🎗How I Change My Ileostomy Bag 😊
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- เผยแพร่เมื่อ 11 ส.ค. 2021
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Vanessa Lopez
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FYI I edited this video twice because somehow it got deleted on iMovie took 4 hours in total 😭
Don’t forget to like and subscribe 💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙
Oh dear! 🤦🏻♀️🥰
Oh no!
Because they are idiots
Why thumbs down this video? She’s trying to help others that are also in this situation. I think she’s brave for sharing. Takes courage
I would like to think that the thumbs down are from people that some how end up here and have no idea what this page is about-your videos are great. I've had a colostomy for two years and wish I had this video when I first had my surgery! Thanks for this important information. Can't believe how great you look while going through Chemo!
Ur right but some people are doing always hate
There’s always a few idiots 🤷♀️
@@sarahdore7884 WORD
You’re amazing for helping others. God Bless you Vanessa ♥️
I cannot believe why there are people giving thumbs down here. You are a brave girl and an inspiration to all who are suffering. May GOD Bless you always and please keep on inspiring us. Keep safe♥️♥️♥️
I've never seen any thumbs down...
Mam, I must tell you that I have watched your vids since you started this journey. I have been praying for you and your family. You have got the iron will it takes to overcome any obstacle that befalls you. Some people would be squeamish to watch a vid of this type, and be very mean to you for showing this material. I for one, applaud your will, and your desire to be honest with your journey. You have come a long, long way. Its people like you who are willing to take the lead, and show just how it is to deal with this disease, and how to handle it that makes you so brave. God Bless You and yours.
My Dad had to get a colostomy bag at age 85. He is 89 now and still able to empty it and change it without assistance. I watched videos like yours here when we knew he was getting one. It was so helpful. His surgeon told him the risks, at his age, to reverse it were too much so he has it for life. I am so proud of him for adapting so well. Thank you for sharing your life and journey through healing!
Not certain why people would get grossed out. We ALL have bowel movements. Thank you for having the courage to film this
And her stoma is much prettier than a @$$****!
I’ve been following you since before your diagnosis, and you are an absolute sweetheart, with great courage. I am a nurse and I respect your knowledge and fortitude. You are an inspiration!!
Awww thanks 😊
Thank you so much for sharing . When my son was a baby (39 years ago) he got ulcerative colitis and had to have his colon removed. So of course, all his ostomy care rested with me. I see they have made some improvements with the closure on the bag. The ones my son had used a clip, much like a clip you would use for a chip bag, very uncomfortable for the poor little guy. So I just ended up using a rubber band and wrapped it around until it was tight and then doubled the bag opening back onto itself and wrapped the band around again a couple of times. Back then, we didn't have all the skin creams etc., so it was very important to get everything clean and dry. I used to use a hair dryer on a very low setting to make sure the skin was dry or the bag wouldn't stick well and had a habit of peeling off at one end.. not a nice situation to be in. He had his surgery when he was 16 months old and by the time he was 5 years old they did a "pull through" and reattached the small intestine to the anal sphincter, So by the time he went to school he didn't have to worry about the bag any longer. However, being as he was never bowel trained, he did have some issues in that respect but you do what you have to do and I am happy to report, he is now a healthy grown man of 40 years old. Anyway, I wish you the best and again, thank you for sharing this very intimate procedure. I am sure there are people out there who have been told they have to have surgery and are scared silly, hopefully your video will help them to see it is something they can cope with. Take care and stay safe, Sandie from Ontario Canada.
Wow thank you for sharing your sons story. Being a mother I think it’s harder for us than for them because you don’t want them to suffer. I’m happy to hear he is doing well💙
You are such an open person and I feel you have a way of making uncomfortable topics easier for those that may find it screamish. Thank you for all you do.
Thank-You for being so open with your a topic which can be uncomfortable sharing. A true role model and you seem so brave.👍❣️
Very instructional. Thank you 🙏
A close family member is battling colorectal cancer too. I admire your strength and willingness to share your journey💜
Ma'am you are so very brave to make this video you are helping many people. Bravo.
So BRAVE of you sharing your Care……You look like your 16 what a BEAUTIFUL Young Lady….🌹
Glad to see you guys are doing well!
Girl you are so brave! Blessings for you and your family ❤️❤️
I was watching videos about my drone and came across your channel. I admire you, your braveness, your willingness to share your story and help other people. I wish you nothing but the best and I hope you stay in remission for years to come. You have a beautiful family.
You are an amazing woman! Thank you for sharing your journey. I will keep you in my prayers.
Your such an inspiration, beautiful ! Thank you 🙏🏻 for sharing and helping others ! God Bless You and Your Family !!
I had my colorectal cancer surgery on 19 of Feb and I had leakage problems with my stoma in the beginning to but you do get used to living with it pretty quickly and find your own way of doing it x
So clean and organized. Hoping you are feeling better
You are totally amazing and face every challenge with extreme courage and I am sure that your advice has helped many people.
That was so so sweet of you to share/ show and great explanation. May God Continue to Heal You and Bless You.
You look amazing, so happy you are doing so great! God bless you❤️❤️
You are an amazing human being!❤️
You are such an inspiration to all.💜💜
You are so informative and amazingly strong and caring young woman and I wish you all the best with the rest of your journey. Will continue to pray and watch for updates
God bless your heart you deserve alll of gods blessings and you are so strong 🙏🏻🙏🏻🙏🏻❤️
Your willingness to share your journey is much appreciated! You are helping countless others who may be facing similar challenges. I wish you well as you continue on your journey. I look forward to seeing you and your beautiful family.
You are in my prayers!! Stay strong and keep positive. My husband had colon cancer stage 4 and also had the ileostomy bag. I'm here for you and your family. Know my family prays for all of you. So much love and hugs sweetie! Xoxo
Hello, I’m Mo, a new subscriber, from U.K., you just popped up on my page. I have watched a few of your videos, I have to say you are so brave and you are teaching people with your openness. You are answering questions we all have thought about and never asked. So pleased you got to ring the bell hun. Loki g forward to seeing your future videos. Take care and stay safe. Mo xx
You made that look so easy!
I thought your last video was great. But u do it better then some ostomy nurses! U are a pro! This really helps people. Nothing gross at all! Your skin around it looks awesome 👌🥰
Great job , and keep up the high spirits...
Thank you so much for explaining, I was always curious about such things. God Bless you, gorgeous, your beautiful kids & your handsome husband. Best wishes & prayers
Wishing U blessings. Your courage is something else
You’re the bomb! 🙏💜 de y your family’s way! Your sooo brave God Bless. !!
Absolutely inspiring and amazing
Your video should be available to every young girl who is about to have a bowel resection..so much better than any stoma nurse can explain
Honestly please please approach as many hospitals as possible including NHS England..its ground breaking
Xx
I love the big smell debate. My stoma stinks...ileostomy and it's almost 2 years old. They stink but common sense. I wish I could get that deodorant in uk. Safe and simple do some good wipes apparently but not available in uk. Great to see your confidence, you are awesome xx
You are a strong woman. Very beautiful very inspirational 😇
Sending love. I hope you’re feeling better ❤️
So interesting. Will be watching from now on. God bless you 🙏🏾.
You are amazing! Such a sweetheart💖
Love the new intro!
Thanks for share this, You are really brave
You're amazing Vanessa
She does it all while looking super cute.
Much love for ya gurly. ❤
You are an amazing person x
Thank you...you're looking beautiful as always 😊
Ur lovely xx wishing you the best health!
wow little honey this is the real truth about Cancer.. Bless you heart for being so courageous about all this. Lets hope it all goes well for you. Sending you Strength From me to you! : ) I'm pretty gutsy and very strong Thank God! So Yes! I am sending my best to you and your Family to! Ill keep you in my prayers.
You are very brave.
You are amazing!!!!!
Hello Vanessa it's foster sending you prayers for a speedy recovery
Thank you Vanessa I'm always positive that's why my comments are always clean I'm a man of God. I don't cuss or use foul language
Kudos to you for sharing this
Respect!
Nice job girl!! 💪🏻👊🏻 Your stoma looks great too!! I had a one piece in the beginning but after my stoma found it’s consistent shape, (3 months ish) I switched to a 2 piece. ConvaTec has a moldable wafer that molds to “hug” your stoma. No more cutting and it molds with your stoma’s little movements 😎 It’s awesome and I can get up to 2 weeks between wafer changes. Pouches - I usually change after a week. Also, they have a closed end mini pouch that works great for “special” moments 💕 and since it’s two pieces, snap it on, snap it off to go back to the regular size - without having to change the entire appliance. I haven’t filmed my routine but my hubs feels I need to share it so it’s on my list of “to dos” but I thought I’d share with you in case you felt like ever trying anything different- and since you’re sharing too (bravo!!) 🙂 Your skin looks great too so I certainly don’t see any reason to change, just sharing from one Ileostomate to another 💜 Keep up the great work!!
Thank you 😊
U guys are great with all this info. Praise the lord for ur help.
@@normacolon9618 💜🙌🏻 Vanessa has been instrumental with inspiring me to FINALLY start another channel just for ostomy care / life 😎
Hi love thank you so much for sharing your story especially for those that have no idea my dad had a colostomy bag.. and he. would get the disposable bags is yours disposable just curious there's so much more convenient .. my dad got his colostomy bag due to bowel obstruction. He got it at a very young age and has lived a very full happy life nothing has stopped him.. God bless you love and thank you.. 💕💕💕💕
Thank you for sharing your content!! I’ve been meaning to ask you about your beautiful hair!! It has never moved, during chemotherapy and radiotherapy, your hair has never fell out, that’s Amazing!! Blessings to you and your beautiful family!! 🙏❤️🎀👸🏽💙
The folfox chemo is known for not to loose your hair from it, it is adifferent kind of chemo then for breastcancer for exemple.
@@ineshadr9070 I get it!! Thank you!!
Ypu look fabulous mamita! I am somhappy chemo is over. My blue warrior CRC sister, I just to want you to know the reversal was very easy for me. 💙💙💙💙
Great video 😊😊
I used to help my mom change hers. My mom would eat marshmallows for when she had diarrhea.it help with the diarrhea when changing it and would stop the poo from squirting out💖
U r awesome girl. Bless u.
Between who was filming the video?
Thank you for sharing 💙
Thank you for sharing! Your positivity is very encouraging. I've had my irritating for nearly 6 weeks and haven't tried the deodorizer yet. How do you use it? Thanks so much!
🙋🏻♀️🥰. sending my love and prayers maybe next step is be an instagram model! i'm sure you already know you're stunning 🤩
Thank you 💗🙏🏼
She is beautiful!
Hi sweetie ,I hope everything is going well for you and you look so beautiful and God bless you and stay safe and healthy. Love 💘 so much 💘 💓
Wow... this was interesting.... So basically every time you have to go to the restroom, it fills up or does it fill up on its own without you knowing? it would be interesting to actually see live footage of it filling up. im loving these videos! so helpful and interesting to learn... god bless ❤️
Yes it passes all my stool through there. And I empty it in the toilet a few times a day. Imagine a tube of tooth paste… lol 😆
I just got an illeostomy. It is so watery I totally get it. I’m having a difficult time gaining weight. How do you maintain your weight? Thank you for being so authentic with your followers.
It’s very common to lose weight. I just try to eat a very high calorie diet. Lots of breads pastas rice a lot of carbs but in small portions. Lots of cooked veggies that you are able to digest.
Could you list all of the products you use please
Will you be getting a resection ?
How long you will have the ileostomy
Vanessa thank you for sharing your experience. I’ll bet you’re helping others by de-stigmatizing having an illeostomy bag. Do you know if you’ll have it permanently? Much love to you and your family 💜
I be showing it off lol 😂 I have my reversal scheduled for this Thursday 😊🙏🏼
Thank you for sharing is this something you will always need to do ? Or is it for just a period of time?💕❤️❤️❤️❤️☀️
She posted on Instagram she's going to someone to hopefully get set up for a reversal! She hopefully just needs it for while she's dealing with her cancer!
Her treatment is finished, next month the stoma will be reversed.
@@ineshadr9070 ash that is so great. I do hope it works well in the reversal
Omg my puppy's name is Teddy too. Well it's Teddy Bear but we just call him Teddy. Wow
You did a great job on your bag change! Your skin is so clean! I used to get excoriation quite a bit, where my skin would actually bleed. I hated it! If you don’t mind me asking….. Will you be having a takedown of your Ilieostomy at some point?
Yes I’ll have my reversal next month 💙
@@VanessaLPZ1 ……Yayyyy! I’m sooooo happy! Please know, that it will be important to walk post reversal. You NEED to pass that gas! Once you do, you will feel so much better. Continued prayers for you and for your journey. You’re strong and you have a beautiful family!
@@mindysmom6132 Yes, the hospital only will release you after you had some gas and stool released/produced . I went home the next day after surgery and there was totally no pain involved, I hope Vanessa has the same experience like mine.
@@ineshadr9070 glad for u. I hope so for her. I'm crying for u guys. I'm scared I may need one one day, cause I have so much intestinal issues.
@@normacolon9618 I'm so sorry to hear that. I know there are so many deseases in the bowl where the only solution is a stoma bag. And mostly it is for life then also. I feel for these people because for me (and Vanessa) it is only temporary, and even then it is very hard. The down side of removing a stoma after colorectal cancer, mostly when it was a LAR, many people have stool issues for the rest of their life, me included. I know some people who were desperate and asked to put the stoma bag back. I 'm rooting for Vanessa, that she is one of the luckiest and don't have too much issues with her stool after reversal of the bag. Norma, I also wish you the best! Hugs
🙏🏿🙏🏿🙏🏿
Will you have to do this for the rest of your life?
That seems like a lot of work. Will you have to do that forever, or is it temporary?
It is a lot of work plus I’m really new at this. I’m having it reversed next month 😁
I use Coloplast Opague bags. They don't make that noise that yours do. And I don't like seeing anything.
Instagram link is broken?
So u didn't try balsamic vinegar....
Hi blessings ty for this I have a iliostomy to but how do you do to change it and with out put because to me is so hard is output all the time
Hi! Great question! Try to do it before you eat. I’ve heard when you eat a big marshmallow it slows down everything. I tried crackers and bread before changing it. I knew when yo change it because I can see on the inside of bag, around my ileostomy it would lift around my stoma. And I would change it often every 2 days because it would leak and I didn’t want to cause issues
Ty so much blessings
Will you have the Stoma removed at some point, or is it something you will always have?
Mine is going to be reversed 😁
@@VanessaLPZ1 YES!!!! I'm so glad! My daughter's was reversed.
How have you been?
Hey, how have you adjusted to having the Stoma?. I have my surgery on Tuesday coming and im so scared and overwhelmed. I know its going to take a while to get used to, how long did it take you to get comfortable changing your stoma?.
I was in the hospital for about 25 days so I had a lot of help but I say about two weeks in I was comfortable changing I and about 2 months out I figured what worked for me and what didn’t
@@VanessaLPZ1 Thanks, yea they said I should be in there for about 4weeks then have another surgery mid Oct. My Stoma nurse is so lovely it's just daunting at the moment cos it's something so new. I'll keep in mind it will take a while to get comfortable with what works for me.
How do you keep your bag from puffing up. I’ve had to buy loose dresses to hide the bulge! Between the puff and the liquid, I have to keep using the restroom. I’ve only had my illeostomy for five weeks, so I’m hoping I get more used to it. Did it take you awhile?
Yes it took me a while to get used to it. Mine puffs up when I eat foods that cause gas. Like cabbage, broccoli, ice cream etc. it’s natural for you to make gases and I remember at the beginning I would have to empty and “burp” my bag constantly. When I sleep try using a pad or a towel in case I have leaks.
@@VanessaLPZ1 Thankyou for the info. I had a bowel resection as a result of another major surgery. I woke up with my unexpected illeostomy surprise. I can have it reversed in December, or once I gain some weight. It’s just been rough getting used to emptying it constantly. You don’t know how much you have helped me, just by watching your videos and Instagram.❤️❤️❤️❤️
@@VanessaLPZ1 how do u empty the gas? If u get has, as u stated.
🙋 Vanessa have you tried baby wipes for sensitive skin instead of tissue? It may be more gentle 🤔just a thought
Any way as always you look Beautiful!! Much Love E
They told me not to use wipes because leaving the skin wet is a no no. It’ll irritate it
@@VanessaLPZ1
🙋Vanessa oh I didn't think about that it makes sense tho
Your videos are so informative I know you are helping A lot of people🙏
Much Love & Prayers E
I don't know anything about these things but do you have to wear it for the rest of your life ?
No I will be getting it reversed in September but some patients do have to have it permanently
@@VanessaLPZ1 thanks for replying I really wanted to knw... Ur awesome by the way thanks for sharing such a difficult part of ur life with us. I knw this can't be easy ur a super hero.. Keep fighting 👊🏾
do u have to wear it forever I don't mean to be unsettling
I will be having it reversed next month 😊
thank god god is good I hate cancer my grandmother she's 74 got cancer in her womb last year they told her she was too old for chemo they removed her entire womb I have alot of respect and love for cancer fighters u will rise up if I had one wish I wish for no more cancer too many suffering
How big was your stoma in the first month after you had the operation.. its tiny now x
it stayed the same size the entire time. It was pretty small
Poor woman, that is all I have to say. How tragic this is. Hard to watch this kind of bravery on someone so young.
And my Mother had a colostomy. But they gave it him just cream and disinfectant .
I must say you're one of the strong and beautiful people out here . Keep being you and keep on being strong. I say in Jesus name the devil and his sickness can't and will not take you down . And in Jesus name you will be free 🙏
What’s the reason for getting the ileostomy bag if they’re going to reverse it? Just curious. 🙂
She had colorectal cancer
If they take out a piece of your colon/rectal, than they stitch the two pieces together. To make it heal and don't get any leaking problems, they give an ileostomy, so the colon can heal without food coming through it all the time.When the colon is healed, they can reverse the ileostomy and you can digest food as before.
@@peachxtaehyung yes I know she had colorectal cancer I’m just curious as to why the bag and then reversing it.
@@ineshadr9070 I see. I get it. Ty for the info. 😃
@@vickyh.1421 you're welcome!
thank you for sharing
You look like you have lost a lot of weight. It that from the chemo?
Yes both from chemo and the ileostomy. The large intestine is what digest and absorbs most of the nutrients and since I’m not using it it caused me to lose weight
@@VanessaLPZ1 Thankyou for your answer. An educated one at that.
I watch your channel from Australia. I have breast cancer.
@@cea20100 wishing you get well I survived in 2004 god bless you and be safe 🤗❤️🙏
Don’t be afraid to call on the name of Jesus. He hears, heals and saves. God still does miracles. Don’t forget that God is still waiting for all of you to come to him for forgiveness of sins ✝️💚
What’s you Instagram I click on link and a says not found
It’s @vanessa_Avila_lopez here’s my link tree 😁 linktr.ee/VanessaALopez