Thank you so much for making this video honey. I’m exactly the same and have been for nearly 20 years. Been misdiagnosed with IBS or food intolerance 🙄 big hugs 🤗 xxx
I'm dealing with the same. When I was an infant, I cried horribly, so my mom took me to some of the top pediatricians in Seattle (this was in 1970). They told her I was fine and she was spoiling me. Later, as a toddler (2 years), I was dx'd with a spastic colon (aka~ IBS). But I've had digestive issues worse than IBS all my life. Now my GI, whom I dislike and doesn't know EDS, has cancelled 1 colonoscopy/endoscopy the afternoon before, and I've gotten worse. My swallow study was positive for delayed esophageal emptying and possible stricture, and my duodenum prolapsed. My GP believes my only hope for proper treatment is to find it outside of Texas😞
As you already know, I'm the same. We're like total twins, stomach, allergies. etc etc I've been avoiding doc appts for awhile now, but time to get back on track. If u get a min can u message me on ig what docs- espec the gastro. As I sit here in pain since I ate.
Thank you so much for making this video honey. I’m exactly the same and have been for nearly 20 years. Been misdiagnosed with IBS or food intolerance 🙄 big hugs 🤗 xxx
I'm dealing with the same. When I was an infant, I cried horribly, so my mom took me to some of the top pediatricians in Seattle (this was in 1970). They told her I was fine and she was spoiling me. Later, as a toddler (2 years), I was dx'd with a spastic colon (aka~ IBS). But I've had digestive issues worse than IBS all my life. Now my GI, whom I dislike and doesn't know EDS, has cancelled 1 colonoscopy/endoscopy the afternoon before, and I've gotten worse. My swallow study was positive for delayed esophageal emptying and possible stricture, and my duodenum prolapsed. My GP believes my only hope for proper treatment is to find it outside of Texas😞
As you already know, I'm the same. We're like total twins, stomach, allergies. etc etc
I've been avoiding doc appts for awhile now, but time to get back on track. If u get a min can u message me on ig what docs- espec the gastro. As I sit here in pain since I ate.
Im lucky if i can get in one meal a day.....my husband can eat so much im so jealous
( my gastro did dx me gp, but I'm just not thrilled with him and he's not eds aware.
GP sucks. I have severe GP