Surgery For My Gastroparesis | Per Oral Pyloromyotomy
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- เผยแพร่เมื่อ 22 ก.ค. 2018
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Huron, OH 44839-9998
Instagram: hannahr916
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Welcome to my channel! My name is Hannah and I live with a couple of chronic illnesses. I also love traveling and beauty. Thank you for supporting my channel!
For Business Inquiries ONLY: hannah-elizabeth98@hotmail.com
Just cause you can’t see the root of the pain, does not mean it doesn’t hurt. I know you know that, but sometimes it helps to have other people remind us. I have horrible chronic pain you would never be able to see, but it still hurts. You actually had a big deal surgery where they cut part of you stomach open! That’s a really big deal. It’s okay to let a mountain be one, you don’t have to make it a molehill.
Well said!!!
I feel ya
Hannah, I’m so sorry this surgery has been so tough for you but I’m so so proud of you!! I loved video chatting the other day and I’m always here if you ever need to talk or vent.
You will get through this I promise!! You’ve come so far since I first started talking to you and although this is a step back for you, it will get better again!
Sending lots of love 💕
I'm so sorry you're having such a difficult recovery. Praying that your pain subsides soon. 💗
You are so strong! I'm sending out positive, painless vibes to the universe for you! Stay strong girl. You got this!
Thank you so much!!
Your video has helped me out so much as I’m to the point in my Gastroparesis journey where I have to pick to get this done or the Gastric Pacemaker. Super nervous about surgery but watching your video has helped me so much!
Oh Hannah I give you so much credit for vlogging during this very difficult and painful time. I wanted to ask you about the details of your surgery, but didn’t want to intrude. I wonder why your doc didn’t request saline infusions given by a nurse at home, along with some nutrition via IV? Surely dehydration creates a whole mess of other symptoms and decreases healing time, plus obviously makes the POTS way worse. If you can’t get help from your doc, can you go to the ER? Sweetheart, you have been through so much and I have incredible respect and admiration for your strength! It breaks my heart you are in pain. You are a beautiful warrior and I am praying all the time for your healing. I know the best is yet to come for you. You are doing all you can to get better and it will happen. Thank you for keeping us posted Hannah. I send you all my love and gentle hugs. Cindy XOXO
I hope you feel much, much better now! Positive vibes your way!
You are one strong cookie- dealing with all kinds of awful pain and still keeping us updated!
Much love to you.
Thank you so much!
Hannah, I’m sorry this has been so difficult. I’m so glad you have your family there with you to help you and encourage you. I know how hard it is to feel like you are taking steps backwards in your health. I’m praying that this will not be in vain but will better your quality of life in the long run. Stay strong sweet girl! You are amazing!
Thank you so much!!
I hope you have a speedy recovery!
So great to hear from you lady! Sounds like you've been going through a very trying time, and I hate that for you. Of course, I'll continue to pray for you that our good Lord gives you the strength and fortitude to get through this trial. He's certainly gifted you with Courage! By creating these vlogs, you're doing a great service for anyone going through this (or really any) surgery. Seeing how you persevere through the pain to put these vlogs together in order to help others feel comforted and not so alone in their suffering is so inspiring. The vlogs also allow us (your subs) to offer you words of encouragement and loving thoughts. You mentioned needing suggestions for how to get salt on a liquid diet...now this may sound odd, but Kentucky Fried chicken gravy (that comes on the mashed potatoes) can be ordered in a side cup and eaten with a spoon. The mashed potatoes could also be blended to make a bit more liquid. When I have stomach problems, I find mashed potatoes and gravy to be gentle on the stomach, tasty, and a comfort food. The gravy is also high in sodium. Praying for ya and looking forward to another vlog whenever you feel up to it 🤗🤗❤❤ Hope this super long comment didn't tire you out too much lol!
Thank you so much!! It's great to hear from you too!!
Hannah God bless you!! My family and I will be praying for you. You keep fighting and it will get better. My daughter suffers from dysautonomia, EDS, GI issues and other chronic illnesses and my heart goes out to you. Take those baby steps each day and rest/walk around to keep your strength up too. Update when you are able. Know we are all here to encourage you!!
Thank you so much!
Hi glad to hear from you I've been patiently waiting for this vlogg I hope you get better. My experience with surgeries even the small ones hurt the most . It seems strange that your doctor hasn't replied. In New Zealand we have free public health care. So if you have complications it's so easy to turn up to Emergency for treatment. I have private health insurance so I don't have to wait on a big waiting list for surgery. The last stomach surgery was my Hiatus hernia I was in for 5 days I had to eat peray food disgusting for 2 months.
Hopefully the surgery works out for you, despite the terrible pain. Sending big hugs your way 💜💜💜
When I had a splenectomy, the gas in my shoulders! It was so painful! You are a rockstar girl!!! 🤗❤️🤗❤️
I’m so glad to hear from you,I’ve been so worried. Prayers for you baby girl. Please update when you can. Can you put some roast beef carrots and potatoes ,cooked of course, in the blender with enough gravy and blend until liquid ? Ask your dr if you can have that. Or chicken stew
Thank you so much!!
Sending love x speedy recovery xx
Just because you can’t see it, doesn’t mean it isn’t real or worse! Don’t be so hard on yourself, you are amazing! I sincerely hope this pain is going to be worth it in the end. 🙏🏻
Thank you so much! It really means a lot!
Hope you feel better soon, it sounds really awful, big hugs, take care of yourself xxx
Thank you!!!
I have an appendecostomy (spell check!) it's annoying at times but when I watch you I know that I can be strong about it because you are. 💓
Im sorry about the fact that you have to deal with all your pain along with stress. Things will hopefully get better, It has to.
I’m praying for you! 🙏❤️
Try to keep positive, my prayers are with you! You can do it!
Thanks so much!!!!
Healing takes time don't feel like that. You just had surgery. I wish you a speedy recovery. I will be praying for you. 😘💙🙏
Thank you so much!
You poor thing! I just want to cry for you. I am praying for you to feel better and for the doctor's to have wisdom as to the best way to treat you so your body will have what it needs and you will be able to rest comfortably. I also pray you will have peace. I will keep you in my prayers honey.
Thank you so much, I appreciate it!
You’re a very brave young lady xxxxxx
@simply hannah, now that its been several months, whats your take on this procedure--did it ultimately help or make you worse, or no change? Also, it would be really awesome if you would be able to make a video soon that summarizes all the various procedures you have had and pros/cons/outxomes that you individually experienced. 😊
Jus had this done im on my third day after surgery i feel so much better
Praying for you. Sending big bear hugs...
Hugs to you! Hang in there and I know how hard it is. They make salt tablets that you can take although I don't know if you'll be able to keep them down right now. I know when I get really really bad and crave salt sipping a little bit of pickle juice help. I doubt you can have that right now. As you know, when we have one system of our body worked on, mast cell & pots come to the party even though they were not invited or welcome. Your body has been through a lot, even know there is no incision, all of the nerve endings in the stomach make simple stomach procedures very painful. You need to be really careful getting up to go to the bathroom and do not try to take a shower without your mom or somebody there with you. I know you don't like to bother people but very important right now. Dehydration alone can make you feel really crappy. If you have set up for the fluids at the hospital outpatient, don't be a martyr, go in and get them it may help you feel a lot better. They can also put vitamins (called infuvite)into the saline which may help you feel better too. Unfortunately, an NG tube won't help much right now. It will make it easier to get stuff down but it won't keep stuff I'm coming back up. Hang in there! I'm sending healing thoughts your way! You are an amazing strong young woman I know it seems horrible right now, but six months to a year from now we can hope you will feel like a brand new person take care and will see you soon!
Love the pillow case
Thank you for sharing your story. I have to get this procedure soon and I’m so scared. I’m gonna vape a ton of OG Kush.
I have gastroparesis too. Supposed to have the gastric pacemaker around Nov 30. Pray you are ok.
How do you keep your skin so clear and btw you are gorgeous 😍😍😍
I have gastroparesis and looking at all options. How are you now flower 🌸 thank you for making these videos xxxxxxx 💕
My mom always liked liquid jello to drink, before it sets, and watered down....best of good health wishes
Maude111111 that what my Nana always gave me after surgery or when I was sick. While still warm, and it's delicious!
i hope your GPOEM worked and you are feeling better. I am in a bind with type 1 diabetic autonomic neuropathy causing non-hypertrophic pyloric stenosis. I hope my new neurogastroenterologist can help as my g-poem completely failed, leaving me dependent on dilations with botox for now. The good news is that this qualifies me for a pancreas transplant, which will definitely help with part of this.
Hannah, you are so brave and so strong. Keep fighting, my friend. I'm so sorry that you are having to go through all this suffering and pain. I pray that God will continue to help you and comfort and encourage you. I pray for healing for your stomach. Jesus loves you so much. He is near to those who are suffering and hurting and He understands what you are going through because He also suffered immensely for all of us. Don't lose heart. He will see you through. Much love, Monica.
Thank you so much!!
Love & prayers sweet girl! ♥️
Thank you so much!
Another question: my doctors told me that operation in which cutting is a part of it are strongly discouraged in EDS. Didn’t gour doca tell anything about that? Or did they do the operation in a special way? (Somehimes you don’t have a choice. I do understand that. But I know that most of the docters do know almost nothing about eds,,,
Try sea bands for nausea. It might help.
Use Himalayan salt added to water. It hydrates the cells better than him Gatorade.
I’m going in feb 11. I’m so nervous. I was diagnosed in may of 2019. I finally feel a tad better but I’m terrified for surgery
@Isabella Serrano did you get the G-POEM (also called POP)? If yes, how long it take before you feeling better after the procedure?
If you get nauseous, you should tell them that you do better with Dilaudid. I'm the same way and morphine has a tendency to make people a whole lot more nauseous (even with nausea meds). I can't have morphine anymore, and they just go straight to Dilaudid. It works a lot better.
Peace, I am from Morocco, I have intestinal paralysis, I lost a lot of weight, I always feel full and heavy, I visited more than one doctor and could not find a cardio device suitable for me
What’s the outcome of your surgery and was it successful?
In case of the oxycodon: I use the orodipersible version which means that the pills fall apart in your mouth. And therefor you can take them under your tonque for extra effect when your stomach is not working (good). The only problem is that they cannot been made in an regulated release. But for me that is a little problem compared to thepositive effects of the orodispersibility. Maybe you can ask for the oro version?
I'm getting mine soon what hospital did u have yours done at? I'm gonna have mine at Cleveland Clinic south pointe ......
I'm going to vanderbilt Monday to have the gpoem done. Getting nervous myself
Hi. I have done also the G-POEM. How long it takes to feel better after the G-POEM?
Hi, I 'm from Taiwan. How was your recovery ? Is it everything back on track, like you can have meal without struggling by Gastroparesis.
I use hydralyte tablets dissolved into water for my sodium and potassium 💪
I have gastroparesis ...i was in the er they did a sologram and found that my stomach was aching very bad
don't give up hop you will get better think positive believe in hope you will get better sooner or later😊and try some meditation music to heal your digestive issue for gastroparesis treatment that is the name of the meditation music video try that
❤️
how are u know after the surgery?
:o
I finally found a person with the same illness as me!
I have this condition I don’t eat food I’m on TPN for life x
Hi Hannah, hope you are having a better day today! Awww, I am sorry you are in so much pain. :( I am thinking of you! I got more testing done over the past week to check for Colonic Inertia. Turns out, my colon is more messed up than what I thought. I will be posting an update this week. In the meantime, I have been living off of CalNaturale Svelte Organic Protein Shakes - you can find them on Amazon. They actually taste pretty good and there are various flavors. They make me full too. Maybe check them out? We are in this struggle together! Sending many hugs to you.
Thank you so much! Prayers you get some answers and relief!
How did you get diagnosed with gastroparesis? I'm having symptoms but haven't been able to get diagnosed they think it's all in my head 😭
Even my younger sister is facing the same
Now years later did the surgery work? Was it beneficial. My doctor has brought up this surgery to me and im just wanting some information about it. Thank you.
Yes, I am able to eat now. It wasn't an overnight fix and it has taken almost 2 years but I'm finally starting to feel more "normal" if that makes sense. I still do rely on daily IV fluids though.
@@SimplyHannah98 do you use any sort of feeding tube ? Or are you getting all nutrition threw orally eating now?
Hope you are doing well with the virus thing. I live near seattle and people are going crazy here.
Hi havnt seen anymore update I just hope you are ok
I'm doing okay, a new video will be up within the next few days! It's been a crazy week!
How are you doing, Hannah? I just found your video & I also have Gastroparesis. Hugs 🤗
A bit late now, but miso soup would have been good
Body armor makes a good sports drink that isn't too sporty in taste. Tropical fruit is my favorite.:)
How are you doing?
Miso soup?
I guess my comment was a bit late...because this isn't a surgery that has been done on many patients with millions of success rates, it's still in trial. Many of the patients who have went through with this surgery at Cleveland clinic with I'm assuming your same team of gp specialists came out 100 x's worse. Sometimes you have to be leery of these treatments because you end up becoming a Guinea pig. Also I'm surprised you said laps bother you since the incisions are the size of 1/2 inch, I also have GP which is aggravated by pain meds, carafate won't let your pain meds work either if you take it 3 hours before or after a dose of pain meds. Also what does diarrhea have to do with GP?
I'm supposed to meet with the surgeon at Cleveland Clinic next week to talk about having this done and now I'm really scared 😔 I trust my GI doctor (I think I have the same doctor as Hannah) and he said most people have had success with this procedure and most also don't have really negative aftereffects.
@@Snickerdoodle.190 i have done it. I am from Italy, at the moment i can tell you if it worked, i have done it the 6th April. Can you tell me how long it takes to see benefits?
@@mike0133 Hi. It took a few months afterwards for me to start really feeling better but everyone's recovery time is different. My gastroparesis is MUCH better now. Not 100% but I'm actually able to eat enough that I don't need help from a feeding tube or supplements.
@@Snickerdoods.x thank you so much for answering me, really thank you. I have done it the 6th April, i hope that time in time, i am going to feel better. Thank you 🙏
Hugs to you! Hang in there and I know how hard it is. They make salt tablets that you can take although I don't know if you'll be able to keep them down right now. I know when I get really really bad and crave salt sipping a little bit of pickle juice help. I doubt you can have that right now. As you know, when we have one system of our body worked on, mast cell & pots come to the party even though they were not invited or welcome. Your body has been through a lot, even know there is no incision, all of the nerve endings in the stomach make simple stomach procedures very painful. You need to be really careful getting up to go to the bathroom and do not try to take a shower without your mom or somebody there are you. I know you don't like to bother people but very important right now. Do you hydration alone can make you feel really crappy. If you have set up for the fluids at the hospital outpatient, don't be a martyr, go in and get them it may help you feel a lot better. They can also put vitamins (called infuvite)into the saline which may help you feel better too. Unfortunately, an NG tube won't help much right now. It will make it easier to get stuff down but it won't keep stuff I'm coming back up. Hang in there! I'm sending healing thoughts your way! You are an amazing strong young woman I know it seems horrible right now, but six months to a year from now we can hope you will feel like a brand new person take care and will see you soon!