total theory about the tics and allergic reaction thing but considering tics are your brain misfiring, maybe during life and death situations, your brain doesn’t misfire because all of its energy is going into making sure you don’t die. and high stress situations that aren’t life threatening but are anxiety inducing can increase tics. i don’t have tourette’s but i know whenever i get sick i forget to eat bc i don’t get hungry, like my body forgets to tell me to eat because my body is focused on healing itself, if that makes sense
Hello, someone with Tourette's here! So I've actually had very similar experiences to you! Whenever I go to the doctor or dentist or to get a COVID test or literally any situation that's stressful (it doesn't have to be medical related) my tics are worsened a lot. This makes a lot of sense neurologically because stress or anxiety seems to make tics more active, that's a widely known thing. This summer, I've had a cold three times, and each of those times my tics have gone away almost completely. I was diagnosed with moderately severe Tourette's, so you could see how that would be a big change. Even when my tics are waxing, every single time I get sick they almost disappear. I think the reason for this is more logic-based and less of a research question. Since the body has to focus on getting better from being sick and the immune system is using a lot of brain power to do its work, there's not enough left for the tics. That's my theory on why tics go away mostly when a body is going through any kind of trauma!
I am severely allergic to Bleu Cheese. I was sent to the ER & they pulled out the crash cart. I made it through but got gabbed a bunch. The antihistamines slow down your system to keep the allergen from spreading. My guess would be it interrupts the electrical signals sent through the CNS & ultimately the brain. Great video!
Also! I've noticed that when I am tired and low energy especially since I have chronic fatigue I tic less on my flare up days. My tics don't start acting up until I drink coffee or wake up more. I just go yup my tics finally woke up. It's almost like all the energy that you use to tic gets redirected to keeping you upright. Think of it this way your tics (in this metaphor your tics are a separate entity) and your body share the same power source, but when you're tired or sick, like with your allergy attack, your body requires more energy, so the energy that is normally "reserved" for your tics gets redirected to your body so it can function better. Which is why you'll either tic less or not at all. *shrugs* that is my thought based on my experiences.
In the city I live in we have (or at least had) a specialist dentist that dealt with people who were neurodivergent. She was American working in Lancashire but did a lot of her post degree training here. She was amazing, possibly the most reassuring patient dentist I’ve ever met. My old boss used to talk about an undefinable 'it' some people have that goes well beyond any qualifications, she had it in buckets. The brain is a fascinating organ, I don’t think anyone fully understands it. I know from being a paralegal in mental health a lot of psychiatrist disagree with each other.
I'm actually holding off going to the dentist until I can find one that knocks you out. The majority of my complex tics come in the form of my head jerking forward. My default tic is a squeaky hum sound that is accompanied by a sneeze motion (think harsh nod) and I'm terrified that I'm going to get stabbed. As you know tics are made worse with anxiety and I have diagnosed generalized anxiety and a panic disorder (which is really "fun" when you have tourettes) my panic attacks tend to get coupled with tic attacks and the dentist triggers my anxiety due to past trauma. Add the fact that I have undiagnosed autism (I'm currently in the process of saving up money for a diagnosis), so I've been holding off until I get diagnosed. I'm afraid my tourettes diagnosis won't be enough to have them knock me out, so I am waiting to find someone to diagnose the autism. Thank you for posting your video because it shows me that not all dentists are judemental and harsh, so it gives me hope. Do you have advice in broaching tourettes to a future dentist and how I can protect myself? I know my tics and body well enough to know that staying awake would be dangerous for me. On a lighter note I managed to watch quite a few of your videos without picking up any of your tics until today. 😂 I adopted your Stormy and I got rice tics. I think it's because I was more focused this time due to the subject matter. 😅 I'm not even mad though.
If your allergies are that severe, maybe you should see an Allergists and have some allergy testing done. They can test to see if there are other things that you are allergic too and how severe the allergy is.
May God bless you Carly. My 8 year old grandson is starting to show many of these motor and vocal tics. Please pray for my family everyone and all those with this syndrome.
That’s so nuts about the anaphylaxis and that you didn’t have any tics, it’s almost like your body was acting like you’re sleeping or something. I’m so glad you’re okay! And that you made it through the dentist with such a cool hygienist. “Side note”, can you do more Baylen Dupree validation vids? People are soooo incredibly mean to her it really breaks my heart. Have a lovely weekend with your sweet Daisy girl ✨
I don't have TS but 100% feel this! Recently people around me have noticed muscle spasms that I've just gotten used to and don't really realize i'm doing in like my legs and my arms and hands and sometimes it's a problem if I like drop something but lately i've needed to get fillings done at the dentist for cavities and it's a terrifying experience. I tried the laughing gas, but it makes me throw up and they say it wares off fast but I have trouble walking after and it's just really unpleasant. Last I went was a few days ago and I found myself able to focus on my legs and even if I couldn't stop it I found my right foot jerked a lot and my hands, but I avoided my neck jerking which was a huge fear of mine bc I did not want them to drill something they shouldn't bc I moved suddenly. Not sure if other people without TS have anything like this, but I can only imagine how horrifying an experience like the dentist is for people with TS!
If you had anaphylactic shock to wine, is it maybe related to your medications as well? Antipsychotics + alcohol is baaaaad. If it is because of alcohol, it increases the blood levels of your medications, which could play a part in your tics being more subtle. Still, not good. 😬
I appreciate your videos. I was diagnosed at 9 years old. I am now 47. Going to the dentost has always triggered my clanging teeth tic...and i would feel sore and worn out.
Same here! Same. Just like doing different kinds of brainscans (for example). Ihave to have some...i dont even know what its called. But its kind of a big rubberting that is "forcing" my mouth open. I can not close it. It helps a bit with my facial ticcs but in turn it gives me severe anxiety. Even when on sedatives. Unfortunately i am forced to see the dentist like 4-5 times a year. :/
I have been waiting to come across a video like this. I can certainly relate you somewhat with being vigilant with having tics. For me I'm somewhat vigilant about having a tic attack or even just singular tics.
What a great video Carly! Your suggestions about informing those caring for you in the dental office that you have Tourette's and may need "tic breaks" is great and I'm sure many people will find it helpful. Going to the dentist is bad enough and I can only imagine what it must be like going when you have Tourette's. Im the biggest chicken about going to the dentist - have been for decades 😄 - I need nitrous (laughing gas) and music blaring from my earphones to get through it. Thank you for the bonus Daisy content! She is so sweet and adorable! Have a great weekend - sending lotsa love! ❤
I know what the dentist experience is like. Years ago, I went to a different dental office then my usual one because they were known to be “good with children”. News flash: They we’re not. This dentist was so rude. I was severely anxious, crying, and shaking. And she just yelled at me the whole time when I was in pain. And scolded me and yelled at me for having tics. I’ve had tics and stuff since I was 5. We will never ever go back there. And if they treated me, and anxious 13 year old at the time like that, I worry about what they do to 4 year olds. The place is straight up sketch, like this dentist says: “She works better when no one watches and parents don’t know what’s going on” YEAH, that’s not creepy at all! The place also has a 2 star rating, and the reviews are parents saying she was cruel to their kids too. That was 3 years ago, but I still think about it. 💔
Daisy is precious! I wonder if the tics reducing during anaphylactic shock is to do with the adrenaline...no idea. I wonder how tics and other medical procedures mix, such as getting a blood test etc? Thank you so much for sharing your experience❤️
If I have a cold or something similar, I tic a lot. For example, if I have a sore throat I will have some type of tic that makes my throat more irritated. But the tic only lasts until my throat is better. Of course, it is then harder to get better but eventually, it does. Another example is if I had a cast on my arm, I would get a tic where I put pressure on it until it hurts. Does anyone else with TS get this problem?
total theory about the tics and allergic reaction thing but considering tics are your brain misfiring, maybe during life and death situations, your brain doesn’t misfire because all of its energy is going into making sure you don’t die. and high stress situations that aren’t life threatening but are anxiety inducing can increase tics. i don’t have tourette’s but i know whenever i get sick i forget to eat bc i don’t get hungry, like my body forgets to tell me to eat because my body is focused on healing itself, if that makes sense
I agree with this a lot. I was thinking the same
Hello, someone with Tourette's here! So I've actually had very similar experiences to you! Whenever I go to the doctor or dentist or to get a COVID test or literally any situation that's stressful (it doesn't have to be medical related) my tics are worsened a lot. This makes a lot of sense neurologically because stress or anxiety seems to make tics more active, that's a widely known thing.
This summer, I've had a cold three times, and each of those times my tics have gone away almost completely. I was diagnosed with moderately severe Tourette's, so you could see how that would be a big change. Even when my tics are waxing, every single time I get sick they almost disappear. I think the reason for this is more logic-based and less of a research question. Since the body has to focus on getting better from being sick and the immune system is using a lot of brain power to do its work, there's not enough left for the tics. That's my theory on why tics go away mostly when a body is going through any kind of trauma!
I am severely allergic to Bleu Cheese. I was sent to the ER & they pulled out the crash cart. I made it through but got gabbed a bunch.
The antihistamines slow down your system to keep the allergen from spreading. My guess would be it interrupts the electrical signals sent through the CNS & ultimately the brain. Great video!
Thank you for this one- I wondered about the Dentist. I hate all the sharp tools. I would be freaked out if I had ticcs.
Also! I've noticed that when I am tired and low energy especially since I have chronic fatigue I tic less on my flare up days. My tics don't start acting up until I drink coffee or wake up more. I just go yup my tics finally woke up. It's almost like all the energy that you use to tic gets redirected to keeping you upright. Think of it this way your tics (in this metaphor your tics are a separate entity) and your body share the same power source, but when you're tired or sick, like with your allergy attack, your body requires more energy, so the energy that is normally "reserved" for your tics gets redirected to your body so it can function better. Which is why you'll either tic less or not at all. *shrugs* that is my thought based on my experiences.
In the city I live in we have (or at least had) a specialist dentist that dealt with people who were neurodivergent. She was American working in Lancashire but did a lot of her post degree training here. She was amazing, possibly the most reassuring patient dentist I’ve ever met. My old boss used to talk about an undefinable 'it' some people have that goes well beyond any qualifications, she had it in buckets.
The brain is a fascinating organ, I don’t think anyone fully understands it. I know from being a paralegal in mental health a lot of psychiatrist disagree with each other.
I'm actually holding off going to the dentist until I can find one that knocks you out. The majority of my complex tics come in the form of my head jerking forward. My default tic is a squeaky hum sound that is accompanied by a sneeze motion (think harsh nod) and I'm terrified that I'm going to get stabbed. As you know tics are made worse with anxiety and I have diagnosed generalized anxiety and a panic disorder (which is really "fun" when you have tourettes) my panic attacks tend to get coupled with tic attacks and the dentist triggers my anxiety due to past trauma. Add the fact that I have undiagnosed autism (I'm currently in the process of saving up money for a diagnosis), so I've been holding off until I get diagnosed. I'm afraid my tourettes diagnosis won't be enough to have them knock me out, so I am waiting to find someone to diagnose the autism. Thank you for posting your video because it shows me that not all dentists are judemental and harsh, so it gives me hope. Do you have advice in broaching tourettes to a future dentist and how I can protect myself? I know my tics and body well enough to know that staying awake would be dangerous for me.
On a lighter note I managed to watch quite a few of your videos without picking up any of your tics until today. 😂 I adopted your Stormy and I got rice tics. I think it's because I was more focused this time due to the subject matter. 😅 I'm not even mad though.
If your allergies are that severe, maybe you should see an Allergists and have some allergy testing done. They can test to see if there are other things that you are allergic too and how severe the allergy is.
May God bless you Carly. My 8 year old grandson is starting to show many of these motor and vocal tics. Please pray for my family everyone and all those with this syndrome.
That’s so nuts about the anaphylaxis and that you didn’t have any tics, it’s almost like your body was acting like you’re sleeping or something. I’m so glad you’re okay! And that you made it through the dentist with such a cool hygienist. “Side note”, can you do more Baylen Dupree validation vids? People are soooo incredibly mean to her it really breaks my heart. Have a lovely weekend with your sweet Daisy girl ✨
I don't have TS but 100% feel this! Recently people around me have noticed muscle spasms that I've just gotten used to and don't really realize i'm doing in like my legs and my arms and hands and sometimes it's a problem if I like drop something but lately i've needed to get fillings done at the dentist for cavities and it's a terrifying experience. I tried the laughing gas, but it makes me throw up and they say it wares off fast but I have trouble walking after and it's just really unpleasant. Last I went was a few days ago and I found myself able to focus on my legs and even if I couldn't stop it I found my right foot jerked a lot and my hands, but I avoided my neck jerking which was a huge fear of mine bc I did not want them to drill something they shouldn't bc I moved suddenly. Not sure if other people without TS have anything like this, but I can only imagine how horrifying an experience like the dentist is for people with TS!
And I forgot to mention - so sorry about the anaphylactic shock. That must have been awful. So glad you are okay. ❤
I agree with you. Everyone hates the dentist! You made me laugh when you said if you like the dentist you need help! 😂❤️
If you had anaphylactic shock to wine, is it maybe related to your medications as well? Antipsychotics + alcohol is baaaaad. If it is because of alcohol, it increases the blood levels of your medications, which could play a part in your tics being more subtle. Still, not good. 😬
Hi Carly! I actually asked this question in another video of yours, so thank you for answering and explaining what a dentist visit feels like to you ❤
I appreciate your videos. I was diagnosed at 9 years old. I am now 47. Going to the dentost has always triggered my clanging teeth tic...and i would feel sore and worn out.
Same here! Same. Just like doing different kinds of brainscans (for example). Ihave to have some...i dont even know what its called. But its kind of a big rubberting that is "forcing" my mouth open. I can not close it. It helps a bit with my facial ticcs but in turn it gives me severe anxiety. Even when on sedatives. Unfortunately i am forced to see the dentist like 4-5 times a year. :/
I have been waiting to come across a video like this. I can certainly relate you somewhat with being vigilant with having tics. For me I'm somewhat vigilant about having a tic attack or even just singular tics.
What a great video Carly! Your suggestions about informing those caring for you in the dental office that you have Tourette's and may need "tic breaks" is great and I'm sure many people will find it helpful. Going to the dentist is bad enough and I can only imagine what it must be like going when you have Tourette's. Im the biggest chicken about going to the dentist - have been for decades 😄 - I need nitrous (laughing gas) and music blaring from my earphones to get through it. Thank you for the bonus Daisy content! She is so sweet and adorable! Have a great weekend - sending lotsa love! ❤
These videos are very educational and I learn a lot!!!! I kind of relate, I feel the urge to stim more sometimes when I'm in a stressful situation
Hi Carly! Your dog is so cute!!!! The bonus content is amazing.
This might sound weird, but is it difficult to eat with your tics or is it normal?
I know what the dentist experience is like. Years ago, I went to a different dental office then my usual one because they were known to be “good with children”. News flash: They we’re not. This dentist was so rude. I was severely anxious, crying, and shaking. And she just yelled at me the whole time when I was in pain. And scolded me and yelled at me for having tics. I’ve had tics and stuff since I was 5. We will never ever go back there. And if they treated me, and anxious 13 year old at the time like that, I worry about what they do to 4 year olds. The place is straight up sketch, like this dentist says: “She works better when no one watches and parents don’t know what’s going on” YEAH, that’s not creepy at all! The place also has a 2 star rating, and the reviews are parents saying she was cruel to their kids too. That was 3 years ago, but I still think about it. 💔
This is super interesting!
You are an amazing beautiful person and1a very intelligent important educator love you so much i really look up to you
I felt attacked 😂 I can admit I was a weird ass kid that enjoyed going to the dentist cus of the free toothbrush and the fact I’ve never had a cavity
Aww pup is so happy with you ready to go 💕 best friends
Daisy is precious!
I wonder if the tics reducing during anaphylactic shock is to do with the adrenaline...no idea. I wonder how tics and other medical procedures mix, such as getting a blood test etc? Thank you so much for sharing your experience❤️
Hi ❤️ Love your videos. Keep up the good work girl 🙂
I LOVE your pup! So adorable and what a good girl to walk through your legs! How long did it take you to train her to do that?
If I have a cold or something similar, I tic a lot. For example, if I have a sore throat I will have some type of tic that makes my throat more irritated. But the tic only lasts until my throat is better. Of course, it is then harder to get better but eventually, it does. Another example is if I had a cast on my arm, I would get a tic where I put pressure on it until it hurts. Does anyone else with TS get this problem?
By the way. Have you tried a TENS? I have one and when i ticc so severe im pretty much falling off the couch...TENS helps me sooo much!
Your dog is very lovely! X3
I have seizures and after i have one my tics get worse
The sensory part I can relate to.
I love your puppy
Feels off to be this early. But hello!
💖
i was here first
Accomplishment made for your day