Love the honesty here kal. So glad on how open you are with it all now days. I am sure a lot of others who are going through similar diagnosis will take a lot from a video like this one. :)
Thanks Georgey, that should definitely be its own video. I'll have to get in touch with some parents to get their tips also. I appreciate the consistent great ideas from you!
Thanks for sharing about your journey! It's good to see you are not alone with this - I related a lot. I was also diagnosed at 14/16 and now I am 31. Disclosing to friends and family is not easy, congrats on your courage to create this channel. I'm looking forward to watching more of your videos!
Thanks Nicole! It definitely gets a bit easier when you find people going through the same thing. I really appreciate the kind words and I hope you're doing well :)
really informative video once again - so happy for you that you decided to tell everyone !! I’m excited for the next video and the Instagram content as well ☺️
Thanks for the continued support Bianca! It has definitely been a huge weight off my shoulders speaking out about it. Keen to get the Instagram going! :)
I relate to this. While I dont have fshd, I am partially blind in one eye although my other eye is correctable with glasses. It actually does really affect my life in sport and I cant drive also. But ive found things I can do..ive recently gotten into bouldering and rock climbing. its great and doesnt involve much depth perception since the boulders are right up close to my face. I also live near a train that I can take to work and gives me that mobility I need. My life is still great even with these challenges. Im also really open about it at work because sometimes I do need accommodations like a bigger screen or the ability to print things since looking at computer screens for too long hurts my eyes. My issue was due to a really shitty eye infection and isn't genetic but it def impacted my life alot. We all have challenges in life for sure and everyone has to adapt in some way I think.
Thanks for the comment Natasia! It's great that you've found some things that you can do and that provide you joy. I remember getting into bouldering a few years ago, it's very addictive! I really admire your attitude and how open you are about what you're going through. I agree that everyone has their own things going on and I think that's what makes people interesting and unique. It really is all about figuring out what you can do and being happy with that. I appreciate the comment :)
Thanks for watching!
How do you stay positive when life throws a curveball at you?
Thanks for sharing Kal! Looking forward to see what you do next in this new chapter of your life!!
Thanks Ollie, me too!!
Love the honesty here kal. So glad on how open you are with it all now days. I am sure a lot of others who are going through similar diagnosis will take a lot from a video like this one. :)
Thanks Luke, it's definitely a relief to finally get it out there. I appreciate the kind words and support brother :)
Great vid kal cheers for sharing. Respect how honest you are mate. Wish we could’ve been there for you at the time but glad we can now
Thanks Nath, I'm trying to keep things as real as possible. Your support means a lot brother
Great video mate, so much respect for you putting yourself out there, looking forward to seeing what's to come with the channel
I really appreciate it Zaki, good to hear from you man. Plenty more to come!
Great vid Kal, super interesting to think about how parents approach a progressive disability. I wonder if you have any tips for parents?
Thanks Georgey, that should definitely be its own video. I'll have to get in touch with some parents to get their tips also. I appreciate the consistent great ideas from you!
Thanks for sharing about your journey! It's good to see you are not alone with this - I related a lot. I was also diagnosed at 14/16 and now I am 31. Disclosing to friends and family is not easy, congrats on your courage to create this channel. I'm looking forward to watching more of your videos!
Thanks Nicole! It definitely gets a bit easier when you find people going through the same thing. I really appreciate the kind words and I hope you're doing well :)
really informative video once again - so happy for you that you decided to tell everyone !!
I’m excited for the next video and the Instagram content as well ☺️
Thanks for the continued support Bianca! It has definitely been a huge weight off my shoulders speaking out about it. Keen to get the Instagram going! :)
Amazing vid Kal ❤
Thanks Vish!!
I relate to this. While I dont have fshd, I am partially blind in one eye although my other eye is correctable with glasses. It actually does really affect my life in sport and I cant drive also. But ive found things I can do..ive recently gotten into bouldering and rock climbing. its great and doesnt involve much depth perception since the boulders are right up close to my face. I also live near a train that I can take to work and gives me that mobility I need. My life is still great even with these challenges.
Im also really open about it at work because sometimes I do need accommodations like a bigger screen or the ability to print things since looking at computer screens for too long hurts my eyes. My issue was due to a really shitty eye infection and isn't genetic but it def impacted my life alot. We all have challenges in life for sure and everyone has to adapt in some way I think.
Thanks for the comment Natasia! It's great that you've found some things that you can do and that provide you joy. I remember getting into bouldering a few years ago, it's very addictive! I really admire your attitude and how open you are about what you're going through. I agree that everyone has their own things going on and I think that's what makes people interesting and unique. It really is all about figuring out what you can do and being happy with that. I appreciate the comment :)