprise…
I have epilepsy and I almost feel like I have short term memory loss because I forget things so easily. It gets so scary sometimes
I have nocturnal epilepsy which means all my seizures occur in my sleep. I have grand mal seizures and I live alone and I get scared sometimes. I om on lamictal 100mg twice a day. I had my first seizure at 4. & Didn't have anymore until I turned 18. I woke up to the ambulance in the middle of the night where my mom had called them. & That's when I got the EEG and MRI. They said it was mild. I have been having more frequent at 25 and have to go back to the doctor because of it. I had one last night and bit my lip too. I always feel exhausted and dizzy after my seizures
I have nocturnal seizures as well. Blood and saliva all over the pillow and mattress, migraine, incontinence, vomiting. Loads of fun.
Thank you for your honesty and you’re truely inspirational. Rajeeve NZ
Thanks for watching!
I also have seizures too always tired and sometimes really feel weird
Hi me to but without my pals and pooch well haven't got a clue its hard but xx
I was diagnosed with Epilepsy when I was 2 and got into surgery when I was 8 removing a piece of my brain.
Seizures are like Tumors.
That is a possibility for younger children and I'm glad that worked for you.
My dream I like for like years I wanted to be a TH-cam like just really do I plan to start my TH-cam channel in about few years from now I all ready have a name for my channel life with lauryn just know even if you have sizure you can still do what you want
That's awesome! Go for it! I hope I can follow your channel one day!
I have had epilepsy since I was 5 I'm now 23 and it's rough but still trying that's all you can do
Hey there, I feel you. Keep trying and I agree, that's all you can do!
i have had it since i was 15 not fun im in the hospital right now because of seizures
Hoping you get out of hospital quickly x
I have sizure too since I was nine years old I'm 16 my birthday in like four months my sizure are Gramma sizure um my sizure are kinda random there no sign I'm going to have one it just happens I usually black out and when I wake up my mom usually put me on her bed and I usually forget like the last ten minutes before my sizure but after about a hour or so I'm back to normal I take med but there not really working I usually have a sizure about ever two or four months but yeah hopefully one day I won't have them
Hi there, really encourage you to make contact with any health services to try and get some sort of review of your medication. It can feel like there's no services out there, but I hope there are some you can tap into wherever you are in the world.
I have it I do not get any idea that one is coming they do not know what sets it off or anything I have Damage to my Brain so they think that is it but can not be sure had it from 17 I am now 39.
It's definitely a hard life. Thoughts go out to you!
I have epilepsy I’m always checking the time I remember times of the day I’ve had them in the past 5 pm I’ve had and 8pm but I keep reminding myself one can happen anytime I’m going for more tests at the hospital and upped my tablets hopefully it will make me feel better I’m still learning about mine what triggers them ive had it since I was 30 now I’m 41
Hello
Can you work?
Yes, I can!
Your so lovely pretty❤.
Hmong culture=> epilepsy = shamanism