22q Deletion Syndrome: Camdon's Story

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  • เผยแพร่เมื่อ 25 พ.ย. 2024

ความคิดเห็น • 41

  • @natashambrooker123
    @natashambrooker123 11 ปีที่แล้ว +8

    your so strong continue to raise awareness and i hope all goes well for you Camdon is such a little miracle

  • @Tru1981
    @Tru1981 11 ปีที่แล้ว +15

    I hope he continues to do well. I pray for faith and well wishes for you and your family.

  • @False.paradise
    @False.paradise 2 ปีที่แล้ว +17

    As someone who has 22q I do not have the physical effects I have the learning disabilities of this. It is hard sometimes and people don’t know about this and whenever I tell someone about it they are confused. I hope the world knows more about this syndrome

    • @abdiarsenal196
      @abdiarsenal196 2 ปีที่แล้ว +1

      My daughter just got diagnosed with 4q she’s 3 years old now and doesn’t do what a normal 3 years usually does which walk and talk instead she’s always laying down please tell me she will one day walk and talk with me ..

    • @praveen8px
      @praveen8px ปีที่แล้ว +1

      Can i give some advice

    • @False.paradise
      @False.paradise ปีที่แล้ว

      @@abdiarsenal196 I’m sorry I’m still a minor with it so I don’t even really know I’m middle school I would tell you. If I knew.

    • @False.paradise
      @False.paradise ปีที่แล้ว +1

      @@praveen8px sure :)

    • @praveen8px
      @praveen8px ปีที่แล้ว

      Do u have any social media address.. Pls.. I have daughter 8month she have found the same 22.33 trysome

  • @mollyhuffman23
    @mollyhuffman23 9 ปีที่แล้ว +9

    I just saw this and wow thank goodness he's doing alright, my Reese is 10 with R22 and found it soothing to see that your son has a big older sis like mine does, my daughter is 15 and helps alot so hopefully your daughter does the same

    • @BBWboobie
      @BBWboobie 3 ปีที่แล้ว

      @Molly Magrum r22 as in ring 22 ?? my 40 yr old son has ring 22 . My son was part of the mapping of the 22 chromosome about 25 years ago when he was approx. 15 yrs old

    • @BBWboobie
      @BBWboobie ปีที่แล้ว

      @Angir Gie I think t was done in either usa but more likely in England ..the test kit was snail mailed to me ,in Australia (Queensland)

  • @inspiredmuze9315
    @inspiredmuze9315 10 ปีที่แล้ว +9

    I have tratalgoly of fallot, pulmonary stenosis, and VSD. I was born with it. I am 13 now. My hostipal saved me.

    • @courtney.22
      @courtney.22 8 ปีที่แล้ว

      Tetrology* Hospital*

    • @xkaiitxo
      @xkaiitxo 8 ปีที่แล้ว +3

      +courtney courteau really? so she couldn't spell well. No need to correct her.

    • @courtney.22
      @courtney.22 8 ปีที่แล้ว

      KaitCreates_ well no one said I couldn't.

    • @xkaiitxo
      @xkaiitxo 8 ปีที่แล้ว +2

      +courtney courteau there's no need for it. So what? Tetrology is hard to spell but you aren't an expert. It was just rude.

    • @xkaiitxo
      @xkaiitxo 8 ปีที่แล้ว +5

      +courtney courteau even your spelling it wrong. It's spelt 'Tetralogy of Fallot'

  • @castlenovelist97BOOKS
    @castlenovelist97BOOKS 3 ปีที่แล้ว +3

    I know some of the struggles with 22q Deletion Syndrome. Did you know there's a camp for children and adults who are diagnosed with 22q and Autism? It's located in Pennsylvania. I wish you well on your journey.

  • @boscoitalics
    @boscoitalics 2 ปีที่แล้ว +2

    he s so cute! i also had velo cardio facial syndrome and am 40

  • @kylekozlowski1926
    @kylekozlowski1926 5 ปีที่แล้ว +6

    My younger brother has digeorge. Crazy to see someone else so similar to my brother

    • @sharoncohen1000
      @sharoncohen1000 4 ปีที่แล้ว +1

      my baby girl also have this syndrome...

    • @sushibinstwt_
      @sushibinstwt_ 3 หลายเดือนก่อน

      i also have it

  • @terrimabrey93
    @terrimabrey93 5 ปีที่แล้ว +7

    Beautiful precious baby!

  • @Test-we7iz
    @Test-we7iz 6 หลายเดือนก่อน +1

    22Q Delection Syndrome also known as DiGeorge Syndrome
    22Q Duplicit Syndrome also known as Down syndrome
    the one i had was DiGeorge syndrom luckily

    • @sushibinstwt_
      @sushibinstwt_ 3 หลายเดือนก่อน

      i also have digeorge syndrome

    • @paula_m_
      @paula_m_ หลายเดือนก่อน

      Down Syndrome is having three Chromosomes 21, not 22q duplication

  • @praveen8px
    @praveen8px ปีที่แล้ว +1

    How is he now???

  • @lawaunagrimes9021
    @lawaunagrimes9021 4 ปีที่แล้ว +1

    God Bless you all

  • @jessokcool1
    @jessokcool1 3 หลายเดือนก่อน

    I wish I could see a picture of him Now

  • @kendrahterrelll1257
    @kendrahterrelll1257 3 ปีที่แล้ว +2

    what is that I have that

  • @Cute-apple9885
    @Cute-apple9885 ปีที่แล้ว +2

    True fact. About me I have 22q it’s rare

  • @praveen8px
    @praveen8px ปีที่แล้ว

    My daughter have same i think.. Hiw can i konow more

  • @kendrahterrell4650
    @kendrahterrell4650 2 ปีที่แล้ว

    I have that what's that

  • @highfunctioningaspergerssy4047
    @highfunctioningaspergerssy4047 5 ปีที่แล้ว +2

    He's cute

  • @keishailiahiparker757
    @keishailiahiparker757 2 ปีที่แล้ว

    Would I still be able to get pregnant

  • @AlfredoHernandez-gc6cl
    @AlfredoHernandez-gc6cl 6 หลายเดือนก่อน

    My name is alfredo Johnathan Hernandez I was born with velocardiofacail syndrome and I am graduating south Houston high school year 2009 and I am early retirement and I god easily frustrated people they cannot understand me and I got teased because of my name and I like listen to kiss heavy metal and quuuen and Green Day and my chemical romance and rock & roll classic era and abba and Christian music and I like play is Nintendo Switch