Let's Talk About My Chronic illness | Self Love & Body Confidences
ฝัง
- เผยแพร่เมื่อ 15 ก.ย. 2024
- Hello Friends
Happy Sunday I hope you are all having a lovely weekend so far 😊
Today's video was me being open with you all about my Chronic illness and a bit of a insight of what it is like living with ChronicIllness.
Please feel free to message me if you would like to talk with me about your ChronicIllness or you simply just want to talk.
I'm happy for you to also message me on Instagram @Bigprettyme1 or email me jodie.folley3@gmail.com
The Chronic Journal
chronicallyjes...
Im a new follower , I have a ME/CFS and fibromyalgia I became ill from glandular fever when I was 25 never recovered , I had two children same as you and it was amazing how well they have been through the years with me being ill . I've been ill 21 years now. Thank you for talking about your illnesses and bringing attention to the struggles. Take care x
I too have many chronic/invisible illnesses. Well done on speaking out, being brave and remaining positive.
My mission is to change the DWP’s way of thinking as a lot of invisible illnesses are not on their criteria and they definitely don’t fully understand mental health conditions that come along with those illnesses.
Also, in the video you touched on your journaling which I strongly recommend and have produced something very similar for my workplace, as trackers and logs are crucial when trying to explain things to a Doctor. Tracking pain, symptoms, medication, mood, food, weather and pressure etc etc, you can then see patterns emerging and triggers.
You also said in your video that you’d show your journal, how in-depth it is and where you got it from but think you forgot 😀 Giving out this information I think would really help some people, as most would definitely benefit from it.
Again well done, keep smiling, stay strong, positive ❤️ oh and ‘keep taking the tablets’ 🤣
When I go out I'm always told that I look really really good and well. What they don't see are the days like you that you can't get out of bed because of the fibromyalgia and arthritis. If I'm not feeling on point I don't go out. I hope videos like this will help them to understand a little bit more. Sending gentle hugs x
🤗🥰
Thanks for sharing such intimate details of yo ur life. May that information be a blessing to someone that have chronic illness.
Thank you 🥰
Hi. As someone who also suffers with long term chronic illnesses myself, that also can't be seen from the outside, it is so great to hear someone else actually talk about their own experiences as you are.
Thank you for spreading the word and for sharing those experiences on here. Never underestimate how much it can help others.
@@rlgreene5929 🤗🥰
so agree with what your saying about how people judge what they cannot see. xxx
Absolutely!
Jodi, you are so right...
Chronic illness is real, hidden disabilities are real. I suffer with mobility issues because of my osteoarthritis. Knees, hips and right arm. Big smile on my face, makeup on to go to work. While all the time I'm screaming on the inside because of pain. People need to realise and understand that you can't judge what you don't know or have to deal with. Good on you Jodi for sharing 👍
Awww bless you darling.
I know this feeling oh so well.
But yes I hope by me talking about invisible Illnesses with raise awareness 🥰🤗
I am really struggling at the moment with chronic illness. I am dreading going back to work I am judge all the while, it's hard because I put my face on I try really hard to be open and honest but people put you down and make my job harder. Manger looks at me in disgust like what are you doing here especially when I have really bad days. I work for a large company but it's hard to be myself . It has effective my home life the sadness I take home some days is unbearable I just wanted to say thank you so much for putting in words how people with chronic illness want to say but can't. You have bought positive and a brighter out look on my life especially and a really big thank you x
Hi dawn really sorry you struggling at the moment I think that you should go back and see your doctor and explain what you’re going through you need to share your problems in order to get the right help if you’re made to feel uncomfortable at your work place go and speak to your manager and explain how your feeling get a letter from your doctor to let them know what your dealing with I am sure you’re can get the help you need just share your problem and then you can be guided in the right direction for help .wishing you well and hope you feel better soon take care.
Hiya Dawn
I'm so sorry you are going through this darling. I can really relate to that dread feeling and feeling so missunderstood.
I do however think you should go back to your doctor and ask for more help. I really hope they can help you further. Sending you a massive hug darling 🤗 please reach out anytime. Xxx
Awwww dawn I’m the same I dread going into work especially on a really bad day trying to put a smile on I haven’t told my work for that reason as I don’t want to be treated badly much love to you and here if you need to chat xx
Thanks Jodie for being opened about your illness I have Hypertension Osteoarthritis Major depression Anxiety Anemia it's a struggle day too day you give me hope I'll keep you in my prayers and pray for me too
Awwwww thank you Pamela ❤️
Keeping you in my prayers too darling.
Take care of yourself 😘
Thank you so much for sharing, I have a chronic illness called antipholipid syndrome which is osteoarthritis multiple sclerosis with blood clots on both my lungs and experience same symptoms as yourself. It's so refreshing to watch your videos and know those with chronic illnesses are not alone. Keep your chin up and stay well. you are such a lovely lady.
Absolutely loved this video. Thank you so much for sharing your story and for being so honest about your chronic illnesses. It's so interesting to hear your personal experience. I'm currently under going tests for migraines I've been experiencing for the last year as a result of my other conditions and it has been mentioned about the intercranial condition you have. I've never heard anyone else talk about it. The way you spoke about how you used to feel about yourself is exactly how I'm feeling about myself right now. You really are a beautiful soul and such an inspiration xxxx
Hiya Jem Jem, awww thank you so much 🥰
I hope you get to the bottom of what is going on with you. It's so hard living with ChronicIllness buy each day you get stronger to deal with it if that makes any sense.
Always here if you ever need a chat. You can private message me on Instagram @bigprettyme1
Thank you for showing me and my channel so much love. Xxxx
Sorry I am so late in commenting but only found you last week! I suffer from arthritis which was sparked by trauma when my ex left us when my daughter was 3. We were thrown out of our home and everything I had worked for just went. We ended up in poverty. I have never got over the shock as I thought we were solid. My darling Daughter is now 17 and has been my rock. Bless you I have just heard about your trauma as well. There are so many of us who can identify with each other and you are helping us all share and know what we are not alone. I don't know how old you are but you are stunning and so young looking and, like many of us, you keep smiling through it all. Big love.
Hello lovely
Awww I'm so sorry you had to go through this but I know it has definitely made you a stronger and wiser woman and your daughter must be so proud of you.
My son's are my rocks too and I honestly don't think I could of gone on if I didn't have them.
My TH-cam channel has helped me so much and I have learnt to not be embarrassed by my trauma and to speak out about it as their are many others who maybe going through the same and need to know they are not alone.
Thank you so much for you open and kind message.
I hope you will stay a while and I hope to hear from you again soon.
Hope you have a lovely week ahead. Xx
@@bigprettyme1622 Thank you. I'm sorry I'm late replying but the heat man!! I have been lying in my own sweat most of the time (how attractive lol) xx
Thank you so much for sharing,I am still binge watching,you are so brave and honest,people always say you look so well,you have given me courage to start looking at fashion again,I used to go on the site but it got me down,love and hugs💜😻💞
Awwww 🤗🥰
U are so welcome darling. Xx
You are a beautiful soul Jodie. Chronic illnesses are terrible and many people like you and I suffer each and every day. Arthritis is one of my pains at the moment especially in my left knee. Following a recent fall in public, I am now scared when out in public if I don’t have a shopping trolley or a walking stick to lean on. Take care 😘😘💖💖🇦🇺🇦🇺
Hello Gayle
Awwww thank you so very much. I'm so sorry you are good though that pain and suffer that fall, I also have the pain very badly in my knees, so I really can relate. I don't really go anywhere within at least one of my son's because I'm scared I'm also going to fall.
Hopefully we can both build up some confidence when we are out. Take care of yourself darling and keep in touch. Xxx
Hi Jodi thank u for speaking out idk any other TH-camr I follow i to have fibromyalgia also sleep apnea I’m overweight quite a lot I have bipolar disorder diabetes arthritis bad headaches ibs overactive bladder so I’m on a lot of meds with a lot or most of them the side effects are weight gain I just wanted to say I totally understand and wanted to wish u well and thank u for the fantastic video’s xx
Bless you for speaking so openly about your chronic illness. My daughter has a number of chronic illnesses including fb and CFS. She was diagnosed over a year ago, she’s only 20 and it breaks my heart to see how much she struggles on a daily basis. There is so little understanding of these hidden illnesses and we have found it a battle to get her the help she needs. Sending you lots of love and thank you for all your wonderful videos 🥰🥰🥰
Awwww Wendy sending you and your daughter a massive hug. I agree it's a daily battle and yes there isn't alot known about it.
Let's hope that changes in the near future.
Thank you for all the love.🥰🤗
Hello I suffer from fibromyalgia and collitus and the pain is very real. I battle most days so thanks for putting this out there
You are so welcome
Big hugs 🤗 from one Chronic warrior to the other. Xx
Hi I just found your channel. Thank you for this video. I have rheumatoid arthritis, asthma and now I was told I need open heart surgery. I have a rare heart problem. I have three daughters who is 24,21 and 17 years old. My 17 year old daughter has autism. I also has a 7 year old grandson.
Hi I live with pain every day and have anxiety and I worry lots too it’s horrible living with pain every day your such i loverly person glad I follow you x
Hiya Janette
Awww bless you, thank you darling, I know it's hard going isn't it but we are warriors.
I'm so glad you found me too, welcome to my TH-cam family 🤗🥰😘
@@bigprettyme1622 we got to keep on going hun x
It is possible for it to go away, people do heal from these things. Weight and diet would be having a huge impact on your symptoms, arthritis in particular. I'm about 75% recovered from ME/CFS/Fibro/MCS. I've been doing it by massive diet changes, no grains, dairy, refined sugar or processed foods, nothing inflammatory basically and also brain retraining to heal my nervous system. Look up recovery stories, there are loads of us out there reversing chronic illness.
Thank you Jodie. Being a sufferer myself I appreciate you trying to put into words how our every day life is affected, it is very difficult to do without being long winded and people have tuned out before you have fully explained! Yes, to say pull yourself together or 'do you think it's stress? or maybe your'e not eating or drinking properly or have you tried vitamins etc etc. None of this is helpful and only upsets us and heightens our anxiety. The pain and debilitating nature of the syndrome is bad enough without people close to us not believing us and questioning us. All we need for them to say is, "sorry you can't make it tonight" or is there any way I can help?
Hiya Julie, aww u are more than welcome,🥰🤗
I agree, having to keep explaining yourself is soul destroying and so long winded, you just give up. I just locked myself always because I just couldn't deal with having to keep explaining myself.
I totally agree we need people to be more understanding. Xxx
I have 3 chronic illnesses myself. Fibromyalgia, IBS, and Spinal Stenosis in the upper and lower spine. It is very hard. Especially because you look normal but feel so awful. It is hard to accept.. but we have to hold on to the good days and be thankful. Praying for you.
I totally agree
Sending you big gentle hugs your way 🤗🥰
I suffer from fibromyalgia, depression and IBS. Everyday is hard especially in the cold weather. I keep God first I have to push through the pain.
Ikr. On the inside is falling apart and wanting to die from all the pain. I still do not understand how I'm alive from the ibs diarrhea type and cvs (cyclical vomiting syndrome).
What an inspirational, beautiful lady you are Jodie! Thank you so much for this vlog. We all need to judge less and be kind. I was in awe watching your make up (even if you say it wasnt good) Please carry on doing what you love. x
Awwww thank you Jo 🥰🤗💞
Hi Jodi! I also have FB and Arthritis. I'm in pain everyday. My husband is younger and I hate that I can't keep up with him....I just don't have the strength. Thanks for sharing....💞
Hello Bonnie so lovely to hear from you. I totally know how you feel, my fiance is the same age as me but I can't keep up. It's tough going living in pain everyday but we are warriors 🙏🏽🥰
hi,new to your channel,i just wanted to say thanx for being open about your health,i was diagnoised with fibro 6yrs ago after surgery,was also born with spina biffida occult,osteo arthritis in my ankles.an now being tested for rhumetoid arthritis..list seems to be endless lol.but you just dont see alot of people talking about having this,so thank you,not only do i get plus size fashion i also have a community with chronic health issues also...x
Hiya Debbie, awww you are so very welcome. We are both Chronic warriors who loves plus size fashion 🤗🥰😘
Take care of yourself and keep in touch 💕
Just want to give you a hug. 🤗. Thank you for sharing such a personal story to let us know how life can sometimes throw you a curve ball. But, although you’re still suffering physical pain, you have shown so much strength and it’s helped make you the strong woman you are today. Keep going darling. 🥰
Awwww thank you so much Sarah 🤗🥰
Romans 10:17(KJV)17 So then faith cometh by hearing, and hearing by the word of God.
Just came across your channel I also suffer from fibromyalgia along with other illnesses and have spoke about this on my channel too , always here if you want a chat xx
I suffer from a few chronic conditions myself so I know exactly how you feel. And anxiety is really thee icing on the cake! When you can’t sleep for planning a simple task the next day.
Your doing great to get these videos out x
Awwww thanks you sweetheart 💕
I have been getting extreme anxiety over simple decisions and simple tasks, become overwhelming.
I really love and appreciate you so very much!! I feel so blessed to have found your channel! I am 44 and I have always been a big girl. I have found a new confidence in myself and in my body since discovering your channel. Your positivity is so contagious and I feel so good when I look in the mirror and I haven't felt that way in years. I love that you are showing people that you can still do so much while still suffering with chronic illnesses. I have tendinitis in both feet, lower back issues and now just found out I have tennis elbow. I have 2 kids and a great husband, but I still hv to push through the pain and the day without doing too much!! Thank you so very much for sharing so much with us. Keep fighting the good fight. You are such a beautiful angel inside and out. 💋❤ 😇
Awwwww thank you so much Leslie 🥰 this message really touch my heart 💖.
I'm so so happy for you, I know that feeling so very well when you said to look at yourself definitely and you find that self love fore yourself. Good on you sweetheart. We are beautiful Chronic warriors.
God bless you darling.
Thank you for always showing me and my channel so much love 💖
I know I am a latecomer to this channel but well done on raising awareness of hidden conditions and disabilities xx
I also admire your efforts to look nice and dress well despite your difficulties. I just knew you were going to say you have fibro (I have it too). I, too, try to look my best when I go because I think it helps psychologically. I might be feeling shit inside but I'm not going to reflect it in my appearance because I am "more than my condition".
When I heard the list of other chronic conditions you have been diagnosed with I started to think "Well that's just greedy!" 🤣 I'm as bad because have four other chronic conditions but thanks to medication they don't impact on me much at all so I don't really count them; fibro is enough to deal with!
Awww Hello lovely
Aww you are more than welcome darling. I think it's so important to talk about it.
Glad you found me 🤗🥰
Welcome to my TH-cam family xxx
@@bigprettyme1622 Thank you! It's good to make contact with a positive fibro warrior x
Hang in there sweetie. I have FM, Lupus, Stills Disease and many others and some days it's like they are all shouting "Me Me ME". I've battled for 40 years or more and I will not let these illneses define me.You are one positive, kick ass, strong lady. One thing I would say is take advantage of anything that makes life easier. I got my life back after admitting I needed a wheelchair, just do what you have to and feel no shame. many Blessings xxx
Awwww thank you darling. I'm really trying to do the same by not letting my Illnesses define me. We are Chronic warriors 🙏🏽🥰🤗
Jodie, I enjoy your videos. Thanks for being so honest about your conditions (illnesses). Please take care of your self.
Awwww thank you darling 😘🤗🥰
Jodie, thanks for your honesty. I have a chronic illness and understand how it can affect your quality of life. It can be a lonely journey at times.
Hello lovely
Your more than welcome and yes I totally understand that feeling of loneliness.
Please feel free to reach out anytime darling. Xx
So honest and inspiring Jody, I spent my whole life waiting to do so many things once I lost weight. Only message from that Do Not Put Life On Hold! Spend too much time worrying about other people’s opinions, there’s really no need we do enough beating ourselves up to let the world do it too. Now I have chronic leukaemia I know I am blessed it’s no acute as much as I have struggled to know this is my new normal and have not told many as fed up explaining it’s not all going to be ok in a certain amount of time. The painful days are more than less but in my head I still say tomorrow I will wake feeling brighter. You cheer me up I get so excited when I get a notification so thank you for being who you are 😘💞
Awwwww Donna your message send me a wave of emotions. I'm so glade you have got over that " I will do it when I lose weight" I can relate so much because I was the same.
I love your spirit, yes tomorrow is a new day, life is short so we have to live in hope and keep being the strong woman that we are.
Thank you for showing me so much love and support my channel.
Sending you a big gentle hug 🤗 xxx
@@bigprettyme1622 💁🏼♀️ don’t save the dress, don’t save the perfume, don’t save anything. use it today! Enjoy ur evening before that school run in mng 🤣 I will be thinking of u 😴😴
Thank you for sharing your chronic illnesses with us it must of took a lot for you to do that. I have multiple chronic illnesses too I do have fibromyalgia and osteoarthritis along with co morbiditys and I get really get what your saying I find the hardest is people can not see it so they judge stay strong and take care x
Awwww thank you.
It's so hard dealing with other people judgement of people with Invisible illness.
But we have to stay strong🥰😊
Your are such a beautiful soul Jodie! I’m 31 and look up to you! My fave TH-cam/Instagramer! You are so real and relatable ❤️❤️❤️
Awwwww thank you sweetheart 💕 this message has made my night 🥰🤗
I know your pain. I go through fibromyalgia and neuropathy pain daily. It's worse then giving birth naturally. I'm so sorry sweetie because your so young. I was informed of this illness at 50 years old now I'm 58. Sometimes you can't even get out of the bed. I'm praying for you. Sweetie I do feel all of your pain and issues. People really don't understand.
Awww bless you darling, thank you so much.
Sending you a big gentle hug 🤗🥰
Same here. I' m always in pain from rheumatoid arthritis, bursitis and fibromyalgia with all the varied symptoms that come with them. l was diagnosed about 20 years ago. I am now 61 and everything has worsened since I went through menopause. I really feel sorry for all of us who have to live with these conditions but I've learned that despite the pain and discomfort , doing what you can and keeping a positive attitude has kept me from going crazy or giving up. New subbie!!!
@@LadyDee150 awwww you are a Chronic warrior 🤗
So glad you found my channel and I hope you find comfy, fun and enjoyment out of my videos.
Sending you a big gentle hug your way 🤗😘
@@bigprettyme1622 Thanks Hon! Sending back a gentle hug your way. God only knows how good it is to find someone like you who truly understands. Just watched your latest vlog and was in tears by the end of it. Just seeing how you smiled and looked gorgeous all the way despite constant physical pain and remnants of emotional pain made me feel so encouraged. I love your channel!
Omg I’m having all those same symptoms just starting happening out of the blue for about 3weeks now
Isaiah 53:4-5(KJV)4 Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted.5 But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed.
Jodi thank you I thought it was just me with family that don’t understand my illness they run between telling me how I feel and how my illness will progress to looking at me funny when I can’t do something or tell them am tired. My illness has now effected my emotional state I’ve gone from being a quiet relaxed person to crying for no reason to when arguing having no filter and they don’t understand just say I look for the argument!!
It’s exhausting. But on we must go. Love your videos keep doing them please when you are upto it 😀🖤🖤🖤
Awwww bless you Sarah I can really relate to the change in emotions I get like that too. It became it just hard to juggle the pain along with all the other shit that come with it.
But yes as you said on we must go. Keep strong darling.
Thank you for all the love and support 😊🤗
I totally love your videos 🥰 I supper like you everyday some days it's a hurrdous 😢 but I love fashion and a have a big personality ! You so lovely 💓 I stumbled across you and you cheered me up x
Excuse my spelling my fog is bad x
This made me feel less alone. I have cvs (cyclical vomiting syndrome), ibs (diarrhoea type) , (feel like a cancer patient, but thankfully without the cancer). Myalgic encephalomyelitis, and Schizoeffective disorder. On many meds but tried msny herbal remedies. Been struggling a lot.
@ASMR-XI-ZUI bless you, darling 😘 u are right. you are not alone, sweetheart. Just take one day at a time and try look after yourself and seek help when you need it. Xx
Hang in there my beautiful friend ♥️ Love this video and YOU!! 💋
Thank you my love 🥰❤️
From one Jodie to another ... You are so open & honest ..
People do say ‘ You don’t look ill ‘ and that’s infuriating, and damn right rude
Myself I had a mental breakdown .. yeah I look ok I guess ... to a stranger
Hello lovely
I totally agree with you.
Never judge a book by its cover. Xx
Your makeup is beautiful 🤩 hope your doing okay, love your videos ❤️
Awwww thank you darling 😘💘
You’re amazing Jody x
Thank you so much Deb 🥰🤗
OMG I lost my mum in January 2017. She was diagnosed with cancer and died 11 days later. She was my best friend xxx
Awwww I'm so sorry to hear that. It's so hard losing your parents.
I no how how u feel hon, sending u hugs n love xx
Right back at you sweetheart 😘🤗🥰
I totally understand what you mean. I got diagnosed with a brain condition and had two surgeries following that that I lost the one friend I had. You can't make this stuff up. I think people get scared of change and they don't know what to do and accept the new you.
Awwww bless u darling, I hope the surgeries helped. I agree you really can not make it up it' up.
Life is hard enough without having support from your closet family and friends.
@@bigprettyme1622 It's ok, I just get on with it best I can. I'm blessed every day I can open my eyes. Take care xx
Nice job! I love listening to yr voice its lovely 😍
Thank you 😊
There's certain boxing techniques you can do to keep some pain away and some fruits to
Jeremiah 33:6(KJV)6 Behold, I will bring it health and cure, and I will cure them, and will reveal unto them the abundance of peace and truth.
3 John 2(KJV)2 Beloved, I wish above all things that thou mayest prosper and be in health, even as thy soul prospereth.
Matthew 8:17(KJV)17 That it might be fulfilled which was spoken by Esaias the prophet, saying, Himself took our infirmities, and bare our sicknesses.
Psalm 103:1-3(KJV)1 Bless the Lord, O my soul: and all that is within me, bless his holy name.2 Bless the Lord, O my soul, and forget not all his benefits:3 Who forgiveth all thine iniquities; who healeth all thy diseases;
👍👍👍
hope its ok I have requested you as a friend on facebook xx
Hiya Tracy
I don't use Facebook anymore but if you have Instagram please follow me their. 🥰
Sent you a pm over on IG 😘