Running a home therapy program
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- เผยแพร่เมื่อ 18 ก.ย. 2024
- Join us for a full day in our life as we run our home therapy program for our amazing kids living with cerebral palsy (CP).
SUPPORT: Buy us a (figurative) coffee and keep our channel and project going at Patreon: / ordinaryextraordinary
We are roughly 4 weeks into ‘The Possible Project’ and learning so much!! This initiative is an all of life experiment to gather and implement the latest brain science to help unlock the amazing potential of our kids- and hopefully share what we are learning along the way.
But its is still very early days for us!!
In this video we share a normal day as we try to create a home therapy program that incorporates physio, occupational therapy, cognition, and communication goals- but disguised in fun and things the boys love doing- while also using new technology to enhance learning potential. Things like vibration, estim, laser, soft orthotics, and cognitive strategies are just some of the things we are using at the moment.
For our family our kids have some big labels (cerebral palsy, dystonia, deaf, cortical vision impairment, beckwith-wiedemann syndrome, auditory processing disorder, and lung disease to name a few). But they are just labels and don’t represent the incredible humans they are, or define their incredible potential.
After a very rough start in NICU (neonatal intensive care) and lots of medical and disability diagnoses. And then last year spending 6 months going around the world to seek the latest interventions. We want to take what we have learnt, learn more, and design an all of life program (to hopefully share with others!).
We are going to vlog about this every week (or 2) and share what we are learning. So join the journey!
Get regular updates between videos on INSTAGRAM @: / ordinary__extraordinary
We're the Dove Londons. Family adventurers taking on the ordinary and the extraordinary + sharing life with cerebral palsy. Vlogging weekly.
New videos each Saturday
| weekly vlog | family vlog | special needs vloggers
#hometherapy £familyvlog #cerebralpalsy
These parents got awesome kids and these kids got awesome parents..... Wow.. Keep going guys....We love you❤
Look at River standing up 🙂. Brilliant
I grew up with a friend of the family's grandson he has cerebral palsy his muscles tightened up and he was literally bed-bound to the point where he had to be transferred from a wheelchair to bed, he could not stand independently and he didn't walk. And that way by age 20, I can understand why you would have that surgery for your child. And I'm blown away by the progress the boys are making. So amazing.
Hi Jazmn. Thanks for the encouragement! We feel like we made the right decision with the surgery... not a n easy decision to make though :)
Thanks for watching!
@@OrdinaryExtraordinary Anyone who hasn't seen the worst-case scenario's on that condition would have some problems understanding the choice you had to make. I'm glad to see it has worked for Zach. He seems to move so much easier in the newer videos. And I hope all the work you guys have put into your program will help many other children who face the same struggles. You guys are great.
as an adult that has gone through and still goes through many hours of sometimes annoying, sometimes exhausting, sometimes painful therapy, it warms my heart to see how awesome you combine your boy's physical therapy with fun and play, as well as the possibilities that exist for young children nowadays! beautiful to see Zachy laughing while he did the finger painting, or River with his plants, River is such a curious, smart little boy!
i am seriously not sure what WOW´S me more, the children or the parents. this is amazing !!!
Zachary in soooooo cute, you guys are great mum and dad
Oh My Goodness !!!!! I am so amazed at the boys progress !!! So exciting !!! When you think of the limiting prognosis of CP and what your boys are doing !! so heartwarming. They are going to be able to do what ever they want when the grow up !! Jess and Tim are working this and connecting all the dots to make a comprehensive program for their boys. And each boy needs different things so it isn't a one size fits all. Way to go and I am proud to be a Patreon sponsor for this family !!!
Amazing - what else is there to say. This program is going to take you to places you never considered possible. The boys are looking awesome... always thinking back to how far they have come... I know its a strain on you two but as I have said all along its because of you both that things have progressed so well. I still firmly believe that God hasyou and the boys in His hands. Love you all.
All I can say is WAAAHOO! Zach and River are doing amazing work and good on you Jess and Tim for fighting for them, keep up the fantastic work you 6 amazing people
Wow wow wow. Your boys are so incredible. This is so moving. They are doing absolutely fantastic. I'm so in awe of this program and you for designing and facilitating it. 💜💜💜💜💜💜💜💜💜💜💜💜Eagerly watching for more.
This is incredible I myself have spastic diplegia cerebral palsy and had a selective dorsal rhizotomy so trust me when I say this I know exactly what they’re going through. It is incredible your dedication to your children reminds me of my parents dedication to me and all the hours of physical therapy. I hope that all of the new developments that you were testing out for your children with in the field of neuroscience help to provide them with more independence and functional abilities. After watching this and hearing you talk about neuroscience and how it works for people with brain injuries and specifically people with cerebral palsy. It reminds me of the deep passion that I have for the field of neuroscience and definitely makes me want to look more into getting a dual masters degree in child life and neuroscience.
Thanks again Christian. Hey, you might be interested in an interview we did with Erik Zimmerman (who always lives with CP). He is so encouraging and has a real positive message to share - th-cam.com/video/R-NdK1uMsXY/w-d-xo.html
I’m so happy that you are getting such good results. Well done to you and your helpers and to those brave boys.
This was amazing!! Loving the progress of both kids and parents!
Your kids are the the most unbelievable, clever, sharp, beautiful and every good thing in this world, and they are a true identical reflection of you MOM and DAD.... just binged watched over the last five days as I’m recovering and your positivity and zest for life, is pushing me to try get better quicker 🥰🥰🥰
Hey Maxine. Thanks so much for your encouragement and for watching our videos! Hope your recovery goes smoothly :) much love from Australia
Thank you watching you all the way in Cape Town South Africa, “your next adventure, ok”😂😂
@@maxinelurie5472- We love Cape Town. Jess was born in Joburg:) The boys haven't had a chance to visit yet and they dream of the day they can go to a game farm!!
@@OrdinaryExtraordinary oh wow really , yup you need to bring them, those boys will absolutely go mad for a game farm, completely up there ally, there’s so many places here the boys would love, but when covid is completely over, we also have awesome science museums, the wine farms parents have lunch and relax and all the kids play right by your side, magical aquarium, going up the cable car, beautiful parks, art jamming, putt putt which
Is play golf on the promenade and it would so motivate them to knock the ball in the holes, only thing you need to be weary of is crime it’s not the safest but saying that in broad daylight and having your own transport you would all be fine....I can go on and on,,,, but I want to know if and when you come as I want a little cuddle from River and Zachy 🐰🐹🦔🐿🦊🦝🦡🐻🐼🐨🐷🐖🧸
INSPIRATIONAL just love this family ....
Our daughter has Phelan-McDermid syndrome and this is our DREAM! You guys are AMAZING! Keep creating your beautiful lives! And thank you for sharing it ❤️
Absolutely Awesome! I'm so proud of all the efforts you put into your program for Zach and River and so proud of Zach and River for doing all the work. It's exhausting and it is all worth it! Xavi loved seeing the boys day - I think it encourages him to do great things too. The consistent work we do every day is key to the results we get. Little bit of work ..... little results; lots of work ..... lots of results! I'm so happy for you.
2 amazing boys with even more amazing parents! Keep up the good work guys!
Thanks!
Oh my god that night time story
I know it's so tough on you guys but you are doing a hell of a job with the boys! The progress from when I 1st started watching is amazing! Great job mom dad and boys💜💜
Love your family! Such sweet, strong boys and amazing parents. Stay safe and well.
Jess you’re incredible!
Hey there! That's nice of you to say that :)
This is such a great idea! My daughter is 15 and I just turned our living room into a sensory teenager "playroom" for her while we are home during this pandemic!
That's truth ordinary extraordinary amazing familly
Tim and Zach’s rap was the best, yo! 🤩😎
So exciting! I’m learning a lot from you guys! Appreciate your videos sooo much!
Wowww... Super dad and mom... Inspiration for many ...
This is so awesome. Are the boys twins? Thank you for sharing your lives
Hi Jasmine. Yes they are twins:) they are 5 years old now :)
Thanks for watching!!
Well done everyone. Great to see the progress you are all making.
You are a rock star! And your family is amazing!
That is amazing
Wow good job. Extraordinary. Love you 😍
Welcome ❤️❤️
River and Zach likes music and I wonder if you guys visit Sydney.
Hey Daniel. We have been to Sydney a few years back. Our first two videos ever are of us in Sydney I think :) such a great place
@@OrdinaryExtraordinary Yes I been in Sydney all my life.
My little sister Faith had cvi, so I knew what that was for. If Zach has ipad you should get him this app called little bear sees. It was designed by a parent of a child with cvi.
Wow they are standing so well. From where are you getting online guidelines, may I ask? I've been trying to contact" key to cp" for my daughter's online therapy, but with no luck.
Love the vikdeo
They are so cute
He i miss you all 👌😍😊
Hi drs are u safe there