41 yo male with type 1 Duane’s. Always nice to see someone discussing this from the medical and educational perspective with little to no empathy for the disorder. Sorry, just found myself looking for answers randomly and sad to stumble upon another dead end. I’ll continue to talk to people without direct eye contact while I wait for science to figure this shit out.
I love my eyes I wouldn’t fix the even if I could I have type 1 and I am fine I advise anyone who has this to have confidence there’s nothing wrong with u this is a part of who u are
I had a quack surgeon do my strabismus surgery and he I believe during the second part of the suture technique ripped out a large portion of one of my eye muscles. My eyes are apparently crooked and no specialist is willing to help me understand how to confirm it is because of a missing eye muscle. They brush me off when I try to speak about it as if they are protecting one another. My question is would what I described be Duane's syndrome aquired? Does anyone have any recommendations for me?
Was born with Duane's Syndrome. When young Dr's insisted I do eye exercises, only caused headaches and No improvement. As yrs went by I warned eye Dr's during tests my right eye can look left but the left stays straight. They'd be amazed and puzzled! When tired the right eye appears "lazy ". My grandmother had the same, opted for surgery that only helped about a yr. In my 50's Finally an ophthalmologist told me it was Duane's Syndrome. No cure, simply a birth defect, prevalent with women. We're special! lol
as someone with duane’s retraction syndrome myself, it’s not something that can or particularly needs to be reminded. the only problem that can accour is when measures aren’t put in place to help see an object, so eyes don’t work together - the only problem I really have is in class some teachers have not made changes to where I sit, so seeing a whiteboard is made difficult. in very few cases, the detriment because of this can lead to a surgery where the eye is widened BUT it will not cure it.
My 6 1/2 month old son was just diagnosed with type 2. We have been doing PT and OT for months for tortocollis, wondering why he still has the head tilt even though we’ve strengthened the neck muscles. I started noticing the occasional upwards eye shoots around 3/4 months but read that some strabismus can normal up until 6 months. In my son’s case it wasn’t getting any better and I linked it to the tortocollis issue. The OT, PT, and I recognized that looking to the right triggered it. My son hates looking to the right for that reason! Luckily our pediatric ophthalmologist is amazing and very knowledgeable. She could tell that my son is making a conscious effort to tilt his head in order to keep his eyes straight. Our pediatrician is sending us to an orthopedic doctor as well and doing scans to double check that there’s nothing orthopedically wrong with the neck. But the Duane’s syndrome is definitely contributing to the Torticollis!!!
Revising for my EBOD exam. Thank you Dr Lee for these fantastic videos. You make it seem so easy. The sign of a truly great teacher
great explanation of the different types of Duane's Syndrome. Thanks!
Great explanation, great channel🥹
41 yo male with type 1 Duane’s. Always nice to see someone discussing this from the medical and educational perspective with little to no empathy for the disorder. Sorry, just found myself looking for answers randomly and sad to stumble upon another dead end. I’ll continue to talk to people without direct eye contact while I wait for science to figure this shit out.
24 and i have it sucks but its whatever good to see some one else with same issue
I love my eyes I wouldn’t fix the even if I could I have type 1 and I am fine I advise anyone who has this to have confidence there’s nothing wrong with u this is a part of who u are
Thank you SpongeBob!
@@qatar0064 i have it too 🇰🇼
@@wazz2018 finally I found my ppl 😂😂
@@qatar0064 lol 🤣
It limits my ability to do good eye contact and non-verbal communication, and it makes me less confident in how I’m perceived than I should.
fails to mention the globe retraction on atempted ADDUCTION on affected side
hence the narrowing of the palpebral fissure. thank you andrew lee for your videos
Please increase volume
i have duane’s syndrome !! (i have been diagnosed by a doctor.)
me too! been living with it for 20 years haha kinda sucks but its all about how you deal with your conscious self
My son has it in both eyes. Makes him very nauseous while driving
I have type 1 left I hate it but guess it’s part of who I am
Please can you do a video on Browns syndrome
I had a quack surgeon do my strabismus surgery and he I believe during the second part of the suture technique ripped out a large portion of one of my eye muscles. My eyes are apparently crooked and no specialist is willing to help me understand how to confirm it is because of a missing eye muscle. They brush me off when I try to speak about it as if they are protecting one another. My question is would what I described be Duane's syndrome aquired? Does anyone have any recommendations for me?
In Duane's you are born without the muscle. Since the 6th cranial nerve is missing the muscle couldn't form in-utero
What causes duanes syndrome?...is it genetic? Or something done during pregnancy that causes this ??
Was born with Duane's Syndrome. When young Dr's insisted I do eye exercises, only caused headaches and No improvement. As yrs went by I warned eye Dr's during tests my right eye can look left but the left stays straight. They'd be amazed and puzzled! When tired the right eye appears "lazy ". My grandmother had the same, opted for surgery that only helped about a yr. In my 50's Finally an ophthalmologist told me it was Duane's Syndrome. No cure, simply a birth defect, prevalent with women. We're special! lol
Hey is it curable
@@jinanshahid1270 no it's a birth defect, hereditary
@@jinanshahid1270unfortunately it's not. The muscles are non-existent
Listen! All of you who read this MARK my words! I am going to make strabismus (any sort) a problem of the PAST! in 2025!
Hopefully!!!❤️
Plz
waiting on u bro
My son has type 3 and took 4yrs to get him diagnosed. As far as i know there is no surgery to correct this.
I have type 1 in my left eye
So do i
I actually do
One of my 3yr old twins has this...what is the remedy therefore?
There is no remedy for Duane's syndrome.
as someone with duane’s retraction syndrome myself, it’s not something that can or particularly needs to be reminded. the only problem that can accour is when measures aren’t put in place to help see an object, so eyes don’t work together - the only problem I really have is in class some teachers have not made changes to where I sit, so seeing a whiteboard is made difficult. in very few cases, the detriment because of this can lead to a surgery where the eye is widened BUT it will not cure it.
One of my twins were born with it in both eyes as well. I wish there was a cure. 🙏🏼
Thank you .hhhh.we need moooooore
I have Duane syndrome
Me too.. how do you feel ?
Me too
Does this have a solution?
@@darckichi ?
me too !!
How was born with the cricket smile to on the left side of my face now it’s up to all my life I was born ugly
Did you mean to say that the palpebral fissure will become more narrow with an attempted ADduction?
I caught that too, but he says it correctly each time after the initial error.
THE HECK IS HE TALKING ABOUT?
My 6 1/2 month old son was just diagnosed with type 2. We have been doing PT and OT for months for tortocollis, wondering why he still has the head tilt even though we’ve strengthened the neck muscles. I started noticing the occasional upwards eye shoots around 3/4 months but read that some strabismus can normal up until 6 months. In my son’s case it wasn’t getting any better and I linked it to the tortocollis issue. The OT, PT, and I recognized that looking to the right triggered it. My son hates looking to the right for that reason! Luckily our pediatric ophthalmologist is amazing and very knowledgeable. She could tell that my son is making a conscious effort to tilt his head in order to keep his eyes straight. Our pediatrician is sending us to an orthopedic doctor as well and doing scans to double check that there’s nothing orthopedically wrong with the neck. But the Duane’s syndrome is definitely contributing to the Torticollis!!!