Hey!! As a mother of three Aspergers Autism sons...I can relate and recommend you study about autism. LBD is similar in affect, by compromised damage versus DNA, and the struggles with temperament and lack of s/t memory, to that of Autistics!! Best wishes and blessings!!
Everyone helped his neighbor, And said to his sister and brother, “Be of good courage!” Isaiah 41:6 NKJV ❤💪🏽 You can do this...Because there is love in the midst ❤
I’m so proud that both of you are my parents ❤️ mom, you’re the most caring soul and dad’s got the best partner in life. Dad, you’re the best daddio in the whole world and I’ll always love you no matter what! I’m so proud to be your guys’ daughter. I hope you decide to document more of dads journey. So Pitt State Huh?
You should be proud... how brave to share something so personal, always watch your channel kelsie. It's so lovely they have people to turn to... yourself included, god bless them. Truly your mum is a angel I know personally how difficult watching a loved one decline is xx
My heart aches for you. My husband died 13 years ago at 66 years old from Lewy Body. I took care of him until the day he died and I HAVE NO REGRETS!!!!!!! Blessings to you!!
I just lost my bride of 50+ years on October 12th. She developed Parkinsons disease about 17 years ago. Unfortunately, 80% of those with PD develop Lewy Body dementia, which she had for the last 3 1/2 years. Most people think dementia is forgetting names and faces, but there’s a whole range of moods and character changes, which present huge challenges. As a spouse taking care of your loved one can have huge challenges and frustrations, realize your wife or husband doesn’t mean the things they may say that may be hurtful. That’s not who they are, that’s not in their heart. Rather, it’s the dementia that has created the defiance, accusations, and combativeness of this sick and twisted disease. I prayed everyday that the Lord would keep me healthy for her, and that He would give me the strength and endurance to complete the journey we faced, and He did just that. I commend this young couple for their willingness to go through this challenge together. Leaning on the Lord and their love for each other, will get them through this challenging journey. However, patience and understanding will be required to help curb the frustrations.
I love the fact that you included us, the world, into your lives and shared something so intimate and personnel with us. I still am crying because your husband knows he has you there for support and caring and he knows for now that he won't be alone. I am a doctor, OB/ Neonatology, with Doctors Without Borders and served 11 years in Africa ( all provinces ) and had symptoms of MS on and off while there. I talked to a lot of the doctors there and we all had the theory that I had MS. After a sabbatical in Israel, I talked with a cousin who is a specialist in autoimmune diseases and he felt I should be tested and try and narrow down the possibilities. While home I had to go to New York for budget meetings and the power went out that day. I had to walk down the stairs as I was having difficulties because of double vision and no color in the right eye ( optic neuritis ) I fell. I woke up in Beth Israel Hospital having stitches placed in scalp. Didn't know where I was and after 5 hours of testing from MRIs and spinal taps and blood work and neurological exams, it was determined I had MS. I went home and talked with the wife and we both wept. What are we going to do? My life's work will eventually take a turn and I am so perplexed. I am a believer in Yeshua ( Jesus Christ ) as a Messianic Jew and so I became so depressed. I went on another tour to Asia now and I literally tried to commit suicide. I was so ashamed to have to tell my wife because she is a believer too and I did not want her to know I was totally in despair. Eventually, on subsequent trips I received paperwork from her that she couldn't deal with a disease that would eventually cause me to lose function with dexterity and cognitive impairment, so she divorced me. After 28 years of marriage, she left. I was devastated. Now I am all alone and have no one to hold my hand through this disease and the turns in the road and end of life. I have GOD and HE will never leave me nor forsake me. But we are physical and need physical touch and beings to be with. So I pray every day that HE send someone to me to be a part of the journey. I am so happy you shared your story and to see you guys laugh and share the fun times together. But I know it isn't all roses and smiles especially as he progresses with the disease. Especially for you now a caregiver as well as a wife. But my hat is off to you for staying the wave and riding out the storm so to speak and giving your husband the very fact of having someone close and caring to make life a little simpler and happy for both. Thank you so much for your story. Bless you and Shalom- Dr. Bodhi Mark Prinz.
Many moons ago Jason was my commander! Im sorry you and your family are going through this challenge. I wish you and your family well and will be praying for your family as you go through this storm! You are very brave! As you learn about the condition, Keep documenting and help others who may be experiencing the same type of symptoms!
Im 36 & have acute dementia my IQ is 172....It's hard to watch myself deteriorate but it's God's plan so I can't and refuse to complain....God bless your family
He (still) has a good sense of humor which will get you through anything and he is obviously quite with it. Thank you for your service and good for you for your bravery here - true American heroes.
Thank you for being a NICU nurse. You are one of God’s angels on earth. I am sorry that you and your husband are having to walk this difficult journey.
I lost my sweet sister to this horrid disease. Prayers are going up for you and your husband. My heart is breaking for you while watching this. May GOD be your strength and fortress as you go through this. GOD BLESS YOU!!
You two are amazing. I took care of my grandma and it was the hardest thing I’ve ever been through. Caregivers need to take care of themselves as well. My grandma been gone 20 yrs and I’m still tired. But I’d do it again even when she got so mean. It’s a heartbreaking disease. ❤️
I would very much like you to continue this documentation. My mother has entered dementia and she feels so frustrated and humiliated. We hurt for her, and are so frustrated ourselves. We feel very unequipped for helping her through this. Thank you, Jason, for being willing to share your Journey with the viewing public. I realize this is an intensly personal matter. You're very gracious and brave to be willing to help others with this.
Thank you! My husband had 2 strokes 3 months ago and is exhibiting some of what you have mentioned. He is 71 and I am 70. "I can do all things through Him who strengthens me". Will keep you both in mind and heart!!🤗
Jason, you are an inspiration to all of us who love and care for people who are afflicted with dementia. Thank you for sharing your story. Remember you are ALWAYS loved.
Thank you for sharing your story. My husband is a 38-year-old combat veteran with similar issues, and also a crazy-high IQ! So much of what you are sharing resonates with us. We appreciate the grace, love, and empathy - and the sense of humor! - with which your share your story. We are coming to terms with how to live with this now, after my husband’s head injuries, and you guys are a great example. Thank you - you help us to know we are not alone.
I am so sorry to hear this...you have me in tears,. You are so brave, open, honest and have so much love in your heart. Thank you to you both for sharing this! And thank you, Jason for your service!
A big thank you to Jason from all of us for being so brave and serving our country. Who knows where we would be without service members like Jason willing to sacrifice for our country.🦋🌈
My mom has dementia which seems to be progressing . I see the person she was and find understanding of what her life has become . Always take heart that the love we share can get us through anything .
What a beautiful couple, inside and out! Thank-you for sharing your experience with social media. I know it's going to be a fight but the VA should award benefits to financially support you.
Your video is beautiful and so very sad. I'm so sorry about your struggles. My heart is with you. I am 40 and a single momma of 4 amazing children. I also have dementia. It's so tragic isn't it.. heartbreaking and cruel really. I try my hardest to focus on the positives and always keep my sense of humor. You're a wonderful couple and I pray for so much healing and blessings for you. Thank you for sharing your story. ❤
Bless you both. Two years ago we got the diagnosis that our mom has vascular dementia. It is so hard watching your loved one decline. Thank you so much for this video and I would love to see more. Watching this has helped me more than I can express. Thank you so much and God bless you and your family.
I've never heard of this type of dementia..I'm grateful to you for sharing your experiences..it teaches people, however difficult it is for you guys. Bless you and your family xx
Thank you for being so strong and sharing. I had to share this with my co-worker - his dad lost his battle with Dewy Body Dementia last week. Thank you and may your faith get you both through this journey.
Thank you for being so brave, open and honest. Chronic disease is very tough. My ex husband has MS and it has sadly I taken so much away from all of us. Good luck and take care
My dad just died last week from Parkinson’s and Dementia, the journey was the same as yours. He was 60 years old when diagnosed with PD and died at 67. The dementia was just so aggressive, he became nonverbal in just 2 years after being diagnosed with the dementia. My mom and I took care of him to the very end. I miss him so much. I can’t talk about my dad and his disease without breaking down and crying, even when he was alive.😭😢💔
I’m new to your channel so I’m just now seeing this video. I totally feel for you. My husband was diagnosed with MSA (Multiple System Atrophy) at the age of 50. I had to leave my job to become his full time caregiver. It wasn’t easy. Sadly he passed away 6 years ago at the age of 55. I know its a completely different disease but God Bless you both. Thank you so much for sharing your journey. I know it will be helpful to you. Just remember you are both very strong and courageous. Keep your faith. Prayers for you. ❤️
Oh, Leslie. I am so sorry for this diagnosis and the hard times you are all enduring. I’m proud of you for sharing and you are both so brave. Stay strong and do your very best. Mistakes will happen and that is okay. Please take time for yourself and be sure to talk to people. It will help.
I worked in memory care for many many years (9+ years). I would not trade those years for anything. I am only at 2:23 and already tearing up with you. Your love and care is amazing. I am so glad that your husband has you for support. Too often people with dementia just get left in facilities. You be a hot mess, let those tears come and go. And who cares if people don't like how you broke the news? You and your husband seem to have made the best choice you could and that was best for you two. Neither of you need the extra stress of telling each individual person in person. You do you. I can already tell you will be a great advocate for your husband. Ps. So glad I found you channel today! (Thanksgiving 2020 in the U.S.).
Just found your channel. Our Mom was diagnosed a couple of years ago but I can look back and think of signs at least 6 years back. The sleep issues, tremors, leaving the stove on... Yesterday was a good day, last night was NOT good. One sister now lives with them and other sister and myself live in same neighborhood. Takes a village to raise a child. Same for dementia.
You are so brave. I am proud of you for sharing your story. Thank you for your service and for your willingness time still serve those of us that are facing this horrible illness with LBD. Many prayers and love your way!
God bless you both! I held my father as he died from DLB three nights ago. We had the best neurologist in the US but he couldn’t outrun it. I’m so sorry for you. This disease is ALS meets Alzheimer’s with a touch of Schizophrenia. But it can be managed for some time. Start Carbidopa Levodopa as soon as possible for the Parkinsonism symptoms that will occur. He will freeze, blood pressure won’t regulate and standing/walking will become difficult. These Parkinson’s drugs will help! Delusions will get bad (usually they will include you as another woman or your house as an alternate)...Capgras Syndrome. It’s normal and benign. Seroquel will help at that time. Do NOT go with Nuplazid. If you have questions I’d love to help. I do HR so it’s my nature and my Dad was a GOOD Police Officer. Rlee76@outlook.com if you need more info. M rooting for you both and your whole family. For what it’s worth, my Dad passed peacefully...nothing like what I’ve read. Morphine, oxygen and Ativan are the winning combo. Seriously wishing you 20+ years of life.
This has touched my heart ❤️ so much I too am my husband’s care Giver we have been married for 42 years he was diagnosed with Alzheimer’s and vascular dementia in june 2020 and life is certainly not the same but different , I gave up my job to take care of him , and like you I am taking it one day at a time . We can do this 💪🏻 xxx
My uncle had an accident in Thailand. He, as well as lots of other injuries, had an undetected head injury. He also had lewy body dementia. My heart goes out to you. X
I love decorating and I have patients w/L.B. so please keep going with this. Your gifts are blessings as you know, but I hope you can get into a support group for caregivers. People like us tend to GIVE so much but to the point of pure exhaustion.
So sorry to hear this. LBD is especially nasty because of all the fluctuations. You spend your life on a roller coaster. I can highly recommend Pat Snyder (LBD specific) and Teepa Snow (all dementias) videos. There will come a point where you feel like you're going stark raving mad and are totally alone. Theses forums really help. Wishing you the best.
I took care of my Dad until his death. He was very appreciative for his favorite foods. He thot I was 16 (I was 60) so I called him Daddio as I did then and he called me his darling daughter as he did. We had fun. I hid the guns. He was like a 3 year old. I got a lady to. Come in n give him a shower and do his clothes. He was seeing animals in the house and thot I had parties each night when he was in bed. God bless all of us.
My sister died. A year ago of LBD. You need to understand that Jason is totally overwhelmed with life. I would not recommend going overseas. On a flight he may lose control of his behavior and it could cause a real problem. You cannot control his actions as it progresses. He might be fine and switch on a dime. The throat growling is neurological. His neurological system is under attack and it will more and more short circuit which causes odd behaviors which includes noises. He will progress to visual hallucinations and begin to see them as real and he will react. If he is out in public the police will get involved so you have to be careful. Also he will hide things from you eventually because his brain is trying to survive. He will hide checks or a credit card etc. He does this because he is protecting himself and he may order things without even realizing he is doing it. You need to put buzzers mats on the floor of bed so you know when he gets up. You need to take knobs off the stove and control locks on door that he cannot work. He will actually be happier in a memory place because he will feel safer and he will know you are safer. he should not drive...he seems to be able to but will not see red lights or make good decisions. You have to live as though all the days are the bad ones because you never know. You cannot continue to pretend his days will be good. You must be prepared.
I had to go back and watch your journey from the beginning. First, Jason thank you for your service. I appreciate all our men and women who serve in the military. I am very thankful for our freedom because of all who are and have served, so thank you!♥️ My husband is retired army with 60% disability from injuries sustained during his service. Nothing like what you both are going through. Know God has now laid you on my heart to pray for you, to be an intercessor on your behalf. I can’t imagine or even can begin to relate with what you are going through but God can and does and will walk every step with you. Thinking of you both, you are amazing people, good people! Love and prayers always!
Nothing but Blessings and prayers coming your way🥰 Shonda and I were both nurses then I changed to radiology after 20 years... and both started out as CNAs....we TOTALLY understand. We salute your bravery and courage and will humbly go along this journey and support you two through your videos❤️
Bless your family. I can only imagine what your husband is feeling. You and your children have a hard road to follow. May the God of Love and Compassion wrap his arms around you all. You all are in my prayers.🙏🏻💜
It is so good that your husband realizes what is going on and can talk about it. My husband thinks there is nothing wrong with him and that the doctors are wrong.
Ella Williams Jason use to be like that, but then it became way to obvious! At first I would point out what he was doing. Sometimes he would hate that, but now he appreciates it. I’m so sorry you are going through this! Hugs 🤗
"If i could tell the world just one thing, it would be... that we're all ok. And not to worry, because worry is wasteful and useless in times like these. I won't be made useless. I won't be idled with despair. I'll gather myself around my faith, as it's the light that darkness most fears."
Been watching your channel today about decorating and came across this beautiful video. It takes a strong partner to keep life going as normal as possible. There is so much love, admiration between the two of you. My hubby helps me with my MS. We keep it real but find humor in everyday situations. It is comforting to know he is there for me.Thank you to your husband for his service. Blessings on you both.
I’m not sure why this was on my newsfeed but watched and fell in love with you both. Subscribed. You are a beautiful couple and you were put together for a reason. God bless the both of you.
Thank you so much for sharing your heart, your story and your life with us. You two have each other and the love between you is admirable. Prayers to both of you and many blessings on this journey!
Your story so touched my heart! Thank you for sharing your story with the world. I just stopped by to encourage you to stay strong and know that Jesus Christ truly loves you, Jason and your entire family! My prayers go up for you and Jason!
That was amazing! I cried, I laughed, I prayed. I cannot imagine what you guys are going through. My mother was diagnosed with early onset Alzheimer’s at 50. She lived with it for 10 years. It’s a 14 year old I could not even begin to understand why she was the way she was. Now, I have worked with people with dementia for the past 16 years. Some young mostly older. I hope your journey continues to be smooth. Thanks so much for sharing your journey
Love you guys so much! Such a blessing to have you in our lives. SO many good memories. You guys have always been there for me and we are here for you!!
I happened across this by accident & I'm so very glad I did. You will probably never know how many strangers you have helped. A dearly loved family member of mine had a TBI 15 years ago. He recovered enough to continue with his life as it was before with only some minor deficits, or so we thought.Over the last 2-3 years, we have seen a lot of cognitive decline, especially in the last 6 months. Sound familiar? His neurologist diagnosed him with LBD just 2 months ago. Thank you, thank you, thank you for sharing this with us. I'll come back later & share the things we have seen that match your experiences. You are not alone. Just seeing how much love there is between you is good for my soul. ❤❤❤
It's comments like this, that make me so happy we decided to film this! It's just crazy what similar situations we are all in. I would love to hear how your journey is going and I'm always here if you need someone to talk to! Thank you for sharing with me. Sending big hugs! 💜
Well you have had me bawling and laughing ! My heart just aches for you both, such a horrible thing to face at such a young age. You two seem to be strong and are facing this together, I pray for Gods guidance, strength, courage and peace for each of you and your family !!! Blessings
My thoughts and prayers are with you all as you continue down this uncertain road. I've known Jason for a lifetime, school and my sister married in to the Weiser family. My heart breaks for you but I admire your choice to share the journey.
Oh Hunny. My kids lost their grandma to LBD this past fall.she was 59 years young. It's a sinister thing,and you're an angel. I hope you feel surrounded by love and support as time passes. Thank you for sharing. I wish you the very best in the time you've got together.
I had the pleasure of meeting Jason some number of years ago through a mutual friend. He was and is and amazing guy, and he is so very, very lucky to have you by his side on this journey. My mother has dementia, and I'm slowly losing her. Having watched family members deal with cancer, heart disease, etc, I just think this is absolutely the cruelest disease. I wish you both all the happiness you can gather in the coming months and years.
Hats off to you guys for sharing your story. You are the most amazing couple. You guys are always there for all your family and friends even though you are going through this nightmare. We will remain on this journey with you and always try to be there for you! We love you, Jason and Leslie!
It takes a very special person to care for others. Care for them with empathy & compassion. I've worked as a caregiver for 25 years but they hardest "job" emotionally was caring for my husband til he died. God bless!
You are a beautiful soul and Jason is lucky to have you by his side and he will always be thankful for that even on days when he can't make sense of the world .The love between you is obvious and such a special thing . Blessings to you Jason and your family. Yours in friendship . Jan UK
Leslie, I am so sorry for this diagnosis. I loved seeing Jason in your video. Do not regret this decision on publishing this one it is good for all of us to not only see what you face in your day to day but also like you said that it may help someone that might be going through similar circumstances. I pray that your channel takes off at a rapid pace and gives you what you need to be able to be together full time. I know that God's plans are higher than our plans so I can't wait to see what He does for you. God bless you both. And Jason has given a new name to the 'bell' -"Hit the ring-a-ding-ding" that made me laugh!
Thank you so much! This comment made me smile :) I'm also curious what God has in store for us? I trust him with my whole heart and know he is walking this path with us. Thank you for your support, it's truly appreciated!
No one so far has committed on the meanness. The name calling, the swearing, the destroying stuff, the fighting against your helping them. It's hard night after night even day after day.
Unfortunately, swallowing problems can happen with lewy body dementia ,parkinsons ( my father in law had it) to the point that all his liquids had to be thickened. You both did such an excellent job in describing everything. All the best to you both
Anyone struggling with dementia or other brain injury- make a card that you can flash to servers etc that briefly explains the behaviour of your loved one. Saves embarrassment all round, so you can still be out and about.
Thank you for being so brave and putting your story out there! I hope you have a wonderful trip overseas and enjoy living in the day. I’ll be praying for strength for you and your family ❤️
My prayers for your husband and you. God be with you both. It is a hard journey, I know. My father had Alzheimer’s and passed away in 2017, having been one of his caregivers. Even when he lost his voice, I continued to be his voice. One of the last verbal sayings, was “God bless you, I love you.”
Incredibly brave and open to share your diagnosis and fears with us. My husband has Akinetic Parkinson’s disease and as he progresses in his illness my fears for him and myself escalate. Michael J. Fox describes it this way “you know that you are going to be hit by a bus, but you don’t know when it will happen or what the damage will be.” Fear can immobilize us if we sit in it. So live your life, make those adjustments you have to make. That’s all I know to do. God bless both o you.
Thank you. That was very interesting. My friend was diagnosed with that last year, but I’m not around her often enough (especially with COVID - I’m 72 and live alone, so I have been reluctant to venture to her son’s house till a few months ago) to see changes. Learning from you might help me be more empathetic. 😷. Goodness, I didn’t realize how long ago this one was posted. I will look for your newer ones.
I am sorry you are going through this! My husband has an incurable muscle disease, and these things have their challenges. We (caregivers) are the unsung heros of these insidious diseases. God Bless you both on this difficult journey!
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You never know what someone is going through. Be kind always. ♥️
Hey!! As a mother of three Aspergers Autism sons...I can relate and recommend you study about autism. LBD is similar in affect, by compromised damage versus DNA, and the struggles with temperament and lack of s/t memory, to that of Autistics!! Best wishes and blessings!!
❤
Everyone helped his neighbor, And said to his sister and brother, “Be of good courage!”
Isaiah 41:6 NKJV
❤💪🏽 You can do this...Because there is love in the midst ❤
Kindness and compassion is the best medicine
@@nicolarollinson4381 ui
PEOPLE! BE KIND WITH THIS WOMAN...PLEASE...SHE HAS A LOT TO DEAL WITH ....THAT MAN WITH THAT LBD IS THE LOVE OF HER LIFE.
I’m so proud that both of you are my parents ❤️ mom, you’re the most caring soul and dad’s got the best partner in life. Dad, you’re the best daddio in the whole world and I’ll always love you no matter what! I’m so proud to be your guys’ daughter. I hope you decide to document more of dads journey. So Pitt State Huh?
You should be proud... how brave to share something so personal, always watch your channel kelsie. It's so lovely they have people to turn to... yourself included, god bless them. Truly your mum is a angel I know personally how difficult watching a loved one decline is xx
💜❤💚🔥🧡
Gold
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Start living your life. Both of you,
My heart aches for you. My husband died 13 years ago at 66 years old from Lewy Body. I took care of him until the day he died and I HAVE NO REGRETS!!!!!!! Blessings to you!!
May i ask how long he lived after diagnosis? My ex, whom I share 2 young kids with, was just diagnosed
I just lost my bride of 50+ years on October 12th. She developed Parkinsons disease about 17 years ago. Unfortunately, 80% of those with PD develop Lewy Body dementia, which she had for the last 3 1/2 years.
Most people think dementia is forgetting names and faces, but there’s a whole range of moods and character changes, which present huge challenges.
As a spouse taking care of your loved one can have huge challenges and frustrations, realize your wife or husband doesn’t mean the things they may say that may be hurtful. That’s not who they are, that’s not in their heart. Rather, it’s the dementia that has created the defiance, accusations, and combativeness of this sick and twisted disease.
I prayed everyday that the Lord would keep me healthy for her, and that He would give me the strength and endurance to complete the journey we faced, and He did just that.
I commend this young couple for their willingness to go through this challenge together. Leaning on the Lord and their love for each other, will get them through this challenging journey. However, patience and understanding will be required to help curb the frustrations.
I love the fact that you included us, the world, into your lives and shared something so intimate
and personnel with us. I still am crying because your husband knows he has you there for support and caring and he knows for now that he won't be alone. I am a doctor, OB/ Neonatology, with Doctors Without Borders and served 11 years in Africa ( all provinces ) and had symptoms of MS on and off while there. I talked to a lot of the doctors there and we all had the theory that I had MS. After a sabbatical in Israel, I talked with a cousin who is a specialist in autoimmune diseases and he felt I should be tested and try and narrow down the possibilities. While home I had to go to New York for budget meetings and the power went out that day. I had to walk down the stairs as I was having difficulties because of double vision and no color in the right eye ( optic neuritis ) I fell. I woke up in Beth Israel Hospital having stitches placed in scalp. Didn't know where I was and after 5 hours of testing from MRIs and spinal taps and blood work and neurological exams, it was determined I had MS. I went home and talked with the wife and we both wept. What are we going to do? My life's work will eventually take a turn and I am so perplexed. I am a believer in Yeshua ( Jesus Christ ) as a Messianic Jew and so I became so depressed. I went on another tour to Asia now and I literally tried to commit suicide. I was so ashamed to have to tell my wife because she is a believer too and I did not want her to know I was totally in despair. Eventually, on subsequent trips I received paperwork from her that she couldn't deal with a disease that would eventually cause me to lose function with dexterity and cognitive impairment, so she divorced me. After 28 years of marriage, she left. I was devastated. Now I am all alone and have no one to hold my hand through this disease and the turns in the road and end of life. I have GOD and HE will never leave me nor forsake me. But we are physical and need physical touch and beings to be with. So I pray every day that HE send someone to me to be a part of the journey. I am so happy you shared your story and to see you guys laugh and share the fun times together. But I know it isn't all roses and smiles especially as he progresses with the disease. Especially for you now a caregiver as well as a wife. But my hat is off to you for staying the wave and riding out the storm so to speak and giving your husband the very fact of having someone close and caring to make life a little simpler and happy for both. Thank you so much for your story. Bless you and Shalom- Dr. Bodhi Mark Prinz.
Many moons ago Jason was my commander! Im sorry you and your family are going through this challenge. I wish you and your family well and will be praying for your family as you go through this storm! You are very brave! As you learn about the condition, Keep documenting and help others who may be experiencing the same type of symptoms!
Im 36 & have acute dementia my IQ is 172....It's hard to watch myself deteriorate but it's God's plan so I can't and refuse to complain....God bless your family
Praying for comfort, strength, patience, and healing in Jesus name! Amen!
He (still) has a good sense of humor which will get you through anything and he is obviously quite with it. Thank you for your service and good for you for your bravery here - true American heroes.
Thank you for being a NICU nurse. You are one of God’s angels on earth. I am sorry that you and your husband are having to walk this difficult journey.
He’s brilliant. More of HIM.
He's pretty great!!! Thanks for watching! 😊💜
What a sweet man and sweet couple. His intelligence is still evident and his sense of humour. Will be praying for you. Just subscribed. ❤️🇨🇦
I lost my sweet sister to this horrid disease. Prayers are going up for you and your husband. My heart is breaking for you while watching this. May GOD be your strength and fortress as you go through this. GOD BLESS YOU!!
You two are amazing. I took care of my grandma and it was the hardest thing I’ve ever been through. Caregivers need to take care of themselves as well. My grandma been gone 20 yrs and I’m still tired. But I’d do it again even when she got so mean. It’s a heartbreaking disease. ❤️
I would very much like you to continue this documentation. My mother has entered dementia and she feels so frustrated and humiliated. We hurt for her, and are so frustrated ourselves. We feel very unequipped for helping her through this. Thank you, Jason, for being willing to share your Journey with the viewing public. I realize this is an intensly personal matter. You're very gracious and brave to be willing to help others with this.
I'm a retired nurse. Love your gentle, sense of humor. God Bless you. I will keep you in my prayers.
Thank you! My husband had 2 strokes 3 months ago and is exhibiting some of what you have mentioned. He is 71 and I am 70. "I can do all things through Him who strengthens me". Will keep you both in mind and heart!!🤗
Jason, you are an inspiration to all of us who love and care for people who are afflicted with dementia. Thank you for sharing your story. Remember you are ALWAYS loved.
Thank you for sharing your story. My husband is a 38-year-old combat veteran with similar issues, and also a crazy-high IQ! So
much of what you are sharing resonates with us. We appreciate the grace, love, and empathy - and the sense of humor! - with which your share your story. We are coming to terms with how to live with this now, after my husband’s head injuries, and you guys are a great example. Thank you - you help us to know we are not alone.
I am so sorry to hear this...you have me in tears,. You are so brave, open, honest and have so much love in your heart. Thank you to you both for sharing this! And thank you, Jason for your service!
A big thank you to Jason from all of us for being so brave and serving our country. Who knows where we would be without service members like Jason willing to sacrifice for our country.🦋🌈
My mom has dementia which seems to be progressing . I see the person she was and find understanding of what her life has become . Always take heart that the love we share can get us through anything .
Empathy can also be a curse in life. I wish that I didn't feel other people's emotions as much.
What a beautiful couple, inside and out! Thank-you for sharing your experience with social media. I know it's going to be a fight but the VA should award benefits to financially support you.
I feel like this woman works full time, double shifts with little to no pay. What an angel she is to take care of her husband. ❤️ 17:03
You touch my heart, you are true warriors. Blessings to your beautiful souls.
I can feel the pain in your struggle. He is lucky you love him so much.
Your video is beautiful and so very sad. I'm so sorry about your struggles. My heart is with you. I am 40 and a single momma of 4 amazing children. I also have dementia. It's so tragic isn't it.. heartbreaking and cruel really.
I try my hardest to focus on the positives and always keep my sense of humor.
You're a wonderful couple and I pray for so much healing and blessings for you.
Thank you for sharing your story. ❤
Lost my husband three yrs ago, he fought but lost. I went from wife into caregiver... It's very difficult. God Bless you
Bless you both. Two years ago we got the diagnosis that our mom has vascular dementia. It is so hard watching your loved one decline. Thank you so much for this video and I would love to see more. Watching this has helped me more than I can express. Thank you so much and God bless you and your family.
Thank you, you don't know how many of us are encouraged and getting renewed hope from this♥
I've never heard of this type of dementia..I'm grateful to you for sharing your experiences..it teaches people, however difficult it is for you guys. Bless you and your family xx
Thank you for being so strong and sharing. I had to share this with my co-worker - his dad lost his battle with Dewy Body Dementia last week. Thank you and may your faith get you both through this journey.
Thank you so much for watching!
It takes compassion for others and courage to share your journey. Thank you.
Thank you for being so brave, open and honest. Chronic disease is very tough. My ex husband has MS and it has sadly I taken so much away from all of us. Good luck and take care
My dad just died last week from Parkinson’s and Dementia, the journey was the same as yours. He was 60 years old when diagnosed with PD and died at 67. The dementia was just so aggressive, he became nonverbal in just 2 years after being diagnosed with the dementia. My mom and I took care of him to the very end. I miss him so much. I can’t talk about my dad and his disease without breaking down and crying, even when he was alive.😭😢💔
I’m new to your channel so I’m just now seeing this video. I totally feel for you. My husband was diagnosed with MSA (Multiple System Atrophy) at the age of 50. I had to leave my job to become his full time caregiver. It wasn’t easy. Sadly he passed away 6 years ago at the age of 55. I know its a completely different disease but God Bless you both. Thank you so much for sharing your journey. I know it will be helpful to you. Just remember you are both very strong and courageous. Keep your faith. Prayers for you. ❤️
I"M so sorry to hear about your husband. Thank you for sharing with me. Thank you for the prayers, we really appreciate it! Welcome to my channel💜
Oh, Leslie. I am so sorry for this diagnosis and the hard times you are all enduring. I’m proud of you for sharing and you are both so brave. Stay strong and do your very best. Mistakes will happen and that is okay. Please take time for yourself and be sure to talk to people. It will help.
Thank you for your honesty and kindness! My mom was recently diagnosed with LBD. She's 73. It was a big shock for all in the family.
I’m so sorry to hear about your Mom! Sending you prayers! ❤️🙏🏼
Jason has the best personality
I worked in memory care for many many years (9+ years). I would not trade those years for anything. I am only at 2:23 and already tearing up with you. Your love and care is amazing. I am so glad that your husband has you for support. Too often people with dementia just get left in facilities. You be a hot mess, let those tears come and go. And who cares if people don't like how you broke the news? You and your husband seem to have made the best choice you could and that was best for you two. Neither of you need the extra stress of telling each individual person in person. You do you. I can already tell you will be a great advocate for your husband.
Ps. So glad I found you channel today! (Thanksgiving 2020 in the U.S.).
Oh.... Listen, you're very brave for telling us, and it's ok to feel sad. I hope you're both doing okay. Lots of love.
You’re beautiful & classy! Thanks for sharing something so personal. The love you have radiates thru the screen.
Just found your channel. Our Mom was diagnosed a couple of years ago but I can look back and think of signs at least 6 years back. The sleep issues, tremors, leaving the stove on... Yesterday was a good day, last night was NOT good. One sister now lives with them and other sister and myself live in same neighborhood. Takes a village to raise a child. Same for dementia.
You are so brave. I am proud of you for sharing your story. Thank you for your service and for your willingness time still serve those of us that are facing this horrible illness with LBD. Many prayers and love your way!
God bless you both! I held my father as he died from DLB three nights ago. We had the best neurologist in the US but he couldn’t outrun it. I’m so sorry for you. This disease is ALS meets Alzheimer’s with a touch of Schizophrenia. But it can be managed for some time. Start Carbidopa Levodopa as soon as possible for the Parkinsonism symptoms that will occur. He will freeze, blood pressure won’t regulate and standing/walking will become difficult. These Parkinson’s drugs will help! Delusions will get bad (usually they will include you as another woman or your house as an alternate)...Capgras Syndrome. It’s normal and benign. Seroquel will help at that time. Do NOT go with Nuplazid. If you have questions I’d love to help. I do HR so it’s my nature and my Dad was a GOOD Police Officer. Rlee76@outlook.com if you need more info. M rooting for you both and your whole family. For what it’s worth, my Dad passed peacefully...nothing like what I’ve read. Morphine, oxygen and Ativan are the winning combo. Seriously wishing you 20+ years of life.
Thank you so much for the wealth of information you provided! We truly appreciate it! 💜
This has touched my heart ❤️ so much I too am my husband’s care
Giver we have been married for 42 years he was diagnosed with Alzheimer’s and vascular dementia in june 2020 and life is certainly not the same but different , I gave up my job to take care of him , and like you I am taking it one day at a time . We can do this 💪🏻 xxx
Both of your spirits and souls are lovely. Sending hugs. Never give up hope. ♥️
My uncle had an accident in Thailand. He, as well as lots of other injuries, had an undetected head injury. He also had lewy body dementia. My heart goes out to you. X
I"m so sorry to hear about your uncle. Thank you for sharing that with me. I appreciate your kind words ❤ thank you so much for watching!
I love decorating and I have patients w/L.B. so please keep going with this. Your gifts are blessings as you know, but I hope you can get into a support group for caregivers. People like us tend to GIVE so much but to the point of pure exhaustion.
Thank you for sharing your story. My family walked this difficult road as well. Praying for your family. ❤️
Thank you Dana, that means so much!
Such sweet people. Blessings.
Thank you!! 😊
So sorry to hear this. LBD is especially nasty because of all the fluctuations. You spend your life on a roller coaster. I can highly recommend Pat Snyder (LBD specific) and Teepa Snow (all dementias) videos. There will come a point where you feel like you're going stark raving mad and are totally alone. Theses forums really help. Wishing you the best.
I took care of my Dad until his death. He was very appreciative for his favorite foods. He thot I was 16 (I was 60) so I called him Daddio as I did then and he called me his darling daughter as he did. We had fun. I hid the guns. He was like a 3 year old. I got a lady to. Come in n give him a shower and do his clothes. He was seeing animals in the house and thot I had parties each night when he was in bed. God bless all of us.
My sister died. A year ago of LBD. You need to understand that Jason is totally overwhelmed with life. I would not recommend going overseas. On a flight he may lose control of his behavior and it could cause a real problem. You cannot control his actions as it progresses. He might be fine and switch on a dime. The throat growling is neurological. His neurological system is under attack and it will more and more short circuit which causes odd behaviors which includes noises. He will progress to visual hallucinations and begin to see them as real and he will react. If he is out in public the police will get involved so you have to be careful. Also he will hide things from you eventually because his brain is trying to survive. He will hide checks or a credit card etc. He does this because he is protecting himself and he may order things without even realizing he is doing it. You need to put buzzers mats on the floor of bed so you know when he gets up. You need to take knobs off the stove and control locks on door that he cannot work. He will actually be happier in a memory place because he will feel safer and he will know you are safer. he should not drive...he seems to be able to but will not see red lights or make good decisions. You have to live as though all the days are the bad ones because you never know. You cannot continue to pretend his days will be good. You must be prepared.
I had to go back and watch your journey from the beginning. First, Jason thank you for your service. I appreciate all our men and women who serve in the military. I am very thankful for our freedom because of all who are and have served, so thank you!♥️ My husband is retired army with 60% disability from injuries sustained during his service. Nothing like what you both are going through. Know God has now laid you on my heart to pray for you, to be an intercessor on your behalf. I can’t imagine or even can begin to relate with what you are going through but God can and does and will walk every step with you. Thinking of you both, you are amazing people, good people! Love and prayers always!
Yes you are a nurse, please remember that your his wife as well , hopefully you can get respite care for him as well 🙏❤❤❤
Nothing but Blessings and prayers coming your way🥰 Shonda and I were both nurses then I changed to radiology after 20 years... and both started out as CNAs....we TOTALLY understand. We salute your bravery and courage and will humbly go along this journey and support you two through your videos❤️
Hello fellow nurses! :) Thank you so much for your support, I truly appreciate it! It's nice to have others who understand where I am coming from!
Bless your family. I can only imagine what your husband is feeling. You and your children have a hard road to follow. May the God of Love and Compassion wrap his arms around you all. You all are in my prayers.🙏🏻💜
It is so good that your husband realizes what is going on and can talk about it. My husband thinks there is nothing wrong with him and that the doctors are wrong.
Ella Williams Jason use to be like that, but then it became way to obvious! At first I would point out what he was doing. Sometimes he would hate that, but now he appreciates it. I’m so sorry you are going through this! Hugs 🤗
I feel ya on that one
"If i could tell the world just one thing, it would be... that we're all ok. And not to worry, because worry is wasteful and useless in times like these.
I won't be made useless. I won't be idled with despair. I'll gather myself around my faith, as it's the light that darkness most fears."
Been watching your channel today about decorating and came across this beautiful video. It takes a strong partner to keep life going as normal as possible. There is so much love, admiration between the two of you. My hubby helps me with my MS. We keep it real but find humor in everyday situations. It is comforting to know he is there for me.Thank you to your husband for his service. Blessings on you both.
Bless you both for sharing your journey. This is such a difficult time and my heart goes out to you. ❤️❤️❤️
I’m not sure why this was on my newsfeed but watched and fell in love with you both. Subscribed. You are a beautiful couple and you were put together for a reason. God bless the both of you.
Thank you so much for sharing your heart, your story and your life with us. You two have each other and the love between you is admirable. Prayers to both of you and many blessings on this journey!
Your story so touched my heart! Thank you for sharing your story with the world. I just stopped by to encourage you to stay strong and know that Jesus Christ truly loves you, Jason and your entire family! My prayers go up for you and Jason!
Thank you so much!😊
Coming over from your daughters page! She is a gem. You guys should be so proud. I will be adding you guys to my prayer.
Thank you so much for your support!
She is gonna need lot of help and support xo God bless both of you xo
That was amazing! I cried, I laughed, I prayed. I cannot imagine what you guys are going through. My mother was diagnosed with early onset Alzheimer’s at 50. She lived with it for 10 years. It’s a 14 year old I could not even begin to understand why she was the way she was. Now, I have worked with people with dementia for the past 16 years. Some young mostly older. I hope your journey continues to be smooth. Thanks so much for sharing your journey
I'm a new subscriber as of today. You and Jason are such a beautiful couple, inside & out. Please tell Jason Thank you for his service 💙❤️💙❤️
Thank you! Will do!💜💜
Love you guys so much! Such a blessing to have you in our lives. SO many good memories. You guys have always been there for me and we are here for you!!
I happened across this by accident & I'm so very glad I did. You will probably never know how many strangers you have helped. A dearly loved family member of mine had a TBI 15 years ago. He recovered enough to continue with his life as it was before with only some minor deficits, or so we thought.Over the last 2-3 years, we have seen a lot of cognitive decline, especially in the last 6 months. Sound familiar? His neurologist diagnosed him with LBD just 2 months ago. Thank you, thank you, thank you for sharing this with us. I'll come back later & share the things we have seen that match your experiences. You are not alone. Just seeing how much love there is between you is good for my soul. ❤❤❤
It's comments like this, that make me so happy we decided to film this! It's just crazy what similar situations we are all in. I would love to hear how your journey is going and I'm always here if you need someone to talk to! Thank you for sharing with me. Sending big hugs! 💜
Well you have had me bawling and laughing ! My heart just aches for you both, such a horrible thing to face at such a young age. You two seem to be strong and are facing this together, I pray for Gods guidance, strength, courage and peace for each of you and your family !!!
Blessings
I have a family member that has this... thank you for sharing sweet gal. Sending hugs, prayers and kindness. 💕👍🏼🙏🏼
My thoughts and prayers are with you all as you continue down this uncertain road. I've known Jason for a lifetime, school and my sister married in to the Weiser family. My heart breaks for you but I admire your choice to share the journey.
Oh Hunny. My kids lost their grandma to LBD this past fall.she was 59 years young. It's a sinister thing,and you're an angel. I hope you feel surrounded by love and support as time passes. Thank you for sharing. I wish you the very best in the time you've got together.
May I ask how long before she passed that she was diagnosed?
I had the pleasure of meeting Jason some number of years ago through a mutual friend. He was and is and amazing guy, and he is so very, very lucky to have you by his side on this journey. My mother has dementia, and I'm slowly losing her. Having watched family members deal with cancer, heart disease, etc, I just think this is absolutely the cruelest disease. I wish you both all the happiness you can gather in the coming months and years.
Stephanie Sullivan I’m so sorry to hear about your Mom. Thank you for your kind words! ❤️
Hats off to you guys for sharing your story. You are the most amazing couple. You guys are always there for all your family and friends even though you are going through this nightmare. We will remain on this journey with you and always try to be there for you! We love you, Jason and Leslie!
It takes a very special person to care for others. Care for them with empathy & compassion. I've worked as a caregiver for 25 years but they hardest "job" emotionally was caring for my husband til he died. God bless!
You guys are so adorable together! So many parts of this video made me smile
You are a beautiful soul and Jason is lucky to have you by his side and he will always be thankful for that even on days when he can't make sense of the world .The love between you is obvious and such a special thing .
Blessings to you Jason and your family.
Yours in friendship . Jan UK
Leslie, I am so sorry for this diagnosis. I loved seeing Jason in your video. Do not regret this decision on publishing this one it is good for all of us to not only see what you face in your day to day but also like you said that it may help someone that might be going through similar circumstances.
I pray that your channel takes off at a rapid pace and gives you what you need to be able to be together full time. I know that God's plans are higher than our plans so I can't wait to see what He does for you.
God bless you both.
And Jason has given a new name to the 'bell' -"Hit the ring-a-ding-ding" that made me laugh!
Thank you so much! This comment made me smile :) I'm also curious what God has in store for us? I trust him with my whole heart and know he is walking this path with us. Thank you for your support, it's truly appreciated!
No one so far has committed on the meanness. The name calling, the swearing, the destroying stuff, the fighting against your helping them.
It's hard night after night even day after day.
Just lost my mother Friday to this horrible disease. She also had Alzheimers. We were fortunate enough that she still knew who we were till the end.
I’ve just started listening, but had to pause to comment because I’m so touched by this story and your honesty!
Thank you so much! 💜😊
You and jason are in our hearts and prayers. Please keep us updated. Hugs
Unfortunately, swallowing problems can happen with lewy body dementia ,parkinsons ( my father in law had it) to the point that all his liquids had to be thickened. You both did such an excellent job in describing everything. All the best to you both
He is so lucky to have you. Good luck
So sorry to hear this. You are all in my prayers 🙏🏻🙏🏻🙏🏻
Anyone struggling with dementia or other brain injury- make a card that you can flash to servers etc that briefly explains the behaviour of your loved one. Saves embarrassment all round, so you can still be out and about.
Thank you for being so brave and putting your story out there! I hope you have a wonderful trip overseas and enjoy living in the day. I’ll be praying for strength for you and your family ❤️
Thank you so much!!
You are so strong and amazing ❤️ I’m so proud of you for sharing your journey
My prayers for your husband and you. God be with you both. It is a hard journey, I know. My father had Alzheimer’s and passed away in 2017, having been one of his caregivers. Even when he lost his voice, I continued to be his voice. One of the last verbal sayings, was “God bless you, I love you.”
Incredibly brave and open to share your diagnosis and fears with us. My husband has Akinetic Parkinson’s disease and as he progresses in his illness my fears for him and myself escalate. Michael J. Fox describes it this way “you know that you are going to be hit by a bus, but you don’t know when it will happen or what the damage will be.” Fear can immobilize us if we sit in it. So live your life, make those adjustments you have to make. That’s all I know to do. God bless both o you.
I"m so sorry to hear about your husband. I will keep him in my prayers also! Thank you for watching and your support, we really appreciate it.
Thank you. That was very interesting. My friend was diagnosed with that last year, but I’m not around her often enough (especially with COVID - I’m 72 and live alone, so I have been reluctant to venture to her son’s house till a few months ago) to see changes. Learning from you might help me be more empathetic. 😷. Goodness, I didn’t realize how long ago this one was posted. I will look for your newer ones.
This very helpful, as my husband just found that he has this , thanks it helps to know what is ahead of us.
God bless you in this journey, you are so sweet, love you two together
Prayers for you both... sincere prayers.
I am sorry you are going through this! My husband has an incurable muscle disease, and these things have their challenges. We (caregivers) are the unsung heros of these insidious diseases. God Bless you both on this difficult journey!
Thinking of you and your husband! Thank you so much for your support!
Thank you so much for sharing your life with us.