This was so helpful, I watched it 3 times in a row! Have had Sarcoidosis since 1983, possibly even earlier. Most of my doctors have poo-poo'ed me when I tell them. I have had 3 biopsies that show I have it, Lung biopsy in 1999, Skin in 2000 and 2001. Those 2 doctors have retired, and I've found that none of the doctors here in my smallish city in IL are willing to talk to each other, let alone work together for the patient. I also have the LE phenomenon found in 1986, which is found in either SLE Lupus, or Rheumatoid Arthritis, or Dermatomyosiitis. So I've been told over the decades I had Lupus (SLE), then 31 yrs later dr said "RA" instead. I was also told I have a Neuro-muscular disease, possibly Lou Gerhig's (ALS). 4 Nerve tests were done, 2009-2012) the first 3 were positive, just before the 4th one my doctor gave me steroids for a sinus infection and then my Nerve test was fine except for Carpel Tunnel. Also had another test done last year and they said it was fine! However, I can hardly walk, it feels like a vise grip is gripping me around my hips/pelvis. Almost completely bed-bound now.
My Sarcoid was diagnosed in 1994 and have Lofgren Syndrome which was described perfectly by the physician. I am in fact of Northern European heritage as well so I fit directly into that mold. It was dormant for 15 years and then seems to return with joint pain and swelling as well as low-grade fevers every 3 or 4 years. For me anyway, it will be a lifelong experience.
Thank you for this information. I was just Diagnosed with Sarcoidosis 4 weeks ago ! I have it in my Lungs, lymph Nodes, Bronchial, Liver and Spleen so far. I am being tested for in the bones, brain and Eyes. I was so glad to see this explained where I really understood it well.
Hi Ruth, So sorry about your diagnosis and please stay positive because you can still live a productive life. I too was affected initially in my liver, spleen, lymph nodes and lungs 33 years ago. I'm glad these episodes help you to cope with your new diagnosis. Stay positive! blessings, Dorothea
Hi Evelyn, Thank you for your rely, please ask them to watch all of my episodes and it can really help your friends and family out! #friends #family #sarcoidosis
There are several suggestions for treating sarcoidosis at home Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat. You could also take different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I discovered these and the reasons they work from Remission crusher tactic site )
would you do a video of the symptoms like conic fatuge having your body feels like it's hard to just move the pain in arms,chest presure blacking out and falling.i fell so helpless I've work all my life and it hit me in 2013 and I'm getting worse in my mouth,and airways (my throat ) thank you so much for taking time and money to do these videos. THANK YOU FROM MY HEART.
Bradley, I meant to ask you about your recent diagnosis. Where do you have Sarcoidosis? How are you feeling now? Look forward to hearing back from you soon!
Let's Talk Sarcoidosis thank you for asking! I am feeling well. It has regressed out of my left eye but it is still manifesting itself in my lungs and throughout my skin. I have found that gluten really seems to inflame my "spots" and I feel so much better while coming off of gluten. My 3 main medical doctors have come together to do a homeopathic approach to my treatment which is doing well. I am blessed and my journey and testimony continues
Bradley Hicks Hi Bradley,Sarcoidosis seems to be a day-by-day approach to find what works for us, however, it's great to see that your doctors are communicating with each other to come up with a plan for you and it's doing well.Stay positive and live your life!
I've had a lifetime of symptoms from irregular white cell count, etc. Was first diagnosed with Lupus (SLE) in my early 30's to also being diagnosed with Sarcoidosis in 2009 after a lung biopsy. It's a rough road. I'm almost 58 now, so I've been dealing with these issues for most of my life.
I'm the same age too and was diagnosed in 1984 at the age of 26 years. They thought I had lymphoma. I too had a biopsy but it was in my neck. That's when i was finally diagnosed after five long days. Please stay positive.
There are a few factors in treating sarcoidosis at home. One plan I found which succeeds in merging these is the Remission Crusher Tactic (google it if you're interested) without a doubt the best resource that I have ever seen. look at the interesting info .
I have sarcoidosis I grew up in SE DC where there was a old grave yard site that was never taken care of so I think my sarcoidosis may have come from that area!...
MY lung collapsed about 8 months ago. They thought I had pneumonia. I was later diagnosed with sarcoidosis after several CT scans with contrast. my lung is still collapsed, no saving it. I was put on 60mg prednisone for a month then 40mg for 5 months until a new doctor said that was crazy and tapered me off them. This disease has turned my life upside down. I've gained over 50lbs in the past 5 months from the steroids and my face is always breaking out with these large painful acne like pimples. I barely recognize myself. It's depressing. I can't even walk upstairs to put my youngest son to bed without gasping for air and sharp heavy chest pains. It doesn't seem like doctor's take this seriously. thank u for this video. I learned things that I was not aware of.
Christina, Take a deep breath because I know how depressing and frustrating it can be,. I too experienced a collapsed lung on several occasions. You must remain positive and keep your head up! It may feel as if it's the end of the world but believe me it's not. You can still live a productive life. Try and eat healthy , especially while on prednisone, it can help control your weight gain.Watch some of my healthy eating episodes. I've been there so I know your struggle. Stay strong & positive! Blessings, Dorothea
A pulmonalogist found white spots on my lungs and removed about 11 granulomas. He told me that have sarcoids. This was several years ago. Over the past 2-1/2 years I've been having really bad chest pains. Several tests have shown that it's not my heart, since heart disease runs in my family. Recently I've been having problems breathing. The other night it dawned on me that the chest pain and breathing is most likely sarcoids. I have an appointment with my new primary who I didn't think to tell him that I have sarcoidosis.
Isabella, Sarcoidosis can be a monster disease and affects multiple organs of your body. It can cause chest discomfort as well. Make sure you tell your primary care doctor that you have sarcoidosis because it's important that all of your professional care takers work as a team! Many blessings, Dorothea
I have Sarcoidosis around my trachea and my Pulmonary When it does become active the treatment is Prdnisone or other Steroids such as methotrexate. A Pulmonologist usually treats the Sarcoidosis, however your Rheumatologist can also treat your joint pain. Life expectancy can be long. _Take__ All of Your Meds as Prescribed... Lupus Is More Common than MS so stay up On All information that may affect you when you do have Lupus SLE... ____
Hi Terri, Thank you for your reply. So sorry to hear about your mother-in-law. Please refer her to my Let's Talk Sarcoidosis episodes. This can help her and your family out a lot.#sarcoidosis #family #motherinlaw
for me fluoride is the culprit in triggering sarcoidosis. It is not only found in toothpaste, but pesticides (especially grapes) tea also absorbs large amount of fluoride from the water and stores it in the leaves. If you have this.... try eating organic...eliminating tea and fluoride toothpastes and drinking water that does not have fluoride added to the water...hope this helps.
Hello sir... I am from India. I have sarcoidosis from last 4 months. I have cough and chest pain in left side. I meet my Dr. And exam my self and he told me. Now I use steroids I feel OK but I have joint pain. Now I start light exercise. Sir Main thing can I drink whisky two time in a week just 60-90 ml. Plz. Tell me sir it's request.... Thanks
+Charles Defelice interesting points ,if anyone else is searching for how to treat sarcoidosis naturally try Craffanty Sarcoid Healer Center (should be on google have a look ) ? Ive heard some awesome things about it and my colleague got excellent results with it.
Hi Dustin, If you think you have Sarcoidosis, please seek medical attention to try and get an official diagnosis. It could take some time to get diagnosed properly but please start now. Praying for a quick diagnosis regardless of what you may have. Thanks for watching my show. Blessings, Dorothea
This was so helpful, I watched it 3 times in a row! Have had Sarcoidosis since 1983, possibly even earlier. Most of my doctors have poo-poo'ed me when I tell them. I have had 3 biopsies that show I have it, Lung biopsy in 1999, Skin in 2000 and 2001. Those 2 doctors have retired, and I've found that none of the doctors here in my smallish city in IL are willing to talk to each other, let alone work together for the patient. I also have the LE phenomenon found in 1986, which is found in either SLE Lupus, or Rheumatoid Arthritis, or Dermatomyosiitis. So I've been told over the decades I had Lupus (SLE), then 31 yrs later dr said "RA" instead. I was also told I have a Neuro-muscular disease, possibly Lou Gerhig's (ALS). 4 Nerve tests were done, 2009-2012) the first 3 were positive, just before the 4th one my doctor gave me steroids for a sinus infection and then my Nerve test was fine except for Carpel Tunnel. Also had another test done last year and they said it was fine! However, I can hardly walk, it feels like a vise grip is gripping me around my hips/pelvis. Almost completely bed-bound now.
My Sarcoid was diagnosed in 1994 and have Lofgren Syndrome which was described perfectly by the physician. I am in fact of Northern European heritage as well so I fit directly into that mold. It was dormant for 15 years and then seems to return with joint pain and swelling as well as low-grade fevers every 3 or 4 years. For me anyway, it will be a lifelong experience.
Thank you for this information. I was just Diagnosed with Sarcoidosis 4 weeks ago ! I have it in my Lungs, lymph Nodes, Bronchial, Liver and Spleen so far. I am being tested for in the bones, brain and Eyes. I was so glad to see this explained where I really understood it well.
Hi Ruth,
So sorry about your diagnosis and please stay positive because you can still live a productive life. I too was affected initially in my liver, spleen, lymph nodes and lungs 33 years ago. I'm glad these episodes help you to cope with your new diagnosis. Stay positive! blessings, Dorothea
Ruth Weddle so sorry to hear about your diagnosis how are you
I have such a difficult time explaining my Sarcoidosis to friends and families. This is a very informative video. Thanks for posting!
Hi Evelyn,
Thank you for your rely, please ask them to watch all of my episodes and it can really help your friends and family out! #friends #family #sarcoidosis
There are several suggestions for treating sarcoidosis at home
Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.
You could also take different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I discovered these and the reasons they work from Remission crusher tactic site )
would you do a video of the symptoms like conic fatuge having your body feels like it's hard to just move the pain in arms,chest presure blacking out and falling.i fell so helpless I've work all my life and it hit me in 2013 and I'm getting worse in my mouth,and airways (my throat ) thank you so much for taking time and money to do these videos. THANK YOU FROM MY HEART.
Thank you so much for taking the time to put this show together. I have just been diagnosed with Sarcoidosis and trying to learn as much as possible
Bradley,
I meant to ask you about your recent diagnosis. Where do you have Sarcoidosis? How are you feeling now? Look forward to hearing back from you soon!
Let's Talk Sarcoidosis thank you for asking! I am feeling well. It has regressed out of my left eye but it is still manifesting itself in my lungs and throughout my skin. I have found that gluten really seems to inflame my "spots" and I feel so much better while coming off of gluten. My 3 main medical doctors have come together to do a homeopathic approach to my treatment which is doing well. I am blessed and my journey and testimony continues
You're quite welcome! I appreciate you taking the time out to watch the video and I hope it helps. Blessings
Bradley Hicks
Hi Bradley,Sarcoidosis seems to be a day-by-day approach to find what works for us, however, it's great to see that your doctors are communicating with each other to come up with a plan for you and it's doing well.Stay positive and live your life!
I've had a lifetime of symptoms from irregular white cell count, etc. Was first diagnosed with Lupus (SLE) in my early 30's to also being diagnosed with Sarcoidosis in 2009 after a lung biopsy. It's a rough road. I'm almost 58 now, so I've been dealing with these issues for most of my life.
I'm the same age too and was diagnosed in 1984 at the age of 26 years. They thought I had lymphoma. I too had a biopsy but it was in my neck. That's when i was finally diagnosed after five long days. Please stay positive.
There are a few factors in treating sarcoidosis at home. One plan I found which succeeds in merging these is the Remission Crusher Tactic (google it if you're interested) without a doubt the best resource that I have ever seen. look at the interesting info .
I'm researching treating sarcoidosis at home and found a fantastic resource at Remission Crusher Tactic (google it if you are interested)
I have sarcoidosis I grew up in SE DC where there was a old grave yard site that was never taken care of so I think my sarcoidosis may have come from that area!...
Thank you for the information, my wife has developed Sarcoidosis from the cancer treatment Yervoy. This was very helpful
Good morning,
So sorry to hear about your wife. I'm glad this information was helpful to you both. Blessings to you & your family. Dorothea
MY lung collapsed about 8 months ago. They thought I had pneumonia. I was later diagnosed with sarcoidosis after several CT scans with contrast. my lung is still collapsed, no saving it. I was put on 60mg prednisone for a month then 40mg for 5 months until a new doctor said that was crazy and tapered me off them. This disease has turned my life upside down. I've gained over 50lbs in the past 5 months from the steroids and my face is always breaking out with these large painful acne like pimples. I barely recognize myself. It's depressing. I can't even walk upstairs to put my youngest son to bed without gasping for air and sharp heavy chest pains. It doesn't seem like doctor's take this seriously. thank u for this video. I learned things that I was not aware of.
Christina,
Take a deep breath because I know how depressing and frustrating it can be,. I too experienced a collapsed lung on several occasions. You must remain positive and keep your head up! It may feel as if it's the end of the world but believe me it's not. You can still live a productive life. Try and eat healthy , especially while on prednisone, it can help control your weight gain.Watch some of my healthy eating episodes. I've been there so I know your struggle. Stay strong & positive! Blessings, Dorothea
Very nice presentation. Thank you.
Never mentioned complications with kidneys etc
A pulmonalogist found white spots on my lungs and removed about 11 granulomas. He told me that have sarcoids. This was several years ago. Over the past 2-1/2 years I've been having really bad chest pains. Several tests have shown that it's not my heart, since heart disease runs in my family. Recently I've been having problems breathing. The other night it dawned on me that the chest pain and breathing is most likely sarcoids. I have an appointment with my new primary who I didn't think to tell him that I have sarcoidosis.
Isabella,
Sarcoidosis can be a monster disease and affects multiple organs of your body. It can cause chest discomfort as well. Make sure you tell your primary care doctor that you have sarcoidosis because it's important that all of your professional care takers work as a team! Many blessings, Dorothea
I have sarcoidosis...thank you for this!
You're welcome and make sure you take care of yourself. Be your own advocate and live your life!
I have Sarcoidosis around my trachea and my Pulmonary
When it does become active the treatment is Prdnisone or other Steroids such as methotrexate. A Pulmonologist usually treats the Sarcoidosis, however your Rheumatologist can also treat your joint pain. Life expectancy can be long. _Take__ All of Your Meds as Prescribed... Lupus Is More Common than MS so stay up
On All information that may affect you when you do have Lupus SLE...
____
What city is Dr. Thomas located in?
Greenbelt, Maryland
Very helpful. Thank you.
My mother-in-law has it too.
Hi Terri,
Thank you for your reply. So sorry to hear about your mother-in-law. Please refer her to my Let's Talk Sarcoidosis episodes. This can help her and your family out a lot.#sarcoidosis #family #motherinlaw
for me fluoride is the culprit in triggering sarcoidosis. It is not only found in toothpaste, but pesticides (especially grapes) tea also absorbs large amount of fluoride from the water and stores it in the leaves. If you have this.... try eating organic...eliminating tea and fluoride toothpastes and drinking water that does not have fluoride added to the water...hope this helps.
Hi Darlene,
Keep checking my videos for latest nutritional information .#nutrition # food
does anyboby know how to traet this disease effectively?
HI Daniel,
Thank you for your reply, check out all of my episodes that Dr. Chen appears on. This can help you out tremendously! #treatdisease
Hello sir... I am from India. I have sarcoidosis from last 4 months. I have cough and chest pain in left side. I meet my Dr. And exam my self and he told me. Now I use steroids I feel OK but I have joint pain. Now I start light exercise. Sir Main thing can I drink whisky two time in a week just 60-90 ml.
Plz. Tell me sir it's request.... Thanks
I'm researching treating sarcoidosis at home and found a fantastic resource at Remission Crusher Tactic (google it if you are interested)
I was diagnosed with sarcoidosis at 20 it came back 32 years later . U will never b free of this disease.
+Charles Defelice interesting points ,if anyone else is searching for how to treat sarcoidosis naturally try Craffanty Sarcoid Healer Center (should be on google have a look ) ? Ive heard some awesome things about it and my colleague got excellent results with it.
I think I have sarcoidosis
Hi Dustin,
If you think you have Sarcoidosis, please seek medical attention to try and get an official diagnosis. It could take some time to get diagnosed properly but please start now. Praying for a quick diagnosis regardless of what you may have. Thanks for watching my show. Blessings, Dorothea