Navigating the World: Living With Retinitis Pigmentosa
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- เผยแพร่เมื่อ 22 ก.พ. 2024
- Hi everyone, I'm Rob, and this channel is a window into my life with Retinitis Pigmentosa (RP), a journey that's taken me from the classrooms of my school days, through the halls of university, to the life I lead now. It's a path that has been both challenging and enlightening, as my vision has progressively diminished, leading me toward being officially classified as a blind man.
From those early days, I've learned the importance of adaptation. As my condition has worsened, I've continuously discovered new ways to navigate the challenges it presents. This channel is all about sharing those adaptations, the innovative methods I've employed to live a full life despite Retinitis Pigmentosa. It's a journey of constant learning and evolving, and I'm here to share every step with you.
This video is a candid look at my life with RP, sharing the struggles of dealing with a deteriorating condition while striving to achieve my dreams. From learning to navigate with a blind cane, to adapting study habits, to embracing technology designed for the visually impaired, every stage of my journey has been a lesson in resilience.
But this isn't just my story. It's a call to anyone facing their own battles, whether with RP, another form of blindness, or any challenge life has thrown at you. It's about finding your strength, your community, and your path forward. I've faced moments of frustration and fear, but also moments of triumph and joy. Through it all, I've learned that how we face our challenges defines us.
Join me as I share my ongoing journey, from the lows of facing an uncertain future to the highs of overcoming each hurdle. My vision may be narrowing, but my perspectives are broadening. I hope to inspire, to connect, and to show that even in the face of adversity, we can find ways to excel and to live a life full of meaning.
Let's navigate this world together, sharing stories, support, and strength. Subscribe to follow my journey with Retinitis Pigmentosa, as I look back on where I've been and forward to where I'm going, always with an eye toward inspiring others to overcome and to thrive.
#RetinitisPigmentosa #NavigatingLife #BlindnessAwareness #UniversityLife #OvercomingChallenges #Inspiration #VisualImpairment #Adaptation #Resilience #rp #blindfocus - กีฬา
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Your presence has always commanded immense respect in my eyes, but today, my admiration for you has soared to new heights. You exemplify excellence in every aspect, serving as an awe-inspiring role model for us all. Your genuine compassion and unwavering dedication make you a beacon of goodness in this world. I feel incredibly fortunate to have crossed paths with someone as remarkable as you. You truly are one of the finest individuals I've ever had the privilege to know. With utmost respect and admiration, I tip my hat to you, recognizing your legendary status as truly untouchable.
Thank you so much my friend!!
Rob, your journey truly exemplifies the strength of relentless determination. Continue to radiate your inspiring light! ❤
Thank you so much my friend ❤️
I already had tremendous respect for you....but this is off the scale. You set such an incredible example to us all. You are very genuinely one the best humans I know, and I consider myself very lucky to have met you when I did. Hats off, your legendary status is untouchable xx
This makes me happy! I massively appreciate your kindness and constant support ❤️
Rob, this continues to be amazing. Resilience is definitely on show here for all to see. What an example for us!!!
Thank you!!
Thank you for sharing your story with the world and being so brave. I salute your courage and not letting your condition hold you back from living and enjoying life!
Thank you so much my friend!! ❤️❤️
Thank you for sharing the incredible journey through your life. Your positivity, resilience & inspiration to deal with such difficult times in your life is incredible. Thank you for your determination to help others. You are amazing x x
What a beautiful comment - THANK YOU SO MUCH! ❤️
Rob, you're truly incredible. Thank you for sharing this with us.❤
Thank you my friend! Thank you for your continued support ❤️
Hearing about your personal journey is really inspiring, and your positive attitude really shines through.
Thank you for sharing your story so far ❤
Thank you for watching and your continued support! Really appreciate you taking time to reach out ❤️
Loved your story of overcoming my friend! It's very inspiring and gives us strength to keep fighting, especially for people like our singer and guitarist, Rudolph who also suffers from retinitis pigmentosa. We are on this same road together! Thank you so much for sharing this video! Congratulations! 👁️🔥👁️👏👏👏👏
CANNOT wait to feature your music in my upcoming videos guys. Keep up the awesome work!!
I admire your resilience my RP brother. Keep up the great work.
Thank you so much! Really appreciate that Carrie ❤️
We are very lucky to have a super human like you..teaching us and helping us you are amazing ❤
Thank you so much ❤️❤️
This is amazing content Rob. Really authentic, vulnerable & genuinely inspiring. 👏👏👏
Thank you my friend! Genuinely appreciate that Doug ❤️
I love how you detail your video and make it clear
Thank you my friend! ❤️
Will be following! What an inspiration!
Awww thanks Jo!! ❤️
I can relate to this video with also having RP diagnosed aged 28 now 33 and finding things extremely hard and embarrassing at times, it's hard when you say about trying to hide our disability and not ask for help. Iv subscribed to your channel and will be sure to catch up and watch any future videos
Thank you so much for reaching out my friend. Now I’m in my 40’s I feel more confident and care less about the world knowing. I wasn’t the same in my 30s!!!
Glad to have you here ❤️
What a video, so powerful
Thank you so much ❤️❤️
Great life story and motivation Rob!!
Thanks Matt my friend!
Keep up the good work. Well done .
Thank you so much my friend!
Thank you for sharing an insight of your journey. Just remember you are an amazing person. For the many years I have known you, you have never said "why me" and have just got on with life and dealt with at times, an incredibly hard journey. I hope your followers will see the person within you and continue to support, follow and share your journey with you. Thank you also for all the Videos and help you are giving us to help us try and have a better life too. Just incredible xx
Awwww thank you ❤️❤️❤️
thank you for sharing your journey Rob. I've now shared your video in the hope that my family/friends can find some understanding about how I see. I'm 62, but like you I only have central vision, I lost my husband in September suddenly 2023 and along went my 'secruity' with life.... changes had to be made as I also have the care of our 4 year old grandson.... so now our wheels are a mobility scooter to get us around, yes asking for help is a huge thing.... also working on this.. I wish you the the best and look forward to seeing more of your videos
Firstly Carol, I’m sorry about your husband.
Secondly, thank you for reaching out and sharing your experience. That certainly sounds tough emotionally and physically.
I hope my story somehow lands with your family and really helps them be understanding of what you’re going through.
I hope my future videos will continue to be useful.
R ❤️
Thank you for this!
You are very welcome ❤️
I have RP I love how you created this video and are so comfortable in genuine in front of the camera front of the camera🎉 3:44 front of the camera
That’s AAZING thank you ❤️
I have RP also.
I really suggest a blind school where you can learn cane travel and useful info.
Your cane is a tool, learn to use it.
I moved to Denver, Colorado, got my medical marijuana card, and have been doing great.
My floaters went away completely, no more headaches, eye strain is reduced.
I'm at about 10-15 degrees for 12+ years now.
I feel great and my doctors are very happy with where I am.
Good luck with your adventure!
I wish you well.
Jason thank you for all that info.
Did the marijuana help rid the floaters or something else?
I am due to start my long cane training later this year ❤️
@@BlindFocusRS Yes, medical grade marijuana helped.
My doctor said smoking it lets the eyes get a better dose.
I take Diamox for edema, 125g twice daily.
I also take Vitamin D twice daily, 4000IU.
Having both my cataracts removed in 2010 helped a lot too.
I went through bling school for 9 months in 2008-9.
I learned Braille, but haven't used it, sense my central vision is so good.
Cane travel, computer, and even shop class, helped me learn a lot.
Knowledge you can pull out of your mental filing cabinet, if it comes up.
Thanks!
I liked subscribed and shared
LOVE THIS!!
I’m 5 min in and Im breaking down in tears because I understand completely what your going through and grinding up and his oriole are like oh I can’t see at night either I’m like no like I’m blind already no center vision in right and my peripheral is off in left I have only center in left of vision and some side vision aside the blind line in my right. I totally get you… with glasses. Not wanting to wear them because I was so used to not having them when young and growing up… I am unable to drive because things move too fast and even when I walk non moving things appear out of nowhere or people. I can see the best out of this and life but don’t get me wrong, I have my break downs and that’s okay !!!
You are an absolute diamond my friend ❤️
@@BlindFocusRS aweee thank you 😊 you too!!! Let’s do this together!!!!
❤❤❤❤
Thank you ❤️
I also have RP, arthritis and type 2 diabetes.😊
TWINS!! Hope you’re managing ok my friend?
❤❤❤❤
Thank you ❤️❤️❤️