I'm 33 and was diagnosed with this just yesterday. Small patch under my arm and a patch on my rear. Light therapy is the approach prescribed by the duo of Drs I am seeing. Thank you so much for the information, I am most grateful
Medicosis Perfectionalis I’m still having this.. I’m from Mexico, so 22 years ago there wasn’t any kind of treatment, so they just told me to deal with it. In fact, my first treatment was like a year ago (PUVA) and it worked so good for me, but the machines stopped working at hospital and all our progress disappeared 😂 At least I’m cheerfully.
Thank you for this video. The result of my biopsy arrived today and i was diagnosed for Mycosis Fungoides. I just turned 25, but i have this patches on my skin for almost 5yrs now and it's growing. I will have a talk with the Doctor on November for the therapy.
I got the red patches but not been to doctor. It's look like psoriasis but grows in weird places. It's not fun being a young woman and having red patches on hands and arms.
@@brandz2x This comment is a bit old but I would first recommend getting a steroid cream if you can. It will help lessen the marks from mycosis fungoides. What I do is put toner wherever I have the spots at, and use black seed oil. It helps reduce the spots too. You put it directly on your skin. Just be careful with the toner and black seed oil. Your skin can have a bad reaction to it so try first on a small part of your skin and if it's still normal, then you can just apply it to the spots you have. Unfortunately mycosis fungoides has no cure. The only thing the doctors do is give you a steroid cream . It's not a lot and the progress is really slow. So you have to do your own research to find things that are helpful. The things I mentioned have worked for me a whole lot! So I hope it works for you too. You can just use the steroid cream your doctor recommends for you if you want. But if you really want to take off those spots, then it's best to take care of your skin. I wrote too much, but if you want more advice, I'd be happy to tell you more about it! Always take care of yourself, even if the doctors say you don't need too. The doctors be lying fr.
Your series of hematology made so many things clear for me! Thank you so much!!! Keep up the amazing job! (A little help with nephrology would be much appreciated!)
I am so lucky to read this comment today! Thanks a lot...Regarding Nephrology, I hope so as well, I will launch a poll where everyone can vote what subject should be next...All the best!
This type of cancer took my mom from me 8 years ago. Her doctors lied and said she did not have cancer but a rare skin disorder I got a copy of her medical records after her death and found out that they been knew she has stage 4 t cell lymphoma cancer otherwise known as mycosis fungoides 😔. The doctors lied to my mom and to us and there is nothing I can do about it now... all I can say is trust your gut people is something is wrong say it is wrong and investigate even more. at least she is not in pain any more🕊️🙏🏾💖 RIP MOM
Very well done.i nearly lost my left hand and probably my life to mycosis fungoides and in the end ended with with the amputation of a finger and the destruction of the use of my thumb.mine had developed to stage 2b and had been misdiagnosed as ezecma and then psoriasis and in the tumour stage as ORF.
Hello, I am 45 years old. Just hoy diagnosed. Just stared my research and this video was helpful. I am a mom.. I need to fight this.. do you have any updates, treatments?
@@jupiterlove76 Mine started like normal rashes but it doesn't dissapear. Its always itchy and when i scratch it it dont react like normal rashes that expand and get bigger, this one reacts different. My rashes when scratched darkens but also expand and looks like a lesion, the rashes becomes flat after a few weeks but its still itchy. Leaving a dark red scaly looking skin left. I tried my best not to scratch it and one rash takes about a few weeks or months to dissapear but not the appearance, the appearance stayed for over months. Its all gone now, no more rashes or itchiness and the lesion scar things are almost fading.
@@yurix6072 Sorry for the long post...In August 2017 is when mine first started. It was one or two lesions per year usually in august. I was thinking it was mosquito bites cause it only happened in the summer. But this time it happened this December 2022 all of December back-to-back lesions forming. Mine started out as a very small red patch the size of a pencil eraser on day one. On day two it is inflamed, red, and very itchy and increasing in size. Sometimes there is a hard knot that forms in the middle of the lesion depending on how bad that lesion is almost hive-like and very itchy. By day three there is a small bump that looks like a bite that forms in the middle of the lesion and the inflammation increases to around the size of a 50-cent piece or more sometimes and is warm to the touch. If there are two close together they will combine into one big one. By day 4 the inflammation is going away, and the itchiness is subsiding and tolerable. On day four is when more seem to form elsewhere usually on the lower back on either side, my hip, my lower thigh, upper arms etc but it doesn’t form in more than 2 areas at a time. So, they form like a few on my upper arm and one on the thigh or one on my back and one on my upper arm or maybe 3 in a row on my hip. By day 5 its almost gone and hyperpigmentation starts where the old lesion was, and it stays a light brown for a couple weeks and fades. This is the very first time ive had them all month. Hydrocortisone cream and Benadryl cream seem to control the itch for a few hours. Im so scared this is cancer.
@@jupiterlove76 the way i got scared because of how somewhat similar we have!! Mine also looks like a mosquito bite and it also had a mini rash close by and it may somewhat has something to do with the original rash. That was the only time that happened to me, i wasnt aware of the rashes at first but recalling my first rash started at maybe march or april of 2022 it was on the upper ass i itched it so much that it became dark and scaly and kinda grew in size but not the rash only the pigmentation. A few more months i notice it was at its peak because i was getting 2-3 rashes per week, later on it also appeared on my face, my neck, jaw and lower cheeks is where its mostly at. The rashes on my face is not that severe like the ones on my body and it faded quicker. The ones on my body stayed until the very end. They calmed down on october i dont get any rashes anymore. The peak appearance were dark and scaly sometimes shiny too, then it would just look dark then it would fade until it goes back to normal. Right now im fine now,no more rashes but the pigmentation is still evident on my lower back and lower stomach. I definitely missed a lot of info so please ask anything you want!! Im also so sorry for my grammar english isnt my first language
ive shown the symptoms of rashes and the very first one started from the buttocks im so scared so im doing more research about this stuff!! ive had more rashes all over the body and im really considering getting it checked!! please hope the best for me!! thank you so much for this informational video
you say in an other video that mycosis fungoides is a NON Hodkings lymphoma, that they are B cell lymphoma. why if mycosis is a T cell Lymphoma is still considered non Hodgkins?? thanks
Hi, I have been dealing with this for a few years now but was diagnosed last year. Is there anyone active that can tell me what your experience is/was like?
My husband got poision oak at work .After being seen by several doctors and three months later they say it is longer POISION OAK. He was refered to a Dermotologists and they did a Biopsy .So we will have results back in 3 weeks. I found you doing RESEARCH. With much and a profound love of what you do. QUESTION : IS HTLV THE SAME AS MYCOSIS FUNGOIDES. ?
htlv is a virus and it causes adult t cell lymphoma. That would present with bone lesions as well and increased calcium in the body. Although that presents with skin lesions as well. So its important to differentiate the two. Medical student here
Is there a cure for this? My wife has this, we have two little kids and im stressing so much, she found out 4 days ago she has this, she had a biopsy done, now we are waiting for next visit to determine what stage shes at. Whilst writing this im crying so much, me and the kids dnt want to lose her 🙏🤲
some points to add , sezary syndrome appears later and when the abnormal leukocytes (cd4) enters the blood so it is also having EXTRA NODAL involvement -GIT bowel obstruction , bone marrow (-fatigue,infection and bruising),spinal chord(loss of sensation)
Vielen Dank für das Video. Mein Mann bekam die Diagnose MF vor drei Wochen. Trotz Salbe verschlechtert sich das Hautbild stark. Ob die Prostata mitbetroffen ist, bekommen wir in wenigen Tagen mitgeteilt. Mein Mann wird nun eine ketogene (zuckerfreie) Ernährung beginnen, in der Hoffnung, den Krebs zu verlangsamen. GIBT ES HIERZU GGFS. ERFAHRUNGSWERTE? LG aus Deutschland
My daughter is 24, she had a sudden onset of a rash, that looked like Hives, but it did not respond to Benadryl or steroids. She itches all over. Says she cannot get the itch. It then spread to her thighs and arms. She has a 1in an enlarged Lymph node in her left armpit, which does not hurt. she has a tea-size node in her neck also does not hurt. She has random odd bruises. She has a cough, but she has been asthmatic all of her life so who knows? She was diag with an IGG 4 deficiency as a young teen. We never did any IGG therapy. Her CBC was normal, with exception of High 9.9 monocytes and 8.4 eosinophils. She is clearly not ok. She is miserable. This all started on August 8. O, she has had eczema all of her life. What are your thoughts
@@MedicosisPerfectionalis thanks so so much, didn't expect a reply on an old video. I'm trying fasting, and going next week to a month long health retreat. Sun, steroids etc have not helped. Survival is 90pct for 5 years, maybe my body can reset. At least the five year time will give me time to put things in order. Weirdly, for me the lesions are almost exactly mirrored on each side of the body. Five on each arm, in the same place, for example. Will check some more of your vids. Just starting my research. Thanks:)
@@blahsomethingclever Hello Jonas, I have MF for 3 years. And that mirrored patches happened to me in my arms and my upper legs. Did you tried photothreapy or PUVA? I will be glad if you answer
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25k subscribers and now more than a million
You have come a long way 🎉🎉
Thank you so much, dear!
I'm 33 and was diagnosed with this just yesterday. Small patch under my arm and a patch on my rear. Light therapy is the approach prescribed by the duo of Drs I am seeing. Thank you so much for the information, I am most grateful
Did you have a biopsy?
My Mommy was diagnosed with this 10 yrs ago, Thank God she is in remission!!
What stage was she at?
More people need to see your videos. You never fail to address confusing issues that other sources ignore
Thanks a million! You made my day...I try my best...Please consider sharing! Thanks again!
This is the first time since I was 4 years old that I understand my micosis fungoide..
Thank you so much..
My pleasure 😇
How is your health today?
Medicosis Perfectionalis I’m still having this.. I’m from Mexico, so 22 years ago there wasn’t any kind of treatment, so they just told me to deal with it. In fact, my first treatment was like a year ago (PUVA) and it worked so good for me, but the machines stopped working at hospital and all our progress disappeared 😂
At least I’m cheerfully.
@@italiaasmr9733 In my case COVID came and suddenly all medical facilities stopped performing phototerapy, so all progress disappeared too...
Same, I'm about to have my second biopsy and round of phototherapy and I wanted to understand better my mycosis fungoides, thank you so much!!
Andres Hoyos I do sorry for you.
Thank you for this video. The result of my biopsy arrived today and i was diagnosed for Mycosis Fungoides. I just turned 25, but i have this patches on my skin for almost 5yrs now and it's growing. I will have a talk with the Doctor on November for the therapy.
Is it red patches?
I have it too, I got diagnosed at 15, peace and love being sent to you✌️
@@wzx3824 any treatment u suggest should take as I’ve been diagnosed same age and now is 17
I got the red patches but not been to doctor. It's look like psoriasis but grows in weird places. It's not fun being a young woman and having red patches on hands and arms.
@@brandz2x This comment is a bit old but I would first recommend getting a steroid cream if you can. It will help lessen the marks from mycosis fungoides. What I do is put toner wherever I have the spots at, and use black seed oil. It helps reduce the spots too. You put it directly on your skin.
Just be careful with the toner and black seed oil.
Your skin can have a bad reaction to it so try first on a small part of your skin and if it's still normal, then you can just apply it to the spots you have.
Unfortunately mycosis fungoides has no cure. The only thing the doctors do is give you a steroid cream .
It's not a lot and the progress is really slow. So you have to do your own research to find things that are helpful.
The things I mentioned have worked for me a whole lot! So I hope it works for you too.
You can just use the steroid cream your doctor recommends for you if you want. But if you really want to take off those spots, then it's best to take care of your skin.
I wrote too much, but if you want more advice, I'd be happy to tell you more about it!
Always take care of yourself, even if the doctors say you don't need too. The doctors be lying fr.
Your series of hematology made so many things clear for me! Thank you so much!!! Keep up the amazing job! (A little help with nephrology would be much appreciated!)
I am so lucky to read this comment today! Thanks a lot...Regarding Nephrology, I hope so as well, I will launch a poll where everyone can vote what subject should be next...All the best!
@@MedicosisPerfectionalis you simply rock man
This type of cancer took my mom from me 8 years ago. Her doctors lied and said she did not have cancer but a rare skin disorder I got a copy of her medical records after her death and found out that they been knew she has stage 4 t cell lymphoma cancer otherwise known as mycosis fungoides 😔. The doctors lied to my mom and to us and there is nothing I can do about it now... all I can say is trust your gut people is something is wrong say it is wrong and investigate even more. at least she is not in pain any more🕊️🙏🏾💖 RIP MOM
I always ask for copies of any labs or exrays for my own files. They are my records.
Same bro
@@laurahehling8274 are you ok
I like your French enunciation of the word Sezary!
Hahaha! My French enunciation is the worst! But you are being so generous!
Very well done.i nearly lost my left hand and probably my life to mycosis fungoides and in the end ended with with the amputation of a finger and the destruction of the use of my thumb.mine had developed to stage 2b and had been misdiagnosed as ezecma and then psoriasis and in the tumour stage as ORF.
You're awesome and your speaking style is super awesome! It helps learning faster.
Thanks
Your series on Hematology are really awesome .... In love with these series... Thank you ...
U r just awsome sir..your explanation makes everything soo crystal clear
Thank you 🙏
Thank you sir ur videos are amazing -lots of love from India ❤
Thank you 🙏
This is so well explained. Thank you so much!!!
My pleasure 😇
I was recently diagnosed with Mycosis Fongoides early stage from a biopsy. Are you saying radiation can serve as a permanent cure?
I'm not a student but I still enjoy these vids
Thanks for hanging around:)
I was diagnosed with mycoisis fungoides 12 years ago and treated with phototherapy/puva.
Currently the disease is back on my skin.
I just subscribed to you, you're the best, keep up the good work👍
Welcome! Welcome!
Hello, I am 45 years old. Just hoy diagnosed. Just stared my research and this video was helpful. I am a mom.. I need to fight this.. do you have any updates, treatments?
hello redhy how are you now fighting this disease?? im suspecting I might have this and i am scared for my life! a reply would be appreciated
@@yurix6072 what do your lesions look like? Maybe we can compare? Im so scared for my life as well.
@@jupiterlove76 Mine started like normal rashes but it doesn't dissapear. Its always itchy and when i scratch it it dont react like normal rashes that expand and get bigger, this one reacts different. My rashes when scratched darkens but also expand and looks like a lesion, the rashes becomes flat after a few weeks but its still itchy. Leaving a dark red scaly looking skin left. I tried my best not to scratch it and one rash takes about a few weeks or months to dissapear but not the appearance, the appearance stayed for over months. Its all gone now, no more rashes or itchiness and the lesion scar things are almost fading.
@@yurix6072 Sorry for the long post...In August 2017 is when mine first started. It was one or two lesions per year usually in august. I was thinking it was mosquito bites cause it only happened in the summer. But this time it happened this December 2022 all of December back-to-back lesions forming. Mine started out as a very small red patch the size of a pencil eraser on day one. On day two it is inflamed, red, and very itchy and increasing in size. Sometimes there is a hard knot that forms in the middle of the lesion depending on how bad that lesion is almost hive-like and very itchy. By day three there is a small bump that looks like a bite that forms in the middle of the lesion and the inflammation increases to around the size of a 50-cent piece or more sometimes and is warm to the touch. If there are two close together they will combine into one big one. By day 4 the inflammation is going away, and the itchiness is subsiding and tolerable. On day four is when more seem to form elsewhere usually on the lower back on either side, my hip, my lower thigh, upper arms etc but it doesn’t form in more than 2 areas at a time. So, they form like a few on my upper arm and one on the thigh or one on my back and one on my upper arm or maybe 3 in a row on my hip. By day 5 its almost gone and hyperpigmentation starts where the old lesion was, and it stays a light brown for a couple weeks and fades. This is the very first time ive had them all month. Hydrocortisone cream and Benadryl cream seem to control the itch for a few hours. Im so scared this is cancer.
@@jupiterlove76 the way i got scared because of how somewhat similar we have!! Mine also looks like a mosquito bite and it also had a mini rash close by and it may somewhat has something to do with the original rash. That was the only time that happened to me, i wasnt aware of the rashes at first but recalling my first rash started at maybe march or april of 2022 it was on the upper ass i itched it so much that it became dark and scaly and kinda grew in size but not the rash only the pigmentation. A few more months i notice it was at its peak because i was getting 2-3 rashes per week, later on it also appeared on my face, my neck, jaw and lower cheeks is where its mostly at. The rashes on my face is not that severe like the ones on my body and it faded quicker. The ones on my body stayed until the very end. They calmed down on october i dont get any rashes anymore. The peak appearance were dark and scaly sometimes shiny too, then it would just look dark then it would fade until it goes back to normal. Right now im fine now,no more rashes but the pigmentation is still evident on my lower back and lower stomach.
I definitely missed a lot of info so please ask anything you want!! Im also so sorry for my grammar english isnt my first language
ive shown the symptoms of rashes and the very first one started from the buttocks im so scared so im doing more research about this stuff!! ive had more rashes all over the body and im really considering getting it checked!! please hope the best for me!! thank you so much for this informational video
What do your skin lesions look like? Im having skin lesions since 2017 and im really scared now.
you say in an other video that mycosis fungoides is a NON Hodkings lymphoma, that they are B cell lymphoma. why if mycosis is a T cell Lymphoma is still considered non Hodgkins?? thanks
Hodgkin is a separate category.
Non-Hodgkin is divided into B and T
Wow so nicely explaind in few mins
Thank you so much 😊
Hi, I have been dealing with this for a few years now but was diagnosed last year. Is there anyone active that can tell me what your experience is/was like?
My husband got poision oak at work .After being seen by several doctors and three months later they say it is longer POISION OAK.
He was refered to a Dermotologists and they did a Biopsy .So we will have results back in 3 weeks.
I found you doing RESEARCH.
With much and a profound love of what you do.
QUESTION : IS HTLV THE SAME AS MYCOSIS FUNGOIDES. ?
htlv is a virus and it causes adult t cell lymphoma. That would present with bone lesions as well and increased calcium in the body. Although that presents with skin lesions as well. So its important to differentiate the two. Medical student here
I know someone with this and they’ve been passing worms or some kind of parasite. And she can feel them moving behind her ears
Mycosis is common in people residence in Tropical and coastal countries, why?
Excellent, thank you!
My pleasure
Is there a cure for this? My wife has this, we have two little kids and im stressing so much, she found out 4 days ago she has this, she had a biopsy done, now we are waiting for next visit to determine what stage shes at. Whilst writing this im crying so much, me and the kids dnt want to lose her 🙏🤲
hello how is your wife now if I may ask?? I think I may have this and i am scared right now :(
So srry to hear this. How is your wife doing now?
some points to add , sezary syndrome appears later and when the abnormal leukocytes (cd4) enters the blood so it is also having EXTRA NODAL involvement -GIT bowel obstruction , bone marrow (-fatigue,infection and bruising),spinal chord(loss of sensation)
Thanks so much
My pleasure 😇
Thank you doctor 🌸🙏🏽
My pleasure 😇
Is there anything you could do to help with the T cells?
Vielen Dank für das Video. Mein Mann bekam die Diagnose MF vor drei Wochen. Trotz Salbe verschlechtert sich das Hautbild stark. Ob die Prostata mitbetroffen ist, bekommen wir in wenigen Tagen mitgeteilt. Mein Mann wird nun eine ketogene (zuckerfreie) Ernährung beginnen, in der Hoffnung, den Krebs zu verlangsamen. GIBT ES HIERZU GGFS. ERFAHRUNGSWERTE? LG aus Deutschland
This was very helpful
You are so awesome with explaining.
Can sezary syndrome become CLL?
Cardiology. Please
Thank you for your help
Thanks a ton! Make sure to vote on the next subject by going to the “community” tab.
My daughter is 24, she had a sudden onset of a rash, that looked like Hives, but it did not respond to Benadryl or steroids. She itches all over. Says she cannot get the itch. It then spread to her thighs and arms. She has a 1in an enlarged Lymph node in her left armpit, which does not hurt. she has a tea-size node in her neck also does not hurt. She has random odd bruises. She has a cough, but she has been asthmatic all of her life so who knows? She was diag with an IGG 4 deficiency as a young teen. We never did any IGG therapy. Her CBC was normal, with exception of High 9.9 monocytes and 8.4 eosinophils. She is clearly not ok. She is miserable. This all started on August 8. O, she has had eczema all of her life. What are your thoughts
Hey, how is your daughter doing now? I have similar symptoms and I'm so scared.
I hope too in the future that cure will be found . thank you for the great lecture
Thank you 🙏
I have this, diagnosed in 2017
Thanks
My pleasure!
Do these lesions come and go or do they stay and new ones form?
Such a nice video!
Thanks 😊
Thank you.
My pleasure 😇
THANKS!!!!!
My pleasure 😇
They are also called "Buttock" cells bc they have large notched nucleus that resembles a butt crack.
Wow 😳
What the reason why infected this fungers ?
I have a Question? Is ist good to make your immunsystem stronger if you have prämycosis ?
What’s prämycosis?
I'm Latino, 42 years old but i was diagnost with mycosis fundoides when is was 15 years old.
😳
How is your health now?
@@MedicosisPerfectionalis cancer free since i was 27.
Hey.. What treatments did you go through?
hello can you tell me more? im 17 right now and i may have this and im scared for my life
@@yurix6072 havd seen a doctor?
Merci beaucoup
De rien!
Magyarul kerem!
I have this, just 34yo. No cure, just like the doctors said. Feel like crying.
I am so sorry to hear that...Please don’t let the disease beat you, try your best...Good luck!
@@MedicosisPerfectionalis thanks so so much, didn't expect a reply on an old video.
I'm trying fasting, and going next week to a month long health retreat. Sun, steroids etc have not helped. Survival is 90pct for 5 years, maybe my body can reset. At least the five year time will give me time to put things in order.
Weirdly, for me the lesions are almost exactly mirrored on each side of the body. Five on each arm, in the same place, for example.
Will check some more of your vids. Just starting my research. Thanks:)
@@blahsomethingclever Hello Jonas, I have MF for 3 years. And that mirrored patches happened to me in my arms and my upper legs. Did you tried photothreapy or PUVA?
I will be glad if you answer
I'm 22 and I've had this since 17.. It's awful, never know when it's gonna get worse
I just got diagnosed. I am 45. Just started my research. I am very scare. I am a mom. 😞
Men what's that
Whay the episods is not organised in the lasts videos 😵😵😵😵i have a trouble to watch the lasts videos in a sens #but thanks😅😅😅😇
感謝🙏
🙏
Magyarul szeretnem!
A micosis funguides magyarul!
Say Sezaggggyyy one more time!
😂😂
Hi perfectionalis
Hello 👋
En csak magyarul szeretnem!
I have infected mycrosis fungers, I want to be medicine 💊
Dermatology please
Do you want dermatology videos?
Yes please . I enjoyed the mycosis fungoides video
👌👌👌
Transplant dude , you can get the cure
Are you talking to me?