Getting Through a FIBROMYALGIA FLARE | Chronic Pain, Fatigue, Nausea, Exercise | Day in the Life
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- เผยแพร่เมื่อ 15 ก.ย. 2024
- Being in a Fibromyalgia flare is just awful. It's hard to know what to do or how much?! I personally have found that moving through it (literally) is what gives me the most relief. It helps my flares go from lasting for months to weeks or even days. The footage shows just one day of how I try and cope with the pain, it's not something I can do everyday.. Rest is just as important as movement. Really listen to your body 💜
#fibromyalgia #adhd #bipolar #ocd #ibs #chronicpain #invisibledisabilities #spoonie
Please leave any comments below so we can interact.. I hope you enjoy my vlog and you're taking care of yourselves 💜
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If you're interested in anything Borderline Personality Disorder related, (BPD). I wrote a poem about it, in MY personal experience, some years ago when I was first diagnosed.
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• Broken Mind Of Mine | ... gvd.
I have been in a constant flare for years now. Only leave the house for Dr appointments and to see my mom who is in memory care but sadly only see her every few months. She is 15 minutes away but the pain and fatigue, even with pain medication, I am lucky to make it from my bedroom to the living room. The last twenty years have turned my life upside down, but the last two years have been beyond any pain and fatigue i have ever experienced. It hurts to even shower....
Ello Pam, how are you? I’m sorry you’ve been subjected to this for over 20 years! I feel for you I really do ❤️ I hope you have some support at home. It must be hurtful knowing she is so close yet when in constant pain it might as well be on the other side of the world! But you see your Mum when you can and that’s good enough. You’re doing the best you can ❤️💜❤️
I've found that medication makes everything worse. Anti-inflammatory foods, lemons, dandelion, fermented foods and protein ( organic) help you feel better in general but nothing cures fibro. It just gives you a better quality of life. You still can't work, or at least I cant. 30+ years
Do you have ADHD with it or Asperger's I've had CFS 26 years fybromyalgia 6 but ime sure they are part of one another
@@Truerealism747 I have never been diagnosed with either. I am 62 just had a birthday on Monday and my mother kept all of my report cards and I mean all of them. When we cleaned out her house in 2020, she is 96 now and has Alzheimer's, I was reading some of my elementary school report cards, and they all said the same thing- Pam is a good student, but she rushes through her assignments and therefore gets a lot of things wrong. Pam's handwriting is messy, she needs to take her time with her handwriting. Recently, my doctor gave me a prescription of Adderall to see if it would help with my extreme fatigue, not very strong just 10 mg, but I had a very strong reaction. My tongue and throat swelled up with the second dose, so obviously I can't take Adderall. But I did notice it made me very sleepy, which is the exact opposite of what he was hoping it would do. From what I've read if you don't have ADHD, Adderall or Ritalin, etc. will give you energy it was the exact opposite with me. Take from that what you will...
I always start projects, but never finish. I am a huge procrastinator. I don't know if these are indicators of ADHD. I do have several grandchildren that have autism but I do not see anything that I have within them. They are definitely autistic. Though not severely when they were younger, one of them especially lined up all of his toy cars by make model, color, etc. He had slight.stimming with his hands that he has seem to have back grown now that he is 12. I do get really hyper focused on things and can spend hours reading and get to award. I don't understand and I'll Google that and spend hours researching that going down that rabbit hole and by the time I know it the whole day is gone by, so I probably do have undiagnosed ADD or ADHD.....
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There IS a CURE. --- I would put a video up but my channel may be banned.
fibromyalgia can be REVERSED. Just like bad eyesight.
Reason for fibromyalgia
* sudden shock from a relationship breakdown
* grief from tradegy of passing away of a loved one
* shock from cheating partner
* tomatoes
* fizzy drinks, cold drinks from fridge
*
*** CURE***
* full body massage ( a trained masseuse) will KNOW pressure points , it's worth getting it done from people with small business because main thing is body massage with person with chubby hands.
*** EARTHING***
Warnings- u have to trust your judgement--- there are areas where dogs urine may be present n u dont want to do EARTHING that area.
- leaning and hugging TREES
- walking/ standing on REAL grass that has NOT got chemicals on it.
* rubbing your feet souls on bark n roots of trees.
I Don’t feel so alone watching this video. I wish we could hang out and laugh about everything.
I don’t know why the universe challenges us with chronic pain. But i’m thankful for the Internet today. Thanks for sharing.💜
You are asking the universe the WRONG way.
There IS a CURE for fibromyalgia. I have helped many for FREE. My comment about cure is somewhere in the comments
fibromyalgia can be REVERSED. Just like bad eyesight.
Reason for fibromyalgia
* sudden shock from a relationship breakdown
* grief from tradegy of passing away of a loved one
* shock from cheating partner
* tomatoes
* fizzy drinks, cold drinks from fridge
*
*** CURE***
* full body massage ( a trained masseuse) will KNOW pressure points , it's worth getting it done from people with small business because main thing is body massage with person with chubby hands.
*** EARTHING***
Warnings- u have to trust your judgement--- there are areas where dogs urine may be present n u dont want to do EARTHING that area.
- leaning and hugging TREES
- walking/ standing on REAL grass that has NOT got chemicals on it.
* rubbing your feet souls on bark n roots of trees.
Thank you for showing what you go through in a flare. Your humor is great! Since all of this started up for me last year, i forget to laugh thru the pain sometimes! 😂😅❤ humour definitely helps!!
I feel in our situation laughter/sense of humour is a key ingredient! This illness is miserable enough 😂❤️
I’m in a flare now and can relate to each pain your feeling. Wish I could be laughing as u are. Thank u sooo much!!
Laughter has always been a coping mechanism of mine. It’s either that or cry and crying makes the pain worse so I take the latter 😃 I do hope your flare eases soon 💜
@@ellochaosyess !! I go between laugh and cry and have made peace with it ❤❤❤
I honestly need this thank you soooo much for your vulnerability i appreciate it so very much ❤❤❤ . Thank you !!! I feel so much less alone right now . Literally staring at my dog she wants a walk so badly and I’ve not got the energy .
I’m Christine from CT , US ❤❤❤
Ello Christine! 👋🏽 Thank you for your lovely comments, I appreciate you taking the time 😊 How have you been? Gotten out on any walks? What breed of dog do you have? ❤️❤️
Thank you for filming this, as its the first time ive ever seen anyone being so open before. Think I'll be going back to the beginning of your vids.
I hate the sweats, only walk or put a load of washing and I'll be wet through, hate it...
Thank you for watching and commenting ☺️
I'm what you call an over sharer 😂 A blessing and a curse!
There is never any in between with anything is there!.. Either overheating or freezing cold! 💜
@@ellochaosyou’re showing true reality and it’s sooo refreshing. I feel like I’m the only one in the world going through this
Yessssss it’s exhausting to moisturize with thick cream !!! Finally someone I can relate to ❤❤❤❤ I use easy spread oil I don’t dry off either because too much energy sooo I say well my skin will drink the water 😂😂😂
Do lights bother you too ??? At least it’s the time of year where I can handle direct sunshine between 12-3 pm as it’s not as harsh . Summer it’s too much for me . I’ve used caffeine solution I love the ordinary….some products ate too harsh for me I love their oil based skin care .
Yesss the bra as it hits the ribs too . Yesterday I was like well I don’t have the energy to get a bra on so society can deal .
@@Christinesobsevations yes light is harsh for me all year round. In the summer, like you say it’s more intense. But in the colder months it’s that weird dull but still bright light which is just as painful to me. I try my best to leave curtains etc open but I suffer for it. 9x out of 10 my curtains are closed again within a few hours max! 😣🤕
I have horrible pain all the time. I think about taking my life everyday.
Please don't do that.. I'm so sorry to hear this, I do hope you are taking care of yourself and have some support ❤️
Do you have fybromyalgia.mine feels like I migraine in my body everyday to upper body constant
@@Truerealism747 turns out that I have fibromyalgia and AS. I have gotten on some herbs that have been helping me deal with it better. Pain is still destroying me. Life is a gift. But not like this.
😢🫶🏽🙏🏽💜
look up pain free you youtube channel
Despite your condition, you have an upbeat spirit. I have fibromyalgia, and there are times when I can't even function. I can't eat. I can't sleep.. good for you I wish you well❤
I won’t let it steal everything from me! Thank you ☺️ I wish you all the best ❤️
I don’t know how you can laugh when you’re in pain like that. All I can do is cry sit and cry. My back hurts so bad I have a hard time getting to the bathroom in time. Good luck.
Oh I have my moments, many of them. But I’ve always used humour to cope, so I laugh through the pain 💜
Ok ladies I had both a spine specialist and lawyer tell ME that, "fibromyalgia is what they tell you when they can't figure you out." 🤔 The doctor seen my wheels turning and told me to keep looking. So.....I did and a black medical assistant told me to do the blood work while in a flare b/c if you don't they will miss lupus. Both fibromyalgia and lupus have the same symptoms.......if you have African blood in you this is very important & helpful for us get a proper diagnosis.
Ello 👋🏽 I have had all the blood tests, in flares etc, multiple times. So everything else was ruled out before coming to the diagnosis of Fibromyalgia.
thought id share the few things i think help a little with getting through a flare,, number one i think is one of the most important is so stay calm, ive had a few bad ones where i ended up in a terrible cluster headache , so much worse than a migraine and the most excruciating pain ive ever experienced. it was so bad it actually had me living in fear of another for a few years , i went to physical therapy, i dont remember if someone told me or if i noticed it but stress makes it worse so when i felt it coming back i did my best to stay calm and i would also put a ice pack on my head, the best was actually a big bag of frozen peas or something like it. Maybe the most important is to keep hope alive, i was ready to be done because I could not possibly live with that pain but the physical therapist gave me some hope telling me there are things that can be done, it can improve. Even though there is no cure , which really depressed me at first for some years, if there is room for improvement that is enough to stay hopeful which i think is so important dealing with this condition. Also like ello mentioned, you just have to take things slow and careful, adjusting to that can be hard at first but it is a preventative measure that can make a big difference.
❤️💜
How are you doing now ime diagnosed CFS fybromyalgia now heds asperger's ADHD pain worst than fatigue for me now ldn helps fatigue
@@Truerealism747 glad you found something to help with the fatigue, i still struggle to find anything that can create any significant improvement. as difficult and sometimes painful moving around can be, it seems essential to prevent things from getting worse so im trying to stretch and move around as much as i can. i think one of the most exhausting and frustrating things is having your life and daily activities revolve around self care. I feel i have to balance my physical movement more carefully than i balance my budget , i did find one odd thing while looking up how to deal with certain fibro pain like alodynia , anti itch cream can actually help, it didnt sooth the pain for me right away , it felt a bit like burning like a over powered icy hot cream but the next day the skin felt like i was getting back to a more normal nerve response which was surprising .
There IS a CURE. --- I would put a video up but my channel may be banned.
fibromyalgia can be REVERSED. Just like bad eyesight.
Reason for fibromyalgia
* sudden shock from a relationship breakdown
* grief from tradegy of passing away of a loved one
* shock from cheating partner
* tomatoes
* fizzy drinks, cold drinks from fridge
*
*** CURE***
* full body massage ( a trained masseuse) will KNOW pressure points , it's worth getting it done from people with small business because main thing is body massage with person with chubby hands.
*** EARTHING***
Warnings- u have to trust your judgement--- there are areas where dogs urine may be present n u dont want to do EARTHING that area.
- leaning and hugging TREES
- walking/ standing on REAL grass that has NOT got chemicals on it.
* rubbing your feet souls on bark n roots of trees.
Awww… you’re my sister from another mother… yay, I’m not alone..even the singing 😂 gotta keep moving
😂 Sing and laugh through the pain!! 💜
You are hilarious 😂. Thanks for taking us through a flare up day with you. We're not alone!
😂 I'm glad you enjoyed! Thank you 💜
Im 40 and have terrible neuropathy. It hurts like hell to stand. Mind you, I used to be super fit 😢 seeing your shower chair may have liberated me to finally get one. I’ve been holding out bc I’m embarrassed but now I’m rethinking my shame.
I can relate to that. It was more of a pride thing for me. But then I decided that it was worth hurting my pride to ease my pain, and it has been a massive help. I don’t even think about it now, it would be weirder without it lol. Besides, visitors etc aren’t gonna see you in the shower, so who cares!
Go for it 💜
I’ve had fibromyalgia for over 40 years and I think they’ve learned nothing new in all this time…shame
💜
Agree❤
Not mainstream but the link to ADHD is large and Asperger's
It's awful
My hubby had it for few years now
I had arthritis ,but tried helping hubby as much as possible,
Having arthritis myself ,allso copd getting worse ,I now have fibro too ,yay me ,
Just throw the lot at me
Now turns out he is type 2 diabetic and bad liver
I'm a lot older than him ,when we got married he said ,I will look after u when ur older
As I was concerned about my age
Turned out
He needs my help more ,and I look after him too
We now Team work
And we do it well
Absolutely love ur chanel ,
U make me laugh a lot
Wich is what I need at times lol
We all need a laugh don't we
🙋🏻♀️
I hate it also. The depression sheesh. Sometimes I feel alone like no one does care. I don’t beg for people to care though. Burning sensations with migraines. I feel vulnerable like if I tell someone how I feel they will say your fine. In the inside I’m not
It’s so hard to talk to people, anyone really. Most just don’t get it nor do they want to try to understand. Which leaves us invalidated.. Again! Other than what I share on here I don’t really try and talk to anyone about these things anymore. It depletes the only energy I have so I save myself the bother. I’m in a depressive episode right now, it’s awful how it can change your perspective on things. I just have to keep telling myself I will see things differently again soon ❤️
I hope you’re doing ok 💜
It’s because we often look well, even family don’t always understand. I do what I can then rest on the bed, sitting is hard for me, resting in between is the only way I can get things done. I’m by nature an untidy person, I’m learning to tidy up after myself, it makes life easier. Cheers, everyone 😊
That’s so much of the problem we often look like nothing is wrong. Everyone around says that. And they when I tell them hey I need to go hospital it’s why your fine nothing is wrong. But inside it is
I just found out that what I’ve been suffering for years has been fibro , but I can relate to this comment so much with the migraines are debilitating😢.. nobody really understands but God does praying we find relief in due time 🙏🏾
There IS a CURE. --- I would put a video up but my channel may be banned.
fibromyalgia can be REVERSED. Just like bad eyesight.
Reason for fibromyalgia
* sudden shock from a relationship breakdown
* grief from tradegy of passing away of a loved one
* shock from cheating partner
* tomatoes
* fizzy drinks, cold drinks from fridge
*
*** CURE***
* full body massage ( a trained masseuse) will KNOW pressure points , it's worth getting it done from people with small business because main thing is body massage with person with chubby hands.
*** EARTHING***
Warnings- u have to trust your judgement--- there are areas where dogs urine may be present n u dont want to do EARTHING that area.
- leaning and hugging TREES
- walking/ standing on REAL grass that has NOT got chemicals on it.
* rubbing your feet souls on bark n roots of trees.
Thanks for your post. I appreciate that you push yourself just a little to feel better. I want to stay in bed, but a hot shower, some stretches and Tylenol are best to get me moving. Well done.
I am currently in a flare up and found you and you've been making me giggle so much. I love dealing with my big flare up days this way too. thank you for spreading your silly and funny energy
Thank you for my smile 😊 this morning. Oh my neck and the rest! Hugss and ❤ your way. I see your fur babies too 🙄. Don't loose that sense of humor girl...
You're welcome! I'm glad I made you smile! Hope your neck (And the rest) have eased ❤️
My fur babies keep me going 😻😻😻😻
Ugh, I'm trying!! 😝 lol xx
Your so good at editing. Xxxxx
Why thank you 😊 lol. I do really enjoy it. Playing around with features and learning something new every week. Hard bloody work but I like a challenge and it keeps me entertained 😃 xx
I hate when I have flares. I'm actually going through it a little bit now.
They are the worst! How are you feeling now? I hope it’s eased 💜
I have my days. I definitely have to make sure I get proper rest and not over due it. The fatigue has been crazy lately though. I also started lidocaine infusions monthly. It helps some but not a lot.
Yes rest is just as important as movement. Fatigue is sometimes more frustrating for me than the pain! The pain I think I’ve become somewhat accustomed to, but the fatigue is so irritating especially when you’ve had a good nights sleep etc. I hope yours isn’t so heavy today 💜
@@ellochaosI’m going through I can’t sleep spell currently
@@Christinesobsevations hope you’ve managed to get some decent sleep the past week 💜
🤣🤣🤣🤣👌 The cream squirting sent me creasing.
Omg I swear I nearly pissed myself!! 🤣🤣
Awww that’s me in the morning!😔😔😔
Eating only makes us feel better with fibromyalgia if we eat all anti inflammatory foods. Which eliminates alot of stuff. I noticed u ate hot sauce, corn, rice….all those ingredients will cause more pain and fatigue unfortunately. I’ve had fibromyalgia for almost 9 years and before I was diagnosed, I noticed how every time I’d eat, I’d have dull achy pain all through my arms and other parts of my body. Had no idea what was going on until it clicked one day and I knew it was the food. I was diagnosed and spent months researching diet with fibromyalgia. I cleaned my diet to a struck anti inflammatory diet curing out all the stuff I pretty much ate my entire life 😞 but on the upside, I felt soooo much better. With little to no pain. Now, 8 years later, I’ll say I’ve learned to deal with my symptoms better or either gotten used to the pain. Not sure. But I’ve learned how to cope better. Unless I’m in a bad flare! Then it’s bad! But shortly after diagnosis of the fibromyalgia, I also was diagnosed with psoriatic arthritis as well. Came together as a package I guess. Who knows. So I deal with both now. But I was in remission for a couple years because of my diet change. Which kept the infusions and meds away. Now I’m 40 and symptoms have came back with a vengeance. 😢 But I also haven’t been eating right lately. I’m going to start again and see how I feel. I pray for you on your journey. Natural holistic in my opinion is always the best option but I’d never tell people to not take medication. Not my place to judge. I wish everybody nothing but pain free days ahead. It’s hard. But when we’re in a flare, we have to remind ourselves, this too shall pass.❤️🫶🏼🙏🏼
I use linen/cotton waffle towels. They are not heavy when wet
Ahhh! 🤔 I’ll look into that. Thank you ☺️
Bloody hate flares! You just don't know what to do with ourselves. Hope you get back to your baseline soon. Xxxxx
They are horrendous! I’m not in a flare right now thankfully, I am at my baseline 🙏🏽 This was older footage. But thank you 😊💜 xx
How often do the flares come along ?
@@ellochaos you take care of you xxxx
Another great vlog as always, so relatable. Well done for how far you’ve come 🎉
I wish I had a lovely outdoor space like your garden .i would buy a hammock 😊
& probably get over excited to plant everything & anything 😂however I can’t deal with bugs especially wasps !!
Your nails look cool the colours suit you 💛💜
Thank you ☺️
Lol yes agreed, I hate wasps, spiders, all the crawlies. YUCK! I do have a really comfy lounger to use out there but to be honest by the time I've faffed about getting bits out there I'm ready for a rest on the sofa! Or it's too hot and within minutes my skin is itching lol. All I ever wanted was a garden for my fur babies so I'm happy with that.
I will over time get it looking like more of a pretty cosy garden, it's just not a priority at the moment. Any energy I do have goes into pole.
Thank you! I do love bold nails, I usually do different designs on both hands 💜
Does anyone suffer extreme back pain ,that goes into the buttocks. ?
Yessss me, had it earlier 😢
I’m a male with fibromyalgia no one cares tho 😅
I care x
You are in the right place because we care!
💜❤️
I care ❤❤❤❤❤❤
@@ellochaos thank you but what I meant by that is. A man is supposed to deal with this and not have any support and get on with it can’t complain to no one because a man is a protector and provider ruined my life tbh can’t seem to shake it now I feel like I’m schizophrenic because of being unemployed so long
We care, we all know what your going through, glad your here. 😊
Ive had fibromyalgia for yrs & currently in a really bad flare-up am finding it hard to stand on my feet let alone take a shower dont know how you manage it & can laugh when am in tears with pains & have a home to run & kids to look after whats your secret
For the most part I don’t manage it.. My videos only show snips of a singular day. So I guess you could say my secret is editing, many HOURS of editing! 😩
I’ve always used humour as a coping mechanism to deal with pain, whether it be mental or physical. The harder I laugh is often an indicator of my pain level.
I do hope your flare has eased 💜
@@ellochaos it's not eased at all i honestly think am losing my mind, the severe pain is awful i can't even wash my hair can't sleep or eat, I've had this horrible debilitating illness now for 18yrs am only 55yrs old just past at Christmas i can honestly say this has robbed me of my life i used to be so happy hard working & looking after my family now they are having to look after me, even restless legs i just wish it would go away, God bless you 🙏❤️
@@fionamort5837 I’m so sorry 😔 Are you feeling any better today? ❤️
check out channel PAIN FREE YOU.
You can't win can you, if we sit or lie down our pain is worse. Iv had a busy weekend with family and I know tomorrow or Tuesday is going to hate me lol x
You really can’t win! Buggered if you do buggered if you don’t.. Which is why I just do it 😂
I hope you had a great weekend. Fingers crossed you’re feeling ok today? I always say ‘It was worth it so feck it!’ 😂 xx
@@ellochaos haha your totally right! Yes I had a busy weekend which was great but today I'm exhausted. You get fed up sitting at home do you. Well done for doing your pole dancing! Xxx
@irenes6627 have you recovered now? Ready for your bank holiday weekend! It does get boring. I have no plans but I want to do something but at the same time I feel too fatigued to do anything. Feeling really fed up today too.. Might just go back to bed.
I had a pole class yesterday 😃 That’s something I have to look forward to every week. Actually, I’m gonna put my pole back up at home this weekend. That gives me something to do 🙌🏽💜
@@ellochaos good on you! I think its a brilliant hobby for you. I'm badly needing to change my routine as I'm constantly struggling. I'm no good at all with pacing, I just can't do it and that sounds silly from a 57 year old woman lol. I'm crashing every week and housebound due to always doing too much! I need help hahaha. Xxxxx
That doesn’t sound silly at all! I’m not good at pacing either. It’s hard to force yourself to do nothing or go at an abnormally slow pace when you’ve a life to be living & not wanting to miss out all the time. It’s especially hard when the most “basic” of things like a quick hoover round, hanging some washing out or even taking a shower have to be factored into our daily energy whereas others just do it without a second thought! 💜
I’ve been in chronic pain for over 25 years. I’ve had six spinal surgeries when I get in a pain flareup they put me on a steroid burst. I have to take steroids for like a week quite a few of them actually they’re so strong that they make me sick, it helps take it from a level 10 to about a level six. My stomach hurts when I take them. I can’t eat and I can’t sleep. It sucks. I have realize certain foods aggravate me more than others no more gluten no more tomatoes. I have a very clean diet only fresh food, I don’t eat much. I drink a lot of water.
I've heard stories about steroids and how many awful side effects they can cause. I'm sorry to hear they make you feel so poorly. There is always a catch to these things isn't there. 'Oh we can reduce your pain levels by such and such, but with that we'll give you a big side of nausea. You feel like you just can't win at times!! Yes food sensitives have me chasing my tail, I don't know what to eat from one day to the next!
Just watching this video again as i am struggling with spasms from my neck right down into my calves and wow its so sore!! Plus like you idigestion!!!! Anyway, i would like to send you some of my beautiful essential oil melts i make......but i dont know how they would be with your beautiful cats. They are french lavender and pine needles (great for relaxation, colds, feeling run down etc). Maybe you can check these oils are ok to burn? Let me know xxxxx
Awww are you spoiling me!! That’s so lovely & thoughtful as you always are.. Sounds amazing, thank you ☺️ From what I’ve read it’s safe so long as it’s out of reach (which I’m always hyper aware of) and in a ventilated room.. My windows are always open on & off cause the buggers constantly wanna get out the windows 😂
Are the spasms any better today? Also thanks for rewatching my video, it helps the channel out 😘❤️ xx
Hi. I have had this from 1998 through 2024 (now).
It is beyond me why no research is being done for fibromyalgia😢. My only help now is my local dispensary. RSO is a God send to let me get actual rest and sleep.
Your tattoos are beautiful fellow fibro warrior❤
Awww, thank you very much fellow Fibro Warrior 💜☺️
I Love your Tats I got 5 .😊😊😊
Kia Ora,I've had fibro,since I guess in my 20s,which not realizing,I had fibromyelgia,so my body had been sore,for many years,I thought it was due to working, it got worse,in my 30rtys,and got worse in my 40ts,and now I'm 50,it's even wayworse,it was a journey, of learning,I lost memories and time,for a few years,didn't want to be around pple,didn't like light,I slept for days,and lost track of time,so I had to rehabilitate myself😢😢,it was my grason that saved me,at that time,he was my angel 😇 and savior, at the time,but that's the nexted story,to share,💜
That’s a lot of years to have to deal with daily pain. But you also sound like you’re very resilient. I hope your rehabilitation has improved your life 💜
I’m sure I had Fibro before I realised it. It wasn’t until I quit drinking (I was a heavy binge drinker) that a few months later I had the flare of all flares that got my Doctor’s investigating & came to the conclusion of Fibromyalgia. I’d never heard of it until that day. I think losing my Dad was the catalyst, quitting drinking was the final trigger, because I was finally facing myself/trauma/fears 💔 And here we are! Life changing in every manner of the word 💜
Was diagnosed CFS 26 years ago fybromyalgia 6 but same thing to me changing symptoms to more muscle pain.now diagnosed heds asperger's add genes for it Dr lenz ADHD connection may go if you have it whopping 60 percent comorbid
I have bad pain in my neck to. I also love cats. I just adore you and your videos.
I’m sorry to hear this. It’s just awful! 💜
Cats are the BEST!! 😻
Awww thank you 🥰☺️
I get a lots of pain in my neck and shoulders pain in my upper scull in upper left part .in hot months I have zero energy .I am age 66 North Florida in had this since my early 30'S . Sometimes a bath rag hurts my skin..
I have not felt well today..my neck and shoulders hurt me the worst .I have had constipation .plus been sick to my Stomach too ..I have heard a Dr years ago more or less tell nurses in ER I was Faking pain..I wished he could have felt my pain.Its Aw ful how bad I get treated when I have to go to the ER .I am treated as a drug seeking Druggie .. which I am in legit pain management.i only in time want help fixing what's wrong at the time .sorry to whine..Thank You for showing Some of Your Sekd Care. I have a Time just dressing and applying my Small bits of make up I wear them trying to walk my Dog Daily to .takes it's toll on me .Thank you for this Video it helps me a lots. 😊😊😊😊❤❤❤
That was bo begging for a treat I reckon lol xx
😉😂
How do you do ALL THAT when you’re in a flare? I’m being honest . I have fibromyalgia too and I totally get it.
I have 'fibromyalgia' and look same lol but when you look at someone else with 'fibromyalgia' it just looks like apathy, lazy and depression due to no fun in life so everything is bad and painful ..we don't look like in pain at all..your painkillers would not work for me at all.. so strange.. I don't have any painkiller due to phobia of meds but ordinary don't work so I have nothing..
Yes to most it looks like laziness etc. I guess that's why they are called Invisible Illnesses/Disabilities. I have fun in my life, not as often as I'd like but I make it a priority to make time for it. In regards to painkillers, if you are referring to Paracetamol & Ibuprofen? I take those for my headaches. They do nothing for my Fibo/Chronic Pain.
@@ellochaos ah I don’t have headache they call everything fibro 🙀 I have tension headache which is fibro 😹 but they don’t know how to treat this as it’s muscle pain.. plus I have phobia of all fibro meds apart of painkiller but they don’t give as must be fibro medication 😹
Yep I have headaches due to Fibro, across my forehead & temples down to my jaw and under the base of my skull down my neck and across my shoulders. These are my predominant areas. I also have headaches due to other illnesses I have that cause headaches like pins in my eye in direct light, sensory overload etc. So yeah over the counter don’t do much for the majority of my headache pain but I’ll take the little relief I do get in some areas. I don’t take pain meds prescribed by the Drs. I do however have lidocaine infusions and they have been a godsend in giving me enough relief to potter around the house. Maybe look into those. I posted a video of my day having the lidocaine & talk a little about my experience with it so far 👍🏽
I'm coming down from a flare with only lower back pain.
Ello 👋🏽
I hope you’re feeling much better now 💜
How identify fibromyalgia any test result mam because I'm having a same problem 😢mam my ra result negative 😢snd then how can I this pain with identify but same pain
Ello 👋🏽 I had bloods taken many times, ECG’s, MRI’s, scans & X-rays. It isn’t a quick process. It was more a case of ruling out every other possible diagnosis until they came to the result of Fibromyalgia. I now have IV Lidocaine Infusions every 4-5 months which have helped quite a lot. I hope you find relief from your pain 💜
I also wanted to ask you if you experienced more anxiety while in a flare?
I’m always extremely anxious, but yes I’d say so. Increased pain levels raises.. Everything! Anxiety, stress, irritability, mood swings. And visa versa in my case. It’s a viscous cycle 💜
Blessings ❤❤❤
Blessings to you too 💜🥰
Also have your worst parts of the pain changed iver the years
It's lessened to SOME degree over time, but it's still as debilitating as ever. The fatigue and everything else that comes with it is just as bad.
@@ellochaos yes ime sure CFS and fybromyalgia are the same thing I've had pots to seams it's all caused by autism ADHD found lots of literature on it and even in TH-cam drs making the connection and affect the thyroid all my father's side have ADHD either CFS or fybromyalgia slepp apnea low thyroid
Plz look into carnivore diet .. many anecdotals to heal autoimmune diseases
I have looked into it, many times. I can’t eat only meat but I have been incorporating it into all of my meals 👌🏽
Anyine got any better using dr sarah myhills regime
I've looked into it but its too restrictive for me.. My life is restrictive enough!
@@ellochaos yeah that's true I haven't fully done it yet but I use her minerals and they do help 20 percent have you tryed ldn yet
What is ldn?
@@ellochaoslow dose neltrexone
You are hardly ever without pain of some sort. The neck and shoulders and muscles are the worst. Have to w ear a neck collar too. Also hands are affected and limbs. Always so very tired and exhausted so very limited indeed atvwhatbyoubare able to do. Always pay afterwards for every effort too. Had it for years.