Answering Viewers Questions: Symptoms of Multiple Sclerosis [Part 2]
ฝัง
- เผยแพร่เมื่อ 7 ก.ย. 2024
- The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
**********************************************************
COMMENT with your thoughts and questions below! I look forward to reading and responding!
**********************************************************
SHARE this video: • Answering Viewers Ques...
SHARE Answering Viewers Questions about MS Symptoms Part 1: • Answering Viewers Ques...
***********************************************************
FOLLOW on Twitter: / aaronbostermd
FRIEND on Facebook: / aaronbostermd
SUBSCRIBE on TH-cam: / aaronbostermd
VISIT US on the web: bosterms.com/
VISIT us on web: BosterMS.com
***********************************************************
NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
![[Re:all TREASURE] EP.6 in 방콕ㅣ🚩 쩡캠의 방콕 투어 빵 마이 와이 👍](http://i.ytimg.com/vi/uyFw-nItA_s/mqdefault.jpg)
What questions about MS symptoms do you still have. Please share in the comments section below! #WeHaveMS #MakeMSBoring
Please talk about Spinal MS?
I have spinal lesions only. I have been tested for all other MS mimics and they are all negative.
My symptoms still are ED can't get hard enough for penetration some of the time, but yet I can still ejaculate. Thoughts Dr B
Can MS cause you to lose moisture in your body?
Dr B I have ñ9 med8càítion for my Ms I was on tysabr8 I am in thei bu6 I'm trying to get medication but it seems impossible, please help,
Are multiple, small, black holes within the Corpus Collosum (I hope I got that correct!) considered significant findings for MS? If so, what symptoms will damage to that area of the brain create? Thank-you!
I am socially isolated, because I catch little viruses that turn into huge infections/illnesses. I’ve really stepped up my game on Twitter, talking with other MSers from all over the world. It’s great to have those connections!
I'm so glad I found this channel. I wish you were my doctor!!
Swallowing - I avoid heavy starches bagels/biscuits. They have a tendency to stick. Eat slow. Do not rush. Taking meds with honey is my #1 tip.
TY for sharing!
Thank-you so much for the meds with honey tip! I think that will help me a great deal.
Thank you for this, at my first ever neuro appointment I was asked if I had swallowing difficulties. I said no thinking that I was just not being careful.
Hi! Dr Boster!!! I could never thank you enough!!! You are truly remarkable! I wish you were in Ocala FL so that I could be your patient. I still have many questions but I will only ask one this time... SENSORY OVERLOAD.... It is so extreme I can’t work... I can’t even talk on the phone, watch action movies or comedies and even listen to my favorite music and if I get overly happy it also causes brain overload and severe fatigue...
I also have Fibromyalgia and I am think that could be why my symptoms are more pronounced. I also have over 50++ brain lesions ALL over my brain and Global Brain Atrophy and several lesions in my cervical spine at C-2 to C-5
My sensory overload is so bad it causes extreme fatigue on top of the heavy fatigue I live with 24/7/365. I can not afford Provigil or Nuvigil and Adderall caused an awful sensory overload “crash”.
It would be awesome if you could talk about this topic... I limited contact with people I love because of this... even the interaction with them is too much... I live my an amazing man that understands and support me... I just want to be able to handle normal daily life... Thank you for all you do for all of us....
TY for the suggestion, I'll add it to my list!
I love this suggestion for a topic. It describes exactly how I feel when I walk into a grocery store (and other places, too). Specifically, when I walk in, it's like a sensory assault -- noise, bright colors, signs everywhere, people crisscrossing all around -- and I'm holding a list of things I have to find in the middle of the "mess." I just want to run away. Sometimes I've gone back to my car and spent a few minutes calming myself and trying to mentally prepare. Still, I'm anxious and just want OUT!! I'm so glad that so many stores are now offering delivery or curbside pickup (in the US). It's impossible to totally avoid, though. As much as I love the holiday season, the sensory overload is twice as bad. I'm mentally exhausted by the noise, colors... it's like I get tunnel vision and my brain shuts down. Everything all around is screaming for attention, and I hate to leave my house!!! Add the Ohio weather to the mix, and I'm done.
Aaron Boster MD You are amazing!!! I will be looking forward to it... I want a better quality of life... I even have to use earplugs when things get loud! I don’t go to the mall or to crowded places not even the movies because I also have light sensitivity so I am always wearing sunglasses... even at night indoors!!! Even when watching TV!!!
I love live music and concerts and stand up comedy and bowling... I have not been able to do any of that since my progression in May of 2015... I was diagnosed July of 2012...
I am only 43yrs old and I lost my career as a school counselor.... it was my life calling, my purpose... my passion, my reason for living... not being able to work or even socialize from someone who used to be a workaholic and ENERGETIC and looooove people and helping people and now I can’t do any of it....
I am truly lucky to have an amazing and understanding and supportive man by my side.... if you can explain WHY this is happening and HOW to best deal with it so I can have a little better quality of life I would greatly appreciate it!!! THANK YOU!!!!
Long distance hand shake Brother, thanks so much for your time and help truly~John
Howdy!
Greetings from Ireland again Dr B!!
Dealing the social isolation can almost be as bad as the initial diagnosis and sometimes worse. I know for me, many of my so called friends all walked away, perhaps they didn't want to be dealing with someone else's issues or maybe they didn't know what to say.
I do believe that part of the strategy that our MS Providers should be including in their over all treatment and assessment should be offering practical advise and contacts so that isolation doesn't become an issue or less of an issue. There is a Social MS Group in Cork City and they meet every month for dinner and chat and even a few drinks. Thing is, I had to find that out for myself. Social Isolation also feeds into the mental health of a person with MS and hence I really believe that the MS teams in hospitals should have a list of contacts to introduce you to others in the same situation, as I always believe, the only ones who understand MS are those living with it.
Your point is very valid Darragh. You've got me thinking about what can be done to address this MAJOR issue!
Thank you Dr B. It actually amazes me the number of people living with MS who are even afraid to tell others about it, sometimes afraid of been judged. I liken it to when I finally decided to come out as a Gay person. I was always afraid of what others might say or react and thankfully when I did finally come out, just earlier this year to my Mom, she embraced me with open arms.
When it comes to MS, there are so many myths out there. The biggest myth is that MS is terminal or that it will define you as a person. The fear of trying to explain all of this I believe is what perhaps prevents people from opening up.
I present a weekly radio show and I have never pulled back from discussing MS and indeed many other illnesses, particularly mental health and often the common denominator is they are very much invisible to others. I have been sharing your Vblogs with my own local Doctor and he in turn refers his students to your videos so that they in turn can learn how to normalize the conversation they will have with future patients. And for me, here lies the one of the answers, communication. OK, MS is a nasty monster but unlike monsters it can be tamed and we need to help people believe this. Let us speak to people in a way they can understand and through this will learn to master this illness and thus take back their own self confidence. That is just my opinion for what its worth. I would love to do an interview with you sometime.....
Howdy Darragh! Thank you SO much for sharing my vids. The idea that they may help train docs to communicate better means the world to me.
I would LOVE to do an interview with you. How can we make that happen? Can I call into your radio show? WhatsApp or Zoom maybe? That would be awesome!
I kinda wish you were my dr. Im having an awful time with drs 🙄 but your information is so helpful
Road trip to sunny Columbus, Ohio?!
Social isolation is very difficult! I found that our local library is a great resource. You can not only get out and look at what books and resources they have, but I check the activities they are having each month. The activities are free and usually last only 1-2 hours, perfect amount of time to get out, but not too long where it will wipe me out. Thanks for another great video 😊
very smart L W!
L W Hi..... yes this is so difficult.... and then when you have SENSORY OVERLOAD it forces you to stay ISOLATED... can’t even work... or volunteer... here is my story and a bit I just wrote to Dr Boster...
Aaron Boster MD You are amazing!!! I will be looking forward to it... I want a better quality of life... I even have to use earplugs when things get loud! I don’t go to the mall or to crowded places not even the movies because I also have light sensitivity so I am always wearing sunglasses... even at night indoors!!! Even when watching TV!!!
I love live music and concerts and stand up comedy and bowling... I have not been able to do any of that since my progression in May of 2015... I was diagnosed July of 2012...
I am only 43yrs old and I lost my career as a school counselor.... it was life calling my purpose... my passion my reason for living... not being able to work or even socialize from someone who used to be a workaholic and ENERGETIC and looooove people and helping people and now I can’t do any of it....
I am truly lucky to have an amazing and understanding and supportive man by my side.... if you can explain why this is happening and how to best deal with it so I can have a little better quality of life I would greatly appreciate it!!!
I definitely agree with the strategy of using sanctura for neurogenic bladder (larger molecule which does not cross the blood-brain barrier or cause cognitive symptoms). Other anticholinergic symptoms such as dry mouth can still occur. However, I have to admit that most of my patients did not notice much of a difference when switching from ditropan to santura (trospium)
In regards to social isolation, that is not an issue in Latin America... You're always surrounded by family and friends...hardly leave you alone. 😂 But hey, finding a balance is also of importance. I'm blessed, for sure. And this community only added more blessings as I've had the chance to learn more about MS and stop living frightened. Knowledge empowers us.😉
We love your participation in this village C Cabrera!
C Cabrera ¡Que bueno!
Whoa!! A doctor who does this face time with patients with MS?? I subbed, liked, and will follow, avidly!!! I've been ill for almost 20 years (probably PPMS). I think your channel will finally direct me correctly. THANK YOU!!
Thank You for your awesome channel. Newly diagnosed from Maryborough, Queensland, Australia.
It's my pleasure. TY for watching and for the nice comment!
Weather permitting (snow and ice in Cleveland, you know ) for socialization I alternate between the ymca for strengthening exercises and Peter B. Lewis for aquatic exercise and balance using paratransit. If weather is in the way, I follow my wife around like a puppy.
right on Doug!
In reply to tips and tricks to combat social isolation. Heres my experiences and possible options.
Here our health board are very much trying to combat social isolation. I attend a choir they are running and have been for years now. I've attended some of their art events ,hopefully more in the future. Were performing near Xmas. I don't know if other health boards run life long conditions things, but if they do go, it does help even if it is just a few hours a week.
I also go cycling on an adaptive trike most of the year round (winter is off limits). An hour outside on a trike side by side with friends or the person who runs it definitely helps a lot also. - our local gym offers this, it might be worth looking out for an all access to biking thing near you.
Volunteering at events that peek your interest too, but don't do too much. Volunteering roles often have much more ability to accommodate everything which helps tremendously if you need adaptions.
I helped at our local pride this year, I managed almost 4hours. I'm attending a convention this weekend and will be volunteering a few hours each day to welfare(security and first aid). Events are my favourite to work at, even if it's just ticketing at the front door.
I'd also say crafting, arts, photography is a good way to be social. You might be doing your own thing but if you do it outside you'll often get people asking and talking with you. And even in home you can post images of your work online. Talk with people who enjoy the same things. Etc.
Hope someone finds one of those ideas helpful.
TY for sharing!
About improving socialization, I would recommend learning a language. It works beautifully, take this from someone with social anxiety. Group classes are the best but even if it's only you and the teacher you still have to talk to this person for an hour or whatever the lesson lasts. Also youcan have your lessons at home if mobility is an issue. Although it's always better if you can get out of the house.
No questions on symptoms. Curious if there is anything going on in the world of MS analytics and predictive analysis of disease progression?
It's one thing to have MS, it's another to deal with the unknown that tomorrow may bring!
There several large databases and many have a goal of this kind of "big data" approach...but we're not there yet. MSPATHS attempts some of this type of analysis actually
Going to the gym and being around people helps my mood. Bonus is the exercise! However this only works right now because I’m ambulatory. I’ll have to have a plan B for the future.
As always thanks for the information! Can’t get it anywhere else.
#StrongerTogether
I get a random icy feeling in my feet and they are so hard to warm up and sometimes the opposite happens were they feel like they’re on fire
yuck!
Aaron Boster MD is Raynaud’s Phenomena know to happen in MS?
Hello there :)
I love your channel!! I’m so happy I found it. I am currently being tested for MS. I have had some issues for years ( not knowing my growing list of health issues were related ) eventually I had two herniated discs and had ACDF surgery. Post surgery other symptoms came about so I was sent back to a neurologist to run tests for MS. I passed the visual evoked potential test and the lumbar puncture. However I have 10 brain lesions and tested positive on the Western blot test for Lyme disease. I was then sent to a disease specialist who retested me with the Eliza test and I was .01 points away from being equivocal. So she felt I had a false positive Lyme test on the Western blot and sent me back to neurologist......
1 year later symptoms still pop up and so here I am today needing another MRI. The copay is ridiculous for an MRI and so I am waiting until after the holidays and we will go from there. So there is my quick intro..... now my question.
I read that any more than 2 brain lesions means it’s MS. ( I know I shouldn’t believe everything I read lol ) My neurologist is not convinced I have MS at this point. Soooo my question is what could possibly cause brain lesions if not MS and no history of head injury?
I am definitely more isolated because of Ms but I attend a group for women once a week so that helps me out tremendously
smart!
Hello doctor,my doctor said IAM stable after seeing my MRI but IAM getting worse specially after getting Limtrada.
Are lesions have anything to do with debilitating Physical deficiency?
I combat social isolation by reaching out and talking to a counselor .
The information that you provide is so beneficial. But how do we get our friends and family to educate themselves?
Do you find other autoimmune diseases, like hypothyroidism and IBS, are common in your patients? Beth from Omaha
yes. folks with MS are at increased risk to develop other autoimmune problems.
I asked this in the comment of your last video but thought I’d put it here too.
Question about steroid treatment for new symptoms:
I developed trigeminal neuralgia last month. My MS provider ordered an MRI, labs, and increased my tegratol and it helped. She didn’t see any contrast enhancement or lesions in my brain stem or obvious infections. She didn’t suggest any steroids or call this a “relapse”. Should something like this be considered a relapse and treated with steroids regardless of enhancement? Aren’t brainstem lesions difficult to see at times? Currently on Ocrevus.
good topic to discuss. I'll add this to my list.
I’m finding people are not understanding that I am not intentionally forgetting, somedays I ask the same questions over repeatedly because I don’t remember previously asking so I am needing repeating of answers, ie. “what time did you get up” but it’s scary to me. My children 18+21 think because I’m struggling in that particular region that I’m going to forget how to drive. That is not the issue. What can I say to them -professional and family-that is clearer?
"tremors" in the upper thoracic and cervical spine brought on by holding the head/neck in specific positions for a length of time. The tremors stop once position is moved, but then an aching/exhaustive feeling will last for a bit. This is new for me and i'm not a fan of it at all. Do you see this often?
I have new temple "very small leasions" was told by 2 neuro docs to to worry and they might even go away .. seems not right to me
Excellent information on Botox
Hey Dr B! I have a question. I know you’re a big fan of water. Thank You for your water challenge. It has helped me tremendously! I’ve also noticed how much worse I feel if for some reason I am slack a day. So here’s my question. With so many overlapping symptoms, do you think dehydration might be a contributing factor? Obviously, I am talking about a mild form of dehydration which doesn’t necessarily even cause a person to feel thirsty. From what I learned raising my wildchild, and what I know about MS and knowing my results with the water challenge and knowing cells shrink when water deficient, it kinda makes sense. Thanks!! (MSing It 4 Life 😉) 🤗❤️❤️
Howdy dr Boster, i stay în my home, because i have a fever 37,8,from urinar tract infecțions, MS causes this problem?, i have urinary retention
I hope your UTI clears up soon!
Hello Dr. B! Is ear ringing related to MS. I read an article that said yes, but a neuro told me it is not. Thanks!
I've got a lesion on the optic nerve and one ventricilar lesion on the brain. When does it go from just lesions to MS. Neuro says I'm one away?
here you go: th-cam.com/video/0csvVXatlFo/w-d-xo.html
@@AaronBosterMD Thanks 😊
Question; The information that is more beneficial than anything that I have witnessed. But how do we get our friend to get HQ
I am 30 years of age and was just diagnosed with MS. It really caught me off guard when I found out. I just started taking mayzent for my medication. Have you heard of mayzent? If so, do you know anything about it?
Yes I'm familiar with it. I have talked about it in a few of my prior live streams.
That time of the month seems to be worse with ms is that very common.
Question#2: my feet and legs do not work well in the early mornings. It hurts to walk. I suspect this is spacicity. Is there a reason why spacicity is worse after a night of sleep?
I have no issues with the heat .. but the cold makes my joints stiff.. I live in new England.. you think my DR will write me a letter saying I have to move to FL .. lol j/k !!!
I have been experiencing olfactory hypnosis for 3 weeks now (burning wood.) Is this an MS symptom? Can I find some relief or is this just one of those things we just have to live with?
Definitely discuss this with your provider Dana!
Aaron Boster MD (I’m patiently waiting for you.) I will talk to the interim one if it is important.
Dana castillo and Aaron boster this was a symptom in my first major episode, among many other bizarre symptoms. Is this common to have this with so many other symptoms please?
Also question i have would be all treatments that are remotely okay for pregnancy? I know of copaxone and some drs are okay with tysabri, but other ones that are being looked at during pregnancy and what drugs arent okay and why
here you go: th-cam.com/video/m9HXFLu2a1M/w-d-xo.html
If you have Brain lesions on MRI is it important to check spinal column as well with diagnosing?
Is there a treatment for cognitive problems , I know there are tricks to help with cognition , but are there studies or trials . My cognition is my worst symptom. Thank you Elaine in Kingman
Yes, there are trials demonstrating that Modafinil helps with cognition/attention in MS.
Does having a problem with ED after Lemtrada mean a person is getting worse disease wise? Asking for my FB group.
In terms of social isolation, I've definitely had problems with it but it's gotten much better. One of the websites I visit is www.meetup.com/ You can find local book clubs or groups for almost any interest or even just groups for meeting people to hang out with. You can start your own group, too, if you can't find one that fits. Also, for women looking for other women friends, there's this site: girlfriendsocial.com/ Thank goodness for the internet. It has its bad side, but it also connects us to support.
TY for sharing this with us! I wonder if you could do a video on your TH-cam channel about these online resources? Please?
❤️
#WeHaveMS
Can i make copaxone? Please ask me♥️♥️, fever 37,8, i make monural
Another question. I read something about a possible relation between increased monocytes and inflammation in MS. My monocytes percentage was elevated this last time checking and I looked at my past results and they have been trending elevated at 9-11% over the past year and a half (since my diagnosis). Is there any info regarding this or any relationship that you are aware of?
Can an MRI for Trigeminal Neuralgia miss finding MS? I suspect I have MS due to the many symptoms I have, and I have been diagnosed with TN although the MRI showed no compression.
I know I'm a couple days late but I tested positive for mog antibody have you had much experience to make a vid to speak on it or show me the link to a video you done
I have questions i really dont know what the heck i have going on but since november i have had muscle twitchin virtually every place that has a muscle. In february i had covid then started having issues with my heart ( first degree heart block) and my heart feels weak. Ive had a burning/ sharp pain through the right side of my chest that comes and goes and causes SOB i have been checked for clots and totally negative on that. I feel like my shoulders are weak and very easily injured. If i pick up something like a case of water it causes twitching and horrible aching throughout my chest and shoulders, extreme fatigue. I have had what almost feels like body aches from my neck into my head and occassional pins and needles in my feet. Muscle twitching has gotten and worse and so have cramps in my legs. It also sometimes feels like my eye is drooping but when i look its not nd have had tinnitus the past few weeks Im a 30 year old female with 4 kiddos. I dont even know what kind of dr to see this has all been getting progressively worse for 6 months
Hi Dok. I have a question about pain. My whole arm hurts even the fingers. Any tips how to deal with it?
Is there another reason that the MRI will show the same leision? I’ve heard migraines?
There are MANY different conditions that can all cause white spots on brain MRI. MS has a particular size, location and shape that we look for.
@@AaronBosterMD What does the total count of lesions indicate? For example, ~20 total with 2-3 illuminated in a recent scan (the first ever scan of the patient after only having first symptoms recently). And does the pattern of all spots or combination of certain areas say anything more about whether they are MS?
I’m not aware but can a video be done about naltrexone ldn therapy. Is it effective? I’m very interested in this topic.
adding it to my list!
@@AaronBosterMD still waiting! I'm finding it helpful, except for some weird dreams. 🙄
Is a neutral or "no response" to a Babinski test common?
I guess more portly medical need to be educated as well!
On the topic of social isolation, has anyone thought about how to combat it this holiday season?
For instance, tidying up your emails and reaching out to those who you have not made contact with for a while. Maybe send them a 'traditional' holiday greeting card.
Or volunteering or donating gifts to local charities.
Other options may include making plans for 2020 like starting a new job or holiday. Something that gets you excited and makes connections with 'new' people. And gives you something to celebrate this holiday season.
+Fiona Edwards please take a look at this: th-cam.com/video/D5SdzaIj4nc/w-d-xo.html
@@AaronBosterMD
Thanks Dr, Boster.
I have been 'offline" for a couple of months and just getting reconnected with this Global Village.
I see we have many new members and others, like me, need a refresher.
I am learning social isolation, like many MS symptoms, is invisible. "Honey your so active " Yeh! Define Active. For me, being active means being awake for more hours in the day than I am asleep and being able to leave the house to go for coffee or to the movies with friends. It is about being able to confidently explain to prospective employers that I have mobility issues and I am qualified for the job! Importantly, it is about being able to celebrate this holiday season without feeling socially isolated.
Thanks Again for this Channel and the work that you do.😊
Are there any highly effect DMT that don’t have a risk of PML? I’m due to start tysabri and even though it’s a low risk I’m afraid of PML so I wanted to know if there was a highly effective therapy without the risk
Considering cases that did NOT have prior tysabri, there is (as of 11/19) one case PML in Ocrevus and one case in lemtrada.
Can MS cause bipolar disorder?
no, not to my knowledge.