My girlfriend who is the love of my life is dying from early onset alzheimers. She has a rare genetic trait. Her father died when he was 36. She is 33 and can barely talk or walk. This is all been unbearable. Thank you for sharing your story.
I’m so so sorry. I wish I had something better to say. Please try your best to look after your health through this, and don’t be afraid to find support you can lean on. Sending you love 💗
Gracias por contarnos tu historia. Mucha fuerza, recuerda los momentos felices vividos con ella !!! Ponle la música que a ella le guste !!!! Eso ayuda mucho !!! Saludos desde Uruguay 🇺🇾.
I’m so sorry you’re going through this, I hope she feels at peace and experiences only happiness. I’m a scientist studying Alzheimer’s, do you mind sharing which genetic mutation she has? Is it an APP mutation?
The same thing happened to a friend of mine… she was 35 when she was diagnosed with Alzheimer’s… 2 weeks ago, she was moved into a memory care facility … she doesn’t know who she is, who her parents are, her husband or her children… it is the CRUELEST disease ever!
This really hits home as a mother I expected that anything like Alzhiemrs would, possibly, strike me first, before my children. Instead of the "natural order" of the older generation ailing and dying first, my oldest daughter is showing early signs, weirdly, coincidentally less than a year of a 23&me test telling her that she's genetically prone to get the disease. This has caught me off guard since we've never had an older relative suffer from senility, not even into their eighties. Not on my side of the family anyway. They've all died from heart attacks and strokes. My daughter's memory and impulse control is failing and she looks at me like she doesn't know me.
Nancy Desch I cant help but think, like autism, there is a connection to vaccines. The stats are outrageous. Not where they don’t have the vaccines though.
Nancy Desch my husband was 84 when he passed from Alzheimer’s and had been suffering for about 5 years. This is much more dreadfully sad. Sooo much worse.
keith cunningham there are many people who would argue that with you but you do sound so sure of yourself that I’m betting your a right fighter, so I won’t bother. I will give you this to chew on . I worked in long term care with Alzheimer’s patients and my mom was having a assessment for care. It was at the time when the problem seemed to be pushed front and centre. Healthcare was pleading with the gov. For funding so they could expand the level of care and research. I was at the assessment and she was diagnosed with Alzheimer’s and lived a further 15 years with no indication other than some memory loss. She was 95. My point is the system comes up with goals and then manipulated the population. Science is a continually changing study, not stagnant. Sugar is poison, so is processed foods, drugs, and HMO’s. Vaccines are dangerous. Check out Dr. John Berg he detoxifies people and works with the human body’s miraculous way of healing itself.
I was a hospice nurse and once cared for a beautiful man, age 46 with Alzheimer’s. He was diagnosed at 43 with two very small children. It was heartbreaking to see his rapid decline. Rebecca’s husband was so loving and devoted that I am sure he is a great Dad to their daughter.
Mucho Taco it’s just a saying. People say it referring to many diseases and illnesses. It’s just a reminder to those of us who are fortunate enough to have our health that any one of us can fall ill and we have to be thankful. It’s a good figure of speech to remind us how we are all human and shouldn’t take our health for granted!
A dear friend's wife was diagnosed in her 40's, & her husband was about the same age. My heart melted to see him, once she could no longer manage at home, come every single day to the nursing home where I worked. He stayed for hours with her, and walked her with a 'gait belt' until she could no longer be supported. For the last year or so of her life she lost the ability to speak, but never lost the beaming, loving smile she had for him whenever he came to see her! He patiently fed her, and helped the nurses dress her & otherwise care for her. Eventually she could not swallow, and had to be fed with a g-tube. Her husband never ever abandoned her for even one day. The love was heart-breaking & precious.
1900maniac that is precisely where I broke. I had to go back and watch it again, crying even more the second time. So sad to know that her little girl will never know her. The disease progressed so quickly. I hope her family find peace in the eyes of the little one.
My grandma who raised me had Alzheimer's... it was hands down the most gut ripping pain both she and I endured. My grandma would cry asking God what she did to deserve it... the day of my wedding..my husband and I live 2.5 hours away from where my grandparents lived....she couldn't travel so we took our wedding to her...it was the last day she knew my name. My heart goes out to this family. This is years later, but I hope she is at peace. I wouldn't wish Alzheimer's on my worst enemy
My Sister got it at 30 and passed at 35 Left behind 4 kids 2 never knew her, too young Hers was genetic Traced to the Volga River Germans in Russia Large study on them at UofW found the genetic defect in her Died 4/4/94
How sad and horribly tragic. She died just a little over a year later, in July of 2011. She was only 32, and her baby was only 15 months old at the time. May she rest in peace.
commenter78 I guess that's natural, but there's no point in pondering these things too much. Just enjoy the life you have while you have it. That way, you'll have no regrets. Of course, I don't mean "don't care" about them. I definitely have a lot of empathy for those who suffer these tragedies. But there's no point in thinking about them too much. Just my 2 cents.
AND ISN'T THAT JUST DANDY FOR THE BABY? That fucking moron got her pregnant, having NO compassion for a motherless child. He should have been arrested. Absolutely no morals!
I just saw this video, many years after this poor lady passed away. I would like to offer my belated condolences to her husband and parent's. I hope she went to a beautiful place.
I know this is years and years ago and Rebecca has since passed but I was seriously moved by how caring, observant, loving, respectful and just downright incredible the husband is. Truely an incredible human and I hope this family is doing well despite their immeasurable loss
He got her pregnant after her mind was slipping to that extent... How could she consent? Not to mention their child is probably at high risk of having the same disease. I would have made different choices. Just saying.
She passed away in Sydney, Australia. She was not very ill & had not received a diagnosis when having scans for her pregnancy. Her birth was by C-section, and she does did not remember the birth nor was she able to interact with her child at all until she died. Her illness was a very rare form of a genetic illness, with a swift decline. I believe her child was tested in utero, and does not carry the gene. It was an atypical but tragic illness. Thankfully the remaining family appears very close and supportive...wonderful people.
i posted my comment about the disease before i read your comment, yes im glad to hear the family stayed close and faired this horriable disease, i know how hard it is in old people, the fact she was just starting life makes it so much harder for people to take thank you for the up date,
One of my best friends lost her teenage son and started loosing her memory almost immediately. She was 51. At first we were told it was severe depression, understandable, but within a year she was no longer able to do simple math. It is 9 years later now and she is entering the later stages of Alzheimers. Luckily she has a boyfriend that loves her. Caring for her and working to make money to pay their bills which include the huge expense of caretakers is his life as he does not want to put her in care. The doctors have finally admitted what we suspected all along that her Alzheimers was trauma induced. There is no one in her family with it and her grandparents lived into their 90s. The only good thing that has come with these later stages is that she no longer cries every day for her son. The long tragedy of it all has been so heartbreaking to watch. All I can do is be there for her until the end.
I have never heard of trauma induced Alzheimer's. Alzheimers disease you physically die from. Brain cells literally die. Dementia you don't die from and you can have it for years. My Grammy had Alzheimer's, her son, my dad had it as well. I take after them. I now do crossword puzzles daily. I don't know if it helps but it can't hurt.
@@melindabarrios2176 sorry about your family..that's rough. I do have to say that Alzheimers is just a type of dementia so you do die of dementia..there are many different types and most you die from eventually..the only ones is maybe a temporary dementia due to alcohol or an illness.
Oh indeed. Talking over her and speaking for her and telling everyone who she is and what a horrible pain in the ass her situation is for them. What about the life she is losing? What about her thoughts and feelings? That she was showing symptoms two years ago and that husband STILL failed to protect her from pregnancy. Total jerks, husband AND father. Like she is a pedigreed animal that failed to perform.
I hope no one minds if I post a poem I wrote for my sweetheart, Bill. We found out about a year ago that he has Alzheimer's. It has devastated me. I am 58 and he is 75. I can't imagine my life without him.i thought it was a slow disease. It's not true. If anyone is angry that I posted this poem, I will remove. Thirty three more Tears fall silently on my pillow; I choke back the sobs. This man lying beside me sleeping peacefully; Unaware of my utter despair. You promised me thirty three more years. Stay with me my love; I am not ready. I am frightened of the grim time ahead. This thief called dementia Robs my love of our precious memories. How long will you remember our times together? How long will you see me? Why do they call it Sundowners? That seems like something wonderful and idyllic; not a robber of our sweet evenings together. But I will take them just to be with you. My friend, my lover, my confidant, my everything. You have given me the best years of my life. I will give to you my patience, my kindness and my unswerving love. I will gently guide you and walk with you. I will laugh with you, cry with you, and pray with you. For better for worse For richer for poorer In sickness and health Bound together by this thing called love For thirty three more years;. Author: Deborah Overbey Written for the love of my life!
Deborah Overbey. Im here for you. My grandma had it and it was horrible. I can still remember her moans and howls. =/ I hope things get better for you, love! ♡
Miss Amber thank you so much! I remember my grandmother so fondly. She too had Alzheimer's. It is different when it is the man you love and have loved for over half your life.
I am so sorry for your loss. Truly an unbelievably sad story but the love of the husband and parents was incredible. Made me cry. Prayers to all and RIP Rebecca.
MrHanover Smith: "i did not think alzeimers was deadly, esp to a young woman like her...." That it happened to such a young lady is an anomaly (or so we hope). Part of the purpose of this video is to alert others that it happened to someone so very young so not out of the realm of possibilities. Re: the affects of Alzheimer's - you've got some research to do.
Bill Wilson I work in a hospital. I found the video by accident when I was doing research and studying on the disease. It was an awakening to me and very sad. Prayers for the family. 🙏😥
@@artparty222murphy9 she is very lucky lady to still be living a normal life My wife has no use of her legs can just about lift her arms no use of her hands and has a permanent peg feed . She can't talk as such due to have a tracheostomy in for over 2 years . She went into a coma and was given 24 hours to live, but she is a fighter and still here , God bless
What a lovely, lovely family. So brave. I can’t imagine the tears they’ve shed over the cards they’ve been dealt. I understand Rebecca passed away after the birth of her child. Hopefully they’ll be able to single out the memories of Rebecca as she was before this cruel disease took hold. Sending my best wishes to this incredible family from 🇬🇧.
@@judithryle2113 Another comment states that the baby had been tested for the gene and was not carrier, so she is most likely safe from sharing the same fate with her mum. Its still quite tragic through
@@lilianmalone7110as the child of rebecca i am now 14 years old doing very well and now going through all the comments bringing me tears all of these comments make me so happy thankyou.
Totally. She looked like all the old demented people i see all day at the hospital i work in... even her thinning hair and decrepit posture. What a sad story.
@@barefooterin2817 yes i noticed the hair and her body language. I guess it affects more than the brain? I wonder if there's something underneath all of it but Alz is thr easiest to name or most tragic aspect of premature aging.
@@JuniperTreeee It's not on the same level, but you can somewhat compare it to depression. When you're really deep into your depression, you can come into a state as if you're in a trance. The aimless stance and the blank stares she had is similar to depression. When your brain is full of fog, it's hard to move.
@@booyah7415 last winter I worked two FT contracts requiring a lot of thinking. One day I started to not be able to make sense of the icons on my car dash. I just saw symbols. When I was done with both finally, I sat in bed and stared at the wall with soft music on for about a week. I wasn't depressed but my brain was a fog, done. In grad school also, I remember it growing, I could actually feel new pathways growing it was uncomfortable . It truly is a muscle.
Yes i agree the government need to sort the system out, Should be a case by case decision as every situation is different deffintly not right the way things are
Having lost my partner at 44 I know how cruel diseases are but I think Alzheimer's is by far one of the cruelest. This broke my heart how she had everything to look forward to & it was cruelly ripped away from her & her husband. Rest in peace 🙏
I think Alzheimer's disease is the hardest disease for the family and caregivers. A disease like severe cases of multiple sclerosis is worse for the patients because they are trapped in their bodies but still have their conscious minds and as such are in constant torment.
I also take care of people with the disease and to see someone so young have it and was never able to enjoy her precious child makes me cry,God bless her family and wonderful husband who supported her
My parents suffered from the Alzheimer's and died from it in their early 80s. But to see teens and young adults like Rebecca suffering from the affliction is heartbreaking. Young people just starting out on life's adventures and then coming upon a roadblock with no detour. It's a damned shame.
I can’t stop crying. This is the saddest thing I have seen in such a very long time. She is so young and precious and seems so innocent, like a child. God bless her family. 😥
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I'm a permeant carer for my grandmother, have been for over 5 years. I'm 25, she's 79. I found this video through searching TH-cam for some sort of relief, today I was sat feeling sorry for myself after my gran had a bad day. Watching this has made me count my blessings. I honestly believe Alzheimer's is the worst disease in the world. All my thoughts and prayers are with Rebecca and her family. You're all amazing!
My husband has Alzheimer’s and has had it for a couple of years. It gets worse by the month. He was just diagnosed with heart failure and while he will likely lose some years of life I pray his heart takes him before this devastating disease does.
This is all very sad and tragic. My Dad died of Alzheimer's 3 yrs ago when he was 81 yo. It was horrible to watch him lose his memory and become a shell of his old self. But he had a long and happy life, this poor young lady had only started hers.
@JONES how do you know she passed on the gene? Just because its genetic doesn't mean her child has inherited that Gene. Also she was already pregnant by the time she got her diagnosis.
To everyone complaining that she passed on the genetic disease to a child, you're entering a whole subject of whether anyone should have children if they suffer from diseases that can be genetically inhereted. Disabled people often ponder on whether its morally right or not to bring up a child that could potentially have what they have. That in itself is a big debate and honestly, i think everyone rolls the dice when they have a child. You can be perfectly healthy and still have a child with a terrible disease, just like you can have a terrible disease and have a perfectly healthy child. To me what i think is most important is that you're committed to taking care of that child no matter if they are healthy or not. I wont speak for everyone but many people with diseases and disabilities or just overall bad experiences would say that theyd rather be alive and dealing with their problems than to have never lived at all. The point is, be open minded and understand that not everything is black and white. You have a right to your opinion and what you would do, but dont judge others on such a gray area. That is their choice to make. (This is besides the fact that she was already pregnant before they knew, just general advice.) I feel for the family and hope they have been able to cope in the last ten years.
As a clinician I’ve worked with several early onset patients in the early 90s. However, the youngest was a 50 year old female. I can’t imagine having a patient as young as the lovely woman featured here, suffering an incredibly rare and destructive condition. It’s almost a blessing, and I feel terrible saying this, but the younger a patient is when diagnosed, the faster the decline and subsequent death. I worked for over 25 years across the Western US, developing programs and designing medical communities. This included educating staff and families in hospitals, assisted living communities, nursing homes, etc. The suffering of the families was heartbreaking- while the patient themselves is soon unaware of their deficits, the family is left living with merely a shadow of their loved one’s former self. It’s very common for families to try to “correct” the patients disorientation….so if Dad goes and sits on the porch, and says he’s waiting for the bus, *instead* of saying “OH DAD DON’T BE SILLY, there is no bus coming”……just GO WITH IT. Ask what route he’s taking, or if he has enough change. Wherever the conversation goes, you go there too. MANY people will instinctually correct the patient, repeatedly. This can be very distressing for the patient. They are simply not going to be able to follow what’s being said, and they will likely feel uncomfortable. Whereas acknowledging their “plans” is in fact, very comforting…… Love and condolences to all who have suffered…… 💔❤️🩹
My parents, ages 80 and 89, both have vascular dementia in the moderate stages. I’m slowly but surely having to learn not to “correct” everything anymore unless I really have to, such as for my dad‘s safety in the kitchen.
Dementia and Alzheimers is caused by malnutrition. Polyphenols found in olives, peanuts, eggs, avocados, grapeseed oil, avocado oil, olive oil, peanut oil for frying. Polyphenols are an essential nutrient that reverses brain damage. Manufacturers and restaurants have been ignoring the nutrition experts for decades.
@@ashleydixon4613 do the best you can, but definitely time for more support once the kitchen chores become a safety issue. Your father will eventually not be able to retain verbal safety instructions. You might consider posting laminated signs with short concise instructions. You may want to contact your local Alzheimer’s association (yes I understand your folks are dealing with a vascular dementia) and see if they have someone or can recommend someone, to come to your parents home to do an independent safety evaluation. The trick can be making decisions that are proactive rather than reactive. I know it can’t be easy, and I am so sorry. There are MANY housing options for your parents these days, where they can remain in a home like setting, that is safe and subtly structured. 💔❤️🩹
Alessandra Bosi I don’t know any more about the story than what is here, except that she died over nine years ago I think, but didn’t they say that the pregnancy and the diagnosis both came at the same time? I’ll have to watch it again more carefully of course Because now I’m wondering……
Unfortunately, 15 months after giving birth to her little girl, Emily, Rebecca lost her battle with Alzheimer's and passed away in 2011 surrounded by her loving family.
Oh dear, thats so sad. prays to the family. Alzheimer's and Dementia are difficult to go through, for them its a confusing time and for the families who want them to get the best quality of life. its so hard to see loved ones slip away...my grandmother has dementia atm and when I visit im not even sure she really knows who I am but I love her..I need to be there for her.
Bubba bitty instead of puttlng money aside for Brexit, they want to put money into trylng to stop this and other heath issues. The bravest,strongest woman ever.
yeah...a real man...who impregnated a woman who has been showing signs of a neurological problem for TWO YEARS! she can't give consent to sex or getting pregnant. yeah...that's a real man all right!
This is August 2024 l didnt realise this was 14 years ago and have just seen in comments Rebecca passed when the baby was 15 months old.I hope the family are ok all these years on .Rest in peace Rebecca x
as the child who is now almost 15 i am doing very well and it’s brining me to tears from these comments and i appreciate all the love. i have been through many things from further things that have happened a few years ago but i do want to say thankyou.
My mom had early onset Alzheimer’s. She was 59 when we found out. My dad couldn’t take care of her and my husband and I tried also. I would have to pin my nightgown to hers because she would roam at night. No matter how we tried to fix the door, she’d find a way out. We finally had to put her in a nursing facility. It’s simply an awful disease.
@@panchang810, my father had just a ferocious temper. He loved her but once we got her settled in the nursing home that was it for him. He told me quite a few times that he felt as if he already lost his wife because she didn’t know any of us by then. When I had to get in the car and drive to get her out of their home, he had just broken her wrist! Probably he was trying to get her to go somewhere and she didn’t understand. Mom had been in the nursing home maybe a month and he quit taking his insulin. He knew what would happen, he would go into a diabetic coma and that was it. Unfortunately it took 4 days before his neighbor checked on him after seeing newspapers collecting. It’s Florida and it was summer so…I hope I don’t get it. Our cousin got it and her mother was my mom’s sister. But their father had it in the 50’s when there wasn’t a name for it except hardening of the arteries. Well I just wrote you a book, I bet that’s the last time you ask me a question!!
@@floridagal9542 I'm so sorry to hear about what you and your family went through. Perhaps your dad just couldn't bear witnessing how his wife deteriorated precisely why he opted not to take care of her. Obviously he was hurting and seemingly he didn't know how to handle it. For sure his love for your mom never ceased despite what happened to her, he just didn't know how to cope with it. I hope you won't get it. I heard that reading, exercise and good diet could help. Maybe you can do those to help your brain cells kaep healthy. 😊 I wish you and your family all the best and good health. 💐❤
Freakin heartbreaking, and so unfair. She was way to young to be stricken with this horrible disease. She has an amazing husband and incredible support from her parents. May God Bless them.
I am almost 50 years old and I was shocked that any man would stick by their spouse in this situation. It was almost like I was watching people on another planet. I've watched family members get ill and my family and everybody leaves them and they die alone. I never really believed that anybody would ever help a family member in this situation . It made me realize that maybe it's just my family that doesn't have love for one another and that other people's families wouldn't do that to each other this was a wonderful story to see how other people can have normal,honest and loving marriages and don't blame there spouses for being ill.
I am so sad for you that you don’t have family that will stay by your side during difficult times. You deserve so much better. Please know you are in my thoughts and prayers. I don’t know what area of the world you are from but I wish you love, security and happiness. Please know you deserve more and don’t accept anything less. (((Hugs)))
I hope you find an amazing partner and get to have a wonderful family yourself one day. We can’t pick the family we’re born into but we CAN pick the one we make 💕
😢😢😢😢 this is just so sad thee saddest comment I've seen thus far , I hope that u find someone that'll love you like uve never been loved before, so that your out-take on life isn't so gloomy towards love unconditionally 😢😢❤❤ God bless you ♥️🥰🥰♥️
This broke my heart,, being a first time mother should be one of the most amazing things you ever achieve, Bless her, I can see in her eyes.. Dementia nurse here.. We pray for a cure.. x
I'm dealing with my parent who has lewy bodies but is still a lot more functional than Rebbeca. To see someone near my age who has dementia is just heartbreaking, made me cry.
The disease shut down her brain and bodily functions quite rapidly in the end. If you would rather live on in that state or are able to cope with a loved one in that state, then I give you props on your conviction.
I am a nurse and I have the honour of caring and sharing these beautiful people's lives. I am so sorry this has happened to you; please stay strong and keep pushing forward . Centre link you stink. Unreal lots of love to all of you xx
Absolutely heartbreaking, what an amazing family she had to be so patient and kind. This disease genuinely scares the absolute crap out of me. It’s so hard on the family losing their loved one.
@24JJ821 Thankfully, I don't have Alzheimers but unfortunately discovered that I have chronic active ebv. Better known as mono/glandular fever. We have however been able to monitor and treat some symptoms. It's not pretty but it's manageable and better than the alternative for me at least. Thank you to both of you for asking 💕
Harriet Lundt True love isn't always flowers and sunshine... Their example of staying together and having a baby is an amazingly strong example to the world!
my worst fear, that if something happens to me he will quickly move on or do it right under my nose in my house, and my worst fear is leaving my children with no one
I feel for them.my hubby has Parkinsons with probable Lewy body...he fades ..we have no family..our friends 1000 miles away with their own lives..I lift 265 pounds of love each day into his wheelchair .each day I pray for strength.and patience 🙏💝🕊💪
God give you strength and you are a loyal and caring person...this is meaning of true love and sacrifice..your husband is worth it..never doubt that ever..
My great uncle just went into hospice 3 days ago. He's had Parkinson's for years. Terrible disease. My mom died from ovarian cancer in 2017. I was her sole caretaker. It's exhausting. The physical is bad, but the emotional and mental toll is worse. It's just sad. I pray that you'll find the strength, patience, and have some support somehow.
It's so sad to know she passed with her baby only being 15 months old. This disease came in and took her so quickly. Bless Rebecca and her family. RIP 🙏
There’s been a comment that I have read calling him all sorts for getting her pregnant. Have any of you stopped to think that the baby is a part of her that remains in his life. He can love and watch that baby grow and everyday see his wife in them. I think it’s an incredible gift she has given him. It’s all so sad.
Yes, but at the same time a child is it's own person and not there solely as a reminder of it's mother. The first concern should be with the child, not the husband off course. That must have been a difficult decision.
Exactly! And perhaps they were planning this pregnancy!! He didn't "get her pregnant, " they're (were) a mature and seemingly very happy couple. However, I would be concerned that the genetic component may be passed on to their little one. Very sad story.
I have the same story, my girlfriend 26 years old. last year's suddenly coma and was unconscious for a month. after she woke up in the ICU. she has turned into a different person. forgetfulness, withdrawal from social, very moody and can't control emotions. and the doctor diagnose its a dementia (I do not know exactly). but that has not changed is she has the same love to me, same as before.It broke my heart & ruin my live, im very very loving her. sorry for my bad english, I'm from Indonesia. I hope that will be a miracle for her..
adit perwira I m sorry for what happened to her and how it affects your life ! It have to be scary and heartbreaking and tough. You are a good man to stand by her and helping her . Take care of you too ! Wish you all the best ! 🍀✨
She was Diagnosed Aug 2009, died July 2011. She ended up at a care home where she passed away peacefully. Her rare disease rapidly deteriorated her brain and bodily functions which lead to her passing. She always lit up seeing her baby and husband. “She was always happy and laughing. She never blamed anyone for her condition. She just said ‘I don’t want to be like this’. So sad.....
Dang that's the same kind my mom died from its so sad their brain closes down the body an it does go very quickly. Its a blessing in a way some end up being a vegetable for years its so sad
@@alicenolan8927 Batten's Disease. I think it has a different cause, but like Rett Syndrome, ALD, Tay Sachs, the child with it goes downhill after a certain age. Look it up on You Tube for more info.
It kind of makes sense. When you compare the humans from the past and now, we're not suppose to live this long; that's why many people in that age group and further have complications of their bodies. With our lifestyle that helps us with our longevity, the evolution is still in it's beginning stages to process that.
@@alicenolan8927 This scares me. I've always had issues with short-term memory and finding words for things, but lately I've been really slow on the draw the past few months and it's making life difficult. I'm twenty-three. It isn't so bad when I don't have to do with things on my days off, but when I've got a schedule, very frustrating.
My grandma is just starting to get mild dementia but she is 98 and it still breaks my heart but I can't imagine having a family member who is 31 get that horrible disease. it's not fair. I'm so sorry.
Alzheimers and other forms of dementia are beyond evil. I am a carer in a nursing home for predominantly dementia residents. There is a lot of joy but there is an equal amount of heartbreak. 31 is no age at all. I am beyond heartbroken for the family.
This is truly heartbreaking. Brings you to tears. I cannot believe that the Government, the system that’s been democratically installed to help it’s citizens...cannot or WILL not offer this couple and others like them the right support at the RIGHT time. Time being as precious as air is the currency this couple don’t have. DREADFUL. My love, support from afar and universal blessings to this couple and families like them. xx
Crystal Blue, my sentiments exactly.When I read in the comments she passed away only a little over a year later, I felt nothing but relief. I have worked with dementia patients and she is blessed. Rest in peace, lovely girl.
My grandmother recently passed after a long battle with Alzheimer’s. It’s so sad to see that not only long lasting marriages but also blossoming families have to suffer from the sheer cruelty of this disease
She is younger than I am now. I have had a small taste of what it's like due to a stroke I had a few years ago and let me tell you, it's the scariest thing ever to just go blank when your midsentence or not be able to remember what something that you see on a daily basis is called or when you walk into a room and turn around and not even remember getting up off the couch to come in there. Those things give me so much anxiety but, this poor young lady passed away at 32 from something so much worse than anything I've ever gone thru. I'm always worried that my memory problems and cog fog is going to get worse. It's one of my worst fears to end up like this poor lady. God rest her soul.
I have watched this many many times and im watching it now in 2023 😢 to remind me how precious life and my family are. Hugs and love from NZ always to her family ❤️🌺❤️
I can think of something worse. A young negative woman in an assisted living centre was raped by a care worker there and got pregnant. I hope her husband will remarry and can raise the baby. The baby should also be tested genetically for Alzheimer's.
im a support worker and the youngest person i have looked after with dementia is 28. seeing 30yr old residents in resthomes with early onset dementia and alzheimers is not rare anymore. very sad
her father is so correct resthomes are not equipt to take on under 60s. there focus when it comes to therapies are for older residents. health care needs a reform so these people dnt fall through the cracks
Miss She This makes me so angry! I know that American people are perhaps even most vocal of all peoples against this shit but your government doesn't care! It is devastating and I know families are making support groups because those helped me online because there was not much done in my country. I really know how common people in USA can be compassionate and I am really sorry for all the horrible crimes against nature that your government (and world governments) are doing.
Her husband mentioned her getting a "carer's pension" for himself. Their situation is bad, but he doesn't seem to realize there is no such thing as a carer's pension in the States. I ended my career to care for my mom and got zero from the state, or from the federal government. I'm doing my best trying to live on savings. The US government does not care about families taking care of our disabled loved ones.
I feel for this man, I truly do. My wife has a disease called Pallidio Ponto Nigral Degeneration or PPND for short. It is very similar to Alzheimer’s in its manifestation, which typical onset begins in the 4th decade of life. She turned 40 in September 2019, at the end of that month we traveled to the Mayo Clinic in Jax. There they have her in research trials and have her go through MRI’s each year along with cognitive skills and memory testing. My wife is perfectly normal -no signs of any issues, however, at this last Mayo visit, the neurologist we see each year said that he’s beginning to see deterioration in her frontal temporal lobe also that she performed worse during this year’s testing than previous years. This means onset has begun more than likely. Devastating news - even if you knew this was a possible outcome. She’s handling the news pretty well now, it was touch and go in the beginning I will admit. My wife is still acting normal, she holds a full time job and no one would suspect anything would even be wrong with her. But I’m afraid my time with the woman I married is now limited. I have always told her that I will always take care of her -and I always will. But it’s a scary proposition still, and sad too. Sad to know she’ll become dependent for everything. Sad she may forget who I am - or who our kids are. Sad I will lose my best friend. She has been -and always will be - my everything. Mayo has treatment trials coming up for Alzheimer’s patients involved in their trials and new “experimental” treatments are sounding very positive. Meaning that a possible cure for Alzheimer’s may be close. I just hope it’s VERY soon, for my own selfish reasons.
I truly appreciate the extremely kind words from all. Here’s a little update. The Mayo Clinic results I spoke of two years ago may have been just a fluke in her testing that year. I say that because last year (2021) that same neurologist that stated her previous year’s results showed signs of onset now was raving about her performance in testing and that her MRI scans showed no change dating back to 2009. Needless to say we were elated with that kind of news - we were expecting a very sad trip last year. Unfortunately that joy was short lived. About 5 or 6 months ago, I began to really see signs of onset of this terrible disease of hers. Tremors, very significant loss of muscle strength, explosive emotional temperament, and a few other traits, (or what I would say tics) like balance issues and when she walks she no longer swings her arms while in movement. It’s heartbreaking to see her decline in health, but the most troubling for me is her inability to control her temper.
She will lose it over very inane things, such as dropping her phone. I don’t know of anyone who hasn’t had the dropsies with their phone from time to time. But she will yell things like, “I’m so f-ing stupid that I can’t even hold onto my phone!” This is just one of hundreds of circumstances that will draw this rage-like anger out. I know that it stems from her knowing that she’s losing her independence in various ways (I help dress her, flat iron her hair, take off tighter fitting clothing, etc. so I certainly don’t come down on her for it. But it’s still very hard to watch and experience. Ps. Sorry to be so wordy with all this - but I truly have nowhere to vent my fears, frustration, and grief. To those who read this in its entirety - thank you as well.
Extremely sad. Unfortunately I had a similar situation in having to divorce my husband before he passed to avoid bankruptcy due to his excessive hospital bills. What a sad thing to gave to do to your loved one when they're dying.
As an Alzheimer's Advocate, I find early on-set to be the hideous disease out there, second only to Huntington's disease. I have lobbied Congress for more funding for Alzheimer's and continue to do what I can with public policy. It will take a private donor to supply the research needed. My mom is in hospice with late stage dementia and it has been very heartbreaking as she got it early in her late 50's. Unfortunately, 40% of the Baby Boomers will die from neuro-degenerative diseases leaving our country completely devastated financially because they control 77% of the income in our country. This is all because the CDC and NIH did not give proper funding to each illness based on preventative, statistics, etc. Politics at it's best and our country will collapse. Thank God that they have a beautiful baby as a legacy to their beautiful daughter. This should never have happened, it's been 100 years since we have known about dementia. What is wrong with our government ? Why aren't private donors stepping up ? The 1% just don't give a crap.
While I can appreciate everything you're saying & all the work you are doing advocating for change & funds; I would be remiss if I didn't mention Bill Gates is making massive donations $80 MILLION of his own funds & bringing in investors for Alzheimers research. Awesome! www.businessinsider.com/bill-gates-backing-30-million-alzheimers-fund-investors-2018-7
God has blessed them with Alzheimer's. I don't think they would want any more blessings, thanks. Keep your religious ignorance for you and do not offend people who are really suffering. Be respectful.
+Hylander i dont see how im displaying ignorance. Just, to me, its totally disrespectful to say "may god bless her" when the girl has such a terrible disease. Use your brain. Respect people and dont make fun of them with your religious things for its really offensive. It just sounds ironic. God wouldnt have "blessed" her with alzheimers, especially at such a young age.
87JuliR It's ironic that you don't respect other peoples' beliefs. Just because people die and get sick doesn't mean God is cruel or uncaring. Allowing something to happen is not the same as causing it. We die because of imperfection. Mankind has been rebelling against God as a whole since the beginning, and to prove that they cannot rule themselves God has not interfered. But he will not let it go on forever. He will soon bring an end to this system of things, and set up his Kingdom, which will eliminate all suffering and death.
My girlfriend who is the love of my life is dying from early onset alzheimers. She has a rare genetic trait. Her father died when he was 36. She is 33 and can barely talk or walk. This is all been unbearable. Thank you for sharing your story.
I’m so so sorry. I wish I had something better to say. Please try your best to look after your health through this, and don’t be afraid to find support you can lean on. Sending you love 💗
Hang in there friend.
Gracias por contarnos tu historia.
Mucha fuerza, recuerda los momentos felices vividos con ella !!!
Ponle la música que a ella le guste !!!! Eso ayuda mucho !!!
Saludos desde Uruguay 🇺🇾.
I’m so sorry you’re going through this, I hope she feels at peace and experiences only happiness. I’m a scientist studying Alzheimer’s, do you mind sharing which genetic mutation she has? Is it an APP mutation?
Oh I am so sorry!
The same thing happened to a friend of mine… she was 35 when she was diagnosed with Alzheimer’s… 2 weeks ago, she was moved into a memory care facility … she doesn’t know who she is, who her parents are, her husband or her children… it is the CRUELEST disease ever!
It's bad enough to get Alzheimer's in your 70's or 80's but to get it as young as this girl is and pregnant too is just horrible.
This really hits home as a mother I expected that anything like Alzhiemrs would, possibly, strike me first, before my children. Instead of the "natural order" of the older generation ailing and dying first, my oldest daughter is showing early signs, weirdly, coincidentally less than a year of a 23&me test telling her that she's genetically prone to get the disease. This has caught me off guard since we've never had an older relative suffer from senility, not even into their eighties. Not on my side of the family anyway. They've all died from heart attacks and strokes.
My daughter's memory and impulse control is failing and she looks at me like she doesn't know me.
Nancy Desch I cant help but think, like autism, there is a connection to vaccines. The stats are outrageous. Not where they don’t have the vaccines though.
Nancy Desch my husband was 84 when he passed from Alzheimer’s and had been suffering for about 5 years. This is much more dreadfully sad. Sooo much worse.
keith cunningham there are many people who would argue that with you but you do sound so sure of yourself that I’m betting your a right fighter, so I won’t bother. I will give you this to chew on . I worked in long term care with Alzheimer’s patients and my mom was having a assessment for care. It was at the time when the problem seemed to be pushed front and centre. Healthcare was pleading with the gov.
For funding so they could expand the level of care and research. I was at the assessment and she was diagnosed with Alzheimer’s and lived a further 15 years with no indication other than some memory loss. She was 95. My point is the system comes up with goals and then manipulated the population. Science is a continually changing study, not stagnant. Sugar is poison, so is processed foods, drugs, and
HMO’s. Vaccines are dangerous. Check out Dr. John Berg he detoxifies people and works with the human body’s miraculous way of healing itself.
keith cunningham right about the time of ramped up vaccines. Check out Dr John Berg on utube He detoxifies poisoned children.
I was a hospice nurse and once cared for a beautiful man, age 46 with Alzheimer’s. He was diagnosed at 43 with two very small children. It was heartbreaking to see his rapid decline. Rebecca’s husband was so loving and devoted that I am sure he is a great Dad to their daughter.
@Hello there, how are you doing this blessed day?
@@henrysmom1742 but how could her husband have unprotected sex with her and get a woman with dementia pregnant and force her to have a baby.
Alzheimer’s is not discriminating. It is the cruelest disease ever.
No disease is discriminatory. Name one this?
Mucho Taco it’s just a saying. People say it referring to many diseases and illnesses. It’s just a reminder to those of us who are fortunate enough to have our health that any one of us can fall ill and we have to be thankful. It’s a good figure of speech to remind us how we are all human and shouldn’t take our health for granted!
@@Chloxoxoxoxo never heard of that saying🙃
I agree. It took my grandma away from us way too soon.
Unfortunately there are many many diseases that are worse.
That dad is priceless. I love him and he isn't even mine.
The dad, the mom and the husband. What a team!
it's a beautiful thing to see a dad like that :)
This story sounds VERY SAD
How many men would stick around and be that loving...not many.
A dear friend's wife was diagnosed in her 40's, & her husband was about the same age. My heart melted to see him, once she could no longer manage at home, come every single day to the nursing home where I worked. He stayed for hours with her, and walked her with a 'gait belt' until she could no longer be supported. For the last year or so of her life she lost the ability to speak, but never lost the beaming, loving smile she had for him whenever he came to see her! He patiently fed her, and helped the nurses dress her & otherwise care for her. Eventually she could not swallow, and had to be fed with a g-tube. Her husband never ever abandoned her for even one day. The love was heart-breaking & precious.
"Mom and I will manage... no trouble."
What a guy
That is Love.
1900maniac that is precisely where I broke. I had to go back and watch it again, crying even more the second time. So sad to know that her little girl will never know her. The disease progressed so quickly. I hope her family find peace in the eyes of the little one.
love- those are the ties that bind
U guys are funny 😅
love would have prevented, period. imho
My grandma who raised me had Alzheimer's... it was hands down the most gut ripping pain both she and I endured. My grandma would cry asking God what she did to deserve it... the day of my wedding..my husband and I live 2.5 hours away from where my grandparents lived....she couldn't travel so we took our wedding to her...it was the last day she knew my name. My heart goes out to this family. This is years later, but I hope she is at peace. I wouldn't wish Alzheimer's on my worst enemy
You took your wedding to her. That was so kind and sweet of you. She raised you well!
🥰
So touching. I'm so deeply sorry
My grandma had it too. It was heartbreaking 😢. I loved her so much and miss her every day
My Sister got it at 30 and passed at 35
Left behind 4 kids
2 never knew her, too young
Hers was genetic
Traced to the Volga River Germans in Russia
Large study on them at UofW found the genetic defect in her
Died 4/4/94
How sad and horribly tragic. She died just a little over a year later, in July of 2011. She was only 32, and her baby was only 15 months old at the time. May she rest in peace.
i often ponder and get scared about how tragic life can become....
commenter78 I guess that's natural, but there's no point in pondering these things too much. Just enjoy the life you have while you have it. That way, you'll have no regrets. Of course, I don't mean "don't care" about them. I definitely have a lot of empathy for those who suffer these tragedies. But there's no point in thinking about them too much. Just my 2 cents.
How did she die?
MG888 888 MG888 Oh she died ?
AND ISN'T THAT JUST DANDY FOR THE BABY? That fucking moron got her pregnant, having NO compassion for a motherless child. He should have been arrested. Absolutely no morals!
I just saw this video, many years after this poor lady passed away. I would like to offer my belated condolences to her husband and parent's. I hope she went to a beautiful place.
She died ? 😑😰
@@ronja27 Oh no! 😭
@@ronja27 She died at 32
Omg this is so tragically sad.
As said as it is she is in a better place. Feeling sad for the family.
Shameful government that offers no financial aid for this family. Shame on them.
But let's give a mother who has 19 kids help but not this poor soul.
@captain_ahab brown people bad
@captain_ahab Nobody asked you Nazi pricks for your opinions.
@@thelegendkillersshittyduff1335 It's "their" you stupid idiot
If they were asylum seekers they would get money, the system is wrong.
I know this is years and years ago and Rebecca has since passed but I was seriously moved by how caring, observant, loving, respectful and just downright incredible the husband is. Truely an incredible human and I hope this family is doing well despite their immeasurable loss
Yes, I was struck by that too. A very loving man.
💔💔💔😢🙏✝️💞2023
He got her pregnant after her mind was slipping to that extent... How could she consent? Not to mention their child is probably at high risk of having the same disease. I would have made different choices. Just saying.
@@meaningoftheunicornThank goodness the daughter tested negative.
@@meaningoftheunicornAre you a complete oblivious AHole all the time? Or just cowardly & anonymously on the internet? Just asking.
She passed away in Sydney, Australia. She was not very ill & had not received a diagnosis when having scans for her pregnancy. Her birth was by C-section, and she does did not remember the birth nor was she able to interact with her child at all until she died. Her illness was a very rare form of a genetic illness, with a swift decline. I believe her child was tested in utero, and does not carry the gene. It was an atypical but tragic illness. Thankfully the remaining family appears very close and supportive...wonderful people.
Karen Kaneshiro I wonder if it was a neurodegenerative disease like Batten's.
i posted my comment about the disease before i read your comment, yes im glad to hear the family stayed close and faired this horriable disease, i know how hard it is in old people, the fact she was just starting life makes it so much harder for people to take thank you for the up date,
@@RichardClark-hw6ic Just poor sentence structure i think.
@@RichardClark-hw6ic
I don't think we need the Grammar police. 😤
Gloria Dorlich 😂
She was loved to bits by her family and that's the best care she could have.
Rebecca's parents are the sweetest.
One of my best friends lost her teenage son and started loosing her memory almost immediately. She was 51. At first we were told it was severe depression, understandable, but within a year she was no longer able to do simple math. It is 9 years later now and she is entering the later stages of Alzheimers. Luckily she has a boyfriend that loves her. Caring for her and working to make money to pay their bills which include the huge expense of caretakers is his life as he does not want to put her in care. The doctors have finally admitted what we suspected all along that her Alzheimers was trauma induced. There is no one in her family with it and her grandparents lived into their 90s. The only good thing that has come with these later stages is that she no longer cries every day for her son. The long tragedy of it all has been so heartbreaking to watch. All I can do is be there for her until the end.
How sad and cruel😔life can be.
I have never heard of trauma induced Alzheimer's. Alzheimers disease you physically die from. Brain cells literally die. Dementia you don't die from and you can have it for years. My Grammy had Alzheimer's, her son, my dad had it as well. I take after them. I now do crossword puzzles daily. I don't know if it helps but it can't hurt.
Water fasting. The brain can regenerate.
@@ineedhoez what is it?
@@melindabarrios2176 sorry about your family..that's rough. I do have to say that Alzheimers is just a type of dementia so you do die of dementia..there are many different types and most you die from eventually..the only ones is maybe a temporary dementia due to alcohol or an illness.
Nothing on TH-cam has ever made me cry, until this! I am 32 now and this just breaks my heart!! Her parents and husband are amazing people. 💞
My girlfriend also has Alzheimer please pray for her 😭😭😭😭😭😭
She.will not.be.A B I e.to.have A R e L A T I.O N S H is.with.the.C H I.L d.
@@IamXenorex What's her name and how is she Sayan?
Oh indeed. Talking over her and speaking for her and telling everyone who she is and what a horrible pain in the ass her situation is for them. What about the life she is losing? What about her thoughts and feelings? That she was showing symptoms two years ago and that husband STILL failed to protect her from pregnancy. Total jerks, husband AND father. Like she is a pedigreed animal that failed to perform.
Well hello it’s me the daughter Emily doig this was my mother Thankyou for this it really makes me happy ❤❤
I hope no one minds if I post a poem I wrote for my sweetheart, Bill. We found out about a year ago that he has Alzheimer's. It has devastated me. I am 58 and he is 75. I can't imagine my life without him.i thought it was a slow disease. It's not true. If anyone is angry that I posted this poem, I will remove.
Thirty three more
Tears fall silently on my pillow;
I choke back the sobs.
This man lying beside me sleeping peacefully;
Unaware of my utter despair.
You promised me thirty three more years.
Stay with me my love; I am not ready.
I am frightened of the grim time ahead.
This thief called dementia
Robs my love of our precious memories.
How long will you remember our times together?
How long will you see me?
Why do they call it Sundowners?
That seems like something wonderful and idyllic; not a robber of our sweet evenings together.
But I will take them just to be with you.
My friend, my lover, my confidant, my everything.
You have given me the best years of my life.
I will give to you my patience, my kindness and my unswerving love.
I will gently guide you and walk with you.
I will laugh with you, cry with you, and pray with you.
For better for worse
For richer for poorer
In sickness and health
Bound together by this thing called love
For thirty three more years;.
Author: Deborah Overbey
Written for the love of my life!
Deborah Overbey it's beautiful bless you and your family.
Deborah Overbey, Such beautiful words to express love that transends.
Deborah Overbey. Im here for you. My grandma had it and it was horrible. I can still remember her moans and howls. =/ I hope things get better for you, love! ♡
Miss Amber thank you so much! I remember my grandmother so fondly. She too had Alzheimer's. It is different when it is the man you love and have loved for over half your life.
Deborah Overbey wow
I am so sorry for your loss. Truly an unbelievably sad story but the love of the husband and parents was incredible. Made me cry. Prayers to all and RIP Rebecca.
Raechel Frantom she passed away?
Juliana Silva yes she did...15-months after giving birth.
Raechel Frantom....How and why did she die??? i did not think alzeimers was deadly, esp to a young woman like her....
MrHanover Smith: "i did not think alzeimers was deadly, esp to a young woman like her...." That it happened to such a young lady is an anomaly (or so we hope). Part of the purpose of this video is to alert others that it happened to someone so very young so not out of the realm of possibilities.
Re: the affects of Alzheimer's - you've got some research to do.
Bill Wilson I work in a hospital. I found the video by accident when I was doing research and studying on the disease. It was an awakening to me and very sad. Prayers for the family. 🙏😥
My mother just passed away, she had Alzheimer's and towards the end she didn't know me. Its a heartbreaking disease.
What a kind, wonderful husband.
He's selfish he should never have
got her pregnant
Erica Mae You’re parents are more selfish. They should’ve never brought you to this world. What a waste of space.
@@ericamae7287He was horny. You can't judge
@@ericamae7287 Moron. No one knew she was ill when she became pregnant. Illiterate fuck.
@@maxalberts85 😂😂😂😂illerate, fuck off
God bless that man... because he loves his wife
My girlfriend also has Alzheimer please pray for her 😭😭😭😭😭😭
Sayan Kumar 🙏
Imaginary friends don't bless crap
He was a saint. So sad for him but at least he can be a father.
Whats the differences between alzeimer and dementia ? Tq
Sometimes you think you got it tough until you see such a great girl with this disease . My wife is in a nursing home at 56 with polynuropithy .
So sorry
Harry Williamson mom had polyneouropathy. She worked and didn’t need a nursing home
@@artparty222murphy9 she is very lucky lady to still be living a normal life
My wife has no use of her legs can just about lift her arms no use of her hands and has a permanent peg feed .
She can't talk as such due to have a tracheostomy in for over 2 years .
She went into a coma and was given 24 hours to live, but she is a fighter and still here , God bless
This is heartbreaking!!! Yet, she's fortunate for having such a strong support system!!
What a lovely, lovely family. So brave. I can’t imagine the tears they’ve shed over the cards they’ve been dealt. I understand Rebecca passed away after the birth of her child. Hopefully they’ll be able to single out the memories of Rebecca as she was before this cruel disease took hold. Sending my best wishes to this incredible family from 🇬🇧.
It's extremely tragic, thank God there was a blessing at the end , a beautiful baby, a new life keeping mother's memory alive x
I would be afraid to have the child and it inherit her disease
@@judithryle2113 Another comment states that the baby had been tested for the gene and was not carrier, so she is most likely safe from sharing the same fate with her mum. Its still quite tragic through
@@lilianmalone7110as the child of rebecca i am now 14 years old doing very well and now going through all the comments bringing me tears all of these comments make me so happy thankyou.
You can see the early stages in this interview, especially with that sort of way she stares off at nothing
Totally. She looked like all the old demented people i see all day at the hospital i work in... even her thinning hair and decrepit posture. What a sad story.
@@barefooterin2817 yes i noticed the hair and her body language. I guess it affects more than the brain? I wonder if there's something underneath all of it but Alz is thr easiest to name or most tragic aspect of premature aging.
@@JuniperTreeee yeah, I wonder the same
@@JuniperTreeee It's not on the same level, but you can somewhat compare it to depression. When you're really deep into your depression, you can come into a state as if you're in a trance. The aimless stance and the blank stares she had is similar to depression. When your brain is full of fog, it's hard to move.
@@booyah7415 last winter I worked two FT contracts requiring a lot of thinking. One day I started to not be able to make sense of the icons on my car dash. I just saw symbols. When I was done with both finally, I sat in bed and stared at the wall with soft music on for about a week. I wasn't depressed but my brain was a fog, done. In grad school also, I remember it growing, I could actually feel new pathways growing it was uncomfortable . It truly is a muscle.
What a stupid system regarding the pension. Unbelievably cruel and unjust.
Yes i agree the government need to sort the system out,
Should be a case by case decision as every situation is different deffintly not right the way things are
You're not wrong. I have had to live inside it's mental prison for 19 years.
It is basically the same thing here in the states.
SM
That's the same stupid system that we have in the USA, except, if you're illegally here then they get everything!
@@stankyp.7858 You are a dumbass
Having lost my partner at 44 I know how cruel diseases are but I think Alzheimer's is by far one of the cruelest. This broke my heart how she had everything to look forward to & it was cruelly ripped away from her & her husband. Rest in peace 🙏
I think Alzheimer's disease is the hardest disease for the family and caregivers. A disease like severe cases of multiple sclerosis is worse for the patients because they are trapped in their bodies but still have their conscious minds and as such are in constant torment.
I'm so deeply sorry
@@maam-yj8ph Mary Miller what's your point ???? I am going to be rude now ... In Every Bunch of Roses there is a PRICK and you a that .... :-)
ALS and Alzheimers
My heart is absolutely broken watching this.
Kenny Du Ren live life to the full we never know what round the corner
Indeed😔😪
This is the first I heard about Rebecca. I held back the tears . She truly is an Angel. God Bless her entire family.
I'm a carer and I've never met someone so young to suffer from this cruel evil disease. My heart goes out to all of them. Hope baby is ok
This is so heartbreaking my Dad has Alzheimer’s in his 70s so sad..God Bless this family 💖
I also take care of people with the disease and to see someone so young have it and was never able to enjoy her precious child makes me cry,God bless her family and wonderful husband who supported her
My parents suffered from the Alzheimer's and died from it in their early 80s. But to see teens and young adults like Rebecca suffering from the affliction is heartbreaking. Young people just starting out on life's adventures and then coming upon a roadblock with no detour. It's a damned shame.
How sad for us we forget how blessed we are everyday😭 .
What a disgusting system when you have to separate to get financial help!
That’s horrible, while there are thousands of people cheating the same system.
What a disgusting justice system who will let white police walk FREE after murdering unarmed BLACKS despite all the evidence.....
@Elisson Dormezil well IM TALKING ABOUT IT.....Your point? 😂 Don't bother replying. You're blocked and muted 🤣😂 next in line. No lines. No waiting
Now imagine they lived in the USA with its broken for-profit healthcare system. It'd be a hundred times harder.
Hey but it’s national health care!
She seems so scared and heartbroken..💔 Love to this family
You read her well! 🙏
I can’t stop crying. This is the saddest thing I have seen in such a very long time. She is so young and precious and seems so innocent, like a child. God bless her family. 😥
I forgot this was Australia I thought he was putting her in the drivers seat
Lol so did I,from canada.
🇺🇸 me too 😂😂😂
I was thinking the same lol she has short term memory but hey you good to drive?
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Lolol same!
I'm a permeant carer for my grandmother, have been for over 5 years. I'm 25, she's 79. I found this video through searching TH-cam for some sort of relief, today I was sat feeling sorry for myself after my gran had a bad day.
Watching this has made me count my blessings. I honestly believe Alzheimer's is the worst disease in the world. All my thoughts and prayers are with Rebecca and her family. You're all amazing!
Is there anyone else in the family who could help?
YOU are amazing.
You really really are, I dont doubt for a moment how much you do for her. Be well.
Danielle Davies have been a caretaker. It is hard task. Please don’t forget to take care of yourself.
Give her 2 tablespoons coconut oil three times a day and in 3 months will disappear this Alzheimer disease. Everyone know it now!!!
She died in 2011 with her was her mother, father an husband right by her side. R.I.P. Rebecca you will be missed 🎈
How do you know this 😪
Trent Hooper
Google "Rebecca Doig"
She died in 2011
So sad she died. Younger people might have it here too but not be diagnosed yet (or not know where to seek help).
So sad RIP
My husband has Alzheimer’s and has had it for a couple of years. It gets worse by the month. He was just diagnosed with heart failure and while he will likely lose some years of life I pray his heart takes him before this devastating disease does.
This is all very sad and tragic. My Dad died of Alzheimer's 3 yrs ago when he was 81 yo. It was horrible to watch him lose his memory and become a shell of his old self. But he had a long and happy life, this poor young lady had only started hers.
Irmeli Strengell big difference
Such a young and beautiful woman, may she Rest In Peace.
He knew she was still in there, and she gave him a child to remember her by.
Dee Dee Winfrey so glad for that.
@JONES yep. She shouldn’t have had a kid. Just passing on more suffering.
@@MustObeyTheRules Yes it's genetic so I think it's not fair for a child to inherit it.
@JONES how do you know she passed on the gene? Just because its genetic doesn't mean her child has inherited that Gene. Also she was already pregnant by the time she got her diagnosis.
To everyone complaining that she passed on the genetic disease to a child, you're entering a whole subject of whether anyone should have children if they suffer from diseases that can be genetically inhereted. Disabled people often ponder on whether its morally right or not to bring up a child that could potentially have what they have. That in itself is a big debate and honestly, i think everyone rolls the dice when they have a child. You can be perfectly healthy and still have a child with a terrible disease, just like you can have a terrible disease and have a perfectly healthy child. To me what i think is most important is that you're committed to taking care of that child no matter if they are healthy or not. I wont speak for everyone but many people with diseases and disabilities or just overall bad experiences would say that theyd rather be alive and dealing with their problems than to have never lived at all.
The point is, be open minded and understand that not everything is black and white. You have a right to your opinion and what you would do, but dont judge others on such a gray area. That is their choice to make. (This is besides the fact that she was already pregnant before they knew, just general advice.)
I feel for the family and hope they have been able to cope in the last ten years.
As a clinician I’ve worked with several early onset patients in the early 90s. However, the youngest was a 50 year old female. I can’t imagine having a patient as young as the lovely woman featured here, suffering an incredibly rare and destructive condition.
It’s almost a blessing, and I feel terrible saying this, but the younger a patient is when diagnosed, the faster the decline and subsequent death.
I worked for over 25 years across the Western US, developing programs and designing medical communities. This included educating staff and families in hospitals, assisted living communities, nursing homes, etc.
The suffering of the families was heartbreaking- while the patient themselves is soon unaware of their deficits, the family is left living with merely a shadow of their loved one’s former self.
It’s very common for families to try to “correct” the patients disorientation….so if Dad goes and sits on the porch, and says he’s waiting for the bus, *instead* of saying “OH DAD DON’T BE SILLY, there is no bus coming”……just GO WITH IT. Ask what route he’s taking, or if he has enough change. Wherever the conversation goes, you go there too.
MANY people will instinctually correct the patient, repeatedly. This can be very distressing for the patient. They are simply not going to be able to follow what’s being said, and they will likely feel uncomfortable. Whereas acknowledging their “plans” is in fact, very comforting……
Love and condolences to all who have suffered…… 💔❤️🩹
My parents, ages 80 and 89, both have vascular dementia in the moderate stages. I’m slowly but surely having to learn not to “correct” everything anymore unless I really have to, such as for my dad‘s safety in the kitchen.
Very wise comment 🙏
Dementia and Alzheimers is caused by malnutrition. Polyphenols found in olives, peanuts, eggs, avocados, grapeseed oil, avocado oil, olive oil, peanut oil for frying. Polyphenols are an essential nutrient that reverses brain damage.
Manufacturers and restaurants have been ignoring the nutrition experts for decades.
@@ashleydixon4613 do the best you can, but definitely time for more support once the kitchen chores become a safety issue. Your father will eventually not be able to retain verbal safety instructions. You might consider posting laminated signs with short concise instructions. You may want to contact your local Alzheimer’s association (yes I understand your folks are dealing with a vascular dementia) and see if they have someone or can recommend someone, to come to your parents home to do an independent safety evaluation. The trick can be making decisions that are proactive rather than reactive. I know it can’t be easy, and I am so sorry. There are MANY housing options for your parents these days, where they can remain in a home like setting, that is safe and subtly structured. 💔❤️🩹
@@frodobeutlin1066 thank you 🥰
Her husband is a saint. What love he has for her. What a great dad he must be. ❤❤❤❤. How sad.
Life changes true love doesn't.
Saint??? A man Who get pregnat a sick woman Is not a Saint Is mad.
Get pregnat a woman with alzaimer means do something which her didn't choose. So...it's a violence. It's not a Saint it's a shame.
Alessandra Bosi I don’t know any more about the story than what is here, except that she died over nine years ago I think, but didn’t they say that the pregnancy and the diagnosis both came at the same time? I’ll have to watch it again more carefully of course Because now I’m wondering……
The title Say that She Is 31 Years old , pregnancy, and with alzaimer.
Unfortunately, 15 months after giving birth to her little girl, Emily, Rebecca lost her battle with Alzheimer's and passed away in 2011 surrounded by her loving family.
Judit Bódi
Heartbreaking news.
I nearly cried reading that xx
Judit Bódi oh no 😢
Judit Bódi Devastating situation. Joy for the birth of baby heartbreak for the death of Rebecca.
Oh dear, thats so sad. prays to the family. Alzheimer's and Dementia are difficult to go through, for them its a confusing time and for the families who want them to get the best quality of life. its so hard to see loved ones slip away...my grandmother has dementia atm and when I visit im not even sure she really knows who I am but I love her..I need to be there for her.
That's a real man alright
Bubba bitty instead of puttlng money aside for Brexit, they want to put money into trylng to stop this and other heath issues.
The bravest,strongest woman ever.
Bubba bitty never a truer word has been spoken, well said. That is surely what a TRUE man is. NOT many men would of stood by her. God love them all.
yeah...a real man...who impregnated a woman who has been showing signs of a neurological problem for TWO YEARS! she can't give consent to sex or getting pregnant. yeah...that's a real man all right!
nowvoyagerNE you idiot she was already pregnant when she was diagnosed.
A true stand up family
This is August 2024 l didnt realise this was 14 years ago and have just seen in comments Rebecca passed when the baby was 15 months old.I hope the family are ok all these years on .Rest in peace Rebecca x
as the child who is now almost 15 i am doing very well and it’s brining me to tears from these comments and i appreciate all the love. i have been through many things from further things that have happened a few years ago but i do want to say thankyou.
My mom had early onset Alzheimer’s. She was 59 when we found out. My dad couldn’t take care of her and my husband and I tried also. I would have to pin my nightgown to hers because she would roam at night. No matter how we tried to fix the door, she’d find a way out. We finally had to put her in a nursing facility. It’s simply an awful disease.
My.mom.had.T H is
I'm just curious why your dad couldn't take care of your mom.
@@panchang810, my father had just a ferocious temper. He loved her but once we got her settled in the nursing home that was it for him. He told me quite a few times that he felt as if he already lost his wife because she didn’t know any of us by then. When I had to get in the car and drive to get her out of their home, he had just broken her wrist! Probably he was trying to get her to go somewhere and she didn’t understand. Mom had been in the nursing home maybe a month and he quit taking his insulin. He knew what would happen, he would go into a diabetic coma and that was it. Unfortunately it took 4 days before his neighbor checked on him after seeing newspapers collecting. It’s Florida and it was summer so…I hope I don’t get it. Our cousin got it and her mother was my mom’s sister. But their father had it in the 50’s when there wasn’t a name for it except hardening of the arteries. Well I just wrote you a book, I bet that’s the last time you ask me a question!!
@@floridagal9542 I'm so sorry to hear about what you and your family went through. Perhaps your dad just couldn't bear witnessing how his wife deteriorated precisely why he opted not to take care of her. Obviously he was hurting and seemingly he didn't know how to handle it. For sure his love for your mom never ceased despite what happened to her, he just didn't know how to cope with it. I hope you won't get it. I heard that reading, exercise and good diet could help. Maybe you can do those to help your brain cells kaep healthy. 😊 I wish you and your family all the best and good health. 💐❤
@@panchang810 Sounds like to me they all were selfish there’s no way on Gods green earth I would put either one of my parents in a nursing home
“mum and I will manage... no trouble” - my heart broke 💔😔
That is about the saddest story I have heard in a long time.
Very cruel
Freakin heartbreaking, and so unfair. She was way to young to be stricken with this horrible disease. She has an amazing husband and incredible support from her parents. May God Bless them.
I am almost 50 years old and I was shocked that any man would stick by their spouse in this situation. It was almost like I was watching people on another planet. I've watched family members get ill and my family and everybody leaves them and they die alone. I never really believed that anybody would ever help a family member in this situation . It made me realize that maybe it's just my family that doesn't have love for one another and that other people's families wouldn't do that to each other this was a wonderful story to see how other people can have normal,honest and loving marriages and don't blame there spouses for being ill.
I am so sad for you that you don’t have family that will stay by your side during difficult times. You deserve so much better. Please know you are in my thoughts and prayers. I don’t know what area of the world you are from but I wish you love, security and happiness. Please know you deserve more and don’t accept anything less. (((Hugs)))
I hope you find an amazing partner and get to have a wonderful family yourself one day.
We can’t pick the family we’re born into but we CAN pick the one we make 💕
He was cheating while she was sick
😢😢😢😢 this is just so sad thee saddest comment I've seen thus far , I hope that u find someone that'll love you like uve never been loved before, so that your out-take on life isn't so gloomy towards love unconditionally 😢😢❤❤ God bless you ♥️🥰🥰♥️
It’s very sad that this is a surprise to you. I hope you work through that trauma and you find someone supportive yourself
A touching Story, i'm going to hug my family tonight. Thank you for sharing.
Vanessa Allan so nice of you to say that. hug to you too
This broke my heart,, being a first time mother should be one of the most amazing things you ever achieve, Bless her, I can see in her eyes.. Dementia nurse here.. We pray for a cure.. x
He just loves her so much, you can tell
Their little girl should be 10 years old now. I hope she and her dad are doing well
thankyou for all of this support thankyou.
T@@emilydoig5906
@@emilydoig5906 wow. . .xlnt
@@emilydoig5906 Hugs from Canada Emily. 💌 Hugs to your Dad too!!
@@gdon2897this brings me to tears thankyou.
I'm dealing with my parent who has lewy bodies but is still a lot more functional than Rebbeca. To see someone near my age who has dementia is just heartbreaking, made me cry.
At least she's in a better place now
shinlanten Seriously? Death is better how so?
The disease shut down her brain and bodily functions quite rapidly in the end. If you would rather live on in that state or are able to cope with a loved one in that state, then I give you props on your conviction.
shinlanten My point is that death is not a better place it is no place.
Continuous suffering (both patient and those whom love and care for the patient) with no end or "no place". I'd choose the former....
I am a nurse and I have the honour of caring and sharing these beautiful people's lives. I am so sorry this has happened to you; please stay strong and keep pushing forward . Centre link you stink. Unreal lots of love to all of you xx
Absolutely heartbreaking, what an amazing family she had to be so patient and kind. This disease genuinely scares the absolute crap out of me. It’s so hard on the family losing their loved one.
I am 42 and I am getting tested for this horrible disease.
What a beautiful couple. It's heartbreaking.
How did your test go? I hope you're okay x
Hope you're ok❤
@24JJ821 Thankfully, I don't have Alzheimers but unfortunately discovered that I have chronic active ebv.
Better known as mono/glandular fever. We have however been able to monitor and treat some symptoms.
It's not pretty but it's manageable and better than the alternative for me at least.
Thank you to both of you for asking 💕
@woofawoof7616 The above reply was meant for you also 💕
@@natahliak7691 So sorry to hear you have chronic EBV, but glad you don't have Alzheimers! Hope you manage the symptoms okay x
What an absolutely amazing husband. Many men wouldn't stick by their partner if something like this happened to them. Such a terrible thing to happen.
Harriet Lundt True love isn't always flowers and sunshine... Their example of staying together and having a baby is an amazingly strong example to the world!
my worst fear, that if something happens to me he will quickly move on or do it right under my nose in my house, and my worst fear is leaving my children with no one
Sarah R
He had to do that for her to get any government assistance. It is addressed in the video.
Sarah R did you even bother to pay attention?
What a sad story. They seem a nice couple too. There is something touching about her mum and dad taking care of her like a child again.
I feel for them.my hubby has Parkinsons with probable Lewy body...he fades ..we have no family..our friends 1000 miles away with their own lives..I lift 265 pounds of love each day into his wheelchair
.each day I pray for strength.and patience 🙏💝🕊💪
Prayers for you and your husband. This awful disease took my father.🙏🏻
God bless you! You always do amazing, remember that god is always there when you can’t be ❤️
God give you strength and you are a loyal and caring person...this is meaning of true love and sacrifice..your husband is worth it..never doubt that ever..
My great uncle just went into hospice 3 days ago. He's had Parkinson's for years. Terrible disease. My mom died from ovarian cancer in 2017. I was her sole caretaker. It's exhausting. The physical is bad, but the emotional and mental toll is worse. It's just sad. I pray that you'll find the strength, patience, and have some support somehow.
@@luckdragongirl 💝🙏🕊
I'm in total shock because I never knew that someone can have alzheimers at such a young age
I had a classmate in college who's Mom was diagnosed with Alzheimer's at 40!
They said it was a RARE FORM of the disease - which makes all the difference. I don’t think you need to be too concerned.
General dementia can even hit children.
It's so sad to know she passed with her baby only being 15 months old. This disease came in and took her so quickly. Bless Rebecca and her family. RIP 🙏
@@emilydoig5906 are you scared you might genetically get your moms disease too?
@@emilydoig5906😢
@@amaliasafaryan4256Just read she tested negative as a baby.
@@amaliasafaryan4256They tested her at birth. She doesn’t have the gene.
Emily and the whole family... My heart Is close to you 😔🏵️🏵️❤
There’s been a comment that I have read calling him all sorts for getting her pregnant. Have any of you stopped to think that the baby is a part of her that remains in his life. He can love and watch that baby grow and everyday see his wife in them. I think it’s an incredible gift she has given him. It’s all so sad.
Yes, but at the same time a child is it's own person and not there solely as a reminder of it's mother. The first concern should be with the child, not the husband off course.
That must have been a difficult decision.
The whole topic is stupid. She got pregnant when they didn't even know what was going on.
Exactly! And perhaps they were planning this pregnancy!! He didn't "get her pregnant, " they're (were) a mature and seemingly very happy couple. However, I would be concerned that the genetic component may be passed on to their little one. Very sad story.
Oh I saw that - Doxy Lady was her name - just an ignorant bitch, and one of the reasons that the world is like it is these days!!
It’s scary that it’s genetic and could affect the child.
I have the same story, my girlfriend 26 years old. last year's suddenly coma and was unconscious for a month. after she woke up in the ICU. she has turned into a different person. forgetfulness, withdrawal from social, very moody and can't control emotions. and the doctor diagnose its a dementia (I do not know exactly). but that has not changed is she has the same love to me, same as before.It broke my heart & ruin my live, im very very loving her. sorry for my bad english, I'm from Indonesia. I hope that will be a miracle for her..
Dementia can be caused by any sort of brain damage really. I'm sorry you're going through that.
Read up on Coconut Oil.........it will help her memory alot! Make sure you follow how much to take.
cookie71559 honey will help too and papaya
adit perwira I m sorry for what happened to her and how it affects your life ! It have to be scary and heartbreaking and tough. You are a good man to stand by her and helping her . Take care of you too ! Wish you all the best ! 🍀✨
I assumed adit perwira was a female but regardless, I agree with NORTH Line.
My heart goes out to her husband,but particularly her parents.Cant imagine the heartache seeing yr daughter drift away like that. Bless you all.
I have an elderly parent and my heart goes out to her. I am glad that Rebecca had a baby.
Why?
She was Diagnosed Aug 2009, died July 2011. She ended up at a care home where she passed away peacefully. Her rare disease rapidly deteriorated her brain and bodily functions which lead to her passing. She always lit up seeing her baby and husband. “She was always happy and laughing. She never blamed anyone for her condition. She just said ‘I don’t want to be like this’. So sad.....
Dang that's the same kind my mom died from its so sad their brain closes down the body an it does go very quickly. Its a blessing in a way some end up being a vegetable for years its so sad
00 00
I just read that same article.
This is such a sad story. I hope all is well and I know that he's probably a great dad teaching the child about his wonderful mother
31, unbelievable. I never thought knew it would attack at this age.
Clark Brady there’s a childhood dementia that kills its victims in their early 20s. I remembering reading about a seven year old with it.
@@alicenolan8927 Batten's Disease. I think it has a different cause, but like Rett Syndrome, ALD, Tay Sachs, the child with it goes downhill after a certain age. Look it up on You Tube for more info.
It kind of makes sense. When you compare the humans from the past and now, we're not suppose to live this long; that's why many people in that age group and further have complications of their bodies. With our lifestyle that helps us with our longevity, the evolution is still in it's beginning stages to process that.
Clark Brady very,very rare💔
@@alicenolan8927 This scares me. I've always had issues with short-term memory and finding words for things, but lately I've been really slow on the draw the past few months and it's making life difficult. I'm twenty-three. It isn't so bad when I don't have to do with things on my days off, but when I've got a schedule, very frustrating.
My grandma is just starting to get mild dementia but she is 98 and it still breaks my heart but I can't imagine having a family member who is 31 get that horrible disease. it's not fair. I'm so sorry.
This is so heartbreaking! What an amazing husband may God Bless him for being such a wonderful human being and father to their child.
this is so heartbreaking. R.I.P. love. Her husband is a very good man and that family is just so wonderful
Alzheimers and other forms of dementia are beyond evil.
I am a carer in a nursing home for predominantly dementia residents. There is a lot of joy but there is an equal amount of heartbreak.
31 is no age at all. I am beyond heartbroken for the family.
Me too.. same
This is truly heartbreaking. Brings you to tears. I cannot believe that the Government, the system that’s been democratically installed to help it’s citizens...cannot or WILL not offer this couple and others like them the right support at the RIGHT time. Time being as precious as air is the currency this couple don’t have. DREADFUL. My love, support from afar and universal blessings to this couple and families like them. xx
Her parents are wonderful - so loving and caring ❤️
Hard to believe she died. So sorry to hear that.
Prayers for your family!😭🙏🙏
Not hard to believe at all. Sad as all get out .
She's blessed to have passed away. Imagine living another 50 years this way
Crystal Blue, my sentiments exactly.When I read in the comments she passed away only a little over a year later, I felt nothing but relief. I have worked with dementia patients and she is blessed. Rest in peace, lovely girl.
As sad as it is she is in a better place. But I still feel sad.
I agree death can be a mercy
God took care of her so she wouldn’t
suffer that terrible disease
God bless the family and keep them safe
True. My sister had the disease for 15 years and passed at age 61. It was HORRIBLE to watch her fade away.
My grandmother recently passed after a long battle with Alzheimer’s. It’s so sad to see that not only long lasting marriages but also blossoming families have to suffer from the sheer cruelty of this disease
She is younger than I am now. I have had a small taste of what it's like due to a stroke I had a few years ago and let me tell you, it's the scariest thing ever to just go blank when your midsentence or not be able to remember what something that you see on a daily basis is called or when you walk into a room and turn around and not even remember getting up off the couch to come in there. Those things give me so much anxiety but, this poor young lady passed away at 32 from something so much worse than anything I've ever gone thru. I'm always worried that my memory problems and cog fog is going to get worse. It's one of my worst fears to end up like this poor lady. God rest her soul.
I’ve always felt that Alzheimer’s is the saddest disease out there . My heart goes out to anyone living with it or living with a loved one who has it.
Well Bless that lovely man ! I hope Scott is as good as possible now
I have watched this many many times and im watching it now in 2023 😢 to remind me how precious life and my family are. Hugs and love from NZ always to her family ❤️🌺❤️
Same here….I come back to this every so often. It’s so sad and shocking that she was so young.
@@lisah.375this warms my heart
Her parents love(d) her. Her husband really Love(d) her. He didn't want this for her. 😞
What wonderful parents!!! God Bless you all!
Such a sad situation. Prayers from Iowa, USA 🇺🇸
I almost got scared because the reporter wasn't moving at the beginning
My heart hurts for this beautiful family. So sad for anyone to have it, but a young mother is horrendous! RIP sweet Rebecca.
I can think of something worse. A young negative woman in an assisted living centre was raped by a care worker there and got pregnant. I hope her husband will remarry and can raise the baby. The baby should also be tested genetically for Alzheimer's.
This is so heartbreaking. My 66 year old sister has alzheimers and I have cried enough to float a battleship. God bless them.
im a support worker and the youngest person i have looked after with dementia is 28. seeing 30yr old residents in resthomes with early onset dementia and alzheimers is not rare anymore. very sad
her father is so correct resthomes are not equipt to take on under 60s. there focus when it comes to therapies are for older residents. health care needs a reform so these people dnt fall through the cracks
Miss She This makes me so angry! I know that American people are perhaps even most vocal of all peoples against this shit but your government doesn't care! It is devastating and I know families are making support groups because those helped me online because there was not much done in my country. I really know how common people in USA can be compassionate and I am really sorry for all the horrible crimes against nature that your government (and world governments) are doing.
Her husband mentioned her getting a "carer's pension" for himself. Their situation is bad, but he doesn't seem to realize there is no such thing as a carer's pension in the States. I ended my career to care for my mom and got zero from the state, or from the federal government. I'm doing my best trying to live on savings. The US government does not care about families taking care of our disabled loved ones.
How heartbreaking for a beautiful, young couple.....came across this on Mother's Day...prayers and love to family.
I feel for this man, I truly do. My wife has a disease called Pallidio Ponto Nigral Degeneration or PPND for short. It is very similar to Alzheimer’s in its manifestation, which typical onset begins in the 4th decade of life. She turned 40 in September 2019, at the end of that month we traveled to the Mayo Clinic in Jax. There they have her in research trials and have her go through MRI’s each year along with cognitive skills and memory testing. My wife is perfectly normal -no signs of any issues, however, at this last Mayo visit, the neurologist we see each year said that he’s beginning to see deterioration in her frontal temporal lobe also that she performed worse during this year’s testing than previous years. This means onset has begun more than likely. Devastating news - even if you knew this was a possible outcome. She’s handling the news pretty well now, it was touch and go in the beginning I will admit. My wife is still acting normal, she holds a full time job and no one would suspect anything would even be wrong with her. But I’m afraid my time with the woman I married is now limited. I have always told her that I will always take care of her -and I always will. But it’s a scary proposition still, and sad too. Sad to know she’ll become dependent for everything. Sad she may forget who I am - or who our kids are. Sad I will lose my best friend. She has been -and always will be - my everything. Mayo has treatment trials coming up for Alzheimer’s patients involved in their trials and new “experimental” treatments are sounding very positive. Meaning that a possible cure for Alzheimer’s may be close. I just hope it’s VERY soon, for my own selfish reasons.
I am so sorry :(((
I sincerely wish you and your family all the best.
I hope you are ok xx
I truly appreciate the extremely kind words from all. Here’s a little update. The Mayo Clinic results I spoke of two years ago may have been just a fluke in her testing that year. I say that because last year (2021) that same neurologist that stated her previous year’s results showed signs of onset now was raving about her performance in testing and that her MRI scans showed no change dating back to 2009. Needless to say we were elated with that kind of news - we were expecting a very sad trip last year. Unfortunately that joy was short lived. About 5 or 6 months ago, I began to really see signs of onset of this terrible disease of hers. Tremors, very significant loss of muscle strength, explosive emotional temperament, and a few other traits, (or what I would say tics) like balance issues and when she walks she no longer swings her arms while in movement. It’s heartbreaking to see her decline in health, but the most troubling for me is her inability to control her temper.
She will lose it over very inane things, such as dropping her phone. I don’t know of anyone who hasn’t had the dropsies with their phone from time to time. But she will yell things like, “I’m so f-ing stupid that I can’t even hold onto my phone!” This is just one of hundreds of circumstances that will draw this rage-like anger out. I know that it stems from her knowing that she’s losing her independence in various ways (I help dress her, flat iron her hair, take off tighter fitting clothing, etc. so I certainly don’t come down on her for it. But it’s still very hard to watch and experience. Ps. Sorry to be so wordy with all this - but I truly have nowhere to vent my fears, frustration, and grief. To those who read this in its entirety - thank you as well.
Extremely sad. Unfortunately I had a similar situation in having to divorce my husband before he passed to avoid bankruptcy due to his excessive hospital bills. What a sad thing to gave to do to your loved one when they're dying.
"In Sickness or Health"
|
doesn't this mean going down in bankruptcy with them...?
But its a difficult decision either way.
Thank you for posting I have never heard of this in a young person.
As an Alzheimer's Advocate, I find early on-set to be the hideous disease out there, second only to Huntington's disease. I have lobbied Congress for more funding for Alzheimer's and continue to do what I can with public policy. It will take a private donor to supply the research needed. My mom is in hospice with late stage dementia and it has been very heartbreaking as she got it early in her late 50's. Unfortunately, 40% of the Baby Boomers will die from neuro-degenerative diseases leaving our country completely devastated financially because they control 77% of the income in our country. This is all because the CDC and NIH did not give proper funding to each illness based on preventative, statistics, etc. Politics at it's best and our country will collapse. Thank God that they have a beautiful baby as a legacy to their beautiful daughter. This should never have happened, it's been 100 years since we have known about dementia. What is wrong with our government ? Why aren't private donors stepping up ? The 1% just don't give a crap.
So true!
Luv 'N Life what about CBD oil, medical grade? I saw an elderly woman who improved dramatically... several studies too.
While I can appreciate everything you're saying & all the work you are doing advocating for change & funds; I would be remiss if I didn't mention Bill Gates is making massive donations $80 MILLION of his own funds & bringing in investors for Alzheimers research. Awesome! www.businessinsider.com/bill-gates-backing-30-million-alzheimers-fund-investors-2018-7
Jessica LT it helps to calm the patient but does not help cure the person or assist memory.
@@msl5131 awesome to know Bill is spearheading this
Through sickness and in health 💙
Husband goals 💙
No but on
May Rebecca find peace in this life. May her family and dear husband hold and kiss on her as much as they can.....may God BLESS them all....
God has blessed them with Alzheimer's. I don't think they would want any more blessings, thanks. Keep your religious ignorance for you and do not offend people who are really suffering. Be respectful.
87JuliR "Religious ignorance." It looks like you are the only one displaying ignorance in this situation.
+Hylander i dont see how im displaying ignorance. Just, to me, its totally disrespectful to say "may god bless her" when the girl has such a terrible disease. Use your brain. Respect people and dont make fun of them with your religious things for its really offensive. It just sounds ironic. God wouldnt have "blessed" her with alzheimers, especially at such a young age.
87JuliR It's ironic that you don't respect other peoples' beliefs. Just because people die and get sick doesn't mean God is cruel or uncaring. Allowing something to happen is not the same as causing it. We die because of imperfection. Mankind has been rebelling against God as a whole since the beginning, and to prove that they cannot rule themselves God has not interfered. But he will not let it go on forever. He will soon bring an end to this system of things, and set up his Kingdom, which will eliminate all suffering and death.
Pardon Me you're raving. Nothing you say will ever or have ever been proven.
What a wonderful family to have for support. It’s so heartbreaking that there’s no financial help unless the couple separated. 😢