Blood clots in my lungs nearly killed me
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- เผยแพร่เมื่อ 22 ม.ค. 2020
- What's It Feel Like to have blood clots in your lungs?:
Rene is a broadcaster for a t.v. station in St. Louis, MO. In 2013, he started feeling tightness in his chest and found it very difficult to breathe. By 2016, he could barely function doing his job. Doctors found blood clots in his lungs and tried to treat the issue with blood thinners. But eventually, it became impossible for Rene to do even the basic things. He became a ticking time bomb. Doctors performed a 9-hour surgery to remove the clots and save his life. Rene explains how difficult it was to live with the clots and what he learned about advocating for his health.
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I was litteraly just released from hospital from a massive pulmonary embolism. Doctors had to shock me they were sure I'm not going to make it. By the grace of God I survived. I felt exactly the same.
Thanks for describing the pain. I never knew how my brother felt before he passed away. He texted me complaining that he was short of breath and asked me to help him call the ambulance. A few hours later he was unconscious and a day later he passed away. He was 40 years old.
Why you now take him to hospital ?
I was diagnosed with saddlebag embolism on 2/17 I had no symptoms until I had shortness of breath the evening before. This is so emotional and my anxiety is thru the roof. I now listen to my body and tell all my family and friends to listen to your body. Thanks for sharing
God bless you xxxx
My father recently died from a huge blood clot. He ignored the signs when we wanted to take him to the hospital. He was to prideful to admit that he was having health issues and in the end it killed him. Please spread awareness.
Me to sorry for your loss I just found out I've got them in my lungs
@@paulpride2978can you please tell me what your symptoms are especially when it comes to pain in specific areas🙏🏼
The was one of the hardest videos to watch. My Dad unexpectedly died from a blood clot. I’m glad you’re okay and thank you for helping raise awareness 💞
I know what you went through. Two months ago, 11 weeks, I lost my son. I'm still in shock!!
@@davideaton1192 Both, Covid and the covid vax can induce blood clots.
@@davideaton1192 bless you sir.
I’ve been dealing with worsening breathing problems for months. Finally it escalated to the point where I was certain I was suffocating. Honestly I begged God to take me quickly and put me out of my misery. Ended up in the ER where I learned I had a pulmonary embolism. I’m still hospitalized at this moment. It’s been a rough ride.
Warm hugs and wishes. Get well soon. I'm glad that you're at the hospital and in good hands right now❤
How are you now? Hope your doing good
Hope your doing better now!🤎
@@RouxlineBartlett Developed double pneumonia, coded, and was put on life support. I’m “off the vent” now! Unfortunately I’m now on hospice care at a nearby facility. It’s been a wild ride. I’m truly stunned.😢
@minnietrout814 Sorry to hear that. God loves you. 🙏
Oh my. Thank you so much for sharing. I have been accused of faking illness and lost both my kids, husband, in laws and even dad because they thought I was a hypochondriac or chose to be a jerk. I started to believe I was crazy and probably was a pos. I had "more than we can count" in my lungs twice. The doctor told me a 3rd probably kill me.
I can't even begin to describe how much this simple 7 min clip has helped me. THANK YOU.
Did they put you on blood thinners?
@@TLovetoDance012 yes and I csn tell they help! My brain gets sluggish if I don't take them.
@@Jenny-ZZR I’m glad you continue to take them and they’re working. I asked my physician why does every adult no matter what size take the same amount of Eliquis and he just said that’s the way it is. I don’t understand it. I also asked how do you know if it’s working and he said if you don’t get any clots then you know it’s working. That to me sounded kind of dumb. I’m thinking isn’t there a test they could do like the people that are on Coumadin and he said no Coumadin is different those people get their blood tested every week or two. Anyway I’m always scared somethings going to happen again but if I’m taking the blood thinners I’m doing the right thing. I hope you have a good evening. By the way that’s a shame that your family thought you were faking an illness when you truly had blood clots and symptoms. I was also told there were a lot of blood clots in my lungs both small and big. They kind of give me that look like you’re lucky. I’m currently in pulmonary rehab recently started to try to get my energy back and hopefully get the breathlessness to go down. I get tired pretty quickly. How about you?
@@TLovetoDance012 Goodness. I hope you know there's no shame in getting another opinion. I wouldn't be comfortable with those kind of answers, either. Not that he was rude, it's just with these types of things, you know, the illnesses you can't see or predict. Doctors forget, I think, that while they might not be worried because they see so much, most patients don't know much and need reassurance.
I don't know if it's wise to compare but you could ask a doctor if you should feel a noticeable difference like I do. He/she may not want you to experiment between taking it one day and not the next. Maybe you need a higher dose if he/she agrees it should give you a better overall feeling. Maybe I'm just lucky. We think it was from smoking while on a hormone treatments. Has anyone done a DNA check on you for a blood disorder? If not, you really, really need that done. ALSO, I believer a D-dimer test is the best simplest test to see if the meds are doing their job. But, I don't know for sure. It may only be able to detect clots are present.
ALSO.....don't let me worry you but I did a lot of reading and it seems to be common for people to be diagnosed with cancer somewhere in the body within 6 months after getting clots. But, of course, that was on the Internet and it has a habit of scaring people. :)
Thank you...... I think it was an in-law kinda thing an They don't particularly like me. LOL
If you want, keep me posted on how you're doing.
@@Jenny-ZZR Hi Jenny. I read your nice post. Yes I could always get a second opinion. When I got the blood clots and was in the hospital every doctor who came to see me asked me about cancer screenings. They asked if I had got the mammogram G.I. testing etc. and I told them I had plus female tests. I read all the reports there were no signs of cancer. They did tell me that sometimes people with cancer get blood clots and that’s why they were asking me. Of course they asked the usual questions..have I taken any long flights, long drives, car accidents, did I have a fall, etc. I told them no to everything except I had a minor fall down six stairs and bumped the right side of my lower leg. I did not have a bruise and I got up and brushed it off. Somehow I wonder if that caused all of this but they wrote it off. I’m also asthmatic and during last fall season had a terrible flare that ultimately sent me to the ER because the steroids weren’t working and they always work. They did the D dimer, pulmonary perfusion scan, CT and then I was diagnosed. They had me on injectable blood thinners in the hospital but then released me on Eliquis. That was in November. I recently had a D dimer about three weeks ago which was normal. I was relieved. I would like to get one of those at least every six months and I will talk to my doctor about it. When my mom had heart surgery she was on Coumadin. This was over 20 years ago and she had to go weekly for a test and that it was every two weeks but she had to be so careful about eating green vegetables especially since she loves salad because it would mess up her numbers. At least people that take newer blood thinners don’t have to worry about that. I don’t remember how long it was that you said this happened to you.. has your family come around and are more understanding? My children are in the medical field and we have a doctor in the family so of course I got opinions and information flying at me as soon as the diagnosis hit. I was especially told to get checked out by the cardiologist because the clots were so many when they look like that they usually come from the heart from a backed up heart valve. I am very grateful it wasn’t that. Well I hope you’re doing well. It’s nice to have someone to chat with because it’s a little depressing not having the energy I had before. It’s taken me a long time to get where I am from November to May now I am in rehab on the treadmill, a sit down elliptical etc. and I’m hoping that will work. Just want to be able to take a walk without feeling so out of breath I have to sit down somewhere.
I had pulmonary embolisms after I birthed my son. It was the most painful thing I've ever experienced. I was in ICU for a week and had to take blood thinners for months after that.
I finished chemo 4 months ago and told my oncologist and regular doctor I thought the port catheter was sticking my heart. It was causing chest pains, I couldn’t breathe, heart was beating too fast or too slow or would temporarily stop. They blew me off thinking I just wanted the port out. I was on the highway one night with a friend and 10 minutes away from home a deer just stood on the road in front of my car and I hit her. Huge doe. I was taken to the hospital and still complaining that the port was hurting my heart. They took a CT scan and X-rays and told me I had 2 blood clots in my lung. It wasn’t the port, like he said, I was dying and didn’t know it. That deer saved my life! Killed my car but saved my life! Sad thing, I did ask for help. My medical team blew me off
How is the deer?
MJS Thanks for sharing your story , just had diagnosis . It's scary , praying for you and others.
He is exactly correct. I suffered from a bi lateral PE back in 2018 and it literally felt like I was suffocating to death. The whole snake constricting analogy is spot on.
I just survived one on January 2nd of this year. While 7 months pregnant. I have never felt so scared. The feeling of not being able to breathe is truly terrifying. They instructed me , " dont panic. Inhale in through the nose, out through the mouth" and I just couldn't do it. It was like literally I forgot how to breathe.
I’m so sorry you had to experience this yourself and am so happy you made it through. You are so right, it was impossible to breath and that was the worst part for me. They had me on heavy duty pain killers but it didn’t work because it wasn’t that type of pain. It was the worst feeling ever and I pray you or I never have to go through that again. I did however, get another massive clot in my leg later on in 2021.
@SgtWill that actually was how I was first introduced to clots. DVT in the right leg in 2019. Then in Auguat of 2023, while 5 months pregnant, I had a 12 day hospital stay for Bilateral DVTs in both legs... for me the legs came first and progressed to the lungs. It's heavily hereditary for me, that's why I to deal with it
I was the youngest to get clots in my family at 25, and the first person to have them travel to the lung and survive.. they really are no joke
Having any blood clot is awful but having a big pulmonary embolism, you think your dying and are very close to death. I thought I was having a heart attack, and prayed so hard to survive before going into a long hospital stay, after I had just left the hospital recovering from a femoral clot that unknown to anyone had broken away and travelled to my lungs! I never want to go through that trauma again..and thank god that miracles do happen. This occurred in my mid thirties, my 1st clot in my ankle occurred at 29. But once a clot has formed in a limb, its already damaged it, and has caused damages in my body...cause 'The contraceptive birth control pill' ...amazing how one pill can cause so much damage. Thank you for sharing your life story! My life changed totally because of D.V.Ts.
Birth control pills is one of the culprit. 😢
A PE is basically a heart attack once it ruptures
I am 35 years old and I just found out yesterday that I have blood clots in my lungs, my world came crashing down. I finally found out why I work out and feel like a 80 year old man. I'm still shook and I hope to God these blood thinners work for me
Hoping you are recovering 🙏 I also learnt 2 days ago I also have EB, I had surgery to the abdomen 5 weeks ago and felt I was experiencing shortness of breath for over a week and got intolerable 2 days ago and have been in hospital since. I am feeling slow improvement each day and I feel I have to put my faith in my doctors and in their positivity that my existing clots will dissolve and the blood thinners will prevent new clots and existing clots do not get bigger. I do wish you a good recovery.
@Rosa olguin thank u my freind I wish u all the best and I will be prayfor u as well. It is a scary thing when u have eb and it's very rough to go through out the day feeling as if u can't breath. I pray to God u will get better 🙏
I'm 36 and was diagnosed yesterday with pulmonary embolism. Luckily it's not in my heart and hope it don't ever go to my heart or brain. But the pain of my left lung and tightness around my entire diaphragm rapped around front to back. I'm on levonox. An injection twice a day. Shits scary. So afraid still. Didn't get hospitalized but if I get worse I will be.
@Heather B. Denture DiVa I will pray for u, it's a scary feeling
@J L thank u so much and I pray your health only gets better my friend
Haven't had a PE but i have had two heart attacks. The first one, i was having the heart attack for three days. First hospital released me with a pulled muscle. If they had just taken the time to do blood work they'd have caught it. Right now I'm having some side pain but after watching this i feel okay about it. I know so the symptoms but i NEEDED to hear them described. How they felt. Some analogies. Thank you for this video. Put my mind at ease.
Excellent presentation..thank you so much
Powerful message at the end there Rene
Yes it is!
God bless this brother!!
Thanks for your advice
Exactly the same experiences I felt it's serious condition I passed out due to no oxygen and I live on clexine and walfurin for years its scary. even now on and off and I glad you got better
Thank you for this information
Thanks 🙏
Hes so right i almost could of died not going to the doctors when i ruptured my calf muscle! My dad died because he didnt go to the hospital till it was too late. Guess he urged me to change my mind cause i was being stubborn but in terrible pain! Found out i had blood clots as well and was like what!
Liked your video a lot. I just spent four days in ICU. my oldest daughter took me get help because I had neverending cough .
I was in the hospital last week after passing out after work. I did have the procedure to remove and it was a lot of old and new clots. Now I’m on blood thinners and trying to get better. I did have symptoms but wasn’t sure what was going on.
Feeling better now? How are you?
Try and do some soft exercise as well.
Now I understand a lot more about my shortness of breath.
Ty for this. I definitely agree but f we don’t tell drs everything, thrush cannot help itch everything. I poem I call my drs Monday as this really helped me know I must call
Sad that i lost my mum to this, tge doctors took long to save her, she died talking to us😢
I just lost my 40 year old son three days ago. I had no idea he was having trouble breathing. The doctors call me to the emergency room and he was already gone. I'm in shock!!!
I'm praying for you and your family ❤
Sorry 😢
Did he have Covid or the Covid Vax in the 6 months prior?
Had a pulmonary embolism on the 14th of April 2024. Came extremely sudden. Felt as though a second heart was beating in the side of my throat. Felt as though an elephant was sitting on chest. Couldn't breath. Had no stength. Couldn't even talk without getting weak and sortness of breath. Was put on oxygen and did a ct and x rays in hospital. They gave me a shot that was equal to 6000 disprins in SA. Went to ICU. Was on strict bed rest, not allowed to move for 24 hours otherwise I could bleed out. Worst few days of my life.
Did they try giving you a thrombolytic? I was put on Activase in the ICU and my blood clot seemed to dissolve. I was on room air after the drug. I know it is a dangerous drug that can cause bleeding in the brain. I had a massive PE a month ago. I'm now on Eliquis. I hope you get better and not have any further clotting issues.
Something is wrong here. 3 years with blood clots?? I have a large one in my lung now (and smaller ones in both lungs. And, like you, heart involvement. When I got out of the hospital last Monday, the doctors said they would give me 3 months on Warfarin along with 5 days on a more heavy-duty drug. If I didn't have significant improvement, I would need heart surgery. Docs may have done you a disservice?? But best of luck and a long life to you.
I agree! And it's scary how much treatment or lack thereof differs from one doctor to the next. As symptomatic as he was, they should have gone in way earlier. What is wrong with our doctors these days...
I have blood cloths in my lungs i was admitted in the hospital im out from August but i still cant breathe im on eliquis blood thinners i have asthma and also sleep apnea and hernia ambulance came back for me twice after but the hospital say they cant see y i cant breathe properly i almost fainted today on my way to pick my son from school when i walk i have to stop all the time to catch air this is uncomfortable for me
I had a pulmonary embolism at 27 in both lungs by far the worst pain I've ever felt and didn't realise until afterwards how close I was to death I've been diagnosed with factor V leiden and have been on anticoagulants for the last 5 years!
I have blood clots in my lungs it's hard for me to breathe sometimes I get chest pains and I'm really scared
I had a blood clot in my lung 🫁 and pneumonia at the same time after having a baby! Could not Breathe , felt like I was going to die !!
How you doing now??
I currently have a blood clot. With everything going on in my life I think I’m ok if I pass.
I got the jabs and booster. And developed pulmonary embolism. I almost died. But it was God that saved my life. Praise the Lord. Prayers do wonders for you
COVID gives 1 in ten people clots like this. The shots likely saved you from getting worse clots.
@@Brett_S_420no no no you r wrong!
i am a man i did talk about my shortness of breath and my doctors missed it altogether until i passed out because i could not breathe i nearly died from it:
they ignore old men
Doctors can't find anything wrong with me for 2 years. I went to one test to another, they said I don't have blood clot. My feet get to size of my head, swollen, cofing to the point of passout. Doctors say it is because I got sugar and I am diabetic. I don't know what to do anymore.
I found out that I had PE back in February of 2021 till this day I still have the blood clots them along because I'm so scared to have the surgery what this man described is exactly what I had when I found out I was in the ICU for a couple days I was in the hospital for 2 weeks doctors was trying to figure out what what the plan and they said if I did not come that day the next day I would have died and that next day was my wedding anniversary so if it wasn't for my husband I would not have been here because I'm very stubborn I'm going to the hospital now I'm just trying to find encouragement just trying to do the surgery because it is so scary of what the are telling me what they're going to do but I need this because what this man was describing on how he had to go places early that's exactly what I have to do
I been sick since the end of aug. i cant breathe and i am weak. But i dont like being weak because i care for everyone.
I'm 38, just getting out of the hospital for a pulmonary embolism in it, not fun. The pain you are in, I wouldn't wish it on my worst enemy.Couldn't talk breath move with out been in server pain.
I was the same, I had 2 clots in my lungs, pneumonia Nd fluid on my lungs back in October and I still have alot of pain in my right hand side so hope the blood thinners work
Sounds great! Everything except the part about a doctor.... I don't think it's so easy to find a "doctor" as you say it is..... at least a good one.
I'm 29 year old man I just found out I got blood clots in my lungs. I woke up and could only take 1/3 of a breath I'm still really confused on what to do next I can't drive I can't work. Not one of my family members have asked if I'm ok i got a doctor's apoitment in three days but I just have a really bad feeling that it's bad
How are you now?
If you have blood clots you need to go to the ER. A doctor’s visit isn’t going to cut it.
Bless you Sir. Keep us updated!!!
My brother die from blood clots sep 15 2021 rip Bro I mIss you 😭😭😭😭😭😭😭😭😭😭😭😭
Sorry for your loss❤
So so sorry
I had box of baking soda in my room, I wake next day refresh
I think the reason you kept getting more blood clots in your lungs was because you were not walking. You have to move your legs to not get blood clots
Totally agree
I am 57 years old took the er the 3 rd time before they found out I had several clots in lungs and legs had I stayed home I would have died
I was in hospital a couple days on heparin now home on eliquis waiting to see a pulmonologist
I’m really scared
Is it possible blood clots because Regular alcohol consumption?
No
Yes, drinking , smoking, obesity among others too.
my brother is aalready having dialysis and he has just been admitted to mount hospital for blood clot in lungs. he is alone and im dead worried. request for prayers plz
Bet you got the jab first
That’s possible