Literally got out of hospital yesterday having the clot cleared... while on holiday in Europe. My clot was from the elbow to the collarbone. I'm on anticoagulants. I will seek similar treatment when I get back home. This video is very encouraging!!!
So 95% of patients have neurogenic thoracic outlet syndrome (TOS) and only 5% of patient has some kind of vascular derivative thoracic outlet syndrome. The 5% of patients should see a vascular or possibly cardiothoracic surgeon. This is the type of problem they are trained to deal with. For the main group of patients with TOS - the 95% of patients who have the nerve compression variant, they should be diagnosed and treated by a peripheral nerve surgeon who focuses on chronic pain. The reason it’s do difficult for a vascular surgeon to diagnose neurogenic TOS is because they have very little understanding about peripheral nerve anatomy. The diagnosis of neurogenic TOS is relatively simple and straightforward to make for a peripheral nerve surgeon who also knows where all the other possible compression points between the cervical spine and the hand is located and can examine them all so there is not confusion about what the real problem is. If you know how to work up the cervical spine and the peripheral nervous system between spine and hand, then making the diagnosis of neurogenic syndrome is not hard at all. Also, while a ‘transaxillary’ approach with resection of the first rib may be necessary to treat the vascular variants of TOS, it’s almost NEVER needed to treat the neurogenic variant of TOS. The compression of the nerves occurs between the anterior and middle scalene muscles, NOT between the clavicle and the first rib. A transaxillary approach with resection of the first rib is both unnecessarily dangerous and morbid and when the first rib is removed, often requires an extended post-op recovery period. Vascular surgeons should be the ones to take care of the arterial and venous variants of TOS, they SHOULD NOT be the ones taking care of the neurogenic variants of TOS. They do not have the training or expertise to do so and get consistently good results. Patients with neurogenic TOS should seek out a chronic pain-focused peripheral nerve surgeon for this type of surgery.
See what a cardio- vascular surgeon did to me in San Francisco after he lied about All the risks- I never had vascular TOS. I am a mess! And he just left me to suffer almost 16 years now! See tossurgerynightmare dot com
I got it my last season in college. I'd be ok til I grabbed someone for a block. The pain was excruciating and I couldn't move my right arm for the rest of the day and it's bothered me ever since. Just now realizing what it was and how to treat it
My 21 year old brother has TOS in his right hand. He feels bad pain in his elbow, and he takes many pain killers, he would want to know some movements or things that can work to get it off. Please answer.🙏
I have to take pain medicine every 4 hours and ice. Shoulder and elbow. Need surgery only helps , they will treat you like a criminal now days if you take pain medicine. But without pain medicine you will kill yourself because the pain is so bad 24hour a day
I have tos and seeing a physiotherapist, I've been doing stretches to relieve the pain, if he could do without pain killers that would be better, but look up tos stretches, all the best
Do you think that it is TOS? Pain in right elbow, it can be more sulcus ulnaris syndrome or carpaltunnel syndrom Has he typical symptoms of TOS, Adson's manover positive?
strengthen scapula, and neck muscles/scalenes do nerve glides for radial/median/ulnar nerve for arm/elbow/wrist/hand pain. First rib mobilizations can help with pain as well. Surgery is typically not your best option. I'm going through neurogenic tos right now I haven't started rehab for it until a few weeks ago as I wasn't aware of it, I have seen some progress so far in my neck pain.
Wow! I've had TOS FOR OVER 16 years now. If I was diagnosed that quickly I would have been free from the pain I've been in since 2001-my 1st. Surgery was 2004, back then they did not believe it was a real medical promblem, the 1 st. Dr. Here in Santa Barbara Dr. Alan Mollelleken, look at me and said "there is nothing wrong with you its all in your head". I've had 5 surgeries since, maybe looking at another. So parse God you got the medical attention you needed right away. They believe in TOS now. Before in 2001, they dismissed it as a myth, no doctor would write it as a diagnosis.
My husband went through this. He woke up one morning with a very swollen purplish blue arm. He was hospitalized and 3 blood clots were discovered. This went on to happen 3 more times before he became so high risk that rib removal was finally the only option. Until we went through this in 2008 I had never heard of this before but this is such a serious situation. The recuperation after the removal surgery was also one heck of a journey
Same story,woke up like that,purple arm,no air,tingling..hospitalization,I had pulm embolism ...after that on medicinines...when i recovered a little (6month) i had surgery on both sides in one year...
i did 4 years of offensive line in hs now at 21 i wanted to get back into exercising so i was messing around on a mountain bike and hours later my face and fingers went numb and horrible pains in my arm and clavicle and it being my left side gave me a 2hr panic attack because i thought i was having a heart attack or stroke shit is horrible. i now realize my posture is trash like uneven hips longer leg curved spine. i think physical therapy or chiropractor will fix me
This just happened to me! I had a panic attack thinking im having a heart attack and called 911. They took me but didn’t find anything. Then i did my own research and here i am with people experiencing the same exact thing i am. What did you end up doing on i ??? Any updates???
@@yannick3651 it wasn't reoccurring I was just stressed out and not eating a lot throughout the day, Im a very anxious person and there's blood pressure problems in my family so I just took antianxiety pills for about a month and slowed down on things like smoking weed, cigarettes and coffee. Ever since I've been conscious of and trying to fix my posture when sitting and standing
I was hospitalized for 2 days and they even did a heart cath. Literally same symptoms as you. Found nothing wrong. I've been dealing with this ever since for the last 2 years. I just failed every test you can do at home for tos. I'm making a doctor's appt tomorrow.
Julia Skagfjord I am undiagnosed but I do have symptoms and I have been trying to find that out too. From what I've researched, I don't believe it heals on its own, unfortunately.
Literally got out of hospital yesterday having the clot cleared... while on holiday in Europe. My clot was from the elbow to the collarbone. I'm on anticoagulants. I will seek similar treatment when I get back home. This video is very encouraging!!!
So 95% of patients have neurogenic thoracic outlet syndrome (TOS) and only 5% of patient has some kind of vascular derivative thoracic outlet syndrome. The 5% of patients should see a vascular or possibly cardiothoracic surgeon. This is the type of problem they are trained to deal with. For the main group of patients with TOS - the 95% of patients who have the nerve compression variant, they should be diagnosed and treated by a peripheral nerve surgeon who focuses on chronic pain. The reason it’s do difficult for a vascular surgeon to diagnose neurogenic TOS is because they have very little understanding about peripheral nerve anatomy. The diagnosis of neurogenic TOS is relatively simple and straightforward to make for a peripheral nerve surgeon who also knows where all the other possible compression points between the cervical spine and the hand is located and can examine them all so there is not confusion about what the real problem is. If you know how to work up the cervical spine and the peripheral nervous system between spine and hand, then making the diagnosis of neurogenic syndrome is not hard at all. Also, while a ‘transaxillary’ approach with resection of the first rib may be necessary to treat the vascular variants of TOS, it’s almost NEVER needed to treat the neurogenic variant of TOS. The compression of the nerves occurs between the anterior and middle scalene muscles, NOT between the clavicle and the first rib. A transaxillary approach with resection of the first rib is both unnecessarily dangerous and morbid and when the first rib is removed, often requires an extended post-op recovery period. Vascular surgeons should be the ones to take care of the arterial and venous variants of TOS, they SHOULD NOT be the ones taking care of the neurogenic variants of TOS. They do not have the training or expertise to do so and get consistently good results. Patients with neurogenic TOS should seek out a chronic pain-focused peripheral nerve surgeon for this type of surgery.
Thank you! This was very helpful. Can you have both going on at the same time?? Both Vascular AND Neurogenic?
See what a cardio- vascular surgeon did to me in San Francisco after he lied about All the risks- I never had vascular TOS. I am a mess! And he just left me to suffer almost 16 years now! See tossurgerynightmare dot com
@@madeinhisimage3447 yes. How are you now?
Who are good peripheral nerve surgeons? I only hear Donahue/Thompson but they are not either.
(Thank you so much for Video)
Dr. Lum is my Dr. too....!
Bless this wonderful Clinic.
here to find out more for markelle fultz
Dead ass same..
The research never stops. Go Magic...
I got it my last season in college. I'd be ok til I grabbed someone for a block. The pain was excruciating and I couldn't move my right arm for the rest of the day and it's bothered me ever since. Just now realizing what it was and how to treat it
How are you doing now, Bro? Have my surgery in may :)
funny how the video's titled Mark's story, they left out the elle part lol
They also left out how much they charged for it! 🤑
What is the cost for this kind of procedure?
My 21 year old brother has TOS in his right hand. He feels bad pain in his elbow, and he takes many pain killers, he would want to know some movements or things that can work to get it off. Please answer.🙏
I have to take pain medicine every 4 hours and ice. Shoulder and elbow. Need surgery only helps , they will treat you like a criminal now days if you take pain medicine. But without pain medicine you will kill yourself because the pain is so bad 24hour a day
I have tos and seeing a physiotherapist, I've been doing stretches to relieve the pain, if he could do without pain killers that would be better, but look up tos stretches, all the best
Do you think that it is TOS? Pain in right elbow, it can be more sulcus ulnaris syndrome or carpaltunnel syndrom Has he typical symptoms of TOS, Adson's manover positive?
strengthen scapula, and neck muscles/scalenes do nerve glides for radial/median/ulnar nerve for arm/elbow/wrist/hand pain. First rib mobilizations can help with pain as well. Surgery is typically not your best option. I'm going through neurogenic tos right now I haven't started rehab for it until a few weeks ago as I wasn't aware of it, I have seen some progress so far in my neck pain.
@@LookOuch hello there, I just figured out I had ntos , and I'm keen to know how r u doing after 8 months ?
Wow! I've had TOS FOR OVER 16 years now. If I was diagnosed that quickly I would have been free from the pain I've been in since 2001-my 1st. Surgery was 2004, back then they did not believe it was a real medical promblem, the 1 st. Dr. Here in Santa Barbara Dr. Alan Mollelleken, look at me and said "there is nothing wrong with you its all in your head". I've had 5 surgeries since, maybe looking at another. So parse God you got the medical attention you needed right away. They believe in TOS now. Before in 2001, they dismissed it as a myth, no doctor would write it as a diagnosis.
How are you now?
I'm sorry to hear that. I hate it when doctors are so dismissive. No wonder it's called the 5 doctor syndrome!!
My husband went through this. He woke up one morning with a very swollen purplish blue arm. He was hospitalized and 3 blood clots were discovered. This went on to happen 3 more times before he became so high risk that rib removal was finally the only option. Until we went through this in 2008 I had never heard of this before but this is such a serious situation. The recuperation after the removal surgery was also one heck of a journey
Same story,woke up like that,purple arm,no air,tingling..hospitalization,I had pulm embolism ...after that on medicinines...when i recovered a little (6month) i had surgery on both sides in one year...
Really heck of journey
i did 4 years of offensive line in hs now at 21 i wanted to get back into exercising so i was messing around on a mountain bike and hours later my face and fingers went numb and horrible pains in my arm and clavicle and it being my left side gave me a 2hr panic attack because i thought i was having a heart attack or stroke shit is horrible. i now realize my posture is trash like uneven hips longer leg curved spine. i think physical therapy or chiropractor will fix me
This just happened to me! I had a panic attack thinking im having a heart attack and called 911. They took me but didn’t find anything. Then i did my own research and here i am with people experiencing the same exact thing i am. What did you end up doing on i ??? Any updates???
@@yannick3651 it wasn't reoccurring I was just stressed out and not eating a lot throughout the day, Im a very anxious person and there's blood pressure problems in my family so I just took antianxiety pills for about a month and slowed down on things like smoking weed, cigarettes and coffee. Ever since I've been conscious of and trying to fix my posture when sitting and standing
@@XANcc did it get better for you? also did you have a lump on your clavicle bone too? coz i have one
@@yannick3651 i only experienced it once and never got it checked out by a doctor, don’t think there was a lump
I was hospitalized for 2 days and they even did a heart cath. Literally same symptoms as you. Found nothing wrong. I've been dealing with this ever since for the last 2 years. I just failed every test you can do at home for tos. I'm making a doctor's appt tomorrow.
I need help about same issue, but am from Nigeria , what do you advise I do
If you have concerns we suggest reaching out to a doctor.
My clavicle fracture has started TOC I believe, I wonder if that it possbile
could be
Can this not heal on it's own??
Julia Skagfjord I am undiagnosed but I do have symptoms and I have been trying to find that out too. From what I've researched, I don't believe it heals on its own, unfortunately.
@@SomethingThatSCREAMSWe havent sent one patient to surgery with TOS All our patients recover and everyone you know gets surgery?
Nope mine didn't at least. Both my arms have venous and arterial toes. Got the rib removed still a year and a half later not much relief
Markelle