I’m literally feeling rubbish right now and this vlog has helped me feel less alone. I went to do just a few Physio exercises in the local pool this morning for my EDS & now I’m home I’m shattered with fatigue. I understand the frustration as I too don’t even feel like I’m overdoing it yet the fatigue just catches up like mad. Pain is starting to build too but thank you for your videos, they help. Hope your fatigue eases off a bit for you, Emma xx
That's so lovely to hear x I definitely know the feeling. Hope the pain eases and the physio starts to help. And you find some energy from somewhere tehe :P Spoons & Love to you Emma xxx
I'm still watching your stuff but your leg thing (pain and redness) could be crps or possibly something with EDS because crps is a connective tissue issue
I think its just an little quirk of my EDS I don't think it happens often enough for it to be CRPS and the description doesn't really match the feeling. Thank you for the suggestion though x
Chronically Jenni np yeah in my groups I was asking about it no one confirmed if it was an EDS thing but since it's a connective tissue you thing definitely can be related I believe. As for memory me personally I only read a page or a paragraph at a time which I know might not be ideal for you. But maybe also reading out loud? I was trying to get other tips for you but nothing too solid besides "Google it" lol I was like umm she's having issues reading and you expect her to read Google articles??
I’m literally feeling rubbish right now and this vlog has helped me feel less alone. I went to do just a few Physio exercises in the local pool this morning for my EDS & now I’m home I’m shattered with fatigue. I understand the frustration as I too don’t even feel like I’m overdoing it yet the fatigue just catches up like mad. Pain is starting to build too but thank you for your videos, they help. Hope your fatigue eases off a bit for you, Emma xx
That's so lovely to hear x I definitely know the feeling. Hope the pain eases and the physio starts to help. And you find some energy from somewhere tehe :P Spoons & Love to you Emma xxx
I’m sorry you had such a bad fatigue week, but so proud of you for pushing through and doing your work and having fun xx
Thank you Lovely x
I support you sooo much! :D
Thank you lovely I really appreciate it x
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I'm still watching your stuff but your leg thing (pain and redness) could be crps or possibly something with EDS because crps is a connective tissue issue
I think its just an little quirk of my EDS I don't think it happens often enough for it to be CRPS and the description doesn't really match the feeling. Thank you for the suggestion though x
Chronically Jenni np yeah in my groups I was asking about it no one confirmed if it was an EDS thing but since it's a connective tissue you thing definitely can be related I believe.
As for memory me personally I only read a page or a paragraph at a time which I know might not be ideal for you. But maybe also reading out loud? I was trying to get other tips for you but nothing too solid besides "Google it" lol I was like umm she's having issues reading and you expect her to read Google articles??
Haha :P thank you my normal trick is to find youtube videos which give me the same information but that hasn't worked so well for me this time :P x