I was lucky , no waffle skin. Survivor of HPV oral cancer Back of the tongue & lymph nodes. Chemo/radiation treatments for few months . I tell ppl if I had to puck which one..I'd puck chemo. Cuz radiation hurts like sin By the end of radiation treatment and few months after..it's hell. My salivary glands are screwed..about 20 % working. It's manageable..but its better than the alternative Other permanent side effects, again manageable ( most times ) Its not easy
Hi Wendy and thank you for sharing. We're sorry to read about your diagnosis and everything you've been through. If there is anything we can help with, please call our dedicated Support Line for free on 0808 808 0000, 7 days a week, 8am-8pm. We're here for you Wendy. Best wishes - Ewa 💚
Hello, thank you so much for sharing your experience. We're so sorry to hear that you have been affected by cancer. Please remember that we're here for you if you ever need to reach out. You can call us on 0808 808 00 00 (8am-8pm, 7 days a week). Sending you our best wishes - Steff 💚
Om getting it on one vertebrae soon. Will it work once and for all? Will it harm my spinal cord. Will it come back same spot? I got 6 months remission so this radiotherapy is new for me. I hope it works and doesn't cause damage to my good cells.
Hello there, we are sorry to hear what you are going through and we want to be here for you if you ever need us. If you have any concerns regarding your treatment, we'd recommend speaking to your medical team or GP. You could also speak to our Cancer Information Nurse Specialists on our Support Line. It's free on 0808 808 0000 (8am to 8pm, 7 days a week) Take care - Leanne 💚
How do you handle the claustrophobic feeling? I’m quite anxious that should I need radiation for either of my tumors (parotid and one in the neck), I would be very claustrophobic. I do not really want to be sedated every day.
Hello, if you have any questions or concerns about this treatment please feel free to contact our support line and speak to one of our cancer information nurse specialists. You can call for free on 0808 808 0000, seven days a week between 8am and 8pm. Alternatively we have our Online Community as a source of support -community.macmillan.org.uk/home. This is a place to share experiences, ask questions, or vent your emotions. You can have your questions answered by our professionals and there are various groups that you may wish to check out. You can also find information on our website about radiotherapy masks here - brnw.ch/RadiotherapyMasks. We hope this helps - Lizzie 💚
Some ppl call the marks waffle skin. My marks are on my left cheek. Radiotherapy treatment for salivary gland cancer.
I was lucky , no waffle skin.
Survivor of HPV oral cancer
Back of the tongue & lymph nodes.
Chemo/radiation treatments for few months .
I tell ppl if I had to puck which one..I'd puck chemo. Cuz radiation hurts like sin
By the end of radiation treatment and few months after..it's hell.
My salivary glands are screwed..about 20 % working. It's manageable..but its better than the alternative
Other permanent side effects, again manageable ( most times )
Its not easy
Hi Wendy and thank you for sharing. We're sorry to read about your diagnosis and everything you've been through. If there is anything we can help with, please call our dedicated Support Line for free on 0808 808 0000, 7 days a week, 8am-8pm. We're here for you Wendy. Best wishes - Ewa 💚
The mask was really suffocating but got Spiderman vibes 😂
when you get zapped can you feel it.. as aduio or visual halucinations etc??
No. You don't feel anything
No. You do not feel anything
I just got it done and didn’t leave me no marks!! Guess depends on how sensitive your skin is!!
Hello, thank you so much for sharing your experience.
We're so sorry to hear that you have been affected by cancer. Please remember that we're here for you if you ever need to reach out. You can call us on 0808 808 00 00 (8am-8pm, 7 days a week).
Sending you our best wishes - Steff 💚
Om getting it on one vertebrae soon. Will it work once and for all? Will it harm my spinal cord. Will it come back same spot? I got 6 months remission so this radiotherapy is new for me. I hope it works and doesn't cause damage to my good cells.
Hello there, we are sorry to hear what you are going through and we want to be here for you if you ever need us. If you have any concerns regarding your treatment, we'd recommend speaking to your medical team or GP. You could also speak to our Cancer Information Nurse Specialists on our Support Line. It's free on 0808 808 0000 (8am to 8pm, 7 days a week) Take care - Leanne 💚
How do you handle the claustrophobic feeling? I’m quite anxious that should I need radiation for either of my tumors (parotid and one in the neck), I would be very claustrophobic. I do not really want to be sedated every day.
Hello, if you have any questions or concerns about this treatment please feel free to contact our support line and speak to one of our cancer information nurse specialists. You can call for free on 0808 808 0000, seven days a week between 8am and 8pm. Alternatively we have our Online Community as a source of support -community.macmillan.org.uk/home.
This is a place to share experiences, ask questions, or vent your emotions. You can have your questions answered by our professionals and there are various groups that you may wish to check out. You can also find information on our website about radiotherapy masks here - brnw.ch/RadiotherapyMasks. We hope this helps - Lizzie 💚
That sounds very scary
It was for me .