Don't Make the Same Mistake I Did - Doctors Won't See Me! | Let's Talk IBD
ฝัง
- เผยแพร่เมื่อ 11 ก.ย. 2024
- Trying to make a bunch of doctors appointments and not finding ANY success.... it is so frustrating. Don't make the same mistake I did when it comes to your health and taking care of yourself.
For 𝐛𝐮𝐬𝐢𝐧𝐞𝐬𝐬 & 𝐜𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐨𝐧 requests ONLY, please reach out at maggie@redefined-agency.com!
Check out what else I'm up to & where else to find me!
linktr.ee/Lets...
Looking for ways to support my channel?
◈ Become a Channel Member! / @letstalkibd
◈ My Favorite Music Licensing Program share.epidemic...
◈ StomaCloak 10% off Coupon Code: letstalkibd10 at stomacloak.com...
◈ Intimate Rose Get $5 off Coupon at www.intimatero...
◈ Etsy Shop www.etsy.com/s...
◈ Let's Talk IBD Gear www.letstalkib...
◈ Amazon Favorites www.amazon.com...
Links within this description may be affiliate/sponsored links in which I receive compensation from purchases made. Thank you for supporting my channel!
*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
Having difficulties hearing this video? Please click the "CC" button on the bottom left of the video screen!
Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ostomy #ibd #chronicillness
If you have a primary care doctor ask them if they do routine pelvic exams and PAP smears. Mine did and it worked out for me. Also see if your GI is willing to make the referral to the Dermatologist from his office. Sometimes that will work when a patient calling for an appointment doesn't.
Celtic sea salt helps keep me hydrated. You don’t need much of it and it’s not always easy to find
I don't know if this would make sense for you but people use coconut water as a base for smoothies. It would be a drinkable way to get in your calories and maybe dilute the salt even more so you don't taste it.
@@wanya_telborn with having foods she can't eat or tolerate unless they are prepared in a certain way. I never said it never made sense what I said is I wasn't sure it made sense for HER.
my doctor just recommended that eat salty snacks to increase my sodium, which i think makes more sense than adding it to a drink, that is if you can handle having the salty snacks. I just started getting those variety boxes of chips with the little bags and i would eat one or two of those a day.
@@jimjam4082 reply under the main video comments it's the only way shell see it. And don't say you did because the only way someone gets notified of a comment is if someone replies to the comment they left. I thought adding salt was a weird suggestion also!
Good idea
I totally understand what you go through on a daily basis. No one can begin to understand what it’s like to face physical issues on a daily basis! I constantly wash blankets with two Chihuahuas.
Your refreshing compared to other You tubers . Your professional.. your very good at what your doing . Wise beyond your years .
I am in the same boat Maggie! I lost my primary in July after she moved. None of her colleagues are taking new patients, and finding a new office that will has been challenging! I also tend to push making phone calls off, it makes me anxious ! 😂 Hopefully, we will both find a good fit soon!
You could put your Nuun tablets or Liquid IV into the Coconut water. That will add sodium and cover the taste.
There is such a health care crisis in this country. Even if you don’t have any special health issues, it’s hard to get a doctor or dentist to see you. The older ones are retiring at such a rapid rate and no one seems to be in the wings to take their place.
THe "annoyingness" of life makes me smile. Finding a good health care team is difficult. Recently I was told that ALL the female dermatologists in my area were no longer taking new patients. I've had to go to Philly for some needs when it's almost a 1 and 1/2 hour drive one way. Getting through on the phone, too, to a doctor's office is also an obstacle course. No human beings on the other end of the line it seems. Then when you get disconnected after being put on hold for 15 minutes! I'm only glad to hear that I'm not alone in my frustration. I wish you all the best---your input has helped me get through the last year of my life.
Medical appointment fatigue is real 😥 When I do finally get in for appointments I do make future appointments at the same time. It's hard if you don't live in a metro area with lots of choices or are limited by your insurance carrier. I feel for you!
I have chron's and live in a metro area in Pa, it's not really any better here. Yes there are more doctor options but they are all overbooked and usually understaffed. Anytime i need to see a specialist for one thing or another, i have to call my PCP and book an appointment and wait weeks to get a referral to a specialist which often takes months waiting to be seen. I have chron's, arthritis, and psoriasis the autoimmune trifecta lol. I tried to see a specialist for the arthritis and had to go to PCP for a referral they also wanted a blood test done before they would take the referral. i spend weeks on waiting for the specialist to deny seeing me because the test came back negative for arthritis even though they know the biologic I was on would throw false negatives on that test. wait another week to be reseen by PCP where they refer me to the pain clinic, wait a month and a half to be seen there, they send me to hospital for walk in x-rays, wait 2 more weeks to go back to pain clinic for them to tell me i have arthritis in both knees and hips. They put me on gabapentin (these things kept me sleepy all the time) and wanted to schedule doing x-ray guided shots into my joints which would of been another month-ish out and i just gave up and stopped going. When you got limited spoons, you don't want to waste them on going to doctor offices to be jerked around and rejected or treated like a moron
Harmless harvest coconut water is the best but is $$
Love you sweet and strong lady! Congratulations 🎉 on 100k you are a wonderful woman! Thank u for being you! ❤❤❤❤🎉🎉🎉🎉🎉
I really enjoy mixing orange juice and la croix sparkling water with my coconut water. Sometimes I will add a little salt as well.
God bless you, I had to drink that when I was really sick and I could not get that stuff down. I thought it was horrible. You are wonderful!❤️
Hey Maggie! I also need extra salt and I highly recommend adding LIQUID IV Lemon/lime flavour to your coconut water! Spoonie hack lol. Love your videos!
ADD ICE A LITTLE FRESH LEMON,PUT IN BLENDER.TASTES SO MUCH BETTER..THEY ALL TASTE BLAH,UNLESS YOU PAY A FORTUNE ❤❤❤❤ LOVE FROM CALIFORNIA. XOXO YOU ARE SUCH A BEAUTIFUL PERSON.HELPING OTHERS THROUGH ❤❤❤
I use a white board. Definitely helpful. ❤
Congratulations 🎊 🎉congrats 👏🏻 💖 you got 100k yay!
Add orange juice to it! Get harmless harvest coconut water though!
Congrats on 100k Maggie.
Bai Cocofusions Molokai Coconut, Antioxidant is ok. and it has I think 50 mg sodium in it.
Love the new color on your walls.
Harmless harvest coconut water is delicious
My doctor sent me to a compounding pharmacy with a prescription for “salt pills” capsules filled with salt.
I love coconut but not a fan of coconut water. You got me on Liquid IV though. Congrats on 100K! 🎈🎈🎉🎉🎈🎈
I'm an established patient and recently made an appointment with my Primary care physician. I called about a week ago and the soonest I could get in was the middle of next month. If I didn't love my doctor I would probably go somewhere else.
I’m afraid mine is gonna do the same thing bc I got a letter from my insurance that the PA I went to last had left the practice “pick another provider”. So I go check the practice’s website- there’s NO nurse practitioners/ PA’s! 😳. A friend of mine had told me essentially you’ll have more luck using a nurse as your primary…..but maybe not???? 😳
@@PBottomPoochies The PA's and NP's are pretty much running the "Medical Ship" around herd in the Phoenix Metro area~Most of mine are great and would rather see them than the actual Physicians, who are booked out for 6 months to a year anyway...Medicine has certainly changed a ton in the states since Covid hit; yet, friends in England tell me it is nearly impossible over across the pond to even get a Primary Care appt when sick, plus months for a Specialist referral, if folks can get into one at all. Plus, she said good luck having any procedures necessary, such as preventive care, such as GI scoping:( Holly in Surprise, AZ☆☆
I like to think the appt. Will come in the right time you have the wheel moving now
I like C2O brand coconut water, either pineapple or mango flavored. I have also found that the paper packaged coconut waters have a weird extra taste for me that I don't get with glass or metal containers.
Goya Brand coconut water in the can has some salt in it already and I like it and it cost around $2.00 a can in New York and I live in Norwich NY.😊
I live about 45 min from you. I love the OBGYNs at Mainline Health Lawrence Park OBGYN. They are located in Broomall, PA
Hang in there and thank you for sharing with us take care 🙂
I hear you getting appointments months out is ridiculous if you’re seeking answers etc. I’ve had to deal with this luckily I have a PPO so I can call around for faster appointments
Maggie, can you sip coconut water and eat Pretzles or something like that instead of mixing sodium with the water? Tastewise, I think that sweet goes eith coconut rather than salt. But having a salty snack on the side might make the water more palatable.
Coconut juice or water can have a laxative effect. I just thought you should know. x
Understandable; after I had my last heart attack in may, it seems I’ve barely got the energy to keep up (had 2 heart attacks this year:( 1) was right before new year; the second one was just after Easter)
The best to you in your endevers! Bless your heart!
Thankyou for this update on your health Maggie,,take care. Thinking of you xxx ♥️🙏🏻🇦🇺
It is tiring being *sick*😔much harder work and it is difficult remaining enthusiastic
Harmless harvest is hands down the best coconut water, but it’s expensive
You should check into Buoy electrolyte additive or LMNT. They are lifesavers!
You might ask your dr. about taking salt pills (Sodium Chloride) rather than putting it in your drinks. I spent a couple of days in the hospital about a month ago after my routine lab work came back that my sodium levels were critically low. I felt fine, but my doc called me at home that evening & told me to go to the ER now & it took a couple of days of IV saline & salt pills to get it into the normal range again. My discharge papers said to take 2 salt tablets a day (AM & PM) & my PCP concurred that he also wanted me to do that. I couldn't find salt pills at my nearest pharmacy, so I ordered a bottle from Amazon that came the next day, much easier than running all over town in my quest for salt pills! They found another of my meds was acting as a diuretic & depleting my sodium, so it was discontinued & my sodium leveled out. I'd rather take a salt pill then try & force down too salty foods & drink.
I drink Vita Coco Coconut Water with Pineapple. Vita Coco has flavored Coconut Water.
I am one of your subscribers that is extremely sick and recently got, or had to have an emergency Iliostomy, but it has nothing to do with cancer, Crohn’s disease or any of those. It’s actually a severe back injury and all the surgeries I’ve had paralyzed my colon main test in my stomach And finally my colon just would not put anything out at all so I went in for emergency surgery but the one person you did not call is for your wisdom teeth to be removed and that’s the call. I think that I would say is the most important and that you do need to get it taken care of so please call them and get it over with, they might actually see you sooner than the doctors because this is a different situation altogether they’re not doctors in that sense they probably have more openings for people who, like you need to have surgical teeth removal specially, when your wisdom teeth are just not the best of circumstances so I’ve had it done. Have them give you laughing gas And just get it done. Make sure they give you pain meds for afterwards and my only other tab is mashed potatoes and frozen yogurt. Those are my two best friends and I eat them often and they were both really really good are usually got chocolate and vanilla swirl soft frozen yogurt, so something to look forward to if you get it done inside any kind of soft yummy food you love just my very motherly opinion honey call and get that appointment. Lol.🤭👍❤️❌❤️❌❣️❣️❣️
They put me out very briefly for my impacted and decayed wisdom teeth to have 3 extracted. Make sure you have lots of soft foods, soups etc to eat. No spicy food. Ibuprofen worked for me even though they gave me Vicodin after for home. Also, Make sure you check if you should have antibiotics. Because not being able to swish your mouth due to possible clots getting loose will give you dry socket and that's Hella painful 😫. Having your immune system always compromised because of your chronic condition etc, make you more susceptible to get infected surgery site in your mouth. I was able to gently tilt my head side to side to get salt water to move around inside my mouth, rather than swish and spit vigorously like normal after brushing. Plus make sure you change your gauze after you eat and drink anything (unless it's water). Good luck
Do NOT under any circumstances have “laughing. Gas”
There so little time to extract teeth that a dreadful mess can be made of the gum .in the UK it can be done in the dental surgery unless there are complications .
Also antibiotics are not necessary .
How different things are in the USA
doing chores slowly but getting it done
salt capsules could be an alternative, not too expensive way of getting your sodium in without having to taste it whatsoever!
No! They mean't for you to have chips while drinking coconut.
Maggie the only coconut water I can drink is the brand Grace. Hope this helps.
I remember when my Mom would pack all our summer stuff away she put them in a foot locker with mothballs. I loved the smell of mothballs as a child, lol 😅 she did the same with Winter clothes. Kept them nice but smelled like mothballs so she had to wash them all. I wanted to wear them as is, but I think maybe they were toxic cause of mothballs. It might be a warm Autumn so keep some Spring stuff out. I wear my summer pj's to bed nowadays cause we haven't had a cold enough winter for flannel yet. I hope it snows a good but safe snow ❄️ 💙 this year & next year. Safe snow ❄️ meaning not much ice on trees or roads. Not stuck at home. Basically means not a blizzard, lol 😆
As I watch this video, I started thinking about various medical professionals that I need to see. It is a little old to keep using COVID as my excuse. Coincidentally I also have several long drives that I would like to cut down. I will take this personally, in a good way, and push that child seemingly controlling my frontal lobe into acquiescing to some medical appointments. THANK YOU for this video. A virtual push is probably the best type to get me moving...I can't debate with anyone.😉
I hit the wall yesterday with docs!!! Had a CT of the heart yesterday. Just started Skyrizi IV have three more, then on to self injections every eight weeks. Going through filing for disability.
If you host a Kilimanjaro trip I’m there!!
I'm like 30 seconds into the video but re adding salt to things. Get the sodium tablets and swallow them with milk/similar liquid that is not water. My body doesn't retain sodium properly and this is the best way I have found to keep my levels high enough without wishing to never drink again like the hydrolyte style sodium drinks. (use milk because it covers the overwhelming salt flavour of swallowing it, water does not and makes you gag)
Coconut water naturally has sodium in it. I'm not sure if it has enough for you but it does have some sodium.
Try LMNT (Sodium and Electrolite powder) in your drinks...
Thanks much for your videos. My name is Sam and i just subscribed to your chanal. I find all your information very helpful. 👍🙏
I know what you mean. I’ve been meaning to speak to my GI today about some bloating. Frankly I don’t think the Remicade is doing it’s job or doing as good a job as it should. I want to see the doctor and not a nurse. So I managed to get them to call me back today. My appt is in late January. Kinda what I expected but will serve as my annual appt. I’m trying to make the rounds too and set appts to see if I can start feeling better. My old GYN took me back- appt is in Oct. But so often these people leave and you have to play the game again- appts for new patients are ALWAYS a super long wait. 🥺. And I need a dermatologist too. Gonna try the one I went to maybe 6 years ago (if they take my insurance!)
PS- don’t give up looking. Ask around and see what you can find. I know it’s a pain but- you’re worth it!❤
Could you not enjoy your coconut water as is,’and eat a few pretzels in between each coconut water?
It's an electrolyte drink and the pink salt is better.
I got similar problems here in Germany with my doctor's appointments....
You need sodium? Drink tomato juice or v8 juice. I found a store brand of vegetable juice that is loaded with sodium. Tastes great. Wife needs an 8 oz. Glass at bedtime to prevent one of her legs from twitching at night.
Wow I thought UK was bad!
I was told coconut water is a natural laxative ?
Aldi brand! My mom uses it to prevent muscle cramps. She says that Aldi brand tastes better then coco vita and couple of other brands, and it is CHEAPER!
I saw my new GI consultant here in the UK. I told him about the trauma to my pelvis from passing faeces. He did not believe me. He said that could not happen but it did; and I have proofs of it happening to other people, although I did not say anything because I did not want to argue. I do not know what to do. Any advice, anyone?
You mean like a Pelvic Prolapse from having to push?? Absolutely happens to SO many women after childbirth or even GI trauma!! Insist on seeing a Gynocologist Specialist/Surgeon, even if it takes months to get an appt...There are surgeries that can help in many cases, which can lift the pelvic floor, along with the rectal wall. Know this can be frustrating yet do not give-up:)
Blessings, Holly in Arizona
I cannot find any doctors as well. 🤦🏻♀️ So frustrating!
Look up LMNT electrolyte salt, maybe that would be a good option.
I just do not like coconut water. I would rather have gatorade or Liquid IV and stuff like that.
The doctor you liked in Philadelphia may be in a area in the burbs. Google her name. I found my old doc moved her office to the mainline.
Harmless Harvest is good but it’s pricey.
Congrats on 100k
Seems the wait for appointments is everywhere. Houston area is also bad.
In Dallas we got an appointment with a certain specialist for our kid and I kid you not, 1 year from now.
Sorry I post in the middle of the video I understand a lot of doctors that were I broke my foot three weeks ago I'm supposed to go see a foot doctor and every single one in my city if they're still practicing is 6 months out I've been that everybody else is retired not much fun
Since you have to add salt to the coconut water, may I suggest the addition of some lime? Your nutritionist surely doesn't want you to add tequila, lol, but you get what flavor profile I'm aiming for, right? 😁
Patients are experiencing a doctor shortage, are medical schools and governing associations responding to increase the schooling of new doctors?
Ostomate here. What’s with coconut water? New to me.
Don't some sports drinks have salt? I can taste it, that's why I don't like them.
dixie keeps wanting to be in the video and say hi...cute
❤❤❤❤❤
I do fluids at home by myself its so much easier I just hook up every night maybe you could try it. Its covered by insurance.
Actually that's how I started and my insurance didn't cover fully ): I actually prefer going to a clinic now - it was starting to make my house feel very "medically"
You only need a pinch of pink Himalayan salt in your bottle of water and it will taste great and you won’t even notice that it’s there but you don’t need to put the salt in the coconut water
take a salt tablet.
oh care for wisdom teeth oh ah
💕💕💕💕💫
Eat a package of the cheap ramen 🤣just joking
Make some broth from bullion to drink 😉
Dollar Tree sells coconut water
I'm in the same boat. My psychologist retired July and it's been a nightmare trying to find new doctors especially right now. And especially because in my case I have a lot of medical abuse resonated trauma on top of my mental and chronic illnesses and it's so overwhelming. I have a list of drs that are covered for each of the drs I need to set up with (also need a new pcp and gyno). But so many have horrific reviews online and the ones that don't just have no reviews at all so idek if they are legit or not. It's just so overwhelming and exhausting I wish there was an easier way.
omg holy frig drs wont see u
The American healthcare system is so fragmented. The concept of your Primary Care physician coordinating other care is a myth.
Get a PA?
I do not see how you can afford going to any doctor, a 5 min. appointment of nothing cost over 450.00
How about health insurance? Should cover most of costs especially for PCP…
I enjoy your podcast because it is informative and, at the same time seems to establish a personal relationship with your viewers. However, stopping in the middle of a sentence to pay attention to one of your dogs seems a little rude. It is no different than if you had a couple of toddlers at your side and stopped your train of thought to play goo goo with the kids. People enjoy finding out about your home life, but a separate video about your pets would be more appropriate. Just sayin".
My dogs are part of my life so I will continue to do this. Many viewers seem to enjoy seeing them.
I enjoy all interactions with the dogs ☺️
Nothing you just described is rude. What IS rude, however, is pushing for someone to behave and act how it pleases you individually while also speaking for others, and assuming that the rest of us agree without any proof of that being the case. Pets and kids exist and are just a part of life. If you don’t like that, then watch someone who’s child free and pet free instead of trying to force someone to conform to your personal preferences.
Strange entitlement here. She's not existing to please everyone. Well, as you've gone this far already - some readers might enjoy your comments but it would be better next time if you just typed them in your phones notes. Would really help thanks