"Fibromyalgia: New Insights, New Hope" Part 1
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- เผยแพร่เมื่อ 2 มิ.ย. 2024
- "Fibromyalgia: New Insights, New Hope" Patrick W. Wood, M.D., Pacific Rheumatology Associates, Chief Medical Officer, Angler Biomedical Technologies Part 1
Bateman Horne Center is a non-profit clinic and research center, advancing the science, treatment, and education of ME/CFS, fibromyalgia, and related conditions.
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Thank you, thank you, thank you. I was diagnosed with Fibromyalgia in 2018 after 62 years of being a "lazy, hysterical hypochondriac." It didn't change my symptoms, but it gave me answers to my life's great questions. Now, in 2023, I'm still learning.
Were you called those names by family members, Doctors or both?
I was married to a narcissist and heard those arrogant and ignorant words come out of his mouth and that's one of the reasons he's my ex. I've had fibromyalgia all my life but was only properly diagnosed at 36. Getting pregnant is a 9 month daily pain ride for people with fibromyalgia. My ex is my ex because of the ignorant things he said to me and I had less pain after leaving him, both physically and emotionally.
💐I wish you all the best Barb.
@@rinalorea,wt.loss 2:41zz
Hello there,I'm watching this video from Scotland . I've been a diagnosed sufferer of the 'F' disease since 2007 and have Spinal Stenosis to keep the damned thing company . If anyone out there who says that they don't believe in this or that painful disease , then all I will say to him/ her is ,experience the horrible pain and tiredness and lethargy and exhaustions for a week and I guarantee you will change your mind .Please believe me when I say that all of the above disabilities are overwhelmingly horrendous !
@@edithgjohnson3392
Excuse me Edith, I can't decipher what your reply means? Could you reword it please, I'd really like to🎓understand.
🌹Thanks.
@@johncopeland3826
Greetings from🇨🇦Canada Mr. Copeland, you're💯exactly right.
I pray you are surrounded by❤️loved-ones who🎓understand your "F" disease (you made me chuckle).
I'm grateful you replied because there's a myth that men don't get fibromyalgia and you just proved many naysayers wrong. Men are known for not liking to go to see Doctors and try to fight it but the big "F" makes it impossible to ignore. With fibromyalgia you have no choice but to see a Doctor, fibromyalgia pain also causes high blood pressure from untreated pain and untreated pain can bring on a heart attack or stroke and it's a quadruple-edged⚔️sword.
I too have many friends to keep my f'en "F" (pardon me) company, like an eroded hip socket, scoliosis, osteoarthritis, high blood pressure, a broken C7, exhaustion,.. I'm so fog-headed I just know I'm forgetting many.
My fibromyalgia rules my life day by day, I never know how I'm going to feel and can't make any plans because of it.
The way Fibromyalgia is treated here in🇨🇦Canada is with (useless to me);
-anti-depressants of every sort that just make people sicker with side effects,
-muscle relaxers which cause more restless leg syndrome, and
-opiates which can turn "F" sufferers into drug addicts if not taken properly.
I was wondering if you could tell me how Doctors in🏴Scotland treat Fibromyalgia patients, if you don't mind me asking?
btw, my🧬ancestors crossed the pond from🇮🇪Ireland and🇬🇧England in the 1800s so we're probably🧬related. lol
💐I wish you all the best and you're in my prayers.
I was diagnosed with fibromyalgia after a bad car accident in which I was rear-ended. For 11 years I suffered with debilitating pain. The last two years I have cleaned up my life by eliminating TOXIC people. I started eating right and cutting back on sugar. I felt better and was finally able to work part-time. I AM on the road to recovery. I do believe this condition begins in the brain and the atmosphere we live in. I also divorced my toxic husband and moved into my own place. I let go of crappy people and life is getting better every single day. Being surrounded by good people and good food is my CURE FOR FIBROMYALGIA.
Interesting. I am surrounded by narcissists. Have got rid of 1, the other is a parent so have to live with that. I also have a sugar addiction.
Hallelujah
Are you saying you believe you developed fibromyalgia only after the car accident?
@Are you triggered? 🫵🏻 Some believe it is caused by PTSD so her claim is vaild
@@rinalore, six mos exactly after being rear ended at stop light developed Fibromyalgia. My story, too. However, there were many stressors in my life as well. Accident was the straw broke 🐫 back. However, had OA, Hashimoto's and did not know had Hypermobility Ehlers Danlos spectrum. Ugh, neck could not heal. Then bilateral Occipital neuralgia too.
Thank you for believing in us Fibro fighters !! 💜💜💜💜
"This is not a psychiatric disorder." THANK you, doctor.
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Like all self god making medical professionals, if they can’t cure you, it’s in your head!
Fuck all doctors, they are full of shit, with no cure!
Nope. Its a hypotalamic disfunction.
To the lady that said this is not a psychiatric disorder...you are correct! I agree with you 100%...these doctors know nothing of fibro...they dont have it so they know nothing...im waiting to find a doctor that has fibro, then i will listen to how he/she deals with it....all i know is that its a severe athristis😢
@@laotakubrouwu7790 explain yourself! Coz what ya say isnt even a thing!
Felt like a smack to the face when he said doctors say “they don’t believe in Fibromyalgia” . If only this was made up. This pain and constant doctor appointments & everything else you deal with it’s heart breaking. Those with fibromyalgia wish it was fake
You hit the nail on the head.
Amen! I wish it was fake so we didn't have to deal with the 'fake' symptoms 😔. I'm sure you have people in your life that don't believe that you have it or what you deal with. Just so you know, you're not Alone! I'm with you 💯 ❤
Especially challenging when combined with migraines..
Thank you, Doctor ! I’ve had fibromyalgia for about 30 yrs., every time I went to a doctor he/she would tell me they “would not give me pain medication, that it is all in my mind”. There were days that I would literally eat Tylenol or aspirin because of the pain. So thank you so much for doing your studies and becoming a true healer. 🙏🏻🦋
Try pregabalin NT , I've been prescribed this n it helps a bit
Pregabalin works for sure but it’s very addictive and has some very severe side effects including weight gain and memory loss. Please inform yourself before going on this medication. It’s nasty.
@bettinagordon2348 thanks for letting me know. My wife suffers from chronic pain 😢 from fibromyalgia every day, and we are trying to find something to help her
@@maverickworld8192 Ketoprofen has helped me for years It's no longer sold in the USA, so I order it from Canada. The brand name is Orudis or Oruvail.
@@maverickworld8192CBD helps me the best.
I'm 46 years old and have been dealing with this since I was a child. The pain is real the fatigue is real. Thank you for this information. I look forward to God's Kingdom rulling over us doing away with all illness. Until then information like this helps
Iodine, selenium and fulvic acid are really good. Ive had cfs fibro for 20plus years. Iodine especially has helped. I also take magnesium with activated Bs. Feeling so much better. Iodine kills viruses, parasites, bacteria, fungus and gets rid of heavy metals, people are generally deficient. Its hell living with this. I am alot better than l was but not 100% as lve only begun this for last 2 months, but is working. I also had upper cervical chiro done which has also helped. Hope you get well.
If there was a god, they wouldn't have cursed us with this disease in the first place.
@@bergsha7360 where do you get these from please?
Me too, brother!
You are my brother I believe..sorry about your pain I too have dealt with this since a child...paradise soon,!
Thank you. Every doctor and ignorant people that do not believe the pain is real should watch your videos. I have lost almost all hope in finding a correct treatment for this condition. Even family members do not believe I have this excruciating pain, some of them think I'm just lazy. If they would experience the constant pain, depression, fatigue, anxiety they will know how real it is.
Amber, oh man do I feel your pain! Having fibromyalgia or any one of the invisible illnesses is hell trying to get any real support from family and friends and you can almost forget finding any Dr’s who believe you. Most will simply hear the word pain and instantly stop listening and assume you’re drug seeking!!!
Summer Day Sorber, I have had fibromyalgia for 30 years, i actually diagnosed myself many years ago, searching online for some answers, I can't even remember how many doctors I've gone to. Had doctors tell me I just need to exercise with a smile on their face, or to go to a psychiatrist that they do not see anything wrong with me, or that I do not have it as bad as other fibromyalgia patients do, also I've been told "you don't need to come back to my office" after putting me on different medications and me going back to them telling them I just couldn't tolerate the side effects of those meds, it's just been a real struggle everyday. I have gone for massages, and to chiropractors, to physical therapy, all types of injections from my neck, middle of the back and lower back, changes in diet, etc... The excruciating pain and lack of a good treatment from a doctor that truly knows about this condition and is willing to help causes a depression that I have to fight everyday. Doctors need to accept that fibromyalgia is very real.
@@user-uh2dn9ks3k I believe in it because I have it and it is HELL some days!
@@Summerdaysorber I believe in it because I have it and it is HELL some days!
Hope is fragile when your spirits been knocked down so many times by the doubters and nasayers.
When nobody, personal or Professional believes me or in me, I choose to close up and shut down to keep the negative energy away to avoid its influence .
To be proactive, I must isolate myself to save myself and disregard everyone so that i can fully focus on understanding and finding a solution instead of just coping with the pain and dealing with the symptoms. I honestly know that I will overcome this neurotic phenomena, with or without the support of others.
THANK YOU SO SO MUCH! 💕I've spent 50+years dealing with Fibromyalgia and the MD's who think of it as the F-word. The dismissal of us and our suffering becomes traumatic after years and years. It's SO comforting to be believed 💖
Yes it is. I'm 61 and got so bad I had to go on disability 8 yrs ago. That was a big trigger that made my depression worse .That going through Dr's and find nothing makes you feel like your not being heard or believed.
I’ve lived with fibromyalgia for 7 years, I couldn’t image having it for 50 years. Yes it’s nice to be believed and understood. Let’s hope they find something to relieve the pain of fibromyalgia, sooner than later. 🙏
I'm watching this in 2021. My fibromyalgia started after a car accident. I had a lot of soft tissue damage in my left arm and shoulder. A year later I was still having headaches and realized that wasn't normal. One of my Aunts listened to my symptoms and thought it might be fibromyalgia because she had it. I never heard of it before. It took years before I started getting proper tests. Once I had a new doctor he was great. He ordered an MRI of my brain because I was getting shooting pains in my skull. He had me tested for Multiple Sclerosis. Now it's many years later and my symptoms have worsened. It affected my digestion, my menstrual pain is sometimes unbearable, I'm hypersensitive to most supplements and prescription medications. I wake up with headaches some mornings. I don't have energy some days until the afternoon. It's just on an. I'm sick of it.
Proper tests for fibro? All I know is Fibro is diagnosed by exclusion of other diseases such as Rheumatoid Arthritis, Lupus, Hypothyroidism etc..
Have a look at central sentization
Have you been tested for the MTHFR gene mutations? It was a big missing piece of the puzzle for me...
@@tomsale5142 central sentization? Or sensitization?
@@sharronwells4946 where do you get that done? As it helped you since diagnosis
I saw the title and thought a cure was coming. So exciting!! I have had it 30 years. Then realised it was 10 years old. Still no treatment. Still no doctors here interested.
It’s a nightmare I’m finally been diagnosed with it but at one stage every dr said anxiety yes I have anxiety because drs weren’t bloody listening
Same
I’ve read a lot of positive stories about low-dose Naltrexone. You’d probably have to find a good Rheumatologist or Functional Medicine Practitioner who will prescribe it. Doses are usually small, between 1.5mg - 5mg per day. It apparently has changed many Fibro sufferers lives. About to embark on that path soon myself to try and get rid of this awful pain!
@@time_traveller3 Hi Amanda. Please keep us posted with the Naltrxone. I currently take Lyrica which has helped a lot!! Sejal💞🙏
@@time_traveller3 has LDN continued to help?! 🙏
Let me tell you how bad it hurts. Your muscles ache so deep down that it makes you sick but it doesn't go away!! It takes your breath away day after day. It's there EVERYDAY. You just have better days and way worse days.
So after dealing with this for so many years and trying to still keep moving forward in life..it takes it's toll on you. One more thing to add to your daily suffering, is that your freaking brain still wants to be active the way you use to be. Talk about pure hell...
I had to be taken to my doctor after an attack. He had to give me morphine. I thought I was having a heart attack . The pain was everywhere. Now I am on daily drugs to calm my brain down. But come cold weather the slightest cold air on a point in my back sends it off into overdrive.
Its like being in a vice and someone is tightening the vice all day every day.Twenry three years of this hell and I'm done.
Ditto was diagnosed 9 years ago feels like u permanently have the worst flu
@@dawnrobinson4002 I'm sorry to hear you are going through this hell Dawn.There are no words of comfort because there is no relief.People look at me as if I'm crazy when I say I have been in severe pain for 24 years.
I have fibromyalgia and since cutting out gluten it has definitely improved yoga helps to x
Thank GOD FINALLY SOMEONE BELIEVES.
Alhamdulillah
Amen.
Thank you so much for this post. It's very important to those us who struggle to function while living with this condition. So many don't understand or believe our reality, how debilitating and isolating it can be. Which makes it harder to deal with. Again, thank you so much for this. There is hope, after all.
I’ve had the pain since I was 17 and I’m 72 now. Unrelenting pain and loss of productivity as well as relationships it’s a lonely disease
Isolating.
this is very interesting.. i'm a fibro sufferer and i'm sure its a central nervous system problem.. my friend who nursed her brother through multiple sclerosis (cns problem) often comments on the similarities between the two illnesses.. also .. symptoms do get worse with time as the nerves get damaged.. a doctor at the neurology hospital told me that today, explaining the increase of intensity in the spasms i experience..
thank you for posting this ...
I’ve always been told by doctors it doesn’t but I have gotten so much worse and at 35 now life is debilitating
How are you now
It is. In 2020 they found one cure for crps/rsd, which is a worse form of fibro or fibro is just full body crps. Anakinra helped reverse it.
@@Helena-ox7cr Helena what is crps/rsd? anakinra ? Will go look this up. Just keep in mind we all do not know your abbreviation's meaning
@@sunflowerzelda45 crps complex regional pain syndrome. Rsd reflex sympathic dystrophy and anakinra is an old rheumatoid medicine with a new function as a reversing agent in crps. Although crps often starts to spread from original nerve injury area (even from a paper cut size but usually from a wrist fracture). It's basically pain signals short-circuiting the spine up and down and messing up the functionality on its way until it reaches the heart causing a heart attack and kills a patient.
The pain can be more than twice as bad as in cancer pain so it can kill in itself if left untreated. Only short acting powerful enough opiates can fully work for it or a certain type of tens machine or a device aligning the teeth/neck/spine position or. Stuff like anakinra affecting interleukins.
Basically the tiny nerve network has been affected being more sparse than normally not having enough blood supply, which has led to necrosis and amputations. But infrared lamp can help and well as correct medicine.
Even some aspirin can help with the blood flow temporarily,.
It's under severe research so there are already promising medicines. But basically it's about continuous nerve irritation by inflammation or nerve trap if one goes through arthroscopy through a nerve of a knee hurting the nerve in the process.
It's night so my text may not be the most coherently way written. But if you got it, you are doing awesome!
Dr., I have fibromyalgia. I broke my neck , C1 , when I was 16 ( I am 52 now) . I have spoken with people that have fibromyalgia and they too , have suffered neck injuries in the past . When I was 32 , my brother ( 38) attacked me , punched my chest & I fell flat on my back on asfault driveway! Then got up and ran and he chased me , threatening me and then dove in my truck , with his arm against my throat and his face in mine with more threats ! I began having very vivid daymares! I was in the shower, days after the attack , and I saw him jerk the shower curtain open , pull me out onto the floor and then I came to my senses when my daughter yelled ,” mama”, from the other room . It was so real , in my mind ! I began not being able to sleep , my entire body hurt so badly , as soon as I opened my eyes , from my restless sleep , each day, I felt as though I had been beaten from head to toe and would have to literally do stretches, so I could get out of bed . My arms would go numb and asleep , just trying to dry my hair ! My feet , legs , hips would go to sleep on the toilet! My hips and chin bones would feel like they were literally going to break !
Some that I talked to had been battered women .
In your studies, have you found , people , with fibromyalgia, had neck injuries and or an extremely traumatic experience???
yep, that's me...had neck injury too and not a great childhood. Some trauma
I have had fibromyalgia for more than twenty years. And oh yes my pains are real. And anyone who has been diagnosed with this illness pains are real. We look well but this illness is so deceiving. Keep the faith never give up love yourself take care of yourself. And take it easy we all know what fibromyalgia means its very very painful. Together with other illness is bad And you just can't do as much like you use to. Thank you doctor for speaking about this we need more awareness God bless👍
Amen to what you said. I was told I had fibromyalgia last year it was explained to me, wasn't too happy because I got the impression that they were trying to say it was all in my head. Now it seems like whenever I go to the doctors I feel as if I'm wasting my time because I feel as though nothing is being done for me ie when I tell them of anther painful area of my body nothing is done to find out what is causing that problem so I'm left feeling as though I will end up loosing my leg before they realise I really did have a problem. So for me by throwing that name out there doesn't me feel great because I feel as though they have put us under the umbrella of having mental problems. It's disheartening and frustrating to he in pain and not wanting to go see your doctor because you know you are not getting any help so you sit at home with your pain until it becomes unbearable then you go but wish you hadn't because whilst you are there explainin what is going on you want to cry because you aren't getting anywhere. They do say it's real but I still feel as though I'm not getting any help.
@@blackieja 🙏✨
I wish he'd speak to my now ex husband ! After 40 years I left him because he didn't believe just how severe the pain is .
My son said mom you look fine so you're fine. Till he turned 40 now he believes me.
@@Djean70 Djean, my daughter used to say, "You always say you don't feel good"! That was long before I was diagnosed and I was a single mom. She's 27 now and she too now understands how much pain etc. I go through everyday. Take care.
I had a brilliant doctor who, fully understood my fibromyalgia because his wife had it. He told me that most of his patients that developed fibromyalgia were superfit before they got it. This was correct in my case. I was never ill, I was superfit after going to the gym everyday and walking everywhere. Then at the age of 26 I was given the MMR vaccine after having my daughter. They knew I hadn't had it at school. Then at the age of 33 I started suffering with fibromyalgia. Vaccines do not show their side effects straight away. It can be years down the line. Remember that when you volunteer yourself for a vaccine. Xxxx
Hello so how are you doing now?
Are you still suffering?
I believe the strain of being fit is 1 problem. I did yrs of classical ballet and loved going to the gym. Then it all had a big stop. Just can't anymore
I too had the MMR vaccine when expecting my child because I hadn’t had it as a teenager, and then went on to experience increasing back pain and weakness I did not have before. This continued to varying degrees over the following 28 years. Fibromyalgia mooted several years ago and finally diagnosed recently. I’m still not convinced though because I have a hereditary scoliosis and cervical stenosis and these can produce over-sensitivity and extreme reflex reaction - which I do relate to. I do not relate so much to the particular trigger points associated with fibromyalgia but have certain ones specific to myself. Doctor wanted to put me on an antidepressant for pain, but I’m not depressed so don’t want something messing with my brain.
I was blessed to be diagnosed by a family physician whose wife had fibromyalgia as well. He diagnosed me in 1985. Thankful for Dr. Mize. On learning of my symptoms of widespread pain, he did the pressure points test & when he pushed on them and I "hit the ceiling," he knew right away that it was FM.
I had my MMR at 14. Suffered for all my life and only diagnosed with fibromyalgia at 51. I truly believe it was because of the MMR. Thank you for confirming that this is highly likely
My lovley girlfriend who I love with every beat of hart suffers from fibromyalgia I have lurned so much from vedios like this my hart goes out to people with this bad disease fibromyalgia patience often feel alone because no 1 understands how intense the pain is people should be less quick to judge and have love and compassion for people with this disease let's show fibromyalgia patients that they're not alone but we wre here and care
Will B -You have a great heart...
Yeee - I notice that to - You have good heart , God bless you and your girlfriend to .Jesus heal her
Thank you so much for caring for us fibromyalgia patients. Yes,, it's true.... People who haven't got it don't understand it. I'm by myself now... My son is fed up of my moaning and negativity so he doesn't bother with me really anymore. The only close family l have left now is my son and Uncle in his 70s and they both just aren't interested when lm talking about the pains. Lost a lot of friends over the years,,, they don't want to deal with me as they've got there own problems or families there happy to be with. The worst part for me is to get my shopping done. I'm in absolute agony getting it into the car 🚙 and into the 🏡. 😭😭
Bless you.
Thank you. Hugs for your gf too!
The best doctor in the world every doctor should listen to his speech and learn something!
Gives one hope. Having said that... Hope is fragile when your spirits been knocked down so many times by the doubters and nasayers.
When nobody, personal or Professional believes me or in me, I choose to close up and shut down to keep the negative energy away to avoid its influence .
To be proactive, I must isolate myself to save myself and disregard everyone so that i can fully focus on understanding and finding a solution instead of just coping with the pain and dealing with the symptoms. I honestly know that I will overcome this neurotic phenomena, with or without the support of others.
I don’t thing you mean “neurotic.”
Oh how wonderful..so many brothers and sisters here…yes soon all things will change here on earth..I am ready for the paradise< this is what keeps me going, looking forward for the kingdom and no more tears or pain anymore…and yes leanna god never tries anyone..James 1: 13. I have had fibromyalgia for 12 years. Every day, I use to be so active….I miss the old active me.
I've had fibro diagnosed 10 years, I have had pain all my life. I believe my brain does not process pain as it should. I work full time in healthcare, live on a farm with lots of animals to take care of and I push myself to the limit to keep going. Its defo a neuro condition not rheumatology.
I work at a job where I cannot take it easy….no options. I come home and I am done - so exhausted -usually straight to bed. I have been dealing with this for over 20 years. I have gone to many doctor and explained my symptoms and they don’t believe I have fibromyalgia because “I am active”. I cannot take any high level pain meds due to my job and I tell them that - I am NOT looking for any of the drug seeking meds. I just need relief form the constant pain…..so frustrating to be discounted in what you are feeling.
plz help us.. my doctor are not helping I'm being tossed around.. I've been diagnosed with fibro, and im slowly failing at life..plz plz help us doctors..😢 I'm pouring my heart out here, just can't take the pain, fatigue all of it..
Check also Dr Philip Ouba MD...and empathy ...was something I just read in one of the comments on is video... Sorry I'm not making a lot of sense... having a very foggy day...but I could feel the energy from your comment and because I might not be able to come back here just wanted to pass on something I just see this morning... 💚
Luv do you have any one to help you to talk to this is the worst thing ever to happen to us please keep looking for the right dr and please don't give up i know everyday is a roll of the dice I understand no sleep being in your own hell you are so strong be blessed and happy weekend
Raco Moore hi I’m so sorry you are so low . It took years before I was diagnosed with fibromyalgia, medication did not help with most of my symptoms except sleep but I was so sleepy during the day; I came across by pure luck the ketogenic diet to reduce inflammation and I’ve reversed 98% of my symptoms! Please look at diet doctor for beginners this is a free website with lots of information and research Studies although you can pay for extra recipes etc if you want. I wish you lots of luck with your search for help and know that I believe in your pain you are not alone.💕
Trying to act 'normal' makes it all the worse. I felt every word you wrote; it's like you were speaking for me. I wish you very well.
This is finally a good video....I like how this doctor explains things....and seriously no one with ibro just wants to sit on disability and there is no money to lay on the couch eating bon bons But that’s a good analogy because a lot of doctors just think were faking it. It’s finally after eight years taking away my job at this point and trust me that’s the last thing I wanted. I was on a good plan that was helping me and then got the medication taken away and nothing else has worked I’ve literally tried everything even the expensive alternative therapies to no avail so I had no choice but to give in and stop working. Disability makes you feel like you’re faking it to when really all were trying to do is get the money we paid into. Having fibromyalgia is the most frustrating illness in the world.
THANK GOD for these doctors, these findings are fascinating.This is best that I've seen in twenty three years.
I am pretty tough. Was dx'd in 2007. I would not wish this on my worst enemy! Right now the osteo arthritis has trumped the fibro pain. So, who ever invented opioids, I thank you! I am addicted to being able to get out of bed and do my daily things.and stuff!
They don’t tell diabetic’s they’re are insulin addicts. I’m also addicted to having at least some quality of life. Without opiates I’d be gone by now. But I never have enough.
Some doctors think it is all a matter of thinking positive and staying active. That it can’t be that bad. I pray 🙏 one day they find a cure for this. I do not say it is a sickness I say it is a condition that makes my body feel like it’s going to break in a million pieces. People even doctors really think it is all in our heads. If only they could see inside my body they would see the extreme pain. People think I am not strong mentally. Dear God I have been aching for 10 years. If they could only be in my shoes for one day, many people would réalisé this is not a joke. Let us all who have this condition pray that soon they find a miracle cure. Good luck to all of us. ❤️💙🙏🙏🙏🙏🙏
Thank you for taking fibromyalgia seriously! This information makes sense! I KNEW all these symptoms were caused by something happening (or not happening) in the brain. My fibro began within weeks of an auto accident, when my brain hit my skull three times, according to one of my doctors.
I cried so much when I watched this video, I have suffered from Fibromyalgia for over 35 years, and even though my husband of almost 50 years still loves me and adores me, as I reach my 70’s , he thinks my brain is deteriorating, and now I know he’s right.
Amazing speech. Best proof that fibromyalgia exist's that I've ever seen.
Dream Big why you need others believe your pain ? Ppl r fucked up and not important to me for years
I found that medical cannabis releves the simtems of fibermyalgia. I use it at night to sleep. before I did not sleep well now I do. I'm not promotting cannabis but cannabis took the pain away for me.
javier moreno DO YOU smoke YOUR cabanas or do you get it in SOME other form JUST got MED cabanas LAW passed in my state MY fibro is horrible
javier moreno what kind because I have heard if you don’t get the right kind it doesn’t work.😊
Even if you were I wouldn't judge you. It has helped me to relax into the pain. Better than any medication that has been prescribed to me.
The rheumatologist that diagnosed my FM/CFIDS decades ago dropped all of his FM patients abruptly as we took up too much of his time. And the GP I had at the time told me not to "buy into that fibromyalgia, chronic fatigue" diagnosis. He wasn't my physician much longer after that.
My first attack was in 2012. I got pneumonia for two weeks and then in 2014 it came back with a paralyzing episode of severe depression lasting over six months. I was in so much pain and unable to move my body even my clothes and sheets on my bed hurt a lot over my bare skin. I had diffuculty walking, brushing my hair or teeth. Every movement was overwhelming. The pain was over 10. Yet I was ignored by so many clinicians.😣😣
It's the way the doctors shame us!! Too hard. Hypochondriac. It's all in your head. Etc. It is heartbreaking. Never give up. 🇦🇺
Only a handful would believe in FM and depression. Thank you. It’s really frustrating to go from one doctor to another then taking a lot of pain killers and it not going away. I’ve seen more than 20 in the past 3 months.
I was diagnosed in 1992. They think I've had this since I was 8 yrs old and I'm now 70. In 1992 I was so frustrated with my condition that I resigned myself that I was a hypochondriac and that was ok because at least it was a diagnosed condition.
I had been through 2 years of testing and results were always negative.
The night before a doc appt I took a legal pad and wrote both sides of 2 pages of complaints from head to toe. As fate had it the next day I was assigned ed a new doctor and she was recently out of residency. She read the list and said this diagnosis is easy. You have fibromyalgia. I made her write it down so I could remember the word.
It took years for Social Security to recognize it as a debilitating illness. I went to work at a very physical job every day in excruciating pain and so fatigued until I couldn't do it one more day.
I lived ho.wless, couch surfed, cashed in my 401 K to have $ to live on. I ended up in a disastrous abusive relationship where I was almost killed. I ended up in a women's shelter for 3 months, very clinically depressed. A this waiting for SS disability to go through. 4 years I waited.
I say all this to let others know you can live through this. It won't be easy and it will be painful but find your new normal. Love yourself enough to be your own best friend. How would you treat your best friend with this condition? Gentle hug friends.
When I first went to my GP complaining about unexplained severe pain and fatigue, I was told it was all in my head! It took a couple of years for me to be taken seriously. I even asked my husband to accompany me to the GP the second time because I felt I needed a witness.
thank you I have had fibro for 34 years and it is real
I wish the Bateman Horne centre would scoop me up and fix me! ..great lectures/imfo THANK YOU for your publicized imfo!
This man I a genius and as a fibro sufferer myself, soooooooooo much of what he said makes sense! I just wish we were as advanced at dealing with it here in the uk and I will try to forward this on to my gp!
Thanx ever so much!!! X
At least you can go into Boots & get codeine. We can get nothing like that OTC in the US.
@Brontë I believe only low level codine though.... the 30/500 cocodamol I take is a controlled drug same as the oxy slow release/ pregabbalin and gabipentin I take so that requires a script and my NEW gp is CONSTANTLY trying to stop meds of mine that had me stable for YEARS! It's horrible cos I'd rather have regular massage/ acupuncture or natural remedies like cbd etc but the good stuff that actually works just isn't available on the nhs unfortunately. I can't complain too much though because it's definitely worth having our nhs over a private system as I've never once worried about a bill and I can only imagine the extra stress =pain that causes....let alone all the bloody paperwork. 😒
@Brontë ps did u notice my comment was from 11 years ago? 😆.... I still have fibro and symptoms are worse....honestly yoga is the only real relief I have ever felt truly helped and its now been 13 years suffering yet still the nhs treat me with suspicion.... sad! 😒
Wish British doctors would listen to this, because we are struggling with this condition over here! Me included I have it bad!
I've had FMS about 25 yrs. I don't see a doctor for it cause all they r interested in is getting u hooked on Cymbalta or Lyrica, etc. Both are worthless. No one will give me a pain med that's effective, so I only take Flexeril for the horrible muscle spasms. And it isn't effective either. It's a horrible condition that has affected me all day every day for 2 1/2 decades. I hate it and I don't want to live the rest of my life with debilitating fatigue and pain. But I know I will, because there is no cure. There's no hope for a "good day." There are only bad, very bad and intensely bad days for me. I literally can't remember the last time I felt well. I look okay from the outside but my insides are in constant turmoil, with muscle spasms, pain, sleeping disorder, sleep apnea, idiopathic constipation, peptic ulcer disease, osteoarthritis, gastroparesis, GERD, daily tension headaches, migraines, TMJ, degenerative disc disease, depression and more. Yep, that's enough to piss someone off.
I have such tender points and feel like shit most of my miserable life. I vomit. get chills and hot flushes . I'm so achy. SWIMMING helps and air pressure massager. ..vitamin and lysine is good. massage is good. it's not made up
Oρμlεɳ૮ε Pɦσεɳเא if you haven’t been diagnosed I would definitely talk to your doctor, this could be fibromyalgia or it could be curable.
Which air pressure massager?
Wow. You’re lucky! The last time I went swimming I was in so much pain for DAYS that I wanted to die. Also massage causes me incredible pain. One thing to always keep in mind: what helps you may not help others, and may in fact hurt them. Did you ever get tested for Lyme Disease?
cheyenne Perkins I agree, it doesn’t sound like Fibro.
Take GINGER IT HELPS SO YOU WONT VOMIT. THEY ALSO HAVE GINGER IN CANDY FORM AND IN CAPSULE FORM TAKECARE❤🌍
Wow this 12yrs old, which is how long I’ve been telling drs that I have fibromyalgia. Then in 2021 I got two pinched nerves in a car accident. So more pain. Still have no answers. Thank you this !!!!
I’ve had it for decades. My doctor said the pain was all in my head. I moved to another state, and the doctor said I had fibromyalgia and suggested glucosamine. I’ve taken it for years and does help.
This is from 2010. In my backwards part of the country and state that I moved to AFTER I could no longer work, in 2019 many/most of the arrogant, egotistical and brainwashed doctors still think it doesn't exist.
This is the most understandable lecture on fibromyalgia People could not understand why I screamed out with pain when having my back massaged thought I was putting it on could not believe I felt just a gentle massage My children enjoying a massage I could not
This is a very very wise doctor. Always listen to your patient's. As this good doctor said, this is where his patient's told him to look. THIS is how doctor's learn. It seems so simple. A truly great doctor cared enough to WANT to find the CAUSE of this horrific and challenging painful condition. Well done doctor! Millions of sufferers are forever grateful for you.
I've always known my very severe pain, symptoms, and disability, was the result of a severe car accident in which I received a very severe whiplash injury. Cervical sprain/strain/post traumatic concussion. I've been diagnosed with many different pain diseases/conditions, as well as fibromyalgia/chronic myifascial pain injury. I always knew my severe pain was the result of physical injury, related to the neck/head/spinal cord/brain stem injury/trauma. But finding doctor's who understands how to correctly treat, and help all my pain diseases and conditions has been extremely challenging, as I'm sure you are all well aware. Each one of us are so uniquely different. In genetics, lifetime injuries, accumulated diseases and conditions. Patient care must be looked at individually, which makes it even more complex. This good doctor has surely found the gold, and great starting point for future treatment. One day, this condition will be much more easier to treat, changing and saving a lot of lives destroyed by this horribly painful, life changing, destroying condition. I'm very impressed.
I prayed to God to heal me I feeling much better.
Praise God for healing me along with prayer a little bit of exercise, deep breathing in fresh air in the morning and beetroot and carrot juice helped me.
I feel less pain for about 30% or more.
53 yo female . I feel like since I had a hysterectomy it all began. It’s awful. I’m on disability and I need to be. The muscle pain is so severe for me. Makes living fully very difficult.
Im 56 and have had this since I was about 17/18 yrs old, started after I had my first child...
2017 & still some dr don't believe in FM
Im going thru the same thing honey. Im in PA n it sucks all doc im looking to go to Boston hospital i can't deal with this pain.im giving up alil idk where to start
I’ve had it 17 years and gone through a lot of we don’t believe in this shit from doctors. One of them being one of the doctors at my GPs practice who I no longer go to unless I have to even if he’s not as bad as he used to be. Every time a study comes out showing this is a neurological problem I want to print it out, frame it and nail it up in their office.
soha saba Soon 2019 and still most of the dr dosent believe in Fibromyalgia or has come to an conclusion on What it is‼️ Will they ever❓
@@GabrielBadwolf
Its a.metabolic disease...the glial lighting up ia a respinse to the lactic ac8d buildup...like after heavy exercise..ur body goves u pain signals..to force u to take rest ...to get rid of inflammation and lactic acid buildup..
The human growth hormones then have time to build muscles..
But due to high cortisol levels...and adrenal fatigue...and a shock event ...will result in low cortisol levels..
High epinephrin levels and low coetisol create a flight or fight ..anerobic metabolic regime in a chronic form....building up acid in the muscle tussue...
One has to reduce thbe factors that cuase chronic aneoribic metabolism..
Lowering epinephrine levels...could be a start .....progesterone cream seems to help..
..but target should be encouraging the stipping of chronic lactic acod buildup...
2019. My doctor.
I am a biologist with fibromyalgia. I tried everything. This is reumatoid disorder .
You haven't tried CBD oil it works for Fibromyaglia.
I've heard cbd helped but I don't know.
I have fibro, my mum has RA. Newphew had spinal muscular atropy. Cousin with lupus. Newphew thats autistic. I also have joint hypermobility.
I am beginning to think it is some type of rheumatoid condition because I keep a constant inflammation in my body that cannot be explained. RA runs in my family (paternally) but they say I don't have it. I have been diagnosed with Fibromyalgia. There are so many symptoms that go along with the pain, I've just about gone insane seriously
Try clinical grape seed extract. Has to be terry clinical brand.
Thank you for proving to society that my pain is real
My doctor dropped me for leaving one of my medicine bottles at home on my monthly visit. I'm left with fibro and no medicine. Life is extremely hard to live now. It's only been 2 months but my life feels over.
thalonelygirl why did your Dr drop you for leaving meds at home? I really wouldn't stand for that I would be putting a complaint in to the MDA that's so ridiculous, Drs took an oath to look after us and put the patient s before the paychecks x
VA won't diagnose me, so just suffering silently. Thank you for the information. It' helps.
Thank you for validating my illness. You have given me tools to speak to my doctors with actual irrefutable medical evidence.
Thank you
This could very well an answer to my prayers.
I just found this video, i never really wanted to tell anyone that i have fibromyalgia it hurt so bad, i am on a lot of medicine sometimes they help n sometimes don't, i just wanted to say to u guys who is not afraid to speak on the bad condition thank you so much.
Your Gut works with your brain , if you fix your gut that might fix the Dopamine levels and misc other health issues , exercise helps Dopamine too , so doing both may help .
My Fibromyalgia got worst in the last 5 years , from stress and not eating as well and not exercising and my hormones changing because I’m in my 50’s I did use bio identical progesterone for a while that seem to help a bit , if I balance it all I can keep the pain at bay a lot better , I noticed sugar makes my muscles sting especially corn syrup , diet is very important for everything , I was a health nut all my life then I married a chef then I started eating his crap and boom gained 40’lbs now I’m even more sore and achy then ever before .. anyway I’m gonna lose this 40 and get my life back , I’m so tired of hurting all day I feel like I’m 100
my mom has fibromyalgia and Parkinson’s so pretty sure i inherited her fibromyalgia
It isn't fair either that patients be treated like Mentally ill individuals by Family Practitioners and sent off to Psychiatric Facilities for further evaluation cause that file stays with patients for the rest of their lives and used against them throughout the rest of the medical experience
People that say Fibro isn't real should be blessed with for a day. And when they're crying in pain, then they might change their tune. I would rather be an amputee with no pain than have fibro.
Amputees would not appreciate this statement I do have fibromyalgia but I also have a cousin who's an amputee and has pain as well they call it phantom pain but it is real pain
Thats whats missing!!!...Honesty and someone who had real passion in medicine doesn't just see it as a weekly paycheck...💖
Thank you for the validation! I’ve struggled with fibromyalgia & lupus since 1993. It’s not in my head!!
Thank you for believing and caring!!!!♥️🙏
Thank you sir for your info. Very helpful to a long time fibro patient.
Sometimes this mysterious Dis-Ease can trick you into actually believe your dying !!!!
wendy grawbarger I really thought I was, I developed panic attacks, started passing out, I have come a long way, but at one time I wanted to kill my self I felt that bad, I have bad fatigue this steal your joy!
It's like having you very own death eater beside you.
Or going crazy.
Or you wish you were dying. 😢
At 8yrs old I was told I had childhood RA. At 21yrs I was told fibro. At 47 I was diagnosed with MS. It takes along time to get a good doctor
Fm is very very real for all of us out there suffering. Cymbalta is the only med that seems to work. Fibro is another pain, deep, deep, deep. It sometimes makes you feel your going off your BRAIN 😕🙏
Cymbala did nothing for me.
Thank you for doing this research for us. I was diagnosed at age 30, and that’s now 32 years ago, mine has progressively gotten worse over time too..Now that you have this in-depth brain and neck research/connection, please help us with a form of treatment to help our brains balance and make these chemicals you have outlined..We need help, besides pain and sleeping medications..thank you…
I worked in psychiatric hospitals,mental health clinics and professionals would roll their eyes and label those with fibromyalgia as having borderline personality.I had fibro and would challenge them .Interesting 20 years after this diagnosis I developed Transverse Myelitis which is also a central nervous system issue.NOT PSYCHIATRIC! Thank you doctor.
Can you explain more please
Not sure what info would help. In 1997 I had numerous symptoms which seemed unrelated and impacted greatly on my functioning. This included vertigo which lasted weeks, pain which was at times excruciating and migrated around my body from episode to episode. I struggled with fatigue where I had to go to bed and stay there often for 24 hours at a time. Anyway I had an MRI to rule out MS and also Timor. As nothing showed I had diagnoses of ME and Fibromyalgia. As a single mum with teenage boys and no family support I dealt with pain and fatigue as best I can with most of my energy utilised in work with home being rest periods. My medication was a low dose of antidepressant which changed every few years ending up on Cymbalta. In 2016 I thought I was having a bad episode of the nerve vibrations and pain but my walking was slightly impacted and my stomach felt very bloated with difficulty popping. My hands felt weak but I could hold things still. Within a week I was paralysed from chest down, initially diagnosed with functional disorder (another form of disbelief) but luckily a young neurologist challenged this and after a second MRI I was diagnosed With Transverse Myelitis .A short dose of steroids and 2 months in hospital but only partial recovery. I now live with limited mobility, no balance, constant chronic nerve pain from waist down and can walk very slowly with a Walker. They never found a cause so my TM was labelled idiopathic. I still get those weird nerve sensations in my arms and hands that were a daily part of Fibromyalgia.
Hope this helps ,Yvonne
@@yvonnemccullaghward361 🙏✨
Really like this video, recommend it if you are interested in Fibromyalgia.
I’m a 54 year old woman from Australia & I was diagnosed back in around 2016-2017 and it’s no fun I’m feeling horrible right now in pain so going to bed good night folks 😢
Thank you for your video it helps us to learned more about fibromyalgia that my husband has.
My son started having pain when he was 10, I took him to his pediatrician for years because he was in pain all the time, she finally started rolling her eyes and giving attitude as to why we kept coming back to her office! 😡 She honestly tossed his medical file on her countertop and said, I've done all the cbcs I can on him. Well I said than do more! I had to ask her to do a lyme test him. She did do a rheumatoid test on him, an mri and only a few tests, but she didn't go above and beyond for the years we had her as a pediatrician. She'd been out family physician since they were born. So I thought she'd have more compassion, but she didn't! I took him another time when he was 18 and all they were concerned about was that he was to old for her to see any longer, but still seen him, again nothing! He is 22 and finally have Dr thinking it could be fibro, but also a neurological disorder? So he prescribed this medication!? He will start this meds and I pray that he gets some relief! 😢❤️
I had a doctor say just keep walking as much as you can! Long time walker. Often walk everywhere, most my jobs required standing/walking. Be on 4 month vacation, leave the car parked 6 days/ week, only drove to go home fir overnight, drive back to my summer rental, car parked unused till next week. I stopped walking so much because of fibromyalgia and neuropathy. Then be told to walk alot. That's the medical treatment from a professional doctor! So I won't go back to him.
It's much more than a sensory perception. A massage therapist can find the sore muscle/tendon (whatever it is?) without me pointing it out, and ease it. Only lasts a couple of days.
I've had this since 2004. It took me 3 years to get my disability. Tried so many meds that didn't work or made me deathly sick or made me a fruitloop thinking I was fine till I woke up one morning and found my truck detailed and the motor cleaned and my daughters Geo Tracker was waxed and I knew then it was time to rethink my meds.
This needs to be common knowledge
This is very interesting (been suffering for 10 years). But it dates from 2010? So, it's been 11 years. Why do people still don't believe it's a real horrible sickness?
I was diagnosed with fibro about 18 years ago. I now have my own routine to cope after years of ups and downs with doctors. I know the majority of the medical community is slow to accept new health information. Some seem to think once they have made it to M.D. there is nothing more to learn. Case in point: My husband had lupus (he's deceased). He was very sick, in his 30s, and the hospital doctors couldn't figure out what was wrong. It got to the point they told family to say their goodbyes. He had classic symptoms of lupus, but at the time the medical community thought only African American women got lupus. So they didn't test him for it.This was in the 80s. Finally someone contacted a college friend who happened to be an internationally respected rheumatologist. He flew in to the city and took over the case. Immediately had him tested for lupus. His friend saved his life. He was in the hospital for a long time and was on heavy steroids and other meds. Lupus was still kind of mysterious but it was beyond belief that they wouldn't test him because of their stubbornness. He lived for almost another 20 years. I have also faced disbelief on occasion for some serious problems... I call it the "woman's burden." Many doctors treat women with a bias and don't "listen" because of preconceived notions. Fortunately I have also had some good doctors. People who respected their patients. I don't like to talk about my fibro. When someone new learns I have it, I feel like I have to plead my case. Thanks medical community for infusing society with an attitude toward fibro. Close friends are wonderful, but I honestly don't want to talk about it. I don't have to justify my pain.
Thank you so much all the Doctors and People that do not believe , now I can let him see this !!!!! Any Doctors and a Trip to Clevenland Clinic I know know what is due to all my time in bed , crying , depression and yes at the age of 52 now 56 even a cane ! But some Doctors believe my pain thank you God !!!!! I was made to think I was crazy but now I know I’m not . But I will live my pain all my life , but this isn’t my only cause of pain I also have cancer for the second time in my life ! I will pray for all that has even one of these things but my heart for you even more !!!
I just watched this for the first time. I have fibromyalgia and I have found it hard to explain what it is to those who don't know what fibromyalgia is. Thanks for you videos.:-)
I would say it feels like having the flu muscle aches all the time and muscles run out of steam a lot faster almost instantly in a lot of times I’ve used my body. Like cardio exercises. I push myself but it just doesn’t feel right to do it. Like something is going to burst or make things worse. It drives you to the lengths of wanting to commit suicide. Just pushing the shopping cart is so much harder.
After 60 years of chronic pain I now tell people, if I have to, that I have Lupus. Shuts them down before they tell me it’s not real. Or “you don’t LOOK sick.”
This might be a ten year old video, but I absolutely learned a lot and am more convinced than ever I have this condition. I hope my doctor is not one of the ones who don't believe fibromyalgia is a real condition.... I hope we can do the testing to rule out everything elsr...
I have had fibromyalgia since I was 28. I had surgery and developed a severe gangrene in my stitches. When they finally realized what was happening I had gone through secere pain etc. As I recovered I had pain in all my joints! Took them 2 years to finally diagnose me with fibromyalgia! I am now 69 and still struggle with muscular pain.
Thank you, 23 years of Fibromyalgia, not many answers. I worry about my fibro fog. It seems like I find it harder to make a decision. But I ran a business for 30 years. I have all the symptoms, but not a Dr to help. ANA positive. Now 68.
Ok i ordered stimulant for fibromyalgia i will receive it today, i just went through your video and you are just interpreting my off label approach to fibro, if stimulants worked you are totally right because it's not coincidence that you and me thinking the same. Pray for me if it worked for me it's more than a case study because i am taking ADHD meds which psychiatrist not recommending but i bought stimulant from black market. I am proud of myself and proud of you that a doctor like you is interpreting my theory. Just pray for me i will take my first dose tommorow.
Hi... How is it working?! If you found something that has helped, please share. Blessings🙏✨
@@EC-yd9yv
I tried stimulant but didn't work. Now i use hydroxyzine an antihistamine which work like anesthetic.
You on the right track but backwards! Fibromyalgia is a problem with the myelon sheath and the problem is caused by a vitamin D deficiency. Also see info on vitamin K2! What happens in the brain is just the result.
I have had fibromyalgia for 40 years or more. I do not tell anybody including doctors that I have it. There is no point in telling anybody any more. I do not take any medication for it. I have adopted the attitude that this bout will pass in a day or two, and I just carry on with my usual routine.
A day or 2?
I have a high tolerance of pain and this fibromyalgia exceeds that level when I was giving birth to my child all I said was ouch. with fibromyalgia I'm crying in tears cuz I hurt so badly frustrating anybody else doesn't recognize the pain that we deal with cuz they don't understand. I've heard it can be related to chemical inhalation injuries and magnesium deficiency also that it's an autoimmune disease disorder I honestly don't give a s*** at this point what it is all I know is what it does to me and it's the worst disease then cancer cuz at least cancer can be seen and get rid of. doctors don't know how to get rid of this disease and we have to suffer in silence while others tell us we're lazy
You might have full body crps/rsd. Fast acting opioids work if given enough. Also anakinra reversed symptoms in lab
I realize these videos are from 2010. Has there been any progress or breakthroughs regarding fibromyalgia? I have Fibromyalgia and RA. I found these videos fascinating.
2023 - nothing.
12 years later and nothing has changed
How can people say it's fake after these videos/discoveries?
Chris Griffen It's simple, really. I just wrote this today on my facebook.com/fibromyass.
It all boils down to this. Either the people in the study were misdiagnosed and the abnormalities were from an actual medical condition they should have been treated for instead or it's just the body's normal responses to pain and stress.
Dr Lampman explains it even better starting in Part II of this slideshow.
www.fmperplex.com/2014/06/10/a-sharp-critique-of-the-fibromyalgia-idea-and-the-research-that-surrounds-it/
I'm 29 with I believe mild fibromyalgia....I just get random pain all over my body...feels sharp or flu like....and it's a everyday feeling....random mostly. And even when I get a massage on my back....it hurts very bad like if I had a huge bruise....😔
Thank u for info
I had it for around fifteen years ,aged 30 till 45 now 72 I swam worked out got fit and it lift my body ! I have pain because of ageing nothing like FIBROMYALGIA.