They are amazing parents....this disease is AWFUL but they were determined to help their son in every way possible. Bravo to them and 3M for helping out. May we soon cure XP.
Reminds me about Epidermolysis bullosa (EB), which is - unimaginably - even worse. However, I don't mean to down-talk the severity of Jax's condition - keep strong little buddy!
![Camp Sundown: A Camp for Kids Allergic to Sunlight [The Big Idea]](http://i.ytimg.com/vi/l-uvqCd4wxU/mqdefault.jpg)
![Camp Sundown: A Camp for Kids Allergic to Sunlight [The Big Idea]](/img/tr.png)
![30 ชั่วโมงคนเดียว บนรถไฟชั้น 3 โซเวียต [Around The World Ep. 2]](http://i.ytimg.com/vi/MlE9boAVqDA/mqdefault.jpg)
While watching a movie called Midnight Sun, I just found out about this condition. Good bless this sweet baby and amazing parents!!!
Same here!
@@amandarusso9141 Same here
They are amazing parents....this disease is AWFUL but they were determined to help their son in every way possible. Bravo to them and 3M for helping out. May we soon cure XP.
Reminds me about Epidermolysis bullosa (EB), which is - unimaginably - even worse. However, I don't mean to down-talk the severity of Jax's condition - keep strong little buddy!
I’m from India with a mild grade of XP.. I’ll be glad to get in touch with the community.. please let me know some details..
I love that 3M just did it, no woke bull, they actually made a difference for this youngster & his Family. WELL DONE 3M!!👍
Nice school system!
i m from dhaka,I really need to contact with them,,is it possible any way
my dear my son ------ pigmentosum atack
Is he going to school ?
fun time I’m not sure man
maybe home schooled
They answer that at 1:40