Caring for a wife with dementia: The importance of staying connected

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  • เผยแพร่เมื่อ 14 ธ.ค. 2024

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  • @DementiaCareblazers
    @DementiaCareblazers  3 ปีที่แล้ว +9

    What words of support do you have for Byron?

    • @papabear2515
      @papabear2515 3 ปีที่แล้ว +1

      What a kind, brave, loving man. You articulated your story so beautifully. Take care of yourself. It’s is very important. All the best to you and to your wife.

  • @dr.parkersvideos5991
    @dr.parkersvideos5991 3 ปีที่แล้ว +4

    Byron's was a great testimonial. Several advantages that came into focus through his narrative - conscientious foresight, family support, creative engagement, and strong financial security. He would exemplify an 'ideal' caregiving situation, and his wife is blessed to be cared for by him. Many caregivers are in less fortunate circumstances in some of these areas, but it was good to hear about the loving effort and creativity he continues to put into his wife's wellbeing.

  • @jujuoliver6959
    @jujuoliver6959 ปีที่แล้ว +2

    Lovely man. He doesn't look old enough to have been married 60 years. My sister going through lewy body dementia with Parkinson's at the moment. So glad he is so capable and able of looking after his wife so well. Bless them both.

  • @lydiakinnaman3679
    @lydiakinnaman3679 ปีที่แล้ว +1

    Thank for sharing..... helps people sooo much just to know someone understand and not alone . Yes Careblazers is A GOD SEND.

  • @marij3219
    @marij3219 ปีที่แล้ว +1

    Totally inspirational. My husband is having some cognitive issues. His mother had AD and we helped with her care so I am very familiar with the disease and I would assume when we are ready to go for diagnosis that is what they will find. He is understanding of most of what is happening so we watch Careblazers together. You, Byron are exactly the kind of caregiver I want to be. I'm learning so much and even at this early stage I'm learning things not to do that I had already found aren't useful. Like you we've had a long and wonderful marriage and you are my model of the kind of care my husband deserves after so many loving years. Thank you so much for sharing. Your wife is blessed to have you. God bless you both.

  • @jennywisnoski7932
    @jennywisnoski7932 2 ปีที่แล้ว +2

    You sir are a gem!

  • @deborahsnyder3289
    @deborahsnyder3289 3 ปีที่แล้ว +3

    He is so caring and proactive!

  • @johnhanna5065
    @johnhanna5065 3 ปีที่แล้ว +9

    What an inspiration. My wife’s dementia seems to be in an acceleration phase. I have experienced most situations Byron described, and like him, realize that care giver education is unfortunately the number one “treatment” for Alzheimer’s. We are all trying to hang in there and Careblazer videos make it a lot easier. Thanks, Natalie, for another choice interview.

    • @johnhanna5065
      @johnhanna5065 3 ปีที่แล้ว +2

      It sounds like Byron has as much awareness of the disease prognosis and his role as anyone and seems to maintain a wonderful positive outlook. Taking care of yourself, supportive children, and continued prayer is paramount, both for guidance and Mercy. I have found exercise a great relief of stress and I also have a very encouraging internist who cares about my well being as much as my wife’s. He can tell when I am down and I am extremely honest with him. Even though I am a physician, he will tell me when he thinks I could use a medicine for sleep or depression. It helps to have someone brutally honest with you as well. Thanks for sharing your story.

  • @familynash3579
    @familynash3579 3 ปีที่แล้ว +4

    Most prepared spouse I have ever heard about! What a GENTLEMAN! Remarkable.

  • @francoforleo4971
    @francoforleo4971 3 ปีที่แล้ว +4

    Byron, thank you for sharing your experiences. Natali, to you too for shedding light on this unknown and scary journey we are experiencing in caring for our loved ones. Knowing that we are not alone and sharing helpful advice is crucial. I live in South Africa and my partner is 12 years younger than me. A pharmacist by profession with a memory which impressed all. Sadly she cannot work any longer. She has become very needy and insecure. Doesn’t want to leave my side. Self care and alone time has become a big issue for me. Your posts are helping me to understand this journey, for which I thank you.

  • @wandalanders8700
    @wandalanders8700 3 ปีที่แล้ว +2

    Byron, I so understand the stress . My husband sounds so much like your wife. He is now were he wants me to be with him at all times. He is forgetting his grandkids. Sometimes, he has trouble with his children, who he doesn't see often. Having trouble trying to find what I can get him to eat. I have learned that I have to just live one day at a time. With Covid, we just stay home. I wish you well and God's blessings on you, your wife and the family !

  • @gabrielaongay1273
    @gabrielaongay1273 3 ปีที่แล้ว +2

    It's really obvios when you study and read as much as possible about the disease, the stress level totally goes down and our LOWD is better. Byron is a testament to it!

  • @keithtaylor9750
    @keithtaylor9750 3 ปีที่แล้ว +2

    Fantastic interview,a lot like my situation! He reminds me a lot like my grand dad. A VERY WISE MAN , Educate ‘s him self well, very much a loving man, thanks for having him on !

  • @jamesdehart442
    @jamesdehart442 3 ปีที่แล้ว +7

    Thanks Byron. It’s nice to see that your so upbeat about your situation. Maintaining friends is so important I’m trying to do that too. I like Daniel 12:13. The angel told Daniel to go his way until the end then he would find his rest and stand in his allotted place on that day. I just try to do that just keep going until the end. God Bless.

  • @dianeslocum6575
    @dianeslocum6575 3 ปีที่แล้ว +8

    Another heart tugging story of Love ,compassion and strength through The Lord being a source so many of us have knowing he is there all the time does help to cope with the situations that come with this . Thank you for sharing a small part of your life with your wife with us please continue to take care of yourself and remember you have touched someone else's life with you and your wife's story ..

  • @marieapplesgate5650
    @marieapplesgate5650 3 ปีที่แล้ว +3

    Byron, I am so impressed with your calmness, ability to research and learn everything you can to help not only your wife, but yourself too. I feel so motivated to put in more effort to do the same. Sometimes I have gotten into a pickle where I can't seem to act. I feel overwhelmed & helpless. When this happens, I am less effective and sometimes get nothing at all accomplished. Your calm demeanor and strength could be FELT! I am going to continue using your strength and ideas to do my very best. I know that it isn't easy for you even though it appears easy because of the way you speak. I hope that I can have even a small percentage of your fortitude. Clearly you love your wife. One thing you said, "this too shall pass", was as if my Dad was speaking to me. He died 17 years ago today. My Mom has dementia. From listening to you, I feel like I can handle this, that my strength has returned. I can't thank you enough. I will follow your lead with my chin up, love in my heart and faith to carry me through the rough spots. Blessings to you, your wife and family.

  • @barbaracarr17
    @barbaracarr17 3 ปีที่แล้ว +11

    Byron, I'm grateful to you for sharing your story. Your work to stay healthy displays your love for your wife and your family. Hang in there! We all benefit from hearing all the things you've done to have the best life possible with the challenges you face.

  • @joterry7928
    @joterry7928 3 ปีที่แล้ว +8

    This wonderful man definitely thinks "like an engineer!" I was so captivated by his story, which he told with details yet he wasn't boring in the least! What an absolutely wonderful husband he is! My uncle's name was Byron, too, so I was making a connection there, too. Thank you both for giving us this interview! Five stars!
    Heavens! Byron does NOT look like he's 82 years old! That must be a benefit of all the years of healthy eating! :)

  • @dmonty8721
    @dmonty8721 3 ปีที่แล้ว +2

    Wow this was a great video. My wife is 62 and was diagnosed 4 years ago and I have experienced similar issues as Byron. Very helpful.

  • @likeakittie
    @likeakittie 3 ปีที่แล้ว +7

    I love how understanding and gentle you are in listening to Mr. Byron's story ❤️ Thank you Mr. Byron for your experience and education for us who are learning about dementia. Amazing video!

  • @ssutherland9019
    @ssutherland9019 ปีที่แล้ว +1

    Great interview! Get breaks when you can. I like that.

  • @susandraws
    @susandraws 3 ปีที่แล้ว +4

    This was fantastic! Byron shared such helpful information, and your questions were great. You’re such an empathetic listener. He covered everything that I needed to hear, having a husband with Alzheimers. Thank you so much for this.

  • @gaildall9348
    @gaildall9348 3 ปีที่แล้ว +1

    Byron, you are an inspiration! What a kind gentle soul you are.

  • @jamiehiker
    @jamiehiker ปีที่แล้ว +1

    Thanks for sharing this! Such a good message which is uplifting.

  • @tickytootoo453
    @tickytootoo453 3 ปีที่แล้ว +5

    Wonderful interview! I learned so much from this gentleman! Thank you both!🙏💓🙏

  • @judyortiz5745
    @judyortiz5745 2 ปีที่แล้ว +1

    This was just wonderful and very helpful. I’m just beginning our journey.

  • @JD-od8jn
    @JD-od8jn 3 ปีที่แล้ว +4

    What a gentle nice man Byron.
    My husband with VD is verbally nasty, never can monitor one hour to next when he will have a tantrum. Horrible disease

  • @jimhamilton3730
    @jimhamilton3730 3 ปีที่แล้ว +5

    Byron. Thank you for your most interesting interview for Careblazers, We are the same age and going through exactly the same experience. Your description of ‘going home’ and ‘table setting’ are very familiar daily occurrences which can be very upsetting at times.
    Thankfully, my wife still recognises me. I have respite care to allow me to play 9 holes of golf three times a week locally with my buddies. I have never gone fishing or shooting. We live in Hereford, UK.

  • @patplewa5469
    @patplewa5469 3 ปีที่แล้ว +3

    Thank you for sharing your story..God bless you.

  • @donnavillareal4627
    @donnavillareal4627 3 ปีที่แล้ว +2

    So helpful and jnspiring. I'm gonna have to come back to this more than once.

  • @harryhillin9912
    @harryhillin9912 3 ปีที่แล้ว +3

    Thank you for sharing your story. One thing I found with combination locks on the doors is you can call your 911 and give them the code incase they need to respond they won't have to break in if you can't open the door or get to your phone to let them in. If you haven't read these two books I have found them extremely helpful and might suggest them for anyone dealing with a loved one with dementia or alzheimer's. The 36 Hour Day by Nancy Mace, for dealing with dementia, and Many Wonderful Things by Robert W. Huffman and Irene Specht for an insight into some faith based support for yourself and Gods plan.

  • @ralphmitten7660
    @ralphmitten7660 3 ปีที่แล้ว +2

    Truly enjoyable. Thank you for sharing.

  • @rondaleistiko1227
    @rondaleistiko1227 ปีที่แล้ว +1

    My mom has a allergic reaction to iodine so it couldn't perform these tests, but she totally fell all the other tests.

  • @raquellevin3982
    @raquellevin3982 2 ปีที่แล้ว +2

    I am 73 yrs old and I have Dementia. Oh darling I listen to you when I see you . I’m not to bad. I want my family to listen to you but they don’t listen to me. My name is Raquel levin.

  • @Heavyisthecrown
    @Heavyisthecrown ปีที่แล้ว

    I am amazing by all these loving husbands! Just incredible! I can’t even imagine how heartbreaking and challenging this is for them. This is why building a loving marriage and family is so so important when we’re young. I feel so bad for the people that have no one, and have dementia and just have absolutely no one to help care for them until the end 😢 so important to have a family and children. And be close to God to help us through. This was always common place up until 15 years ago. Now people don’t want to hear about God and don’t even want to have a family. I am only 28 so so many people my age seriously hate God and think they shouldn’t get married or have kids and just focus on themselves and what they want. I am so grateful I have my family young and am close to God. I know one day I will need them. And they will be here for me ❤ or if vise versa happens we will all care for my husband with the help and comfort of God.

  • @Pistolmike59
    @Pistolmike59 3 ปีที่แล้ว +1

    My LWD locked herself out of the house when I went to the grocery store. I had a fingerprint lock installed and it has been a great investment. She still forgets sometimes that her thumbprint will work but it’s a relief to me.

  • @brittaneejourney4471
    @brittaneejourney4471 3 ปีที่แล้ว +1

    I'm going through stage seven with my grandma. It came super quick, and she is currently bed-bound, and it's fading, and I have visit and talked to her as much as I could and I doing it now but I watching videos to see if I can so anything differently...??

    • @donnabonn1892
      @donnabonn1892 2 ปีที่แล้ว

      Can you put her in a wheelchair and take her out for some fresh air...play her favorite music...
      They recognized voices sometimes...just hold her hands....

  • @deborahsnyder3289
    @deborahsnyder3289 3 ปีที่แล้ว

    Being Patient Alzheimer's and Brain Talk with Deborah Kan