Caring for a husband with dementia: Marion's story
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- เผยแพร่เมื่อ 29 ก.ย. 2024
- Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.) Every Sunday, I share a video to help you in your dementia caregiving journey.
In today’s video, I chat with Marion. Marion shares her story of caring for her husband with dementia. The quick steps she took after starting to notice her husband having trouble are impressive! I think you'll learn a lot from what she has to say.
My apologies for the auido feedback during parts of this interview.
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Thank you so much for sharing Marion. I related to a lot of what you said! And yes, God is helping us too, VERY much! I was a nurse as well, my folks live with us, and my Dad also has Alzheimer's. My husband, who was Dx'd 2 years ago, are 61😟.
I am going through very same thing 😢 My hubby sleeps most of the time😢 I have been a caregiver ( Thx God) I cld understand most of the symptoms ❤️ It soo hard living with a stranger most of the time 😢 Her hubby and mine are almost the same
My hubby has other additional health problems 😳
Parkinson’s has set in legs and I must be careful with his walking
Nights are Horrible 😢 He keeps looking for his parents , soo sad
Thanks for sharing, Marion. I’m new to this, but I learned a lot from listening to you and the Careblazer lessons.❤️🌹
Thank you Marion for sharing your story! We are 10 years into this and my hubby has had a very very slow progression of Alzheimer's for which I'm thankful for. It's helpful to hear others' stories and also your trust in God. From the beginning He has made it clear to me that He is my helper and will never leave me or forsake me.
How is he doing today?
Cling to him as he will be gone all of a sudden. Be joyous in the time you have left and don't dwell on the small stuff. You are obvious a loving partner and are a true warrior in your journey to comfort and love him, When it's time, the Lord will take over.
She is SO right! The doctors offer NO concrete resources! 😥😥😥
Thank you Marion. You are an inspiration in staying positive which is just what I needed to hear. My partner Jack has dementia and we are on our own in terms of support. I’m still have 10 yrs until retirement so caring and working full time are hard. Listening to these videos are a great help and certainly give me so much information. Im in the uk and have only been told Jack has dementia without knowing which sort. The meds available on nhs made his very anxious so he is not medicated now. Considering an anti anxiety drug to calm him. Good luck and thank you
Marion, my story is much like yours. A nurse by profession with a contractor husband with MCI and now Dementia. Having to find people to fix things that he always did. Taking away driver’s license and learning to control my voice and facial expressions to avoid conflict. He always shopped and cooked, that now falls on me. I have been watching Care Blazers for about a year to teach me the skills to proceed. Hearing your story let’s me know that I am not alone! Thank you for sharing!
I can't even get our doctor to give a diagnosis. In two days we are going to see him and I'm going to insist he sends us to a specialist.
What an angel! Marion does not realize how amazing her journey has been. She is curious, open and adaptive to all the changes going on with Andy. Love her perspective.
My spouse was recently diagnosed with moderate dementia. He is 79 and I am 69. I take care of him. He can still do some things like writing checks and trying to balance the check book. He also says memory is bad and it's old age..etc..I know it's the dementia but he says it's because he has so much on his mind and so many things to take care of. I'm also dealing with his Temper flares and getting him to take a shower.
Sending you strength and patience 💛
I'm eight years into taking care of my 82 yo husband with dementia. It is very slow moving so I'm grateful for that and how mellow he is. I didn't have any trouble getting him to retire or to stop driving. I do have a some bitterness in that physically he is in perfect shape. He even breezed thru his eye exam today. We could have spent all of this time camping and seeing our country.
It is hard on me in that I do everything. We had a really wonderful partnership in our marriage with a fair division of labor so it's been stressful doing everything, taking care of him and myself.
I so relate to your post. At 87, my husband is still in pretty good shape, and I so wish we were able to go and do more. I am 70 look and feel younger, and in excellent health so I feel very tied down by this. As far as doing everything, I do , although he will hand wash dishes and carpet sweep. I have learned not to let the small stuff bother me. Example: the light in the ceiling fan is out. I’ll get to it. In the meantime the lamp works fine. He is also mellow and appreciative of me and tells me repeatedly. It helps, but after a while I don’t know what to say back anymore! I have turned to Gd during this illness of 9 years, and that definitely helps. We were true partners, and not having that is hard.
I just want to have him back so we can go have fun together.
I am thankful that we downsized from a big home to a townhome right before we discovered my husband's dementia dx. That gave me less to take care of on my own😊
Thank you... I think, drawing, would be a good thing for anyone with dementia. It gets to use a part of our imagination....just a thought..
Thank you, Marion, for sharing with us. You're such a sweet lady and your husband is so blessed to have you at his side. We can do all things through Christ who strengthens us, right? :-)
Thank you for sharing Marion’s story. It is also similar to mine, except my HWAD is 71 yo. My HWAD was such a handyman and now like Marion I have to get someone in for anything I can’t fix. I do the shopping (he too did the grocery shopping and cooking in the past) so now I do it all! I like the idea of a monthly list of to do chores. My HWAD is on Exelon patches and I have made an appointment to review this medication with the Geriatrician due to the side effects. I agree your courses and You Tube Videos are so beneficial. After completing the 14 day challenge I have just signed up for the Careblazers Care Course,. I have researched a lot as well which is how I found you, Dr Natali. I agree Health Professionals do not always have the answers for us.
Thank you. I am still learning. Praise God, I too have to depend on Him to give me the strength and patience.
Noticing a lot of CareBlazers are x-nurses.
Blessed be the man who finds a woman like this in this day in age..🙏🏽
So familiar and I loved your comment on how sweet he is. My hubby too but he was not sweet before and all of a sudden he got really sweet. I wondered if he realized how vulnerable he had become. thx for comment about hard to adjust and neg feelings. I am struggling with that too. You were very helpful, Marion. I admire you.
She is right knowledge is Power God blessed her.....
Thank you so much. I didn’t feel so alone after watching this.
Marion, thank you for sharing your journey with your HWD. I can relate to much of what you shared. And thank you, Dr. Natalie for offering another wonderful story of love, compassion and caregiving. 💞
My H was “diagnosed” with dementia by his PCP with a similar paper test and outcome. H is in denial and does not recall ever being told that. When I later asked what could we do/should we consult a neurologist or
how can I help him …the answer was astonishing: well, there isn’t much , but one thing you need to know is that this will be progressive .. it will get worse. !!!!!
So very sad that family practice doctors are not equipped to help.
Thank you again for every video, every lesson you so generously offer, Dr. Natalie. ❤
Marion, I just listened to you sharing with our sweet Careblazer Doctor. I can't tell you how much I needed to hear this. My LO has LBD and I won't leave him more than a few minutes. I realized that I need to smile more, I lost it along this crazy journey. Blessings 😊
3-20-2024....My recommendation would be to pray a lot and have lots of patients
Marion, I appreciate you sharing your experiences with us. It's wonderful to hear that you have used this experience to grow as a person. I hope I can follow in your footsteps and improve my caregiving for my mom.
Thank You Marion, I’m my mom caregiver and I’m exhausted mentally and physically. I watch videos about dementia but I have found one that is similar to my mom episodes
Correction, I meant I haven’t found one
I am new to this condition. But thank you for sharing...I am feeling all of what you are going through. If Im happy he is happy if Im angry he is angry. 😢😢😢
Thanks so much! Mary’s story is very similar to mines. I really appreciate you sharing Mary. God Bless You and your husband.
The children are in dinial... they know something is wrong but dont know the day to day care 😢
God bless you, Marion. You are such a good person!
May God bless you Marion. My situation is very much like yours except that my husband has several other problems. He has diabetes, kidney disease, chronic a fib. I too learned a lot from watching Careblazers videos and I too look to God for the strength and help to show me how best to take care of my husband.
Thank you for sharing… it’s identical to mine….but I am still not in the compassionate stage…I need to learn to be more compassionate…. My biggest challenge is having the whole world on my shoulders and not getting any help from him anymore…. He did all the cooking…cleaning and absolutely everything in the past….
Such a good one make me more strong feeling am going through....you are awsome...am learning from your Videos....
What a beautiful site and so helpful. Thank you, Marian for your stories, strength and kindness.
Go with the flow is great. My mom asked me to call her mom, my grandmother, who passed 15 years ago and tell her where she was for safety. I just said "you got it. I'll let her know." It was a good moment with no flare up. Go with the flow.
My husband is 60 and I am 51. He has Lewy body dementia.. it’s hard to remember myself that I am not alone.. thank you for your stories I am tired and frustrated but your stories get me through the day..
Hi, I just wanted to say that you and your husband's health journey that your not alone. I am 57 my husband is 60. We both have severe autoimmune diseases. It takes all our strength and energy to just get through the day. We mostly take care of ourselves and not each other. You can do this, find your social support as well as any family or friends. Ask for help when it's needed, like someone bringing you a meal or coming by for a cup of coffee. Marion's story gave me a bit of a boost saying
"I got this" 😊👍
@@toryberch thanks for sharing!! I will pray for you and your husband
@@brandieh8134 😊😊 thank you
❤ sending u hugs Marion, my mum cares for dad, ya’ll are angels
Thank you for shearing. Each of us comes at it Glad to hear others expressions. We are all in this together
Marion! How great you are, thank you for sharing!
I cannot seem to find the name of the book that Marion shared ?
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I am so thankful that I live in a state that accepted Medicaid. My partner recently was enrolled in a program administered by Sisters of Providence. It offers 20 hours of home help It also has a adult care program. All paid by the state and federal government.There is some relief for us. I finally have someplace to turn to when we are in crisis.
Thank you for sharing this, it is really helpful. I searched for the book Mary mentions at 8:40 but couldn't find it. Do you have a link to it?
I also couldn’t find the book, but another book - ‘The 36-hour day ‘was recommended to me and has been extremely helpful. It’s a Johns Hopkins Press health book.