See a Meniere's Attack | Ménière's Disease Vertigo Attack
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- เผยแพร่เมื่อ 15 ต.ค. 2024
- Watch a young woman experience a Meniere's Disease attack. Many patients are different and this is not the only way a Ménière's attack can affect a person. Ménière's Disease is a vestibular disorder that affects the inner ear and causes a vertigo attack, balance problems and hearing loss. It can also cause tinnitus, ear pain, ear fullness and on very rare occasions a drop attack. Most people are exhausted after an attack and often have nausea or throw up. Check out the comments and meet other people with Meniere's disease!
Watch my other videos on Meniere's disease here: • Meniere's Disease Videos
What is a Drop Attack: • What is a Drop Attack?...
Do I Need Brain Surgery For Meniere's Disease | Vestibular Nerve Resection Part One : • Do I Need Brain Surger...
Steroid Injection & Meniere's Brain Surgery Update Part Two: • Steroid Injection & Me...
Procedure For Meniere's Disease | Gentamicin for Meniere's Vertigo Attacks: • Procedure For Ménière'...
How Gentamicin Helps Meniere's Disease | Treatment For Meniere's Disease: • How Gentamicin Helps M...
Vestibular.org Info on Ménière's Disease - vestibular.org/...
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@CourageouslyKelly
🎵MUSIC: Artlist.io
🎥FILMED: September 2015
I had gone through it. It's that bad which makes us suicidal tendency. Stay strong sister.
You stay strong too. IT can be really really difficult. This is true suffering. I try to remember that life is still worth living even with this horrible disease. There are so many good things in life too. You are not alone! One step at a time.
I Fight again and again with this since 2000...In the first Betahistin Tabletts helped me quickly.In Moment I have Vertigo again.Its horrible...my Doc said,its psychosomatic..Stress.
@@Butterfly-qf1zh Your doctor doesn't have a clue. He/she should have chosen a different profession.
My attacks go from 8 to 24hours. I vomit, pee and poop there where I am lying. When I move my head a cm the heavy spinning starts all over again. So I cannot move, have to lie completely still. Ears full, weird sounds, cannot think or speak properly. Love to all sufferers ❤️
same for me too
My God, we have the same feeling, i couldnt even stand to poop and pee when severe vertigo attacked...i just used very shallow pan or container to avoid this mess..i wonder why pooping will come too, very disgusting and life changing disease😭
Just experience this for the first time two weeks ago
@@jenmoonlightgen6139 💗
@@UgandaSainik 💗
i was diagnosed with menieres a year or so ago, and i’m 20 now! it’s been tough with no one else understanding and weird having university friends watch your attacks or having to leave class. thank you for being so brave and sharing♥️
My heart is with you that you are dealing with this in university. It is so hard to have no one understand and to deal with it there, must be so challenging. You are not alone.
Those suffering from vertigo are some of the toughest people I know. I have had a few attacks of Benign Positional vertigo and they only last for 30 seconds when the floor slides out from under you - that is bad enough. The idea that you suffer for hours or days - makes me cry out for you. So glad you have got some relief you incredibly strong woman
Tony, thank you for your wonderful words of compassion, support and encouragement. That means a lot to hear. :)
Yes it’s HELL 😢
Yeah that’s an insane amount of time. So much so that it’s beyond comprehension. I had my first bad bppv spins 3 weeks ago and I was like “woah woah woah” out of fear when it happened and it only lasted 20 seconds.
I don’t wish this on anybody but it’s comforting to know that someone else knows EXACTLY what I go through with Ménière’s disease. Dizziness is NOT vertigo! Vertigo is a whole other monster. It feels like someone grabbed your brain (not your head) and shook it. I love how you compared it to a carousel because when I explain it to others who don’t have Meneire’s, I compare it to someone spinning me on a roundabout merry-go-round on a playground. That first jerk around is when the vertigo attack first comes on. Then the constant nonstop spinning but not as bad as the initial jerk around is what comes afterwards. Let’s not talk about how this disease doesn’t let you sleep 🤦🏻♀️ Or how it loves to take your breath away when it suddenly wakes you from a rem cycle. I do the same thing with my eyes in trying to keep them steady (even though the attack makes it darn near impossible) and I’ll try and focus on something. For some reason, a high focal point works better than eye level or looking lower.
Anyhoo, my apologies for the long drawn out rant but I appreciate you so much and you are in my prayers. God bless you, Sis, in Jesus’ precious, mighty and Holy name. Amen! 🙏🏼🙌🏼
I appreciate your message! I hate that you know and understand what it is like. But it is so good to meet and hear from other people who get it. I'm rooting for you and saying a prayer for you. We've got this!! On moment, one step at a time. Saying a prayer for you right now.
@@IncredibleAnywaya
It is so hard trying to explain to people they think it's oh you get dizzy yeah I've done that too they have no idea the length of suffering that we go through I am a terminally disabled Navy veteran and this disease is worse than anything else I deal with
I am suffering same 😢. it's horrible. no one can understand. and I wish no one suffer from this ❤ may God save all
I totally understand!!
Most people around us have no idea
Thank You for doing this…it tells all of our fellow sufferers that we aren’t alone!!!
♥️♥️♥️♥️
I know this may sound weird. But I live by myself, I put your video on during my attacks so I don't feel alone. You're an inspiration!! I appreciate having such wonderful company during our tough times ❤️
Not weird at all! I am so glad that putting on my video during attack helps you feel not alone!! Made my heart so happy to hear this. Thank you for telling me. Thinking of you. Hoping today is a non-attack day!
I feel like crying just looking at you. I have this along with fibromyalgia. God help us all. It is so awful there are no words. At least you are staying positive.
Qua Qua, I'm so sorry that you live with this as well as Fibro. Sending you huge hugs. You can and will get through this. Please let me know if I can be of any help or answer any questions for you! Kelly
@@IncredibleAnyway Thank you so much. I appreciate it. God bless and be safe.
I have Fibromyalgia for 17 years and the Meniere's for the past 2 years and I'm wondering if this is all part of autoimmune system attacking us.
@@SusieQ1971 I truly believe so.
I was diagnosed with fibromyalgia also
I've never actually seen anyone else go through what I've been going through for so many years not have I heard it verbalized this way 😭 I have to make myself stop crying so I don't mess myself up lol. You're so brave for this. Nobody else understands how strong we have to be. God bless your heart. Thank you for sharing this 💜💛
I’m so glad it was helpful for you. As you say, no one understands how strong we have to be. 💜
I've been diagnosed with Meniere's a couple of years ago. Luckily, I don''t get the vertigo attacks very often (yet). I've only had 2 attacks in the past 2 years. I was wondering, do you still drive? Cause I drive, but I constantly think about what could happen if I got an attack while driving and it freaks me out.
@@Bert_de_Wit I started noticing a difference in my vision months before I officially stopped driving. I haven't driven a car since 2017 because of it. No doctor told me not to I just know my depth perception is off & vertigo is an issue for me so I don't. I'd hate to cause an accident. I see a lot of people with Menieres who do drive though. I guess we all just do what we can until we can't & we're the ones who determine the difference.
@@emcglown I get what you're saying. Up till now, I've only had about 1 attack per year on average. That's why I still dare to drive. But I've read about some people getting attacks much more often. In that case, I wouldn't drive anymore. Losing my automotive mobility would be a life changing event for me. Like losing my freedom of movement and gaining an enormous dependency on my loved ones. A difficult situation that would be for me. Anyway, I'm still coming to terms with Meniere's. It kinda sucks.
Normally when I have attack I am already sitting then I move anything g in front of me away and lay my head down.
Endlessly impressed by your courage not only to post this but to record yourself during an attack. People like you make progress in the neurological field possible and ensure that following generations of patients will receive more effective treatment. As a side note, your positivity (for example the gratitude you showed at your migraines becoming more manageable) is inspirational!
Thank you so much for your incredibly kind words. I never thought about it that way, but I certainly hope that sharing my experiences leads to better care and more effective treatments! Gratitude saved my life and made my life. I realized that even on my worst days, I do have things to be thankful for (like the pillow under my head - or the heat running through my house) and I can have a good life. I only get this one and I'm determined it is going to be incredible anyway - no matter what the circumstances. I hope sharing my story empowers/encourages others to find their incredible anyway too. Thank you again for your comment. It encouraged me.
@@IncredibleAnyway It sounds like Meniere's picked the wrong person to mess with when it found you!
It did! :)
I've got it yet still expected to work.
@@IncredibleAnywaytry the epliley done at hospital
Kelly I watched the video for the first time today - I recently went through three months of the daily attacks. Had to leave my job and I thought my life was completely over. I see myself in your video. Almost exactly. My daily attacks stopped on their own but I still get them under certain conditions. Anyways I have never seen anyone go through what I experience and while I feel terrible for anyone who has menieres, I am somewhat comforted to know I am not alone nor am I crazy. Thank you for your courage. It is such a difficult disease to live with.
Hi Susan, wow, thank you so much for your comment. I'm so sorry you are also dealing with this as well. It is such a challenging disease. And because others can't see how bad it is on the inside, we can feel so alone. Especially when others aren't understanding or are judgmental. I'm glad to hear your attacks have stopped for the most part except on occasion. Rooting for you, Warrior! This is a hard disease, but we can get through! I appreciate when people share with me, because it helps me to feel less alone as well.
We all can help one another and I’m so grateful for you doing this video. Thank you. I’m usually at work when I have them. I’m a veteran and very spiritual. Hope in Jesus is my only way right now and I feel letting go of things that don’t matter in life is making me focus on more important things. I’m always doing for other people
You are in my prayers. Believe me I understand. I was a RN & Meniere’s ended my career. Lean toward the Lord. He has you!😢
Thank you. I just stopped and said a prayer for you as well. That is so rough that it ended your career. Please know you are not alone! Sending a hug your way.
Kelly, My heart goes out to you. This is the first video I watched of you. I totally cried seeing you go through this. You are such a strong and precious soul. I wish I could take this disease away from you. But what really encouraged me is when you said you prayed to God during these attacks. I’m glad you rely on Him. It’s the only way to get through the day is by staying connected to God. Keep sharing and encouraging with others about your experiences with this disease so we can understand it, and please stay strong, you are in my prayers.Thank you for sharing this vulnerable moment. ❤️
@Hanaluka Moon Thank you for such encouraging compassionate words. I felt it. Thank you for caring. God is my strength and refuge. I'm so glad to hear He is yours as well. :) I could not get through these challenges without Him. Thank you for your prayers and your kindness. They were like balm to my soul today. May God give you what you need for whatever you are facing in your life! Sending a hug. 💜😊
This is a very strange take on a Menieres attack. I’ve had this disease for 12 years I have it bilaterally. I have had several drop attacks and never have I ever had the ability to record myself let alone carry on a conversation with anybody while I’ve had one of these attacks I’m sweating profusely, vomiting violently And cannot move as if I’m paralyzed and this can go on for hours. It’s amazing how this disease can affect people in such different ways.
Yes, meniere's comes in lots of different forms. Aside from the key symptoms of hearing loss and vertigo, other symptoms and experiences vary across people. I was diagnosed in 2010 and this was filmed in 2015 and my experience changed over time as well.
Rooting for you. Bilateral is rough. You've got this!
I wish I had some kind of sign in enough time to record an attack just for my family and friends who have not been around when I’ve had one because unless someone sees it they have a hard time understanding what we go through. I’m glad I found your video, it helps having something to show just how horrible this disease is. Wishing you well ❤
Thank you for posting this experience so that others can understand our pain.
Hey amazing lady. Im sobbing watching you. I cant quite find the words to describe what happens to me during these attacks. I've suffered on and off for the last 15 years. Im practically deaf now but my recent attacks have been increasingly violent and im now recovering from from a bad fracture to my skull and had my chin stitched back on. It was utterly terrifying and I can not help but fear it happening again. After 15 years this is like new monster. God bless you and thank you for sharing. Prayers the clever guys find something soon to give us our lives back xxx
Hi Heather, thank you for you really sweet comment. I am so sorry I'm delayed in responding. I hate that you deal with this and have gone through it for so long. I hate that you are having increasingly violent episode! That is so scary getting the skull fracture! I can only imagine. Do you have MEneire's in both ears or just one? I have it in my right ear only. I'm so glad my video was of encouragement to you. It's so hard to go through this especially when it makes us feel so terrible and is hard to explain. You are not alone!! Yes, I truly hope and pray for treatments that will change our lives! Warm hugs coming your way. Let me know if I can be of any support to you. :)
It's amazing how you can do such a lucid commentary whilst obviously suffering so badly during your attack. Great that you can still laugh through your difficulties. My dad has dizziness spells and this video helps me to understand what he may be going through. It gets him down but as you say you have to stay positive and hopefully I can find ways for him to do that. Good luck and hope things get better.
I got diagnosed with it when I was 19, after a car accident. When I was 16 I was having small symptoms but it got way worse when i got into the wreck. I’m at 70% hearing loss now and my meds barely help. I went with only mild attacks for a month or two but not they are getting severe again. Every time I have them I can’t help but cry or feel like the worlds ending bc it feels horrible.
I have been trying to see a new ent bc the last few I saw said I pretty much have to live with it and they can’t do anything.
I was happy to see this video because you explain it very well and show it. I haven’t seen anyone video their attack. Thank you for this. ❤️
Oh wow, that is really rough that the car accident made it so much worse. I'm so sorry that your attacks are severe again. It truly feels like the world is ending. I hear you. Are you affected in one or both ears? It is hard to find a good doctor. Have you looked into Neurotologists (not neurologists)? They are ENTs that specialize in treating the ear and in my experience, they are the best for treating Meniere's.
Let me know if I can be of any help or support! I'm so glad that the video was so helpful for you. You are not alone. This is a rough rough journey, but you can do it. One step at a time. Here for you!
So... I just want to say thank you for making this video, I didn't know how dumb these attacks could look from an outsider's perspective and I can see why people thought I was crazy. I'm sorry you're going through this and before a year ago, I didn't know what Meniere's was until I was told to do physical training and when they told me my symptoms matched up to this disease that people say is either common or rare to have... being a 19-year-old today and still getting tests done and having vertigo and tinnitus hasn't been easy. Hopefully things get better for you and everyone that's going through any disease.
I have had drop spells not many, but even ran into a wall. Double vision. Ear pain & fullness, extreme vertigo with panic attacks. Nausea. Sweating profusely. My speech is affected somewhat. Falls. Headaches. Weakness. What keeps me go? I am a very spiritual person. Teach Sunday School & have a deep faith in God.
My heart goes out to you. This is such a hard disease. Thank you for sharing your experience. I'm glad that your faith in God keeps you going! That is so important!
I have been lying to myself to a while now, and am finally coming to terms with this I'm a welder and I cannot have this but looks like we don't get to choose, when I have an attack, I tell people I have an ear infection. Thank you for this. I know this feeling, your strength is beautiful
Thank-you for sharing, I'm still passing tests for a diagnosis, I've had two severe attacks( one lasted 4 days). While waiting I have good days and bad days. I've lost confidence to drive or go for walks. It's very discouraging and scary. Im sorry for you,and everyone else who has this disease. Im praying for me and all of you❤
It does take a lot of tests to get a Meniere's diagnosis. I'm really sorry to hear your attacks have been so bad. You know yourself, so trust your gut when you don't feel safe to drive or go out for walks. It's better to be safe. I understand how discouraging and scary it is. I really do.They come without warning. I've said a prayer for you. I'm rooting for you. Here if you need anything or have any questions. ❤️
I've had very similar attack three weeks ago, lasted for days. So far the only diagnosis I have is BPPV. I feel that this is Menieres Disease.
I struggle with daily Vertigo that's on top of this. Thanks for sharing! I'm not alone I see.
That is rotten you had a similar attack. Usually people get a diagnosis of Meniere's when they have hearing loss since that is a part of the diagnosis. Have you gone to vestibular physical therapy? That might be really helpful for you adn they will be able to help with BPPV. I've also had it for Meniere's. Vertigo is rough - way to go for warrioring through! You are not alone! Sending a hug.
I was diagnosed with Meniere's last week and as a musician and an English teacher, I'm devastated and terrified. My symptoms aren't completely unbearable quite yet despite the world being in constant shaky cam mode, but I've had a few days where it was almost impossible to function. Over time this will cost me my job, which I love, and everything else that makes my life worth living.
I’ve had it happen at work twice now. Both before the start of the day. The first time I hit my head and needed 7 staples. This last time, I was fine all the way there. It hit before I got out of the car. I was sitting in my car. I had to call my sister to come get me and call admin to inform them I wasn’t coming in, why, and that I had a ride coming. This is the fourth year I’ve worked here but I didn’t have it happen the three years prior. The year in between put me in the hospital where they did a stroke work up. I still haven’t been diagnosed with anything yet. The last few, I can’t walk, barely hold myself up, sometimes fall flat on my face, I sleep all day after the first little bit. I can’t stay awake not long after. I have to pee a lot while it’s going on. I’m also hot and cold.
Thank you for sharing this. I was diagnosed in 2012 after a car accident and my intense desire to know why I had the wreck. I too have had attacks similar to this one. Fortunately, not every day. I do have almost daily mild (3)attacks with severe (7+)ones more than once a week. With You’re video, I was finally able to explain this condition to those who haven’t seen it. I’m glad your migraines are better and I am glad that you were able to receive treatment to help the vertigo. God bless. And thank you for having the courage to share this with us. My prayers for mild symptoms and a breakthrough cure.
Hi Chris, I'm so glad that my video has been helpful to you and others. It is really hard to explain Meniere's and why it is so debilitating if someone hasn't seen it. And vertigo is hard to understand unless someone has experienced it because it is more than dizziness. I'm sorry to hear you are having almost daily symptoms and so many severe attacks a week. Have you received/tried any treatment for it? Do you like the specialist you are seeing?
I'm still getting treatment for the Meniere's. I just recently got another gentamicin treatment. If it doesn't work, I probably will get the Vestibular Nerve Resection Surgery. Please let me know if I can be of any help or support to you! I will be praying for you that you find improvement and of course that we get a cure for Meniere's disease. I had a physician tell me recently that in many people, Meniere's disease "burns out" and eventually they aren't affected by it anymore. That would be wonderful, wouldn't it?!! I haven't met anyone who has experienced that, but I definitely hope it is true! Kelly
Hi Kelly. Thanks for sharing your experience with us. It was very heartbreaking watching your attack. I can totally emphasize with how you are feeling during these attacks. I haven't been officially diagnosed with MD but my all symptoms point directly to it. I've been dealing with mild dizziness and vertigo for a few months with no other symptoms and I've been to dr after dr without any explanation for my symptoms. These episodes would come and go and I everyone told me it was stress. A week ago, I felt severe tinnitus in my left ear and the feeling of fullness, like my ear was clogged. At first the vertigo wasn't too bad but a few days after I woke up to the whole room spinning. I couldn't move my head or sit or stand without feeling like I was going to fall over. I immediately went back to my ENT who finally admitted it is probably Meniere's but said my hearing wasn't bad enough to confirm it. He prescribed a diuretic and Valium. Since then I've seen no improvement in my symptoms and I'm very depressed. I can't walk for a few minutes without the room spinning (even typing this is making me very lightheaded and tired). My left ear is still clogged and I'm afraid that feeling will never go away. I was hoping a week on corticoids would clear it up but they did nothing to help. The most frightening part to me is that there is nothing sufferers like us can do about it except deal the symptoms for possibly the rest of our lives. This has to be one of the worst things to deal with and I'm finding it very hard to adjust. I appreciated your words of positivity even during your attack but this is devastating to me and I'm not sure where to turn. It helps to get some of these feeling out. Thank you for reading.
Hi Kelly. Thank you for writing back and for all the detail you provided about your experiences with MD and the condition in general. I firmly believe a positive attitude is essential but it's hard when you don't know what to expect each day and so many things I've read on MD offer little hope for long-term relief. Still, I am determined not to let this define the rest of my life.
The loneness is compounded when it's hard for the people in my life to understand the full extent of my symptoms. In spite of the constant dizziness and debilitating fatigue, I'm maintaining my balance and seem "normal" on the outside. I know my family takes it very seriously but their fix it seems is to tell me I need to go out and "get my mind" off things. I can't seem to explain that it affects everything I do and hear. MD is so rare and poorly understood, it's hard for people to get their heads around what these symptoms are really like.
My vertigo has not significantly improved since I wrote. It is definitely not as intense as it was last week but changes hour-to-hour. I can feel almost "normal" at times and then suddenly start to feel unsteady. At this point I usually sit or lie down for a few minutes and it passes, but not always. I feel some tinnitus relief and the clogging in my left ear is slightly better (or maybe I'm just getting used to it), but it's intermittent and randomly comes and goes throughout the day.
I have some updates since I wrote last week but every time I hope for some answers, I only seem to get more questions. My ENT repeated the hearing test and although it shows some low frequency loss in BOTH ears, he said my results are within "normal range." Next, the caloric portion of my VNG shows nystagmus abnormalities in my right ear. I found this odd, because the clogged feeling is in my left ear and the tinnitus can be heard in both. My ENT thinks it's possible that I have bi-lateral MD, which I'm sure you know is even more rare with this condition. As you mentioned, he referred me to a neurotologist for further evaluation, but I can't see him until mid-June. Yes, I have also had an MRI and MRA done and both came back clean.
In the meantime, I've been learning all I can about this condition. Thank you for all the resources and advice. I will definitely look into rehab and the Calm app you mentioned. Two things I wanted to ask since you didn't mention it are nutritional supplements and upper cervical adjustments.
I've read that upper cervical chiropractic adjustments can in some cases provide relief. The theory is that if you have a subluxation of the C1-C2 vertebrae, it can cause improper function of the central nervous system which can manifest itself in inner ear disorders. I was initially skeptical but I have seen it appear on several support boards and websites focused on MD. You have to find a chiropractor who are specially trained to deal with the neck and they are hard to find. I managed to consult with two in my area and both seem to agree that I have misalignment at the base of my skull but unsurprisingly, neither have treated MD in patients. The both claimed to have eased vertigo in many cases. Do you have any experience or thoughts on this? I don't want to start a regimen that is unlikely to have any positive benefits.
As far as supplements go, I understand Lipo-flavonoid and Gingko may help provide some relief with tinnitus. I've also read promising things on Pycnogenol to help improve circulation and a few things I hear indicate Vinpocetine may help as well. I just started taking these supplements and will be happy to share my experience in a few weeks, if you like.
I'm also sticking to a strict, no-caffeine, low-salt diet.
On a personal note, I want to thank you for sharing your personal journey with MD. I'm very sorry to hear that you've been unable to find long term relief for your symptoms in spite of the decompression surgery and gentamicin injections. I had read a lot of hopeful things about gentamicin and I am sorry it wasn't a permanent solution for you. I read about the negative effects of the treatment so I truly hope you didn't experience much in terms of additional hearing loss. I admire your courage and optimism despite your struggles and your words are very encouraging to me. I am happy to hear you are living a full life, full of happiness and hope. Thanks for sharing your videos with us and continuing to help increase awareness about this very debilitating and misunderstood condition.
Please don't feel the need to write back immediately. I appreciate you listening and offering support. Take care of yourself and remain positive as much as you can. Your approach to life is hopeful and inspiring and I wish you good health and longer-term relief of your symptoms in the future. Take care.
I have you tried betahistine?
Hi Ernest. Betahistine is not FDA approved in the US. I have heard that it is commonly prescribed overseas to help with Meniere's. Do you have personal experience using it and have you had positive results?
Hi Phil , your story is so similar to my 😢im suffering with dizziness 😢
Omg watching you this is me too a t. Wow.thank you SO MUCH for doing this. I appreciate it so much.
Thanks for posting this! It's such a frustrating and scary disorder. I've gone through this a few times now and it's 100% miserable each time. The anxiety and fear of another attack afterwards is rough to deal with too.
I agree. It is so miserable. And you are so welcome. I can understand the anxiety adn fear of having another attack. Vertigo is a monster that is hard to understand unless a person has been through it. You’re not alone.
I’m going through the same problem right now. I feel you sister.
I'm so sorry to hear that. My heart is with you. You're. not alone.
I hope you get better, no one should be alone during this frightening thing. Gosh your really brave. Does anyone else want to just comfort her. it's awful, I had vertigo slightly and couldn't deal. What a trooper.
Thank you so much for your kind words! Did my heart good to hear them.
God bless you sweetheart! I too struggle with this lousy Meniere's disease. It completely incapacitates you
Thank you. I’m so sorry to hear you have Ménière’s disease too. It is SUCH a challenging health issue. Rooting for you. You aren’t alone. We can do this!
Thank you for making this video I've been suffering with vertigo for years and the doctors isn't taking me serious enough and seeing its because of my anxiety but the way you look in this video is exactly what I experience every single day and I'm now 23 and basically housebound I can't leave without getting drop attacks
I'm so sorry to hear that you are suffering like this with vertigo. Have you been to an Ear Nose and Throat doctor or a Neurotologist (an ENT that specializes in the ear)? If you haven't, I HIGHLY recommend it. They have a lot more knowledge and experience with vertigo and Meniere's. Anxiety does not cause vertigo and I'm sorry they are not giving you proper treatment because that is their VERY misguided belief. Let me know if I can help you in any way! Rooting for you - keep me updated.
You're doing well my bad attacks I'm in the tub vomiting pooping and peeing.. my last attack lasted from start to finish about 36 hours.. stay strong my MD Brothers and Sisters WE ARE WARRIORS!!
Rooting for you! We are warriors!
Oh my word. How awful x. So sorry for anyone going through this wow x. My heart goes out to you all xxxx.
I found your channel after researching about Meniere’s Disease. I think I’m at the mid stages of it. I have so many of the classic symptoms, just not to the severity of yours. Stay strong gf, we’ll get through this together. 🙏🏻🙏🏻😞💕
I'm so glad you found me! Yes, please stay strong! Keep fighting. You are not alone and I'm always here if you need an ear or have a question. Take care of you!!
I had a sudden vertigo attack about ten years ago. Initially feeling a little woozy and sat down, then laid down as it worsened. I rang my partner at work and she said drink some water. A tap was three meters away and I couldn’t reach it. Very scary I was thinking is this it before a paramedic arrived. The next four hour spent in the casualty ward with bright lights a lot of noise with my head spinning like crazy I’ll never forget. I can’t begin to imagine the hell you and others are constantly going through. As for me active and almost 80 it’s still there everyday but not completely debilitating. You’re very courageous taking the time hoping it will help others ❤️
My grandmother has meniere's disease and symptoms appear in myself. Just turned 21 and have had vertigo attacks start again. They last the same amount of time yours does to about 12-15 hours and even when i sleep. Thank you for showing this video and sharing what it is like to others!
Thank you so much! I'm happy to hear the video is helpful in some way. That sucks your grandmother has Meniere's. I'm so sorry to hear you are having vertigo attacks too. Vertigo is so hard. Have you seen an ENT? Let me know if I can be of any help!
@@IncredibleAnyway I have not, I think I will see if some get more intense before going, Healthcare is too expensive!
Omg yes healthcare is SO expensive.
thank you for sharing and being open about it , may god grant you strength
I feel for you. I had this yesterday for 24 hours and still today a bit...I'll have to get to the doctor ... these episodes are horrible. I can't even get comfortable in any position. I couldn't even eat, was too nauseaus. One time it happened outdoors and I ended up at the doghouse instead of the entrance to my house. I think summerheat and low pressure weather triggers it with me. The sensation of falling is horribe. It is very scary!! Thx for sharing.
This video really helped me, this is what I go through too. It's disabling, it's everyday. I'm a single mom, I don't have time for this...... thank you for sharing. God bless you. I'm trying to stay positive too, its rough for sure.
Thank you for sharing your story
You lady are real hero. In fact all people dealing with Meniere disease are heroes for me. People have no idea how much inner strength it takes to deal with it. I am suffering from tinnitus and during days when it was constant very loud high pitch noise in both ears for days I was thinking about suicide. However nowadays I know even intense tinnitus is nothing compared to Meniere or other diseases. Your inner strength and positivity is so inspiring, thank you so much. You are incredibly strong woman!
Thank you for your wonderful encouragement.It means a lot. I am so sorry to hear you deal with such significant tinnitus. My heart truly goes out to you. Rooting for you, warrior! We all have battles to fight and all we can do sometimes is keep taking the next step. You've got this! 💜
I feel for anyone with this. I have lived with vertigo for 4 years now. It is pure misery. Prayers sent.
Thank you for the prayers. My heart goes out to you. Vertigo is hell. I'm rooting for you. One day at a time.
it changed my life upside-down since 2011 I'm scared to drive anymore or even working and I always thinking of the coming years
thank you but unfortunately not cause I'm living in a 3rd world country (Tunisia ) I can't trust doctors here i just taking anti vertigo when get the attack. thank you for the reply and I don't feel alone when I find someone feel my illness
well i want to notice that the most bothering thing is that loud Tinnitus it drove me to the suicide it is so bad horrible
thank you for the support and nice to meet you too I'll let you know
I don’t drive or work anymore either, any update
Med student here!
Thank you so much for sharing your journey - I feel like futur health professional can learn so much from this valuable inside!
(also it kinda helps me a lot to remember the different symptoms of the specific disease).
I hope you are doing better now and stay strong as I imagine this must be really taking a toll on you.
Greetings from Switzerland :)
Thank you for your comment! I'm so glad that my video was helpful for you. I can only imagine what a wonderful health care professional you are going to be if you are looking at patient experiences. I had a Vestibular Nerve Section for Meniere's disease last year. It is more rare nowadays because usually intratympanic gentamicin injections helps patients. Unfortunately the inner ear hair cells of my ear kept regrowing (didn't stay dead) and gentamicin was not a treatment that helped me. After 9 failed injections, we did a Vestibular Nerve Section. Thank you from the bottom of my heart for watching my video and for caring. I wish you all the best in your schooling and in your future career! :)
Hey Kelly,
I had these attacks from oct. 2010 untill nov. 2015 (it starts after a parachut jump).
I had every day a constant weak dizziness and every 2-3 weeks a massive attack over 1-2 days with loosing all sens of balance, extreme dizziness and multiple vomiting attacks until chocking off pure galle.
My cure was taking a very high dose of Bethahistin (Vasomotal)
3x72mg (1-1-1) per day...
Only with with this dose it worked and I had no attacks from nov 2015 until now...and since jan.2018 i reduced the medication too zero.
No new attacks until now.
Important is that i allready tried bethahistin from 2010 -2015 but not in such a high dose... and it didn't help!
In heavy cases people must try to push the dose up too 3x72 or even 3x96mg per day and keep it over 2-3 months to test (and keep it if it works)
I hope I could help u, try it if you can. Get well!
I’ve been having this for like 4 months, don’t leave my house sometimes
Dimana saya bisa mendapatkan betahistine dengan disis tinggi?
Thank you for sharing. I too have been diagnosed with menieres. You went from bright chatty and upright, to completely incapacitated. When it hits it is totally debilitating
Very good points. It is totally debilitating. I hope me sharing helped you feel less alone. I'm sorry to hear you've been diagnosed with Meniere's. Rooting for you! Please let me know if I can be of any assitance!
i was there 20years ago and i finally got better. i know what you are going thru. last bad attack i thru up bile and it was bad. hold the faith.
Thank you for sharing jd. I'm sad you went through this too but I am so happy to hear you got better. Thanks for the encouragement!
I have this to. Born deaf in my right ear . My attacks make so dizzy that I vomit.And sweating bad. Don"t know what I can do. I try to drink lots of water ,gave up caffeine. Just started seeing Doctors for this, but I don't have much faith in them. It is very scary and you feel helpless when it strikes.
I’m so sorry this happens to you and everyone who’s suffering❤❤❤❤❤❤
Thank you - that is really kind of you to say.
I'm currently going through the stages of diagnosis and finding it very hard... im so glad I came across your video, it's like looking at me , you are so brave for doing this and not letting it hold you back thank you for sharing, I haven't officially being diagnosed with menieres as of yet but I know I have it. I have been told I have vestibular migraines it's just so so handsome days and some days it's hard to get through the vertigo and spinning and symptoms. Keep being strong and thank you for sharing. Squeezy hugs and sending healing hugs your way 🤗
Hi there Jenny. Going through diagnosis can be such a hard path. Take heart. You know your body. Keep trusting yourself. Has a neurotologist or ENT done any testing of your vestibular function? It is possible to have both vestibular Migraines as well as Meniere's (I have both).
If your vestibular testing did not show anything now, if you indeed have Meniere's disease, as it progresses, the vestibular testing will show that you have it as time goes on. So take heart, it may take some patience to getting a correct diagnosis if that is what is affecting you. Have you had your hearing tested? An ENT can also set that up.
Irregardless of your diagnosis, I'm so glad you found this video! Vertigo is so challenging and incapacitating. And I hate you are going through it. Know that you are not alone! Keep putting one foot in front of the other! You can do this! Don't be a stranger. Sending lots of hugs your way! 💜
thank you so much you are so brave. I was dx with vertigo a few days ago. it's a scary time but I think it's only temporary BPPV. What were your symptoms in the beginning? Was it bad vertigo out of the blue?
Thank you for making this video so I can show my doctor because it’s been so hard to describe the attack!! ❤
I'm so glad the video was helpful! It is *very* hard to describe an attack. And a lot of it is what we are experiencing inside and often times it doesn't look like anything to other people.
I have it for 20 years.
I have no attacks anymore.
The day i stopped taking caffeine I stopped having attacks.
I only had one drop attack, in the first day it started. Never after that.
I only get weekly migraines and extremely loud tinnitus every second of my life. I also have involvement of the neck muscles... I am generally bad with balancing now. But my only treatment was avoiding caffeine. If you want to talk about it you can send me a PM. Thanks for sharing your experience.
Thank you so much for your comment and for sharing. What a wonderful thing that you were able to discover that caffeine were triggering your attacks! I'm so happy for you. I have not eaten or drank caffeine for 11 years since before I was diagnosed with Meniere's, so that is not what is triggering me. But I appreciate your comment as many with Meniere's will see this and perhaps will stop eating/drinking caffeine because of it.
I'm sorry to hear that you have such terrible tinnitus and deal with the migraines. Keep fighting the good fight. I also have frequent Migraines, so I understand how hard that can be. Rooting for you.
I’ve been having dizziness every day along with tension headaches for about a month now. Ear filling full and tinnitus developed about two weeks later. No noticeable hearing loss and no spinning vertigo sensations. I know everyone has different symptoms but did yours start out similar to mine? Hope things have gotten better for you ❤️
If you haven't seen doctor, I would consider it with the symptoms you are having. I'm sorry you are going through all that. My Meniere's disease experience started very differently than what you are going through. Mine started with severe vertigo from the very beginning. I had violent rotational vertigo. I felt like I was dying it was so bad (I actually went to the ER.) The ear fullness/pain/hearing loss came later for me. Let me know if there is anything I can do for you or if you have any other questions. Keep taking one day at a time. You can do this!
@@IncredibleAnyway Thanks for the reply! I have appointments lined up with a neurologist/audiologist/ENT in the next month.
Oh that is excellent. Let me know how it goes!
Has your condition gotten better from a yr ago? I have similar symptoms as you. Woke up in the middle of the night Monday and my head was spinning. It's Wednesday now and the spinning slightly subsided but I feel dizzy rather than spinning at the moment. Head feels a little heavy than usual. I hope this isn't the first step to either MD. I also have tinnitus for as long as I can remember but it's not as severe with normal hearing(for now).
@@jonathanfiel6215 In regards to the dizziness it has gotten better but I think my body has just gotten used to it at this point. I’ve been to a neurologist and a neurosurgeon and haven’t really gotten any answers. I don’t want to scare you and you should never self diagnose yourself but I think what’s causing my symptoms is craniocervical instability. It’s a rare neck condition that’s hard to diagnose so it’s probably not what’s going on with you. But a lot of my symptoms match up with what I’ve read. Hope you get better I know balance problems aren’t fun.
Thank you for sharing. I'm so scared and helpless when happening. I can't. .....
Wow! God her all the strength she needs to live with this challenge. Only you know what and why is in our journey. You have the strength in God to deal with this. ❤
Thank you so much! I appreciate your prayer more than you know! 💜
Smart to video document the condition. I've done the same thing. I wouldn't wish this on anyone. My last episode happened while driving, literally scared the crap out of me. I barely made it home. My head was plastered to to the headrest and i couldn't move my head to change lanes.
Agreed, I wouldnt’ wish this on anyone. That is such a scary episode to have while driving. My heart goes out to you. Thank you for sharing. You’re not alone!
@@IncredibleAnyway How are you doing today? I feel lost, as it relates to any help from my doctor. He gives me 10 minutes of his time, and basically, that's spent getting him up to speed, even after seeing him for 10 years. I'm sure mine is related to Ankylosing Spondylitis. I see him tomorrow, as a matter of fact. I take anxiety meds for a sleep aid, because of the pain and if I go without sleep, I'm going to have an episode.. Double edge sword, I swear.
I'm sorry I didn't see this until today. If your doctor isn't giving your time and isn't meeting your needs, it's time to find another doctor. Doctors are supposed to serve and help their patients not give you ten minutes. Good doctors see you for more. My heart goes out to you that you have Snkylosing Spondylitis. That is rough. How did the appointment go? I really encourage you to think about finding another doctor. As the patient, you have the power to say, I dont' like the care I'm getting and to find someone else. I've had to do that multiple times and it can be really hard especially when I've been with a doctor for a long time. I just had to leave a doctor that I LOVE becuase his nurse was so bad nad impacting my care negatively. I saw this doctor as family and hugged him every time I saw him. And I miss him, but I knew I had to do what was best for my care. And while it was scary to leave him, the next doctor is fantastic and I'm *so* glad I switched. I'd love to hear how the appointment went - please let me know if there is anythign I can do.
Thank you for sharing! I don’t feel so alone anymore!
That makes my heart so happy to hear. I’m sorry you go through this, but it is so good to know we aren’t alone!
I keep teying to explain it to the people in my life. This video shows that words alone can't explain it. You are understood by me.
Lynzy, I know. It is SO hard to explain to others. I'm so glad this video is helpful. Thank you for telling me you understand . I have a video coming out in the next week or two that shares more about Meniere's called "Day in the Life: Meniere's" and may be an easy video to share with people in your life who want to understand. Meniere's is so hard to explain because so much is going on in the inside. It is hard to explain/show how debilitating it is. My heart goes out to you. You are a warrior.. I see you and you are not alone. Kelly
I still appreciate your comment three years later❤ Still trying to explain.
❤️ I see you. I’m so sorry. I’ve thought before that if other people would have to experience what we live through - just once- it would be helpful. Invisible illnesses in general are so tough to explain. But Meniere’s is hard because people just dont’ get how debilitating vertigo is. It’s not dizziness. It is all consuming - disorienting - nightmare-ish - hell. I have people in my life who didnt believe me and while it hurt initially, I eventually realized I didn’t need their opinion. I knew what was real. I knew I’d never choose to live like this. Please let me know if there is anything I can do for you. You’re not alone. ❤️
I have just been tentatively diagnosed with this disease. I see the specialist in July. Just watching this is making me nauseous and dizzy. Not sure if it was a good idea to watch this and see what could be in my future.
I’m glad you are seeing a specialist. Have you had any testing done? I can understand why watching this video would be disconcerting. You never know what the future will hold. I’ve learned I have to stay in the present, or I borrow problems that I don’t have yet. And that is too much for me! Rooting for you! Please let me know if you have any questions about Meniere’s or if I can do anything to help.
Oh,
I watched the whole video.
I have been having, not exactly the same, but similar attacks since my teens.
Definitely since my 20’s
I’m 60 now, and they just keep getting longer and stronger.
But until our daughter talked about what was happening to her, and what she found out about it.
Well, let’s just say the lights are coming on for me.
I hope you’re alright!
This was scary to watch!
We will.
And thank you for the response!
I had to watched this. I am diagnosed with Meniere’s and all the falling and loss of hearing are the things that is happening to me currently. 😢 Maybe I could lookup what to do for this problem for the future while watching this video.
God Bless You! I had one vertigo attack one morning when i was getting up to go to work. Horrible, turned out i had low blood pressure. Caused by dehydration possibly.
Oh wow dizziness/vertigo from low blood pressure can be very horrible too. I have chronic low blood pressure and have to have a drink nearby me always bc it can get too low and my body needs more fluids. So glad you were able to figure out what was going on. Thank you for sharing!
Thank you for recording this. I'm amazed how the attacks can seemingly come out of nowhere. It's like one moment I am ok and then I look to my left or right and I can feel it coming on. I have POTS, so one doctor tells me to eat tons of salt, but I told him I started noticing a correlation between that and my ear/vertigo getting worse. I'm going to start avoiding it and see if I feel any better. I've been in a terrible flare. I have about 3-5 mins to get meds in me, lay down in bed and don't move my head at all or the nausea is so bad that I will dry heave. It's awful.
I have the same issue. My cardiologist tells me to eat more salt. My neurotologist tells me to eat less. The frustration of having two health issues that treatments contradict each other! I'm sorry to hear you've been having such a hard time lately. My heart is with you. Ihope today is a better day. And if it isn't, please know you are not alone.
Hello Kelly I was diagnosed with this and I just wanted to know when did you first know there was a problem? How old were you at this point and then how long till you got diagnosis, also is this life long disability for you?
Thank you for this. I haven’t fallen yet but the room spins violently for about 5 seconds and then stops. Then I’m dizzy for the next few days , it’s so scary , I haven’t been diagnosed yet
You are very welcome. The room violently spinning is such a scary experience. Have you seen a doctor? Let me know if I can help you in any way! I hope you find answers and help to your vertigo very soon!
Did you figure it out?
I feel exactly the same..its so scary.hope ur ok now.. did it go away?
Can it be treated?
This breaks my heart- daily chronic migraine disease is bad enough without adding this to it. I've only experienced vertigo with mine a few times, and it wasn't like this- I'm so sorry you have to deal with this as well.
Thank you for your empathy....truly. It means a lot to me and it says a lot about you that you are compassionate. I am sorry to hear you've had vertigo with your chronic daily migraines. As you say the migraine is bad enough by itself! Vertigo is so hard to describe and it can make life so much harder. It is hard, but I do my best to have a good life anyway! :)
Incredible Anyway having the most positive attitude possible definitely helps. And prayer! God has gotten me through so much.
Thank you for sharing that! Yes! Same here! I could not live through what I live through without God's daily strength! It is hard to suffer, but Jesus makes my life worthwhile. It sounds like we have a lot in common! I'm so glad you have commented! :)
Incredible Anyway yes He does! It does sound like we have a lot in common and thank you! I'm so glad I found your channel!!
@@IncredibleAnyway Dear i have a good trial for this disease there are some herbs reduce this effects so much and they doesn't have any side effect
Some of theses herbs is : ginkgo biloba you can take 160 milli gram one or twice a day
You will get better as you can't imagine it also it has a lot of benefits for all body
Note : be careful to get good source of it
Beast ones you will fined in Austria or german
Hope you speed recovery
This is the way I would get in a menieres attack .they were much worse at the start when I was 27yrs old .I live with Tinnitus and I've now got pulsatile tinnitus in my good ear since I got Covid .menieres sucks you are so brave I know exactly how you feel xxxx
Aw that sucks about the tinnitus and the meniere's! Yes Menieres is hellish! I wish you didn't have to experience it too. Rooting for you! We've got this - one day at a time.
Thank you for making this. I just had the worst Ménière’s disease attack yesterday. I’ll try to remember how you dealt with yours and apply it to how I react, to not freak out and just take it in stride with humor if I can.
I'm happy it was helpful. And I'm so sorry to hear about the Meniere's attack. My heart goes out to you! At one point I would freak out when I got attacks too because they are so scary and hellish. It took some time for me to realize it was easier on me to endure/cope if I was calm and tried to laugh - but it's definitely not easy at all! Sending hugs your way!
heart goes out to you. one of the worst diseases
I used to have bad attacks like this. I get emotional just watching you go through this. Meniere’s attacks are extremely draining. I am soo grateful for the regimen that I am on right now. I have t had a drop attack in 3 months and no spins for for 3 months. I pray for you to get relief.
Maybe what I do can help:
I’m on Serc daily. No salt added, all low sodium foods if you must have it. No cheese, no packaged meats. Walking for 30 minutes daily and vestibular rehabilitation therapy exercises. They work finally.
Thank you for the empathy, Sabrina. It's hard to watch someone suffer especially when we really know what it's like. I'm so sorry you have dealt with this too. I am so so happy to hear that you regimen is working right now! Thank you for sharing your regimen! As we share a unique experience with Meniere's, you can imagine how thrilled I am to hear you have benefited from it! Sending warm hugs.
I have Meniere's as well. I was able to predict every move you were about to make because of my own experiences. When you slid down to the floor and stayed, I knew it was because it took so much out of you doing just that much that you had to rest and regain some equilibrium and be still a few minutes before trying to lay down. I've really considered making videos for people because very few people understand but I'd have to edit out the disgusting parts lol. I spend hours vomiting and going back and forth between the chills and the sweats (as you said you do) once it really settles in. I get to the point that speaking is no longer possible.
I hate you have Meniere's! It's such a challenging disease. Oh man, I'm sorry you vomit so much! My body does not vomit unless I am deathly ill, so I lucked out on not getting that symptom. MY heart goes out to you that you do. It is so hard for others to understand how debilitating and hellish Meniere's is. I hope that in some way my videos helps people with meneire's feel less alone.
thank you for the video. had my 1st vertigo attack couple days ago which lasted for about 4-5 hours. already refer to specialist for mri ecg blood test etc. from the blood test, infection number seems reducing but creatine kinase is increasing the next day. have u ever come across that? next consultation session will be in next 3 days to review the results of mri and ecg.
Thank you so much for making this video because this is the only way I was able to describe it to my doctor
I'm SO glad it was so helpful to you. Thank you so much for telling this to me. You absolutely made my day. I hope your doctor was able to help you.
I am having this tooo 😢😢😢😢😢 ... Oh god please bless us with new technology to cure this disease please
Oh my heart is with you.
Thankyou for sharing your experience with us, it's been very useful/helpful to me. I've decided I'll start my own video diary so the doctor and some family members can understand and see what is going on with me... It so true how you said you have to stay calm , it's super important to stay as calm and positive as possible so not to work yourself up or scare yourself. It's already scary enough going through this illness , I wish there was a fix all cure .
I'm so glad seeing my experience has been helpful. That is such a great idea to start your own video diary to help others understand what is going on with you. Are you seeing an ENT or neurotologist for the Meniere's? Often times Gentamicin injections can completely eliminate the vertigo for people. It did not work for me, but I'm a small percentage of people it didn't work for. I'm getting Vestibular Nerve Section to end the Meniere's vertigo in May. Really hopeful!
That's a pretty mild attack. When mine come on, I am totally incoherent, throwing up, and praying to God to help me through. I don't see how you were about to talk or even move. One of the reason's I learned ASL
Diseases such as Meniere's have a spectrum of illness where it can look different from person to another person and even within a person it can vary day today and/or over time.
Whether a person is having a "mild" or "severe" Meniere's attack, it is an incapacitating experience I have incredible empathy for. I am sorry you suffer with Meniere's and I hope you find a treatment that helps you cope.
Your assessment of this attack is inaccurate. Meniere's disease is an invisible disease in that severity of vertigo cannot be seen or assessed in a video (in addition to the other invisible symptoms of an attack). There are many people like myself who do not vomit unless something is deathly wrong (i.e. bowel obstruction). Vomiting is not an indication of severity of vertigo. Additionally, I have sopite syndrome which is a condition where my brain stem shuts down my body and forces it to sleep when I experience severe vertigo. This happened during this video. I did not move for a good portion of this video and was indeed praying to God audibly to get me through.
Discussing the severity of someone else's attack/illness/disease in comparison to oneself is a zero-sum game. Neither party benefits and neither does the community. As a community of sufferers, we need to come together and support each other and encourage each other in the horrible disease we are experiencing called Meniere's. We are all suffering. Suffering is suffering. Incapacitating is incapacitating. Discussing the degrees of either is pointless. Meniere's is a hellish disease no matter how we slice it. No one who has it is unscathed.
Comparison is the thief of joy and compassion is the fulfillment of it.
I hope you have found an excellent neurotologist who is supporting you on your journey. Grace and Peace
I can't be around anyone either. The last several years I have found myself with the lights off and complaining about any sound that I cannot control. Sudden loud noises are the worse. Today my right ear has been ringing bad and in a different way. Very high pitch tone even higher than normal. I used to get a low pitch and hollow ttpe tone and I felt like I was in a different world. My ENT doctor mentioned to me a long time a go, after an audiology test that I had signs of Menierres disease.I don't have a formal diagnosis I guess but I am about to find a way to get back to the ENT doctor. Today, I felt the pressing need to pull over because I felt nautious and my focus was altered some.
Do you drive or are allowed to?
Do both of your ears ring or just one?
Are you able to sleep? Is your sleep hygiene good? Mine is horrible and the constant neverending ringing keeps me up. Its always there and lately it has gotten worse.
Has your ear ever popped so bad that it has jolted you?
Does your vision alter from loud and sudden sound?
How has this affected your work life?
Thank you so much for making this video. I hope you are feelimg better.
Hello, how are you now? I have the high pitch tinnitus it doesn’t bother me much but the low pitch is just awful and it occurs with vibrating/pulsing. It’s awful.
I don't have meniere's disease, but I do get dizzy due to Anxiety, and panic attacks for almost two years now my dizziness feels like I'm walking on a boat, sometimes I feel like I'm falling (stinking to to the floor/drop sensation) and there are times I feel like I'm titling towards one side, and there's the lightheadness, faint feeling, and vertigo which I dont especially as much as I used to, but I remember the first time it happened I was at work when it hit me I lasted for a few minutes, I stood up because I felt like I was falling, so once I stood up my surroundings was spinning so fast I had no idea where I was, I couldn't see anything I was suprised I was able to maintain my balance, but my legs started feel jelly it scared me, and threw me into a panic attack, my 4th panic attack I everytime I went to work after that day I felt so disoriented (Derealization & Depersonalization) where I feel like I'm not on my own body, and everything around me looks, and feels dream like, fast forward a few weeks later I started experiencing vertigo only when I'm laying down my right side, with my eyes shut if I open my eyes I wouldn't feel the vertigo, but I'll feel the dizziness, and I do gave ringing in the ear on my right side, it went away for a few months and switch over to the left ear sometimes I'll get it on both ears but not as loud as it used to be, it did made me depressed, sick to my stomach, bed ridden even agoraphobic, but once I reduced my stress, I don't feel as dizzy, no more depression, I still have ringing in the ears but they come, and go but it doesn't bring me down like it used to, now I'm just working on leaving my house, even driving again something I didn't think I'll be able to do anymore.
I felt like I was reading my own comment. Did things get better for you?
It could be PPPD
Just come across your video. I have meniere's too. Thank you for sharing. X
Of course! Thanks for watching! I'm so sorry to hear you have Meniere's too! Let me know if I can be of any support or if you have any questions! If you have Meniere's I KNOW you are warrior! Keep fighting and putting one foot in front of the other! You are not alone.
When you have your attacks get on the floor on your knees sitting on your legs and feet and put your head between your knees. That makes the nausea and vertigo drastically reduced and goes away faster. Do you have misophonia with it, selective sound sensitivity? Because I deal with that 24/7 and creaking the camera noises are unbearably irritating along with typing noises clicking and stuff like that makes me insane to deal with. Thankfully I have a referral to an Otologist in San Francisco but the misophinia and tinnitus is 24/7 but my Meniere's episodes are happening about once per week now. I had one once while driving and couldn't find somewhere to pull over and park. Getting in the monk meditation position and putting your head between your knees is so much better than what you're doing to help reduce how uncomfortable your symptoms are. For me the nausea following the vertigo can last for hours too. They are bad enough having the attacks once per week for about 10 min cant imagine having this bad of an attack multiple times per day. Sometimes I just feel a little dizzy and feelings of depersonalization sometimes. I've passed out a couple of times where I don't remember landing on the floor and wake up on the floor. I don't know if Meniere's has anything to do with it. I'm so sorry you suffer to this extreme and you look so young. I got it at age 47 and I'm 50 now. What medications, treatments, surgeries have you had? How long have you had this condition? I just worry about getting progressively worse as I get older. When I have an attack I just remind myself this is better than having epileptic seizures or cancer or something. Things could always be worse. I couldn't tolerate the diuretics either waking up every 2 hours all night to pee and dehydrating me and causing wrinkles faster. It also caused me to have tinnitus 24/7 and it has never gone away even though I stopped taking the meds months ago. And yes I watched this to the end. People have no idea what we go through. I just find I have less and less tolerance being around people and very few I can tolerate. My mom makes me crazy with her bossiness and controlling nature and I don't like being around her.
I'm so sorry to hear that you have Meniere's as well. I hope that he otologist appointment was/is helpful! I was diagnosed with Meneire's in 2010. I have hyperacusis. I went through treatment for it with an audiologist, so it is much better than it was. I also could not tolerate diuretic because they made me dizzier. I had an endolymphatic sac decompression surgery (no shunt). I've had several steroid injections and gentamicin injections. That is really sweet of you to watch the video the entire way through. Thank you. I have other Meneire's videos on my channel if you are interested. Here is the playlist link: th-cam.com/play/PLTGnpduSk6I1tC5YaFiOfTmpytbA1X_Nm.html. I truly hope you find some help! Let me know if I can be of any help! Hugs!
@@IncredibleAnyway If you have had all of those treatments and yet no relief have you tried Chiropractic, acupuncture, and diet changes? They said stay away from caffeine and sugars. Well I drink sweetened coffee daily and can't stop, too addicted lol. If none of those 3 suggestions work, I know as a last resort they surgically remove whatever is in the ear canal that keeps swelling up with fluid.
Sadly i got diagnosed with Vertigo a couple months back. I actually never knew what they were until they started getting more often and more severe. It started off with my stomach hurting (as in needing to use the bathroom) thought nothing of it until i sat down and started getting dizzy, hot flashes and nausea. At first i never got the ringing in my ears until later on. I had 2 attacks that were horrible recently with again the same warning symptoms but one of them were different then the first one. I was in the kitchen and i just felt something off ( i felt weak and started getting tummy aches) so i got on my knees and laid down in a fetal position trying to calm myself because the more i panic the worse it gets. So i laid down, i was sweating uncontrollably, hot flashes and cold chills, nausea, loud ringing in both ears (prevents me from hearing anything or anyone nearby) I can’t speak, loss of balance so i literally have to lay down until the episode goes away which the most lasts about 5 minutes. It really sucks and thankfully they’re months apart, i always get worried if i’m ever driving and i get one. Hopefully this is easy to understand for those who suffer from Vertigo (Meniere’s disease)
My heart goes out to you. Thank you so much for sharing your experience. I understand what you are saying. You are not alone! do you have a doctor (Ear Nose and Throat doctor) that is helping you with these episodes? Let me know if I can be of any help.
@@IncredibleAnyway Thank you for replying! And actually i do not have that type of doctor, the last attack was really bad i felt like i was dying. I called 911 and i was at the hospital and that’s where they diagnosed me. Do you have any tips on how to calm down during the attack? It can be tricky to, sometimes my methods work and sometimes they don’t.
I understand about feeling like you are dying. Early on when I had vertigo, I also called 911 because I truly thought I was dying. It is such a disorienting and horrible experience. Panic and anxiety is so common during vertigo. It can be really hard to get through. You are not alone in that.
What I do is try to focus on what I do have control over: my thoughts/mind game is the first thing. I try really hard not to let my mind spiral into a dark place with dark desperate thoughts. I remind myself it is temporary and as severe as it is, I will get through it. I tell myself I am not dying. I actually talk to myself out loud and coach myself through it and say things like "you can do this." "This won't last forever." "I'm proud of you."
The other thing I have control over is my breathing. Slowing our breathing down can help us cope with the panic/anxiety. There are several breathing techniques that can help us normalize your breathing - i imagine a youtube search would bring up some videos. But I try to slow my breathing down, breathe deeply from my diaphragm. Breathe in through my nose for four counts, hold for four counts and breath out through my mouth like I'm blowing out a candle and repeat.
If I can stand it, I will try to distract myself with an audiobook/podcast or tv show even if I can't see it. If I can't, I try to just get through the next second. Sometimes I will have a phrase in my head that I repeat depending on how I'm being affected - something empowering or positive or encouraging, reassuring or hopeful. "I can." "I will" "I'm not alone." "I'm okay." "This will stop." "I am resilient." I'm a person of faith so I sometimes say "God is my strength." Whatever helps me through the moment.
I try to make sure I am as comfortable as possible. Whether that means having the dogs cuddling with me or giving me space.
I hope this is somewhat helpful. Maybe when my vertigo has improved some I will make a video about this and ask others to comment what they do to help them through to keep calm.
It always feels like I’m getting hit with energy that just knocks me off balance. Out of no where sometimes. Other times it’s slowly
I have been diagnosed with this disease just a little over a week ago... And i want to ask how to deal with the vertigo when you have to travel with a plane?
When I was diagnosed with Menier’s in 2013 my ENT said it would last months to years and could possibly go into remission. Well it’s been 8 1/2 years and I still have attacks, but I’ve learned how to live with it and make life more manageable. I chose not to take diuretics and to treat it strictly with my diet. I’m very strict with what/how I eat and I only consume about 1200-1500mg of sodium a day. That has been working for me all these years and even though I still have attacks, they are much less frequent and intense. Most of my attacks just last a few minutes now and only have severe ones every couple months. But when they are bad they are similar to what you experienced in the video. There were times when I knew exactly what you were feeling in the way you described what was going on. I noticed you posted this a few years ago, so I’m hoping you’re doing well today ❤️
Thank you for your comment, Mindy! That is wonderful that you are able to do so well by controlling your diet/sodium! Makes me so happy to hear that it affected the severity and frequency of attacks! Sending a hug your way!
I never sleep lying down anymore TOO, I sleep in a Recliner. Being in crowded area makes it Trigger, Stress too.
You are incredible! Brave woman!!!
That is kind of you to say. Thank you.
I too suffer from Meniere's. I pray that in the years since you posted this video you have found some relief.
My heart goes out to you. I exhausted all treatment options and finally had Vestibular Nerve Section (brain surgery) for Meniere’s in May 2023. I’m still recovering, but no more Meniere’s vertigo attacks! I share my journey with teh brain surgery on videos here on my channel. Please let me know if I can be of any assistance. It is such a challenging disease.
Was the surgery necessary, it's so scary to hear that, plz reply 😭😭😭
@seemakhan633 There are many treatments that people find helpful for Meniere's. It is very rare to need the surgery I had. It is rarely done. I had Meniere's in a debilitating way for 13 years and did not respond to treatments that usually help others. What treatments have you tried for Meniere's? Can I be of any assistance?
@@IncredibleAnyway I'm not sure if I have menieres, I'm glad that u take time and reply to each and every reply
@seemakhan633 absolutely. Well a lot of tests have to be done to rule out/rule in things before any diagnosis surrounding dizziness/vertigo is made. So your ENT will have you do those tests and after the testing period is over, they will tell you what is going on and give you a treatment plan.
Kelly, it was so hard to watch but very educational..thank you...i hope you feel better these days..
Im on the edge of being diagnosed as the mau said it was hemiplegic migraine
..but now i beleive its menieres...my family suffer from this...
Am booked for neuro consultant , bht may infact just need to see my ENT specialist ...
It was fascinating to watch you go completely white when you collapsed to the floor ..
...lateryou went bright red as if the blood started pumping after stopping for a while
I had my soell walking down the stairs, later collapsing in the bathroom.
I was so lucky i didnt do fatal fall down stairs or hit my head on bath or toilet..
They say meneires disease wont kill , but in my eyes it can cause death by fall..
..people must never drive ...or operate machinery...
Bless you, all sufferers
Hope you are all having good safe days
💚💚💚💚💚💚💚💚💙💙💙💙💙💙💙
If you are having vertigo, it probably is good to be seen by both the neuro consultant and an ENT specialist. Vertigo can be caused by either system and neuro causes need to be ruled out for Meniere's to be diagnosed.
I don't think the blood stopped pumping. But how I was feeling absolutely could've affected my blood pressure.
I certainly think it is important to be careful when going up and down stairs or whenever you are feeling vertigo. And exactly - no one who is feeling compromised should drive a car. Better safe than sorry for everyone.
I wish you the best in finding a diagnosis so you can also get treatment! I'm sorry that you are experiencing these symptoms. It is so hard. Please let me know if I can be of help in the future!
Do you take any kind of medicine? I have Meniere's for 4 yrs now and had only a few attacks.. Meclizine 25mg helps me big time..
I'm sorry that you also have Meneire's but so happy that Meclizine helps you. I did not help me much. Diazepam is something doctors often prescribe for acute Migraine attacks and it and be very helpful to cope with the vertigo. Sadly, there aren't a lot of tried and true oral medications for Meniere's. It is common in Europe for patients to be prescribed betahistine, but my doctors in the US haven't found it helpful with their patients. I have had injections in my ear of steroid and also gentamicin.
You can see videos about some of those things on my Meneire's playlist of over 15 videos: th-cam.com/play/PLTGnpduSk6I1tC5YaFiOfTmpytbA1X_Nm.html Soon I'll be sharing a video about what a gentamicin injection in the ear looks like.
After an vertigo attack when I lost control of my legs and specialists requested MRIs with contrast I was diagnosed with strokes NS (TIAs). I have brain cancer (glioblastoma).
My heart goes out to you. I'm so sorry that you are dealing with brain cancer. All the symptoms must be so rough. Rooting for you and sending a virtual hug your way.
You are a strong woman
I have been watching your video and as you're sitting on the chair starting to enter into the ring of hell, my palms are beginning to sweat. I felt this terrible anxiety for you because I too suffer from vertigo, it is horrible. I did noticed how stressed you are when talking about all that needs to be done in your home. That you haven't eaten and you're talking about all the things that need to be done. Stress, stress, stress. Here you're about to go into a full blown Vertigo attack! I believe stress is our enemy. I'm glad you're doing so much better. ❤
Thank you for your empathy, Roberta. My heart goes out to you that you have vertigo as well! You know how hellish its. Yes! I agree! Stress can affect our bodies in such significant ways! And I was under an incredible amount of unspoken stress when this was recorded 6 years ago. I'm reading a book called "The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma" by Bellel van der Kolk and it is very eye opening on how sensitive our bodies are. Sending warm hugs your way.
@@IncredibleAnyway I will look that book up. I am so glad I found your videos. Watch you with your pup and your driving again! And going out to eat! Gives me hope.
I am living this. Everything you have said is real. It's like being a non human...
I'm sorry to hear you are going through this too.100% It is like being a human. It is such an unbelievable experience that is hard to understand unless one has gone through it.
I pray you get better soon stay strong
Thank you for sharing. I've been dealing with Menier's for many years. Some episodes last a minute or two, some up to 2 hours. For me, they come in clusters. A very bad one 6 weeks ago lasted 2 hours (covered in sweat) at 3:00am and took out 75% of my hearing in one ear. I usually have nystagmus with an episode lasting longer than 1 minute.
My heart goes out to you. Menieres episodes are so intense. Thank you for sharing your experience. You are not alone.
Kelly this Video was 6 years ago how ARE you Doing now?
Hi Sherri - I was diagnosed with Meniere's in 2010 and this video was recorded in 2015 but not uploaded til later. :) If you want to check out my vlog, I have videos on how I'm doing lately. In short, over the years, I had countless intratympanic steroid injections, 9 intratympanic gentamicin injections and as none of that helped -as a last resort, last year I had the Vestibular Nerve Section (brain surgery) to eliminate the vertigo. I'm still recovering from that, but I cover every step of the surgery/recovery on my vlog. :) I'm rooting for you in your vertigo journey!