FRRS1L treatment timeline and fundraising

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  • เผยแพร่เมื่อ 25 ต.ค. 2024
  • Hope of treatment is with reach for children struggling with FRRS1L genetic disorder. FRRS1L disorder children loose all abilities and functions at age of two with the onset of seizures and become severely disabled, however treatment would bring their brains and bodies back into function. However the if/when of treatment all depends on fundraising to pay for the treatment to be produced. Watch to learn about how every second, day, month matters to these kids and how important it is we get funding to keep the project moving to treat the children. Learn more at: www.FRRS1L.org
    #FRRS1L #curefrrs1l #epilepsy #handicapped #cure #fundraising #disability #disabledchildren

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