You are protected under the ADA if you meet the criteria of disability, even with Fibro. Whether or not other people will agree that you're disabled... That's the hard part
I have this as well,we are never alone.Long story short.Been there done it all.53 yr old female.My research and experience is hereditary,neck problems,low dopamine in brain,tons of early stress.possible cure..cbd oil microdosing through day,t3's when acute,stretching,yoga daily.De stress big time,possitive attitude.I had to leave a life I knew to find the life I truly needed to heal me.I still feel pain everyday,but it's tolerable,suicide for now is off the the table😌gentle hugs and love to all fellow sufferers.Anyone who has this are truly the toughest people around.
I've had fibro for 17 years (diagnosed). It started when I was 20 years old. My condition deteriorated for about the first 12 years. I found it difficult to walk and most movements caused me real pain. I decided I was going to start exercising (even though I believed that it was probably not possible to last). I was very limited in what I could do but I kept pushing myself slightly beyond my comfort zone. I would do uncomfortable exercises but would only avoid exercises that caused significant pain. When I started I could do very little and it felt like my efforts were in vain and that I was damaging myself but I kept with it. My training grew to consist of gentle kung fu, light weights, and stretching. After about 6 months of training I found my condition improved by about 50%. I have now been working out for about 5 years and it is safe to say my condition has improved by about 80%. I am now 37 years old, can go for light 5K runs, I am enjoying regular kung fu classes (and hope to gain my black belt in a few more years), I can do about 30 pushups, I have a pretty good six pack, and my pain levels do not go beyond a feeling of stiffness (unless I overdo my training). Not too bad for an average 37 year old man. I cannot offer a prognosis for anyone with fibro but I just want to give you hope.
Fantastic video. People are quick to judge each other and I find it hard when reading some of these comments that some feel that because this young woman won't take medications therefore her pain is less than theirs. My daughter has fibro, hypermobility and CFS and wont swallow a pain killer, her pain is horrendous but she likes a clear head as a youngster, who has to study. I myself have had fibro for 25 years and I feel like I've tried every medication thats out there (obviously, not really 🤣) but it's a question of choice and support. We all have the same condition and we should support each other. Who else can understand except another living with this horrible condition. Well done for an excellent young persons perspective. Good job❤
Thank you ! As you know, it’s not easy. You explained it so well and clear. Brought me to tears. Thank you for understanding and sharing. Having a bad flare up today and was feeling so isolated in chronic pain. My Yoga routine didn’t work today. Just want to let you know this video REALLY UPLIFTING 🎀
My fibro symptoms started in middle school. I was diagnosed at 27 I'm 32 now. I don't use medications at all due to having many medical allergies. I do essenial oils, natural supplements, and exercise. As I get older I notice my symptoms increasing and I am getting more foods intolerance and other allergies. Everyone's Fibro is different but it challenging for all of us.
I'm 48 and I found out that I have 3 years and for that I'm very sorry a sweetheart and I feel so bad that you have it your so young to have it I hope that you won't have to fight it and found at exercise or something that keeps your mind away from it and I hope you will find a cure from it God bless and wish you luck
My FM started in my early 20s. But I think I had some signs of it in my teens as well. I developed an aggressive type of bone disease called Pagets. Later, I had a meningioma tumor on my spine, then shortly after that surgery I developed avascular necrosis of both hips & right shoulder. The dr said the AVN of the joints was caused by a combination of the high dose steroids used for the tumor in combination w/ the Pagets. Soooo, I had the hips replaced, but not the shoulder yet. After all that, I can say that the FM is by far the worst disease of all. It never lets up, day after day after day. I've tried so many things, nothing's helped much at all.
My mother has started Tai Chi that does seem to help. The Artist Lady Gaga also suffer's with this awful & has come forward so hopefully it might bring it more up front to help. Bless you & keep positive. We will find away to beat this. Love & Peace to you x
I'm 22 and have fibromyalgia! thank you for sharing, it is so hard to find relate-able stories. If it is legal in your state you should definitely try it. it really helps me.
I’m the youngest person (I’m 13, started at 11) I’ve met that has fibromyalgia and I feel so out of place, people tell me I’m too young and that elders have it worse. That all just makes me feel so excluded and worthless
So grateful to have a friend like Amy to help me share my story and spread awareness. If this documentary has helped even one person on their journey with Fibro, that would make my heart so full. If anyone would like to continue following me along on my own Fibromyalgia journey, please head on over to my TH-cam channel The Living Tree! Love and Gentle Hugs, Caraline
I have fibro also. I take alot of vitamins. I won't take meds. tooooo many side effects. I have it all over my body, some times its hard to walk. I wish you the best.
I just wish that some doctor could find out what this really is and what causes it. If you look online, you see many different doctors and they all have their opinions about what causes it. My problem with that is, like I said, they're all different
I appreciate the video I too take nature stuff as well cause these other meds have so many side effects that i just could not even think about taking them
As someone with fibro myself i really enjoyed this. However ive got to say that ingesting essential oils or applying them directly to the skin is hella dangerous! They are heavily concentrated with a high alcohol content and must be used sparingly! I use essential oils myself for aromatherapy and skincare. If you want to apply oils to your skin you MUST dilute them with a carrier oil (almond oil, coconut oil pretty much any oil) otherwise they may damage your skin! Under no circumstances should you put essential oils in drinks/food as they are not safe for consumption and may make you ill. This all comes from a place of love, just a lil info❤️
I've had it 23years now, Savella worked the best for almost 4 years. I'm trying LND now, it seems to be working I've just started it. Advil helps my sons raynauds.
Regarding your iron supplements: fibromyalgia is extremely common in people with iron overload, almost half (43%). Once absorbed by your body, it’s extremely slow to get out. High Prevalence of Fibromyalgia in Patients with HFE-related Hereditary Hemochromatosis, 2013
I've had fibro for just on 40 years I'm now nearly 80. I find eating correctly is very important my pain is less my colon is much better. I do have bladder problems . That's why they call it terrible everything. Go well my girl.
FYI- I'm a licensed healthcare practitioner, did anyone ever mention to you to take your iron by itself, away from other supps/meds?..it can block, or at least prevent proper absorption of your other meds/supps- calcium, and other supps/meds do this too
Young or old male female anyone can get fibro but getting a diagnosis can take years it effects everyone differently so treatment can be difficult you need a very good doctor to get the help you need it can also mask or hide more serious conditions
Omg! I have all the conditions you have and hyperthyroudism! I thought it was just me! Im still waiting for an official diagnosis as all the other tests are negative. What suppliments do you take please? Aromatherapy vit D and swimmibg are good!Hope you read this and are well? Please reply so I can try and let others know. Big hugs 😊
Have you experimented with your diet, Amy? Dr. Ken Berry advocates a carnivore or ketovore diet to treat fibro. 90% of the comments on his YT video about fibromyalgia were reporting great results with changing their diet to carnivore.
People I have no idea why she is so against meds. My pain had me suicidal. I was prescribed pregabalyn and felt like Tiny Tim I threw away my crutches and felt as if my life had been given back to me. My acute pain was gone. DONT be put off meds!! Try all of them because one of them may work. If this girl had the level of pain some fibro sufferers had, she would not be knocking meds
I'm learning more about this illness as now my mother has it. My heart goes out to you sweetheart from England. I will do all l can to Help try to find a cure as painkillers are no good. And Please don't feel alone. I have asked my mother to stop any sugar's to start. Then eat more Green veg. Hope to chat soon. Good Luck x
I have Fibro too. I felt sad that you say that taking meds can be the easy way.... no way. I couldn't live without my meds. Yes it took time and i had to find the combination right for me but it was so worth it. I approached my diagnosis with a holistic veiw. My doctor also was fantastic when discussing all my worries and struggles. If your doctor is not going to help find a different one. Don't blame the meds for the doctors attitude to your illness. I am not trying to be disrespectful to your opinions either. Thank you for sharing your experiences. Fibro SUCKS!
To everyone who has this or to whomever will answer back,lol I read that giving plasma may help Has anyone tried this? I have not yet,but I am thinking about it
The only good thing that came out of my fibro is compassion for other chronic pain sufferers
Too functional to be considered disabled and too disabled to be considered functional.
You are protected under the ADA if you meet the criteria of disability, even with Fibro. Whether or not other people will agree that you're disabled... That's the hard part
Depend on each individual. Mine is severe and I’m literally disabled.
right mine is severe and I am officially considered disabled. I have multiple chronic pain illnesses along with other medical issues.
I have this as well,we are never alone.Long story short.Been there done it all.53 yr old female.My research and experience is hereditary,neck problems,low dopamine in brain,tons of early stress.possible cure..cbd oil microdosing through day,t3's when acute,stretching,yoga daily.De stress big time,possitive attitude.I had to leave a life I knew to find the life I truly needed to heal me.I still feel pain everyday,but it's tolerable,suicide for now is off the the table😌gentle hugs and love to all fellow sufferers.Anyone who has this are truly the toughest people around.
I've had fibro for 17 years (diagnosed). It started when I was 20 years old. My condition deteriorated for about the first 12 years. I found it difficult to walk and most movements caused me real pain. I decided I was going to start exercising (even though I believed that it was probably not possible to last). I was very limited in what I could do but I kept pushing myself slightly beyond my comfort zone. I would do uncomfortable exercises but would only avoid exercises that caused significant pain. When I started I could do very little and it felt like my efforts were in vain and that I was damaging myself but I kept with it. My training grew to consist of gentle kung fu, light weights, and stretching. After about 6 months of training I found my condition improved by about 50%. I have now been working out for about 5 years and it is safe to say my condition has improved by about 80%. I am now 37 years old, can go for light 5K runs, I am enjoying regular kung fu classes (and hope to gain my black belt in a few more years), I can do about 30 pushups, I have a pretty good six pack, and my pain levels do not go beyond a feeling of stiffness (unless I overdo my training). Not too bad for an average 37 year old man. I cannot offer a prognosis for anyone with fibro but I just want to give you hope.
TEZ ❣️🙏🏼
25 year old male going through the same thing. I'm pleased to see another male living with it and doing the best he can
How all that exercising is helping you, apart from gentle swimming any other exercise will kill me with pain after...🤔
I'm not expert. But it seems everyone has different pain levels and there triggers are unique to themselves. I personally find exercise to help alot
How are you all now? Comments are 4-5 years old
Thank you so much for this Documentary!! I HAVE FIBROMYALGIA and it helps to hear others peoples testimonies.
I was diagnosed this year at 31. Having Fibromyalgia is so confusing and frustrating. I'm sorry you got it so young.
I hate having fibromalygia. I wouldn't wish it on my worst enemy. I lost at least 3 or 4 friends because of it. I am only 26.
Gday Jennifer they are not true friends real friends would support you much love and light.
No real friends!
It’s really refreshing to see a person my age going through this
Fantastic video. People are quick to judge each other and I find it hard when reading some of these comments that some feel that because this young woman won't take medications therefore her pain is less than theirs. My daughter has fibro, hypermobility and CFS and wont swallow a pain killer, her pain is horrendous but she likes a clear head as a youngster, who has to study. I myself have had fibro for 25 years and I feel like I've tried every medication thats out there (obviously, not really 🤣) but it's a question of choice and support. We all have the same condition and we should support each other. Who else can understand except another living with this horrible condition.
Well done for an excellent young persons perspective. Good job❤
Thank you ! As you know, it’s not easy. You explained it so well and clear. Brought me to tears. Thank you for understanding and sharing. Having a bad flare up today and was feeling so isolated in chronic pain. My Yoga routine didn’t work today. Just want to let you know this video REALLY UPLIFTING 🎀
My fibro symptoms started in middle school. I was diagnosed at 27 I'm 32 now. I don't use medications at all due to having many medical allergies. I do essenial oils, natural supplements, and exercise. As I get older I notice my symptoms increasing and I am getting more foods intolerance and other allergies. Everyone's Fibro is different but it challenging for all of us.
I'm 48 and I found out that I have 3 years and for that I'm very sorry a sweetheart and I feel so bad that you have it your so young to have it I hope that you won't have to fight it and found at exercise or something that keeps your mind away from it and I hope you will find a cure from it God bless and wish you luck
My FM started in my early 20s. But I think I had some signs of it in my teens as well. I developed an aggressive type of bone disease called Pagets. Later, I had a meningioma tumor on my spine, then shortly after that surgery I developed avascular necrosis of both hips & right shoulder. The dr said the AVN of the joints was caused by a combination of the high dose steroids used for the tumor in combination w/ the Pagets. Soooo, I had the hips replaced, but not the shoulder yet. After all that, I can say that the FM is by far the worst disease of all. It never lets up, day after day after day. I've tried so many things, nothing's helped much at all.
My mother has started Tai Chi that does seem to help. The Artist Lady Gaga also suffer's with this awful & has come forward so hopefully it might bring it more up front to help. Bless you & keep positive. We will find away to beat this. Love & Peace to you x
I'm 22 and have fibromyalgia! thank you for sharing, it is so hard to find relate-able stories. If it is legal in your state you should definitely try it. it really helps me.
I have this too 😪God bless you all 🙏🏼❣️
Thank you for the information and tree visualization. You are the first person who has explained anemia and need for daily iron. Thank you!
I’m the youngest person (I’m 13, started at 11) I’ve met that has fibromyalgia and I feel so out of place, people tell me I’m too young and that elders have it worse. That all just makes me feel so excluded and worthless
❤️ prayers for you
10 years until light went off,and taken seriously..so happy and grateful,gotta know problem before theres hope..stay strong
So grateful to have a friend like Amy to help me share my story and spread awareness. If this documentary has helped even one person on their journey with Fibro, that would make my heart so full. If anyone would like to continue following me along on my own Fibromyalgia journey, please head on over to my TH-cam channel The Living Tree!
Love and Gentle Hugs,
Caraline
I have fibro also. I take alot of vitamins. I won't take meds. tooooo many side effects. I have it all over my body, some times its hard to walk. I wish you the best.
Its tough I wish more people had empathy. I wanted to do ozone therapy but no one in my area of western NY is qualified to do it. Keep hoping 🙏🍀
Great documentary!
I just wish that some doctor could find out what this really is and what causes it. If you look online, you see many different doctors and they all have their opinions about what causes it. My problem with that is, like I said, they're all different
Exactly, I see all these fibro videos that seem like a certain Dr. Knows the cause, but it's just one more theory. Very frustrating!
I appreciate the video I too take nature stuff as well cause these other meds have so many side effects that i just could not even think about taking them
As someone with fibro myself i really enjoyed this. However ive got to say that ingesting essential oils or applying them directly to the skin is hella dangerous! They are heavily concentrated with a high alcohol content and must be used sparingly! I use essential oils myself for aromatherapy and skincare. If you want to apply oils to your skin you MUST dilute them with a carrier oil (almond oil, coconut oil pretty much any oil) otherwise they may damage your skin! Under no circumstances should you put essential oils in drinks/food as they are not safe for consumption and may make you ill. This all comes from a place of love, just a lil info❤️
I've had it 23years now, Savella worked the best for almost 4 years. I'm trying LND now, it seems to be working I've just started it.
Advil helps my sons raynauds.
Where's the full length movie? I would like to watch it
Regarding your iron supplements: fibromyalgia is extremely common in people with iron overload, almost half (43%). Once absorbed by your body, it’s extremely slow to get out.
High Prevalence of Fibromyalgia in Patients with HFE-related Hereditary Hemochromatosis, 2013
I've had fibro for just on 40 years I'm now nearly 80. I find eating correctly is very important my pain is less my colon is much better. I do have bladder problems . That's why they call it terrible everything.
Go well my girl.
FYI- I'm a licensed healthcare practitioner, did anyone ever mention to you to take your iron by itself, away from other supps/meds?..it can block, or at least prevent proper absorption of your other meds/supps- calcium, and other supps/meds do this too
Young or old male female anyone can get fibro but getting a diagnosis can take years it effects everyone differently so treatment can be difficult you need a very good doctor to get the help you need it can also mask or hide more serious conditions
Omg! I have all the conditions you have and hyperthyroudism! I thought it was just me! Im still waiting for an official diagnosis as all the other tests are negative. What suppliments do you take please? Aromatherapy vit D and swimmibg are good!Hope you read this and are well? Please reply so I can try and let others know. Big hugs 😊
Have you experimented with your diet, Amy? Dr. Ken Berry advocates a carnivore or ketovore diet to treat fibro. 90% of the comments on his YT video about fibromyalgia were reporting great results with changing their diet to carnivore.
People I have no idea why she is so against meds. My pain had me suicidal. I was prescribed pregabalyn and felt like Tiny Tim I threw away my crutches and felt as if my life had been given back to me. My acute pain was gone. DONT be put off meds!! Try all of them because one of them may work. If this girl had the level of pain some fibro sufferers had, she would not be knocking meds
I have such severe pains with fibro and on no medication. I'm so used to being in pain and agony and suffering that it's come normal
I agree
If YOU had been married to a crazy MD ....you would understand why I don't do big Pharma and MOST whitecoats..EVERY journey is different.
gabapentin can cause severe myopathy/muscle damage, so long term it might contribute to increasing pain
The anti depressants are to increase norepinephrine and seratonin In the synapse since fibromyalgia patients have low levels of these brain chemicals
I'm learning more about this illness as now my mother has it. My heart goes out to you sweetheart from England. I will do all l can to Help try to find a cure as painkillers are no good. And Please don't feel alone. I have asked my mother to stop any sugar's to start. Then eat more Green veg. Hope to chat soon. Good Luck x
Agreed and thank you
hi misdiagnosed since teen
thanks
I am having fibromyalgia since 3 months i have heard that D-ribose powder great is for this syndrome did you tryed it?
I went to check out your blog but it looks like it's gone. Did you move it to a different location?
Look up Sirpa in the uk..
I have Fibro too. I felt sad that you say that taking meds can be the easy way.... no way. I couldn't live without my meds. Yes it took time and i had to find the combination right for me but it was so worth it. I approached my diagnosis with a holistic veiw. My doctor also was fantastic when discussing all my worries and struggles. If your doctor is not going to help find a different one. Don't blame the meds for the doctors attitude to your illness. I am not trying to be disrespectful to your opinions either. Thank you for sharing your experiences. Fibro SUCKS!
I think is because she is young the pain is more tolerable but once she hits 30 she will have different opinions about meds.
To everyone who has this or to whomever will answer back,lol
I read that giving plasma may help
Has anyone tried this?
I have not yet,but I am thinking about it