It’s so tough to go through flair ups. Thanks for keeping it real and talking about the toll that chronic illness has on your mental health. I can absolutely relate. Hope that some tv shows, movies and books can help to make things a little lighter for you 💜
I’m so sorry to hear about your flare-ups hon. I have severe anxiety surrounding authority figures and hospitals in general so I can imagine how much harder it must be for you. I truly hope and pray that you can find a great doctor who will really be able to help you. Love how you added the beautiful flowers on Henrietta 🌸 Sending you so much love and prayers ❤️
I don't have POTS but I can empathize with not being able to drive and having to rely on others because of a disability. It's not fun. I'm glad I realized you had another channel other than your booktube. ❤️ 💙
I’m so sorry you’re dealing with this! I also deal with fainting and dizziness, it is triggered by stress. And I feel you about being traumatized by it, I usually am also when I start feeling it happening to me. I always put my feet up on the wall if I’m in the bed. I’ve had similar experiences, so if you need someone to commiserate with, I’m here for you!
The only medications that have helped me (and have honestly been life changing) are zofran and midodrine. I'm not sure if you have low blood pressure with your pots, but midodrine helps a lot with increasing your BP, and doing that has evened out my heart rate.
Sending all the best wishes to you! It's so hard living with a chronic disease and you are absolutely right, hardly anyone talks about the mental health going along chronic disease... Its really hard sometimes 😩
When my vessels dilate from the heat it thickens in my legs . It gets bumpy. I have symptoms of Ehlers Danlos Syndrome. I have orthostatic intolerance.
It’s so tough to go through flair ups. Thanks for keeping it real and talking about the toll that chronic illness has on your mental health. I can absolutely relate. Hope that some tv shows, movies and books can help to make things a little lighter for you 💜
💗💗💗 Here to show my love.
I’m so sorry to hear about your flare-ups hon. I have severe anxiety surrounding authority figures and hospitals in general so I can imagine how much harder it must be for you. I truly hope and pray that you can find a great doctor who will really be able to help you.
Love how you added the beautiful flowers on Henrietta 🌸 Sending you so much love and prayers ❤️
Yes to the physical therapy video, yes to the walker tour video, yes to the insurance video
I’m sorry you’re having more episodes!! Sending all the love! I’m glad you liked that tik tok!! I love that girls page!! 💓💓
I don't have POTS but I can empathize with not being able to drive and having to rely on others because of a disability. It's not fun. I'm glad I realized you had another channel other than your booktube. ❤️ 💙
You are such a strong young woman. I wish you the best in this difficult journey.
Love you!
I’m so sorry Averie. Sending you so much love 💕
🤍🤍🤍 I am so sorry Averie!
I’m so sorry you’re dealing with this! I also deal with fainting and dizziness, it is triggered by stress. And I feel you about being traumatized by it, I usually am also when I start feeling it happening to me. I always put my feet up on the wall if I’m in the bed. I’ve had similar experiences, so if you need someone to commiserate with, I’m here for you!
Also write everything down! I use my bullet journal and my voice memos on my phone.
I have POTS, too. I've had super scary and dangerous episodes. I'll have to see more of your videos to know yours.
♥️♥️♥️
Ily ily ily ily ily
The insurance thing is SUCH BS
Sending lots of lot-distance love and hugs your way.
Love how you painted Henrietta. She looks so cheerful!
The only medications that have helped me (and have honestly been life changing) are zofran and midodrine. I'm not sure if you have low blood pressure with your pots, but midodrine helps a lot with increasing your BP, and doing that has evened out my heart rate.
Sending all the best wishes to you! It's so hard living with a chronic disease and you are absolutely right, hardly anyone talks about the mental health going along chronic disease... Its really hard sometimes 😩
I do weekly life updates ✌🏽
I'm sorry that these last few months have been difficult. I hope with time and these doctors are able to figure out what's going on!
When my vessels dilate from the heat it thickens in my legs . It gets bumpy. I have symptoms of Ehlers Danlos Syndrome. I have orthostatic intolerance.