I was able to chat with Jeff via SRNA's peer connect program. He is a wonderful guy. It was super helpful to compare experiences of being invisibly impacted. Thanks Jeff.
Jeff, I just watched your story and I could not believe the parallel our TM experiences are! I, too, am 72, diagnosed with idiopathic TM in Aug. 2020. My initial paralysis was in my arms and hands and I continue to work on regaining strength because my triceps were damaged. My lesion ran the full length of the spinal cord, however my legs and urinary & bowel issues developed later over the next few days. I am now able to feed myself and have resumed activities of daily living. When you said people think you look normal again I can relate to that because they tell me that, too, but they don’t know what’s going on inside my body. I still have weakness and numbness on my right side of my body but that’s an improvement because my paralysis was bilateral for about 6 months and the left side is much stronger now. I have sensory issues with temperature which I guess will be permanent. I feel I am about 75% recovered but still working on trying to get back to 100%. We are TM warriors, Jeff. Thank you for sharing your story. It’s nice to know someone who knows personally what it’s like to have TM. Best wishes for you to continue your “can do” determination.
Dear Linda, Thank you for sharing your journey and kind words. SRNA has been a wonderful resource for information and connecting us and others. TM is a disease that can only be truly understood by people who suffer from it. I admire your attitude to work your way back to 100%. The harder you work, the better your recovery. You also will learn tricks to deal with life in a positive fashion like using your eyes to replace loss of feeling etc. I wish you continued healing and a life filled with joy, laughter and miles of adventures!
Hello John, I understand what you are saying. TM is not a case of one size fits all. Each of us has our own road to travel. My goal in posting my video was to say that no matter what your situation, no matter how much a person has been affected, it's important to stay positive, to use whatever tools you have left in your bag and USE them. My thoughts are with you and hope that your life can be rewarding and fulfilling.
Thank you Lorenzo for your feedback. I will not lie, it is not an easy road back and back is actually your new normal. The thing is that your new normal will reveal that there will be good, rewarding days ahead for you. Stay positive!!
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I was able to chat with Jeff via SRNA's peer connect program. He is a wonderful guy.
It was super helpful to compare experiences of being invisibly impacted. Thanks Jeff.
Jeff, I just watched your story and I could not believe the parallel our TM experiences are! I, too, am 72, diagnosed with idiopathic TM in Aug. 2020. My initial paralysis was in my arms and hands and I continue to work on regaining strength because my triceps were damaged. My lesion ran the full length of the spinal cord, however my legs and urinary & bowel issues developed later over the next few days. I am now able to feed myself and have resumed activities of daily living. When you said people think you look normal again I can relate to that because they tell me that, too, but they don’t know what’s going on inside my body. I still have weakness and numbness on my right side of my body but that’s an improvement because my paralysis was bilateral for about 6 months and the left side is much stronger now. I have sensory issues with temperature which I guess will be permanent. I feel I am about 75% recovered but still working on trying to get back to 100%. We are TM warriors, Jeff. Thank you for sharing your story. It’s nice to know someone who knows personally what it’s like to have TM. Best wishes for you to continue your “can do” determination.
Dear Linda, Thank you for sharing your journey and kind words. SRNA has been a wonderful resource for information and connecting us and others. TM is a disease that can only be truly understood by people who suffer from it.
I admire your attitude to work your way back to 100%. The harder you work, the better your recovery. You also will learn tricks to deal with life in a positive fashion like using your eyes to replace loss of feeling etc. I wish you continued healing and a life filled with joy, laughter and miles of adventures!
Thanks for posting Jeff. Your journey does highlight how different each of us with TM is from each other
Hello John, I understand what you are saying. TM is not a case of one size fits all. Each of us has our own road to travel. My goal in posting my video was to say that no matter what your situation, no matter how much a person has been affected, it's important to stay positive, to use whatever tools you have left in your bag and USE them. My thoughts are with you and hope that your life can be rewarding and fulfilling.
Your message gave me back a little bit of hope for my future. Thank you Jeff and good luck for everything
Thank you Lorenzo for your feedback. I will not lie, it is not an easy road back and back is actually your new normal. The thing is that your new normal will reveal that there will be good, rewarding days ahead for you. Stay positive!!