Predicting My MS I Full Documentary I NOVA I PBS

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  • @smyelinwhitetiger1776
    @smyelinwhitetiger1776 2 ปีที่แล้ว +35

    I was diagnosed with multiple sclerosis in 96 right after my 18th birthday.
    I was pregnant and experienced complete paralysis.
    I regained my ability to walk and care for myself.
    It has been a long hard road.
    I'm glad to see programs like this.
    The more awareness brought to ms the better.
    Thank you for sharing this

    • @needles1975
      @needles1975 2 ปีที่แล้ว

      100% All miserable chronic painful neuromuscular collapse mental psychological emotional skeletal orthopedic spinal diseases have the exact same cause Americanism ... male dominance. The Cure for Americanism is the opposite Female dominance.

    • @mr.makedonija2627
      @mr.makedonija2627 ปีที่แล้ว +1

      How are you doing now?

    • @billbillards569
      @billbillards569 ปีที่แล้ว +1

      This is actually part of a full movie called Why I Walk.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 18 วันที่ผ่านมา

      Just came across this. Well made, Jason. 👌

  • @mascadadelpantion8018
    @mascadadelpantion8018 2 ปีที่แล้ว +13

    This is such a wonderful thing to have the full episode of online for free!!!!! So interesting and so thought-provoking. This is clearly the reason why I will always never stop supporting PBS

  • @demoskunk
    @demoskunk ปีที่แล้ว +7

    Thanks for developing that app. I've had PPMS for 7 years and my walking ability is getting worse.

  • @tyronefu7396
    @tyronefu7396 2 ปีที่แล้ว +18

    that was difficult for me to watch simply because I am going through it currently, but it was inspiring to see all that you have accomplished. Keep going strong in your journey in making this world a better place.

    • @OrphanRed
      @OrphanRed 2 ปีที่แล้ว +1

      Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).

  • @EvenSoItIsWell
    @EvenSoItIsWell 2 ปีที่แล้ว +9

    Thank you Jason and Nova. Spreading awareness about MS is so important. I am 15+ years into my Ms journey and, like you, am hopeful.

  • @RobAce
    @RobAce 2 ปีที่แล้ว +19

    Saw it online with my husband...Very interesting (MS is similar to my rare and progressive neurological condition, Spinocerebellar Ataxia)...One thing that has helped me cope is my effort to move on...I'm not interested in knowing how I got it...I am lucky to have Jason to talk about his MS...

    • @marmarmar145
      @marmarmar145 2 ปีที่แล้ว

      th-cam.com/video/mEx4dAAmVCQ/w-d-xo.html

  • @kdlofty
    @kdlofty 9 หลายเดือนก่อน +6

    Jason, you're an absolute legend, and truly inspirational. Keep rockin' and rollin' bud.

  • @kevindamron5441
    @kevindamron5441 ปีที่แล้ว +6

    I was diagnosed with PPMS this past July at the age of 50. It's unsettling to not know the rate of progression. Still able to walk but both legs from knees down are stiff and numb. Thank uou for the documentary.

    • @famasmaster2000
      @famasmaster2000 4 หลายเดือนก่อน

      I'm in the same boat , diagnosed at 50 and my leg function is getting worse. I never take a day off from working out as I believe it is keeping it from progressing faster.

  • @h.frohlich5495
    @h.frohlich5495 2 ปีที่แล้ว +9

    Thank you Jason for all you do and as one who also has primary progressive MS these last couple of years I have gone through similar introspective exercises. Thinking about one's condition and actually completing something can be a stretch. Many things get in the way (fatigue, brain fog, constraints of being in a power wheelchair similar to a paraplegic etc.) I am close to 79 years of age this year and I do all I can to help others . I'm impressed with the amount of energy that you have been able to focus. May you continue to be a positive force in the MS community.

    • @jimsperlakis5634
      @jimsperlakis5634 ปีที่แล้ว +2

      I am 71 and have ppms also. Ancestors were from Crete. I was diagnosed @52 just prior to 3 of the worst neck surgeries ever. Never thought about ms because I just didn't have time to be sick. We'd just fight thru the oddball pains and try again the next day until a quack chiropractor almost paralyzed me. Then I got the 1st MRI. The surgeon didn't want to tell me about my ms but he gave in. An ms specialist ok'd the surgery never thinking that it would push my ms into high gear. I've tried most all of the available meds with no slowing it down. The Lemtrada infusions were the only thing that helped but 6 days @ CTCA and $736k, followed by 3 days @ $534k really could bankrupt most people.

  • @evolvingtech1
    @evolvingtech1 2 ปีที่แล้ว +6

    Jason, Thanks for this terrific resource. It helps to shed light on understanding MS.

  • @usualobject0
    @usualobject0 10 วันที่ผ่านมา

    Thank-you for the beautiful documentary. I was diagnosed with RRMS in July 2018 at 29 yo. Prior to my Dx, I had symtoms on and off for at least 3.5 years. Last MS attack was in June 2018. No MS attacks since then. I am blessed 🙏

  • @Green_Roc
    @Green_Roc 2 ปีที่แล้ว +15

    My mom died of complications from MS. Some people thought she was going crazy. Fine one day, not fine the next, then fine again. There is a real physical thing happening to the brain. I am afraid of getting MS myself.

    • @Green_Roc
      @Green_Roc ปีที่แล้ว

      @@mr.makedonija2627 2017. Thank you.

  • @Honestchild436
    @Honestchild436 9 หลายเดือนก่อน +2

    I left from Greece at 35 years old and moved to the Netherlands , almost immediately i felt bad depressed from the weather and darkness, 8 years passed with many neurological issues and low vitamin D , i am in and out the hospital looking for answers

  • @QuintusAntonious
    @QuintusAntonious 2 ปีที่แล้ว +8

    Almost every male on my mother's side of the family has MS. I'm one of the only ones who doesn't have it (yet at least). It's a tough road and I wouldn't wish it on anyone.

    • @1life857
      @1life857 2 ปีที่แล้ว

      EAT MEAT AND YOU WILL BE HEALTHY AND MS FREE!!!

  • @PokeMama23
    @PokeMama23 2 ปีที่แล้ว +10

    Yet some people can have all of these possibilities and never get it. Keep fighting ❤

  • @melissamillar800
    @melissamillar800 2 หลายเดือนก่อน

    I suffer from MS and am now in the progressive stage...thank you for sharing your journey. What a lovely person
    you are, and continue your quest. A positive attitude is everything!

  • @jenhaze
    @jenhaze ปีที่แล้ว +4

    Thank you for sharing your diagnosis and journey. I needed to see this ❤❤

  • @rickr9936
    @rickr9936 2 ปีที่แล้ว +7

    You keep fighting, my brother-

  • @pamelalabrake7622
    @pamelalabrake7622 2 ปีที่แล้ว +7

    Jason excellent documentary. I started with symptoms in my 20's, now in my 60's. I have many of the "risk " factors such as where I live (NY) all of my life, smoking, first cousin with MS, exposed to toxins etc etc. I decided on an "alternative" medication called low dose naltrexone and I have seen improvement in my Relapsing Remitting MS. Thank you for sharing your journey and educating other. Wishing you the BEST in the future.

    • @1life857
      @1life857 2 ปีที่แล้ว

      DON'T USE ANYTHING 'ALTERNATIVE' FOR THE REAL DOCTORS HAD TO ENDURE DECADES IN REAL MEDICAL SCHOOL AND KNOW BETTER!

    • @pamelalabrake7622
      @pamelalabrake7622 2 ปีที่แล้ว +2

      @@1life857 It's a REAL medication just used "off label" and at a much lower dose. I decided on it after REAL PEOPLE living with MS described how they were improving on it with virtually no side effects and it's very affordable. Within days after starting it my balance improved and I was less fatigued. Been on it all these years the BEST decision I made for myself. Even my neurologist is surprised how well I am doing. People have to trust their instincts.

    • @mr.makedonija2627
      @mr.makedonija2627 ปีที่แล้ว

      ​@Pamela LaBrake how are you doing now?

    • @pamelalabrake7622
      @pamelalabrake7622 ปีที่แล้ว +2

      @@mr.makedonija2627 not too bad but under ALOT of stress due to my hubby on hospice and other family health issues. I still continue to use LDN and also I am on Vit D supplement as my levels were VERY low. Now they are in the normal range. Thank you for asking.

  • @carhall56
    @carhall56 ปีที่แล้ว +2

    I feel your journey, we have to continue moving forward and embrace our life.

  • @Amandavg
    @Amandavg 2 ปีที่แล้ว +3

    I am female, I was obese as a child, I have low levels of Vitamin D, live in upstate NY, and had Mono at 18. Great

  • @bigrigchristfollower9020
    @bigrigchristfollower9020 ปีที่แล้ว +1

    I was diagnosed in December of 2022, still need a Lumbar Puncture done before the Nuerologist will start any medication.

  • @corporateraider77
    @corporateraider77 2 ปีที่แล้ว +3

    This was very hard to watch since I have MS.

  • @pattiepitts5893
    @pattiepitts5893 2 ปีที่แล้ว +4

    Wow very interesting. I have disease that’s in the ms family,it only appears in the feet and in some cases the hands. I’m embarrassed to even mention how very painful it is. How about you are in pain God I hope not. You are so positive it honestly made me snap out of my pity party. But we have some similarities that I thought were odd. My ancestors were also Russian, German Jews,Born and raised in sunny Florida still live there, and Vitamin D Deficient and I’m very brown and outside all of the time and I still have to take Rx Vitamin D. In my mind this is we’re our troubles began. You are amazing I hope you continue to do art in some form and film work. God Bless you really are an inspiration

  • @wynacht
    @wynacht 2 ปีที่แล้ว +5

    DX aug 2021 at age 47 with 20+ lesions but none in spine thankfully ❤️
    I always lacked Vitamin D and am from a darker place in alaska. I believe in the geological theory.

    • @1life857
      @1life857 2 ปีที่แล้ว +1

      WHAT IS YOUR DIET LIKE? HAVE YOU THOUGHT ABOUT THAT TOO?

    • @mr.makedonija2627
      @mr.makedonija2627 ปีที่แล้ว +1

      How are you now?

    • @mary-vy3mo
      @mary-vy3mo 7 หลายเดือนก่อน

      you should have hsct done before you worsen...

  • @sharonnicholson8547
    @sharonnicholson8547 ปีที่แล้ว +1

    Hi Jason,I also have Ms but mine is secondary progressive. Still all the same kind of symptoms.My first symptoms was drop foot in my twenties.Im now in my fifties.I carry something called the jc virus,I was told 50%of people have it& rest don't.This was because it can have a very bad effect on certain kinds of treatments,worse being death.Im now bad on legs ,can walk a few steps,arms& hands very weak.My memory is very bad & I'm in a lot of pain all of time.Intake so many medications&have lymphodema as a result of slow movement etc.I wish you well in your search & being on here brings us all together.God bless you Jason.xx

  • @brendakreuzer9498
    @brendakreuzer9498 หลายเดือนก่อน

    I was recently diagnosed with idiopathic poly peripheral neuropathy but I feel like I have MS. I have numbness pricklies from my toes to my knees in both legs and the same from my fingertips to my elbows both sides. I had lumbar back surgery in 2021 and these systems really fired up then even though I have foot cramps severely every night since 2017. My right side is weaker and heavier feeling than my lift side. I’ve been having some issues with my right eye pain and it is constantly is twitching and hurts at the socket, causing my vision to be blurred. I’m just sitting here suffering. Praying for us all.

  • @kaym9882
    @kaym9882 2 ปีที่แล้ว +5

    God bless him.

  • @kathydoherty6383
    @kathydoherty6383 2 ปีที่แล้ว +3

    Does Jason or anyone else know if there is a similar map for Canadians whom are disabled showing public accessibilities like the one shown in this video?

    • @RachelJane101
      @RachelJane101 2 ปีที่แล้ว +4

      AXS Map is crowdsourced. The ability exists for anyone to rate any location anywhere in the world. Whether those ratings exist depends on users inputting that data.

    • @jasondasilva7398
      @jasondasilva7398 2 ปีที่แล้ว +5

      @RachelJane101 said it perfectly. AXS Map is available all over the world. In fact some of the most data we have gathered has been in Canada. So keep it up!

  • @ice13cube77
    @ice13cube77 2 ปีที่แล้ว +4

    Bro I read MS as mangekyou sharingan first time I saw it💀
    All love bro, wish only the best for you and ur fam❤

    • @marmarmar145
      @marmarmar145 2 ปีที่แล้ว

      th-cam.com/video/mEx4dAAmVCQ/w-d-xo.html

  • @cintianascimento5963
    @cintianascimento5963 2 ปีที่แล้ว +2

    Wonderful documentary 🙏

  • @morryswigs2005
    @morryswigs2005 8 หลายเดือนก่อน +1

    Good video. Keep doing it Jason.

  • @concettaworkman5895
    @concettaworkman5895 7 หลายเดือนก่อน +1

    Get a spinal tap, have a microbiologist look at the fluid, you'll see the parasites.

  • @carminepetracca7518
    @carminepetracca7518 2 ปีที่แล้ว +4

    check out the connection between mononucleosis and multiple sclerosis.

    • @NatashaVincent
      @NatashaVincent ปีที่แล้ว

      Mononucleosis is Epstein-Barr virus, which was mentioned in the documtary (where the cheerleaders are on-screen 23:16 )

    • @francam853
      @francam853 22 วันที่ผ่านมา

      I had mono in my 20s but without the classical high fever. I think the lack of fever caused the next problem: CFS (Chronic Fatique Syndrome) associated with the EBV, which got into my NS and caused big problems for 20 years. That resolved. Now, 20 years later, I've got leg symptoms again, and now am diagnosed with "Possible MS," having brain and cervical demylenating lesions. I'm sure that the CFS is a post-viral condition, as is long COVID. And MS could well be post-viral.

  • @mypinkrabbit
    @mypinkrabbit 2 ปีที่แล้ว +4

    Informative and a Powerful message of giving back, gratitude, and dealing with adversity. But MS presents in different ways can be or is insidious, elusive, and unpredictable. With all the technology and research, there will be some that will claim cure but for now, I’m Not missing out on my Life and among other things, Just for today, I will take care and be Well, One Day at a time☮️

  • @monicaz4949
    @monicaz4949 9 หลายเดือนก่อน

    Your mindset is just like mine. I want answers and look backwards. Lyme? Mold exposure etc

  • @palmyrapalmyra1681
    @palmyrapalmyra1681 ปีที่แล้ว +1

    Thank you so much for this. Bless you.

  • @jeffdavis5723
    @jeffdavis5723 2 ปีที่แล้ว +2

    *That’s so **#SAD** and **#HORRIBLE**‼️* 🙄😳😯😮

  • @nupurdeshpande2889
    @nupurdeshpande2889 11 หลายเดือนก่อน

    Its the mother, the family, the stress of being an immigrant outsider, the low level of vitamin D, being a male(ppms is more common in males) and travel thats contributed to his progression i think.

  • @neilakili9268
    @neilakili9268 2 ปีที่แล้ว +6

    I found out I have MS in 2021 at the age of 35.

    • @OrphanRed
      @OrphanRed 2 ปีที่แล้ว

      Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).

    • @1life857
      @1life857 2 ปีที่แล้ว

      WHAT IS YOUR DIET LIKE? HAVE YOU THOUGHT ABOUT IT BEING A CONTRIBUTING FACTOR?

    • @TeeganPlayz_8903
      @TeeganPlayz_8903 3 หลายเดือนก่อน

      @@1life857CALM DOWN GOD ME WHAT MS HAS TO DO WITH DIET IT HAS UNKNOWN CAUSES

  • @alrightwithms845
    @alrightwithms845 ปีที่แล้ว +1

    Very brave - thanks for sharing 😊

  • @verily360
    @verily360 ปีที่แล้ว

    I have RA but before I was dx I had mono shop up in a blood test. Also I had become hyper sensitive to chemicals ex cleaning fluids and hair colour vapours etc

  • @OrphanRed
    @OrphanRed 2 ปีที่แล้ว +5

    Look into the newly found link between parasites and MS. You may find some relief from taking anti-parasitics (like fenbenzadole perhaps?).

    • @ogfight
      @ogfight 2 ปีที่แล้ว +2

      Perhaps Ivermectin too?

    • @1life857
      @1life857 2 ปีที่แล้ว +1

      @@ogfight BOTH HORRIBLE 'ADVICES'. YOU ARE NOT A DOCTOR, PLEASE STOP!

    • @realitateatm
      @realitateatm 2 หลายเดือนก่อน

      @@1life857my “doctors” are refusing to treat me, because my MRI shows no change since I was diagnosed, yet I experience many symptoms. These “doctors” only care about protecting themselves, not for the patient.

  • @timisaak6751
    @timisaak6751 ปีที่แล้ว

    You didn't check the rate in Canada

  • @tasidasilva7897
    @tasidasilva7897 ปีที่แล้ว +1

    wow we have the same last name! barely see any dasilvas

  • @annberlin5811
    @annberlin5811 2 ปีที่แล้ว +3

    There is link between celiac and ms

    • @marmarmar145
      @marmarmar145 2 ปีที่แล้ว

      th-cam.com/video/mEx4dAAmVCQ/w-d-xo.html

    • @1life857
      @1life857 2 ปีที่แล้ว

      DIET MUST PLAY A BIG ROLE IN MS AND CELIAC, ESPECIALLY THOSE WHO FOLLOW THE CULT CALLED VEGANISM!

  • @cathyburnside
    @cathyburnside 2 หลายเดือนก่อน +2

    No mention of vaccine injury .. the toxic foods, radiation wifi etc

  • @priyasingh-po5yr
    @priyasingh-po5yr 2 ปีที่แล้ว +1

    pls chk the below link from well known virologists on MS

  • @bendershome4discountorphan859
    @bendershome4discountorphan859 2 ปีที่แล้ว +2

    Should look at ancesteral trama famines

    • @marmarmar145
      @marmarmar145 2 ปีที่แล้ว

      th-cam.com/video/mEx4dAAmVCQ/w-d-xo.html

  • @khalidbelhaj7834
    @khalidbelhaj7834 2 ปีที่แล้ว +1

    Khalid 12

  • @valeriealv7503
    @valeriealv7503 ปีที่แล้ว

    Why do u have that kind of wheelchair

  • @parvinvaladkhani4036
    @parvinvaladkhani4036 ปีที่แล้ว

    خسته نباشيد

  • @texanleons
    @texanleons 2 ปีที่แล้ว +1

    pandemic

  • @1life857
    @1life857 2 ปีที่แล้ว

    DEAR JASON, I WATCHED THE WHOLE DOCUMENTARY AND I WANTED TO SUGGEST YOU LOOK INTO YOUR DIET. I DIDN'T SEE IT MENTIONED ON IT, NOT ONCE, BUT I TRULY BELIEVE THAT DIET HAS A LOT TO DO WITH MS. I'VE WATCHED COUNTLESS PEOPLE WHO HAVE BEEN DIAGNOSED WITH MS THAT FOLLOWED THE CULT OF VEGANISM, WHICH IS IN FACT, VERY DESTRUCTIVE TO YOUR HEALTH! I WISH YOU WELL, YOU ARE BRAVE!

    • @verily360
      @verily360 ปีที่แล้ว

      I'm sure he has always eaten healthily anyway. Do you know how many vegan youtubers have cancer? I'm shocked. Some of them ramp up the juicing thinking it will cure cancer...

  • @jeffbros9203
    @jeffbros9203 2 ปีที่แล้ว +3

    SIMPLE FACTS LIKE THIS PROVE ALL YOUR CHEMICAL LOBOTOMIES/VACCINATIONS ARE WORKING

    • @MA-zg2pz
      @MA-zg2pz 2 ปีที่แล้ว +6

      Did you watch the video at 22:00 onward where they address this? MS existed lonnng before vaccines ever did. There’s no proof they’re connected negatively. They said vaccines can reduce your risk of MS.

    • @jeffbros9203
      @jeffbros9203 2 ปีที่แล้ว

      @@MA-zg2pz thats a lie and so are you.not long from now you will be destroyed by the truth

    • @dyscea
      @dyscea 2 ปีที่แล้ว +2

      @@jeffbros9203 Except when we’re not.

    • @glormoparch5154
      @glormoparch5154 2 ปีที่แล้ว +3

      You're why he's stuck like that. Maybe we don't exist in a human run universe ..... Science tries to give him back autonomy but superstitious conspiracy take away. Try plague out in middle ages

    • @glormoparch5154
      @glormoparch5154 2 ปีที่แล้ว +3

      You fix him with your prayers or try silence

  • @anna-leighlondon8383
    @anna-leighlondon8383 ปีที่แล้ว +2

    Remember the importance of nutrition! 🥬🥦🥒🥕🍠🍅🍓🍒🍍🥑🥭🥥

    • @demoskunk
      @demoskunk ปีที่แล้ว +2

      It's not related to MS. I ate lots of fruits and veggies, but still developed MS.

    • @clouuu4206
      @clouuu4206 3 หลายเดือนก่อน

      ​@@demoskunkdo you know Matt Embry and Prof Dr. Terry Wahls