I myself was diagnosed with gastroparesis 5 years ago. It stemmed from ever since I can remember when I was a little girl going back and forth to the GI doctor My mother taking numerous numerous times out of work taking me back and forth to the GI doctor. The GI doctors told me there was nothing wrong with me I was making it up all the tests are coming back negative I was doing it for attention all which is not true. So my doctor ran one more last test now after living with this for 43 years The test where you eat half of a sandwich lane and tube for 90 minutes and see how your stomach digests. So a few days go by a nurse calls me and says oh my God your stomach is only digesting 7% out of 100 I said this is amazing she said what I said I told you people that I'm not making this up there's something seriously wrong with me while the vomiting I did my stomach extending after I eat and just so so so so sick. So let's go back to 5 years ago when I got that phone call from the nurse and I said okay how do we fix this problem she said through gastric bypass surgery I went in about four or five days later had the surgery it changed my life life-changing surgery My stomach does not hurt anymore I do have a hyal hernia that I need to get repaired and fixed but as for the stomach pain that I endured all these decades has gone away so I don't know if I helped you in any way or if I could help you in any way but that is my story. God bless 🙏
Thank you so much for this video! 🙏🏼💖🙌🏼 I’ve been suffering from Gastroparesis and neuropathy since 2018 due to my type 1 diabetes which I’ve been dealing with all my life. I like to know that there’s also other people who can understand what I go through when I have these flare ups. I’ve tried cannabis before and its worked so well for me, for my chronic pain and my nausea/vomiting. Thank you for sharing your story. I found it really helpful🙏🏼
The flare ups are horrible and my doctor sent me to get the four hour test and I had no symptoms that day. So all was normal. I asked my doctor to re test when I am having symptoms. I am so angry and feel defeated.
Same. Doctors don’t really care about sick people. They want your money with zero effort. I just lost my GP of over 16 years. They are taking my Valium away that I’ve been on with no problems for 13 years. I really hope they can grow nerve cells and replace our broken ones.
currently dealing with this i believe while also being a t1 diabetic for 15 years. ...Currently trying to figure out if the results from the blood work that show me basically having some sorta nonalcoholic fatty liver disease. I've been having issues basically feeling full quickly and dealing with bloat while also taking for ever to pass said food. i do feel like i need to throw up but keep said food down. so my question is how is your liver doing? thanks
Thank u for sharing. We need to spread this message so ppl will stop treating us like we’re over exaggerating our symptoms and that we’re just doing this to ourselves. I’ve heard it all and I’m exhausted and over trying to prove my point on this. Thank u. I will be sharing
I've been in accidents, had surgeries and gave birth twice. Gastroparesis is the worst pain I have ever experienced. You are right! Need to spread the word.
Thanks for taking time to post . I'm having emptying test pretty soon . Then doctor and I will know more . Doctor is pretty sure that's what's causing my weight loss, nausea ect . Recently spent 4 days in hospital due to dehydration and passing out when I tried to walk . Thanks again.
Women have trouble getting male docs to listen. I know from experiences. I was diagnosed with an emptying study. It took a long time to get a diagnosis. Your persistence saved your life.
Thank you! It is very frustrating to see so many women get brushed off or dismissed by their doctors. I wish it wouldn't have taken so long for you but I am glad you were finally able to get a diagnosis with the emptying study.
Unfortunately, sometimes it's necessary to start bringing a male friend or family member to doctor appointments, just to avoid being gaslit and railroaded. :(
I’ve been dealing with this for years and was diagnosed when I was 15. fighting for a diagnosis was one of the toughest things I’ve faced it took so long for anyone to believe me. I just got permission to keep my NJ tube out but it was only after I threw it up now we’re discussing a gastric pacemaker I hope everyone else suffering finds the help they need and find relief
This is a horrible disease and I have been recently diagnosed and because of Covid I have not been able to go to hospital or nothing as I was scared and the fight with doctors is unbelievable you feel like they never listen 😪🥴😞
Hi, this is Jennifer. Fighting for a diagnosis is one of the toughest and exhausting things. I am sorry the NJ tube didn't work out for you. I hope you are able to find something that works for you and that you are able to find some relief soon.
@@tinaduffy3481 Gastroparesis is truly a cruel disease. Fighting with Doctors can definitely feel like a never ending battle at times. It can be hard to find a doctor that will take the time to listen to you. I hope you are able to find someone that will help and that you are able to get a bit of relief.
Hoping you get treatment that helps. My doctors put me on the vagus nerve stimulating medication Pyridostigmine to treat my gastroparesis, and it works similar to the gastric pacemaker but without the surgery.
I have GP as well, at first they thought it was just some stomach ulcers which was causing my pain until they did the pill test and noticed that it takes pretty close to 8-12 hours to digest a small meal. This is a really crappy disease and like cancer I would never wish it on anybody.
I have gastroparesis caused by hypermobile type Ehlers Danlos syndrome. Mayo Clinic has an excellent gastroenterology department. They've repurposed the older medication Pyridostigmine as a new treatment option for gastroparesis and other digestive dysmotility issues, and it's been a miracle at treating my gastroparesis.
Hi, this is Jennifer. Thank you for the kind words. I am sorry to hear that you also have this awful disease. I hope that you are able to find some relief. All we can do is keep fighting one day at a time!
I have been dealing with this too since I was 17 now I’m 30! This is so exhausting and I hate when someone ask me what’s wrong and I tell them my stomach hurts their like take some tums or try to have a bowel movement! I’m like I wish it was that simple! I have awful bloating nausea here and there but no vomiting plus throat tightness and it will switch from one side of my throat but if it’s too bad the pressure will just sit on my esophagus it’s miserable I can barely socialize when it’s bad I just wish theee was a cure like other things that have one
I've been dealing with this for 4 years now and my primary care doctor still won't listen to me. I'm about to get a social worker involved because these people will not listen. I'm also compiling a list of articles, information, etc to share with their office because these doctors are making things worse and not helping at all. They are so stupid. I hope that anyone dealing with this finds relief and/or a doctor that will actually take you seriously. Being in so much pain that you want to die is not a good place to be. Doctors need to do their jobs.
@@imtheboss1826 You are very lucky to have a doctor that was willing to listen and help. Depending on where you live not everyone has the ability to just change doctors like that. Some places have massive doctor shortages (my province is one of them) and some places have incredibly long waitlists to see a specialist. Depending on where you live, it is unfortunately not always so easy to just find another doctor.
Hi Mel, Jennifer here. I am so sorry to hear that you are going through this. It is incredibly frustrating when doctors and medical professionals don't actually listen to us and brush us off. I agree 100% that doctors do need to do their job and actually take the time to try and understand what is going on with their patient. If you haven't come across the articles already, the Canadian Digestive Health Foundation has a lot of great info on Gastroparesis on their website (full disclosure I helped write a few of the articles) that you could print off to give to the doctors that don't want to listen. It is frustrating that WE end up having to educate THEM. I know it is hard and exhausting but you have to keep fighting and advocating for yourself and I hope the social worker can help. I hope you are able to find someone who will help and that you are able to get some relief soon.
Sorry you had to go through that. I've had similar experiences. As a patient, you have the right to "fire" a nonperforming doctor and "hire" a new one who will provide you with the care that you deserve and that your insurance company is paying for. When I ran into a doctor like that, I discussed the issues with my insurance company. They ended up removing him from their list of approved providers.
Tell them you are hiring a lawyer and going to sue them for not helping a medically needy person… I’m going to have to do the same thing with my daughters dr office they won’t listen to her they said it’s in her head recommended cat scans instead aggravates me she’s been in so much pain for so long crying the other day saying she can’t take the pain anymore
I was diagnosed a year ago but had symptoms starting a year and a half ago. I had horrible shortness of breath. I thought maybe I had asthma or pneumonia. I just couldn’t figure out what was wrong. Then I made the connection how I had early fullness with meals after only a few bites. I saw a gastroenterologist who diagnosed me with Gastroparesis and GERD. The medications he put me on worked for a while. I had food poisoning last week and it triggered my Gastroparesis and it is worse than ever. I can’t digest even the smallest amount of food so I am on a liquid diet. My gastroenterologist can’t see me for a month. I am so frustrated. It’s torture living this way.
Hi Wendy, Jennifer here. I am so sorry things have become worse for you. I am not able to eat very much (one very small meal at supper) and am mostly on liquids. It is incredibly frustrating and such a cruel disease. I hope you were able to get in to see your Gastroenterologist and that you can find some relief soon.
Wow thats exactly my symptoms, shortness of breath and indigestion. My endoscopy said i had gastroperesis and gastritis. Its been 6 months how are you doing? Any hope?
Hi there my name is Tina I live in Glasgow I was diagnosed with gastroparesis last December /January and I have been fighting constantly to get a appointment and now been told I’m not aloud my anti inflammatorys so glad you are doing better this is a horrible condition and doctors should listen to us more often to figure out what is wrong xxxx
Hi Tina, this is Jennifer. It can be very exhausting when you are constantly having to fight to be heard. I am not sure which anti-inflammatory you are on but certain medications can end up hurting our stomachs more than they already are. I know for me personally most anti inflammatory meds end up causing me a lot of pain and vomiting. Everyone is different with how they react to meds though. It can be a lot when you are still newly diagnosed to figure out what helps and what hurts. Wishing you the best of luck and hoping you are able to find some relief soon.
@@Astreigha thank you Jennifer and I have psoriatic arthritis and I’m a year and a half into my diagnosis with gastroparesis and I take a special hospital medication called apremilast and naproxen 250mgs xxx
@@tinaduffy3481 Naproxen is one of the ones that I can't take anymore, it was too harsh for my stomach. It can be so hard to try and juggle meds and side effects when trying to treat multiple things. It can feel like a never ending cycle at times.
I have a GP that couldn’t diagnose me in three years. Had surgery two years ago and it was totally unnecessary. We live in the country and my husband took me to the ER in a small hospital and they have about two other patients at the time. This doctor came in and I thought that he was pretty old to still be working. He sat down next to me and listened. After a while he told me that it sounded like GASTROPARESIS. I took his diagnosis to my GP and she scheduled a test right away.
You should be a disc jockey on the radio or voice actor in movies. Your voice is soothing and relaxing. My ex has gastroparesis and he has lost half his body weight in 6 months. Not a fun disease.
I don't have gastroparesis, but I've had stomach problems for at least half my life (I'm 25 by the way). I've had chronic intractable constipation, severe abdominal pain due to repeated bowel obstructions, excessive belching, projectile vomiting water without warning, pain when eating ESPECIALLY after drinking fluids, etc. All the doctors said that it was either in my head, or that I had a wild imagination, OR that I was making it all up just to gain attention. It's absolutely horrible. But over the years, I've numbed up to most of the pain...
@@nkadimashiane Not my case. I did breathing exercises on my vagus nerve and it caused the worst hot stabbing pain throughout my upper diaphram for nearly 10 mintes.
Hi, it's Jennifer. I am so sorry that you are having to go through all of this. It is so disheartening when Doctors don't listen to us and refuse to help us. It's truly awful that some of us basically just have to "suck it up" and endure this horrific disease with no help or relief because Doctors choose to not believe us. I hope you are able to find some relief soon.
Thank you Jennifer so much for sharing your story 🙏🏼🙏🏼. I am desperate now with my 13yo EDS boy who is with nausea, reflux and vomiting food after 30 m, with pain all day, since months, the vomiting started some weeks ago. As the symptoms are so similar to gastric cancer, how can you tell the difference? It is all so scary 😔
I was told I had acid reflux. And ulcers which was true! But that wasn’t all. I wasn’t able to eat I lost so much weight then they told me I had a eating disorder but I knew that wasn’t it I DIDNT FEEL GOOD! Coming to my diagnosis I went to the hospital and went through tests and tests but nothing then I found an amazing doctor and that’s who has been helping me!
i had gastroenteritis a month ago from food poisoning. it was the worst pain i have ever felt in my lifetime. it went on for 5 days with violent vomiting at least 15 times every 3 hours. thanks for sharing!!!
I'm having my emptying test Wednesday, my symptoms started back in October and my primary doctor did the exact same thing I pushed for a GI and now I'm finally getting assistance I'm so nervous about the test though
Thank you for telling your story. I also have GP, and I’m currently a research patient for it. I’ve also been on an NG tube and they try to implant a G-tube but had to abort the surgery because my anatomy is incompatible with that which is a different issue but now they want to implant a J-tube. It’s an extremely difficult issue to try to explain even to your own physicians because it is so rare, let alone to people who have obviously never even heard of this issue
HI Maya, apologies for the delay in responding. I am sorry that the tubes ended up not working out for you. It can be incredibly frustrating to try and explain to anyone. I try and do what I can to raise awareness but I hope that one day soon Doctor's will become better educated about this awful disease. I hope you are able to find some relief soon.
Sorry you're having issues in getting treated. Have research hospitals like Mayo Clinic been able to help? They put me on Pyridostigmine to resolve my gastroparesis issues. Another medication they use is Mosapride, but I haven't tried that one.
Always get a second opinion, some doctors don't care and just try to see as many people as possible, you have to find the right doctor that has patience and compassion and not just about the money
I'd heard something about gastroperesis regarding a diabetes drug causing it. Nausea and vomiting absolutely sucks as i appear to be suffering from a chronic bout of it over the past few days. A couple of years ago I was diagnosed with a duodenal ulcer caused by an H pylori infection and that was the absolute worst experience I've ever had. Then last year I had to undergo a laparascopic right hemicolectomy procedure due to polyps that were found when i had my colonoscopy to diagnose the original infection and as if that weren't bad enough i developed an abdominal abscess shortly after surgery and had to spend weeks in the hospital recovering from that.
Hi James, Jennifer here. I am so very sorry to hear that your doctors are not listening to you. It can be the most frustrating and exhausting thing to have to continuously fight with medical professionals just for them to not hear us and brush us off.
I was just diagnosed with this. I’m scared. I don’t know what to do. My doctor doesn’t want to put me on medication. I also have ibs .. I only eat once a day
I am also suffering from gastroparesis its been 11 years i have lost my health my beauty etc now i reached the condition that even become very difficult to do anything whole day just lied on bed don't have enough energy to talk too. Just before 2 days back i come to know about this desease. .i hope i will found good doctor for this treatment.
Jennifer can you please tell me what kind of edibles you use? I've done so much research and it seems it slows the stomach down not helping the situation. I really want to use canabis to see if it helps, but not sure what to use! Please help.
Thanks for sharing your story! Can I ask if the medical cannibus actually increases your stomach motility and allows you to eat more? Or is it more to manage symptoms of nausea etc? Do you mind sharing what dosage you are taking? Thanks so much and sending prayers for you!
Jennifer - Please advise... Medical cannabis helped which symptoms? Did it help increase your motility? Or did it just combat the nausea? My wife is suffering with GP. Thanks for your video and sending you love and support from the US. Lastly, how do you use the cannanis? Oil drink, smoke, etc.
Hi Rich, this is Jennifer. I didn't see your comment and apologize for the delayed response. I am so sorry to hear that your wife is suffering from GP. Medical Cannabis helps me control the nausea, vomiting and pain. It does not increase the motility unfortunately. For me personally I vaporize Cannabis Flower and Concentrates. Typically edibles aren't the best idea with GP as it doesn't break down properly in the stomach and dosing can end up being inconsistent. They could potentially work for someone with milder GP though. Oils can be hit or miss as they don't absorb properly (for me) and didn't overly help. The thing with Medical Cannabis is that there was a ton of trial and error involved for me to figure out what works and what doesn't. Also, just like most medications it work differently for different people. I hope you are able to find something that can help your wife get some relief.
@@Astreigha Jennifer - Thanks so much for the thoughtful response. She is blessed not to have nausea and vomiting. But the GP is severe. To the point where water is a challenge. My questions about cannabis are laser focused on reducing inflammation and tamping down her autoimmune system that we all suspect has attacked her stomach and/or vagus nerves that vontrol the stomach and motility. Thoughts on cannabis for reducing inflammation in digestive track? Once we stop the new damage, then healing could be possible. No guarantee this is the cause of her problem. However, doctors can only tell her she GP, then sadly, they just pull out the prescription pad. Bless you for you comments, video, and support.
@@RichRocketMan I am not sure what the process for accessing Medical Cannabis is where you are but if you are looking to reduce inflammation, usually CBD is a bit more helpful with that. As for it reducing inflammation in the stomach, it could certainly be possible but I can't say for sure if it would reduce it specifically in the digestive tract. I know in the states there are so many different kinds of CBD options and not all of them are made the same. Here in Canada, once I have my prescription I register with a Licensed Produce and from there I can purchase any type of Cannabis I want that they sell including CBD flowers and oils that are all lab tested. If you are looking at an oil you want to look for Full Spectrum CBD oil. I vaporize CBD flower a lot personally as I have arthritis and some other things that cause inflammation. I either mix it in with my normal flower that has THC or have it on its own. There is also CBD Isolate (unsure about availability in the US) which is a bit on the expensive side but is pure CBD powder. I do not have experience with CBD Isolate as it is a bit harder to get a hold of here. I hope that helps a bit!
@@Astreigha Astreigha - Bless you for the response! Very kind. For stomach inflammation, would you say rubbing a full spectrum CBD oil there each day would be best route to try first? Then try isolates version? Try topical route before ingesting it? Try ingesting it before vaping it? Never done anything like this ever. Are there some good introductory videos for this? Thanks so much!
I know that it is not something you considered, but did you ever try castor oil packs? Since the case is so advanced I would guess you would have to do it for a couple of months but maybe it will help, you have nothing to lose. Sleep with a castor oil pack every night with a break on the weekend.
Hi Michael, Jennifer here. I am so sorry to hear this. I know some of my friends went decades fighting for a diagnosis and it just makes me angry that some of us have to fight for so long just to be heard. it is so exhausting and frustrating to have to fight all these medical professionals for so long just to have them not listen to us or not take us seriously. I hope you are able to find someone that will listen to you and not just brush you off about your concerns.
Hi Michael. As I have bile reflux too, and probably also gastroparesis, can I ask you why do you say that your gastroparesis progressed into bile reflux, and how do you know that gastroparesis is linked to biliary reflux? Maybe I'm missing something, so I'm asking you
They still haven’t made a diagnosis for me after 6 months of both pain and hell. I average once a month attacks to the emergency room, and I’m missing work. All they can do is provide pain meds, which does help. I have diabetic neuropathy, and at least my PCP doctor is referring me out to specialists: G.I., Neurologist, Pain Management. But, between now and seeing booked up specialists, I can only go to emergency rooms for now. And, those ambulance rides cost $1,500.00 one way, less than a mile.
Hi, Jennifer here. I am so sorry that you are having to deal with all of that. It is not easy having to fight to see Doctors and trying to actually get them to listen to you. If you are able to get into a GI specialist you want to ask for a Gastric Emptying Scan that is a diagnostic test for Gastroparesis. I hope you are able to get some help from the Doctors and that you can find get some relief soon.
I’ve given up with doctors trying to help me for so many years, my new doctor just brought up stomach paralysis and i honestly think i have this, eating is basically hell and i cant gain weight, when i try to eat more i just get sick and its just fucking exhausting
I started having severe gastroparesis about 10 months ago when a Ms attack hit me and I realized I had had it my whole life multiple sclerosis because the nerves cannot send signals properly to muscles so they don't contract properly my whole body is having issues because of that it all started around the same time
Hi I took have gastroparisis they also tried a lot of meds . The only thing that worked was medical cannabis now with other problems I am going without that I am hurting to bad.
Thank you for the information Jennifer I'm sorry you got that terrible illness I'm Diabetic and I think I'm coming down with it too and I will try your method Diabetes is the number 1 cause I hope you recover from it you are too young to be suffering like that 🙏🙏🙏
I live in Texas and medical Marijuana is not legal. I have diabetic gastroparesis and found marinol a synthetic thc compound and is legal in the USA. I have to pay for it but it has been well worth it. Appetite still an issue but nausea and vomiting have been almost gone sense I have been on marinol. God bless and I hope this helps someone.
Thank you for Sharing. I just recently got diagnosed on Becau I ended up in the ER and now I have to see what the treatment plan is this is definitely hard for me I cry every day and I feel weak and we can week my stomach muscles feel weaker every day I’m praying for all of us get answers soon and there’s a cure because this is. Do you have diabetes by any chance they say where this came from?
😭😭😭😭😭😭 this is what I am going through right now, can't eat anything and can't keep anything down. Doctors not taking me serious, even my GI doctor, I have lost so much weight and always week. I just want some answers
Ohhhh ik the feeling about the family doctor, my old family doctor didn't care he kept saying I had acid reflux I was really young like probably 6 around there I started having bad bad stomach pains, nausea I was gaining more weight I kept getting sick with my stomach my school wouldn't let me go to the nurse the nurse didn't like me plus I was getting bullied for being a fat ass so the stressing made me sicker I was so nauseous stomach hurting so 6-18 years I haven't found out wat was going on until I started yelling at our family doctor to let me see a stomach doctor and he finally agreed it took him 14 years for him to finally agreed couple months after he agreed we found out that he was "retiring" but I don't think that's it. Now I'm struggling to lose weight there's so much stuff that's hurts my stomach. btw I'm 19 now so it's been a year since I found out I have gastrophoresis.
I’m Miserable When I eat I feel like I’m going to throw up 🤮 I have acid reflux all the time I’m gassy I’m hungry all the time but I’m full I’m gaining weight which I really don’t understand I’m bloated and I’m tired all the time I have been a type one diabetic since I was six years old both of my boys are type one I’m also going through Menopause and my doctor has offered me medical marijuana for pain but I’m scared that it’s gonna make me gain a lot of weight and make me hungry when I can’t eat. The reason I say I am gaining weight is because I’m eating a lot of ice cream soft foods easy to digest but they’re really not good for me I just really need help in figuring out how to handle all of this without going crazy
this cannabis treatment. how good is it? I mean, does it makes you can eat normal portion and let you do the normal activities? if it so then I might went to canada to try one.
Hi again Brittany (i responded to your earlier comment). Medical Cannabis is the only thing that really helps me and it helps a lot of people with Gastroparesis. Some people find that their symptoms flare up really bad in the morning/afternoon and evenings are a bit better and some people are the opposite where night time can be worse and mornings are better. I hope your doctor will start to listen to you and that you are able to get some relief.
@@Astreigha thankyou so much for the encouraging words they're needed. It always feels as if the doctors don't feel like dealing with it so they just pass you off to the next doctor. This is horrible feeling like this every single day. Then it doesn't help when family even starts to doubt you . This happened out of nowhere one day and never stopped. I even get a weird light headed feeling on the toilet sometimes from all the stuck gas in my body. It's such a weird thing to have to describe what I feel. But I am so happy you found relief. I found RSOs help a lot with the medical Marijuana. Thankyou for sharing your story it helped me
Im so glad the cannibas herbal medicine is helping you. 🙏🏼 Im in the beginning of my journey. Im curious since the cannibis what is your eating routine. What are your safe foods. Do you take herbal laxatives?
Did you figure this out!? I am trying to help a girl I work with who is suffering with this! I have been at the hospital the last 3 days with her. She is getting discharged today. My wife and I went shopping for her. What are you eating to help?
@@jessesk8777 everyone is different but what is absolutely necessary for me (and some others) is only eating one meal a day as our system takes so long to digest. I also have to do several longer fasts per month (30-48hr) I can eat blended homemade soups now and salad. But for I year I lived on beef and butter as my body rejected all plants. I’m slowly rebuilding my microbiome and I hope it can improve the sluggish digestion. I use herbal and fleet laxatives almost daily or I feel sick. I tried rice, potatoes, oats, popcorn and that made everything worse. I stick to low Glycemic index, low histamine. Right now I’m eating these foods: Carrot, zucchini, ginger, olive oil, pumpkin seeds, cucumber, micro greens/sprouts, romaine, iceberg, arugula, radish, spaghetti squash, bell pepper, broccoli, Dry seasons: Dill, ginger, oregano, sage, cardamon, Himalayan pink salt Grass finished ground beef, salmon/cod (wild caught no preservatives) organic Pyure stevia) coffee
The herbals I use are lots of Ginger of course, fresh, dried, and ginger tea. I use triphala and casacara Sagrada, magnesium oxide. Fleet liquid glycerine. I work on vagus nerve and lymphatics AM & PM everyday, plus a massager for manual work and to help gut. I jump on trampoline, breath work, red light therapy, exercise, and prayer.
@@CalmVibesVee thank you so much for all the info!! I became a Christian 23 years ago! I have been sharing Jesus with her also! Praying she gets saved and learns how to handle this as best as possible!
I just listened to a podcast with Dr. Michael Cline talking about that I believe. He said when appropriate, it has had a 70% effectiveness rate in increasing stomach motility. He is with the Cleveland Clinic.
Hi Astrega and any and everyone on here. Thank God for all of you and for sharing your stories.Llet me say I believe all of you and I’m very sorry for you if you have doctors who don’t listen or admit they don’t know what to do. I had a bad day yesterday etc.. just wanted to say I’ve had this condition probably my entire life no lie just turned 48 in April. I had my gallbladder removed in late Dec 21 and in the last 2-3 weeks what appears to me to gastroparesis has been off the charts in frequency of flare ups to the point were eating or drinking anything is impossible but I try and power through but I paid a severe price last night like many of you. I had to go out and get a laxative to help me go, I’ve done TH-cam research and I ran across a video on betaine hcl and super enzymes I’m awaiting my delivery to arrive I’ve scheduled a doctors appt but can’t see my pcp until mid June so I’m going to try out this betaine hcl and Super Enzymes in the meantime… I’m also considering G-Poem surgery bc I believe my issue are birth related so I may need to have my sphincter opened up as maybe being a born premature maybe I didn’t develop internally (this a personal belief of mine) related to my blood cell shape let me what you think, I wish you all the best health and a normal life despite this issue I’ll put you in prayers and update when betaine and Super Enzymes show something as well as what doctors say. Take care keep fighting and trying your best to figure this thing out ✌🏽❤️
Hi Elena, this is is Jennifer. I apologize for the very late response as I did not see the comments on the video. If you are referring to Cannabis Oils I do not use the oils very often. The medical cannabis that I am using is flower and concentrates and I vaporize. The oils can be hit or miss because they don't get broken down properly in my stomach. I have tried a variety of oils in the past and they weren't overly helpful for me personally. Everyone reacts differently though.
@@morningwithgracie7870 It is just like any other medication and everyone can have different experiences with it. I know people who use it for GP. It just did not work for me personally. Just like other meds it was a long time of trial and error to figure out what worked best for me. What works best for me isn't necessarily what will work for best for everyone either.
Does everyone vomit with this, my pcp is pulling that same crap ,take poop medication and come back in a week. I've lost almost 40 pounds. He took blood work and did a xray on my stomach but nothing
Hi Brittany, this is Jennifer. I am someone who vomits a lot with Gastroparesis but that isn't always the case. There are lots of that people have Gastroparesis and they don't vomit at all or vomit very rarely. It can be very frustrating when on paper we look "normal" but our insides are telling another story. I'm sorry your doctor isn't taking you seriously. All I can say is keep fighting and advocating for yourself as much as you can. I know it is hard, exhausting and very frustrating when we are not being heard.
Yes, the Gastric Emptying Scan is the best diagnostic test for Gastroparesis at the moment (in Canada at least). I thought I mentioned it in my response yesterday and apparently didn't so I am gad that Kelly pointed that out!
@@brittanyeyrich2360 its a darn shame you have to do that! what happens to people who arent able to be good advocates for their own health in this country??? I hope you find answers soon.
Hi, Jennifer here. I don't eat much in terms of actual food unfortunately. Everyone is different but I only have one small meal at supper time. Throughout the day I drink drinks that have electrolytes, vitamins and minerals. I also have a protein powder that is similar to a meal replacement drink.
![เปิด อาณาจักร หมื่นล้าน "สาระตั้ม" l [Nickynachat]](http://i.ytimg.com/vi/3XE0nPF4YkQ/mqdefault.jpg)
Bro I just got diagnosed with it. So hard to meet the 5 meals a day. Trying my best. Already have lost 22 pounds. I hope we get a cure one day
I myself was diagnosed with gastroparesis 5 years ago. It stemmed from ever since I can remember when I was a little girl going back and forth to the GI doctor My mother taking numerous numerous times out of work taking me back and forth to the GI doctor. The GI doctors told me there was nothing wrong with me I was making it up all the tests are coming back negative I was doing it for attention all which is not true. So my doctor ran one more last test now after living with this for 43 years The test where you eat half of a sandwich lane and tube for 90 minutes and see how your stomach digests. So a few days go by a nurse calls me and says oh my God your stomach is only digesting 7% out of 100 I said this is amazing she said what I said I told you people that I'm not making this up there's something seriously wrong with me while the vomiting I did my stomach extending after I eat and just so so so so sick. So let's go back to 5 years ago when I got that phone call from the nurse and I said okay how do we fix this problem she said through gastric bypass surgery I went in about four or five days later had the surgery it changed my life life-changing surgery My stomach does not hurt anymore I do have a hyal hernia that I need to get repaired and fixed but as for the stomach pain that I endured all these decades has gone away so I don't know if I helped you in any way or if I could help you in any way but that is my story. God bless 🙏
My gp diagnosised me with just my symptoms turned out she was right. She's a keeper. if your doctor won't listen to you dump em.
Thank you so much for this video! 🙏🏼💖🙌🏼 I’ve been suffering from Gastroparesis and neuropathy since 2018 due to my type 1 diabetes which I’ve been dealing with all my life. I like to know that there’s also other people who can understand what I go through when I have these flare ups. I’ve tried cannabis before and its worked so well for me, for my chronic pain and my nausea/vomiting. Thank you for sharing your story. I found it really helpful🙏🏼
The flare ups are horrible and my doctor sent me to get the four hour test and I had no symptoms that day. So all was normal. I asked my doctor to re test when I am having symptoms. I am so angry and feel defeated.
Same. Doctors don’t really care about sick people. They want your money with zero effort. I just lost my GP of over 16 years. They are taking my Valium away that I’ve been on with no problems for 13 years. I really hope they can grow nerve cells and replace our broken ones.
@@gerdyproffitt4916 I'm so sorry you're going through that, I hope they can actually help you soon 🙏🏼💕
@@Christopher50now I agree with you. I was taking tramadol and gabapentin and got both taken away because there paralyze my stomach.
currently dealing with this i believe while also being a t1 diabetic for 15 years. ...Currently trying to figure out if the results from the blood work that show me basically having some sorta nonalcoholic fatty liver disease. I've been having issues basically feeling full quickly and dealing with bloat while also taking for ever to pass said food. i do feel like i need to throw up but keep said food down. so my question is how is your liver doing? thanks
Thank u for sharing. We need to spread this message so ppl will stop treating us like we’re over exaggerating our symptoms and that we’re just doing this to ourselves. I’ve heard it all and I’m exhausted and over trying to prove my point on this. Thank u. I will be sharing
I've been in accidents, had surgeries and gave birth twice. Gastroparesis is the worst pain I have ever experienced. You are right! Need to spread the word.
Also herbal medicine is the way to healing. Spiritual guidance is the answer. Don’t believe me! seek it for yourself
Thanks for taking time to post . I'm having emptying test pretty soon . Then doctor and I will know more . Doctor is pretty sure that's what's causing my weight loss, nausea ect . Recently spent 4 days in hospital due to dehydration and passing out when I tried to walk .
Thanks again.
Women have trouble getting male docs to listen. I know from experiences. I was diagnosed with an emptying study. It took a long time to get a diagnosis. Your persistence saved your life.
Men who go to doctors have the same issue. Most don't even bother after a while.
Thank you! It is very frustrating to see so many women get brushed off or dismissed by their doctors. I wish it wouldn't have taken so long for you but I am glad you were finally able to get a diagnosis with the emptying study.
Unfortunately, sometimes it's necessary to start bringing a male friend or family member to doctor appointments, just to avoid being gaslit and railroaded. :(
I'm male and doc ignored me too. Don't think it's males being sexist like ya think
I’ve been dealing with this for years and was diagnosed when I was 15. fighting for a diagnosis was one of the toughest things I’ve faced it took so long for anyone to believe me. I just got permission to keep my NJ tube out but it was only after I threw it up now we’re discussing a gastric pacemaker I hope everyone else suffering finds the help they need and find relief
This is a horrible disease and I have been recently diagnosed and because of Covid I have not been able to go to hospital or nothing as I was scared and the fight with doctors is unbelievable you feel like they never listen 😪🥴😞
Hi, this is Jennifer. Fighting for a diagnosis is one of the toughest and exhausting things. I am sorry the NJ tube didn't work out for you. I hope you are able to find something that works for you and that you are able to find some relief soon.
@@tinaduffy3481 Gastroparesis is truly a cruel disease. Fighting with Doctors can definitely feel like a never ending battle at times. It can be hard to find a doctor that will take the time to listen to you. I hope you are able to find someone that will help and that you are able to get a bit of relief.
@@Astreigha thank you so much for replying back and it does feel a never ending battle 🥰💜🥰
Hoping you get treatment that helps. My doctors put me on the vagus nerve stimulating medication Pyridostigmine to treat my gastroparesis, and it works similar to the gastric pacemaker but without the surgery.
I have GP as well, at first they thought it was just some stomach ulcers which was causing my pain until they did the pill test and noticed that it takes pretty close to 8-12 hours to digest a small meal. This is a really crappy disease and like cancer I would never wish it on anybody.
I'm 19 and suffering this for 2 weeks I feel like I want to vomit after eating few soup I don't know what to do
I have gastroparesis caused by hypermobile type Ehlers Danlos syndrome. Mayo Clinic has an excellent gastroenterology department. They've repurposed the older medication Pyridostigmine as a new treatment option for gastroparesis and other digestive dysmotility issues, and it's been a miracle at treating my gastroparesis.
You are so courageous! I also have gp....@ 90% dysfunction. Not to feeding tube yet... keep up the fight!!
Hi, this is Jennifer. Thank you for the kind words. I am sorry to hear that you also have this awful disease. I hope that you are able to find some relief. All we can do is keep fighting one day at a time!
I have been dealing with this too since I was 17 now I’m 30! This is so exhausting and I hate when someone ask me what’s wrong and I tell them my stomach hurts their like take some tums or try to have a bowel movement! I’m like I wish it was that simple! I have awful bloating nausea here and there but no vomiting plus throat tightness and it will switch from one side of my throat but if it’s too bad the pressure will just sit on my esophagus it’s miserable I can barely socialize when it’s bad I just wish theee was a cure like other things that have one
Thank you, SO much! 🙏🤗
I've been dealing with this for 4 years now and my primary care doctor still won't listen to me. I'm about to get a social worker involved because these people will not listen. I'm also compiling a list of articles, information, etc to share with their office because these doctors are making things worse and not helping at all. They are so stupid. I hope that anyone dealing with this finds relief and/or a doctor that will actually take you seriously. Being in so much pain that you want to die is not a good place to be. Doctors need to do their jobs.
Wow. My primary Dr. Sent me right to a gastroenterologist when I told her my symptoms. My primary is the one who actually diagnosed me. Change Dr.
@@imtheboss1826 You are very lucky to have a doctor that was willing to listen and help. Depending on where you live not everyone has the ability to just change doctors like that. Some places have massive doctor shortages (my province is one of them) and some places have incredibly long waitlists to see a specialist. Depending on where you live, it is unfortunately not always so easy to just find another doctor.
Hi Mel, Jennifer here. I am so sorry to hear that you are going through this. It is incredibly frustrating when doctors and medical professionals don't actually listen to us and brush us off. I agree 100% that doctors do need to do their job and actually take the time to try and understand what is going on with their patient. If you haven't come across the articles already, the Canadian Digestive Health Foundation has a lot of great info on Gastroparesis on their website (full disclosure I helped write a few of the articles) that you could print off to give to the doctors that don't want to listen. It is frustrating that WE end up having to educate THEM. I know it is hard and exhausting but you have to keep fighting and advocating for yourself and I hope the social worker can help. I hope you are able to find someone who will help and that you are able to get some relief soon.
Sorry you had to go through that. I've had similar experiences. As a patient, you have the right to "fire" a nonperforming doctor and "hire" a new one who will provide you with the care that you deserve and that your insurance company is paying for.
When I ran into a doctor like that, I discussed the issues with my insurance company. They ended up removing him from their list of approved providers.
Tell them you are hiring a lawyer and going to sue them for not helping a medically needy person… I’m going to have to do the same thing with my daughters dr office they won’t listen to her they said it’s in her head recommended cat scans instead aggravates me she’s been in so much pain for so long crying the other day saying she can’t take the pain anymore
Thanks for your story
Thank you, I hope you are doing well. Ill pray for you tonight.
I was diagnosed a year ago but had symptoms starting a year and a half ago. I had horrible shortness of breath. I thought maybe I had asthma or pneumonia. I just couldn’t figure out what was wrong. Then I made the connection how I had early fullness with meals after only a few bites. I saw a gastroenterologist who diagnosed me with Gastroparesis and GERD. The medications he put me on worked for a while. I had food poisoning last week and it triggered my Gastroparesis and it is worse than ever. I can’t digest even the smallest amount of food so I am on a liquid diet. My gastroenterologist can’t see me for a month. I am so frustrated. It’s torture living this way.
Hi Wendy, Jennifer here. I am so sorry things have become worse for you. I am not able to eat very much (one very small meal at supper) and am mostly on liquids. It is incredibly frustrating and such a cruel disease. I hope you were able to get in to see your Gastroenterologist and that you can find some relief soon.
How r u?
Im going through the same thing. How you been holding up? Any better?
Wow thats exactly my symptoms, shortness of breath and indigestion. My endoscopy said i had gastroperesis and gastritis. Its been 6 months how are you doing? Any hope?
@@omarct endoscopy can diagnose gastroparesis???
Thanks for the video
Hi there my name is Tina I live in Glasgow I was diagnosed with gastroparesis last December /January and I have been fighting constantly to get a appointment and now been told I’m not aloud my anti inflammatorys so glad you are doing better this is a horrible condition and doctors should listen to us more often to figure out what is wrong xxxx
Hi Tina, this is Jennifer. It can be very exhausting when you are constantly having to fight to be heard. I am not sure which anti-inflammatory you are on but certain medications can end up hurting our stomachs more than they already are. I know for me personally most anti inflammatory meds end up causing me a lot of pain and vomiting. Everyone is different with how they react to meds though. It can be a lot when you are still newly diagnosed to figure out what helps and what hurts. Wishing you the best of luck and hoping you are able to find some relief soon.
@@Astreigha thank you Jennifer and I have psoriatic arthritis and I’m a year and a half into my diagnosis with gastroparesis and I take a special hospital medication called apremilast and naproxen 250mgs xxx
@@tinaduffy3481 Naproxen is one of the ones that I can't take anymore, it was too harsh for my stomach. It can be so hard to try and juggle meds and side effects when trying to treat multiple things. It can feel like a never ending cycle at times.
@@Astreigha I agree and now I feel like my body is trying to reject my tablets 😞🥰
I have a GP that couldn’t diagnose me in three years. Had surgery two years ago and it was totally unnecessary.
We live in the country and my husband took me to the ER in a small hospital and they have about two other patients at the time.
This doctor came in and I thought that he was pretty old to still be working.
He sat down next to me and listened. After a while he told me that it sounded like GASTROPARESIS. I took his diagnosis to my GP and she scheduled a test right away.
Hi Gerdy, sorry can i ask you what kind of surgery did you take?
@@mike0133 Nissen procedure, it is suppose to create a smaller opening into my stomach to stop acid reflux.
@@gerdyproffitt4916 ah yes, stomach surgery like Nissen could cause gastroparesis. I am so sorry for you. Have you ever tried to evaluate g-poem?
@@mike0133 don’t know what that is
@@gerdyproffitt4916 is a non invasive endoscopic surgery that show promising results.
You should be a disc jockey on the radio or voice actor in movies. Your voice is soothing and relaxing. My ex has gastroparesis and he has lost half his body weight in 6 months. Not a fun disease.
Thank you for the kind words! This disease is definitely not fun at all.
I don't have gastroparesis, but I've had stomach problems for at least half my life (I'm 25 by the way). I've had chronic intractable constipation, severe abdominal pain due to repeated bowel obstructions, excessive belching, projectile vomiting water without warning, pain when eating ESPECIALLY after drinking fluids, etc. All the doctors said that it was either in my head, or that I had a wild imagination, OR that I was making it all up just to gain attention. It's absolutely horrible. But over the years, I've numbed up to most of the pain...
@@nkadimashiane Not my case. I did breathing exercises on my vagus nerve and it caused the worst hot stabbing pain throughout my upper diaphram for nearly 10 mintes.
Hi, it's Jennifer. I am so sorry that you are having to go through all of this. It is so disheartening when Doctors don't listen to us and refuse to help us. It's truly awful that some of us basically just have to "suck it up" and endure this horrific disease with no help or relief because Doctors choose to not believe us. I hope you are able to find some relief soon.
Thank you Jennifer so much for sharing your story 🙏🏼🙏🏼. I am desperate now with my 13yo EDS boy who is with nausea, reflux and vomiting food after 30 m, with pain all day, since months, the vomiting started some weeks ago. As the symptoms are so similar to gastric cancer, how can you tell the difference? It is all so scary 😔
I was told I had acid reflux. And ulcers which was true! But that wasn’t all. I wasn’t able to eat I lost so much weight then they told me I had a eating disorder but I knew that wasn’t it I DIDNT FEEL GOOD! Coming to my diagnosis I went to the hospital and went through tests and tests but nothing then I found an amazing doctor and that’s who has been helping me!
i had gastroenteritis a month ago from food poisoning. it was the worst pain i have ever felt in my lifetime. it went on for 5 days with violent vomiting at least 15 times every 3 hours. thanks for sharing!!!
Thank you for sharing!
So it’s been 3 years I have acid reflux and pain in my stomach did you also experienced any heartburns?
I'm having my emptying test Wednesday, my symptoms started back in October and my primary doctor did the exact same thing
I pushed for a GI and now I'm finally getting assistance
I'm so nervous about the test though
You're a brave young lady. I too have the same thing and it seems that all the GI doctors I've seen have given up on me.
Thank you for telling your story. I also have GP, and I’m currently a research patient for it. I’ve also been on an NG tube and they try to implant a G-tube but had to abort the surgery because my anatomy is incompatible with that which is a different issue but now they want to implant a J-tube. It’s an extremely difficult issue to try to explain even to your own physicians because it is so rare, let alone to people who have obviously never even heard of this issue
Maya - Hang in there! Any changes in your condition?
HI Maya, apologies for the delay in responding. I am sorry that the tubes ended up not working out for you. It can be incredibly frustrating to try and explain to anyone. I try and do what I can to raise awareness but I hope that one day soon Doctor's will become better educated about this awful disease. I hope you are able to find some relief soon.
Sorry you're having issues in getting treated. Have research hospitals like Mayo Clinic been able to help? They put me on Pyridostigmine to resolve my gastroparesis issues. Another medication they use is Mosapride, but I haven't tried that one.
Always get a second opinion, some doctors don't care and just try to see as many people as possible, you have to find the right doctor that has patience and compassion and not just about the money
I'd heard something about gastroperesis regarding a diabetes drug causing it. Nausea and vomiting absolutely sucks as i appear to be suffering from a chronic bout of it over the past few days. A couple of years ago I was diagnosed with a duodenal ulcer caused by an H pylori infection and that was the absolute worst experience I've ever had. Then last year I had to undergo a laparascopic right hemicolectomy procedure due to polyps that were found when i had my colonoscopy to diagnose the original infection and as if that weren't bad enough i developed an abdominal abscess shortly after surgery and had to spend weeks in the hospital recovering from that.
I swear my doc said the same to me
Even made me go threw mentl health its been 5 years still no correct diagnose
Hi James, Jennifer here. I am so very sorry to hear that your doctors are not listening to you. It can be the most frustrating and exhausting thing to have to continuously fight with medical professionals just for them to not hear us and brush us off.
I was just diagnosed with this. I’m scared. I don’t know what to do. My doctor doesn’t want to put me on medication. I also have ibs .. I only eat once a day
I'm waiting to get the emptying test . Doctor won't officially diagnose me until i have test but feels sure it's my problem .
Will he at least give you nausea meds?
@@robinprice6879 yes I still throw up and I've lost more weight and I have bad constipation my body doesn't really take my medications
I was diagnosed with this too and have IBS. I feel so lost
What kind of cannabis do you use? CBD or THC and what form? Thank you. I am so miserable right now with the nausea and vomiting being out of control
I am also suffering from gastroparesis its been 11 years i have lost my health my beauty etc now i reached the condition that even become very difficult to do anything whole day just lied on bed don't have enough energy to talk too. Just before 2 days back i come to know about this desease. .i hope i will found good doctor for this treatment.
This sounds exactly what my daughter is going through right now
Jennifer can you please tell me what kind of edibles you use? I've done so much research and it seems it slows the stomach down not helping the situation. I really want to use canabis to see if it helps, but not sure what to use! Please help.
Thanks for sharing your story! Can I ask if the medical cannibus actually increases your stomach motility and allows you to eat more? Or is it more to manage symptoms of nausea etc? Do you mind sharing what dosage you are taking? Thanks so much and sending prayers for you!
Jennifer - Please advise... Medical cannabis helped which symptoms? Did it help increase your motility? Or did it just combat the nausea? My wife is suffering with GP. Thanks for your video and sending you love and support from the US. Lastly, how do you use the cannanis? Oil drink, smoke, etc.
Hi Rich, this is Jennifer. I didn't see your comment and apologize for the delayed response. I am so sorry to hear that your wife is suffering from GP. Medical Cannabis helps me control the nausea, vomiting and pain. It does not increase the motility unfortunately. For me personally I vaporize Cannabis Flower and Concentrates. Typically edibles aren't the best idea with GP as it doesn't break down properly in the stomach and dosing can end up being inconsistent. They could potentially work for someone with milder GP though. Oils can be hit or miss as they don't absorb properly (for me) and didn't overly help. The thing with Medical Cannabis is that there was a ton of trial and error involved for me to figure out what works and what doesn't. Also, just like most medications it work differently for different people. I hope you are able to find something that can help your wife get some relief.
@@Astreigha Jennifer - Thanks so much for the thoughtful response. She is blessed not to have nausea and vomiting. But the GP is severe. To the point where water is a challenge. My questions about cannabis are laser focused on reducing inflammation and tamping down her autoimmune system that we all suspect has attacked her stomach and/or vagus nerves that vontrol the stomach and motility. Thoughts on cannabis for reducing inflammation in digestive track? Once we stop the new damage, then healing could be possible. No guarantee this is the cause of her problem. However, doctors can only tell her she GP, then sadly, they just pull out the prescription pad. Bless you for you comments, video, and support.
@@RichRocketMan I am not sure what the process for accessing Medical Cannabis is where you are but if you are looking to reduce inflammation, usually CBD is a bit more helpful with that. As for it reducing inflammation in the stomach, it could certainly be possible but I can't say for sure if it would reduce it specifically in the digestive tract. I know in the states there are so many different kinds of CBD options and not all of them are made the same. Here in Canada, once I have my prescription I register with a Licensed Produce and from there I can purchase any type of Cannabis I want that they sell including CBD flowers and oils that are all lab tested. If you are looking at an oil you want to look for Full Spectrum CBD oil. I vaporize CBD flower a lot personally as I have arthritis and some other things that cause inflammation. I either mix it in with my normal flower that has THC or have it on its own. There is also CBD Isolate (unsure about availability in the US) which is a bit on the expensive side but is pure CBD powder. I do not have experience with CBD Isolate as it is a bit harder to get a hold of here. I hope that helps a bit!
@@Astreigha Astreigha - Bless you for the response! Very kind. For stomach inflammation, would you say rubbing a full spectrum CBD oil there each day would be best route to try first? Then try isolates version? Try topical route before ingesting it? Try ingesting it before vaping it? Never done anything like this ever. Are there some good introductory videos for this? Thanks so much!
Sorry, Jennifer. Forgot that Astreigha is you. Thanks!
Hi.I also have this terrible disease. Can you tell me what strain or strains you use?Thank you for the video God Bless.
I know that it is not something you considered, but did you ever try castor oil packs? Since the case is so advanced I would guess you would have to do it for a couple of months but maybe it will help, you have nothing to lose. Sleep with a castor oil pack every night with a break on the weekend.
It's been 16 years and I still can't get a diagnosis. It progressed into bile reflux 5 years ago and my doctors brush me off about that as well.
Why keep a doctor that brushes you off?
@@imtheboss1826 I haven't. I've gone through dozens of doctors in many different medical agencies across 2 different states in the last 6 years.
Hi Michael, Jennifer here. I am so sorry to hear this. I know some of my friends went decades fighting for a diagnosis and it just makes me angry that some of us have to fight for so long just to be heard. it is so exhausting and frustrating to have to fight all these medical professionals for so long just to have them not listen to us or not take us seriously. I hope you are able to find someone that will listen to you and not just brush you off about your concerns.
was your bile reflux from your stomach into your esophagus or were you just vomiting it up?
Hi Michael. As I have bile reflux too, and probably also gastroparesis, can I ask you why do you say that your gastroparesis progressed into bile reflux, and how do you know that gastroparesis is linked to biliary reflux? Maybe I'm missing something, so I'm asking you
They still haven’t made a diagnosis for me after 6 months of both pain and hell. I average once a month attacks to the emergency room, and I’m missing work. All they can do is provide pain meds, which does help. I have diabetic neuropathy, and at least my PCP doctor is referring me out to specialists: G.I., Neurologist, Pain Management. But, between now and seeing booked up specialists, I can only go to emergency rooms for now. And, those ambulance rides cost $1,500.00 one way, less than a mile.
Hi, Jennifer here. I am so sorry that you are having to deal with all of that. It is not easy having to fight to see Doctors and trying to actually get them to listen to you. If you are able to get into a GI specialist you want to ask for a Gastric Emptying Scan that is a diagnostic test for Gastroparesis. I hope you are able to get some help from the Doctors and that you can find get some relief soon.
I’ve given up with doctors trying to help me for so many years, my new doctor just brought up stomach paralysis and i honestly think i have this, eating is basically hell and i cant gain weight, when i try to eat more i just get sick and its just fucking exhausting
I started having severe gastroparesis about 10 months ago when a Ms attack hit me and I realized I had had it my whole life multiple sclerosis because the nerves cannot send signals properly to muscles so they don't contract properly my whole body is having issues because of that it all started around the same time
Good for you to speak for yourself!
Thank you!
Hi I took have gastroparisis they also tried a lot of meds . The only thing that worked was medical cannabis now with other problems I am going without that I am hurting to bad.
I have some of the symptoms but I'm not sure if I have it and it scares me
It is criminal the damage that is caused by some lazy and incompetent family doctors! Credit on being so persistent.
I use Marijuana as well for mine. It sucks when it gets bad and it feels like I have a horrible flu.
I think I have this problem today and it started when I used magnesium citrate. Anyone else gained this problem by using that stuff?
Thank you for the information Jennifer I'm sorry you got that terrible illness I'm Diabetic and I think I'm coming down with it too and I will try your method Diabetes is the number 1 cause I hope you recover from it you are too young to be suffering like that 🙏🙏🙏
Thank you, my doctor is telling my I have this gastroparesis because of marijuana, but it helps with the symptoms. Honestly I think it’s bile reflux.
I live in Texas and medical Marijuana is not legal. I have diabetic gastroparesis and found marinol a synthetic thc compound and is legal in the USA. I have to pay for it but it has been well worth it. Appetite still an issue but nausea and vomiting have been almost gone sense I have been on marinol. God bless and I hope this helps someone.
I am so glad that the Marinol is working for you and that you are seeing improvements!
Thank you for Sharing. I just recently got diagnosed on Becau I ended up in the ER and now I have to see what the treatment plan is this is definitely hard for me I cry every day and I feel weak and we can week my stomach muscles feel weaker every day I’m praying for all of us get answers soon and there’s a cure because this is. Do you have diabetes by any chance they say where this came from?
هل تحسين في ارتخاء عضلات المعده وضيق التنفس
😭😭😭😭😭😭 this is what I am going through right now, can't eat anything and can't keep anything down. Doctors not taking me serious, even my GI doctor, I have lost so much weight and always week. I just want some answers
With my gastroparesis it keeps everything stuck in my stomach and just stays there for hours reglan is helping for now
Help I woke up like this and it suck
I just got diagnosed with this. Feel discouraged
Living we with this is hell
Ohhhh ik the feeling about the family doctor, my old family doctor didn't care he kept saying I had acid reflux I was really young like probably 6 around there I started having bad bad stomach pains, nausea I was gaining more weight I kept getting sick with my stomach my school wouldn't let me go to the nurse the nurse didn't like me plus I was getting bullied for being a fat ass so the stressing made me sicker I was so nauseous stomach hurting so 6-18 years I haven't found out wat was going on until I started yelling at our family doctor to let me see a stomach doctor and he finally agreed it took him 14 years for him to finally agreed couple months after he agreed we found out that he was "retiring" but I don't think that's it. Now I'm struggling to lose weight there's so much stuff that's hurts my stomach. btw I'm 19 now so it's been a year since I found out I have gastrophoresis.
Do you vape or smoke im desperately seeking relief diagnosed in july
I dont want ro DIE I JUST DONT WANT TO SUFFER NOMORE 💔
I’m Miserable When I eat I feel like I’m going to throw up 🤮 I have acid reflux all the time I’m gassy I’m hungry all the time but I’m full I’m gaining weight which I really don’t understand I’m bloated and I’m tired all the time I have been a type one diabetic since I was six years old both of my boys are type one I’m also going through Menopause and my doctor has offered me medical marijuana for pain but I’m scared that it’s gonna make me gain a lot of weight and make me hungry when I can’t eat. The reason I say I am gaining weight is because I’m eating a lot of ice cream soft foods easy to digest but they’re really not good for me I just really need help in figuring out how to handle all of this without going crazy
this cannabis treatment. how good is it? I mean, does it makes you can eat normal portion and let you do the normal activities? if it so then I might went to canada to try one.
Also I always feel better at night and medical Marijuana really helps.I don't know what's wrong with me
Hi again Brittany (i responded to your earlier comment). Medical Cannabis is the only thing that really helps me and it helps a lot of people with Gastroparesis. Some people find that their symptoms flare up really bad in the morning/afternoon and evenings are a bit better and some people are the opposite where night time can be worse and mornings are better. I hope your doctor will start to listen to you and that you are able to get some relief.
@@Astreigha thankyou so much for the encouraging words they're needed. It always feels as if the doctors don't feel like dealing with it so they just pass you off to the next doctor. This is horrible feeling like this every single day. Then it doesn't help when family even starts to doubt you . This happened out of nowhere one day and never stopped. I even get a weird light headed feeling on the toilet sometimes from all the stuck gas in my body. It's such a weird thing to have to describe what I feel. But I am so happy you found relief. I found RSOs help a lot with the medical Marijuana. Thankyou for sharing your story it helped me
Im so glad the cannibas herbal medicine is helping you. 🙏🏼
Im in the beginning of my journey. Im curious since the cannibis what is your eating routine. What are your safe foods. Do you take herbal laxatives?
Did you figure this out!? I am trying to help a girl I work with who is suffering with this! I have been at the hospital the last 3 days with her. She is getting discharged today. My wife and I went shopping for her. What are you eating to help?
@@jessesk8777 everyone is different but what is absolutely necessary for me (and some others) is only eating one meal a day as our system takes so long to digest. I also have to do several longer fasts per month (30-48hr)
I can eat blended homemade soups now and salad. But for I year I lived on beef and butter as my body rejected all plants.
I’m slowly rebuilding my microbiome and I hope it can improve the sluggish digestion. I use herbal and fleet laxatives almost daily or I feel sick. I tried rice, potatoes, oats, popcorn and that made everything worse. I stick to low Glycemic index, low histamine.
Right now I’m eating these foods: Carrot, zucchini, ginger, olive oil, pumpkin seeds, cucumber, micro greens/sprouts, romaine, iceberg, arugula, radish, spaghetti squash, bell pepper, broccoli,
Dry seasons: Dill, ginger, oregano, sage, cardamon, Himalayan pink salt
Grass finished ground beef, salmon/cod (wild caught no preservatives)
organic Pyure stevia) coffee
The herbals I use are lots of Ginger of course, fresh, dried, and ginger tea. I use triphala and casacara Sagrada, magnesium oxide. Fleet liquid glycerine.
I work on vagus nerve and lymphatics AM & PM everyday, plus a massager for manual work and to help gut. I jump on trampoline, breath work, red light therapy, exercise, and prayer.
@@jessesk8777 I’m praying for your friend.
@@CalmVibesVee thank you so much for all the info!! I became a Christian 23 years ago! I have been sharing Jesus with her also! Praying she gets saved and learns how to handle this as best as possible!
Have you heard of the G-Poem surgery for gastroparesis ?
Hi, Jennifer here. Yes I have heard of the G-Poem surgery. In Canada it unfortunately is not something that is performed very often though.
I just listened to a podcast with Dr. Michael Cline talking about that I believe. He said when appropriate, it has had a 70% effectiveness rate in increasing stomach motility. He is with the Cleveland Clinic.
Hi Astrega and any and everyone on here. Thank God for all of you and for sharing your stories.Llet me say I believe all of you and I’m very sorry for you if you have doctors who don’t listen or admit they don’t know what to do. I had a bad day yesterday etc.. just wanted to say I’ve had this condition probably my entire life no lie just turned 48 in April. I had my gallbladder removed in late Dec 21 and in the last 2-3 weeks what appears to me to gastroparesis has been off the charts in frequency of flare ups to the point were eating or drinking anything is impossible but I try and power through but I paid a severe price last night like many of you. I had to go out and get a laxative to help me go, I’ve done TH-cam research and I ran across a video on betaine hcl and super enzymes I’m awaiting my delivery to arrive I’ve scheduled a doctors appt but can’t see my pcp until mid June so I’m going to try out this betaine hcl and Super Enzymes in the meantime… I’m also considering G-Poem surgery bc I believe my issue are birth related so I may need to have my sphincter opened up as maybe being a born premature maybe I didn’t develop internally (this a personal belief of mine) related to my blood cell shape let me what you think, I wish you all the best health and a normal life despite this issue I’ll put you in prayers and update when betaine and Super Enzymes show something as well as what doctors say. Take care keep fighting and trying your best to figure this thing out ✌🏽❤️
May the Lord Jesus draw you near and demonstrate His eternal love for you. I'm sorry you have had to go through this.
What kind of c oils do you use? Thanks
Hi Elena, this is is Jennifer. I apologize for the very late response as I did not see the comments on the video. If you are referring to Cannabis Oils I do not use the oils very often. The medical cannabis that I am using is flower and concentrates and I vaporize. The oils can be hit or miss because they don't get broken down properly in my stomach. I have tried a variety of oils in the past and they weren't overly helpful for me personally. Everyone reacts differently though.
Thanks
@@Astreigha meaning the cbd oil doesnt work only the smoking weed?
@@morningwithgracie7870 It is just like any other medication and everyone can have different experiences with it. I know people who use it for GP. It just did not work for me personally. Just like other meds it was a long time of trial and error to figure out what worked best for me. What works best for me isn't necessarily what will work for best for everyone either.
Does everyone vomit with this, my pcp is pulling that same crap ,take poop medication and come back in a week. I've lost almost 40 pounds. He took blood work and did a xray on my stomach but nothing
Hi Brittany, this is Jennifer. I am someone who vomits a lot with Gastroparesis but that isn't always the case. There are lots of that people have Gastroparesis and they don't vomit at all or vomit very rarely. It can be very frustrating when on paper we look "normal" but our insides are telling another story. I'm sorry your doctor isn't taking you seriously. All I can say is keep fighting and advocating for yourself as much as you can. I know it is hard, exhausting and very frustrating when we are not being heard.
@Kelly ty I'm gonna write that down and tell him.
Yes, the Gastric Emptying Scan is the best diagnostic test for Gastroparesis at the moment (in Canada at least). I thought I mentioned it in my response yesterday and apparently didn't so I am gad that Kelly pointed that out!
@@brittanyeyrich2360 its a darn shame you have to do that! what happens to people who arent able to be good advocates for their own health in this country??? I hope you find answers soon.
What meals do you have
Hi, Jennifer here. I don't eat much in terms of actual food unfortunately. Everyone is different but I only have one small meal at supper time. Throughout the day I drink drinks that have electrolytes, vitamins and minerals. I also have a protein powder that is similar to a meal replacement drink.
@@Astreigha do u have pots?
Im a male with gastroparesis
Same
She looks like the woman who said she had cancer and her go fund me was seized for faking
G pom operation they open up the lower sphincter.
She is reading from a script
Ugh of course doctor's don't want to listen 🙄
Why are you looking off to the side? It's distracting.
Too long!!