I too have FND. I describe it as if I were in my kitchen with all my lovely working appliances. If I've decided to make a snack, I press the button on the toaster and instead of the toaster turning on the stove lights up. I open the refrigerator and the blender starts to whir. All of my appliances are working, however, the messages are being sent to the wrong appliance or in the wrong way. You could even say, the hardware in my nervous system is working, but my software has some devious malware at work causing any number of disruptions. Thank you so much for sharing this very important and timely message!
What a great interview! We really aren't aware enough of conditions like these and how they affect people's everyday lives! This is so helpful for non-disabled people to understand how they can support and empower people with FND and Fibromyalgia.
I too have FND. I describe it as if I were in my kitchen with all my lovely working appliances. If I've decided to make a snack, I press the button on the toaster and instead of the toaster turning on the stove lights up. I open the refrigerator and the blender starts to whir. All of my appliances are working, however, the messages are being sent to the wrong appliance or in the wrong way. You could even say, the hardware in my nervous system is working, but my software has some devious malware at work causing any number of disruptions. Thank you so much for sharing this very important and timely message!
Thank you, Gabrielle, for discussing this; I was previously unaware of either.
What a great interview! We really aren't aware enough of conditions like these and how they affect people's everyday lives! This is so helpful for non-disabled people to understand how they can support and empower people with FND and Fibromyalgia.
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